Liabilities / Assets
82nd percentile
Higher debt load relative to assets than 82% of similar nonprofits.
990 • Fiscal year 2016 • EIN 04-3030760
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
82nd percentile
Higher debt load relative to assets than 82% of similar nonprofits.
Liabilities / Revenue
87th percentile
Higher debt load relative to revenue than 87% of similar nonprofits.
Net Margin
29th percentile
Higher net margin than 29% of similar nonprofits.
Top Officer Pay
75th percentile
Higher top officer pay than 75% of similar nonprofits.
Top officer pay equals 0.0% of source-year revenue.
Asset Growth
64th percentile
Faster asset growth than 64% of similar nonprofits.
Revenue Growth
73rd percentile
Faster revenue growth than 73% of similar nonprofits.
Assets
Up$387,744
Up $37,717 (+11%) from 2015
Net Assets
Down$318,022
Down $28,715 (-8.3%) from 2015
Liabilities
Up$69,722
Up $66,432 (+2019%) from 2015
Revenue
Up$360,728
Up $60,365 (+20%) from 2015
Expenses
Up$380,949
Up $45,268 (+13%) from 2015
Net Income
Up-$20,221
Up $15,097 (+43%) from 2015
To provide information about the disorder neurofibromatosis to those affected and help families find medical, social and genetic counseling. To raise and seek funds for research for a cure.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $188,982 | $211,155 | ▲ $22,173 |
| Investments in Publicly Traded Securities | $159,568 | $175,019 | ▲ $15,451 |
| Prepaid Expenses and Deferred Charges | $1,477 | $1,570 | ▲ $93 |
| Total Assets | $350,027 | $387,744 | ▲ $37,717 |
| Liabilities | |||
| Other Liabilities | - | $63,870 | - |
| Accounts Payable and Accrued Expenses | $3,290 | $5,852 | ▲ $2,562 |
| Total Liabilities | $3,290 | $69,722 | ▲ $66,432 |
| Net Assets / Fund Balance | |||
| Temporarily Rstr Net Assets | $118,184 | $177,120 | ▲ $58,936 |
| Unrestricted Net Assets | $228,553 | $140,902 | ▼ $87,651 |
| Total Net Assets Fund Balance | $346,737 | $318,022 | ▼ $28,715 |
| Total Liabilities and Net Assets / Fund Balance | $350,027 | $387,744 | ▲ $37,717 |
| Name | Title |
|---|---|
| Cheri Stewart | President |
| Debbi Hanlon | Board Member |
| Debi Bell | Board Member |
| John Manth | Board Member |
| Michelle Slimko | Board Member |
| Mike Sheedy | Board Member |
| Ryan Geier | Board Member |
| Sharon Loftspring | Board Member |
| Linda Yew | Member |
| Nicole Hicks | Secretary |
| Michael Montgomery | Treasurer |
| Rosemary Anderson | VP |
| Line Item | Amount |
|---|---|
| Salaries, Compensation, and Employee Benefits | $158,029 |
| Other Expenses | $129,626 |
| Grants and Similar Amounts Paid | $93,294 |
| Total Fundraising Expense | $25,403 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Other Salaries and Wages | $124,756 | $15,991 | $3,998 | $144,745 |
| Grants to Domestic Orgs | $93,294 | - | - | $93,294 |
| Conferences and Meetings | $17,631 | - | - | $17,631 |
| Payroll Taxes | $10,437 | $2,135 | $712 | $13,284 |
| All Other Expenses | $7,473 | $3,998 | - | $11,471 |
| Fees for Services Accounting | $5,959 | $975 | $326 | $7,260 |
| Occupancy | $6,300 | - | - | $6,300 |
| Other Expenses | $11,657 | $5,291 | $20,292 | $5,291 |
| Office Expenses | $4,784 | $341 | - | $5,125 |
| Insurance | $1,933 | $223 | $75 | $2,231 |
| Total Functional Expenses | $326,592 | $28,954 | $25,403 | $380,949 |
| Line Item | Amount |
|---|---|
| Expenses per Audited Statements | $488,086 |
| Total Expenses per Audited Statements | $488,086 |
| Total Expenses per Form 990 | $380,949 |
| Expenses Not Reported on Financial Statements | $-107,137 |
| Other Expense Adjustments | $-107,137 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| University of Wisconsin | Madison, WI | - | For Research | $32,870 |
| Uw Foundation | Madison, WI | - | For Research | $32,424 |
| University of Wisconsin | Madison, WI | - | For Research | $21,000 |
| University of Wis Nf Foundation | Madison, WI | - | For Research | $7,000 |
| Line Item | Amount |
|---|---|
| Fundraising Gross Income | $119,448 |
| Fundraising Direct Expenses | $107,137 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Nf Hope Concert | $83,666 | $44,473 | $87,353 | $-42,880 |
| Rock Out to Kno | $42,354 | $42,354 | - | $42,354 |
| Total Events | $158,641 | $119,448 | $107,137 | $12,311 |
| Liability | Amount |
|---|---|
| Grants Payable | $53,870 |
| Accrued Consulting Fees | $10,000 |
“The 990 will be reviewed by several executive committee members and the treasurer before it is filed with the internal revenue service.”
“The organization practices for monitoring proposed or ongoing transactions for conflicts of interest includes the following: description of persons covered under the policy: board members, officer's, directors, employees, trustees, volunteers. The level at which determinations of whether a conflict exists are made at the board level and are reviewed at the board level. A restriction is imposed on persons participating in a conflict by not allowing that person to participate in the governing body's deliberations and decision in the transaction.”
“The executive director's salary is annually reviewed by the governing board members.”
“Employee's salaries are reviewed by the executive director.”
“The organization makes it's governing documents, articles of incorporation, constitution, by laws, available to the public upon request.”
“Special event expenses netted against income 107,137 special event expenses netted against income -107,137”
“Special event expenses netted against income -107,137”
“Special event expenses netted against income -107,137”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | false |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 3290 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 5852 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | TO PROVIDE INFORMATION ABOUT THE DISORDER NEUROFIBROMATOSIS TO THOSE AFFECTED AND HELP FAMILIES FIND MEDICAL, SOCIAL AND GENETIC COUNSELING. TO RAISE AND SEEK FUNDS FOR RESEARCH FOR A CURE. |
| IRS990/AllOtherContributionsAmt | 0 | 261131 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 3998 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 7473 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 11471 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/AuditCommitteeInd | 0 | true |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | KIM BISCHOFF |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 6305101115 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 213 SOUTH WHEATON AVE |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | WHEATON |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | IL |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 60187 |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOfficerEntInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 188982 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 211155 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | true |
| IRS990/CompensationProcessOtherInd | 0 | true |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 17631 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 17631 |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/ContriRptFundraisingEventAmt | 0 | 39193 |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 323046 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 93294 |
| IRS990/CYInvestmentIncomeAmt | 0 | 25371 |
| IRS990/CYOtherExpensesAmt | 0 | 129626 |
| IRS990/CYOtherRevenueAmt | 0 | 12311 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | -20221 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 158029 |
| IRS990/CYTotalExpensesAmt | 0 | 380949 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 25403 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 360728 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/Desc | 0 | TO PROVIDE THOSE WITH NEUROFIBROMATOSIS WITH INFORMATION ABOUT THE DISORDER AND HELP FAMILIES FIND MEDICAL, SOCIAL, AND GENETIC COUNSELING. TO RAISE AND SEEK FUNDS FOR RESEARCH FOR A CURE. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | true |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 3 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | true |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 326592 |
| IRS990/FamilyOrBusinessRlnInd | 0 | false |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FederatedCampaignsAmt | 0 | 22722 |
| IRS990/FeesForServicesAccountingGrp/FundraisingAmt | 0 | 326 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 975 |
| IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt | 0 | 5959 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 7260 |
| IRS990/ForeignActivitiesInd | 0 | false |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 15.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 10.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 15.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 11 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 10 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 11 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | RYAN GEIER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | MICHELLE SLIMKO |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | NICOLE HICKS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | CHERI STEWART |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | LINDA YEW |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | MICHAEL MONTGOMERY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | DEBI BELL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | DEBBI HANLON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | MIKE SHEEDY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | ROSEMARY ANDERSON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | SHARON LOFTSPRING |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | JOHN MANTH |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | PRESIDENT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | TREASURER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | VP |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | BOARD MEMBER |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | false |
| IRS990/FormationYr | 0 | 1990 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | true |
| IRS990/FundraisingActivitiesInd | 0 | true |
| IRS990/FundraisingAmt | 0 | 39193 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 107137 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 119448 |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 12 |
| IRS990/GrantAmt | 0 | 93294 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 93294 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 93294 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | true |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossReceiptsAmt | 0 | 467865 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | false |
| IRS990/IndependentAuditFinclStmtInd | 0 | true |
| IRS990/IndependentVotingMemberCnt | 0 | 12 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InsuranceGrp/FundraisingAmt | 0 | 75 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 223 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 1933 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 2231 |
| IRS990/InvestmentIncomeGrp/RelatedOrExemptFuncIncomeAmt | 0 | 25371 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 25371 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/InvestmentsPubTradedSecGrp/BOYAmt | 0 | 159568 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 175019 |
| IRS990/IRPDocumentCnt | 0 | 0 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LegalDomicileStateCd | 0 | MA |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | true |
| IRS990/LocalChaptersInd | 0 | false |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | true |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | TO PROVIDE INFORMATION ABOUT THE DISORDER NEUROFIBROMATOSIS TO THOSE AFFECTED AND HELP FAMILIES FIND MEDICAL, SOCIAL AND GENETIC COUNSELING. TO RAISE AND SEEK FUNDS FOR RESEARCH FOR A CURE. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | false |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 346737 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 318022 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | 12311 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 12311 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | -8494 |
| IRS990/NoListedPersonsCompensatedInd | 0 | X |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 6300 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 6300 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 341 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 4784 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 5125 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsSFAS117Ind | 0 | X |
| IRS990/OtherExpensesGrp/Desc | 0 | COMMUNITY SERVICE EXPENSE |
| IRS990/OtherExpensesGrp/Desc | 1 | FUNDRAISING EXPENSES |
| IRS990/OtherExpensesGrp/Desc | 2 | WEBSITE |
| IRS990/OtherExpensesGrp/Desc | 3 | SUPPLIES |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 20292 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 5291 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 42368 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 11657 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 42368 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 20292 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 11657 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 5291 |
| IRS990/OtherLiabilitiesGrp/EOYAmt | 0 | 63870 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 3998 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 15991 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 124756 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 144745 |
| IRS990/OtherWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 712 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 2135 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 10437 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 13284 |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 1477 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 1570 |
| IRS990/PrincipalOfficerNm | 0 | MICHAEL MONTGOMERY |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 252177 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 45412 |
| IRS990/PYInvestmentIncomeAmt | 0 | 247 |
| IRS990/PYOtherExpensesAmt | 0 | 142775 |
| IRS990/PYOtherRevenueAmt | 0 | 47939 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | -35318 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 147494 |
| IRS990/PYTotalExpensesAmt | 0 | 335681 |
| IRS990/PYTotalRevenueAmt | 0 | 300363 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | -20221 |
| IRS990/RegularMonitoringEnfrcInd | 0 | true |
| IRS990/RelatedEntityInd | 0 | false |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990/ReportInvestmentsOtherSecInd | 0 | false |
| IRS990/ReportLandBuildingEquipmentInd | 0 | false |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | true |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
| IRS990ScheduleA/Form990ScheduleAPartVIGrp/ExplanationTxt | 0 | 5,759 |
| IRS990ScheduleA/Form990ScheduleAPartVIGrp/FormAndLineReferenceDesc | 0 | PART II, LINE 10 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 365400 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 252177 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 253536 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 177198 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 206325 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 1254636 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt | 0 | 16877 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 16877 |
| IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt | 0 | 25371 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 5759 |
| IRS990ScheduleA/OtherIncome170Grp/TotalAmt | 0 | 5759 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.85480 |
| IRS990ScheduleA/PublicSupportPY170Pct | 0 | 0.89430 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 1254636 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind | 0 | X |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 365400 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 252177 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 253536 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 177198 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 206325 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 1254636 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 1467780 |
| IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearAmt | 0 | 77094 |
| IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus1YearAmt | 0 | 46939 |
| IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 34518 |
| IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 27112 |
| IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 4845 |
| IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/TotalAmt | 0 | 190508 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | true |
| IRS990ScheduleC/DirectContactLegislatorsInd | 0 | false |
| IRS990ScheduleC/GrantsOtherOrganizationsInd | 0 | false |
| IRS990ScheduleC/MailingsMembersInd | 0 | false |
| IRS990ScheduleC/MediaAdvertisementsInd | 0 | false |
| IRS990ScheduleC/NotDescribedSection501c3Ind | 0 | false |
| IRS990ScheduleC/OtherActivitiesAmt | 0 | 16000 |
| IRS990ScheduleC/OtherActivitiesInd | 0 | true |
| IRS990ScheduleC/PaidStaffOrManagementInd | 0 | false |
| IRS990ScheduleC/PublicationsOrBroadcastInd | 0 | false |
| IRS990ScheduleC/RalliesDemonstrationsInd | 0 | false |
| IRS990ScheduleC/SupplementalInformationDetail/ExplanationTxt | 0 | 16,000 WAS PAID TO VAN SCOYOC ASSOCIATES 101 CONSTITUTION NW 600, WASHINGTON DC 2001 TO PERSUADE MEMBERS OF THE GOVERNMENT TO ENACT LEGISLATION THAT WOULD BENEFIT THEIR GROUP. |
| IRS990ScheduleC/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | SCHEDULE C, PART II-B, LINE 1 |
| IRS990ScheduleC/TotalLobbyingExpendituresAmt | 0 | 16000 |
| IRS990ScheduleC/VolunteersInd | 0 | false |
| IRS990ScheduleD/ExpensesNotRptFinclStmtAmt | 0 | -107137 |
| IRS990ScheduleD/ExpensesSubtotalAmt | 0 | 488086 |
| IRS990ScheduleD/NetUnrealizedGainsInvstAmt | 0 | -8495 |
| IRS990ScheduleD/OtherExpensesNotIncludedAmt | 0 | -107137 |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt | 0 | 53870 |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt | 1 | 10000 |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc | 0 | GRANTS PAYABLE |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc | 1 | ACCRUED CONSULTING FEES |
| IRS990ScheduleD/OtherRevenuesNotIncludedAmt | 0 | -107137 |
| IRS990ScheduleD/RevenueNotReportedAmt | 0 | -8495 |
| IRS990ScheduleD/RevenueNotReportedFinclStmtAmt | 0 | -107137 |
| IRS990ScheduleD/RevenueSubtotalAmt | 0 | 467865 |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 0 | SPECIAL EVENT EXPENSES NETTED AGAINST INCOME -107,137 |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 1 | SPECIAL EVENT EXPENSES NETTED AGAINST INCOME -107,137 |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | SCHEDULE D, PAGE 4, PART XI, LINE 4B |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | SCHEDULE D, PAGE 4, PART XII, LINE 4B |
| IRS990ScheduleD/TotalExpensesPerForm990Amt | 0 | 380949 |
| IRS990ScheduleD/TotalLiabilityAmt | 0 | 63870 |
| IRS990ScheduleD/TotalRevenuePerForm990Amt | 0 | 360728 |
| IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt | 0 | 459370 |
| IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt | 0 | 488086 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt | 0 | 39193 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt | 0 | 39193 |
| IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt | 0 | 107137 |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm | 0 | NF HOPE CONCERT |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event2Nm | 0 | ROCK OUT TO KNO |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt | 0 | 83666 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent2Amt | 0 | 42354 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsOtherEventsAmt | 0 | 32621 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt | 0 | 158641 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt | 0 | 44473 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent2Amt | 0 | 42354 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueOtherEventsAmt | 0 | 32621 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt | 0 | 119448 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt | 0 | 12311 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssOtherEventsAmt | 0 | 19784 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt | 0 | 107137 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt | 0 | 87353 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherEventsTotalCnt | 0 | 1 |
| IRS990ScheduleI/GrantRecordsMaintainedInd | 0 | true |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 0 | 21000 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 1 | 32870 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 2 | 32424 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 3 | 7000 |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 0 | FOR RESEARCH |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 1 | FOR RESEARCH |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 2 | FOR RESEARCH |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 3 | FOR RESEARCH |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 0 | UNIVERSITY OF WISCONSIN |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 1 | UNIVERSITY OF WISCONSIN |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 2 | UW FOUNDATION |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 3 | UNIVERSITY OF WIS NF FOUNDATION |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 0 | 1848 UNIVERSITY AVENUE |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 1 | 1848 UNIVERSITY AVENUE |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 2 | 1848 UNIVERSITY AVENUE |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 3 | 1848 UNIVERSITY AVENUE |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 0 | MADISON |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 1 | MADISON |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 2 | MADISON |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 3 | MADISON |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 0 | WI |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 1 | WI |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 2 | WI |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 3 | WI |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 0 | 53726 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 1 | 53726 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 2 | 53726 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 3 | 53726 |
| IRS990/ScheduleJRequiredInd | 0 | false |
| IRS990/ScheduleORequiredInd | 0 | true |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | THE 990 WILL BE REVIEWED BY SEVERAL EXECUTIVE COMMITTEE MEMBERS AND THE TREASURER BEFORE IT IS FILED WITH THE INTERNAL REVENUE SERVICE. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | THE ORGANIZATION PRACTICES FOR MONITORING PROPOSED OR ONGOING TRANSACTIONS FOR CONFLICTS OF INTEREST INCLUDES THE FOLLOWING: DESCRIPTION OF PERSONS COVERED UNDER THE POLICY: BOARD MEMBERS, OFFICER'S, DIRECTORS, EMPLOYEES, TRUSTEES, VOLUNTEERS. THE LEVEL AT WHICH DETERMINATIONS OF WHETHER A CONFLICT EXISTS ARE MADE AT THE BOARD LEVEL AND ARE REVIEWED AT THE BOARD LEVEL. A RESTRICTION IS IMPOSED ON PERSONS PARTICIPATING IN A CONFLICT BY NOT ALLOWING THAT PERSON TO PARTICIPATE IN THE GOVERNING BODY'S DELIBERATIONS AND DECISION IN THE TRANSACTION. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | THE EXECUTIVE DIRECTOR'S SALARY IS ANNUALLY REVIEWED BY THE GOVERNING BOARD MEMBERS. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | EMPLOYEE'S SALARIES ARE REVIEWED BY THE EXECUTIVE DIRECTOR. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 4 | THE ORGANIZATION MAKES IT'S GOVERNING DOCUMENTS, ARTICLES OF INCORPORATION, CONSTITUTION, BY LAWS, AVAILABLE TO THE PUBLIC UPON REQUEST. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 5 | SPECIAL EVENT EXPENSES NETTED AGAINST INCOME 107,137 SPECIAL EVENT EXPENSES NETTED AGAINST INCOME -107,137 |
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Displayed year
2016 • Form 990Detailed filing. Detailed filing data is available for this year.
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