Civic Intelligence

Pcd Ks Foundation

990 • Fiscal year 2020 • EIN 20-0543474

Jan 01, 2020 to Dec 31, 2020 • Filed on Jun 16, 2021

Organization ProfileWWW.PCDFOUNDATION.ORG

View Organization Page

61 Lake Meadow DriveRochester, NY 14612

(612) 386-1261

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

50th percentile

0.10x

Higher debt load relative to assets than 50% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Liabilities / Revenue

64th percentile

0.24x

Higher debt load relative to revenue than 64% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Net Margin

91st percentile

55%

Higher net margin than 91% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Top Officer Pay

74th percentile

$112,000

Higher top officer pay than 74% of similar nonprofits.

Top officer pay equals 15.6% of source-year revenue.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Asset Growth

84th percentile

45%

Faster asset growth than 84% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2019 to 2020

Revenue Growth

62nd percentile

7.1%

Faster revenue growth than 62% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2019 to 2020

Balance Sheet
Liabilities / Assets50th percentile

Assets

Up

$1,752,401

Up $540,043 (+45%) from 2019

Net Assets

Up

$1,579,488

Up $391,353 (+33%) from 2019

Liabilities

Up

$172,913

Up $148,690 (+614%) from 2019

Revenue And Expenses
Liabilities / Revenue64th percentileNet Margin91st percentile

Revenue

Up

$716,594

Up $47,692 (+7.1%) from 2019

Expenses

Down

$325,345

Down $187,103 (-37%) from 2019

Net Income

Up

$391,249

Up $234,795 (+150%) from 2019

Historical Trend

Balance Sheet Trend

Asset Growth84th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$4.0M$3.0M$2.0M$1.0M$0Assets 2011: $43,665Liabilities 2011: $02011Assets 2012: $43,757Liabilities 2012: $02012Assets 2013: $96,840Liabilities 2013: $02013Assets 2014: $227,262Liabilities 2014: $0Net Assets 2014: $227,2622014Assets 2015: $310,262Liabilities 2015: $0Net Assets 2015: $310,2622015Assets 2016: $410,759Liabilities 2016: $0Net Assets 2016: $410,7592016Assets 2017: $828,964Liabilities 2017: $23,148Net Assets 2017: $805,8162017Assets 2018: $1,055,384Liabilities 2018: $23,747Net Assets 2018: $1,031,6372018Assets 2019: $1,212,358Liabilities 2019: $24,223Net Assets 2019: $1,188,1352019Assets 2020: $1,752,401Liabilities 2020: $172,913Net Assets 2020: $1,579,4882020Assets 2021: $3,186,526Liabilities 2021: $439,377Net Assets 2021: $2,747,1492021Assets 2022: $3,346,050Liabilities 2022: $316,853Net Assets 2022: $3,029,1972022Assets 2023: $3,268,548Liabilities 2023: $398,664Net Assets 2023: $2,869,8842023Assets 2024: $3,595,466Liabilities 2024: $382,179Net Assets 2024: $3,213,2872024

Highlighted filing

2020

Assets$1,752,401
Liabilities$172,913
Net Assets$1,579,488
Open 2020 Filing

Operations Trend

Revenue Growth62nd percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$3.0M$2.0M$1.0M$0-$1.0MRevenue 2011: $118,693Expenses 2011: $78,419Net Income 2011: $40,2742011Revenue 2012: $74,767Expenses 2012: $90,002Net Income 2012: -$15,2352012Revenue 2013: $122,637Expenses 2013: $65,014Net Income 2013: $57,6232013Revenue 2014: $295,567Expenses 2014: $165,145Net Income 2014: $130,4222014Revenue 2015: $338,072Expenses 2015: $255,072Net Income 2015: $83,0002015Revenue 2016: $419,004Expenses 2016: $318,507Net Income 2016: $100,4972016Revenue 2017: $847,234Expenses 2017: $446,044Net Income 2017: $401,1902017Revenue 2018: $628,741Expenses 2018: $402,926Net Income 2018: $225,8152018Revenue 2019: $668,902Expenses 2019: $512,448Net Income 2019: $156,4542019Revenue 2020: $716,594Expenses 2020: $325,345Net Income 2020: $391,2492020Revenue 2021: $2,011,124Expenses 2021: $843,231Net Income 2021: $1,167,8932021Revenue 2022: $1,109,263Expenses 2022: $827,296Net Income 2022: $281,9672022Revenue 2023: $895,288Expenses 2023: $1,054,601Net Income 2023: -$159,3132023Revenue 2024: $1,994,370Expenses 2024: $1,650,828Net Income 2024: $343,5422024

Highlighted filing

2020

Revenue$716,594
Expenses$325,345
Net Income$391,249
Open 2020 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2020 to Dec 31, 2020
Signed
Jun 16, 2021
Return Version
2020v4.0
Gross Receipts
$746,844
Mission and Program Overview

Mission

To provide the leadership and resources needed to support increased research, accelerated diagnosis, improved health, and ultimately a cure for primary ciliary dyskinesia (pcd).

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$1,199,982$1,713,343▲ $513,361
Pledges and Grants Receivable-$25,650-
Prepaid Expenses and Deferred Charges$2,222$8,233▲ $6,011
Investments in Publicly Traded Securities$10,154$5,175▼ $4,979
Total Assets$1,212,358$1,752,401▲ $540,043
Liabilities
Mortgage Notes Payable Secured by Investment Property-$150,000-
Accounts Payable and Accrued Expenses$24,223$21,218▼ $3,005
Other Liabilities-$1,695-
Total Liabilities$24,223$172,913▲ $148,690
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$1,098,613$1,579,488▲ $480,875
Net Assets With Donor Restrictions$89,522--
Total Net Assets Fund Balance$1,188,135$1,579,488▲ $391,353
Total Liabilities and Net Assets / Fund Balance$1,212,358$1,752,401▲ $540,043
Compensation and Service Providers
Top Officer Pay74th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Michele ManionExec. Dir.,FT$112,000$112,000
Lynn EhrneDirector, SeFT$46,020$46,020

Board Members and Trustees

NameTitle
Gary JoynerChair Emerit
Amy KovlerChair, Treas
Bill AntonVice Chair
Dr Margaret LeighDirector
Tori EastvoldDirector
Carrie WillisDirector, VP
Revenue and Support

Revenue Composition

Contributions and Grants
$716,187
Program Service Revenue
$0
Investment Income
$407
Other Revenue
$0
All Other Contributions
$683,309
Change in Net Assets
$391,249

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported Amount
Other Non Cash Contri Table3$25,168
Total Noncash Contributions3$25,168

Audited Revenue Reconciliation

Revenue per Audited Statements
$716,594
Revenue Not Reported on Form 990
$104
Total Revenue per Audited Statements
$716,698
Total Revenue per Form 990
$716,594
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$170,301
Other Expenses$118,874
Grants and Similar Amounts Paid$36,170
Total Fundraising Expense$13,881
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Current Officers, Directors, Trustees, and Key Employees$118,515$39,505-$158,020
Fees for Services Other$31,710$5,239-$36,949
Grants to Domestic Orgs$26,170--$26,170
Fees for Services Accounting$19,854$3,281-$23,135
Conferences and Meetings$5,534-$8,547$14,081
Payroll Taxes$9,211$3,070-$12,281
Foreign Grants$10,000--$10,000
Office Expenses$3,644$1,214-$4,858
Other Expenses$3,335$1,307$5,233$3,335
Insurance$2,458$819-$3,277
Information Technology$2,162$720$101$2,983
Interest-$1,695-$1,695
Advertising$582--$582
All Other Expenses$544--$544
Total Functional Expenses$254,175$57,289$13,881$325,345

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$325,345
Total Expenses per Audited Statements$325,345
Total Expenses per Form 990$325,345
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Unc Health FoundationChapel Hill, NC-Research Grant$20,000

International Compliance

Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Accrued Interest$1,695
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 8B

“X”

Form 990, Page 6, Part VI, Line 9

“Gary joyner 64 lawton road hilton head, sc 29928 amy kovler 540 w stratford chicago, il 60657 bill anton 1907 n milwaukee ave chicago, il 60647 lynn ehrne 61 lake meadow drive rochester, ny 14612 tori eastvold 123 woodland dr forest city, ia 50436 carrie willis 387 kamnic street pierz, mn 56364 dr. Margaret leigh 904 monterey valley drive chapel hill, nc 27516-9132”

Form 990, Page 6, Part VI, Line 11B

“Form 990 is prepared by an independent cpa firm. The 990 is distributed to all board members for comment and a vote to approve before filing.”

Form 990, Page 6, Part VI, Line 12C

“Potential conflicts are submitted in writing and reviewed on an as needed basis by the executive committee and again annually by the entire board when all board members are required to re-sign the coi policy.”

Form 990, Page 6, Part VI, Line 19

“No documents available to the public”

Filing and Contact Details

Filer

Filer Name
Pcd Ks Foundation
EIN
20-0543474
Phone
6123861261
Address
61 LAKE MEADOW DRIVE, ROCHESTER, NY 14612
Doing Business As
Pcd Foundation

Signing Officer

Name
Michele Manion
Title
Exec. Dir., Founder
Phone
6123861261
Signed
2021-06-16

Organization Details

Principal Officer
Michele Manion
Formed
2004
Legal Domicile
Mn
Voting Board Members
8
Independent Board Members
6
Employees
2
Volunteers
20

Preparer

Firm
Olson Clough & Leblanc Ltd
Address
10580 WAYZATA BLVD STE 200, MINNETONKA, MN 55305-1525
Preparer
Michael P Amberson
Phone
9525449600
Supplemental Narrative

Additional Explanations

Form 990, Part IX, Line 11G

“Consulting 31,710 5,239 0”

Raw XML AppendixShowing 400 of 435 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ProgSrvcAccomActy2Grp/Desc0DEVELOPMENT OF CLINICAL CENTERS AT MAJOR HOSPITALS THROUGHOUT THE UNITED STATES. THESE CLINICAL CENTERS WILL MAKE INFORMATION AVAILABLE TO THE MEDICAL COMMUNITY ABOUT THE NATURE OF PCD AND PROVIDE UPDATED RESEARCH INFROMATION.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt092071
IRS990/ProgSrvcAccomActy2Grp/GrantAmt036170
IRS990/ProgSrvcAccomActy3Grp/Desc0PATIENT REGISTRY AND OTHER DEVELOPMENT COSTS TO DOCUMENT PCD AFFLICTED INDIVIDUALS. THE REGISTRY CAN ONLY BE UPDATED BY QUALIFIED MEDICAL PERSONNEL.
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IRS990/PYTotalExpensesAmt0512448
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IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt0407275
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IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt0847268
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt0419004
IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt03280779
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IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc0ACCRUED INTEREST
IRS990ScheduleD/RevenueNotReportedAmt0104
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IRS990ScheduleD/TotalExpensesPerForm990Amt0325345
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IRS990ScheduleF/ForeignCorpOwnershipInd0false
IRS990ScheduleF/ForeignPartnershipInd0false
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt010000
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/MannerOfCashDisbursementTxt0CHECK
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt0RESEARCH GRANT
IRS990ScheduleF/InterestInForeignTrustInd0false
IRS990ScheduleF/PassiveForeignInvestmestCoInd0false
IRS990ScheduleF/TransferToForeignCorpInd0false
IRS990ScheduleI/GrantRecordsMaintainedInd0true
IRS990ScheduleI/RecipientTable/CashGrantAmt020000
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0RESEARCH GRANT
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0UNC HEALTH FOUNDATION
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt0PO BOX 1050
IRS990ScheduleI/RecipientTable/USAddress/CityNm0CHAPEL HILL
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IRS990ScheduleM/AnyPropertyThatMustBeHeldInd0false
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IRS990ScheduleM/ReviewProcessUnusualNCGiftsInd0false
IRS990ScheduleM/ThirdPartiesUsedInd0false
IRS990/ScheduleORequiredInd0false
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0X
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1GARY JOYNER 64 LAWTON ROAD HILTON HEAD, SC 29928 AMY KOVLER 540 W STRATFORD CHICAGO, IL 60657 BILL ANTON 1907 N MILWAUKEE AVE CHICAGO, IL 60647 LYNN EHRNE 61 LAKE MEADOW DRIVE ROCHESTER, NY 14612 TORI EASTVOLD 123 WOODLAND DR FOREST CITY, IA 50436 CARRIE WILLIS 387 KAMNIC STREET PIERZ, MN 56364 DR. MARGARET LEIGH 904 MONTEREY VALLEY DRIVE CHAPEL HILL, NC 27516-9132
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2FORM 990 IS PREPARED BY AN INDEPENDENT CPA FIRM. THE 990 IS DISTRIBUTED TO ALL BOARD MEMBERS FOR COMMENT AND A VOTE TO APPROVE BEFORE FILING.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3POTENTIAL CONFLICTS ARE SUBMITTED IN WRITING AND REVIEWED ON AN AS NEEDED BASIS BY THE EXECUTIVE COMMITTEE AND AGAIN ANNUALLY BY THE ENTIRE BOARD WHEN ALL BOARD MEMBERS ARE REQUIRED TO RE-SIGN THE COI POLICY.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4NO DOCUMENTS AVAILABLE TO THE PUBLIC
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5CONSULTING 31,710 5,239 0
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990, PAGE 6, PART VI, LINE 8B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PAGE 6, PART VI, LINE 9
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PAGE 6, PART VI, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3FORM 990, PAGE 6, PART VI, LINE 12C
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4FORM 990, PAGE 6, PART VI, LINE 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc5FORM 990, PART IX, LINE 11G
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IRS990/SubjectToProxyTaxInd0false
IRS990/SubjToTaxRmnrtnExPrchtPymtInd0false
IRS990/TaxablePartyNotificationInd0false
IRS990/TaxExemptBondsInd0false
IRS990/TerminateOperationsInd0false
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IRS990/TotalAssetsGrp/EOYAmt01752401
IRS990/TotalCompGreaterThan150KInd0false
IRS990/TotalContributionsAmt0716187
IRS990/TotalEmployeeCnt02
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt013881
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt057289
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt0254175
IRS990/TotalFunctionalExpensesGrp/TotalAmt0325345
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IRS990/TotalLiabilitiesGrp/EOYAmt0172913
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IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt0302
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IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd0false
IRS990/UponRequestInd0X
IRS990/USAddress/AddressLine1Txt010137 PORTLAND AVE S
IRS990/USAddress/CityNm0MINNEAPOLIS

Document Assets

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Filings

Displayed year

2020 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$1,752,401
Liabilities
$172,913
Net assets
$1,579,488
Revenue
$716,594
Expenses
$325,345
Net income
$391,249
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$3.60$0.38$3.21$1.99$1.65$0.34
2023Detailed filing. Detailed filing data is available for this year.$3.27$0.40$2.87$0.90$1.05$0.16
2022Detailed filing. Detailed filing data is available for this year.$3.35$0.32$3.03$1.11$0.83$0.28
2021Detailed filing. Detailed filing data is available for this year.$3.19$0.44$2.75$2.01$0.84$1.17
2020Detailed filing. Detailed filing data is available for this year.$1.75$0.17$1.58$0.72$0.33$0.39
2019Detailed filing. Detailed filing data is available for this year.$1.21$0.02$1.19$0.67$0.51$0.16
2018Detailed filing. Detailed filing data is available for this year.$1.06$0.02$1.03$0.63$0.40$0.23
2017Detailed filing. Detailed filing data is available for this year.$0.83$0.02$0.81$0.85$0.45$0.40
2016Detailed filing. Detailed filing data is available for this year.$0.41$0.00$0.41$0.42$0.32$0.10
2015Detailed filing. Detailed filing data is available for this year.$0.31$0.00$0.31$0.34$0.26$0.08
2014Summary only. Only limited summary data is available for this year.$0.23$0.00$0.23$0.30$0.17$0.13
2013Summary only. Only limited summary data is available for this year.$0.10$0.00$0.12$0.07$0.06
2012Summary only. Only limited summary data is available for this year.$0.04$0.00$0.07$0.09$0.02
2011Summary only. Only limited summary data is available for this year.$0.04$0.00$0.12$0.08$0.04