Civic Intelligence

Neurofibromatosis Network

EIN 04-3030760 • 501(c)3 • Wheaton, IL

Profile

To provide information about the disorder neurofibromatosis to those affected and help families find medical, social and genetic counseling. To raise and seek funds for research for a cure.

P O Box 1530Wheaton, IL 60187

www.nfnetwork.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

29th percentile

0.01x

Higher debt load relative to assets than 29% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Liabilities / Revenue

32nd percentile

0.02x

Higher debt load relative to revenue than 32% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Net Margin

24th percentile

-8.6%

Higher net margin than 24% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Top Officer Pay

83rd percentile

$104,158

Higher top officer pay than 83% of similar nonprofits.

Top officer pay equals 23.0% of source-year revenue.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Asset Growth

49th percentile

3.6%

Faster asset growth than 49% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Revenue Growth

56th percentile

10%

Faster revenue growth than 56% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets29th percentile

Assets

Up

$1,228,709

Up $43,258 (+3.6%) from 2023

Liabilities

Down

$7,605

Down $9,139 (-55%) from 2023

Net Assets

Up

$1,221,104

Up $52,397 (+4.5%) from 2023

Operations
Liabilities / Revenue32nd percentileNet Margin24th percentile

Revenue

Up

$452,414

Up $42,031 (+10%) from 2023

Expenses

Up

$491,468

Up $3,358 (+0.7%) from 2023

Net Income

Up

-$39,054

Up $38,673 (+50%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth49th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$1.5M$1.0M$500K$0Assets 2011: $421,681Liabilities 2011: $2,447Net Assets 2011: $419,2342011Assets 2012: $435,958Liabilities 2012: $6,139Net Assets 2012: $429,8192012Assets 2013: $381,998Liabilities 2013: $4,929Net Assets 2013: $377,0692013Assets 2014: $413,464Liabilities 2014: $28,191Net Assets 2014: $385,2732014Assets 2015: $350,027Liabilities 2015: $3,290Net Assets 2015: $346,7372015Assets 2016: $387,744Liabilities 2016: $69,722Net Assets 2016: $318,0222016Assets 2017: $293,288Liabilities 2017: $13,291Net Assets 2017: $279,9972017Assets 2018: $417,083Liabilities 2018: $47,079Net Assets 2018: $370,0042018Assets 2019: $703,734Liabilities 2019: $3,094Net Assets 2019: $700,6402019Assets 2020: $771,011Liabilities 2020: $2,483Net Assets 2020: $768,5282020Assets 2021: $1,225,098Liabilities 2021: $32,605Net Assets 2021: $1,192,4932021Assets 2022: $1,209,936Liabilities 2022: $4,974Net Assets 2022: $1,204,9622022Assets 2023: $1,185,451Liabilities 2023: $16,744Net Assets 2023: $1,168,7072023Assets 2024: $1,228,709Liabilities 2024: $7,605Net Assets 2024: $1,221,1042024

Highlighted filing

2024

Assets$1,228,709
Liabilities$7,605
Net Assets$1,221,104
Open 2024 Filing

Operations Trend

Revenue Growth56th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$800K$600K$400K$200K$0-$200KRevenue 2011: $203,868Expenses 2011: $206,377Net Income 2011: -$2,5092011Revenue 2012: $212,084Expenses 2012: $216,669Net Income 2012: -$4,5852012Revenue 2013: $222,215Expenses 2013: $274,965Net Income 2013: -$52,7502013Revenue 2014: $290,602Expenses 2014: $295,252Net Income 2014: -$4,6502014Revenue 2015: $300,363Expenses 2015: $335,681Net Income 2015: -$35,3182015Revenue 2016: $360,728Expenses 2016: $380,949Net Income 2016: -$20,2212016Revenue 2017: $262,807Expenses 2017: $305,532Net Income 2017: -$42,7252017Revenue 2018: $453,800Expenses 2018: $371,076Net Income 2018: $82,7242018Revenue 2019: $673,420Expenses 2019: $329,499Net Income 2019: $343,9212019Revenue 2020: $346,583Expenses 2020: $307,827Net Income 2020: $38,7562020Revenue 2021: $683,316Expenses 2021: $315,772Net Income 2021: $367,5442021Revenue 2022: $548,640Expenses 2022: $377,639Net Income 2022: $171,0012022Revenue 2023: $410,383Expenses 2023: $488,110Net Income 2023: -$77,7272023Revenue 2024: $452,414Expenses 2024: $491,468Net Income 2024: -$39,0542024

Highlighted filing

2024

Revenue$452,414
Expenses$491,468
Net Income-$39,054
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$1,228,709
Liabilities
$7,605
Net assets
$1,221,104
Revenue
$452,414
Expenses
$491,468
Net income
-$39,054
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.23$0.01$1.22$0.45$0.49$0.04
2023Detailed filing. Detailed filing data is available for this year.$1.19$0.02$1.17$0.41$0.49$0.08
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.21$0.00$1.20$0.55$0.38$0.17
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.23$0.03$1.19$0.68$0.32$0.37
2020Import issue. A filing source exists for this year, but detailed import did not complete cleanly.$0.77$0.00$0.77$0.35$0.31$0.04
2019Detailed filing. Detailed filing data is available for this year.$0.70$0.00$0.70$0.67$0.33$0.34
2018Detailed filing. Detailed filing data is available for this year.$0.42$0.05$0.37$0.45$0.37$0.08
2017Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.29$0.01$0.28$0.26$0.31$0.04
2016Detailed filing. Detailed filing data is available for this year.$0.39$0.07$0.32$0.36$0.38$0.02
2015Summary only. Only limited summary data is available for this year.$0.35$0.00$0.35$0.30$0.34$0.04
2014Summary only. Only limited summary data is available for this year.$0.41$0.03$0.39$0.29$0.30$0.00
2013Summary only. Only limited summary data is available for this year.$0.38$0.00$0.38$0.22$0.27$0.05
2012Summary only. Only limited summary data is available for this year.$0.44$0.01$0.43$0.21$0.22$0.00
2011Summary only. Only limited summary data is available for this year.$0.42$0.00$0.42$0.20$0.21$0.00
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Oct 1, 2023 to Sep 30, 2024
Signed
Jul 3, 2025
Return Version
2023v6.0
Gross Receipts
$581,282
Mission and Program Overview

Mission

To provide information about the disorder neurofibromatosis to those affected and help families find medical, social and genetic counseling. To raise and seek funds for research for a cure.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$714,477$647,179▼ $67,298
Investments in Publicly Traded Securities$458,906$578,568▲ $119,662
Prepaid Expenses and Deferred Charges$2,304$1,360▼ $944
Total Assets$1,185,451$1,228,709▲ $43,258
Other Assets Total$9,764$1,602▼ $8,162
Liabilities
Accounts Payable and Accrued Expenses$7,770$6,889▼ $881
Other Liabilities$8,974$716▼ $8,258
Total Liabilities$16,744$7,605▼ $9,139
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$865,582$1,121,649▲ $256,067
Net Assets With Donor Restrictions$303,125$99,455▼ $203,670
Total Net Assets Fund Balance$1,168,707$1,221,104▲ $52,397
Total Liabilities and Net Assets / Fund Balance$1,185,451$1,228,709▲ $43,258
Compensation and Service Providers
Top Officer Pay83rd percentile

Employees

NameTitleFull / Part TimeBaseTotal
Kim BischoffExecutive DiFT$104,158$104,158

Board Members and Trustees

NameTitle
John ManthPresident
Adam RosenbergBoard Member
Cheri StewartBoard Member
Dr Frank BuonoBoard Member
Justin JordanBoard Member
Maria PowellBoard Member
Michael SheedyBoard Member
Michelle SlimkoBoard Member
Nicole HicksBoard Member
Paul MootsBoard Member
Rosemary AndersonBoard Member
Shane SmithBoard Member
Sharon KleinBoard Member
Terri RauschBoard Member
Sharon LoftspringSecretary
Gregg EricksonTreasurer
Ryan GeierVice Preside
Revenue and Support

Revenue Composition

Contributions and Grants
$352,345
Program Service Revenue
$0
Investment Income
$28,381
Other Revenue
$71,688
All Other Contributions
$230,587
Change in Net Assets
$-39,054

Audited Revenue Reconciliation

Revenue per Audited Statements
$581,282
Revenue Not Reported on Financial Statements
$-128,868
Revenue Not Reported on Form 990
$91,451
Other Revenue Adjustments
$-128,868
Total Revenue per Audited Statements
$672,733
Total Revenue per Form 990
$452,414
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$261,717
Other Expenses$229,751
Total Fundraising Expense$61,582
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$116,436$13,742$7,247$137,425
Current Officers, Directors, Trustees, and Key Employees$93,742$10,416-$104,158
Fees for Services Lobbying--$52,537$52,537
Payroll Taxes$17,517$2,013$604$20,134
Fees for Services Accounting$9,310$1,070$321$10,701
Occupancy$10,402--$10,402
Other Expenses$9,596$2,058$617$9,596
Fees for Services Other$4,698$540$162$5,400
Office Expenses$4,385--$4,385
All Other Expenses$2,095$1,706-$3,801
Insurance$2,795$321$94$3,210
Total Functional Expenses$398,020$31,866$61,582$491,468

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$620,336
Expenses per Audited Statements$491,468
Total Expenses per Form 990$491,468
Expenses Not Reported on Form 990$128,868
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$200,556
Fundraising Direct Expenses$128,868
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Nf Hope Concert$279,115$171,115$76,699$94,416
Links for Laure$39,441$29,441$52,169$-22,728
Total Events$318,556$200,556$128,868$71,688
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Lease Liability$716
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 11B

“The 990 will be reviewed by several executive committee members and the treasurer before it is filed with the internal revenue service.”

Form 990, Page 6, Part VI, Line 12C

“The organization practices for monitoring proposed or ongoing transactions for conflicts of interest includes the following: description of persons covered under the policy: board members, officer's, directors, employees, trustees, volunteers. The level at which determinations of whether a conflict exists are made at the board level and are reviewed at the board level. A restriction is imposed on persons participating in a conflict by not allowing that person to participate in the governing body's deliberations and decision in the transaction.”

Form 990, Page 6, Part VI, Line 15A

“The executive director's salary is annually reviewed by the governing board members.”

Form 990, Page 6, Part VI, Line 15B

“Employee's salaries are reviewed by the executive director.”

Form 990, Page 6, Part VI, Line 19

“The organization makes it's governing documents, articles of incorporation, constitution, by laws, available to the public upon request.”

Filing and Contact Details

Filer

Filer Name
Neurofibromatosis Network
EIN
04-3030760
Phone
6305101115
Address
P O BOX 1530, WHEATON, IL 60187

Signing Officer

Name
Gregg Erickson
Title
Treasurer
Phone
6306271115
Signed
2025-07-03

Organization Details

Principal Officer
Gregg Erickson
Formed
1990
Legal Domicile
Ma
Voting Board Members
17
Independent Board Members
17
Employees
5
Volunteers
150

Preparer

Firm
KOLNICKI PETERSON & WIRTH CPA'S
Address
1400 OPUS PLACE SUITE 100, DOWNERS GROVE, IL 60515
Preparer
Kenneth W Peterson CPA
Phone
6303901140
Supplemental Narrative

Additional Explanations

Form 990, Part XI, Line 9

“Special event expenses 128,868 special event expenses -128,868”

Financial Statement Notes

Schedule D, Page 4, Part XI, Line 4B

“Special event expenses -128,868”

Schedule D, Page 4, Part XII, Line 2D

“Special event expenses 128,868”

Raw XML AppendixShowing 400 of 505 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990ScheduleC/SupplementalInformationDetail/ExplanationTxt0LOBBYING FEES WERE PAID TO VAN SCOYOC ASSOCIATES, 800 MAINE AVENUE SW, SUITE 800, WASHINGTON DC 20024 TO PERSUADE MEMBERS OF THE GOVERNMENT TO ENACT LEGISLATION THAT WOULD FUND RESEARCH FOR INDIVIDUALS WITH NEUROFIBROMATOSIS.
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