Civic Intelligence

Haystack Project Inc.

EIN 83-3367375 • 501(c)3 • Severna Park, MD

Pub. 78 Eligible

Profile

Haystack Project brings together the stakeholders connected to rare and ultra rare conditions to educate and advocate for public policies that recognize the unique circumstances of extremely rare conditions, their diagnosis, treatment and care.

637 Emerson PlaceSeverna Park, MD 21146

haystackproject.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

33rd percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Liabilities / Revenue

35th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Net Margin

81st percentile

31%

Higher net margin than 81% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Top Officer Pay

63rd percentile

$36,000

Higher top officer pay than 63% of similar nonprofits.

Top officer pay equals 4.7% of source-year revenue.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Asset Growth

94th percentile

130%

Faster asset growth than 94% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Annualized from 2023 to 2024

Revenue Growth

96th percentile

234%

Faster revenue growth than 96% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets33rd percentile

Assets

Up

$402,109

Up $227,136 (+130%) from 2023

Liabilities

Flat

$0

Flat from 2023

Net Assets

Up

$402,109

Up $227,136 (+130%) from 2023

Operations
Liabilities / Revenue35th percentileNet Margin81st percentile

Revenue

Up

$759,000

Up $532,034 (+234%) from 2023

Expenses

Up

$525,956

Up $91,298 (+21%) from 2023

Net Income

Up

$233,044

Up $440,736 (+212%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth94th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$600K$400K$200K$0Assets 2019: $4,237Liabilities 2019: $0Net Assets 2019: $4,2372019Assets 2020: $168,615Liabilities 2020: $0Net Assets 2020: $168,6152020Assets 2021: $287,269Liabilities 2021: $0Net Assets 2021: $287,2692021Assets 2022: $382,665Liabilities 2022: $0Net Assets 2022: $382,6652022Assets 2023: $174,973Liabilities 2023: $0Net Assets 2023: $174,9732023Assets 2024: $402,109Liabilities 2024: $0Net Assets 2024: $402,1092024

Highlighted filing

2024

Assets$402,109
Liabilities$0
Net Assets$402,109
Open 2024 Filing

Operations Trend

Revenue Growth96th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$1.0M$500K$0-$500KRevenue 2019: $94,730Expenses 2019: $90,493Net Income 2019: $4,2372019Revenue 2020: $391,539Expenses 2020: $227,161Net Income 2020: $164,3782020Revenue 2021: $482,707Expenses 2021: $364,053Net Income 2021: $118,6542021Revenue 2022: $476,038Expenses 2022: $380,641Net Income 2022: $95,3972022Revenue 2023: $226,966Expenses 2023: $434,658Net Income 2023: -$207,6922023Revenue 2024: $759,000Expenses 2024: $525,956Net Income 2024: $233,0442024

Highlighted filing

2024

Revenue$759,000
Expenses$525,956
Net Income$233,044
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$402,109
Liabilities
$0
Net assets
$402,109
Revenue
$759,000
Expenses
$525,956
Net income
$233,044
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.02$0.00$4.02$7.59$5.26$2.33
2023Detailed filing. Detailed filing data is available for this year.$1.75$0.00$1.75$2.27$4.35$2.08
2022Detailed filing. Detailed filing data is available for this year.$3.83$0.00$3.83$4.76$3.81$0.95
2021Detailed filing. Detailed filing data is available for this year.$2.87$0.00$2.87$4.83$3.64$1.19
2020Detailed filing. Detailed filing data is available for this year.$1.69$0.00$1.69$3.92$2.27$1.64
2019Summary only. Only limited summary data is available for this year.$0.04$0.00$0.04$0.95$0.90$0.04
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Oct 16, 2025
Return Version
2024v5.2
Gross Receipts
$759,000
Mission and Program Overview

Mission

Haystack Project brings together the stakeholders connected to rare and ultra rare conditions to educate and advocate for public policies that recognize the unique circumstances of extremely rare conditions, their diagnosis, treatment and care.

Haystack Project brings together stakeholders connected to rare and ultra rare medical conditions to educate them and assist them with their self advocacy efforts.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$174,973$402,109▲ $227,136
Total Assets$174,973$402,109▲ $227,136
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$174,973$402,109▲ $227,136
Total Net Assets Fund Balance$174,973$402,109▲ $227,136
Total Liabilities and Net Assets / Fund Balance$174,973$402,109▲ $227,136
Compensation and Service Providers
Top Officer Pay63rd percentile

Employees

NameTitleFull / Part TimeBaseTotal
Kara BerasiCEOPT$36,000$36,000

Board Members and Trustees

NameTitle
Susan ThorntonBoard Chair / Patient Representative
Christina NyquistDirector
Jim CaroDirector
Lisa SteelmanDirector
Lynn TaylorDirector
Victoria BlatterDirector
Kristen WheedenPatient Representative
Chevese TurnerSecretary
Jenn WappausTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
Consilium StrategiesResearch and Comment Letters900 East Fort Road Unte 428, Baltimore, MD 21230$205,000
Connect 4 StrategiesResearch and Comment Letters6005 Gloster Road, Bethesda, MD 20816$185,000
Revenue and Support

Revenue Composition

Contributions and Grants
$759,000
Program Service Revenue
$0
Investment Income
$0
Other Revenue
$0
All Other Contributions
$759,000
Change in Net Assets
$233,044
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$489,956
Salaries, Compensation, and Employee Benefits$36,000
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Fees for Services Other$363,050$62,500-$425,550
Current Officers, Directors, Trustees, and Key Employees$36,000--$36,000
Fees for Services Lobbying$30,000--$30,000
Fees for Services Accounting-$28,500-$28,500
Payments to Affiliates$4,000--$4,000
Insurance$880--$880
Office Expenses-$857-$857
Advertising$169--$169
Total Functional Expenses$434,099$91,857$0$525,956
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Insider Transactions and Loans

Interested-Person Transactions

Interested PartyRelationshipDescriptionShared RevenueAmount
Connect 4 StrategiesFounder of Haystack ProjectResearch and Policy SupportNo$185,000
Joseph ChiricoFamily of FounderAccountingNo$27,000
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
Yes
Business relationship with family members
Yes
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“The organization reviews the 990 form at a board meeting piror to submitting to the IRS.”

Form 990, Part VI, Section B, Line 12C

“The organization enforced compliance with its conflict of interest policy by reviewing it periodically at board meetings.”

Form 990, Part VI, Section C, Line 19

“The organization makes its governing documents, conflict of interest policy, and financial statement available to the public upon request”

Form 990, Part VI, Section B, Line 15A

“The organization uses the following methods to establish compensation packages for its employees Approval by the Board”

Filing and Contact Details

Filer

Filer Name
Haystack Project Inc
EIN
83-3367375
Phone
6143546036
Address
637 Emerson Place, Severna Park, MD 21146

Signing Officer

Name
Kara Berasi
Title
CEO
Phone
6143546036
Signed
2025-10-16
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Kara Berasi
Formed
2019
Legal Domicile
Md
Voting Board Members
10
Independent Board Members
9
Employees
0
Volunteers
9

Preparer

Firm
Foundation Group Inc
Address
2451 Atrium Way Suite 300, Nashville, TN 37214
Preparer
Andrew D Payne EA
Phone
6153619445
Supplemental Narrative

Additional Explanations

Form 990, Part IX, Line 11G

“Other Professional Fees includes work such as comment letters, research, administrative support, and regulatory support.”

Form 990, Part XI, Line 9

“The previously reported cash balance was overstated by 5,908.”

Raw XML Appendix396 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt0759000
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt0226966
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0476038
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0482707
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0391539
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt02336250
IRS990ScheduleA/TotalSupportAmt02336250
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
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IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
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IRS990ScheduleC/DirectContactLegislatorsAmt030000
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IRS990ScheduleC/Form4720Filed4912TaxInd0false
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IRS990ScheduleC/SupplementalInformationDetail/ExplanationTxt0The organization utilizes volunteers and paid consultants to research policies and provide education for legislators on rare and ultra-rare disease issues.
IRS990ScheduleC/SupplementalInformationDetail/FormAndLineReferenceDesc0II-B 1a, 1b, 1e, and 1g
IRS990ScheduleC/TotalLobbyingExpendituresAmt030000
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IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/NameOfInterested/PersonNm0Connect 4 Strategies
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/NameOfInterested/PersonNm1Joseph Chirico
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/RelationshipDescriptionTxt0Founder of Haystack Project
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/RelationshipDescriptionTxt1Family of Founder
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IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/SharingOfRevenuesInd1false
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IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionAmt127000
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionDesc0Research and Policy Support
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionDesc1Accounting
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0The organization reviews the 990 form at a board meeting piror to submitting to the IRS.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1The organization enforced compliance with its conflict of interest policy by reviewing it periodically at board meetings.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2The organization makes its governing documents, conflict of interest policy, and financial statement available to the public upon request
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3The organization uses the following methods to establish compensation packages for its employees Approval by the Board
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4Other Professional Fees includes work such as comment letters, research, administrative support, and regulatory support.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5The previously reported cash balance was overstated by 5,908.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990, Part VI, Section B, Line 11b
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Form 990, Part VI, Section B, Line 12c
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Form 990, Part VI, Section C, Line 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3Form 990, Part VI, Section B, Line 15a
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4Form 990, Part IX, Line 11g
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc5Form 990, Part XI, Line 9
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IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt0434099
IRS990/TotalFunctionalExpensesGrp/TotalAmt0525956
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IRS990/TotalReportableCompFromOrgAmt036000
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt0759000
IRS990/TotalVolunteersCnt09
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IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt0402109
IRS990/TravelGrp/TotalAmt00
IRS990/TrnsfrExmptNonChrtblRltdOrgInd0false
IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd0false
IRS990/UponRequestInd0X
IRS990/USAddress/AddressLine1Txt0637 Emerson Place
IRS990/USAddress/CityNm0Severna Park
IRS990/USAddress/StateAbbreviationCd0MD
IRS990/USAddress/ZIPCd021146
IRS990/VotingMembersGoverningBodyCnt010
IRS990/VotingMembersIndependentCnt09
IRS990/WebsiteAddressTxt0www.haystackproject.org
IRS990/WhistleblowerPolicyInd0true
ReturnHeader/BuildTS02025-03-06 01:10:19Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd0true
ReturnHeader/BusinessOfficerGrp/PersonNm0Kara Berasi
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0CEO
ReturnHeader/BusinessOfficerGrp/PhoneNum06143546036
ReturnHeader/BusinessOfficerGrp/SignatureDt02025-10-16
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0Haystack Project Inc
ReturnHeader/Filer/BusinessNameControlTxt0HAYS
ReturnHeader/Filer/EIN0833367375
ReturnHeader/Filer/PhoneNum06143546036
ReturnHeader/Filer/USAddress/AddressLine1Txt0637 Emerson Place
ReturnHeader/Filer/USAddress/CityNm0Severna Park
ReturnHeader/Filer/USAddress/StateAbbreviationCd0MD
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ReturnHeader/IRSResponsiblePrtyInfoCurrInd0true
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0621813735
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0Foundation Group Inc
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt02451 Atrium Way Suite 300
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0Nashville
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0TN
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd037214
ReturnHeader/PreparerPersonGrp/PhoneNum06153619445
ReturnHeader/PreparerPersonGrp/PreparationDt02025-10-16
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0Andrew D Payne EA
ReturnHeader/ReturnTs02025-10-16T12:46:41-00:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/TaxPeriodBeginDt02024-01-01
ReturnHeader/TaxPeriodEndDt02024-12-31
ReturnHeader/TaxYr02024

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