Civic Intelligence

Haystack Project Inc.

990 • Fiscal year 2022 • EIN 83-3367375

Jan 01, 2022 to Dec 31, 2022 • Filed on Oct 16, 2023

Organization Profilehaystackproject.org
937 Emerson DrSeverna Park, MD 21146

(202) 360-9985

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

58th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2022 filings • 501(c)3 • <$500k nonprofits • Source year 2022

Liabilities / Revenue

58th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2022 filings • 501(c)3 • <$500k nonprofits • Source year 2022

Net Margin

70th percentile

20%

Higher net margin than 70% of similar nonprofits.

2022 filings • 501(c)3 • <$500k nonprofits • Source year 2022

Top Officer Pay

79th percentile

$3,000

Higher top officer pay than 79% of similar nonprofits.

Top officer pay equals 0.6% of source-year revenue.

2022 filings • 501(c)3 • <$500k nonprofits • Source year 2022

Asset Growth

78th percentile

33%

Faster asset growth than 78% of similar nonprofits.

2022 filings • 501(c)3 • <$500k nonprofits • Annualized from 2021 to 2022

Revenue Growth

39th percentile

-1.4%

Faster revenue growth than 39% of similar nonprofits.

2022 filings • 501(c)3 • <$500k nonprofits • Annualized from 2021 to 2022

Balance Sheet
Liabilities / Assets58th percentile

Assets

Up

$382,665

Up $95,396 (+33%) from 2021

Net Assets

Up

$382,665

Up $95,396 (+33%) from 2021

Liabilities

Flat

$0

Flat from 2021

Revenue And Expenses
Liabilities / Revenue58th percentileNet Margin70th percentile

Revenue

Down

$476,038

Down $6,669 (-1.4%) from 2021

Expenses

Up

$380,641

Up $16,588 (+4.6%) from 2021

Net Income

Down

$95,397

Down $23,257 (-20%) from 2021

Historical Trend

Balance Sheet Trend

Asset Growth78th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$600K$400K$200K$0Assets 2019: $4,237Liabilities 2019: $0Net Assets 2019: $4,2372019Assets 2020: $168,615Liabilities 2020: $0Net Assets 2020: $168,6152020Assets 2021: $287,269Liabilities 2021: $0Net Assets 2021: $287,2692021Assets 2022: $382,665Liabilities 2022: $0Net Assets 2022: $382,6652022Assets 2023: $174,973Liabilities 2023: $0Net Assets 2023: $174,9732023Assets 2024: $402,109Liabilities 2024: $0Net Assets 2024: $402,1092024

Highlighted filing

2022

Assets$382,665
Liabilities$0
Net Assets$382,665
Open 2022 Filing

Operations Trend

Revenue Growth39th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.0M$500K$0-$500KRevenue 2019: $94,730Expenses 2019: $90,493Net Income 2019: $4,2372019Revenue 2020: $391,539Expenses 2020: $227,161Net Income 2020: $164,3782020Revenue 2021: $482,707Expenses 2021: $364,053Net Income 2021: $118,6542021Revenue 2022: $476,038Expenses 2022: $380,641Net Income 2022: $95,3972022Revenue 2023: $226,966Expenses 2023: $434,658Net Income 2023: -$207,6922023Revenue 2024: $759,000Expenses 2024: $525,956Net Income 2024: $233,0442024

Highlighted filing

2022

Revenue$476,038
Expenses$380,641
Net Income$95,397
Open 2022 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2022 to Dec 31, 2022
Signed
Oct 16, 2023
Return Version
2022v5.0
Gross Receipts
$476,038
Mission and Program Overview

Mission

Haystack Project brings together the stakeholders connected to rare and ultra rare conditions to educate and advocate for public policies that recognize the unique circumstances of extremely rare conditions, their diagnosis, treatment and care.

Haystack Project brings together stakeholders connected to rare and ultra rare medical conditions to educate them and assist them with their self advocacy efforts.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$287,268$382,665▲ $95,397
Loans From Officers Directors$0$0→ $0
Total Assets$287,268$382,665▲ $95,397
Liabilities
Accounts Payable and Accrued Expenses$0$0→ $0
Grants Payable$0$0→ $0
Mortgage Notes Payable Secured by Investment Property$0$0→ $0
Unsecured Notes Loans Payable$0$0→ $0
Other Liabilities$0--
Deferred Revenue$0$0→ $0
Escrow Account Liability$0$0→ $0
Tax Exempt Bond Liabilities$0$0→ $0
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$287,268$382,665▲ $95,397
Net Assets With Donor Restrictions$0$0→ $0
Total Net Assets Fund Balance$287,268$382,665▲ $95,397
Total Liabilities and Net Assets / Fund Balance$287,268$382,665▲ $95,397
Compensation and Service Providers
Top Officer Pay79th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Chevese TurnerCEOPT$3,000$3,000

Board Members and Trustees

NameTitle
Christina NyquistBoard Member
Lisa SteelmanBoard Member
Lynn TaylorBoard Member
Susan ThorntonBoard Member
Victoria BlatterBoard Member
Marc YaleBoars Member
Joseph ChiricoTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
M Kay ScanlanConsulting1401 Porter St, Apt 418, Baltimore, MD 21230$142,960
Revenue and Support

Revenue Composition

Contributions and Grants
$476,038
Program Service Revenue
$0
Investment Income
$0
Other Revenue
$0
All Other Contributions
$465,000
Change in Net Assets
$95,397
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$320,641
Salaries, Compensation, and Employee Benefits$60,000
Total Fundraising Expense$50
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Fees for Services Management$70,030$30,354$0$100,384
Current Officers, Directors, Trustees, and Key Employees$0$60,000-$60,000
Fees for Services Lobbying$20,000$0-$20,000
Other Expenses$9,066$0$0$9,066
Advertising-$960$50$1,010
Insurance$0$800-$800
Total Functional Expenses$287,697$92,894$50$380,641
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Loans from Officers, Directors, Trustees, and Key Employees$0$0→ $0
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 8B

“All authority and actions are done by and through the board of directors.”

Form 990, Part VI, Section B, Line 11B

“The organizations Treasurer, President and the entire board review the document and submit comments and changes to the consulting team preparing the document.”

Form 990, Part VI, Section B, Line 15

“Compensation for the President is determined by the Board of Directors. This process is completed annually and was completed at the beginning of the 2022 fiscal year.”

Form 990, Part VI, Section C, Line 19

“Relevant policy and financial documents are made available upon request to members and interested parities. In addition key policies and 990 filings are posted to the organization website.”

Filing and Contact Details

Filer

Filer Name
Haystack Project Inc
EIN
83-3367375
Phone
2023609985
Address
937 Emerson Dr, Severna Park, MD 21146

Signing Officer

Name
Jennifer Wappaus
Title
Treasurer
Phone
4107071419
Signed
2023-10-16

Organization Details

Principal Officer
Chevese Turner
Formed
2019
Legal Domicile
Md
Voting Board Members
7
Independent Board Members
7
Employees
0
Volunteers
0
Raw XML AppendixShowing 400 of 408 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd00
IRS990/AccountsPayableAccrExpnssGrp/BOYAmt00
IRS990/AccountsPayableAccrExpnssGrp/EOYAmt00
IRS990/ActivitiesConductedPrtshpInd00
IRS990/ActivityOrMissionDesc0Haystack Project brings together stakeholders connected to rare and ultra rare medical conditions to educate them and assist them with their self advocacy efforts.
IRS990/AddressChangeInd0X
IRS990/AdvertisingGrp/FundraisingAmt050
IRS990/AdvertisingGrp/ManagementAndGeneralAmt0960
IRS990/AdvertisingGrp/TotalAmt01010
IRS990/AllOtherContributionsAmt0465000
IRS990/AllOtherExpensesGrp/TotalAmt00
IRS990/AnnualDisclosureCoveredPrsnInd01
IRS990/BooksInCareOfDetail/PersonNm0joseph chirico
IRS990/BooksInCareOfDetail/PhoneNum07034721163
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt01028 Clark Point Dr
IRS990/BooksInCareOfDetail/USAddress/CityNm0White Stone
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0VA
IRS990/BooksInCareOfDetail/USAddress/ZIPCd022578
IRS990/BusinessRlnWith35CtrlEntInd00
IRS990/BusinessRlnWithFamMemInd00
IRS990/BusinessRlnWithOrgMemInd00
IRS990/CashNonInterestBearingGrp/BOYAmt0287268
IRS990/CashNonInterestBearingGrp/EOYAmt0382665
IRS990/ChangeToOrgDocumentsInd00
IRS990/CntrctRcvdGreaterThan100KCnt01
IRS990/CollectionsOfArtInd00
IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt060000
IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt00
IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt060000
IRS990/CompensationFromOtherSrcsInd00
IRS990/CompensationProcessCEOInd01
IRS990/CompensationProcessOtherInd00
IRS990/ConflictOfInterestPolicyInd01
IRS990/ConservationEasementsInd00
IRS990/ConsolidatedAuditFinclStmtInd00
IRS990/ContractorCompensationGrp/CompensationAmt0142960
IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt01401 Porter St
IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine2Txt0Apt 418
IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm0Baltimore
IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd0MD
IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd021230
IRS990/ContractorCompensationGrp/ContractorName/PersonNm0M Kay Scanlan
IRS990/ContractorCompensationGrp/ServicesDesc0Consulting
IRS990/ContriRptFundraisingEventAmt00
IRS990/CreditCounselingInd00
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt0476038
IRS990/CYGrantsAndSimilarPaidAmt00
IRS990/CYInvestmentIncomeAmt00
IRS990/CYOtherExpensesAmt0320641
IRS990/CYOtherRevenueAmt00
IRS990/CYProgramServiceRevenueAmt00
IRS990/CYRevenuesLessExpensesAmt095397
IRS990/CYSalariesCompEmpBnftPaidAmt060000
IRS990/CYTotalExpensesAmt0380641
IRS990/CYTotalFundraisingExpenseAmt050
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt0476038
IRS990/DecisionsSubjectToApprovaInd00
IRS990/DeductibleArtContributionInd00
IRS990/DeductibleNonCashContriInd00
IRS990/DeferredRevenueGrp/BOYAmt00
IRS990/DeferredRevenueGrp/EOYAmt00
IRS990/DelegationOfMgmtDutiesInd00
IRS990/Desc0The organization hired consultants to draft a report on value which gives payer and value framework developers deeper insights into the patients perspectives and perception of value. This provides patients a way to come together and magnify their voices so they are better heard by groups and authorities that make coverage decisions and formulary designations. The organization maintains a library of these reports so that members can learn from them, conduct their own and use them to magnify their voices.
IRS990/DescribedInSection501c3Ind01
IRS990/DisregardedEntityInd00
IRS990/DocumentRetentionPolicyInd00
IRS990/DonatedServicesAndUseFcltsAmt00
IRS990/DonorAdvisedFundInd00
IRS990/DonorRestrictionNetAssetsGrp/BOYAmt00
IRS990/DonorRestrictionNetAssetsGrp/EOYAmt00
IRS990/DonorRstrOrQuasiEndowmentsInd00
IRS990/ElectionOfBoardMembersInd00
IRS990/EmployeeCnt00
IRS990/EngagedInExcessBenefitTransInd00
IRS990/EscrowAccountLiabilityGrp/BOYAmt00
IRS990/EscrowAccountLiabilityGrp/EOYAmt00
IRS990/ExpenseAmt070000
IRS990/FamilyOrBusinessRlnInd00
IRS990/FederalGrantAuditRequiredInd00
IRS990/FederatedCampaignsAmt00
IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt00
IRS990/FeesForServicesAccountingGrp/TotalAmt00
IRS990/FeesForServicesLobbyingGrp/ManagementAndGeneralAmt00
IRS990/FeesForServicesLobbyingGrp/ProgramServicesAmt020000
IRS990/FeesForServicesLobbyingGrp/TotalAmt020000
IRS990/FeesForServicesManagementGrp/FundraisingAmt00
IRS990/FeesForServicesManagementGrp/ManagementAndGeneralAmt030354
IRS990/FeesForServicesManagementGrp/ProgramServicesAmt070030
IRS990/FeesForServicesManagementGrp/TotalAmt0100384
IRS990/ForeignActivitiesInd00
IRS990/ForeignFinancialAccountInd00
IRS990/ForeignOfficeInd00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt05
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt10.5
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt20.5
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt30.5
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt40.5
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt50.5
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt60.5
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt73
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/PersonNm0Chevese Turner
IRS990/Form990PartVIISectionAGrp/PersonNm1Susan Thornton
IRS990/Form990PartVIISectionAGrp/PersonNm2Victoria Blatter
IRS990/Form990PartVIISectionAGrp/PersonNm3Marc Yale
IRS990/Form990PartVIISectionAGrp/PersonNm4Lisa Steelman
IRS990/Form990PartVIISectionAGrp/PersonNm5Christina Nyquist
IRS990/Form990PartVIISectionAGrp/PersonNm6Lynn Taylor
IRS990/Form990PartVIISectionAGrp/PersonNm7Joseph Chirico
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt03000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/TitleTxt0CEO
IRS990/Form990PartVIISectionAGrp/TitleTxt1Board Member
IRS990/Form990PartVIISectionAGrp/TitleTxt2Board Member
IRS990/Form990PartVIISectionAGrp/TitleTxt3Boars Member
IRS990/Form990PartVIISectionAGrp/TitleTxt4Board Member
IRS990/Form990PartVIISectionAGrp/TitleTxt5Board Member
IRS990/Form990PartVIISectionAGrp/TitleTxt6Board Member
IRS990/Form990PartVIISectionAGrp/TitleTxt7Treasurer
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr02019
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedInd00
IRS990/FundraisingActivitiesInd00
IRS990/FundraisingAmt00
IRS990/GainOrLossGrp/OtherAmt00
IRS990/GainOrLossGrp/SecuritiesAmt00
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt07
IRS990/GovernmentGrantsAmt00
IRS990/GrantsPayableGrp/BOYAmt00
IRS990/GrantsPayableGrp/EOYAmt00
IRS990/GrantsToDomesticOrgsGrp/TotalAmt00
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd00
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt0476038
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd00
IRS990/IndependentAuditFinclStmtInd00
IRS990/IndependentVotingMemberCnt07
IRS990/IndivRcvdGreaterThan100KCnt00
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt00
IRS990/InformationTechnologyGrp/ProgramServicesAmt00
IRS990/InformationTechnologyGrp/TotalAmt00
IRS990/InsuranceGrp/ManagementAndGeneralAmt0800
IRS990/InsuranceGrp/ProgramServicesAmt00
IRS990/InsuranceGrp/TotalAmt0800
IRS990/InvestmentExpenseAmt00
IRS990/InvestmentInJointVentureInd00
IRS990/IRPDocumentCnt00
IRS990/IRPDocumentW2GCnt00
IRS990/LegalDomicileStateCd0MD
IRS990/LoanOutstandingInd00
IRS990/LoansFromOfficersDirectorsGrp/BOYAmt00
IRS990/LoansFromOfficersDirectorsGrp/EOYAmt00
IRS990/LobbyingActivitiesInd01
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembershipDuesAmt011038
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingCashInd0X
IRS990/MinutesOfCommitteesInd00
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0Haystack Project brings together the stakeholders connected to rare and ultra rare conditions to educate and advocate for public policies that recognize the unique circumstances of extremely rare conditions, their diagnosis, treatment and care.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/MortgNotesPyblScrdInvstPropGrp/BOYAmt00
IRS990/MortgNotesPyblScrdInvstPropGrp/EOYAmt00
IRS990/NetAssetsOrFundBalancesBOYAmt0287268
IRS990/NetAssetsOrFundBalancesEOYAmt0382665
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt00
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt0287268
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt0382665
IRS990/NoncashContributionsAmt00
IRS990/NondeductibleContributionsInd00
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherExpensesGrp/Desc0Banking Fees
IRS990/OtherExpensesGrp/Desc1Outsourced Consulting
IRS990/OtherExpensesGrp/Desc2Research
IRS990/OtherExpensesGrp/Desc3Subscription
IRS990/OtherExpensesGrp/FundraisingAmt00
IRS990/OtherExpensesGrp/FundraisingAmt10
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt0780
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt10
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt20
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt30
IRS990/OtherExpensesGrp/ProgramServicesAmt00
IRS990/OtherExpensesGrp/ProgramServicesAmt1187501
IRS990/OtherExpensesGrp/ProgramServicesAmt21100
IRS990/OtherExpensesGrp/ProgramServicesAmt39066
IRS990/OtherExpensesGrp/TotalAmt0780
IRS990/OtherExpensesGrp/TotalAmt1187501
IRS990/OtherExpensesGrp/TotalAmt21100
IRS990/OtherExpensesGrp/TotalAmt39066
IRS990/OtherLiabilitiesGrp/BOYAmt00
IRS990/OtherRevenueTotalAmt00
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PoliticalCampaignActyInd00
IRS990/PrincipalOfficerNm0Chevese Turner
IRS990/PriorPeriodAdjustmentsAmt00
IRS990/ProfessionalFundraisingInd00
IRS990/ProgSrvcAccomActy2Grp/Desc0Engage consultants to draft comment letters in response to federal agency proposals and legislative requests for information which impact research development and patient access to treatments critical to rare and ultra rare conditions.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0152000
IRS990/ProgSrvcAccomActy2Grp/RevenueAmt00
IRS990/ProgSrvcAccomActy3Grp/Desc0Engage third party consultants to provide monthly and ad hoc calls with patient groups. Calls were focused on identifying issues related to systematic barriers to access to care and treatments. Consultants provided groups with guidance on the rules, regulations and laws that impact patient care including proposals currently pending with policy makers. Consultants helps collect, collate and compartmentalize which patient experiences related back to which current and pending law, regulations and proposals. Patient Groups were provided a forum from which they can learn from each other. As part of this effort, the Organization has created the Advocacy Empowerment Institute (AEI). The end goal of AEI is to better arm patients for the important role of self-advocacy. The organization has also created special member focused programs specifically tailored to address the needs and concerns of payors, minorities and rare cancer patients. Consultants also research, engage, moderate and sumarize a monthly speaker series.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt065697
IRS990/ProgSrvcAccomActy3Grp/RevenueAmt00
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYContributionsGrantsAmt0478580
IRS990/PYExcessBenefitTransInd00
IRS990/PYOtherExpensesAmt0361053
IRS990/PYProgramServiceRevenueAmt04127
IRS990/PYRevenuesLessExpensesAmt0118654
IRS990/PYSalariesCompEmpBnftPaidAmt03000
IRS990/PYTotalExpensesAmt0364053
IRS990/PYTotalRevenueAmt0482707
IRS990/ReconcilationRevenueExpnssAmt095397
IRS990/RegularMonitoringEnfrcInd00
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/RelatedOrganizationsAmt00
IRS990/RentalIncomeOrLossGrp/PersonalAmt00
IRS990/RentalIncomeOrLossGrp/RealAmt00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd00
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990/RevenueAmt00
IRS990ScheduleA/First5Years509Ind0X
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt0478562
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt0482707
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt0391539
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt094730
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt00
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt01447538
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt00
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt00
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt00
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt00
IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt00
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt00
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt00
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt00
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus3YearsAmt00
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt00
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt00
IRS990ScheduleA/PubliclySupportedOrg509a2Ind0X
IRS990ScheduleA/PublicSupportTotal509Amt01447538
IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt0478562
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt0482707
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt0391539
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt094730
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt00
IRS990ScheduleA/Total509Grp/TotalAmt01447538
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt0478562
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt0482707
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt0391539
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt094730
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt00
IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt01447538
IRS990/ScheduleBRequiredInd00
IRS990ScheduleC/DirectContactLegislatorsInd00
IRS990ScheduleC/GrantsOtherOrganizationsInd00
IRS990ScheduleC/MailingsMembersInd00
IRS990ScheduleC/MediaAdvertisementsInd00
IRS990ScheduleC/NotDescribedSection501c3Ind00
IRS990ScheduleC/OtherActivitiesInd00
IRS990ScheduleC/PaidStaffOrManagementInd01
IRS990ScheduleC/PublicationsOrBroadcastInd00
IRS990ScheduleC/RalliesDemonstrationsInd00
IRS990ScheduleC/SupplementalInformationDetail/ExplanationTxt0Occasional contact with House and Senate to educate and advocate for legislative efforts that support the mission of the organization.
IRS990ScheduleC/SupplementalInformationDetail/FormAndLineReferenceDesc0Schedule C, Part II-B, Line 1
IRS990ScheduleC/TotalLobbyingExpendituresAmt00
IRS990ScheduleC/VolunteersInd00
IRS990/ScheduleJRequiredInd00
IRS990/ScheduleORequiredInd01
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0All authority and actions are done by and through the board of directors.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1The organizations Treasurer, President and the entire board review the document and submit comments and changes to the consulting team preparing the document.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2Compensation for the President is determined by the Board of Directors. This process is completed annually and was completed at the beginning of the 2022 fiscal year.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3Relevant policy and financial documents are made available upon request to members and interested parities. In addition key policies and 990 filings are posted to the organization website.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990, Part VI, Section A, Line 8b
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Form 990, Part VI, Section B, Line 11b
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Form 990, Part VI, Section B, Line 15
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3Form 990, Part VI, Section C, Line 19
IRS990/SchoolOperatingInd00
IRS990/SignificantChangeInd00
IRS990/SignificantNewProgramSrvcInd00
IRS990/SubjectToExcsTaxNetInvstIncInd00
IRS990/SubjectToProxyTaxInd00
IRS990/SubjToTaxRmnrtnExPrchtPymtInd00
IRS990/TaxablePartyNotificationInd00
IRS990/TaxExemptBondLiabilitiesGrp/BOYAmt00
IRS990/TaxExemptBondLiabilitiesGrp/EOYAmt00
IRS990/TaxExemptBondsInd00
IRS990/TerminateOperationsInd00
IRS990/TotalAssetsBOYAmt0287268
IRS990/TotalAssetsEOYAmt0382665
IRS990/TotalAssetsGrp/BOYAmt0287268
IRS990/TotalAssetsGrp/EOYAmt0382665
IRS990/TotalCompGreaterThan150KInd00
IRS990/TotalContributionsAmt0476038
IRS990/TotalEmployeeCnt00
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt050
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt092894
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt0287697
IRS990/TotalFunctionalExpensesGrp/TotalAmt0380641
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesBOYAmt00
IRS990/TotalLiabilitiesEOYAmt00
IRS990/TotalLiabilitiesGrp/BOYAmt00
IRS990/TotalLiabilitiesGrp/EOYAmt00
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt0287268
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt0382665
IRS990/TotalOtherCompensationAmt00
IRS990/TotalOtherProgSrvcExpenseAmt00
IRS990/TotalOtherProgSrvcGrantAmt00
IRS990/TotalOtherProgSrvcRevenueAmt00
IRS990/TotalProgramServiceExpensesAmt0287697
IRS990/TotalProgramServiceRevenueAmt00
IRS990/TotalReportableCompFromOrgAmt03000
IRS990/TotalRevenueGrp/ExclusionAmt00
IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt00
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt0476038
IRS990/TotalRevenueGrp/UnrelatedBusinessRevenueAmt00
IRS990/TotalVolunteersCnt00
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt0287268
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt0382665
IRS990/TotReportableCompRltdOrgAmt00
IRS990/TrnsfrExmptNonChrtblRltdOrgInd00
IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd00
IRS990/UnsecuredNotesLoansPayableGrp/BOYAmt00
IRS990/UnsecuredNotesLoansPayableGrp/EOYAmt00
IRS990/USAddress/AddressLine1Txt0937 Emerson Park Dr
IRS990/USAddress/CityNm0Severna Park
IRS990/USAddress/StateAbbreviationCd0MD
IRS990/USAddress/ZIPCd021146
IRS990/VotingMembersGoverningBodyCnt07
IRS990/VotingMembersIndependentCnt07
IRS990/WebsiteAddressTxt0haystackproject.org
IRS990/WhistleblowerPolicyInd01
ReasonableCauseExplanation/ExplanationTxt0An extension request was filed and approved by the IRS.
ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/AuthenticationAssuranceLevelCd0AAL2
ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/LastSubmissionRqrOOBCd01
ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/OOBSecurityVerificationCd011
ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/ProfileEmailAddressChangeInd0X
ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/ProfilePasswordChangeInd0X
ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/TrustedCustomerCd00
ReturnHeader/BuildTS02023-04-26 12:10:37Z
ReturnHeader/BusinessOfficerGrp/PersonNm0Jennifer Wappaus
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0Treasurer
ReturnHeader/BusinessOfficerGrp/PhoneNum04107071419
ReturnHeader/BusinessOfficerGrp/SignatureDt02023-10-16
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0HAYSTACK PROJECT INC
ReturnHeader/Filer/BusinessNameControlTxt0HAYS
ReturnHeader/Filer/EIN0833367375
ReturnHeader/Filer/PhoneNum02023609985
ReturnHeader/Filer/USAddress/AddressLine1Txt0937 Emerson Dr
ReturnHeader/Filer/USAddress/CityNm0Severna Park

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2022 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$382,665
Liabilities
$0
Net assets
$382,665
Revenue
$476,038
Expenses
$380,641
Net income
$95,397
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.02$0.00$4.02$7.59$5.26$2.33
2023Detailed filing. Detailed filing data is available for this year.$1.75$0.00$1.75$2.27$4.35$2.08
2022Detailed filing. Detailed filing data is available for this year.$3.83$0.00$3.83$4.76$3.81$0.95
2021Detailed filing. Detailed filing data is available for this year.$2.87$0.00$2.87$4.83$3.64$1.19
2020Detailed filing. Detailed filing data is available for this year.$1.69$0.00$1.69$3.92$2.27$1.64
2019Summary only. Only limited summary data is available for this year.$0.04$0.00$0.04$0.95$0.90$0.04