Civic Intelligence

Neurofibromatosis Network

990 • Fiscal year 2021 • EIN 04-3030760

Oct 01, 2020 to Sep 30, 2021 • Filed on Jun 27, 2022

Organization ProfileWWW.NFNETWORK.ORG
213 South Wheaton AvenueWheaton, IL 60187

(630) 510-1115

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

39th percentile

0.03x

Higher debt load relative to assets than 39% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2021

Liabilities / Revenue

40th percentile

0.05x

Higher debt load relative to revenue than 40% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2021

Net Margin

88th percentile

54%

Higher net margin than 88% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2021

Top Officer Pay

39th percentile

$0

Higher top officer pay than 39% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2021

Asset Growth

88th percentile

59%

Faster asset growth than 88% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2020 to 2021

Revenue Growth

87th percentile

97%

Faster revenue growth than 87% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2020 to 2021

Balance Sheet
Liabilities / Assets39th percentile

Assets

Up

$1,225,098

Up $454,087 (+59%) from 2020

Net Assets

Up

$1,192,493

Up $423,965 (+55%) from 2020

Liabilities

Up

$32,605

Up $30,122 (+1213%) from 2020

Revenue And Expenses
Liabilities / Revenue40th percentileNet Margin88th percentile

Revenue

Up

$683,316

Up $336,733 (+97%) from 2020

Expenses

Up

$315,772

Up $7,945 (+2.6%) from 2020

Net Income

Up

$367,544

Up $328,788 (+848%) from 2020

Historical Trend

Balance Sheet Trend

Asset Growth88th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.5M$1.0M$500K$0Assets 2011: $421,681Liabilities 2011: $2,447Net Assets 2011: $419,2342011Assets 2012: $435,958Liabilities 2012: $6,139Net Assets 2012: $429,8192012Assets 2013: $381,998Liabilities 2013: $4,929Net Assets 2013: $377,0692013Assets 2014: $413,464Liabilities 2014: $28,191Net Assets 2014: $385,2732014Assets 2015: $350,027Liabilities 2015: $3,290Net Assets 2015: $346,7372015Assets 2016: $387,744Liabilities 2016: $69,722Net Assets 2016: $318,0222016Assets 2017: $293,288Liabilities 2017: $13,291Net Assets 2017: $279,9972017Assets 2018: $417,083Liabilities 2018: $47,079Net Assets 2018: $370,0042018Assets 2019: $703,734Liabilities 2019: $3,094Net Assets 2019: $700,6402019Assets 2020: $771,011Liabilities 2020: $2,483Net Assets 2020: $768,5282020Assets 2021: $1,225,098Liabilities 2021: $32,605Net Assets 2021: $1,192,4932021Assets 2022: $1,209,936Liabilities 2022: $4,974Net Assets 2022: $1,204,9622022Assets 2023: $1,185,451Liabilities 2023: $16,744Net Assets 2023: $1,168,7072023Assets 2024: $1,228,709Liabilities 2024: $7,605Net Assets 2024: $1,221,1042024

Highlighted filing

2021

Assets$1,225,098
Liabilities$32,605
Net Assets$1,192,493
Open 2021 Filing

Operations Trend

Revenue Growth87th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$800K$600K$400K$200K$0-$200KRevenue 2011: $203,868Expenses 2011: $206,377Net Income 2011: -$2,5092011Revenue 2012: $212,084Expenses 2012: $216,669Net Income 2012: -$4,5852012Revenue 2013: $222,215Expenses 2013: $274,965Net Income 2013: -$52,7502013Revenue 2014: $290,602Expenses 2014: $295,252Net Income 2014: -$4,6502014Revenue 2015: $300,363Expenses 2015: $335,681Net Income 2015: -$35,3182015Revenue 2016: $360,728Expenses 2016: $380,949Net Income 2016: -$20,2212016Revenue 2017: $262,807Expenses 2017: $305,532Net Income 2017: -$42,7252017Revenue 2018: $453,800Expenses 2018: $371,076Net Income 2018: $82,7242018Revenue 2019: $673,420Expenses 2019: $329,499Net Income 2019: $343,9212019Revenue 2020: $346,583Expenses 2020: $307,827Net Income 2020: $38,7562020Revenue 2021: $683,316Expenses 2021: $315,772Net Income 2021: $367,5442021Revenue 2022: $548,640Expenses 2022: $377,639Net Income 2022: $171,0012022Revenue 2023: $410,383Expenses 2023: $488,110Net Income 2023: -$77,7272023Revenue 2024: $452,414Expenses 2024: $491,468Net Income 2024: -$39,0542024

Highlighted filing

2021

Revenue$683,316
Expenses$315,772
Net Income$367,544
Open 2021 Filing
Jump To
Filing Snapshot
Filing Period
Oct 1, 2020 to Sep 30, 2021
Signed
Jun 27, 2022
Return Version
2020v4.0
Gross Receipts
$752,583
Mission and Program Overview

Mission

To provide information about the disorder neurofibromatosis to those affected and help families find medical, social and genetic counseling. To raise and seek funds for research for a cure.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$333,068$672,556▲ $339,488
Investments in Publicly Traded Securities$436,243$520,219▲ $83,976
Prepaid Expenses and Deferred Charges$1,700$1,804▲ $104
Total Assets$771,011$1,225,098▲ $454,087
Other Assets Total-$30,519-
Liabilities
Other Liabilities-$29,627-
Accounts Payable and Accrued Expenses$2,483$2,978▲ $495
Total Liabilities$2,483$32,605▲ $30,122
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$470,986$735,789▲ $264,803
Net Assets With Donor Restrictions$297,542$456,704▲ $159,162
Total Net Assets Fund Balance$768,528$1,192,493▲ $423,965
Total Liabilities and Net Assets / Fund Balance$771,011$1,225,098▲ $454,087
Compensation and Service Providers
Top Officer Pay39th percentile

Board Members and Trustees

NameTitle
Ryan GeierPresident
Cheri StewartBoard Member
Debi BellBoard Member
Michelle SlimkoBoard Member
Mike SheedyBoard Member
Mikel MontgomeryBoard Member
Nicole HicksBoard Member
Rosemary AndersonBoard Member
Shane SmithBoard Member
Sharon KleinBoard Member
Terri RauschBoard Member
Sharon LoftspringSecretary
Gregg EricksonTreasurer
John ManthVP
Revenue and Support

Revenue Composition

Contributions and Grants
$558,092
Program Service Revenue
$0
Investment Income
$27,555
Other Revenue
$97,669
All Other Contributions
$485,113
Change in Net Assets
$367,544

Audited Revenue Reconciliation

Revenue per Audited Statements
$752,583
Revenue Not Reported on Financial Statements
$-69,267
Revenue Not Reported on Form 990
$56,421
Other Revenue Adjustments
$-69,267
Total Revenue per Audited Statements
$809,004
Total Revenue per Form 990
$683,316
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$185,390
Other Expenses$130,382
Total Fundraising Expense$5,852
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$148,211$18,957$5,170$172,338
Fees for Services Lobbying$25,000--$25,000
Payroll Taxes$11,355$1,305$392$13,052
Fees for Services Accounting$6,079$699$210$6,988
Occupancy$6,888--$6,888
All Other Expenses$2,824--$2,824
Office Expenses$2,742--$2,742
Insurance$2,316$267$80$2,663
Other Expenses$1,883$1,849-$1,849
Total Functional Expenses$286,843$23,077$5,852$315,772

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$385,039
Total Expenses per Audited Statements$385,039
Total Expenses per Form 990$315,772
Expenses Not Reported on Financial Statements$-69,267
Other Expense Adjustments$-69,267
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$166,676
Fundraising Direct Expenses$69,267
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Nf Hope Concert$159,658$95,730$69,267$26,463
Links for Laure$43,322$43,322-$43,322
Total Events$230,604$166,676$69,267$97,409
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Lease Liability - Other$20,025
Lease Liability$9,602
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 11B

“The 990 will be reviewed by several executive committee members and the treasurer before it is filed with the internal revenue service.”

Form 990, Page 6, Part VI, Line 12C

“The organization practices for monitoring proposed or ongoing transactions for conflicts of interest includes the following: description of persons covered under the policy: board members, officer's, directors, employees, trustees, volunteers. The level at which determinations of whether a conflict exists are made at the board level and are reviewed at the board level. A restriction is imposed on persons participating in a conflict by not allowing that person to participate in the governing body's deliberations and decision in the transaction.”

Form 990, Page 6, Part VI, Line 15A

“The executive director's salary is annually reviewed by the governing board members.”

Form 990, Page 6, Part VI, Line 15B

“Employee's salaries are reviewed by the executive director.”

Form 990, Page 6, Part VI, Line 19

“The organization makes it's governing documents, articles of incorporation, constitution, by laws, available to the public upon request.”

Filing and Contact Details

Filer

Filer Name
Neurofibromatosis Network
EIN
04-3030760
Phone
6305101115
Address
213 SOUTH WHEATON AVENUE, WHEATON, IL 60187

Signing Officer

Name
Gregg Erickson
Title
Treasurer
Phone
6306271115
Signed
2022-06-27

Organization Details

Principal Officer
Gregg Erickson
Formed
1990
Legal Domicile
Ma
Voting Board Members
14
Independent Board Members
14
Employees
3
Volunteers
300

Preparer

Firm
KOLNICKI PETERSON & WIRTH CPA'S
Address
1400 OPUS PLACE SUITE 100, DOWNERS GROVE, IL 60515
Preparer
Kenneth W Peterson CPA
Phone
6303901140
Supplemental Narrative

Additional Explanations

Form 990, Part XI, Line 9

“Special event expenses netted against income 69,267 special event expenses netted against income -69,267”

Financial Statement Notes

Schedule D, Page 3, Part X

“Neurofirbroatosis network is a tax-exempt organization as described in the section 501c(3) of the internal revenue code (the code) and is exempt from federal income taxes on related income pursuant to section 501(a) of the code. In addition, the internal revenue service has determined that neurofirbroatosis network is not a private foundation within the meaning of section 509(a) of the code.”

Schedule D, Page 4, Part XI, Line 4B

“Special event expenses netted against income -69,267”

Schedule D, Page 4, Part XII, Line 4B

“Special event expenses netted against income -69,267”

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IRS990ScheduleC/OtherActivitiesInd0false
IRS990ScheduleC/PaidStaffOrManagementInd0false
IRS990ScheduleC/PublicationsOrBroadcastInd0false
IRS990ScheduleC/RalliesDemonstrationsInd0false
IRS990ScheduleC/SupplementalInformationDetail/ExplanationTxt0LOBBYING FEES WERE PAID TO VAN SCOYOC ASSOCIATES, 800 MAINE AVENUE, SUITE 800,WASHINGTON DC 20024 TO PERSUADE MEMBERS OF THE GOVERNMENT TO ENACT LEGISLATION THAT WOULD FUND RESEARCH FOR INDIVIDUALS WITH NEUROFIBROMATOSIS.
IRS990ScheduleC/SupplementalInformationDetail/FormAndLineReferenceDesc0SCHEDULE C, PART II-B, LINE 1
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IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc1LEASE LIABILITY
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IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0NEUROFIRBROATOSIS NETWORK IS A TAX-EXEMPT ORGANIZATION AS DESCRIBED IN THE SECTION 501C(3) OF THE INTERNAL REVENUE CODE (THE CODE) AND IS EXEMPT FROM FEDERAL INCOME TAXES ON RELATED INCOME PURSUANT TO SECTION 501(A) OF THE CODE. IN ADDITION, THE INTERNAL REVENUE SERVICE HAS DETERMINED THAT NEUROFIRBROATOSIS NETWORK IS NOT A PRIVATE FOUNDATION WITHIN THE MEANING OF SECTION 509(A) OF THE CODE.
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt1SPECIAL EVENT EXPENSES NETTED AGAINST INCOME -69,267
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt2SPECIAL EVENT EXPENSES NETTED AGAINST INCOME -69,267
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0SCHEDULE D, PAGE 3, PART X
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc1SCHEDULE D, PAGE 4, PART XI, LINE 4B
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc2SCHEDULE D, PAGE 4, PART XII, LINE 4B
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IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm0NF HOPE CONCERT
IRS990ScheduleG/FundraisingEventInformationGrp/Event2Nm0LINKS FOR LAURE
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0THE 990 WILL BE REVIEWED BY SEVERAL EXECUTIVE COMMITTEE MEMBERS AND THE TREASURER BEFORE IT IS FILED WITH THE INTERNAL REVENUE SERVICE.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1THE ORGANIZATION PRACTICES FOR MONITORING PROPOSED OR ONGOING TRANSACTIONS FOR CONFLICTS OF INTEREST INCLUDES THE FOLLOWING: DESCRIPTION OF PERSONS COVERED UNDER THE POLICY: BOARD MEMBERS, OFFICER'S, DIRECTORS, EMPLOYEES, TRUSTEES, VOLUNTEERS. THE LEVEL AT WHICH DETERMINATIONS OF WHETHER A CONFLICT EXISTS ARE MADE AT THE BOARD LEVEL AND ARE REVIEWED AT THE BOARD LEVEL. A RESTRICTION IS IMPOSED ON PERSONS PARTICIPATING IN A CONFLICT BY NOT ALLOWING THAT PERSON TO PARTICIPATE IN THE GOVERNING BODY'S DELIBERATIONS AND DECISION IN THE TRANSACTION.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2THE EXECUTIVE DIRECTOR'S SALARY IS ANNUALLY REVIEWED BY THE GOVERNING BOARD MEMBERS.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3EMPLOYEE'S SALARIES ARE REVIEWED BY THE EXECUTIVE DIRECTOR.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4THE ORGANIZATION MAKES IT'S GOVERNING DOCUMENTS, ARTICLES OF INCORPORATION, CONSTITUTION, BY LAWS, AVAILABLE TO THE PUBLIC UPON REQUEST.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5SPECIAL EVENT EXPENSES NETTED AGAINST INCOME 69,267 SPECIAL EVENT EXPENSES NETTED AGAINST INCOME -69,267
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990, PAGE 6, PART VI, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PAGE 6, PART VI, LINE 12C
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PAGE 6, PART VI, LINE 15A
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3FORM 990, PAGE 6, PART VI, LINE 15B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4FORM 990, PAGE 6, PART VI, LINE 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc5FORM 990, PART XI, LINE 9
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IRS990/StatesWhereCopyOfReturnIsFldCd1MA
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Document Assets

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Filings

Displayed year

2021 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$1,225,098
Liabilities
$32,605
Net assets
$1,192,493
Revenue
$683,316
Expenses
$315,772
Net income
$367,544
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.23$0.01$1.22$0.45$0.49$0.04
2023Detailed filing. Detailed filing data is available for this year.$1.19$0.02$1.17$0.41$0.49$0.08
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.21$0.00$1.20$0.55$0.38$0.17
2021Detailed filing. Detailed filing data is available for this year.$1.23$0.03$1.19$0.68$0.32$0.37
2020Import issue. A filing source exists for this year, but detailed import did not complete cleanly.$0.77$0.00$0.77$0.35$0.31$0.04
2019Detailed filing. Detailed filing data is available for this year.$0.70$0.00$0.70$0.67$0.33$0.34
2018Detailed filing. Detailed filing data is available for this year.$0.42$0.05$0.37$0.45$0.37$0.08
2017Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.29$0.01$0.28$0.26$0.31$0.04
2016Detailed filing. Detailed filing data is available for this year.$0.39$0.07$0.32$0.36$0.38$0.02
2015Summary only. Only limited summary data is available for this year.$0.35$0.00$0.35$0.30$0.34$0.04
2014Summary only. Only limited summary data is available for this year.$0.41$0.03$0.39$0.29$0.30$0.00
2013Summary only. Only limited summary data is available for this year.$0.38$0.00$0.38$0.22$0.27$0.05
2012Summary only. Only limited summary data is available for this year.$0.44$0.01$0.43$0.21$0.22$0.00
2011Summary only. Only limited summary data is available for this year.$0.42$0.00$0.42$0.20$0.21$0.00
Peer Organizations

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