Civic Intelligence

Neurofibromatosis Network

990 • Fiscal year 2017 • EIN 04-3030760

Oct 01, 2016 to Sep 30, 2017 • Filed on Jul 30, 2018

213 South Wheaton AvenueWheaton, IL 60187

(630) 510-1115

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

72nd percentile

0.05x

Higher debt load relative to assets than 72% of similar nonprofits.

2017 filings • 501(c)3 • <$500k nonprofits • Source year 2017

Liabilities / Revenue

77th percentile

0.05x

Higher debt load relative to revenue than 77% of similar nonprofits.

2017 filings • 501(c)3 • <$500k nonprofits • Source year 2017

Net Margin

18th percentile

-16%

Higher net margin than 18% of similar nonprofits.

2017 filings • 501(c)3 • <$500k nonprofits • Source year 2017

Top Officer Pay

76th percentile

$0

Higher top officer pay than 76% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2017 filings • 501(c)3 • <$500k nonprofits • Source year 2017

Asset Growth

18th percentile

-24%

Faster asset growth than 18% of similar nonprofits.

2017 filings • 501(c)3 • <$500k nonprofits • Annualized from 2016 to 2017

Revenue Growth

18th percentile

-27%

Faster revenue growth than 18% of similar nonprofits.

2017 filings • 501(c)3 • <$500k nonprofits • Annualized from 2016 to 2017

Assets

Down

$293,288

Down $94,456 (-24%) from 2016

Net Assets

Down

$279,997

Down $38,025 (-12%) from 2016

Liabilities

Down

$13,291

Down $56,431 (-81%) from 2016

Revenue

Down

$262,807

Down $97,921 (-27%) from 2016

Expenses

Down

$305,532

Down $75,417 (-20%) from 2016

Net Income

Down

-$42,725

Down $22,504 (-111%) from 2016

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.5M$1.0M$500K$0Assets 2011: $421,681Liabilities 2011: $2,447Net Assets 2011: $419,2342011Assets 2012: $435,958Liabilities 2012: $6,139Net Assets 2012: $429,8192012Assets 2013: $381,998Liabilities 2013: $4,929Net Assets 2013: $377,0692013Assets 2014: $413,464Liabilities 2014: $28,191Net Assets 2014: $385,2732014Assets 2015: $350,027Liabilities 2015: $3,290Net Assets 2015: $346,7372015Assets 2016: $387,744Liabilities 2016: $69,722Net Assets 2016: $318,0222016Assets 2017: $293,288Liabilities 2017: $13,291Net Assets 2017: $279,9972017Assets 2018: $417,083Liabilities 2018: $47,079Net Assets 2018: $370,0042018Assets 2019: $703,734Liabilities 2019: $3,094Net Assets 2019: $700,6402019Assets 2020: $771,011Liabilities 2020: $2,483Net Assets 2020: $768,5282020Assets 2021: $1,225,098Liabilities 2021: $32,605Net Assets 2021: $1,192,4932021Assets 2022: $1,209,936Liabilities 2022: $4,974Net Assets 2022: $1,204,9622022Assets 2023: $1,185,451Liabilities 2023: $16,744Net Assets 2023: $1,168,7072023Assets 2024: $1,228,709Liabilities 2024: $7,605Net Assets 2024: $1,221,1042024

Highlighted filing

2017

Assets$293,288
Liabilities$13,291
Net Assets$279,997

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$800K$600K$400K$200K$0-$200KRevenue 2011: $203,868Expenses 2011: $206,377Net Income 2011: -$2,5092011Revenue 2012: $212,084Expenses 2012: $216,669Net Income 2012: -$4,5852012Revenue 2013: $222,215Expenses 2013: $274,965Net Income 2013: -$52,7502013Revenue 2014: $290,602Expenses 2014: $295,252Net Income 2014: -$4,6502014Revenue 2015: $300,363Expenses 2015: $335,681Net Income 2015: -$35,3182015Revenue 2016: $360,728Expenses 2016: $380,949Net Income 2016: -$20,2212016Revenue 2017: $262,807Expenses 2017: $305,532Net Income 2017: -$42,7252017Revenue 2018: $453,800Expenses 2018: $371,076Net Income 2018: $82,7242018Revenue 2019: $673,420Expenses 2019: $329,499Net Income 2019: $343,9212019Revenue 2020: $346,583Expenses 2020: $307,827Net Income 2020: $38,7562020Revenue 2021: $683,316Expenses 2021: $315,772Net Income 2021: $367,5442021Revenue 2022: $548,640Expenses 2022: $377,639Net Income 2022: $171,0012022Revenue 2023: $410,383Expenses 2023: $488,110Net Income 2023: -$77,7272023Revenue 2024: $452,414Expenses 2024: $491,468Net Income 2024: -$39,0542024

Highlighted filing

2017

Revenue$262,807
Expenses$305,532
Net Income-$42,725
Jump To
Filing Snapshot
Filing Period
Oct 1, 2016 to Sep 30, 2017
Signed
Jul 30, 2018
Return Version
2016v3.1
Gross Receipts
$356,873
Mission and Program Overview

Mission

To provide information about the disorder neurofibromatosis to those affected and help families find medical, social and genetic counseling. To raise and seek funds for research for a cure.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$175,019$199,242▲ $24,223
Cash and Non-Interest-Bearing Accounts$211,155$92,401▼ $118,754
Prepaid Expenses and Deferred Charges$1,570$1,645▲ $75
Total Assets$387,744$293,288▼ $94,456
Liabilities
Other Liabilities$63,870--
Accounts Payable and Accrued Expenses$5,852$13,291▲ $7,439
Total Liabilities$69,722$13,291▼ $56,431
Net Assets / Fund Balance
Temporarily Rstr Net Assets$177,120$186,931▲ $9,811
Unrestricted Net Assets$140,902$93,066▼ $47,836
Total Net Assets Fund Balance$318,022$279,997▼ $38,025
Total Liabilities and Net Assets / Fund Balance$387,744$293,288▼ $94,456
Compensation and Service Providers

Board Members and Trustees

NameTitle
Ryan GeierPresident
Cheri StewartBoard Member
Debi BellBoard Member
Gregg EricksonBoard Member
Michelle SlimkoBoard Member
Mike SheedyBoard Member
Rosemary AndersonBoard Member
Scott VolkertBoard Member
Sharon LoftspringBoard Member
Yvonne GlassMember
Nicole HicksSecretary
Michael MontgomeryTreasurer
John ManthVP
Revenue and Support

Revenue Composition

Contributions and Grants
$197,562
Program Service Revenue
$0
Investment Income
$19,523
Other Revenue
$45,722
All Other Contributions
$150,491
Change in Net Assets
$-42,725

Audited Revenue Reconciliation

Revenue per Audited Statements
$356,873
Revenue Not Reported on Financial Statements
$-94,066
Revenue Not Reported on Form 990
$4,700
Other Revenue Adjustments
$-94,066
Total Revenue per Audited Statements
$361,573
Total Revenue per Form 990
$262,807
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$162,313
Salaries, Compensation, and Employee Benefits$143,219
Total Fundraising Expense$25,023
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$112,578$14,440$3,928$130,946
Fees for Services Accounting$15,946$2,498$768$19,212
Conferences and Meetings$17,516--$17,516
Payroll Taxes$9,695$1,964$614$12,273
All Other Expenses$5,572$5,179-$10,751
Office Expenses$7,107$258-$7,365
Occupancy$6,303--$6,303
Other Expenses$10,593$5,782$19,613$5,782
Insurance$2,595$299$100$2,994
Total Functional Expenses$250,089$30,420$25,023$305,532

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$399,598
Total Expenses per Audited Statements$399,598
Total Expenses per Form 990$305,532
Expenses Not Reported on Financial Statements$-94,066
Other Expense Adjustments$-94,066
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$139,361
Fundraising Direct Expenses$94,066
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Nf Hope Concert$110,094$81,396$74,486$6,910
Links for Laure$57,695$57,695$19,580$38,115
Total Events$167,789$139,091$94,066$45,025
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 11B

The 990 will be reviewed by several executive committee members and the treasurer before it is filed with the internal revenue service.

Form 990, Page 6, Part VI, Line 12C

The organization practices for monitoring proposed or ongoing transactions for conflicts of interest includes the following: description of persons covered under the policy: board members, officer's, directors, employees, trustees, volunteers. The level at which determinations of whether a conflict exists are made at the board level and are reviewed at the board level. A restriction is imposed on persons participating in a conflict by not allowing that person to participate in the governing body's deliberations and decision in the transaction.

Form 990, Page 6, Part VI, Line 15A

The executive director's salary is annually reviewed by the governing board members.

Form 990, Page 6, Part VI, Line 15B

Employee's salaries are reviewed by the executive director.

Form 990, Page 6, Part VI, Line 19

The organization makes it's governing documents, articles of incorporation, constitution, by laws, available to the public upon request.

Filing and Contact Details

Filer

Filer Name
Neurofibromatosis Network
EIN
04-3030760
Phone
6305101115
Address
213 SOUTH WHEATON AVENUE, WHEATON, IL 60187

Signing Officer

Name
Michael Montgomery
Title
Treasurer
Phone
6306271115
Signed
2018-07-30

Organization Details

Principal Officer
Michael Montgomery
Formed
1990
Legal Domicile
Ma
Voting Board Members
13
Independent Board Members
13
Employees
7
Volunteers
300

Preparer

Firm
KOLNICKI PETERSON & WIRTH CPA'S
Address
1400 OPUS PLACE SUITE 100, DOWNERS GROVE, IL 60515
Preparer
Kenneth W Peterson CPA
Phone
6303901140
Supplemental Narrative

Additional Explanations

Form 990, Part XI, Line 9

Special event expenses netted against income 94,066 special event expenses netted against income -94,066

Financial Statement Notes

Schedule D, Page 4, Part XI, Line 4B

Special event expenses netted against income -94,066

Schedule D, Page 4, Part XII, Line 4B

Special event expenses netted against income -94,066

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/PrincipalOfficerNm0MICHAEL MONTGOMERY
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IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0177198
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IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt016877
IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt019523
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IRS990ScheduleA/PublicSupportPY170Pct00.85480
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IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
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IRS990ScheduleC/MediaAdvertisementsInd0false
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IRS990ScheduleC/PaidStaffOrManagementInd0false
IRS990ScheduleC/PublicationsOrBroadcastInd0false
IRS990ScheduleC/RalliesDemonstrationsInd0false
IRS990ScheduleC/SupplementalInformationDetail/ExplanationTxt040,000 WAS PAID TO VAN SCOYOC ASSOCIATES, 101 CONSTITUTION NW 600, WASHINGTON DC 2001 TO PERSUADE MEMBERS OF THE GOVERNMENT TO ENACT LEGISLATION THAT WOULD FUND RESEARCH FOR INDIVIDUALS WITH NEUROFIBROMATOSIS.
IRS990ScheduleC/SupplementalInformationDetail/FormAndLineReferenceDesc0SCHEDULE C, PART II-B, LINE 1
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IRS990ScheduleD/ExpensesSubtotalAmt0399598
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IRS990ScheduleD/OtherExpensesNotIncludedAmt0-94066
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IRS990ScheduleD/RevenueNotReportedAmt04700
IRS990ScheduleD/RevenueNotReportedFinclStmtAmt0-94066
IRS990ScheduleD/RevenueSubtotalAmt0356873
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0SPECIAL EVENT EXPENSES NETTED AGAINST INCOME -94,066
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt1SPECIAL EVENT EXPENSES NETTED AGAINST INCOME -94,066
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0SCHEDULE D, PAGE 4, PART XI, LINE 4B
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc1SCHEDULE D, PAGE 4, PART XII, LINE 4B
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IRS990ScheduleD/TotalRevenuePerForm990Amt0262807
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IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt028698
IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt094066
IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm0NF HOPE CONCERT
IRS990ScheduleG/FundraisingEventInformationGrp/Event2Nm0LINKS FOR LAURE
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0THE 990 WILL BE REVIEWED BY SEVERAL EXECUTIVE COMMITTEE MEMBERS AND THE TREASURER BEFORE IT IS FILED WITH THE INTERNAL REVENUE SERVICE.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1THE ORGANIZATION PRACTICES FOR MONITORING PROPOSED OR ONGOING TRANSACTIONS FOR CONFLICTS OF INTEREST INCLUDES THE FOLLOWING: DESCRIPTION OF PERSONS COVERED UNDER THE POLICY: BOARD MEMBERS, OFFICER'S, DIRECTORS, EMPLOYEES, TRUSTEES, VOLUNTEERS. THE LEVEL AT WHICH DETERMINATIONS OF WHETHER A CONFLICT EXISTS ARE MADE AT THE BOARD LEVEL AND ARE REVIEWED AT THE BOARD LEVEL. A RESTRICTION IS IMPOSED ON PERSONS PARTICIPATING IN A CONFLICT BY NOT ALLOWING THAT PERSON TO PARTICIPATE IN THE GOVERNING BODY'S DELIBERATIONS AND DECISION IN THE TRANSACTION.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2THE EXECUTIVE DIRECTOR'S SALARY IS ANNUALLY REVIEWED BY THE GOVERNING BOARD MEMBERS.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3EMPLOYEE'S SALARIES ARE REVIEWED BY THE EXECUTIVE DIRECTOR.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4THE ORGANIZATION MAKES IT'S GOVERNING DOCUMENTS, ARTICLES OF INCORPORATION, CONSTITUTION, BY LAWS, AVAILABLE TO THE PUBLIC UPON REQUEST.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5SPECIAL EVENT EXPENSES NETTED AGAINST INCOME 94,066 SPECIAL EVENT EXPENSES NETTED AGAINST INCOME -94,066
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990, PAGE 6, PART VI, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PAGE 6, PART VI, LINE 12C
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PAGE 6, PART VI, LINE 15A
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3FORM 990, PAGE 6, PART VI, LINE 15B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4FORM 990, PAGE 6, PART VI, LINE 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc5FORM 990, PART XI, LINE 9
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IRS990/SignificantNewProgramSrvcInd0false
IRS990/StatesWhereCopyOfReturnIsFldCd0IL
IRS990/StatesWhereCopyOfReturnIsFldCd1MA
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IRS990/TaxablePartyNotificationInd0false
IRS990/TaxExemptBondsInd0false
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IRS990/TotalEmployeeCnt07
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IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesBOYAmt069722
IRS990/TotalLiabilitiesEOYAmt013291

Document Assets

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Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.23$0.01$1.22$0.45$0.49$0.04
2023Detailed filing. Detailed filing data is available for this year.$1.19$0.02$1.17$0.41$0.49$0.08
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.21$0.00$1.20$0.55$0.38$0.17
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.23$0.03$1.19$0.68$0.32$0.37
2020Import issue. A filing source exists for this year, but detailed import did not complete cleanly.$0.77$0.00$0.77$0.35$0.31$0.04
2019Detailed filing. Detailed filing data is available for this year.$0.70$0.00$0.70$0.67$0.33$0.34
2018Detailed filing. Detailed filing data is available for this year.$0.42$0.05$0.37$0.45$0.37$0.08
2017Detailed filing. Detailed filing data is available for this year.$0.29$0.01$0.28$0.26$0.31$0.04
2016Detailed filing. Detailed filing data is available for this year.$0.39$0.07$0.32$0.36$0.38$0.02
2015Summary only. Only limited summary data is available for this year.$0.35$0.00$0.35$0.30$0.34$0.04
2014Summary only. Only limited summary data is available for this year.$0.41$0.03$0.39$0.29$0.30$0.00
2013Summary only. Only limited summary data is available for this year.$0.38$0.00$0.38$0.22$0.27$0.05
2012Summary only. Only limited summary data is available for this year.$0.44$0.01$0.43$0.21$0.22$0.00
2011Summary only. Only limited summary data is available for this year.$0.42$0.00$0.42$0.20$0.21$0.00