Civic Intelligence

Neurofibromatosis Network

990 • Fiscal year 2019 • EIN 04-3030760

Oct 01, 2018 to Sep 30, 2019 • Filed on Feb 26, 2019

Organization ProfileWWW.NFNETWORK.ORG
213 South Wheaton AvenueWheaton, IL 60187

(630) 510-1115

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

35th percentile

0.00x

Higher debt load relative to assets than 35% of similar nonprofits.

2019 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2019

Liabilities / Revenue

34th percentile

0.00x

Higher debt load relative to revenue than 34% of similar nonprofits.

2019 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2019

Net Margin

92nd percentile

51%

Higher net margin than 92% of similar nonprofits.

2019 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2019

Top Officer Pay

50th percentile

$0

Higher top officer pay than 50% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2019 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2019

Asset Growth

91st percentile

69%

Faster asset growth than 91% of similar nonprofits.

2019 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2018 to 2019

Revenue Growth

85th percentile

48%

Faster revenue growth than 85% of similar nonprofits.

2019 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2018 to 2019

Balance Sheet
Liabilities / Assets35th percentile

Assets

Up

$703,734

Up $286,651 (+69%) from 2018

Net Assets

Up

$700,640

Up $330,636 (+89%) from 2018

Liabilities

Down

$3,094

Down $43,985 (-93%) from 2018

Revenue And Expenses
Liabilities / Revenue34th percentileNet Margin92nd percentile

Revenue

Up

$673,420

Up $219,620 (+48%) from 2018

Expenses

Down

$329,499

Down $41,577 (-11%) from 2018

Net Income

Up

$343,921

Up $261,197 (+316%) from 2018

Historical Trend

Balance Sheet Trend

Asset Growth91st percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.5M$1.0M$500K$0Assets 2011: $421,681Liabilities 2011: $2,447Net Assets 2011: $419,2342011Assets 2012: $435,958Liabilities 2012: $6,139Net Assets 2012: $429,8192012Assets 2013: $381,998Liabilities 2013: $4,929Net Assets 2013: $377,0692013Assets 2014: $413,464Liabilities 2014: $28,191Net Assets 2014: $385,2732014Assets 2015: $350,027Liabilities 2015: $3,290Net Assets 2015: $346,7372015Assets 2016: $387,744Liabilities 2016: $69,722Net Assets 2016: $318,0222016Assets 2017: $293,288Liabilities 2017: $13,291Net Assets 2017: $279,9972017Assets 2018: $417,083Liabilities 2018: $47,079Net Assets 2018: $370,0042018Assets 2019: $703,734Liabilities 2019: $3,094Net Assets 2019: $700,6402019Assets 2020: $771,011Liabilities 2020: $2,483Net Assets 2020: $768,5282020Assets 2021: $1,225,098Liabilities 2021: $32,605Net Assets 2021: $1,192,4932021Assets 2022: $1,209,936Liabilities 2022: $4,974Net Assets 2022: $1,204,9622022Assets 2023: $1,185,451Liabilities 2023: $16,744Net Assets 2023: $1,168,7072023Assets 2024: $1,228,709Liabilities 2024: $7,605Net Assets 2024: $1,221,1042024

Highlighted filing

2019

Assets$703,734
Liabilities$3,094
Net Assets$700,640
Open 2019 Filing

Operations Trend

Revenue Growth85th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$800K$600K$400K$200K$0-$200KRevenue 2011: $203,868Expenses 2011: $206,377Net Income 2011: -$2,5092011Revenue 2012: $212,084Expenses 2012: $216,669Net Income 2012: -$4,5852012Revenue 2013: $222,215Expenses 2013: $274,965Net Income 2013: -$52,7502013Revenue 2014: $290,602Expenses 2014: $295,252Net Income 2014: -$4,6502014Revenue 2015: $300,363Expenses 2015: $335,681Net Income 2015: -$35,3182015Revenue 2016: $360,728Expenses 2016: $380,949Net Income 2016: -$20,2212016Revenue 2017: $262,807Expenses 2017: $305,532Net Income 2017: -$42,7252017Revenue 2018: $453,800Expenses 2018: $371,076Net Income 2018: $82,7242018Revenue 2019: $673,420Expenses 2019: $329,499Net Income 2019: $343,9212019Revenue 2020: $346,583Expenses 2020: $307,827Net Income 2020: $38,7562020Revenue 2021: $683,316Expenses 2021: $315,772Net Income 2021: $367,5442021Revenue 2022: $548,640Expenses 2022: $377,639Net Income 2022: $171,0012022Revenue 2023: $410,383Expenses 2023: $488,110Net Income 2023: -$77,7272023Revenue 2024: $452,414Expenses 2024: $491,468Net Income 2024: -$39,0542024

Highlighted filing

2019

Revenue$673,420
Expenses$329,499
Net Income$343,921
Open 2019 Filing
Jump To
Filing Snapshot
Filing Period
Oct 1, 2018 to Sep 30, 2019
Signed
Feb 26, 2019
Return Version
2018v3.2
Gross Receipts
$775,523
Mission and Program Overview

Mission

To provide information about the disorder neurofibromatosis to those affected and help families find medical, social and genetic counseling. To raise and seek funds for research for a cure.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$221,535$508,632▲ $287,097
Investments in Publicly Traded Securities$188,922$193,497▲ $4,575
Accounts Receivable$5,012--
Prepaid Expenses and Deferred Charges$1,614$1,605▼ $9
Total Assets$417,083$703,734▲ $286,651
Liabilities
Grants Payable$39,468--
Accounts Payable and Accrued Expenses$7,611$3,094▼ $4,517
Total Liabilities$47,079$3,094▼ $43,985
Net Assets / Fund Balance
Unrestricted Net Assets$85,018$415,654▲ $330,636
Temporarily Rstr Net Assets$284,986$284,986→ $0
Total Net Assets Fund Balance$370,004$700,640▲ $330,636
Total Liabilities and Net Assets / Fund Balance$417,083$703,734▲ $286,651
Compensation and Service Providers
Top Officer Pay50th percentile

Board Members and Trustees

NameTitle
Ryan GeierPresident
Cheri StewartBoard Member
Debi BellBoard Member
Diana FlahiveBoard Member
Gregg EricksonBoard Member
Michelle SlimkoBoard Member
Mike SheedyBoard Member
Rosemary AndersonBoard Member
Sharon LoftspringBoard Member
Shelley VolkertBoard Member
Yvonne GlassBoard Member
Nicole HicksSecretary
Michael MontgomeryTreasurer
John ManthVP
Revenue and Support

Revenue Composition

Contributions and Grants
$570,992
Program Service Revenue
$0
Investment Income
$17,980
Other Revenue
$84,448
All Other Contributions
$503,977
Change in Net Assets
$343,921

Audited Revenue Reconciliation

Revenue per Audited Statements
$775,523
Revenue Not Reported on Financial Statements
$-102,103
Revenue Not Reported on Form 990
$-13,285
Other Revenue Adjustments
$-102,103
Total Revenue per Audited Statements
$762,238
Total Revenue per Form 990
$673,420
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$176,578
Other Expenses$152,921
Total Fundraising Expense$5,645
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$137,080$17,533$4,782$159,395
Fees for Services Lobbying$28,902--$28,902
Payroll Taxes$14,778$1,890$515$17,183
Occupancy$8,168--$8,168
Conferences and Meetings$7,022--$7,022
Fees for Services Accounting$5,657$886$273$6,816
Office Expenses$5,959--$5,959
All Other Expenses$1,228$3,152-$4,380
Other Expenses$3,829--$3,829
Insurance$2,152$247$75$2,474
Total Functional Expenses$300,146$23,708$5,645$329,499

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$431,602
Total Expenses per Audited Statements$431,602
Total Expenses per Form 990$329,499
Expenses Not Reported on Financial Statements$-102,103
Other Expense Adjustments$-102,103
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$185,026
Fundraising Direct Expenses$102,103
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Nf Hope Concert$189,828$128,950$89,267$39,683
Links for Laure$56,076$56,076$12,836$43,240
Total Events$245,904$185,026$102,103$82,923
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 11B

“The 990 will be reviewed by several executive committee members and the treasurer before it is filed with the internal revenue service.”

Form 990, Page 6, Part VI, Line 12C

“The organization practices for monitoring proposed or ongoing transactions for conflicts of interest includes the following: description of persons covered under the policy: board members, officer's, directors, employees, trustees, volunteers. The level at which determinations of whether a conflict exists are made at the board level and are reviewed at the board level. A restriction is imposed on persons participating in a conflict by not allowing that person to participate in the governing body's deliberations and decision in the transaction.”

Form 990, Page 6, Part VI, Line 15A

“The executive director's salary is annually reviewed by the governing board members.”

Form 990, Page 6, Part VI, Line 15B

“Employee's salaries are reviewed by the executive director.”

Form 990, Page 6, Part VI, Line 19

“The organization makes it's governing documents, articles of incorporation, constitution, by laws, available to the public upon request.”

Filing and Contact Details

Filer

Filer Name
Neurofibromatosis Network
EIN
04-3030760
Phone
6305101115
Address
213 SOUTH WHEATON AVENUE, WHEATON, IL 60187

Signing Officer

Name
Michael Montgomery
Title
Treasurer
Phone
6306271115
Signed
2019-02-26

Organization Details

Principal Officer
Michael Montgomery
Formed
1990
Legal Domicile
Ma
Voting Board Members
14
Independent Board Members
14
Employees
4
Volunteers
300

Preparer

Firm
KOLNICKI PETERSON & WIRTH CPA'S
Address
1400 OPUS PLACE SUITE 100, DOWNERS GROVE, IL 60515
Preparer
Kenneth W Peterson CPA
Phone
6303901140
Supplemental Narrative

Additional Explanations

Form 990, Part XI, Line 9

“Special event expenses netted against income 102,103 special event expenses netted against income -102,103”

Financial Statement Notes

Schedule D, Page 3, Part X

“Neurofirbroatosis network is a tax-exempt organization as described in the section 501(3) of the internal revenue code (the code) and is exempt from federal income taxes on related income pursuant to section 501(a) of the code. In addition, the internal revenue service has determined that neurofirbroatosis network is not a private foundation within the meaning of section 509(a) of the code.”

Schedule D, Page 4, Part XI, Line 4B

“Special event expenses netted against income -102,103”

Schedule D, Page 4, Part XII, Line 4B

“Special event expenses netted against income -102,103”

Raw XML AppendixShowing 400 of 470 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd0false
IRS990/AccountsPayableAccrExpnssGrp/BOYAmt07611
IRS990/AccountsPayableAccrExpnssGrp/EOYAmt03094
IRS990/AccountsReceivableGrp/BOYAmt05012
IRS990/ActivitiesConductedPrtshpInd0false
IRS990/ActivityOrMissionDesc0TO PROVIDE INFORMATION ABOUT THE DISORDER NEUROFIBROMATOSIS TO THOSE AFFECTED AND HELP FAMILIES FIND MEDICAL, SOCIAL AND GENETIC COUNSELING. TO RAISE AND SEEK FUNDS FOR RESEARCH FOR A CURE.
IRS990/AllOtherContributionsAmt0503977
IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt03152
IRS990/AllOtherExpensesGrp/ProgramServicesAmt01228
IRS990/AllOtherExpensesGrp/TotalAmt04380
IRS990/AnnualDisclosureCoveredPrsnInd0true
IRS990/AuditCommitteeInd0true
IRS990/BooksInCareOfDetail/PersonNm0KIM BISCHOFF
IRS990/BooksInCareOfDetail/PhoneNum06305101115
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt0213 SOUTH WHEATON AVE
IRS990/BooksInCareOfDetail/USAddress/CityNm0WHEATON
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0IL
IRS990/BooksInCareOfDetail/USAddress/ZIPCd060187
IRS990/BusinessRlnWithFamMemInd0false
IRS990/BusinessRlnWithOfficerEntInd0false
IRS990/BusinessRlnWithOrgMemInd0false
IRS990/CashNonInterestBearingGrp/BOYAmt0221535
IRS990/CashNonInterestBearingGrp/EOYAmt0508632
IRS990/ChangeToOrgDocumentsInd0false
IRS990/CollectionsOfArtInd0false
IRS990/CompensationFromOtherSrcsInd0false
IRS990/CompensationProcessCEOInd0true
IRS990/CompensationProcessOtherInd0true
IRS990/ConferencesMeetingsGrp/ProgramServicesAmt07022
IRS990/ConferencesMeetingsGrp/TotalAmt07022
IRS990/ConflictOfInterestPolicyInd0true
IRS990/ConservationEasementsInd0false
IRS990/ConsolidatedAuditFinclStmtInd0false
IRS990/ContriRptFundraisingEventAmt060878
IRS990/CreditCounselingInd0false
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt0570992
IRS990/CYGrantsAndSimilarPaidAmt00
IRS990/CYInvestmentIncomeAmt017980
IRS990/CYOtherExpensesAmt0152921
IRS990/CYOtherRevenueAmt084448
IRS990/CYProgramServiceRevenueAmt00
IRS990/CYRevenuesLessExpensesAmt0343921
IRS990/CYSalariesCompEmpBnftPaidAmt0176578
IRS990/CYTotalExpensesAmt0329499
IRS990/CYTotalFundraisingExpenseAmt05645
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt0673420
IRS990/DecisionsSubjectToApprovaInd0false
IRS990/DeductibleArtContributionInd0false
IRS990/DeductibleNonCashContriInd0false
IRS990/DelegationOfMgmtDutiesInd0false
IRS990/Desc0TO PROVIDE THOSE WITH NEUROFIBROMATOSIS WITH INFORMATION ABOUT THE DISORDER AND HELP FAMILIES FIND MEDICAL, SOCIAL, AND GENETIC COUNSELING. TO RAISE AND SEEK FUNDS FOR RESEARCH FOR A CURE.
IRS990/DescribedInSection501c3Ind0true
IRS990/DisregardedEntityInd0false
IRS990/DocumentRetentionPolicyInd0true
IRS990/DonorAdvisedFundInd0false
IRS990/ElectionOfBoardMembersInd0false
IRS990/EmployeeCnt04
IRS990/EmploymentTaxReturnsFiledInd0true
IRS990/EngagedInExcessBenefitTransInd0false
IRS990/ExpenseAmt0300146
IRS990/FamilyOrBusinessRlnInd0false
IRS990/FederalGrantAuditRequiredInd0false
IRS990/FederatedCampaignsAmt06137
IRS990/FeesForServicesAccountingGrp/FundraisingAmt0273
IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt0886
IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt05657
IRS990/FeesForServicesAccountingGrp/TotalAmt06816
IRS990/FeesForServicesLobbyingGrp/ProgramServicesAmt028902
IRS990/FeesForServicesLobbyingGrp/TotalAmt028902
IRS990/ForeignActivitiesInd0false
IRS990/ForeignFinancialAccountInd0false
IRS990/ForeignOfficeInd0false
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt015.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt15.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt25.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt35.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt45.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt515.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt65.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt75.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt85.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt95.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt105.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1115.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt125.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt135.00
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd8X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd9X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd10X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd11X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd12X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd13X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt130
IRS990/Form990PartVIISectionAGrp/PersonNm0RYAN GEIER
IRS990/Form990PartVIISectionAGrp/PersonNm1MICHELLE SLIMKO
IRS990/Form990PartVIISectionAGrp/PersonNm2NICOLE HICKS
IRS990/Form990PartVIISectionAGrp/PersonNm3GREGG ERICKSON
IRS990/Form990PartVIISectionAGrp/PersonNm4YVONNE GLASS
IRS990/Form990PartVIISectionAGrp/PersonNm5MICHAEL MONTGOMERY
IRS990/Form990PartVIISectionAGrp/PersonNm6DEBI BELL
IRS990/Form990PartVIISectionAGrp/PersonNm7CHERI STEWART
IRS990/Form990PartVIISectionAGrp/PersonNm8MIKE SHEEDY
IRS990/Form990PartVIISectionAGrp/PersonNm9ROSEMARY ANDERSON
IRS990/Form990PartVIISectionAGrp/PersonNm10SHARON LOFTSPRING
IRS990/Form990PartVIISectionAGrp/PersonNm11JOHN MANTH
IRS990/Form990PartVIISectionAGrp/PersonNm12DIANA FLAHIVE
IRS990/Form990PartVIISectionAGrp/PersonNm13SHELLEY VOLKERT
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/TitleTxt0PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt1BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt2SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt3BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt4BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt5TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt6BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt7BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt8BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt9BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt10BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt11VP
IRS990/Form990PartVIISectionAGrp/TitleTxt12BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt13BOARD MEMBER
IRS990/Form990ProvidedToGvrnBodyInd0false
IRS990/FormationYr01990
IRS990/FormerOfcrEmployeesListedInd0false
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd0true
IRS990/FundraisingActivitiesInd0true
IRS990/FundraisingAmt060878
IRS990/FundraisingDirectExpensesAmt0102103
IRS990/FundraisingGrossIncomeAmt0185026
IRS990/GamingActivitiesInd0false
IRS990/GoverningBodyVotingMembersCnt014
IRS990/GrantsPayableGrp/BOYAmt039468
IRS990/GrantsToIndividualsInd0false
IRS990/GrantsToOrganizationsInd0false
IRS990/GrantToRelatedPersonInd0false
IRS990/GrossReceiptsAmt0775523
IRS990/GroupReturnForAffiliatesInd0false
IRS990/IncludeFIN48FootnoteInd0true
IRS990/IndependentAuditFinclStmtInd0true
IRS990/IndependentVotingMemberCnt014
IRS990/IndoorTanningServicesInd0false
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIInd0X
IRS990/InsuranceGrp/FundraisingAmt075
IRS990/InsuranceGrp/ManagementAndGeneralAmt0247
IRS990/InsuranceGrp/ProgramServicesAmt02152
IRS990/InsuranceGrp/TotalAmt02474
IRS990/InvestmentIncomeGrp/RelatedOrExemptFuncIncomeAmt017980
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt017980
IRS990/InvestmentInJointVentureInd0false
IRS990/InvestmentsPubTradedSecGrp/BOYAmt0188922
IRS990/InvestmentsPubTradedSecGrp/EOYAmt0193497
IRS990/IRPDocumentCnt02
IRS990/IRPDocumentW2GCnt00
IRS990/LegalDomicileStateCd0MA
IRS990/LoanOutstandingInd0false
IRS990/LobbyingActivitiesInd0true
IRS990/LocalChaptersInd0false
IRS990/MaterialDiversionOrMisuseInd0false
IRS990/MembersOrStockholdersInd0false
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd0true
IRS990/MinutesOfGoverningBodyInd0true
IRS990/MissionDesc0TO PROVIDE INFORMATION ABOUT THE DISORDER NEUROFIBROMATOSIS TO THOSE AFFECTED AND HELP FAMILIES FIND MEDICAL, SOCIAL AND GENETIC COUNSELING. TO RAISE AND SEEK FUNDS FOR RESEARCH FOR A CURE.
IRS990/MoreThan5000KToIndividualsInd0false
IRS990/MoreThan5000KToOrgInd0false
IRS990/NetAssetsOrFundBalancesBOYAmt0370004
IRS990/NetAssetsOrFundBalancesEOYAmt0700640
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt082923
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt082923
IRS990/NetUnrlzdGainsLossesInvstAmt0-13285
IRS990/NoListedPersonsCompensatedInd0X
IRS990/NondeductibleContributionsInd0false
IRS990/OccupancyGrp/ProgramServicesAmt08168
IRS990/OccupancyGrp/TotalAmt08168
IRS990/OfficeExpensesGrp/ProgramServicesAmt05959
IRS990/OfficeExpensesGrp/TotalAmt05959
IRS990/OfficerMailingAddressInd0false
IRS990/OperateHospitalInd0false
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OtherExpensesGrp/Desc0COMMUNITY SERVICE EXPENSE
IRS990/OtherExpensesGrp/Desc1WEBSITE
IRS990/OtherExpensesGrp/Desc2SUPPLIES
IRS990/OtherExpensesGrp/Desc3TELEPHONE
IRS990/OtherExpensesGrp/ProgramServicesAmt070079
IRS990/OtherExpensesGrp/ProgramServicesAmt19141
IRS990/OtherExpensesGrp/ProgramServicesAmt26151
IRS990/OtherExpensesGrp/ProgramServicesAmt33829
IRS990/OtherExpensesGrp/TotalAmt070079
IRS990/OtherExpensesGrp/TotalAmt19141
IRS990/OtherExpensesGrp/TotalAmt26151
IRS990/OtherExpensesGrp/TotalAmt33829
IRS990/OtherRevenueMiscGrp/Desc0MISCELLANEOUS INCOME
IRS990/OtherRevenueMiscGrp/ExclusionAmt01525
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt01525
IRS990/OtherRevenueTotalAmt01525
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt04782
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt017533
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0137080
IRS990/OtherSalariesAndWagesGrp/TotalAmt0159395
IRS990/OtherWebsiteInd0X
IRS990/PartialLiquidationInd0false
IRS990/PayrollTaxesGrp/FundraisingAmt0515
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt01890
IRS990/PayrollTaxesGrp/ProgramServicesAmt014778
IRS990/PayrollTaxesGrp/TotalAmt017183
IRS990/PoliticalCampaignActyInd0false
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt01614
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt01605
IRS990/PrincipalOfficerNm0MICHAEL MONTGOMERY
IRS990/ProfessionalFundraisingInd0false
IRS990/ProhibitedTaxShelterTransInd0false
IRS990/PYContributionsGrantsAmt0400906
IRS990/PYExcessBenefitTransInd0false
IRS990/PYInvestmentIncomeAmt012517
IRS990/PYOtherExpensesAmt0229042
IRS990/PYOtherRevenueAmt040377
IRS990/PYRevenuesLessExpensesAmt082724
IRS990/PYSalariesCompEmpBnftPaidAmt0142034
IRS990/PYTotalExpensesAmt0371076
IRS990/PYTotalRevenueAmt0453800
IRS990/ReconcilationRevenueExpnssAmt0343921
IRS990/RegularMonitoringEnfrcInd0true
IRS990/RelatedEntityInd0false
IRS990/RelatedOrganizationCtrlEntInd0false
IRS990/ReportInvestmentsOtherSecInd0false
IRS990/ReportLandBuildingEquipmentInd0false
IRS990/ReportOtherAssetsInd0false
IRS990/ReportOtherLiabilitiesInd0false
IRS990/ReportProgramRelatedInvstInd0false
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt0570992
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt0400906
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0197562
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0365400
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0252177
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt01787037
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt016877
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt016877
IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt039905
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.85280
IRS990ScheduleA/PublicSupportPY170Pct00.84990
IRS990ScheduleA/PublicSupportTotal170Amt01787037
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt0570992
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt0400906
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0197562
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0365400
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0252177
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt01787037
IRS990ScheduleA/TotalSupportAmt02095494
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearAmt083448
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus1YearAmt039377
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus2YearsAmt044722
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus3YearsAmt077094
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus4YearsAmt046939
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/TotalAmt0291580
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd0true
IRS990ScheduleC/DirectContactLegislatorsInd0false
IRS990ScheduleC/GrantsOtherOrganizationsInd0false
IRS990ScheduleC/MailingsMembersInd0false
IRS990ScheduleC/MediaAdvertisementsInd0false
IRS990ScheduleC/NotDescribedSection501c3Ind0false
IRS990ScheduleC/OtherActivitiesInd0false
IRS990ScheduleC/PaidStaffOrManagementInd0false
IRS990ScheduleC/PublicationsOrBroadcastInd0false
IRS990ScheduleC/RalliesDemonstrationsInd0false
IRS990ScheduleC/SupplementalInformationDetail/ExplanationTxt0LOBBYING FEES WERE PAID TO VAN SCOYOC ASSOCIATES, 800 MAINE AVENUE, SUITE 800,WASHINGTON DC 20024 TO PERSUADE MEMBERS OF THE GOVERNMENT TO ENACT LEGISLATION THAT WOULD FUND RESEARCH FOR INDIVIDUALS WITH NEUROFIBROMATOSIS.
IRS990ScheduleC/SupplementalInformationDetail/FormAndLineReferenceDesc0SCHEDULE C, PART II-B, LINE 1
IRS990ScheduleC/VolunteersInd0false
IRS990ScheduleD/ExpensesNotRptFinclStmtAmt0-102103
IRS990ScheduleD/ExpensesSubtotalAmt0431602
IRS990ScheduleD/FootnoteTextInd0X
IRS990ScheduleD/NetUnrealizedGainsInvstAmt0-13285
IRS990ScheduleD/OtherExpensesNotIncludedAmt0-102103
IRS990ScheduleD/OtherRevenuesNotIncludedAmt0-102103
IRS990ScheduleD/RevenueNotReportedAmt0-13285
IRS990ScheduleD/RevenueNotReportedFinclStmtAmt0-102103
IRS990ScheduleD/RevenueSubtotalAmt0775523
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0NEUROFIRBROATOSIS NETWORK IS A TAX-EXEMPT ORGANIZATION AS DESCRIBED IN THE SECTION 501(3) OF THE INTERNAL REVENUE CODE (THE CODE) AND IS EXEMPT FROM FEDERAL INCOME TAXES ON RELATED INCOME PURSUANT TO SECTION 501(A) OF THE CODE. IN ADDITION, THE INTERNAL REVENUE SERVICE HAS DETERMINED THAT NEUROFIRBROATOSIS NETWORK IS NOT A PRIVATE FOUNDATION WITHIN THE MEANING OF SECTION 509(A) OF THE CODE.
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt1SPECIAL EVENT EXPENSES NETTED AGAINST INCOME -102,103
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt2SPECIAL EVENT EXPENSES NETTED AGAINST INCOME -102,103
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0SCHEDULE D, PAGE 3, PART X
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc1SCHEDULE D, PAGE 4, PART XI, LINE 4B
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc2SCHEDULE D, PAGE 4, PART XII, LINE 4B
IRS990ScheduleD/TotalExpensesPerForm990Amt0329499
IRS990ScheduleD/TotalRevenuePerForm990Amt0673420
IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt0762238
IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt0431602
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt060878
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt060878
IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt0102103
IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm0NF HOPE CONCERT
IRS990ScheduleG/FundraisingEventInformationGrp/Event2Nm0LINKS FOR LAURE
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt0189828
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent2Amt056076
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt0245904
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt0128950
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent2Amt056076
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt0185026
IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt082923
IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt0102103
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt089267
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent2Amt012836
IRS990/ScheduleJRequiredInd0false
IRS990/ScheduleORequiredInd0true
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0THE 990 WILL BE REVIEWED BY SEVERAL EXECUTIVE COMMITTEE MEMBERS AND THE TREASURER BEFORE IT IS FILED WITH THE INTERNAL REVENUE SERVICE.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1THE ORGANIZATION PRACTICES FOR MONITORING PROPOSED OR ONGOING TRANSACTIONS FOR CONFLICTS OF INTEREST INCLUDES THE FOLLOWING: DESCRIPTION OF PERSONS COVERED UNDER THE POLICY: BOARD MEMBERS, OFFICER'S, DIRECTORS, EMPLOYEES, TRUSTEES, VOLUNTEERS. THE LEVEL AT WHICH DETERMINATIONS OF WHETHER A CONFLICT EXISTS ARE MADE AT THE BOARD LEVEL AND ARE REVIEWED AT THE BOARD LEVEL. A RESTRICTION IS IMPOSED ON PERSONS PARTICIPATING IN A CONFLICT BY NOT ALLOWING THAT PERSON TO PARTICIPATE IN THE GOVERNING BODY'S DELIBERATIONS AND DECISION IN THE TRANSACTION.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2THE EXECUTIVE DIRECTOR'S SALARY IS ANNUALLY REVIEWED BY THE GOVERNING BOARD MEMBERS.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3EMPLOYEE'S SALARIES ARE REVIEWED BY THE EXECUTIVE DIRECTOR.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4THE ORGANIZATION MAKES IT'S GOVERNING DOCUMENTS, ARTICLES OF INCORPORATION, CONSTITUTION, BY LAWS, AVAILABLE TO THE PUBLIC UPON REQUEST.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5SPECIAL EVENT EXPENSES NETTED AGAINST INCOME 102,103 SPECIAL EVENT EXPENSES NETTED AGAINST INCOME -102,103
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990, PAGE 6, PART VI, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PAGE 6, PART VI, LINE 12C
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PAGE 6, PART VI, LINE 15A
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3FORM 990, PAGE 6, PART VI, LINE 15B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4FORM 990, PAGE 6, PART VI, LINE 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc5FORM 990, PART XI, LINE 9
IRS990/SchoolOperatingInd0false
IRS990/SignificantChangeInd0false
IRS990/SignificantNewProgramSrvcInd0false
IRS990/StatesWhereCopyOfReturnIsFldCd0IL
IRS990/StatesWhereCopyOfReturnIsFldCd1MA
IRS990/SubjectToExcsTaxNetInvstIncInd0false
IRS990/SubjectToProxyTaxInd0false
IRS990/SubjToTaxRmnrtnExPrchtPymtInd0false
IRS990/TaxablePartyNotificationInd0false
IRS990/TaxExemptBondsInd0false
IRS990/TemporarilyRstrNetAssetsGrp/BOYAmt0284986
IRS990/TemporarilyRstrNetAssetsGrp/EOYAmt0284986
IRS990/TempOrPermanentEndowmentsInd0false
IRS990/TerminateOperationsInd0false
IRS990/TotalAssetsBOYAmt0417083
IRS990/TotalAssetsEOYAmt0703734
IRS990/TotalAssetsGrp/BOYAmt0417083

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2019 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$703,734
Liabilities
$3,094
Net assets
$700,640
Revenue
$673,420
Expenses
$329,499
Net income
$343,921
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.23$0.01$1.22$0.45$0.49$0.04
2023Detailed filing. Detailed filing data is available for this year.$1.19$0.02$1.17$0.41$0.49$0.08
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.21$0.00$1.20$0.55$0.38$0.17
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.23$0.03$1.19$0.68$0.32$0.37
2020Import issue. A filing source exists for this year, but detailed import did not complete cleanly.$0.77$0.00$0.77$0.35$0.31$0.04
2019Detailed filing. Detailed filing data is available for this year.$0.70$0.00$0.70$0.67$0.33$0.34
2018Detailed filing. Detailed filing data is available for this year.$0.42$0.05$0.37$0.45$0.37$0.08
2017Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.29$0.01$0.28$0.26$0.31$0.04
2016Detailed filing. Detailed filing data is available for this year.$0.39$0.07$0.32$0.36$0.38$0.02
2015Summary only. Only limited summary data is available for this year.$0.35$0.00$0.35$0.30$0.34$0.04
2014Summary only. Only limited summary data is available for this year.$0.41$0.03$0.39$0.29$0.30$0.00
2013Summary only. Only limited summary data is available for this year.$0.38$0.00$0.38$0.22$0.27$0.05
2012Summary only. Only limited summary data is available for this year.$0.44$0.01$0.43$0.21$0.22$0.00
2011Summary only. Only limited summary data is available for this year.$0.42$0.00$0.42$0.20$0.21$0.00