Civic Intelligence

Neurofibromatosis Network

990 • Fiscal year 2020 • EIN 04-3030760

Oct 01, 2019 to Sep 30, 2020 • Filed on Aug 04, 2020

213 South Wheaton AvenueWheaton, IL 60187

(630) 510-1115

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

33rd percentile

0.00x

Higher debt load relative to assets than 33% of similar nonprofits.

2020 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2020

Liabilities / Revenue

34th percentile

0.01x

Higher debt load relative to revenue than 34% of similar nonprofits.

2020 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2020

Net Margin

59th percentile

11%

Higher net margin than 59% of similar nonprofits.

2020 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2020

Top Officer Pay

51st percentile

$0

Higher top officer pay than 51% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2020 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2020

Asset Growth

56th percentile

9.6%

Faster asset growth than 56% of similar nonprofits.

2020 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2019 to 2020

Revenue Growth

10th percentile

-49%

Faster revenue growth than 10% of similar nonprofits.

2020 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2019 to 2020

Assets

Up

$771,011

Up $67,277 (+9.6%) from 2019

Net Assets

Up

$768,528

Up $67,888 (+9.7%) from 2019

Liabilities

Down

$2,483

Down $611 (-20%) from 2019

Revenue

Down

$346,583

Down $326,837 (-49%) from 2019

Expenses

Down

$307,827

Down $21,672 (-6.6%) from 2019

Net Income

Down

$38,756

Down $305,165 (-89%) from 2019

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.5M$1.0M$500K$0Assets 2011: $421,681Liabilities 2011: $2,447Net Assets 2011: $419,2342011Assets 2012: $435,958Liabilities 2012: $6,139Net Assets 2012: $429,8192012Assets 2013: $381,998Liabilities 2013: $4,929Net Assets 2013: $377,0692013Assets 2014: $413,464Liabilities 2014: $28,191Net Assets 2014: $385,2732014Assets 2015: $350,027Liabilities 2015: $3,290Net Assets 2015: $346,7372015Assets 2016: $387,744Liabilities 2016: $69,722Net Assets 2016: $318,0222016Assets 2017: $293,288Liabilities 2017: $13,291Net Assets 2017: $279,9972017Assets 2018: $417,083Liabilities 2018: $47,079Net Assets 2018: $370,0042018Assets 2019: $703,734Liabilities 2019: $3,094Net Assets 2019: $700,6402019Assets 2020: $771,011Liabilities 2020: $2,483Net Assets 2020: $768,5282020Assets 2021: $1,225,098Liabilities 2021: $32,605Net Assets 2021: $1,192,4932021Assets 2022: $1,209,936Liabilities 2022: $4,974Net Assets 2022: $1,204,9622022Assets 2023: $1,185,451Liabilities 2023: $16,744Net Assets 2023: $1,168,7072023Assets 2024: $1,228,709Liabilities 2024: $7,605Net Assets 2024: $1,221,1042024

Highlighted filing

2020

Assets$771,011
Liabilities$2,483
Net Assets$768,528

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$800K$600K$400K$200K$0-$200KRevenue 2011: $203,868Expenses 2011: $206,377Net Income 2011: -$2,5092011Revenue 2012: $212,084Expenses 2012: $216,669Net Income 2012: -$4,5852012Revenue 2013: $222,215Expenses 2013: $274,965Net Income 2013: -$52,7502013Revenue 2014: $290,602Expenses 2014: $295,252Net Income 2014: -$4,6502014Revenue 2015: $300,363Expenses 2015: $335,681Net Income 2015: -$35,3182015Revenue 2016: $360,728Expenses 2016: $380,949Net Income 2016: -$20,2212016Revenue 2017: $262,807Expenses 2017: $305,532Net Income 2017: -$42,7252017Revenue 2018: $453,800Expenses 2018: $371,076Net Income 2018: $82,7242018Revenue 2019: $673,420Expenses 2019: $329,499Net Income 2019: $343,9212019Revenue 2020: $346,583Expenses 2020: $307,827Net Income 2020: $38,7562020Revenue 2021: $683,316Expenses 2021: $315,772Net Income 2021: $367,5442021Revenue 2022: $548,640Expenses 2022: $377,639Net Income 2022: $171,0012022Revenue 2023: $410,383Expenses 2023: $488,110Net Income 2023: -$77,7272023Revenue 2024: $452,414Expenses 2024: $491,468Net Income 2024: -$39,0542024

Highlighted filing

2020

Revenue$346,583
Expenses$307,827
Net Income$38,756
Jump To
Filing Snapshot
Filing Period
Oct 1, 2019 to Sep 30, 2020
Signed
Aug 4, 2020
Return Version
2019v5.0
Gross Receipts
$463,916
Mission and Program Overview

Mission

To provide information about the disorder neurofibromatosis to those affected and help families find medical, social and genetic counseling. To raise and seek funds for research for a cure.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$193,497$436,243▲ $242,746
Cash and Non-Interest-Bearing Accounts$508,632$333,068▼ $175,564
Prepaid Expenses and Deferred Charges$1,605$1,700▲ $95
Total Assets$703,734$771,011▲ $67,277
Liabilities
Accounts Payable and Accrued Expenses$3,094$2,483▼ $611
Total Liabilities$3,094$2,483▼ $611
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$415,654$470,986▲ $55,332
Net Assets With Donor Restrictions$284,986$297,542▲ $12,556
Total Net Assets Fund Balance$700,640$768,528▲ $67,888
Total Liabilities and Net Assets / Fund Balance$703,734$771,011▲ $67,277
Compensation and Service Providers

Board Members and Trustees

NameTitle
Ryan GeierPresident
Cheri StewartBoard Member
Debi BellBoard Member
Diana FlahiveBoard Member
Michael MontgomeryBoard Member
Michelle SlimkoBoard Member
Mike SheedyBoard Member
Nicole HicksBoard Member
Rosemary AndersonBoard Member
Shane SmithBoard Member
Shelley VolkertBoard Member
Sharon LoftspringSecretary
Gregg EricksonTreasurer
John ManthVP
Revenue and Support

Revenue Composition

Contributions and Grants
$360,103
Program Service Revenue
$0
Investment Income
$13,710
Other Revenue
$-27,230
All Other Contributions
$236,324
Change in Net Assets
$38,756

Audited Revenue Reconciliation

Revenue per Audited Statements
$463,916
Revenue Not Reported on Financial Statements
$-117,333
Revenue Not Reported on Form 990
$29,132
Other Revenue Adjustments
$-117,333
Total Revenue per Audited Statements
$493,048
Total Revenue per Form 990
$346,583
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$188,306
Other Expenses$119,521
Total Fundraising Expense$15,991
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$150,437$19,242$5,247$174,926
Fees for Services Lobbying$28,554--$28,554
Payroll Taxes$11,507$1,472$401$13,380
Fees for Services Accounting$7,652$979$267$8,898
Occupancy$8,280--$8,280
All Other Expenses$3,416$2,168-$5,584
Office Expenses$3,592--$3,592
Other Expenses$3,162-$10,000$3,162
Insurance$2,188$252$76$2,516
Total Functional Expenses$267,723$24,113$15,991$307,827

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$425,160
Total Expenses per Audited Statements$425,160
Total Expenses per Form 990$307,827
Expenses Not Reported on Financial Statements$-117,333
Other Expense Adjustments$-117,333
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$117,333
Fundraising Gross Income$89,645
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Nf Hope Concert$153,853$78,546$76,571$1,975
Links for Laure$11,099$11,099$40,762$-29,663
Total Events$164,952$89,645$117,333$-27,688
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 11B

The 990 will be reviewed by several executive committee members and the treasurer before it is filed with the internal revenue service.

Form 990, Page 6, Part VI, Line 12C

The organization practices for monitoring proposed or ongoing transactions for conflicts of interest includes the following: description of persons covered under the policy: board members, officer's, directors, employees, trustees, volunteers. The level at which determinations of whether a conflict exists are made at the board level and are reviewed at the board level. A restriction is imposed on persons participating in a conflict by not allowing that person to participate in the governing body's deliberations and decision in the transaction.

Form 990, Page 6, Part VI, Line 15A

The executive director's salary is annually reviewed by the governing board members.

Form 990, Page 6, Part VI, Line 15B

Employee's salaries are reviewed by the executive director.

Form 990, Page 6, Part VI, Line 19

The organization makes it's governing documents, articles of incorporation, constitution, by laws, available to the public upon request.

Filing and Contact Details

Filer

Filer Name
Neurofibromatosis Network
EIN
04-3030760
Phone
6305101115
Address
213 SOUTH WHEATON AVENUE, WHEATON, IL 60187

Signing Officer

Name
Gregg Erickson
Title
Treasurer
Phone
6306271115
Signed
2020-08-04

Organization Details

Principal Officer
Gregg Erickson
Formed
1990
Legal Domicile
Ma
Voting Board Members
14
Independent Board Members
14
Employees
4
Volunteers
300

Preparer

Firm
KOLNICKI PETERSON & WIRTH CPA'S
Address
1400 OPUS PLACE SUITE 100, DOWNERS GROVE, IL 60515
Preparer
Kenneth W Peterson CPA
Phone
6303901140
Supplemental Narrative

Additional Explanations

Form 990, Part XI, Line 9

Special event expenses netted against income 117,333 special event expenses netted against income -117,333

Financial Statement Notes

Schedule D, Page 3, Part X

Neurofirbroatosis network is a tax-exempt organization as described in the section 501(3) of the internal revenue code (the code) and is exempt from federal income taxes on related income pursuant to section 501(a) of the code. In addition, the internal revenue service has determined that neurofirbroatosis network is not a private foundation within the meaning of section 509(a) of the code.

Schedule D, Page 4, Part XI, Line 4B

Special event expenses netted against income -117,333

Schedule D, Page 4, Part XII, Line 4B

Special event expenses netted against income -117,333

Raw XML AppendixShowing 400 of 459 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd0false
IRS990/AccountsPayableAccrExpnssGrp/BOYAmt03094
IRS990/AccountsPayableAccrExpnssGrp/EOYAmt02483
IRS990/ActivitiesConductedPrtshpInd0false
IRS990/ActivityOrMissionDesc0TO PROVIDE INFORMATION ABOUT THE DISORDER NEUROFIBROMATOSIS TO THOSE AFFECTED AND HELP FAMILIES FIND MEDICAL, SOCIAL AND GENETIC COUNSELING. TO RAISE AND SEEK FUNDS FOR RESEARCH FOR A CURE.
IRS990/AllOtherContributionsAmt0236324
IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt02168
IRS990/AllOtherExpensesGrp/ProgramServicesAmt03416
IRS990/AllOtherExpensesGrp/TotalAmt05584
IRS990/AnnualDisclosureCoveredPrsnInd0true
IRS990/AuditCommitteeInd0true
IRS990/BooksInCareOfDetail/PersonNm0KIM BISCHOFF
IRS990/BooksInCareOfDetail/PhoneNum06305101115
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt0213 SOUTH WHEATON AVE
IRS990/BooksInCareOfDetail/USAddress/CityNm0WHEATON
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0IL
IRS990/BooksInCareOfDetail/USAddress/ZIPCd060187
IRS990/BusinessRlnWith35CtrlEntInd0false
IRS990/BusinessRlnWithFamMemInd0false
IRS990/BusinessRlnWithOrgMemInd0false
IRS990/CashNonInterestBearingGrp/BOYAmt0508632
IRS990/CashNonInterestBearingGrp/EOYAmt0333068
IRS990/ChangeToOrgDocumentsInd0false
IRS990/CollectionsOfArtInd0false
IRS990/CompensationFromOtherSrcsInd0false
IRS990/CompensationProcessCEOInd0true
IRS990/CompensationProcessOtherInd0true
IRS990/ConflictOfInterestPolicyInd0true
IRS990/ConservationEasementsInd0false
IRS990/ConsolidatedAuditFinclStmtInd0false
IRS990/ContriRptFundraisingEventAmt075307
IRS990/CreditCounselingInd0false
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt0360103
IRS990/CYGrantsAndSimilarPaidAmt00
IRS990/CYInvestmentIncomeAmt013710
IRS990/CYOtherExpensesAmt0119521
IRS990/CYOtherRevenueAmt0-27230
IRS990/CYProgramServiceRevenueAmt00
IRS990/CYRevenuesLessExpensesAmt038756
IRS990/CYSalariesCompEmpBnftPaidAmt0188306
IRS990/CYTotalExpensesAmt0307827
IRS990/CYTotalFundraisingExpenseAmt015991
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt0346583
IRS990/DecisionsSubjectToApprovaInd0false
IRS990/DeductibleArtContributionInd0false
IRS990/DeductibleNonCashContriInd0false
IRS990/DelegationOfMgmtDutiesInd0false
IRS990/Desc0TO PROVIDE THOSE WITH NEUROFIBROMATOSIS WITH INFORMATION ABOUT THE DISORDER AND HELP FAMILIES FIND MEDICAL, SOCIAL, AND GENETIC COUNSELING. TO RAISE AND SEEK FUNDS FOR RESEARCH FOR A CURE.
IRS990/DescribedInSection501c3Ind0true
IRS990/DisregardedEntityInd0false
IRS990/DocumentRetentionPolicyInd0true
IRS990/DonorAdvisedFundInd0false
IRS990/DonorRestrictionNetAssetsGrp/BOYAmt0284986
IRS990/DonorRestrictionNetAssetsGrp/EOYAmt0297542
IRS990/DonorRstrOrQuasiEndowmentsInd0false
IRS990/ElectionOfBoardMembersInd0false
IRS990/EmployeeCnt04
IRS990/EmploymentTaxReturnsFiledInd0true
IRS990/EngagedInExcessBenefitTransInd0false
IRS990/ExpenseAmt0267723
IRS990/FamilyOrBusinessRlnInd0false
IRS990/FederalGrantAuditRequiredInd0false
IRS990/FederatedCampaignsAmt06108
IRS990/FeesForServicesAccountingGrp/FundraisingAmt0267
IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt0979
IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt07652
IRS990/FeesForServicesAccountingGrp/TotalAmt08898
IRS990/FeesForServicesLobbyingGrp/ProgramServicesAmt028554
IRS990/FeesForServicesLobbyingGrp/TotalAmt028554
IRS990/ForeignActivitiesInd0false
IRS990/ForeignFinancialAccountInd0false
IRS990/ForeignOfficeInd0false
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt05.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt15.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt215.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt35.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt415.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt55.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt615.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt715.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt85.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt95.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt105.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt115.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt125.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt135.00
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd8X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd9X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd10X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd11X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd12X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd13X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt130
IRS990/Form990PartVIISectionAGrp/PersonNm0ROSEMARY ANDERSON
IRS990/Form990PartVIISectionAGrp/PersonNm1DEBI BELL
IRS990/Form990PartVIISectionAGrp/PersonNm2GREGG ERICKSON
IRS990/Form990PartVIISectionAGrp/PersonNm3DIANA FLAHIVE
IRS990/Form990PartVIISectionAGrp/PersonNm4RYAN GEIER
IRS990/Form990PartVIISectionAGrp/PersonNm5NICOLE HICKS
IRS990/Form990PartVIISectionAGrp/PersonNm6SHARON LOFTSPRING
IRS990/Form990PartVIISectionAGrp/PersonNm7JOHN MANTH
IRS990/Form990PartVIISectionAGrp/PersonNm8MICHAEL MONTGOMERY
IRS990/Form990PartVIISectionAGrp/PersonNm9MIKE SHEEDY
IRS990/Form990PartVIISectionAGrp/PersonNm10MICHELLE SLIMKO
IRS990/Form990PartVIISectionAGrp/PersonNm11SHANE SMITH
IRS990/Form990PartVIISectionAGrp/PersonNm12CHERI STEWART
IRS990/Form990PartVIISectionAGrp/PersonNm13SHELLEY VOLKERT
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/TitleTxt0BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt1BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt2TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt3BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt4PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt5BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt6SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt7VP
IRS990/Form990PartVIISectionAGrp/TitleTxt8BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt9BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt10BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt11BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt12BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt13BOARD MEMBER
IRS990/Form990ProvidedToGvrnBodyInd0false
IRS990/FormationYr01990
IRS990/FormerOfcrEmployeesListedInd0false
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd0true
IRS990/FundraisingActivitiesInd0true
IRS990/FundraisingAmt075307
IRS990/FundraisingDirectExpensesAmt0117333
IRS990/FundraisingGrossIncomeAmt089645
IRS990/GamingActivitiesInd0false
IRS990/GoverningBodyVotingMembersCnt014
IRS990/GovernmentGrantsAmt042364
IRS990/GrantsToIndividualsInd0false
IRS990/GrantsToOrganizationsInd0false
IRS990/GrantToRelatedPersonInd0false
IRS990/GrossReceiptsAmt0463916
IRS990/GroupReturnForAffiliatesInd0false
IRS990/IncludeFIN48FootnoteInd0true
IRS990/IndependentAuditFinclStmtInd0true
IRS990/IndependentVotingMemberCnt014
IRS990/IndoorTanningServicesInd0false
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIInd0X
IRS990/InsuranceGrp/FundraisingAmt076
IRS990/InsuranceGrp/ManagementAndGeneralAmt0252
IRS990/InsuranceGrp/ProgramServicesAmt02188
IRS990/InsuranceGrp/TotalAmt02516
IRS990/InvestmentIncomeGrp/RelatedOrExemptFuncIncomeAmt013710
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt013710
IRS990/InvestmentInJointVentureInd0false
IRS990/InvestmentsPubTradedSecGrp/BOYAmt0193497
IRS990/InvestmentsPubTradedSecGrp/EOYAmt0436243
IRS990/IRPDocumentCnt03
IRS990/IRPDocumentW2GCnt00
IRS990/LegalDomicileStateCd0MA
IRS990/LoanOutstandingInd0false
IRS990/LobbyingActivitiesInd0true
IRS990/LocalChaptersInd0false
IRS990/MaterialDiversionOrMisuseInd0false
IRS990/MembersOrStockholdersInd0false
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd0true
IRS990/MinutesOfGoverningBodyInd0true
IRS990/MissionDesc0TO PROVIDE INFORMATION ABOUT THE DISORDER NEUROFIBROMATOSIS TO THOSE AFFECTED AND HELP FAMILIES FIND MEDICAL, SOCIAL AND GENETIC COUNSELING. TO RAISE AND SEEK FUNDS FOR RESEARCH FOR A CURE.
IRS990/MoreThan5000KToIndividualsInd0false
IRS990/MoreThan5000KToOrgInd0false
IRS990/NetAssetsOrFundBalancesBOYAmt0700640
IRS990/NetAssetsOrFundBalancesEOYAmt0768528
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0-27688
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0-27688
IRS990/NetUnrlzdGainsLossesInvstAmt029132
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt0415654
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt0470986
IRS990/NoListedPersonsCompensatedInd0X
IRS990/NondeductibleContributionsInd0false
IRS990/OccupancyGrp/ProgramServicesAmt08280
IRS990/OccupancyGrp/TotalAmt08280
IRS990/OfficeExpensesGrp/ProgramServicesAmt03592
IRS990/OfficeExpensesGrp/TotalAmt03592
IRS990/OfficerMailingAddressInd0false
IRS990/OperateHospitalInd0false
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherExpensesGrp/Desc0COMMUNITY SERVICE EXPENSE
IRS990/OtherExpensesGrp/Desc1WEBSITE
IRS990/OtherExpensesGrp/Desc2FUNDRAISING
IRS990/OtherExpensesGrp/Desc3TELEPHONE
IRS990/OtherExpensesGrp/FundraisingAmt010000
IRS990/OtherExpensesGrp/ProgramServicesAmt030807
IRS990/OtherExpensesGrp/ProgramServicesAmt118128
IRS990/OtherExpensesGrp/ProgramServicesAmt23162
IRS990/OtherExpensesGrp/TotalAmt030807
IRS990/OtherExpensesGrp/TotalAmt118128
IRS990/OtherExpensesGrp/TotalAmt210000
IRS990/OtherExpensesGrp/TotalAmt33162
IRS990/OtherRevenueMiscGrp/Desc0MISCELLANEOUS INCOME
IRS990/OtherRevenueMiscGrp/ExclusionAmt0458
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt0458
IRS990/OtherRevenueTotalAmt0458
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt05247
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt019242
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0150437
IRS990/OtherSalariesAndWagesGrp/TotalAmt0174926
IRS990/OtherWebsiteInd0X
IRS990/PartialLiquidationInd0false
IRS990/PayrollTaxesGrp/FundraisingAmt0401
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt01472
IRS990/PayrollTaxesGrp/ProgramServicesAmt011507
IRS990/PayrollTaxesGrp/TotalAmt013380
IRS990/PoliticalCampaignActyInd0false
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt01605
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt01700
IRS990/PrincipalOfficerNm0GREGG ERICKSON
IRS990/ProfessionalFundraisingInd0false
IRS990/ProhibitedTaxShelterTransInd0false
IRS990/PYContributionsGrantsAmt0570992
IRS990/PYExcessBenefitTransInd0false
IRS990/PYInvestmentIncomeAmt017980
IRS990/PYOtherExpensesAmt0152921
IRS990/PYOtherRevenueAmt084448
IRS990/PYRevenuesLessExpensesAmt0343921
IRS990/PYSalariesCompEmpBnftPaidAmt0176578
IRS990/PYTotalExpensesAmt0329499
IRS990/PYTotalRevenueAmt0673420
IRS990/ReconcilationRevenueExpnssAmt038756
IRS990/RegularMonitoringEnfrcInd0true
IRS990/RelatedEntityInd0false
IRS990/RelatedOrganizationCtrlEntInd0false
IRS990/ReportInvestmentsOtherSecInd0false
IRS990/ReportLandBuildingEquipmentInd0false
IRS990/ReportOtherAssetsInd0false
IRS990/ReportOtherLiabilitiesInd0false
IRS990/ReportProgramRelatedInvstInd0false
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt0360103
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt0570992
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0400906
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0197562
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0365400
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt01894963
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt016877
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt016877
IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt053615
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.87870
IRS990ScheduleA/PublicSupportPY170Pct00.85280
IRS990ScheduleA/PublicSupportTotal170Amt01894963
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt0360103
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt0570992
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0400906
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0197562
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0365400
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt01894963
IRS990ScheduleA/TotalSupportAmt02156481
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus1YearAmt083448
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus2YearsAmt039377
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus3YearsAmt044722
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus4YearsAmt077094
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/TotalAmt0244641
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd0true
IRS990ScheduleC/DirectContactLegislatorsInd0false
IRS990ScheduleC/GrantsOtherOrganizationsInd0false
IRS990ScheduleC/MailingsMembersInd0false
IRS990ScheduleC/MediaAdvertisementsInd0false
IRS990ScheduleC/NotDescribedSection501c3Ind0false
IRS990ScheduleC/OtherActivitiesInd0false
IRS990ScheduleC/PaidStaffOrManagementInd0false
IRS990ScheduleC/PublicationsOrBroadcastInd0false
IRS990ScheduleC/RalliesDemonstrationsInd0false
IRS990ScheduleC/SupplementalInformationDetail/ExplanationTxt0LOBBYING FEES WERE PAID TO VAN SCOYOC ASSOCIATES, 800 MAINE AVENUE, SUITE 800,WASHINGTON DC 20024 TO PERSUADE MEMBERS OF THE GOVERNMENT TO ENACT LEGISLATION THAT WOULD FUND RESEARCH FOR INDIVIDUALS WITH NEUROFIBROMATOSIS.
IRS990ScheduleC/SupplementalInformationDetail/FormAndLineReferenceDesc0SCHEDULE C, PART II-B, LINE 1
IRS990ScheduleC/VolunteersInd0false
IRS990ScheduleD/ExpensesNotRptFinclStmtAmt0-117333
IRS990ScheduleD/ExpensesSubtotalAmt0425160
IRS990ScheduleD/FootnoteTextInd0X
IRS990ScheduleD/NetUnrealizedGainsInvstAmt029132
IRS990ScheduleD/OtherExpensesNotIncludedAmt0-117333
IRS990ScheduleD/OtherRevenuesNotIncludedAmt0-117333
IRS990ScheduleD/RevenueNotReportedAmt029132
IRS990ScheduleD/RevenueNotReportedFinclStmtAmt0-117333
IRS990ScheduleD/RevenueSubtotalAmt0463916
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0NEUROFIRBROATOSIS NETWORK IS A TAX-EXEMPT ORGANIZATION AS DESCRIBED IN THE SECTION 501(3) OF THE INTERNAL REVENUE CODE (THE CODE) AND IS EXEMPT FROM FEDERAL INCOME TAXES ON RELATED INCOME PURSUANT TO SECTION 501(A) OF THE CODE. IN ADDITION, THE INTERNAL REVENUE SERVICE HAS DETERMINED THAT NEUROFIRBROATOSIS NETWORK IS NOT A PRIVATE FOUNDATION WITHIN THE MEANING OF SECTION 509(A) OF THE CODE.
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt1SPECIAL EVENT EXPENSES NETTED AGAINST INCOME -117,333
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt2SPECIAL EVENT EXPENSES NETTED AGAINST INCOME -117,333
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0SCHEDULE D, PAGE 3, PART X
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc1SCHEDULE D, PAGE 4, PART XI, LINE 4B
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc2SCHEDULE D, PAGE 4, PART XII, LINE 4B
IRS990ScheduleD/TotalExpensesPerForm990Amt0307827
IRS990ScheduleD/TotalRevenuePerForm990Amt0346583
IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt0493048
IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt0425160
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt075307
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt075307
IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt0117333
IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm0NF HOPE CONCERT
IRS990ScheduleG/FundraisingEventInformationGrp/Event2Nm0LINKS FOR LAURE
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt0153853
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent2Amt011099
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt0164952
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt078546
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent2Amt011099
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt089645
IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt0-27688
IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt0117333
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt076571
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent2Amt040762
IRS990/ScheduleJRequiredInd0false
IRS990/ScheduleORequiredInd0true
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0THE 990 WILL BE REVIEWED BY SEVERAL EXECUTIVE COMMITTEE MEMBERS AND THE TREASURER BEFORE IT IS FILED WITH THE INTERNAL REVENUE SERVICE.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1THE ORGANIZATION PRACTICES FOR MONITORING PROPOSED OR ONGOING TRANSACTIONS FOR CONFLICTS OF INTEREST INCLUDES THE FOLLOWING: DESCRIPTION OF PERSONS COVERED UNDER THE POLICY: BOARD MEMBERS, OFFICER'S, DIRECTORS, EMPLOYEES, TRUSTEES, VOLUNTEERS. THE LEVEL AT WHICH DETERMINATIONS OF WHETHER A CONFLICT EXISTS ARE MADE AT THE BOARD LEVEL AND ARE REVIEWED AT THE BOARD LEVEL. A RESTRICTION IS IMPOSED ON PERSONS PARTICIPATING IN A CONFLICT BY NOT ALLOWING THAT PERSON TO PARTICIPATE IN THE GOVERNING BODY'S DELIBERATIONS AND DECISION IN THE TRANSACTION.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2THE EXECUTIVE DIRECTOR'S SALARY IS ANNUALLY REVIEWED BY THE GOVERNING BOARD MEMBERS.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3EMPLOYEE'S SALARIES ARE REVIEWED BY THE EXECUTIVE DIRECTOR.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4THE ORGANIZATION MAKES IT'S GOVERNING DOCUMENTS, ARTICLES OF INCORPORATION, CONSTITUTION, BY LAWS, AVAILABLE TO THE PUBLIC UPON REQUEST.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5SPECIAL EVENT EXPENSES NETTED AGAINST INCOME 117,333 SPECIAL EVENT EXPENSES NETTED AGAINST INCOME -117,333
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990, PAGE 6, PART VI, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PAGE 6, PART VI, LINE 12C
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PAGE 6, PART VI, LINE 15A
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3FORM 990, PAGE 6, PART VI, LINE 15B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4FORM 990, PAGE 6, PART VI, LINE 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc5FORM 990, PART XI, LINE 9
IRS990/SchoolOperatingInd0false
IRS990/SignificantChangeInd0false
IRS990/SignificantNewProgramSrvcInd0false
IRS990/StatesWhereCopyOfReturnIsFldCd0IL
IRS990/StatesWhereCopyOfReturnIsFldCd1MA
IRS990/SubjectToExcsTaxNetInvstIncInd0false
IRS990/SubjectToProxyTaxInd0false
IRS990/SubjToTaxRmnrtnExPrchtPymtInd0false
IRS990/TaxablePartyNotificationInd0false
IRS990/TaxExemptBondsInd0false
IRS990/TerminateOperationsInd0false
IRS990/TotalAssetsBOYAmt0703734
IRS990/TotalAssetsEOYAmt0771011
IRS990/TotalAssetsGrp/BOYAmt0703734
IRS990/TotalAssetsGrp/EOYAmt0771011
IRS990/TotalCompGreaterThan150KInd0false

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.23$0.01$1.22$0.45$0.49$0.04
2023Detailed filing. Detailed filing data is available for this year.$1.19$0.02$1.17$0.41$0.49$0.08
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.21$0.00$1.20$0.55$0.38$0.17
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.23$0.03$1.19$0.68$0.32$0.37
2020Detailed filing. Detailed filing data is available for this year.$0.77$0.00$0.77$0.35$0.31$0.04
2019Detailed filing. Detailed filing data is available for this year.$0.70$0.00$0.70$0.67$0.33$0.34
2018Detailed filing. Detailed filing data is available for this year.$0.42$0.05$0.37$0.45$0.37$0.08
2017Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.29$0.01$0.28$0.26$0.31$0.04
2016Detailed filing. Detailed filing data is available for this year.$0.39$0.07$0.32$0.36$0.38$0.02
2015Summary only. Only limited summary data is available for this year.$0.35$0.00$0.35$0.30$0.34$0.04
2014Summary only. Only limited summary data is available for this year.$0.41$0.03$0.39$0.29$0.30$0.00
2013Summary only. Only limited summary data is available for this year.$0.38$0.00$0.38$0.22$0.27$0.05
2012Summary only. Only limited summary data is available for this year.$0.44$0.01$0.43$0.21$0.22$0.00
2011Summary only. Only limited summary data is available for this year.$0.42$0.00$0.42$0.20$0.21$0.00
Peer Organizations

Similar nonprofits based on the same Siviq industry and scale cohort. 2020 filings • 501(c)3 • $500k-$1M nonprofits