Civic Intelligence

Haystack Project Inc.

990 • Fiscal year 2023 • EIN 83-3367375

Jan 01, 2023 to Dec 31, 2023 • Filed on Nov 07, 2024

Organization Profilewww.haystackproject.org
637 Emerson PlaceSeverna Park, MD 21146

(614) 354-6036

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

58th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2023 filings • 501(c)3 • <$500k nonprofits • Source year 2023

Liabilities / Revenue

59th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2023 filings • 501(c)3 • <$500k nonprofits • Source year 2023

Net Margin

6th percentile

-92%

Higher net margin than 6% of similar nonprofits.

2023 filings • 501(c)3 • <$500k nonprofits • Source year 2023

Top Officer Pay

89th percentile

$36,000

Higher top officer pay than 89% of similar nonprofits.

Top officer pay equals 15.9% of source-year revenue.

2023 filings • 501(c)3 • <$500k nonprofits • Source year 2023

Asset Growth

9th percentile

-54%

Faster asset growth than 9% of similar nonprofits.

2023 filings • 501(c)3 • <$500k nonprofits • Annualized from 2022 to 2023

Revenue Growth

10th percentile

-52%

Faster revenue growth than 10% of similar nonprofits.

2023 filings • 501(c)3 • <$500k nonprofits • Annualized from 2022 to 2023

Balance Sheet
Liabilities / Assets58th percentile

Assets

Down

$174,973

Down $207,692 (-54%) from 2022

Net Assets

Down

$174,973

Down $207,692 (-54%) from 2022

Liabilities

Flat

$0

Flat from 2022

Revenue And Expenses
Liabilities / Revenue59th percentileNet Margin6th percentile

Revenue

Down

$226,966

Down $249,072 (-52%) from 2022

Expenses

Up

$434,658

Up $54,017 (+14%) from 2022

Net Income

Down

-$207,692

Down $303,089 (-318%) from 2022

Historical Trend

Balance Sheet Trend

Asset Growth9th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$600K$400K$200K$0Assets 2019: $4,237Liabilities 2019: $0Net Assets 2019: $4,2372019Assets 2020: $168,615Liabilities 2020: $0Net Assets 2020: $168,6152020Assets 2021: $287,269Liabilities 2021: $0Net Assets 2021: $287,2692021Assets 2022: $382,665Liabilities 2022: $0Net Assets 2022: $382,6652022Assets 2023: $174,973Liabilities 2023: $0Net Assets 2023: $174,9732023Assets 2024: $402,109Liabilities 2024: $0Net Assets 2024: $402,1092024

Highlighted filing

2023

Assets$174,973
Liabilities$0
Net Assets$174,973
Open 2023 Filing

Operations Trend

Revenue Growth10th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.0M$500K$0-$500KRevenue 2019: $94,730Expenses 2019: $90,493Net Income 2019: $4,2372019Revenue 2020: $391,539Expenses 2020: $227,161Net Income 2020: $164,3782020Revenue 2021: $482,707Expenses 2021: $364,053Net Income 2021: $118,6542021Revenue 2022: $476,038Expenses 2022: $380,641Net Income 2022: $95,3972022Revenue 2023: $226,966Expenses 2023: $434,658Net Income 2023: -$207,6922023Revenue 2024: $759,000Expenses 2024: $525,956Net Income 2024: $233,0442024

Highlighted filing

2023

Revenue$226,966
Expenses$434,658
Net Income-$207,692
Open 2023 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2023 to Dec 31, 2023
Signed
Nov 7, 2024
Return Version
2023v5.1
Gross Receipts
$226,966
Mission and Program Overview

Mission

Haystack Project brings together the stakeholders connected to rare and ultra rare conditions to educate and advocate for public policies that recognize the unique circumstances of extremely rare conditions, their diagnosis, treatment and care.

Haystack Project brings together stakeholders connected to rare and ultra rare medical conditions to educate them and assist them with their self advocacy efforts.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$382,665$174,973▼ $207,692
Total Assets$382,665$174,973▼ $207,692
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$382,665$174,973▼ $207,692
Total Net Assets Fund Balance$382,665$174,973▼ $207,692
Total Liabilities and Net Assets / Fund Balance$382,665$174,973▼ $207,692
Compensation and Service Providers
Top Officer Pay89th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Chevese TurnerPast CEO / SecretaryPT$36,000$36,000

Board Members and Trustees

NameTitle
Christina NyquistDirector
James CaroDirector
Lisa SteelmanDirector
Lynn TaylorDirector
Victoria BlatterDirector
Kara BerasiCurrent CEO
Marc YalePatient Representative
Susan ThorntonPatient Representative
Jenn WappausTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
Consilium StrategiesResearch and Comment Letters900 East Fort Road Unte 428, Baltimore, MD 21230$177,750
Revenue and Support

Revenue Composition

Contributions and Grants
$226,966
Program Service Revenue
$0
Investment Income
$0
Other Revenue
$0
All Other Contributions
$226,966
Change in Net Assets
$-207,692
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$398,158
Salaries, Compensation, and Employee Benefits$36,000
Grants and Similar Amounts Paid$500
Professional Fundraising Fees$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Fees for Services Other$282,403$60,854-$343,257
Current Officers, Directors, Trustees, and Key Employees$36,000--$36,000
Fees for Services Lobbying$24,000--$24,000
Fees for Services Accounting-$18,000-$18,000
Other Expenses$9,284--$9,284
Advertising$1,419--$1,419
Office Expenses-$822-$822
Insurance$800--$800
Information Technology$576--$576
Grants to Domestic Orgs$500--$500
Total Functional Expenses$354,982$79,676$0$434,658
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Insider Transactions and Loans

Interested-Person Transactions

Interested PartyRelationshipDescriptionShared RevenueAmount
-Founder of Haystack Project Inc.Research and Policy SupportNo$60,000
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
Yes
Business relationship with family members
Yes
Business relationship with organization members
Yes
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“The organization reviews the 990 form at a board meeting piror to submitting to the IRS.”

Form 990, Part VI, Section B, Line 12C

“The organization enforced compliance with its conflict of interest policy by reviewing it periodically at board meetings.”

Form 990, Part VI, Section C, Line 19

“The organization makes its governing documents, conflict of interest policy, and financial statement available to the public upon request”

Form 990, Part VI, Section B, Line 15A

“The organization uses the following methods to establish compensation packages for its employees Approval by the Board”

Filing and Contact Details

Filer

Filer Name
Haystack Project Inc
EIN
83-3367375
Phone
6143546036
Address
637 Emerson Place, Severna Park, MD 21146

Signing Officer

Name
Kara Berasi
Title
CEO
Phone
6143546036
Signed
2024-11-07
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Kara Berasi
Formed
2019
Legal Domicile
Md
Voting Board Members
9
Independent Board Members
8
Employees
0
Volunteers
8

Preparer

Firm
Foundation Group Inc
Address
2451 Atrium Way Suite 300, Nashville, TN 37214
Preparer
Shannon M Evans EA
Phone
6153619445
Supplemental Narrative

Additional Explanations

Form 990, Part IX, Line 11G

“Other Professional Fees includes work such as comment letters, research, administrative support, and regulatory support.”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990ScheduleC/Form4720Filed4912TaxInd0false
IRS990ScheduleC/GrantsOtherOrganizationsInd0false
IRS990ScheduleC/MailingsMembersInd0false
IRS990ScheduleC/MediaAdvertisementsInd0false
IRS990ScheduleC/NotDescribedSection501c3Ind0false
IRS990ScheduleC/OtherActivitiesInd0false
IRS990ScheduleC/PaidStaffOrManagementInd0true
IRS990ScheduleC/PublicationsOrBroadcastInd0true
IRS990ScheduleC/RalliesDemonstrationsInd0false
IRS990ScheduleC/SupplementalInformationDetail/ExplanationTxt0The organization utilizes volunteers and paid consultants to research policies and provide education for legislators on rare and ultra-rare disease issues.
IRS990ScheduleC/SupplementalInformationDetail/FormAndLineReferenceDesc0II-B 1a, 1b, 1e, and 1g
IRS990ScheduleC/TotalLobbyingExpendituresAmt024000
IRS990ScheduleC/VolunteersInd0true
IRS990/ScheduleJRequiredInd0false
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/NameOfInterested/BusinessName/BusinessNameLine1Txt0Connect 4 Strategies
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/RelationshipDescriptionTxt0Founder of Haystack Project Inc.
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/SharingOfRevenuesInd0false
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionAmt060000
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionDesc0Research and Policy Support
IRS990/ScheduleORequiredInd0true
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0The organization reviews the 990 form at a board meeting piror to submitting to the IRS.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1The organization enforced compliance with its conflict of interest policy by reviewing it periodically at board meetings.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2The organization makes its governing documents, conflict of interest policy, and financial statement available to the public upon request
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3The organization uses the following methods to establish compensation packages for its employees Approval by the Board
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4Other Professional Fees includes work such as comment letters, research, administrative support, and regulatory support.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990, Part VI, Section B, Line 11b
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Form 990, Part VI, Section B, Line 12c
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Form 990, Part VI, Section C, Line 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3Form 990, Part VI, Section B, Line 15a
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4Form 990, Part IX, Line 11g
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IRS990/SubjectToProxyTaxInd0false
IRS990/SubjToTaxRmnrtnExPrchtPymtInd0false
IRS990/TaxablePartyNotificationInd0false
IRS990/TaxExemptBondsInd0false
IRS990/TerminateOperationsInd0false
IRS990/TotalAssetsBOYAmt0382665
IRS990/TotalAssetsEOYAmt0174973
IRS990/TotalAssetsGrp/BOYAmt0382665
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IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt079676
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt0354982
IRS990/TotalFunctionalExpensesGrp/TotalAmt0434658
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesEOYAmt00
IRS990/TotalLiabilitiesGrp/BOYAmt00
IRS990/TotalLiabilitiesGrp/EOYAmt00
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt0382665
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt0174973
IRS990/TotalProgramServiceExpensesAmt0354982
IRS990/TotalReportableCompFromOrgAmt036000
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt0226966
IRS990/TotalVolunteersCnt08
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt0382665
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt0174973
IRS990/TravelGrp/TotalAmt00
IRS990/TrnsfrExmptNonChrtblRltdOrgInd0false
IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd0false
IRS990/UponRequestInd0X
IRS990/USAddress/AddressLine1Txt0637 Emerson Place
IRS990/USAddress/CityNm0Severna Park
IRS990/USAddress/StateAbbreviationCd0MD
IRS990/USAddress/ZIPCd021146
IRS990/VotingMembersGoverningBodyCnt09
IRS990/VotingMembersIndependentCnt08
IRS990/WebsiteAddressTxt0www.haystackproject.org
IRS990/WhistleblowerPolicyInd0true
ReturnHeader/BuildTS02024-10-15 13:58:12Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd0true
ReturnHeader/BusinessOfficerGrp/PersonNm0Kara Berasi
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0CEO
ReturnHeader/BusinessOfficerGrp/PhoneNum06143546036
ReturnHeader/BusinessOfficerGrp/SignatureDt02024-11-07
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0Haystack Project Inc
ReturnHeader/Filer/BusinessNameControlTxt0HAYS
ReturnHeader/Filer/EIN0833367375
ReturnHeader/Filer/PhoneNum06143546036
ReturnHeader/Filer/USAddress/AddressLine1Txt0637 Emerson Place
ReturnHeader/Filer/USAddress/CityNm0Severna Park
ReturnHeader/Filer/USAddress/StateAbbreviationCd0MD
ReturnHeader/Filer/USAddress/ZIPCd021146
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0621813735
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0Foundation Group Inc
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt02451 Atrium Way Suite 300
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0Nashville
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0TN
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd037214
ReturnHeader/PreparerPersonGrp/PhoneNum06153619445
ReturnHeader/PreparerPersonGrp/PreparationDt02024-11-07
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0Shannon M Evans EA
ReturnHeader/ReturnTs02024-11-07T05:30:01-00:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/TaxPeriodBeginDt02023-01-01
ReturnHeader/TaxPeriodEndDt02023-12-31
ReturnHeader/TaxYr02023

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2023 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$174,973
Liabilities
$0
Net assets
$174,973
Revenue
$226,966
Expenses
$434,658
Net income
-$207,692
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.02$0.00$4.02$7.59$5.26$2.33
2023Detailed filing. Detailed filing data is available for this year.$1.75$0.00$1.75$2.27$4.35$2.08
2022Detailed filing. Detailed filing data is available for this year.$3.83$0.00$3.83$4.76$3.81$0.95
2021Detailed filing. Detailed filing data is available for this year.$2.87$0.00$2.87$4.83$3.64$1.19
2020Detailed filing. Detailed filing data is available for this year.$1.69$0.00$1.69$3.92$2.27$1.64
2019Summary only. Only limited summary data is available for this year.$0.04$0.00$0.04$0.95$0.90$0.04
Peer Organizations

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