Civic Intelligence

Fightsma Inc

990 • Fiscal year 2016 • EIN 54-1610701

Jan 01, 2016 to Dec 31, 2016 • Filed on Jul 13, 2017

Organization ProfileWWW.FIGHTSMA.ORG
8016 Staples Mill RoadRichmond, VA 23228

(703) 299-1144

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

75th percentile

0.07x

Higher debt load relative to assets than 75% of similar nonprofits.

2016 filings • 501(c)3 • <$500k nonprofits • Source year 2016

Liabilities / Revenue

81st percentile

0.09x

Higher debt load relative to revenue than 81% of similar nonprofits.

2016 filings • 501(c)3 • <$500k nonprofits • Source year 2016

Net Margin

4th percentile

-143%

Higher net margin than 4% of similar nonprofits.

2016 filings • 501(c)3 • <$500k nonprofits • Source year 2016

Top Officer Pay

75th percentile

$0

Higher top officer pay than 75% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2016 filings • 501(c)3 • <$500k nonprofits • Source year 2016

Asset Growth

9th percentile

-49%

Faster asset growth than 9% of similar nonprofits.

2016 filings • 501(c)3 • <$500k nonprofits • Annualized from 2015 to 2016

Revenue Growth

5th percentile

-70%

Faster revenue growth than 5% of similar nonprofits.

2016 filings • 501(c)3 • <$500k nonprofits • Annualized from 2015 to 2016

Balance Sheet
Liabilities / Assets75th percentile

Assets

Down

$298,799

Down $284,712 (-49%) from 2015

Net Assets

Down

$276,791

Down $268,554 (-49%) from 2015

Liabilities

Down

$22,008

Down $16,158 (-42%) from 2015

Revenue And Expenses
Liabilities / Revenue81st percentileNet Margin4th percentile

Revenue

Down

$235,119

Down $537,784 (-70%) from 2015

Expenses

Down

$571,317

Down $132,638 (-19%) from 2015

Net Income

Down

-$336,198

Down $405,146 (-588%) from 2015

Historical Trend

Balance Sheet Trend

Asset Growth9th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.0M$500K$0Assets 2013: $832,130Liabilities 2013: $30,300Net Assets 2013: $801,8302013Assets 2014: $503,433Liabilities 2014: $38,594Net Assets 2014: $464,8392014Assets 2015: $583,511Liabilities 2015: $38,166Net Assets 2015: $545,3452015Assets 2016: $298,799Liabilities 2016: $22,008Net Assets 2016: $276,7912016Assets 2017: $0Liabilities 2017: $0Net Assets 2017: $02017

Highlighted filing

2016

Assets$298,799
Liabilities$22,008
Net Assets$276,791
Open 2016 Filing

Operations Trend

Revenue Growth5th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.0M$500K$0-$500K-$1.0MRevenue 2013: $507,986Expenses 2013: $594,465Net Income 2013: -$86,4792013Revenue 2014: $183,232Expenses 2014: $735,425Net Income 2014: -$552,1932014Revenue 2015: $772,903Expenses 2015: $703,955Net Income 2015: $68,9482015Revenue 2016: $235,119Expenses 2016: $571,317Net Income 2016: -$336,1982016Revenue 2017: $17,956Expenses 2017: $316,450Net Income 2017: -$298,4942017

Highlighted filing

2016

Revenue$235,119
Expenses$571,317
Net Income-$336,198
Open 2016 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2016 to Dec 31, 2016
Signed
Jul 13, 2017
Return Version
2016v3.0
Gross Receipts
$235,119
Mission and Program Overview

Mission

Fightsma engages leading scientists and policymakers to pursue a cure for, and raises public awareness of spinal muscular atrophy (sma), a degenerative neuromuscular disease which is the leading genetic cause of death for children under 2. Approximately 1 in 40 people carry the gene for this disease, and about 1 in 10,000 live births are affected. In addition to funding vital scientific research, fightsma works to maintain an active dialog between the scientific research community, the patient community, and policymakers.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$120,724$154,857▲ $34,133
Savings and Temporary Cash Investments$225,988$123,072▼ $102,916
Pledges and Grants Receivable$100,000--
Land, Buildings, and Equipment, Net$45,546$18,342▼ $27,204
Prepaid Expenses and Deferred Charges$91,253$2,528▼ $88,725
Total Assets$583,511$298,799▼ $284,712
Liabilities
Accounts Payable and Accrued Expenses$38,166$22,008▼ $16,158
Total Liabilities$38,166$22,008▼ $16,158
Net Assets / Fund Balance
Unrestricted Net Assets$312,845$231,791▼ $81,054
Temporarily Rstr Net Assets$232,500$45,000▼ $187,500
Total Net Assets Fund Balance$545,345$276,791▼ $268,554
Total Liabilities and Net Assets / Fund Balance$583,511$298,799▼ $284,712

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$18,342$28,240$46,582
Compensation and Service Providers
Top Officer Pay75th percentile

Board Members and Trustees

NameTitle
Joseph SlayChairman
Terry GriffinVice Chairma
Bill StrongDirector
Kathy TompkinsDirector
Martha SlayDirector
Michael CaliseDirector
Rod AdamsDirector
Shawn LaceyDirector
Tracy LaceyDirector
Elise FinknerSecretary
Deanna GriffinTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$234,959
Program Service Revenue
$0
Investment Income
$99
Other Revenue
$61
All Other Contributions
$234,959
Change in Net Assets
$-336,198
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$303,729
Other Expenses$267,588
Total Fundraising Expense$10,203
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$284,146--$284,146
Conferences and Meetings$55,960$13,629-$69,589
Fees for Services Lobbying$46,689$11,831$1,480$60,000
Fees for Services Other$36,885$9,346$1,169$47,400
Office Expenses$17,327$9,901$4,495$31,723
Fees for Services Accounting$20,526$5,202$651$26,379
Foreign Grants$19,583--$19,583
Depreciation Depletion$6,554$6,554-$13,108
Other Expenses$904$713$188$1,805
Travel$1,222-$213$1,435
Total Functional Expenses$496,844$64,270$10,203$571,317
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
University of MissouriColumbia, MO3Medical Research$152,707
The Trustees of Colombia UnivNew York, NY3Medical Research$55,000
The Trustees of Indiana UnivIndianapolis, IN3Medical Research$27,500
Henry M Jackson FoundationBethesda, MD3Medical Research$20,834
Ohio State UniversityColumbus, OH3Medical Research$19,583
NATIONWIDE CHILDREN'S HOSPITALColumbus, OH3Medical Research$8,522

International Compliance

Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 2

“Martha slay joseph slay director chair spouse terry griffin deanna griffin vice-chair treasurer spouse tracy lacey shawn lacey director director spouse elise finkner joseph slay secretary chair siblings”

Form 990, Page 6, Part VI, Line 10B

“The chapters follow the same policies and procedures as the parent chapter. These policies and procedures are communicated annually to all chapters.”

Form 990, Page 6, Part VI, Line 11B

“A copy of the form 990 was made available to the board of directors and was carefully reviewed prior to filing.”

Form 990, Page 6, Part VI, Line 12C

“The board of directors has a conflict of interest policy which is set forth in the bylaws and is reviewed annually or when there is a need to consider the possible abstention of a board member from the decision making process. Each year, the board members must disclose any possible conflicts of interest and the remaining board members will determine how the situation should be addressed.”

Form 990, Page 6, Part VI, Line 19

“The governing documents are available upon request.”

Filing and Contact Details

Filer

Filer Name
Fightsma Inc
EIN
54-1610701
Phone
7032991144
Address
8016 STAPLES MILL ROAD, RICHMOND, VA 23228

Signing Officer

Name
Deanna Griffin
Title
Treasurer
Phone
8046988820
Signed
2017-07-13
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Deanna Griffin
Formed
1991
Legal Domicile
Va
Voting Board Members
11
Independent Board Members
11
Employees
0
Volunteers
20

Preparer

Firm
Wellscoleman
Address
5004 MONUMENT AVE, RICHMOND, VA 23230
Preparer
Phyllis S Mutchnick
Phone
8043581150
Supplemental Narrative

Additional Explanations

FORM 990 - ORGANIZATION'S MISSION

“Fightsma engages leading scientists and policymakers to pursue a cure for, and raises public awareness of spinal muscular atrophy (sma), a degenerative neuromuscular disease which is the leading genetic cause of death for children under 2. Approximately 1 in 40 people carry the gene for this disease, and about 1 in 10,000 live births are affected. In addition to funding vital scientific research, fightsma works to maintain an active dialog between the scientific research community, the patient community, and policymakers.”

Form 990, Part XI, Line 9

“Transfer of cash assets from subs 67,644”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ProgSrvcAccomActy2Grp/Desc0FIGHTSMA ENGAGES IN A BROAD RANGE OF PROMISING RESEARCH EFFORTS. GRANTS ARE GIVEN TO ESTABLISHED SCIENTISTS/RESEARCH CENTERS WITH A TARGETED FOCUS ON RESEARCH THAT BRING PATIENTS CLOSER TO A TREATMENT FOR THE DISEASE. IN ADDITION, FIGHTSMA PARTNERS WITH THE GWENDOLYN STRONG FOUNDATION TO INSPIRE A NEW GENERATION OF SMA RESEARCHERS THROUGH THE EMERGING INVESTIGATOR AWARDS (3 GIVEN ANNUALLY), AWARDED TO EMERGING SCIENTISTS PROPOSING NOVEL RESEARCH IN THE SMA REALM.
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IRS990/PYGrantsAndSimilarPaidAmt0266366
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IRS990/PYOtherExpensesAmt0398422
IRS990/PYOtherRevenueAmt01860
IRS990/PYRevenuesLessExpensesAmt068948
IRS990/PYSalariesCompEmpBnftPaidAmt039167
IRS990/PYTotalExpensesAmt0703955
IRS990/PYTotalRevenueAmt0772903
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IRS990/ReconcilationRevenueExpnssAmt0-336198
IRS990/RegularMonitoringEnfrcInd0true
IRS990/RelatedEntityInd0true
IRS990/RelatedOrganizationCtrlEntInd0true
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IRS990/ReportLandBuildingEquipmentInd0true
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IRS990/ReportProgramRelatedInvstInd0false
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IRS990ScheduleA/Form990ScheduleAPartVIGrp/ExplanationTxt0OTHER INCOME 1,330
IRS990ScheduleA/Form990ScheduleAPartVIGrp/FormAndLineReferenceDesc0PART II, LINE 10
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IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt0776359
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0182493
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0485673
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0315586
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt01995070
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt099
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt063
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt0160
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt0260
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt0545
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt01127
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearAmt061
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus4YearsAmt01330
IRS990ScheduleA/OtherIncome170Grp/TotalAmt01391
IRS990ScheduleA/PublicOrganization170Ind0X
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IRS990ScheduleA/PublicSupportPY170Pct00.40750
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IRS990ScheduleA/SubstantialContributorsTotAmt01099047
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IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0485673
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0315586
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt01995070
IRS990ScheduleA/TotalSupportAmt01997588
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IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
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IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd0true
IRS990ScheduleC/AvgGrassrootsNontaxableGrp/CurrentYearAmt027674
IRS990ScheduleC/AvgGrassrootsNontaxableGrp/CurrentYearMinus1Amt032422
IRS990ScheduleC/AvgGrassrootsNontaxableGrp/CurrentYearMinus2Amt033829
IRS990ScheduleC/AvgGrassrootsNontaxableGrp/CurrentYearMinus3Amt028594
IRS990ScheduleC/AvgGrassrootsNontaxableGrp/TotalAmt0122519
IRS990ScheduleC/AvgLobbyingNontaxableAmountGrp/CurrentYearAmt0110697
IRS990ScheduleC/AvgLobbyingNontaxableAmountGrp/CurrentYearMinus1Amt0129686
IRS990ScheduleC/AvgLobbyingNontaxableAmountGrp/CurrentYearMinus2Amt0135317
IRS990ScheduleC/AvgLobbyingNontaxableAmountGrp/CurrentYearMinus3Amt0114375
IRS990ScheduleC/AvgLobbyingNontaxableAmountGrp/TotalAmt0490075
IRS990ScheduleC/AvgTotalLobbyingExpendGrp/CurrentYearAmt060000
IRS990ScheduleC/AvgTotalLobbyingExpendGrp/CurrentYearMinus1Amt060000
IRS990ScheduleC/AvgTotalLobbyingExpendGrp/CurrentYearMinus2Amt060000
IRS990ScheduleC/AvgTotalLobbyingExpendGrp/CurrentYearMinus3Amt065152
IRS990ScheduleC/AvgTotalLobbyingExpendGrp/TotalAmt0245152
IRS990ScheduleC/GrassrootsCeilingAmt0183779
IRS990ScheduleC/GrassrootsNontaxableGrp/FilingOrganizationsTotalAmt027674
IRS990ScheduleC/LobbyingCeilingAmt0735113
IRS990ScheduleC/LobbyingNontaxableAmountGrp/FilingOrganizationsTotalAmt0110697
IRS990ScheduleC/OtherExemptPurposeExpendGrp/FilingOrganizationsTotalAmt0511316
IRS990ScheduleC/TotalDirectLobbyingGrp/FilingOrganizationsTotalAmt060000
IRS990ScheduleC/TotalExemptPurposeExpendGrp/FilingOrganizationsTotalAmt0571316
IRS990ScheduleC/TotalLobbyingExpendGrp/FilingOrganizationsTotalAmt060000
IRS990ScheduleD/EquipmentGrp/BookValueAmt018342
IRS990ScheduleD/EquipmentGrp/DepreciationAmt028240
IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt046582
IRS990ScheduleD/TotalBookValueLandBuildingsAmt018342
IRS990ScheduleF/BoycottCountriesInd0false
IRS990ScheduleF/ForeignCorpOwnershipInd0false
IRS990ScheduleF/ForeignPartnershipInd0false
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt019583
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/MannerOfCashDisbursementTxt0CHECK
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt0MEDICAL RESEARCH
IRS990ScheduleF/InterestInForeignTrustInd0false
IRS990ScheduleF/PassiveForeignInvestmestCoInd0false
IRS990ScheduleF/SupplementalInformationDetail/ExplanationTxt0THE ORGANIZATION REQUIRES GRANT RECIPIENTS TO PROVIDE STATUS REPORTS AND ANNUAL REPORTS DURING THE GRANT PERIOD. THE ORGANIZATION MAY ALSO REQUEST SITE VISITS AND DATA STUDY TO CONFIRM THE RESEARCH IS BEING CONDUCTED IN CONFORMANCE WITH THE ORGANIZATION'S GOALS.
IRS990ScheduleF/SupplementalInformationDetail/FormAndLineReferenceDesc0SCHEDULE F, PAGE 1, PART I, LINE 2
IRS990ScheduleF/Total501c3OrgCnt01
IRS990ScheduleF/TransferToForeignCorpInd0false
IRS990ScheduleI/GrantRecordsMaintainedInd0true
IRS990ScheduleI/RecipientTable/CashGrantAmt020834
IRS990ScheduleI/RecipientTable/CashGrantAmt18522
IRS990ScheduleI/RecipientTable/CashGrantAmt219583
IRS990ScheduleI/RecipientTable/CashGrantAmt355000
IRS990ScheduleI/RecipientTable/CashGrantAmt427500
IRS990ScheduleI/RecipientTable/CashGrantAmt5152707
IRS990ScheduleI/RecipientTable/IRCSectionDesc03
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IRS990ScheduleI/RecipientTable/IRCSectionDesc53
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0MEDICAL RESEARCH
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt1MEDICAL RESEARCH
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt2MEDICAL RESEARCH
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt3MEDICAL RESEARCH
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt4MEDICAL RESEARCH
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt5MEDICAL RESEARCH
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0HENRY M JACKSON FOUNDATION
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1NATIONWIDE CHILDREN'S HOSPITAL
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt2OHIO STATE UNIVERSITY
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt3THE TRUSTEES OF COLOMBIA UNIV
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt4THE TRUSTEES OF INDIANA UNIV
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt5UNIVERSITY OF MISSOURI
IRS990ScheduleI/RecipientTable/RecipientEIN0521317896
IRS990ScheduleI/RecipientTable/RecipientEIN1311036370
IRS990ScheduleI/RecipientTable/RecipientEIN2316401599
IRS990ScheduleI/RecipientTable/RecipientEIN3135598093
IRS990ScheduleI/RecipientTable/RecipientEIN4356018940
IRS990ScheduleI/RecipientTable/RecipientEIN5436003859
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt06720-A ROCKLEDGE DR STE 100
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt1700 CHILDRENS DRIVE
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt21960 KENNY RD
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt3535 WEST 116TH STREET
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt4501 INDIANA AVE 100
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt5316 UNIVERSITY HALL
IRS990ScheduleI/RecipientTable/USAddress/CityNm0BETHESDA
IRS990ScheduleI/RecipientTable/USAddress/CityNm1COLUMBUS
IRS990ScheduleI/RecipientTable/USAddress/CityNm2COLUMBUS
IRS990ScheduleI/RecipientTable/USAddress/CityNm3NEW YORK
IRS990ScheduleI/RecipientTable/USAddress/CityNm4INDIANAPOLIS
IRS990ScheduleI/RecipientTable/USAddress/CityNm5COLUMBIA
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0MD
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd1OH
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IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd4IN
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IRS990ScheduleI/RecipientTable/USAddress/ZIPCd020817
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd143205
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd243210
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd310027

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2016 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$298,799
Liabilities
$22,008
Net assets
$276,791
Revenue
$235,119
Expenses
$571,317
Net income
-$336,198
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.00$0.00$0.00$0.18$3.16$2.98
2016Detailed filing. Detailed filing data is available for this year.$2.99$0.22$2.77$2.35$5.71$3.36
2015XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$5.84$0.38$5.45$7.73$7.04$0.69
2014Detailed filing. Detailed filing data is available for this year.$5.03$0.39$4.65$1.83$7.35$5.52
2013Detailed filing. Detailed filing data is available for this year.$8.32$0.30$8.02$5.08$5.94$0.86