Liabilities / Assets
72nd percentile
Higher debt load relative to assets than 72% of similar nonprofits.
990 • Fiscal year 2017 • EIN 04-3030760
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
72nd percentile
Higher debt load relative to assets than 72% of similar nonprofits.
Liabilities / Revenue
77th percentile
Higher debt load relative to revenue than 77% of similar nonprofits.
Net Margin
18th percentile
Higher net margin than 18% of similar nonprofits.
Top Officer Pay
76th percentile
Higher top officer pay than 76% of similar nonprofits.
Top officer pay equals 0.0% of source-year revenue.
Asset Growth
18th percentile
Faster asset growth than 18% of similar nonprofits.
Revenue Growth
18th percentile
Faster revenue growth than 18% of similar nonprofits.
Assets
Down$293,288
Down $94,456 (-24%) from 2016
Net Assets
Down$279,997
Down $38,025 (-12%) from 2016
Liabilities
Down$13,291
Down $56,431 (-81%) from 2016
Revenue
Down$262,807
Down $97,921 (-27%) from 2016
Expenses
Down$305,532
Down $75,417 (-20%) from 2016
Net Income
Down-$42,725
Down $22,504 (-111%) from 2016
To provide information about the disorder neurofibromatosis to those affected and help families find medical, social and genetic counseling. To raise and seek funds for research for a cure.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Investments in Publicly Traded Securities | $175,019 | $199,242 | ▲ $24,223 |
| Cash and Non-Interest-Bearing Accounts | $211,155 | $92,401 | ▼ $118,754 |
| Prepaid Expenses and Deferred Charges | $1,570 | $1,645 | ▲ $75 |
| Total Assets | $387,744 | $293,288 | ▼ $94,456 |
| Liabilities | |||
| Other Liabilities | $63,870 | - | - |
| Accounts Payable and Accrued Expenses | $5,852 | $13,291 | ▲ $7,439 |
| Total Liabilities | $69,722 | $13,291 | ▼ $56,431 |
| Net Assets / Fund Balance | |||
| Temporarily Rstr Net Assets | $177,120 | $186,931 | ▲ $9,811 |
| Unrestricted Net Assets | $140,902 | $93,066 | ▼ $47,836 |
| Total Net Assets Fund Balance | $318,022 | $279,997 | ▼ $38,025 |
| Total Liabilities and Net Assets / Fund Balance | $387,744 | $293,288 | ▼ $94,456 |
| Name | Title |
|---|---|
| Ryan Geier | President |
| Cheri Stewart | Board Member |
| Debi Bell | Board Member |
| Gregg Erickson | Board Member |
| Michelle Slimko | Board Member |
| Mike Sheedy | Board Member |
| Rosemary Anderson | Board Member |
| Scott Volkert | Board Member |
| Sharon Loftspring | Board Member |
| Yvonne Glass | Member |
| Nicole Hicks | Secretary |
| Michael Montgomery | Treasurer |
| John Manth | VP |
| Line Item | Amount |
|---|---|
| Other Expenses | $162,313 |
| Salaries, Compensation, and Employee Benefits | $143,219 |
| Total Fundraising Expense | $25,023 |
| Grants and Similar Amounts Paid | $0 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Other Salaries and Wages | $112,578 | $14,440 | $3,928 | $130,946 |
| Fees for Services Accounting | $15,946 | $2,498 | $768 | $19,212 |
| Conferences and Meetings | $17,516 | - | - | $17,516 |
| Payroll Taxes | $9,695 | $1,964 | $614 | $12,273 |
| All Other Expenses | $5,572 | $5,179 | - | $10,751 |
| Office Expenses | $7,107 | $258 | - | $7,365 |
| Occupancy | $6,303 | - | - | $6,303 |
| Other Expenses | $10,593 | $5,782 | $19,613 | $5,782 |
| Insurance | $2,595 | $299 | $100 | $2,994 |
| Total Functional Expenses | $250,089 | $30,420 | $25,023 | $305,532 |
| Line Item | Amount |
|---|---|
| Expenses per Audited Statements | $399,598 |
| Total Expenses per Audited Statements | $399,598 |
| Total Expenses per Form 990 | $305,532 |
| Expenses Not Reported on Financial Statements | $-94,066 |
| Other Expense Adjustments | $-94,066 |
| Line Item | Amount |
|---|---|
| Fundraising Gross Income | $139,361 |
| Fundraising Direct Expenses | $94,066 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Nf Hope Concert | $110,094 | $81,396 | $74,486 | $6,910 |
| Links for Laure | $57,695 | $57,695 | $19,580 | $38,115 |
| Total Events | $167,789 | $139,091 | $94,066 | $45,025 |
“The 990 will be reviewed by several executive committee members and the treasurer before it is filed with the internal revenue service.”
“The organization practices for monitoring proposed or ongoing transactions for conflicts of interest includes the following: description of persons covered under the policy: board members, officer's, directors, employees, trustees, volunteers. The level at which determinations of whether a conflict exists are made at the board level and are reviewed at the board level. A restriction is imposed on persons participating in a conflict by not allowing that person to participate in the governing body's deliberations and decision in the transaction.”
“The executive director's salary is annually reviewed by the governing board members.”
“Employee's salaries are reviewed by the executive director.”
“The organization makes it's governing documents, articles of incorporation, constitution, by laws, available to the public upon request.”
“Special event expenses netted against income 94,066 special event expenses netted against income -94,066”
“Special event expenses netted against income -94,066”
“Special event expenses netted against income -94,066”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | false |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 5852 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 13291 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | TO PROVIDE INFORMATION ABOUT THE DISORDER NEUROFIBROMATOSIS TO THOSE AFFECTED AND HELP FAMILIES FIND MEDICAL, SOCIAL AND GENETIC COUNSELING. TO RAISE AND SEEK FUNDS FOR RESEARCH FOR A CURE. |
| IRS990/AllOtherContributionsAmt | 0 | 150491 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 5179 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 5572 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 10751 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/AuditCommitteeInd | 0 | true |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | KIM BISCHOFF |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 6305101115 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 213 SOUTH WHEATON AVE |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | WHEATON |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | IL |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 60187 |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOfficerEntInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 211155 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 92401 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | true |
| IRS990/CompensationProcessOtherInd | 0 | true |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 17516 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 17516 |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/ContriRptFundraisingEventAmt | 0 | 28698 |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 197562 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 0 |
| IRS990/CYInvestmentIncomeAmt | 0 | 19523 |
| IRS990/CYOtherExpensesAmt | 0 | 162313 |
| IRS990/CYOtherRevenueAmt | 0 | 45722 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | -42725 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 143219 |
| IRS990/CYTotalExpensesAmt | 0 | 305532 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 25023 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 262807 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/Desc | 0 | TO PROVIDE THOSE WITH NEUROFIBROMATOSIS WITH INFORMATION ABOUT THE DISORDER AND HELP FAMILIES FIND MEDICAL, SOCIAL, AND GENETIC COUNSELING. TO RAISE AND SEEK FUNDS FOR RESEARCH FOR A CURE. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | true |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 7 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | true |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 250089 |
| IRS990/FamilyOrBusinessRlnInd | 0 | false |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FederatedCampaignsAmt | 0 | 18373 |
| IRS990/FeesForServicesAccountingGrp/FundraisingAmt | 0 | 768 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 2498 |
| IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt | 0 | 15946 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 19212 |
| IRS990/ForeignActivitiesInd | 0 | false |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 15.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 15.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 11 | 15.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 12 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 10 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 11 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 12 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | RYAN GEIER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | MICHELLE SLIMKO |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | NICOLE HICKS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | GREGG ERICKSON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | YVONNE GLASS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | MICHAEL MONTGOMERY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | DEBI BELL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | CHERI STEWART |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | MIKE SHEEDY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | ROSEMARY ANDERSON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | SHARON LOFTSPRING |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | JOHN MANTH |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 12 | SCOTT VOLKERT |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | PRESIDENT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | TREASURER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | VP |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 12 | BOARD MEMBER |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | false |
| IRS990/FormationYr | 0 | 1990 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | true |
| IRS990/FundraisingActivitiesInd | 0 | true |
| IRS990/FundraisingAmt | 0 | 28698 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 94066 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 139361 |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 13 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | false |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossReceiptsAmt | 0 | 356873 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | false |
| IRS990/IndependentAuditFinclStmtInd | 0 | true |
| IRS990/IndependentVotingMemberCnt | 0 | 13 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InsuranceGrp/FundraisingAmt | 0 | 100 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 299 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 2595 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 2994 |
| IRS990/InvestmentIncomeGrp/RelatedOrExemptFuncIncomeAmt | 0 | 19523 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 19523 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/InvestmentsPubTradedSecGrp/BOYAmt | 0 | 175019 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 199242 |
| IRS990/IRPDocumentCnt | 0 | 3 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LegalDomicileStateCd | 0 | MA |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | true |
| IRS990/LocalChaptersInd | 0 | false |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | true |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | TO PROVIDE INFORMATION ABOUT THE DISORDER NEUROFIBROMATOSIS TO THOSE AFFECTED AND HELP FAMILIES FIND MEDICAL, SOCIAL AND GENETIC COUNSELING. TO RAISE AND SEEK FUNDS FOR RESEARCH FOR A CURE. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | false |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 318022 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 279997 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | 45295 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 45295 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | 4700 |
| IRS990/NoListedPersonsCompensatedInd | 0 | X |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 6303 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 6303 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 258 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 7107 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 7365 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsSFAS117Ind | 0 | X |
| IRS990/OtherExpensesGrp/Desc | 0 | COMMUNITY SERVICE EXPENSE |
| IRS990/OtherExpensesGrp/Desc | 1 | FUNDRAISING EXPENSES |
| IRS990/OtherExpensesGrp/Desc | 2 | WEBSITE |
| IRS990/OtherExpensesGrp/Desc | 3 | BANK & CREDIT CARD FEES |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 19613 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 5782 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 62184 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 10593 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 62184 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 19613 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 10593 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 5782 |
| IRS990/OtherLiabilitiesGrp/BOYAmt | 0 | 63870 |
| IRS990/OtherRevenueMiscGrp/Desc | 0 | MISCELLANEOUS INCOME |
| IRS990/OtherRevenueMiscGrp/ExclusionAmt | 0 | 427 |
| IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt | 0 | 427 |
| IRS990/OtherRevenueTotalAmt | 0 | 427 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 3928 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 14440 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 112578 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 130946 |
| IRS990/OtherWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 614 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 1964 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 9695 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 12273 |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 1570 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 1645 |
| IRS990/PrincipalOfficerNm | 0 | MICHAEL MONTGOMERY |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 323046 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 93294 |
| IRS990/PYInvestmentIncomeAmt | 0 | 25371 |
| IRS990/PYOtherExpensesAmt | 0 | 129626 |
| IRS990/PYOtherRevenueAmt | 0 | 12311 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | -20221 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 158029 |
| IRS990/PYTotalExpensesAmt | 0 | 380949 |
| IRS990/PYTotalRevenueAmt | 0 | 360728 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | -42725 |
| IRS990/RegularMonitoringEnfrcInd | 0 | true |
| IRS990/RelatedEntityInd | 0 | false |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990/ReportInvestmentsOtherSecInd | 0 | false |
| IRS990/ReportLandBuildingEquipmentInd | 0 | false |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | false |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
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| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 365400 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 252177 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 253536 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 177198 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 1245873 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 16877 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 16877 |
| IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt | 0 | 19523 |
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| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.83440 |
| IRS990ScheduleA/PublicSupportPY170Pct | 0 | 0.85480 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 1245873 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind | 0 | X |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 197562 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 365400 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 252177 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 253536 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 177198 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 1245873 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 1493135 |
| IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearAmt | 0 | 44722 |
| IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus1YearAmt | 0 | 77094 |
| IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 46939 |
| IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 34518 |
| IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 27112 |
| IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/TotalAmt | 0 | 230385 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | true |
| IRS990ScheduleC/DirectContactLegislatorsInd | 0 | false |
| IRS990ScheduleC/GrantsOtherOrganizationsInd | 0 | false |
| IRS990ScheduleC/MailingsMembersInd | 0 | false |
| IRS990ScheduleC/MediaAdvertisementsInd | 0 | false |
| IRS990ScheduleC/NotDescribedSection501c3Ind | 0 | false |
| IRS990ScheduleC/OtherActivitiesAmt | 0 | 40000 |
| IRS990ScheduleC/OtherActivitiesInd | 0 | true |
| IRS990ScheduleC/PaidStaffOrManagementInd | 0 | false |
| IRS990ScheduleC/PublicationsOrBroadcastInd | 0 | false |
| IRS990ScheduleC/RalliesDemonstrationsInd | 0 | false |
| IRS990ScheduleC/SupplementalInformationDetail/ExplanationTxt | 0 | 40,000 WAS PAID TO VAN SCOYOC ASSOCIATES, 101 CONSTITUTION NW 600, WASHINGTON DC 2001 TO PERSUADE MEMBERS OF THE GOVERNMENT TO ENACT LEGISLATION THAT WOULD FUND RESEARCH FOR INDIVIDUALS WITH NEUROFIBROMATOSIS. |
| IRS990ScheduleC/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | SCHEDULE C, PART II-B, LINE 1 |
| IRS990ScheduleC/TotalLobbyingExpendituresAmt | 0 | 40000 |
| IRS990ScheduleC/VolunteersInd | 0 | false |
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| IRS990ScheduleD/ExpensesSubtotalAmt | 0 | 399598 |
| IRS990ScheduleD/NetUnrealizedGainsInvstAmt | 0 | 4700 |
| IRS990ScheduleD/OtherExpensesNotIncludedAmt | 0 | -94066 |
| IRS990ScheduleD/OtherRevenuesNotIncludedAmt | 0 | -94066 |
| IRS990ScheduleD/RevenueNotReportedAmt | 0 | 4700 |
| IRS990ScheduleD/RevenueNotReportedFinclStmtAmt | 0 | -94066 |
| IRS990ScheduleD/RevenueSubtotalAmt | 0 | 356873 |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 0 | SPECIAL EVENT EXPENSES NETTED AGAINST INCOME -94,066 |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 1 | SPECIAL EVENT EXPENSES NETTED AGAINST INCOME -94,066 |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | SCHEDULE D, PAGE 4, PART XI, LINE 4B |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | SCHEDULE D, PAGE 4, PART XII, LINE 4B |
| IRS990ScheduleD/TotalExpensesPerForm990Amt | 0 | 305532 |
| IRS990ScheduleD/TotalRevenuePerForm990Amt | 0 | 262807 |
| IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt | 0 | 361573 |
| IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt | 0 | 399598 |
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| IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt | 0 | 94066 |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm | 0 | NF HOPE CONCERT |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event2Nm | 0 | LINKS FOR LAURE |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt | 0 | 110094 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent2Amt | 0 | 57695 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt | 0 | 167789 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt | 0 | 81396 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent2Amt | 0 | 57695 |
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| IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt | 0 | 45025 |
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| IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent2Amt | 0 | 19580 |
| IRS990/ScheduleJRequiredInd | 0 | false |
| IRS990/ScheduleORequiredInd | 0 | true |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | THE 990 WILL BE REVIEWED BY SEVERAL EXECUTIVE COMMITTEE MEMBERS AND THE TREASURER BEFORE IT IS FILED WITH THE INTERNAL REVENUE SERVICE. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | THE ORGANIZATION PRACTICES FOR MONITORING PROPOSED OR ONGOING TRANSACTIONS FOR CONFLICTS OF INTEREST INCLUDES THE FOLLOWING: DESCRIPTION OF PERSONS COVERED UNDER THE POLICY: BOARD MEMBERS, OFFICER'S, DIRECTORS, EMPLOYEES, TRUSTEES, VOLUNTEERS. THE LEVEL AT WHICH DETERMINATIONS OF WHETHER A CONFLICT EXISTS ARE MADE AT THE BOARD LEVEL AND ARE REVIEWED AT THE BOARD LEVEL. A RESTRICTION IS IMPOSED ON PERSONS PARTICIPATING IN A CONFLICT BY NOT ALLOWING THAT PERSON TO PARTICIPATE IN THE GOVERNING BODY'S DELIBERATIONS AND DECISION IN THE TRANSACTION. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | THE EXECUTIVE DIRECTOR'S SALARY IS ANNUALLY REVIEWED BY THE GOVERNING BOARD MEMBERS. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | EMPLOYEE'S SALARIES ARE REVIEWED BY THE EXECUTIVE DIRECTOR. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 4 | THE ORGANIZATION MAKES IT'S GOVERNING DOCUMENTS, ARTICLES OF INCORPORATION, CONSTITUTION, BY LAWS, AVAILABLE TO THE PUBLIC UPON REQUEST. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 5 | SPECIAL EVENT EXPENSES NETTED AGAINST INCOME 94,066 SPECIAL EVENT EXPENSES NETTED AGAINST INCOME -94,066 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | FORM 990, PAGE 6, PART VI, LINE 11B |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | FORM 990, PAGE 6, PART VI, LINE 12C |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | FORM 990, PAGE 6, PART VI, LINE 15A |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | FORM 990, PAGE 6, PART VI, LINE 15B |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 4 | FORM 990, PAGE 6, PART VI, LINE 19 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 5 | FORM 990, PART XI, LINE 9 |
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| IRS990/SignificantChangeInd | 0 | false |
| IRS990/SignificantNewProgramSrvcInd | 0 | false |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 0 | IL |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 1 | MA |
| IRS990/SubjectToProxyTaxInd | 0 | false |
| IRS990/TaxablePartyNotificationInd | 0 | false |
| IRS990/TaxExemptBondsInd | 0 | false |
| IRS990/TemporarilyRstrNetAssetsGrp/BOYAmt | 0 | 177120 |
| IRS990/TemporarilyRstrNetAssetsGrp/EOYAmt | 0 | 186931 |
| IRS990/TempOrPermanentEndowmentsInd | 0 | false |
| IRS990/TerminateOperationsInd | 0 | false |
| IRS990/TotalAssetsBOYAmt | 0 | 387744 |
| IRS990/TotalAssetsEOYAmt | 0 | 293288 |
| IRS990/TotalAssetsGrp/BOYAmt | 0 | 387744 |
| IRS990/TotalAssetsGrp/EOYAmt | 0 | 293288 |
| IRS990/TotalCompGreaterThan150KInd | 0 | false |
| IRS990/TotalContributionsAmt | 0 | 197562 |
| IRS990/TotalEmployeeCnt | 0 | 7 |
| IRS990/TotalFunctionalExpensesGrp/FundraisingAmt | 0 | 25023 |
| IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt | 0 | 30420 |
| IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt | 0 | 250089 |
| IRS990/TotalFunctionalExpensesGrp/TotalAmt | 0 | 305532 |
| IRS990/TotalGrossUBIAmt | 0 | 0 |
| IRS990/TotalLiabilitiesBOYAmt | 0 | 69722 |
| IRS990/TotalLiabilitiesEOYAmt | 0 | 13291 |
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Displayed year
2017 • Form 990Detailed filing. Detailed filing data is available for this year.