Civic Intelligence

Haystack Project Inc.

990 • Fiscal year 2020 • EIN 83-3367375

Jan 01, 2020 to Dec 31, 2020 • Filed on May 25, 2021

Organization ProfileWWW.HAYSTACKPROJECT.ORG
6005 Gloster RoadBethesda, MD 20816

(301) 320-6872

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

55th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2020 filings • 501(c)3 • <$500k nonprofits • Source year 2020

Liabilities / Revenue

55th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2020 filings • 501(c)3 • <$500k nonprofits • Source year 2020

Net Margin

85th percentile

42%

Higher net margin than 85% of similar nonprofits.

2020 filings • 501(c)3 • <$500k nonprofits • Source year 2020

Top Officer Pay

76th percentile

$0

Higher top officer pay than 76% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2020 filings • 501(c)3 • <$500k nonprofits • Source year 2020

Asset Growth

99th percentile

3880%

Faster asset growth than 99% of similar nonprofits.

2020 filings • 501(c)3 • <$500k nonprofits • Annualized from 2019 to 2020

Revenue Growth

98th percentile

313%

Faster revenue growth than 98% of similar nonprofits.

2020 filings • 501(c)3 • <$500k nonprofits • Annualized from 2019 to 2020

Balance Sheet
Liabilities / Assets55th percentile

Assets

Up

$168,615

Up $164,378 (+3880%) from 2019

Net Assets

Up

$168,615

Up $164,378 (+3880%) from 2019

Liabilities

Flat

$0

Flat from 2019

Revenue And Expenses
Liabilities / Revenue55th percentileNet Margin85th percentile

Revenue

Up

$391,539

Up $296,809 (+313%) from 2019

Expenses

Up

$227,161

Up $136,668 (+151%) from 2019

Net Income

Up

$164,378

Up $160,141 (+3780%) from 2019

Historical Trend

Balance Sheet Trend

Asset Growth99th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$600K$400K$200K$0Assets 2019: $4,237Liabilities 2019: $0Net Assets 2019: $4,2372019Assets 2020: $168,615Liabilities 2020: $0Net Assets 2020: $168,6152020Assets 2021: $287,269Liabilities 2021: $0Net Assets 2021: $287,2692021Assets 2022: $382,665Liabilities 2022: $0Net Assets 2022: $382,6652022Assets 2023: $174,973Liabilities 2023: $0Net Assets 2023: $174,9732023Assets 2024: $402,109Liabilities 2024: $0Net Assets 2024: $402,1092024

Highlighted filing

2020

Assets$168,615
Liabilities$0
Net Assets$168,615
Open 2020 Filing

Operations Trend

Revenue Growth98th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.0M$500K$0-$500KRevenue 2019: $94,730Expenses 2019: $90,493Net Income 2019: $4,2372019Revenue 2020: $391,539Expenses 2020: $227,161Net Income 2020: $164,3782020Revenue 2021: $482,707Expenses 2021: $364,053Net Income 2021: $118,6542021Revenue 2022: $476,038Expenses 2022: $380,641Net Income 2022: $95,3972022Revenue 2023: $226,966Expenses 2023: $434,658Net Income 2023: -$207,6922023Revenue 2024: $759,000Expenses 2024: $525,956Net Income 2024: $233,0442024

Highlighted filing

2020

Revenue$391,539
Expenses$227,161
Net Income$164,378
Open 2020 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2020 to Dec 31, 2020
Signed
May 25, 2021
Return Version
2020v4.0
Gross Receipts
$391,539
Mission and Program Overview

Mission

Haystack Project brings together stakeholders connected to rare and ultra rare medical conditions to educate them and assist them with their self advocacy efforts.

Haystack project brings together the stakeholders connected to rare and ultra rare conditions to educate them and assist with their self-advocacy efforts

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$4,237$168,615▲ $164,378
Rtn Earn Endowment Incm Other Fnds$4,237$168,615▲ $164,378
Total Assets$4,237$168,615▲ $164,378
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Total Net Assets Fund Balance$4,237$168,615▲ $164,378
Total Liabilities and Net Assets / Fund Balance$4,237$168,615▲ $164,378
Compensation and Service Providers
Top Officer Pay76th percentile

Board Members and Trustees

NameTitle
James CaroPresident
Christina NyquistDirector
Marc YaleDirector
Bela SastrySecretary
Joseph ChiricoTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$145,539
Program Service Revenue
$246,000
Investment Income
$0
Other Revenue
$0
All Other Contributions
$145,539
Change in Net Assets
$164,378
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$227,161
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Fees for Services Management$80,000$14,127-$94,127
Fees for Services Lobbying$10,000--$10,000
Information Technology-$2,270-$2,270
Fees for Services Other$500$529-$1,029
Advertising-$748-$748
Insurance-$629-$629
Fees for Services Accounting-$400-$400
Other Expenses$117,795$163-$163
Total Functional Expenses$208,295$18,866$0$227,161
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 11B

“Each member reviews and approves form 990 before filing.”

Form 990, Page 6, Part VI, Line 12C

“Director review and approve any conflict of interest issues.”

Form 990, Page 6, Part VI, Line 19

“Form 990 available for public inspection.”

Filing and Contact Details

Filer

Filer Name
Haystack Project Inc
EIN
83-3367375
Phone
3013206872
Address
6005 GLOSTER ROAD, BETHESDA, MD 20816

Signing Officer

Name
James Caro
Title
President
Phone
3013206872
Signed
2021-05-25
Discuss with paid preparer
Yes

Organization Details

Principal Officer
James Caro
Formed
2019
Legal Domicile
Md
Voting Board Members
5
Independent Board Members
5
Employees
0

Preparer

Firm
Yaakov Borenstein CPA Pc
Address
9505 LINDEN AVE, BETHESDA, MD 20814-1638
Preparer
Yaakov Borenstein CPA Pc
Phone
3015305870
Supplemental Narrative

Additional Explanations

FORM 990 - ORGANIZATION'S MISSION

“Haystack project brings together the stakeholders connected to rare and ultra rare conditions to educate and advocate for public policies that recognize the unique circumstances of extremely rare conditions and their treatments”

Form 990, Page 2, Part III, Line 4A

“Engaged a third party public policy consultant to provide monthly & ad hoc calls with patient groups. Calls were focused on identifying issues related to systematic barriers to access and treatments. Consultant provided groups with guidance on the rules, regulations, and laws that impact patients' care including proposals currently pending by policy makers. Consultant helped collect, collate, and compartmentalize which patient experiences related back to which current and pending laws, regulations, and proposals. Patient groups were provided a forum from which they can learn from each other. As part of this effort, the organization has created the advocacy empowerment institute (aei). The end goal of aei is to better arm patients for the important role of self-advocacy. The organization has also created special member focused working groups specifically tailored to address the needs and concerns of minorities (heat) and rare cancer patients (rcpc).”

Raw XML Appendix310 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0HAYSTACK PROJECT BRINGS TOGETHER THE STAKEHOLDERS CONNECTED TO RARE AND ULTRA RARE CONDITIONS TO EDUCATE AND ADVOCATE FOR PUBLIC POLICIES THAT RECOGNIZE THE UNIQUE CIRCUMSTANCES OF EXTREMELY RARE CONDITIONS AND THEIR TREATMENTS
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1ENGAGED A THIRD PARTY PUBLIC POLICY CONSULTANT TO PROVIDE MONTHLY & AD HOC CALLS WITH PATIENT GROUPS. CALLS WERE FOCUSED ON IDENTIFYING ISSUES RELATED TO SYSTEMATIC BARRIERS TO ACCESS AND TREATMENTS. CONSULTANT PROVIDED GROUPS WITH GUIDANCE ON THE RULES, REGULATIONS, AND LAWS THAT IMPACT PATIENTS' CARE INCLUDING PROPOSALS CURRENTLY PENDING BY POLICY MAKERS. CONSULTANT HELPED COLLECT, COLLATE, AND COMPARTMENTALIZE WHICH PATIENT EXPERIENCES RELATED BACK TO WHICH CURRENT AND PENDING LAWS, REGULATIONS, AND PROPOSALS. PATIENT GROUPS WERE PROVIDED A FORUM FROM WHICH THEY CAN LEARN FROM EACH OTHER. AS PART OF THIS EFFORT, THE ORGANIZATION HAS CREATED THE ADVOCACY EMPOWERMENT INSTITUTE (AEI). THE END GOAL OF AEI IS TO BETTER ARM PATIENTS FOR THE IMPORTANT ROLE OF SELF-ADVOCACY. THE ORGANIZATION HAS ALSO CREATED SPECIAL MEMBER FOCUSED WORKING GROUPS SPECIFICALLY TAILORED TO ADDRESS THE NEEDS AND CONCERNS OF MINORITIES (HEAT) AND RARE CANCER PATIENTS (RCPC).
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2EACH MEMBER REVIEWS AND APPROVES FORM 990 BEFORE FILING.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3DIRECTOR REVIEW AND APPROVE ANY CONFLICT OF INTEREST ISSUES.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4FORM 990 AVAILABLE FOR PUBLIC INSPECTION.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990 - ORGANIZATION'S MISSION
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IRS990/TotalLiabilitiesGrp/EOYAmt00
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt04237
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt0168615
IRS990/TotalProgramServiceExpensesAmt0208295
IRS990/TotalProgramServiceRevenueAmt0246000
IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt0246000
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt0391539
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt04237
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt0168615
IRS990/TrnsfrExmptNonChrtblRltdOrgInd0false
IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd0false
IRS990/UponRequestInd0X
IRS990/USAddress/AddressLine1Txt0541 POWELL STREET
IRS990/USAddress/CityNm0ANNAPOLIS
IRS990/USAddress/StateAbbreviationCd0MD
IRS990/USAddress/ZIPCd021401
IRS990/VotingMembersGoverningBodyCnt05
IRS990/VotingMembersIndependentCnt05
IRS990/WebsiteAddressTxt0WWW.HAYSTACKPROJECT.ORG
IRS990/WhistleblowerPolicyInd0true
ReturnHeader/BuildTS02022-09-23 18:48:47Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd0true
ReturnHeader/BusinessOfficerGrp/PersonNm0JAMES CARO
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0PRESIDENT
ReturnHeader/BusinessOfficerGrp/PhoneNum03013206872
ReturnHeader/BusinessOfficerGrp/SignatureDt02021-05-25
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0HAYSTACK PROJECT INC
ReturnHeader/Filer/BusinessNameControlTxt0HAYS
ReturnHeader/Filer/EIN0833367375
ReturnHeader/Filer/PhoneNum03013206872
ReturnHeader/Filer/USAddress/AddressLine1Txt06005 GLOSTER ROAD
ReturnHeader/Filer/USAddress/CityNm0BETHESDA
ReturnHeader/Filer/USAddress/StateAbbreviationCd0MD
ReturnHeader/Filer/USAddress/ZIPCd020816
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0522136830
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0YAAKOV BORENSTEIN CPA PC
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt09505 LINDEN AVE
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0BETHESDA
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0MD
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd0208141638
ReturnHeader/PreparerPersonGrp/PhoneNum03015305870
ReturnHeader/PreparerPersonGrp/PreparationDt02021-07-06
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0YAAKOV BORENSTEIN CPA PC
ReturnHeader/ReturnTs02021-07-06T08:46:22-05:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/SigningOfficerGrp/PersonFullName/PersonFirstNm0JAMES
ReturnHeader/SigningOfficerGrp/PersonFullName/PersonLastNm0CARO
ReturnHeader/TaxPeriodBeginDt02020-01-01
ReturnHeader/TaxPeriodEndDt02020-12-31
ReturnHeader/TaxYr02020

Document Assets

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Filings

Displayed year

2020 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$168,615
Liabilities
$0
Net assets
$168,615
Revenue
$391,539
Expenses
$227,161
Net income
$164,378
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.02$0.00$4.02$7.59$5.26$2.33
2023Detailed filing. Detailed filing data is available for this year.$1.75$0.00$1.75$2.27$4.35$2.08
2022Detailed filing. Detailed filing data is available for this year.$3.83$0.00$3.83$4.76$3.81$0.95
2021Detailed filing. Detailed filing data is available for this year.$2.87$0.00$2.87$4.83$3.64$1.19
2020Detailed filing. Detailed filing data is available for this year.$1.69$0.00$1.69$3.92$2.27$1.64
2019Summary only. Only limited summary data is available for this year.$0.04$0.00$0.04$0.95$0.90$0.04