Civic Intelligence

Neurofibromatosis Network

990 • Fiscal year 2023 • EIN 04-3030760

Oct 01, 2022 to Sep 30, 2023 • Filed on Jul 17, 2024

Organization ProfileWWW.NFNETWORK.ORG
P O Box 1530Wheaton, IL 60187

(630) 510-1115

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

34th percentile

0.01x

Higher debt load relative to assets than 34% of similar nonprofits.

2023 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2023

Liabilities / Revenue

39th percentile

0.04x

Higher debt load relative to revenue than 39% of similar nonprofits.

2023 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2023

Net Margin

16th percentile

-19%

Higher net margin than 16% of similar nonprofits.

2023 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2023

Top Officer Pay

69th percentile

$104,158

Higher top officer pay than 69% of similar nonprofits.

Top officer pay equals 25.4% of source-year revenue.

2023 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2023

Asset Growth

29th percentile

-2.0%

Faster asset growth than 29% of similar nonprofits.

2023 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2022 to 2023

Revenue Growth

14th percentile

-25%

Faster revenue growth than 14% of similar nonprofits.

2023 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2022 to 2023

Balance Sheet
Liabilities / Assets34th percentile

Assets

Down

$1,185,451

Down $24,485 (-2.0%) from 2022

Net Assets

Down

$1,168,707

Down $36,255 (-3.0%) from 2022

Liabilities

Up

$16,744

Up $11,770 (+237%) from 2022

Revenue And Expenses
Liabilities / Revenue39th percentileNet Margin16th percentile

Revenue

Down

$410,383

Down $138,257 (-25%) from 2022

Expenses

Up

$488,110

Up $110,471 (+29%) from 2022

Net Income

Down

-$77,727

Down $248,728 (-145%) from 2022

Historical Trend

Balance Sheet Trend

Asset Growth29th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.5M$1.0M$500K$0Assets 2011: $421,681Liabilities 2011: $2,447Net Assets 2011: $419,2342011Assets 2012: $435,958Liabilities 2012: $6,139Net Assets 2012: $429,8192012Assets 2013: $381,998Liabilities 2013: $4,929Net Assets 2013: $377,0692013Assets 2014: $413,464Liabilities 2014: $28,191Net Assets 2014: $385,2732014Assets 2015: $350,027Liabilities 2015: $3,290Net Assets 2015: $346,7372015Assets 2016: $387,744Liabilities 2016: $69,722Net Assets 2016: $318,0222016Assets 2017: $293,288Liabilities 2017: $13,291Net Assets 2017: $279,9972017Assets 2018: $417,083Liabilities 2018: $47,079Net Assets 2018: $370,0042018Assets 2019: $703,734Liabilities 2019: $3,094Net Assets 2019: $700,6402019Assets 2020: $771,011Liabilities 2020: $2,483Net Assets 2020: $768,5282020Assets 2021: $1,225,098Liabilities 2021: $32,605Net Assets 2021: $1,192,4932021Assets 2022: $1,209,936Liabilities 2022: $4,974Net Assets 2022: $1,204,9622022Assets 2023: $1,185,451Liabilities 2023: $16,744Net Assets 2023: $1,168,7072023Assets 2024: $1,228,709Liabilities 2024: $7,605Net Assets 2024: $1,221,1042024

Highlighted filing

2023

Assets$1,185,451
Liabilities$16,744
Net Assets$1,168,707
Open 2023 Filing

Operations Trend

Revenue Growth14th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$800K$600K$400K$200K$0-$200KRevenue 2011: $203,868Expenses 2011: $206,377Net Income 2011: -$2,5092011Revenue 2012: $212,084Expenses 2012: $216,669Net Income 2012: -$4,5852012Revenue 2013: $222,215Expenses 2013: $274,965Net Income 2013: -$52,7502013Revenue 2014: $290,602Expenses 2014: $295,252Net Income 2014: -$4,6502014Revenue 2015: $300,363Expenses 2015: $335,681Net Income 2015: -$35,3182015Revenue 2016: $360,728Expenses 2016: $380,949Net Income 2016: -$20,2212016Revenue 2017: $262,807Expenses 2017: $305,532Net Income 2017: -$42,7252017Revenue 2018: $453,800Expenses 2018: $371,076Net Income 2018: $82,7242018Revenue 2019: $673,420Expenses 2019: $329,499Net Income 2019: $343,9212019Revenue 2020: $346,583Expenses 2020: $307,827Net Income 2020: $38,7562020Revenue 2021: $683,316Expenses 2021: $315,772Net Income 2021: $367,5442021Revenue 2022: $548,640Expenses 2022: $377,639Net Income 2022: $171,0012022Revenue 2023: $410,383Expenses 2023: $488,110Net Income 2023: -$77,7272023Revenue 2024: $452,414Expenses 2024: $491,468Net Income 2024: -$39,0542024

Highlighted filing

2023

Revenue$410,383
Expenses$488,110
Net Income-$77,727
Open 2023 Filing
Jump To
Filing Snapshot
Filing Period
Oct 1, 2022 to Sep 30, 2023
Signed
Jul 17, 2024
Return Version
2022v5.0
Gross Receipts
$499,675
Mission and Program Overview

Mission

To provide information about the disorder neurofibromatosis to those affected and help families find medical, social and genetic counseling. To raise and seek funds for research for a cure.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$803,997$714,477▼ $89,520
Investments in Publicly Traded Securities$403,124$458,906▲ $55,782
Prepaid Expenses and Deferred Charges$1,915$2,304▲ $389
Total Assets$1,209,936$1,185,451▼ $24,485
Other Assets Total$900$9,764▲ $8,864
Liabilities
Other Liabilities-$8,974-
Accounts Payable and Accrued Expenses$4,974$7,770▲ $2,796
Total Liabilities$4,974$16,744▲ $11,770
Net Assets / Fund Balance
Net Assets With Donor Restrictions$904,395$865,582▼ $38,813
Net Assets Without Donor Restrictions$300,567$303,125▲ $2,558
Total Net Assets Fund Balance$1,204,962$1,168,707▼ $36,255
Total Liabilities and Net Assets / Fund Balance$1,209,936$1,185,451▼ $24,485
Compensation and Service Providers
Top Officer Pay69th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Kim BischoffExecutive DiFT$104,158$104,158

Board Members and Trustees

NameTitle
John ManthPresident
Adam RosenbergBoard Member
Cheri StewartBoard Member
Dr Frank BuonoBoard Member
Justin JordanBoard Member
Maria PowellBoard Member
Michael SheedyBoard Member
Michelle SlimkoBoard Member
Nicole HicksBoard Member
Paul MootsBoard Member
Rosemary AndersonBoard Member
Shane SmithBoard Member
Sharon KleinBoard Member
Terri RauschBoard Member
Sharon LoftspringSecretary
Gregg EricksonTreasurer
Ryan GeierVice Preside
Revenue and Support

Revenue Composition

Contributions and Grants
$365,293
Program Service Revenue
$0
Investment Income
$14,488
Other Revenue
$30,602
All Other Contributions
$185,161
Change in Net Assets
$-77,727

Audited Revenue Reconciliation

Revenue per Audited Statements
$499,675
Revenue Not Reported on Financial Statements
$-89,292
Revenue Not Reported on Form 990
$41,472
Other Revenue Adjustments
$-89,292
Total Revenue per Audited Statements
$541,147
Total Revenue per Form 990
$410,383
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$251,146
Other Expenses$198,964
Total Fundraising Expense$45,759
Grants and Similar Amounts Paid$38,000
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$204,716$23,530$7,059$235,305
Grants to Domestic Orgs$38,000--$38,000
Fees for Services Lobbying--$37,624$37,624
Payroll Taxes$13,781$1,584$476$15,841
Occupancy$11,707--$11,707
Fees for Services Accounting$8,928--$8,928
Other Expenses$4,911$1,686$506$7,103
All Other Expenses$4,063$981-$5,044
Office Expenses$3,180--$3,180
Insurance$2,728$314$94$3,136
Fees for Services Other$378--$378
Total Functional Expenses$414,256$28,095$45,759$488,110

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$577,402
Expenses per Audited Statements$488,110
Total Expenses per Form 990$488,110
Expenses Not Reported on Form 990$89,292
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
University of WisconsinMadison, WI-For Research$38,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$119,894
Fundraising Direct Expenses$89,292
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Nf Hope Concert$252,612$106,405$89,292$17,113
Links for Laure$41,822$13,489-$13,489
Total Events$294,434$119,894$89,292$30,602
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Lease Liability$8,974
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 11B

“The 990 will be reviewed by several executive committee members and the treasurer before it is filed with the internal revenue service.”

Form 990, Page 6, Part VI, Line 12C

“The organization practices for monitoring proposed or ongoing transactions for conflicts of interest includes the following: description of persons covered under the policy: board members, officer's, directors, employees, trustees, volunteers. The level at which determinations of whether a conflict exists are made at the board level and are reviewed at the board level. A restriction is imposed on persons participating in a conflict by not allowing that person to participate in the governing body's deliberations and decision in the transaction.”

Form 990, Page 6, Part VI, Line 15A

“The executive director's salary is annually reviewed by the governing board members.”

Form 990, Page 6, Part VI, Line 15B

“Employee's salaries are reviewed by the executive director.”

Form 990, Page 6, Part VI, Line 19

“The organization makes it's governing documents, articles of incorporation, constitution, by laws, available to the public upon request.”

Filing and Contact Details

Filer

Filer Name
Neurofibromatosis Network
EIN
04-3030760
Phone
6305101115
Address
P O BOX 1530, WHEATON, IL 60187

Signing Officer

Name
Gregg Erickson
Title
Treasurer
Phone
6306271115
Signed
2024-07-17

Organization Details

Principal Officer
Gregg Erickson
Formed
1990
Legal Domicile
Ma
Voting Board Members
17
Independent Board Members
0
Employees
5
Volunteers
120

Preparer

Firm
KOLNICKI PETERSON & WIRTH CPA'S
Address
1400 OPUS PLACE SUITE 100, DOWNERS GROVE, IL 60515
Preparer
Kenneth W Peterson CPA
Phone
6303901140
Supplemental Narrative

Additional Explanations

Form 990, Part XI, Line 9

“Special event expenses 89,292 special event expenses -89,292”

Financial Statement Notes

Schedule D, Page 4, Part XI, Line 4B

“Special event expenses -89,292”

Schedule D, Page 4, Part XII, Line 2D

“Special event expenses 89,292”

Raw XML AppendixShowing 400 of 516 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/FundraisingActivitiesInd0true
IRS990/FundraisingAmt0174540
IRS990/FundraisingDirectExpensesAmt089292
IRS990/FundraisingGrossIncomeAmt0119894
IRS990/GamingActivitiesInd0false
IRS990/GoverningBodyVotingMembersCnt017
IRS990/GrantAmt038000
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt038000
IRS990/GrantsToDomesticOrgsGrp/TotalAmt038000
IRS990/GrantsToIndividualsInd0false
IRS990/GrantsToOrganizationsInd0true
IRS990/GrantToRelatedPersonInd0false
IRS990/GrossReceiptsAmt0499675
IRS990/GroupReturnForAffiliatesInd0false
IRS990/IncludeFIN48FootnoteInd0false
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IRS990/IndivRcvdGreaterThan100KCnt01
IRS990/IndoorTanningServicesInd0false
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIInd0X
IRS990/InsuranceGrp/FundraisingAmt094
IRS990/InsuranceGrp/ManagementAndGeneralAmt0314
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IRS990/InsuranceGrp/TotalAmt03136
IRS990/InvestmentIncomeGrp/ExclusionAmt014488
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt014488
IRS990/InvestmentInJointVentureInd0false
IRS990/InvestmentsPubTradedSecGrp/BOYAmt0403124
IRS990/InvestmentsPubTradedSecGrp/EOYAmt0458906
IRS990/IRPDocumentCnt02
IRS990/IRPDocumentW2GCnt00
IRS990/LegalDomicileStateCd0MA
IRS990/LoanOutstandingInd0false
IRS990/LobbyingActivitiesInd0true
IRS990/LocalChaptersInd0false
IRS990/MaterialDiversionOrMisuseInd0false
IRS990/MembersOrStockholdersInd0false
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd0true
IRS990/MinutesOfGoverningBodyInd0true
IRS990/MissionDesc0TO PROVIDE INFORMATION ABOUT THE DISORDER NEUROFIBROMATOSIS TO THOSE AFFECTED AND HELP FAMILIES FIND MEDICAL, SOCIAL AND GENETIC COUNSELING. TO RAISE AND SEEK FUNDS FOR RESEARCH FOR A CURE.
IRS990/MoreThan5000KToIndividualsInd0false
IRS990/MoreThan5000KToOrgInd0false
IRS990/NetAssetsOrFundBalancesBOYAmt01204962
IRS990/NetAssetsOrFundBalancesEOYAmt01168707
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IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt030602
IRS990/NetUnrlzdGainsLossesInvstAmt041472
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt0300567
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt0303125
IRS990/NoListedPersonsCompensatedInd0X
IRS990/NondeductibleContributionsInd0false
IRS990/OccupancyGrp/ProgramServicesAmt011707
IRS990/OccupancyGrp/TotalAmt011707
IRS990/OfficeExpensesGrp/ProgramServicesAmt03180
IRS990/OfficeExpensesGrp/TotalAmt03180
IRS990/OfficerMailingAddressInd0false
IRS990/OperateHospitalInd0false
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt0900
IRS990/OtherAssetsTotalGrp/EOYAmt09764
IRS990/OtherExpensesGrp/Desc0COMMUNITY SERVICE EXPENSE
IRS990/OtherExpensesGrp/Desc1WEBSITE
IRS990/OtherExpensesGrp/Desc2SUPPLIES
IRS990/OtherExpensesGrp/Desc3PAYROLL SERVICE
IRS990/OtherExpensesGrp/FundraisingAmt0506
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt01686
IRS990/OtherExpensesGrp/ProgramServicesAmt092044
IRS990/OtherExpensesGrp/ProgramServicesAmt122392
IRS990/OtherExpensesGrp/ProgramServicesAmt27428
IRS990/OtherExpensesGrp/ProgramServicesAmt34911
IRS990/OtherExpensesGrp/TotalAmt092044
IRS990/OtherExpensesGrp/TotalAmt122392
IRS990/OtherExpensesGrp/TotalAmt27428
IRS990/OtherExpensesGrp/TotalAmt37103
IRS990/OtherLiabilitiesGrp/EOYAmt08974
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt07059
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt023530
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0204716
IRS990/OtherSalariesAndWagesGrp/TotalAmt0235305
IRS990/OtherWebsiteInd0X
IRS990/PartialLiquidationInd0false
IRS990/PayrollTaxesGrp/FundraisingAmt0476
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt01584
IRS990/PayrollTaxesGrp/ProgramServicesAmt013781
IRS990/PayrollTaxesGrp/TotalAmt015841
IRS990/PoliticalCampaignActyInd0false
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt01915
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt02304
IRS990/PrincipalOfficerNm0GREGG ERICKSON
IRS990/ProfessionalFundraisingInd0false
IRS990/ProhibitedTaxShelterTransInd0false
IRS990/PYContributionsGrantsAmt0226830
IRS990/PYExcessBenefitTransInd0false
IRS990/PYGrantsAndSimilarPaidAmt046110
IRS990/PYInvestmentIncomeAmt041711
IRS990/PYOtherExpensesAmt0111836
IRS990/PYOtherRevenueAmt0280099
IRS990/PYRevenuesLessExpensesAmt0171001
IRS990/PYSalariesCompEmpBnftPaidAmt0219693
IRS990/PYTotalExpensesAmt0377639
IRS990/PYTotalRevenueAmt0548640
IRS990/ReconcilationRevenueExpnssAmt0-77727
IRS990/RegularMonitoringEnfrcInd0true
IRS990/RelatedEntityInd0false
IRS990/RelatedOrganizationCtrlEntInd0false
IRS990/ReportInvestmentsOtherSecInd0false
IRS990/ReportLandBuildingEquipmentInd0false
IRS990/ReportOtherAssetsInd0false
IRS990/ReportOtherLiabilitiesInd0true
IRS990/ReportProgramRelatedInvstInd0false
IRS990/RevenueAmt0190753
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt0365293
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt0226830
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0558092
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0360103
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0570992
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt02081310
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt014488
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt014488
IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt0100956
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.80530
IRS990ScheduleA/PublicSupportPY170Pct00.80940
IRS990ScheduleA/PublicSupportTotal170Amt02081310
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt0365293
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt0226830
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0558092
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0360103
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0570992
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt02081310
IRS990ScheduleA/TotalSupportAmt02584616
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearAmt029602
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus1YearAmt0279099
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus2YearsAmt096669
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus4YearsAmt083448
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/TotalAmt0488818
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd0true
IRS990ScheduleC/AvgGrassrootsNontaxableGrp/CurrentYearAmt01881
IRS990ScheduleC/AvgGrassrootsNontaxableGrp/CurrentYearMinus1Amt01250
IRS990ScheduleC/AvgGrassrootsNontaxableGrp/CurrentYearMinus2Amt01428
IRS990ScheduleC/AvgGrassrootsNontaxableGrp/CurrentYearMinus3Amt01250
IRS990ScheduleC/AvgGrassrootsNontaxableGrp/TotalAmt05809
IRS990ScheduleC/AvgLobbyingNontaxableAmountGrp/CurrentYearAmt07525
IRS990ScheduleC/AvgLobbyingNontaxableAmountGrp/CurrentYearMinus1Amt05000
IRS990ScheduleC/AvgLobbyingNontaxableAmountGrp/CurrentYearMinus2Amt05711
IRS990ScheduleC/AvgLobbyingNontaxableAmountGrp/CurrentYearMinus3Amt05000
IRS990ScheduleC/AvgLobbyingNontaxableAmountGrp/TotalAmt023236
IRS990ScheduleC/AvgTotalLobbyingExpendGrp/CurrentYearAmt037624
IRS990ScheduleC/AvgTotalLobbyingExpendGrp/CurrentYearMinus1Amt025000
IRS990ScheduleC/AvgTotalLobbyingExpendGrp/CurrentYearMinus2Amt028554
IRS990ScheduleC/AvgTotalLobbyingExpendGrp/CurrentYearMinus3Amt025000
IRS990ScheduleC/AvgTotalLobbyingExpendGrp/TotalAmt0116178
IRS990ScheduleC/Form4720FiledInd0false
IRS990ScheduleC/GrassrootsCeilingAmt08714
IRS990ScheduleC/GrassrootsNontaxableGrp/FilingOrganizationsTotalAmt01881
IRS990ScheduleC/LobbyingCeilingAmt034854
IRS990ScheduleC/LobbyingNontaxableAmountGrp/FilingOrganizationsTotalAmt07525
IRS990ScheduleC/SupplementalInformationDetail/ExplanationTxt0LOBBYING FEES WERE PAID TO VAN SCOYOC ASSOCIATES, 800 MAINE AVENUE SW, SUITE 800, WASHINGTON DC 20024 TO PERSUADE MEMBERS OF THE GOVERNMENT TO ENACT LEGISLATION THAT WOULD FUND RESEARCH FOR INDIVIDUALS WITH NEUROFIBROMATOSIS.
IRS990ScheduleC/SupplementalInformationDetail/FormAndLineReferenceDesc0SCHEDULE C, PART II-B, LINE 1
IRS990ScheduleC/TotalDirectLobbyingGrp/FilingOrganizationsTotalAmt037624
IRS990ScheduleC/TotalExemptPurposeExpendGrp/FilingOrganizationsTotalAmt037624
IRS990ScheduleC/TotalLobbyingExpendGrp/FilingOrganizationsTotalAmt037624
IRS990ScheduleC/TotLbbyExpendMnsLbbyngNonTxGrp/FilingOrganizationsTotalAmt030099
IRS990ScheduleD/ExpensesNotReportedAmt089292
IRS990ScheduleD/ExpensesSubtotalAmt0488110
IRS990ScheduleD/NetUnrealizedGainsInvstAmt041472
IRS990ScheduleD/OtherExpensesIncludedAmt089292
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt08974
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc0LEASE LIABILITY
IRS990ScheduleD/OtherRevenuesNotIncludedAmt0-89292
IRS990ScheduleD/RevenueNotReportedAmt041472
IRS990ScheduleD/RevenueNotReportedFinclStmtAmt0-89292
IRS990ScheduleD/RevenueSubtotalAmt0499675
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0SPECIAL EVENT EXPENSES -89,292
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt1SPECIAL EVENT EXPENSES 89,292
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0SCHEDULE D, PAGE 4, PART XI, LINE 4B
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc1SCHEDULE D, PAGE 4, PART XII, LINE 2D
IRS990ScheduleD/TotalExpensesPerForm990Amt0488110
IRS990ScheduleD/TotalLiabilityAmt08974

Document Assets

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Filings

Displayed year

2023 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$1,185,451
Liabilities
$16,744
Net assets
$1,168,707
Revenue
$410,383
Expenses
$488,110
Net income
-$77,727
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.23$0.01$1.22$0.45$0.49$0.04
2023Detailed filing. Detailed filing data is available for this year.$1.19$0.02$1.17$0.41$0.49$0.08
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.21$0.00$1.20$0.55$0.38$0.17
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.23$0.03$1.19$0.68$0.32$0.37
2020Import issue. A filing source exists for this year, but detailed import did not complete cleanly.$0.77$0.00$0.77$0.35$0.31$0.04
2019Detailed filing. Detailed filing data is available for this year.$0.70$0.00$0.70$0.67$0.33$0.34
2018Detailed filing. Detailed filing data is available for this year.$0.42$0.05$0.37$0.45$0.37$0.08
2017Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.29$0.01$0.28$0.26$0.31$0.04
2016Detailed filing. Detailed filing data is available for this year.$0.39$0.07$0.32$0.36$0.38$0.02
2015Summary only. Only limited summary data is available for this year.$0.35$0.00$0.35$0.30$0.34$0.04
2014Summary only. Only limited summary data is available for this year.$0.41$0.03$0.39$0.29$0.30$0.00
2013Summary only. Only limited summary data is available for this year.$0.38$0.00$0.38$0.22$0.27$0.05
2012Summary only. Only limited summary data is available for this year.$0.44$0.01$0.43$0.21$0.22$0.00
2011Summary only. Only limited summary data is available for this year.$0.42$0.00$0.42$0.20$0.21$0.00