Liabilities / Assets
46th percentile
Higher debt load relative to assets than 46% of similar nonprofits.
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
46th percentile
Higher debt load relative to assets than 46% of similar nonprofits.
Liabilities / Revenue
55th percentile
Higher debt load relative to revenue than 55% of similar nonprofits.
Net Margin
15th percentile
Higher net margin than 15% of similar nonprofits.
Top Officer Pay
75th percentile
Higher top officer pay than 75% of similar nonprofits.
Top officer pay equals 11.8% of source-year revenue.
Asset Growth
59th percentile
Faster asset growth than 59% of similar nonprofits.
Revenue Growth
87th percentile
Faster revenue growth than 87% of similar nonprofits.
Assets
$832,130
No earlier filing loaded for comparison.
Net Assets
$801,830
No earlier filing loaded for comparison.
Liabilities
$30,300
No earlier filing loaded for comparison.
Revenue
$507,986
No earlier filing loaded for comparison.
Expenses
$594,465
No earlier filing loaded for comparison.
Net Income
-$86,479
No earlier filing loaded for comparison.
Fightsma engages leading scientists and policymakers to pursue a cure for, and raises public awareness of spinal muscular atrophy (sma), a degenerative neuromuscular disease which is the leading genetic cause of death for children under 2. Approximately 1 in 40 people carry the gene for this disease, and about 1 in 10,000 live births are affected. In addition to funding vital scientific research, fightsma works to maintain an active dialog between the scientific research community, the patient community, and policymakers.
To educate the public about and to raise funds for research to develop a cure for spinal muscular atrophy.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Savings and Temporary Cash Investments | $555,550 | $465,795 | ▼ $89,755 |
| Cash and Non-Interest-Bearing Accounts | $207,348 | $337,208 | ▲ $129,860 |
| Land, Buildings, and Equipment, Net | $11,347 | $25,109 | ▲ $13,762 |
| Prepaid Expenses and Deferred Charges | $12,227 | - | - |
| Total Assets | $789,136 | $832,130 | ▲ $42,994 |
| Other Assets Total | $2,664 | $4,018 | ▲ $1,354 |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $21,647 | $30,300 | ▲ $8,653 |
| Total Liabilities | $21,647 | $30,300 | ▲ $8,653 |
| Net Assets / Fund Balance | |||
| Unrestricted Net Assets | $759,147 | $801,830 | ▲ $42,683 |
| Temporarily Rstr Net Assets | $8,342 | - | - |
| Total Net Assets Fund Balance | $767,489 | $801,830 | ▲ $34,341 |
| Total Liabilities and Net Assets / Fund Balance | $789,136 | $832,130 | ▲ $42,994 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Equipment | $25,109 | $38,145 | $63,254 |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Daniel Hayden | Interim Exec | PT | $60,000 | $60,000 |
| Name | Title |
|---|---|
| Michael Calise | Chairman |
| Bill Strong | Director |
| Duncan Elliott | Director |
| Joe Cueter | Director |
| Kathy Tompkins | Director |
| Martha Slay | Director |
| Rod Adams | Director |
| Terry Griffin | Director |
| Elise Finkner | Secretary |
| Joseph Slay | Treasurer |
| Line Item | Amount |
|---|---|
| Other Expenses | $291,312 |
| Salaries, Compensation, and Employee Benefits | $174,904 |
| Grants and Similar Amounts Paid | $128,249 |
| Total Fundraising Expense | $44,251 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Other Salaries and Wages | $58,326 | $32,729 | $15,582 | $106,637 |
| Grants to Domestic Orgs | $103,249 | - | - | $103,249 |
| Conferences and Meetings | $61,168 | $6,862 | - | $68,030 |
| Fees for Services Lobbying | $49,654 | $13,073 | $2,273 | $65,000 |
| Current Officers, Directors, Trustees, and Key Employees | $45,835 | $12,068 | $2,097 | $60,000 |
| Office Expenses | $12,974 | $38,569 | $8,301 | $59,844 |
| Occupancy | $10,713 | $10,627 | $8,419 | $29,759 |
| Fees for Services Accounting | $19,537 | $5,144 | $894 | $25,575 |
| Foreign Grants | $25,000 | - | - | $25,000 |
| Travel | $910 | $13,967 | $235 | $15,112 |
| Fees for Services Other | $9,293 | $2,447 | $425 | $12,165 |
| Payroll Taxes | $4,832 | $2,711 | $724 | $8,267 |
| Depreciation Depletion | $2,426 | $2,425 | - | $4,851 |
| Other Expenses | $2,664 | $161 | $1,427 | $1,427 |
| Total Functional Expenses | $406,581 | $143,633 | $44,251 | $594,465 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| 43-6003859 | - | 3 | Medical Research | $25,000 |
| 52-0591656 | - | 3 | Medical Research | $25,000 |
| 31-6401599 | - | 3 | Medical Research | $25,000 |
| 31-0833936 | - | 3 | Medical Research | $25,000 |
| Line Item | Amount |
|---|---|
| Fundraising Gross Income | $23,424 |
| Fundraising Direct Expenses | $1,371 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Event 1 | $23,424 | $23,424 | $1,371 | $22,053 |
| Total Events | $23,424 | $23,424 | $1,371 | $22,053 |
“Martha slay joseph slay director treasurer spouse”
“The chapters follow the same policies and procedures as the parent chapter. These policies and procedures are communicated annually to all chapters.”
“A copy of the form 990 was made available to the board of directors and was carefully reviewed prior to filing.”
“The board of directors has a conflict of interest policy which is set forth in the bylaws and is reviewed annually or when there is a need to consider the possible abstention of a board member from the decision making process. Each year, the board members must disclose any possible conflicts of interest and the remaining board members will determine how the situation should be addressed.”
“The board of directors determines salaries and approves a total budget for salary increases.”
“The governing documents are available upon request.”
“Net assets from affiliates 120,820”
“The organization follows fasb guidance for how uncertain tax positions should be recognized, measured, disclosed and presented in the financial statements. This requires the evaluation of tax positions taken or expected to be taken in the course of preparing the organization's tax returns to determine whether or not the tax positions are "more likely than not" of being sustained "when challenged" or "when examined" by the applicable tax authority. Tax positions not deemed to meet the more likely than not threshold would be recorded as a tax expense and liability in the current year. Management evaluated the organization's tax position and concluded that the organization had taken no uncertain tax positions that require adjustment to the financial statements to comply with the provisions of this guidance. The organization's tax returns from 2010 through 2012 are subject to examination by the internal revenue service, generally for three years after they were filed. The organization is not currently under audit by any tax jurisdiction.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | false |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 21647 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 30300 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | TO EDUCATE THE PUBLIC ABOUT AND TO RAISE FUNDS FOR RESEARCH TO DEVELOP A CURE FOR SPINAL MUSCULAR ATROPHY. |
| IRS990/AllOtherContributionsAmt | 0 | 485673 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/AuditCommitteeInd | 0 | true |
| IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1 | 0 | NET 30 INC |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 8047169070 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1 | 0 | 8016 STAPLES MILL ROAD |
| IRS990/BooksInCareOfDetail/USAddress/City | 0 | RICHMOND |
| IRS990/BooksInCareOfDetail/USAddress/State | 0 | VA |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCode | 0 | 23228 |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOfficerEntInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 207348 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 337208 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 2097 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 12068 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 45835 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 60000 |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | true |
| IRS990/CompensationProcessOtherInd | 0 | false |
| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | 6862 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 61168 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 68030 |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | true |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 485673 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 128249 |
| IRS990/CYInvestmentIncomeAmt | 0 | 260 |
| IRS990/CYOtherExpensesAmt | 0 | 291312 |
| IRS990/CYOtherRevenueAmt | 0 | 22053 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | -86479 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 174904 |
| IRS990/CYTotalExpensesAmt | 0 | 594465 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 44251 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 507986 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt | 0 | 2425 |
| IRS990/DepreciationDepletionGrp/ProgramServicesAmt | 0 | 2426 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 4851 |
| IRS990/Desc | 0 | RAISED PUBLIC AWARENESS REGARDING SPINAL MUSCULAR ATROPHY AND FUNDS FOR RESEARCH. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | false |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 3 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | true |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 278332 |
| IRS990/FamilyOrBusinessRlnInd | 0 | true |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FeesForServicesAccountingGrp/FundraisingAmt | 0 | 894 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 5144 |
| IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt | 0 | 19537 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 25575 |
| IRS990/FeesForServicesLobbyingGrp/FundraisingAmt | 0 | 2273 |
| IRS990/FeesForServicesLobbyingGrp/ManagementAndGeneralAmt | 0 | 13073 |
| IRS990/FeesForServicesLobbyingGrp/ProgramServicesAmt | 0 | 49654 |
| IRS990/FeesForServicesLobbyingGrp/TotalAmt | 0 | 65000 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 425 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 2447 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 9293 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 12165 |
| IRS990/ForeignActivitiesInd | 0 | false |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignGrantsGrp/ProgramServicesAmt | 0 | 25000 |
| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 25000 |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form1098CFiledInd | 0 | false |
| IRS990/Form8282PropertyDisposedOfInd | 0 | false |
| IRS990/Form8899Filedind | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 24.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 10 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | DANIEL HAYDEN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | ROD ADAMS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | JOE CUETER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | DUNCAN ELLIOTT |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | TERRY GRIFFIN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | MARTHA SLAY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | BILL STRONG |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | KATHY TOMPKINS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | MICHAEL CALISE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | JOSEPH SLAY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | ELISE FINKNER |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 60000 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | INTERIM EXEC |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | CHAIRMAN |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | TREASURER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | SECRETARY |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/FormationYr | 0 | 1991 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedBasisGrp/ConsolidatedBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | true |
| IRS990/FundraisingActivitiesInd | 0 | true |
| IRS990/FundraisingDirectExpensesAmt | 0 | 1371 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 23424 |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 11 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 103249 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 103249 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | true |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossReceiptsAmt | 0 | 509357 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | true |
| IRS990/IndependentAuditFinclStmtInd | 0 | false |
| IRS990/IndependentVotingMemberCnt | 0 | 10 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 260 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 260 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/IRPDocumentCnt | 0 | 6 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 38145 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 11347 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 25109 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 63254 |
| IRS990/LegalDomicileStateCd | 0 | VA |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | true |
| IRS990/LocalChaptersInd | 0 | true |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | true |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | TO EDUCATE THE PUBLIC ABOUT AND TO RAISE FUNDS FOR RESEARCH TO DEVELOP A CURE FOR SPINAL MUSCULAR ATROPHY. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | true |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 767489 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 801830 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 22053 |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OccupancyGrp/FundraisingAmt | 0 | 8419 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 10627 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 10713 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 29759 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 8301 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 38569 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 12974 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 59844 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsSFAS117Ind | 0 | X |
| IRS990/OtherAssetsTotalGrp/BOYAmt | 0 | 2664 |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 4018 |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 120820 |
| IRS990/OtherExpensesGrp/Desc | 0 | TELEPHONE |
| IRS990/OtherExpensesGrp/Desc | 1 | BANK CHARGES |
| IRS990/OtherExpensesGrp/Desc | 2 | DIRECT EXPENSES |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 1847 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 2027 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 2 | 1427 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 2850 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 161 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 2664 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 7361 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 2188 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 1427 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 15582 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 32729 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 58326 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 106637 |
| IRS990/OtherWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | false |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 724 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 2711 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 4832 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 8267 |
| IRS990/PoliciesReferenceChaptersInd | 0 | false |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 12227 |
| IRS990/PrincipalOfficerNm | 0 | DANIEL HAYDEN |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | AWARDED GRANTS FOR RESEARCH. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 128249 |
| IRS990/ProgSrvcAccomActy2Grp/GrantAmt | 0 | 128249 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 315586 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 50000 |
| IRS990/PYInvestmentIncomeAmt | 0 | 545 |
| IRS990/PYOtherExpensesAmt | 0 | 323467 |
| IRS990/PYOtherRevenueAmt | 0 | 2777 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | -233140 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 178581 |
| IRS990/PYTotalExpensesAmt | 0 | 552048 |
| IRS990/PYTotalRevenueAmt | 0 | 318908 |
| IRS990/QuidProQuoContributionsInd | 0 | false |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | false |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | -86479 |
| IRS990/RegularMonitoringEnfrcInd | 0 | true |
| IRS990/RelatedEntityInd | 0 | true |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | true |
| IRS990/ReportInvestmentsOtherSecInd | 0 | false |
| IRS990/ReportLandBuildingEquipmentInd | 0 | true |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | false |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 555550 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 465795 |
| IRS990ScheduleA/Form990ScheduleAPartIVGrp/ExplanationTxt | 0 | OTHER INCOME 3,235 |
| IRS990ScheduleA/Form990ScheduleAPartIVGrp/FormAndLineReferenceDesc | 0 | PART II, LINE 10 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 485673 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 315586 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 394715 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 734684 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 530760 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 2461418 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt | 0 | 260 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 545 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1289 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 1035 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 1379 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 4508 |
| IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt | 0 | 23424 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 1330 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1905 |
| IRS990ScheduleA/OtherIncome170Grp/TotalAmt | 0 | 3235 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.48690 |
| IRS990ScheduleA/PublicSupportPY170Pct | 0 | 0.54770 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 1202183 |
| IRS990ScheduleA/SubstantialContributorsTotAmt | 0 | 1259235 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind | 0 | X |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 485673 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 315586 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 394715 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 734684 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 530760 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 2461418 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 2469161 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | true |
| IRS990ScheduleC/AvgGrassrootsNontaxableGrp/CurrentYearAmt | 0 | 28594 |
| IRS990ScheduleC/AvgGrassrootsNontaxableGrp/CurrentYearMinus1Amt | 0 | 26952 |
| IRS990ScheduleC/AvgGrassrootsNontaxableGrp/CurrentYearMinus2Amt | 0 | 26238 |
| IRS990ScheduleC/AvgGrassrootsNontaxableGrp/CurrentYearMinus3Amt | 0 | 37286 |
| IRS990ScheduleC/AvgGrassrootsNontaxableGrp/TotalAmt | 0 | 119070 |
| IRS990ScheduleC/AvgLobbyingNontaxableAmountGrp/CurrentYearAmt | 0 | 114375 |
| IRS990ScheduleC/AvgLobbyingNontaxableAmountGrp/CurrentYearMinus1Amt | 0 | 107807 |
| IRS990ScheduleC/AvgLobbyingNontaxableAmountGrp/CurrentYearMinus2Amt | 0 | 104952 |
| IRS990ScheduleC/AvgLobbyingNontaxableAmountGrp/CurrentYearMinus3Amt | 0 | 149145 |
| IRS990ScheduleC/AvgLobbyingNontaxableAmountGrp/TotalAmt | 0 | 476279 |
| IRS990ScheduleC/AvgTotalLobbyingExpendGrp/CurrentYearAmt | 0 | 65152 |
| IRS990ScheduleC/AvgTotalLobbyingExpendGrp/CurrentYearMinus1Amt | 0 | 61157 |
| IRS990ScheduleC/AvgTotalLobbyingExpendGrp/CurrentYearMinus2Amt | 0 | 62751 |
| IRS990ScheduleC/AvgTotalLobbyingExpendGrp/CurrentYearMinus3Amt | 0 | 75585 |
| IRS990ScheduleC/AvgTotalLobbyingExpendGrp/TotalAmt | 0 | 264645 |
| IRS990ScheduleC/GrassrootsCeilingAmt | 0 | 178605 |
| IRS990ScheduleC/GrassrootsNontaxableGrp/FilingOrganizationsTotalAmt | 0 | 28594 |
| IRS990ScheduleC/LobbyingCeilingAmt | 0 | 714419 |
| IRS990ScheduleC/LobbyingNontaxableAmountGrp/FilingOrganizationsTotalAmt | 0 | 114375 |
| IRS990ScheduleC/OtherExemptPurposeExpendGrp/FilingOrganizationsTotalAmt | 0 | 530683 |
| IRS990ScheduleC/TotalDirectLobbyingGrp/FilingOrganizationsTotalAmt | 0 | 65152 |
| IRS990ScheduleC/TotalExemptPurposeExpendGrp/FilingOrganizationsTotalAmt | 0 | 595835 |
| IRS990ScheduleC/TotalLobbyingExpendGrp/FilingOrganizationsTotalAmt | 0 | 65152 |
| IRS990ScheduleD/EquipmentGrp/BookValueAmt | 0 | 25109 |
| IRS990ScheduleD/EquipmentGrp/DepreciationAmt | 0 | 38145 |
| IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt | 0 | 63254 |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 0 | THE ORGANIZATION FOLLOWS FASB GUIDANCE FOR HOW UNCERTAIN TAX POSITIONS SHOULD BE RECOGNIZED, MEASURED, DISCLOSED AND PRESENTED IN THE FINANCIAL STATEMENTS. THIS REQUIRES THE EVALUATION OF TAX POSITIONS TAKEN OR EXPECTED TO BE TAKEN IN THE COURSE OF PREPARING THE ORGANIZATION'S TAX RETURNS TO DETERMINE WHETHER OR NOT THE TAX POSITIONS ARE "MORE LIKELY THAN NOT" OF BEING SUSTAINED "WHEN CHALLENGED" OR "WHEN EXAMINED" BY THE APPLICABLE TAX AUTHORITY. TAX POSITIONS NOT DEEMED TO MEET THE MORE LIKELY THAN NOT THRESHOLD WOULD BE RECORDED AS A TAX EXPENSE AND LIABILITY IN THE CURRENT YEAR. MANAGEMENT EVALUATED THE ORGANIZATION'S TAX POSITION AND CONCLUDED THAT THE ORGANIZATION HAD TAKEN NO UNCERTAIN TAX POSITIONS THAT REQUIRE ADJUSTMENT TO THE FINANCIAL STATEMENTS TO COMPLY WITH THE PROVISIONS OF THIS GUIDANCE. THE ORGANIZATION'S TAX RETURNS FROM 2010 THROUGH 2012 ARE SUBJECT TO EXAMINATION BY THE INTERNAL REVENUE SERVICE, GENERALLY FOR THREE YEARS AFTER THEY WERE FILED. THE ORGANIZATION IS NOT CURRENTLY UNDER AUDIT BY ANY TAX JURISDICTION. |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | SCHEDULE D, PAGE 3, PART X |
| IRS990ScheduleD/TotalBookValueLandBuildingsAmt | 0 | 25109 |
| IRS990ScheduleF/BoycottCountriesInd | 0 | false |
| IRS990ScheduleF/ForeignCorpOwnershipInd | 0 | false |
| IRS990ScheduleF/ForeignPartnershipInd | 0 | false |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt | 0 | 25000 |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/MannerOfCashDisbursementTxt | 0 | CHECK |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt | 0 | MEDICAL RESEARCH |
| IRS990ScheduleF/InterestInForeignTrustInd | 0 | false |
| IRS990ScheduleF/PassiveForeignInvestmestCoInd | 0 | false |
| IRS990ScheduleF/SupplementalInformationDetail/ExplanationTxt | 0 | THE ORGANIZATION REQUIRES GRANT RECIPIENTS TO PROVIDE STATUS REPORTS AND ANNUAL REPORTS DURING THE GRANT PERIOD. THE ORGANIZATION MAY ALSO REQUEST SITE VISITS AND DATA STUDY TO CONFIRM THE RESEARCH IS BEING CONDUCTED IN CONFORMANCE WITH THE ORGANIZATION'S GOALS. |
| IRS990ScheduleF/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | SCHEDULE F, PAGE 1, PART I, LINE 2 |
| IRS990ScheduleF/Total501c3OrgCnt | 0 | 1 |
| IRS990ScheduleF/TransferToForeignCorpInd | 0 | false |
| IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt | 0 | 1371 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt | 0 | 23424 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt | 0 | 23424 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt | 0 | 23424 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt | 0 | 23424 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NameOfEvent1Amt | 0 | BOWL-A-THON |
| IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt | 0 | 22053 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt | 0 | 1371 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt | 0 | 1371 |
| IRS990ScheduleI/GrantRecordsMaintainedInd | 0 | true |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 0 | 25000 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 1 | 25000 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 2 | 25000 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 3 | 25000 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 0 | 3 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 1 | 3 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 2 | 3 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 3 | 3 |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 0 | MEDICAL RESEARCH |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 1 | MEDICAL RESEARCH |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 2 | MEDICAL RESEARCH |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 3 | MEDICAL RESEARCH |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1 | 0 | UNIVERSITY OF MISSOURI |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1 | 1 | JOHNS HOPKINS |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1 | 2 | OHIO STATE UNIVERSITY |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1 | 3 | CINCINNATI CHILDREN'S HOSPITAL |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 0 | 436003859 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 1 | 520591656 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 2 | 316401599 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 3 | 310833936 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1 | 0 | 310 JESSE HALL |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1 | 1 | 855 N WOLFE ST |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1 | 2 | 1960 KENNY RD |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1 | 3 | 3333 BURNET AVE |
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Displayed year
2013 • Form 990Detailed filing. Detailed filing data is available for this year.