Civic Intelligence

Fightsma Inc

990 • Fiscal year 2017 • EIN 54-1610701

Jan 01, 2017 to Dec 31, 2017 • Filed on May 11, 2018

Organization ProfileWWW.FIGHTSMA.ORG (NO LONGER ACTIVE)
8814 Fargo Road Suite 225Richmond, VA 23229

(847) 421-1346

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

Score unavailable

No value available

Liabilities-to-assets requires both liabilities and assets on this filing.

Source year 2017

Liabilities / Revenue

56th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2017 filings • 501(c)3 • <$500k nonprofits • Source year 2017

Net Margin

1st percentile

-1662%

Higher net margin than 1% of similar nonprofits.

2017 filings • 501(c)3 • <$500k nonprofits • Source year 2017

Top Officer Pay

76th percentile

$0

Higher top officer pay than 76% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2017 filings • 501(c)3 • <$500k nonprofits • Source year 2017

Asset Growth

2nd percentile

-100%

Faster asset growth than 2% of similar nonprofits.

2017 filings • 501(c)3 • <$500k nonprofits • Annualized from 2016 to 2017

Revenue Growth

2nd percentile

-92%

Faster revenue growth than 2% of similar nonprofits.

2017 filings • 501(c)3 • <$500k nonprofits • Annualized from 2016 to 2017

Balance Sheet
Liabilities / AssetsScore unavailable

Assets

Down

$0

Down $298,799 (-100%) from 2016

Net Assets

Down

$0

Down $276,791 (-100%) from 2016

Liabilities

Down

$0

Down $22,008 (-100%) from 2016

Revenue And Expenses
Liabilities / Revenue56th percentileNet Margin1st percentile

Revenue

Down

$17,956

Down $217,163 (-92%) from 2016

Expenses

Down

$316,450

Down $254,867 (-45%) from 2016

Net Income

Up

-$298,494

Up $37,704 (+11%) from 2016

Historical Trend

Balance Sheet Trend

Asset Growth2nd percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.0M$500K$0Assets 2013: $832,130Liabilities 2013: $30,300Net Assets 2013: $801,8302013Assets 2014: $503,433Liabilities 2014: $38,594Net Assets 2014: $464,8392014Assets 2015: $583,511Liabilities 2015: $38,166Net Assets 2015: $545,3452015Assets 2016: $298,799Liabilities 2016: $22,008Net Assets 2016: $276,7912016Assets 2017: $0Liabilities 2017: $0Net Assets 2017: $02017

Highlighted filing

2017

Assets$0
Liabilities$0
Net Assets$0
Open 2017 Filing

Operations Trend

Revenue Growth2nd percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.0M$500K$0-$500K-$1.0MRevenue 2013: $507,986Expenses 2013: $594,465Net Income 2013: -$86,4792013Revenue 2014: $183,232Expenses 2014: $735,425Net Income 2014: -$552,1932014Revenue 2015: $772,903Expenses 2015: $703,955Net Income 2015: $68,9482015Revenue 2016: $235,119Expenses 2016: $571,317Net Income 2016: -$336,1982016Revenue 2017: $17,956Expenses 2017: $316,450Net Income 2017: -$298,4942017

Highlighted filing

2017

Revenue$17,956
Expenses$316,450
Net Income-$298,494
Open 2017 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2017 to Dec 31, 2017
Signed
May 11, 2018
Return Version
2017v2.3
Gross Receipts
$17,956
Mission and Program Overview

Mission

Fightsma engages leading scientists and policymakers to pursue a cure for, and raises public awareness of spinal muscular atrophy (sma), a degenerative neuromuscular disease which is the leading genetic cause of death for children under 2. Approximately 1 in 40 people carry the gene for this disease, and about 1 in 10,000 live births are affected. In addition to funding vital scientific research, fightsma works to maintain an active dialog between the scientific research community, the patient community, and policymakers.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$154,857--
Savings and Temporary Cash Investments$123,072--
Land, Buildings, and Equipment, Net$18,342--
Prepaid Expenses and Deferred Charges$2,528--
Total Assets$298,799$0▼ $298,799
Liabilities
Accounts Payable and Accrued Expenses$22,008--
Total Liabilities$22,008$0▼ $22,008
Net Assets / Fund Balance
Unrestricted Net Assets$231,791--
Temporarily Rstr Net Assets$45,000--
Total Net Assets Fund Balance$276,791$0▼ $276,791
Total Liabilities and Net Assets / Fund Balance$298,799$0▼ $298,799
Compensation and Service Providers
Top Officer Pay76th percentile

Board Members and Trustees

NameTitle
Joseph SlayChairman
Terry GriffinVice Chairma
Bill StrongDirector
Kathy TompkinsDirector
Martha SlayDirector
Michael CaliseDirector
Rod AdamsDirector
Shawn LaceyDirector
Tracy LaceyDirector
Elise FinknerSecretary
Deanna GriffinTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$17,916
Program Service Revenue
$0
Investment Income
$40
Other Revenue
$0
All Other Contributions
$17,916
Change in Net Assets
$-298,494
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$191,450
Grants and Similar Amounts Paid$125,000
Total Fundraising Expense$4,789
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$125,000--$125,000
Fees for Services Lobbying$70,089$13,180$1,731$85,000
Fees for Services Accounting$15,068$2,833$372$18,273
Fees for Services Other$12,018$2,260$297$14,575
Depreciation Depletion$6,411$6,411-$12,822
Office Expenses$1,441$7,495$720$9,656
Other Expenses$825$1,264$1,497$1,497
Total Functional Expenses$275,458$36,203$4,789$316,450
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
The Trustees of Indiana UnivIndianapolis, IN3Medical Research$62,500
University of MissouriColumbia, MO3Medical Research$62,500
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 2

“Martha slay joseph slay director chair spouse terry griffin deanna griffin vice-chair treasurer spouse tracy lacey shawn lacey director director spouse elise finkner joseph slay secretary chair siblings”

Form 990, Page 6, Part VI, Line 11B

“A copy of the form 990 was made available to the board of directors and was carefully reviewed prior to filing.”

Form 990, Page 6, Part VI, Line 12C

“The board of directors has a conflict of interest policy which is set forth in the bylaws and is reviewed annually or when there is a need to consider the possible abstention of a board member from the decision making process. Each year, the board members must disclose any possible conflicts of interest and the remaining board members will determine how the situation should be addressed.”

Form 990, Page 6, Part VI, Line 19

“The governing documents are available upon request.”

Filing and Contact Details

Filer

Filer Name
Fightsma Inc
EIN
54-1610701
Phone
8474211346
Address
8814 FARGO ROAD SUITE 225, RICHMOND, VA 23229

Signing Officer

Name
Deanna Griffin
Title
Treasurer
Phone
8046988820
Signed
2018-05-11
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Deanna Griffin
Formed
1991
Legal Domicile
Va
Voting Board Members
11
Independent Board Members
11
Employees
0
Volunteers
12

Preparer

Firm
Wellscoleman
Address
5004 MONUMENT AVE, RICHMOND, VA 23230
Preparer
Phyllis S Mutchnick
Phone
8043581150
Supplemental Narrative

Additional Explanations

FORM 990 - ORGANIZATION'S MISSION

“Fightsma engages leading scientists and policymakers to pursue a cure for, and raises public awareness of spinal muscular atrophy (sma), a degenerative neuromuscular disease which is the leading genetic cause of death for children under 2. Approximately 1 in 40 people carry the gene for this disease, and about 1 in 10,000 live births are affected. In addition to funding vital scientific research, fightsma works to maintain an active dialog between the scientific research community, the patient community, and policymakers.”

Form 990, Part XI, Line 9

“Elimination of accounts payable 21,703”

Raw XML AppendixShowing 400 of 447 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd0false
IRS990/AccountsPayableAccrExpnssGrp/BOYAmt022008
IRS990/ActivitiesConductedPrtshpInd0false
IRS990/ActivityOrMissionDesc0FIGHTSMA ENGAGES LEADING SCIENTISTS AND POLICYMAKERS TO PURSUE A CURE FOR, AND RAISES PUBLIC AWARENESS OF SPINAL MUSCULAR ATROPHY (SMA), A DEGENERATIVE NEUROMUSCULAR DISEASE WHICH IS THE LEADING GENETIC CAUSE OF DEATH FOR CHILDREN UNDER 2. APPROXIMATELY 1 IN 40 PEOPLE CARRY THE GENE FOR THIS DISEASE, AND ABOUT 1 IN 10,000 LIVE BIRTHS ARE AFFECTED. IN ADDITION TO FUNDING VITAL SCIENTIFIC RESEARCH, FIGHTSMA WORKS TO MAINTAIN AN ACTIVE DIALOG BETWEEN THE SCIENTIFIC RESEARCH COMMUNITY, THE PATIENT COMMUNITY, AND POLICYMAKERS.
IRS990/AddressChangeInd0X
IRS990/AllOtherContributionsAmt017916
IRS990/AnnualDisclosureCoveredPrsnInd0true
IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt0NET 30 INC
IRS990/BooksInCareOfDetail/PhoneNum08047169070
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt08016 STAPLES MILL ROAD
IRS990/BooksInCareOfDetail/USAddress/CityNm0RICHMOND
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0VA
IRS990/BooksInCareOfDetail/USAddress/ZIPCd023228
IRS990/BusinessRlnWithFamMemInd0false
IRS990/BusinessRlnWithOfficerEntInd0false
IRS990/BusinessRlnWithOrgMemInd0false
IRS990/CashNonInterestBearingGrp/BOYAmt0154857
IRS990/ChangeToOrgDocumentsInd0false
IRS990/CollectionsOfArtInd0false
IRS990/CompensationFromOtherSrcsInd0false
IRS990/CompensationProcessCEOInd0false
IRS990/CompensationProcessOtherInd0false
IRS990/ConflictOfInterestPolicyInd0true
IRS990/ConservationEasementsInd0false
IRS990/ConsolidatedAuditFinclStmtInd0false
IRS990/ContractTerminationInd0X
IRS990/CreditCounselingInd0false
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt017916
IRS990/CYGrantsAndSimilarPaidAmt0125000
IRS990/CYInvestmentIncomeAmt040
IRS990/CYOtherExpensesAmt0191450
IRS990/CYOtherRevenueAmt00
IRS990/CYProgramServiceRevenueAmt00
IRS990/CYRevenuesLessExpensesAmt0-298494
IRS990/CYSalariesCompEmpBnftPaidAmt00
IRS990/CYTotalExpensesAmt0316450
IRS990/CYTotalFundraisingExpenseAmt04789
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt017956
IRS990/DecisionsSubjectToApprovaInd0false
IRS990/DeductibleArtContributionInd0false
IRS990/DeductibleNonCashContriInd0false
IRS990/DelegationOfMgmtDutiesInd0false
IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt06411
IRS990/DepreciationDepletionGrp/ProgramServicesAmt06411
IRS990/DepreciationDepletionGrp/TotalAmt012822
IRS990/Desc0FIGHTSMA BRINGS TOGETHER THE WORLDS LEADING SMA SCIENTISTS TO COLLABORATE ON THE STATE OF EXISTING RESEARCH ON SMA AND PURSUE FUNDING FOR THAT RESEARCH. FIGHTSMA ALSO EDUCATES PATIENTS AND FAMILIES ABOUT PROMISING RESEARCH AND CLINICAL TRIALS - AND STAYS ENGAGED WITH PUBLISHED RESEARCH UPDATES DURING THE YEAR. FIGHTSMA ACTIVELY ENGAGES GOVERNMENT LEADERS AND POLICY MAKERS TO BUILD SUPPORT FOR PEDIATRIC RESEARCH. FINALLY, FIGHTSMA PROVIDES PATIENTS AND FAMILIES WITH RESOURCES (ONLINE, IN SOCIAL MEDIA, AND IN PRINT) TO UNDERSTAND SMA AND WHAT THEY CAN DO TO LIVE WITH THE DISEASE, AND HELP IN THE FIGHT FOR A CURE.
IRS990/DescribedInSection501c3Ind0true
IRS990/DisregardedEntityInd0false
IRS990/DocumentRetentionPolicyInd0false
IRS990/DonorAdvisedFundInd0false
IRS990/ElectionOfBoardMembersInd0false
IRS990/EmployeeCnt00
IRS990/EngagedInExcessBenefitTransInd0false
IRS990/ExpenseAmt0150458
IRS990/FamilyOrBusinessRlnInd0true
IRS990/FederalGrantAuditRequiredInd0false
IRS990/FeesForServicesAccountingGrp/FundraisingAmt0372
IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt02833
IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt015068
IRS990/FeesForServicesAccountingGrp/TotalAmt018273
IRS990/FeesForServicesLobbyingGrp/FundraisingAmt01731
IRS990/FeesForServicesLobbyingGrp/ManagementAndGeneralAmt013180
IRS990/FeesForServicesLobbyingGrp/ProgramServicesAmt070089
IRS990/FeesForServicesLobbyingGrp/TotalAmt085000
IRS990/FeesForServicesOtherGrp/FundraisingAmt0297
IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt02260
IRS990/FeesForServicesOtherGrp/ProgramServicesAmt012018
IRS990/FeesForServicesOtherGrp/TotalAmt014575
IRS990/FinalReturnInd0X
IRS990/ForeignActivitiesInd0false
IRS990/ForeignFinancialAccountInd0false
IRS990/ForeignOfficeInd0false
IRS990/Form1098CFiledInd0false
IRS990/Form8282PropertyDisposedOfInd0false
IRS990/Form8899Filedind0false
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt05.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt12.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt25.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt32.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt42.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt52.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt62.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt72.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt85.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt92.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt102.00
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd8X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd9X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd10X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/PersonNm0JOSEPH SLAY
IRS990/Form990PartVIISectionAGrp/PersonNm1TERRY GRIFFIN
IRS990/Form990PartVIISectionAGrp/PersonNm2DEANNA GRIFFIN
IRS990/Form990PartVIISectionAGrp/PersonNm3ELISE FINKNER
IRS990/Form990PartVIISectionAGrp/PersonNm4ROD ADAMS
IRS990/Form990PartVIISectionAGrp/PersonNm5MICHAEL CALISE
IRS990/Form990PartVIISectionAGrp/PersonNm6SHAWN LACEY
IRS990/Form990PartVIISectionAGrp/PersonNm7TRACY LACEY
IRS990/Form990PartVIISectionAGrp/PersonNm8MARTHA SLAY
IRS990/Form990PartVIISectionAGrp/PersonNm9BILL STRONG
IRS990/Form990PartVIISectionAGrp/PersonNm10KATHY TOMPKINS
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/TitleTxt0CHAIRMAN
IRS990/Form990PartVIISectionAGrp/TitleTxt1VICE CHAIRMA
IRS990/Form990PartVIISectionAGrp/TitleTxt2TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt3SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990ProvidedToGvrnBodyInd0true
IRS990/FormationYr01991
IRS990/FormerOfcrEmployeesListedInd0false
IRS990/FSAuditedInd0false
IRS990/FundraisingActivitiesInd0false
IRS990/GamingActivitiesInd0false
IRS990/GoverningBodyVotingMembersCnt011
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt0125000
IRS990/GrantsToDomesticOrgsGrp/TotalAmt0125000
IRS990/GrantsToIndividualsInd0false
IRS990/GrantsToOrganizationsInd0true
IRS990/GrantToRelatedPersonInd0false
IRS990/GrossReceiptsAmt017956
IRS990/GroupReturnForAffiliatesInd0false
IRS990/IncludeFIN48FootnoteInd0false
IRS990/IndependentAuditFinclStmtInd0false
IRS990/IndependentVotingMemberCnt011
IRS990/IndoorTanningServicesInd0false
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InvestmentIncomeGrp/ExclusionAmt040
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt040
IRS990/InvestmentInJointVentureInd0false
IRS990/IRPDocumentCnt05
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipBasisNetGrp/BOYAmt018342
IRS990/LegalDomicileStateCd0VA
IRS990/LoanOutstandingInd0false
IRS990/LobbyingActivitiesInd0true
IRS990/LocalChaptersInd0false
IRS990/MaterialDiversionOrMisuseInd0false
IRS990/MembersOrStockholdersInd0false
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd0true
IRS990/MinutesOfGoverningBodyInd0true
IRS990/MissionDesc0FIGHTSMA ENGAGES LEADING SCIENTISTS AND POLICYMAKERS TO PURSUE A CURE FOR, AND RAISES PUBLIC AWARENESS OF SPINAL MUSCULAR ATROPHY (SMA), A DEGENERATIVE NEUROMUSCULAR DISEASE WHICH IS THE LEADING GENETIC CAUSE OF DEATH FOR CHILDREN UNDER 2. APPROXIMATELY 1 IN 40 PEOPLE CARRY THE GENE FOR THIS DISEASE, AND ABOUT 1 IN 10,000 LIVE BIRTHS ARE AFFECTED. IN ADDITION TO FUNDING VITAL SCIENTIFIC RESEARCH, FIGHTSMA WORKS TO MAINTAIN AN ACTIVE DIALOG BETWEEN THE SCIENTIFIC RESEARCH COMMUNITY, THE PATIENT COMMUNITY, AND POLICYMAKERS.
IRS990/MoreThan5000KToIndividualsInd0false
IRS990/MoreThan5000KToOrgInd0false
IRS990/NetAssetsOrFundBalancesBOYAmt0276791
IRS990/NetAssetsOrFundBalancesEOYAmt00
IRS990/NoListedPersonsCompensatedInd0X
IRS990/NondeductibleContributionsInd0false
IRS990/OfficeExpensesGrp/FundraisingAmt0720
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt07495
IRS990/OfficeExpensesGrp/ProgramServicesAmt01441
IRS990/OfficeExpensesGrp/TotalAmt09656
IRS990/OfficerMailingAddressInd0false
IRS990/OperateHospitalInd0false
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OtherChangesInNetAssetsAmt021703
IRS990/OtherExpensesGrp/Desc0CONTRIBUTIONS
IRS990/OtherExpensesGrp/Desc1LOSS ON ASSET DISPOSALS
IRS990/OtherExpensesGrp/Desc2TELEPHONE
IRS990/OtherExpensesGrp/Desc3BANK CHARGES
IRS990/OtherExpensesGrp/FundraisingAmt0172
IRS990/OtherExpensesGrp/FundraisingAmt11497
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt02760
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt11264
IRS990/OtherExpensesGrp/ProgramServicesAmt041846
IRS990/OtherExpensesGrp/ProgramServicesAmt12760
IRS990/OtherExpensesGrp/ProgramServicesAmt2825
IRS990/OtherExpensesGrp/TotalAmt041846
IRS990/OtherExpensesGrp/TotalAmt15520
IRS990/OtherExpensesGrp/TotalAmt22261
IRS990/OtherExpensesGrp/TotalAmt31497
IRS990/OtherWebsiteInd0X
IRS990/PartialLiquidationInd0false
IRS990/PayPremiumsPrsnlBnftCntrctInd0false
IRS990/PoliticalCampaignActyInd0false
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt02528
IRS990/PrincipalOfficerNm0DEANNA GRIFFIN
IRS990/ProfessionalFundraisingInd0false
IRS990/ProgSrvcAccomActy2Grp/Desc0FIGHTSMA ENGAGES IN A BROAD RANGE OF PROMISING RESEARCH EFFORTS. GRANTS ARE GIVEN TO ESTABLISHED SCIENTISTS/RESEARCH CENTERS WITH A TARGETED FOCUS ON RESEARCH THAT BRING PATIENTS CLOSER TO A TREATMENT FOR THE DISEASE. IN ADDITION, FIGHTSMA PARTNERS WITH THE GWENDOLYN STRONG FOUNDATION TO INSPIRE A NEW GENERATION OF SMA RESEARCHERS THROUGH THE EMERGING INVESTIGATOR AWARDS, AWARDED TO EMERGING SCIENTISTS PROPOSING NOVEL RESEARCH IN THE SMA REALM.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0125000
IRS990/ProgSrvcAccomActy2Grp/GrantAmt0125000
IRS990/ProhibitedTaxShelterTransInd0false
IRS990/PYContributionsGrantsAmt0234959
IRS990/PYExcessBenefitTransInd0false
IRS990/PYGrantsAndSimilarPaidAmt0303729
IRS990/PYInvestmentIncomeAmt099
IRS990/PYOtherExpensesAmt0267588
IRS990/PYOtherRevenueAmt061
IRS990/PYRevenuesLessExpensesAmt0-336198
IRS990/PYTotalExpensesAmt0571317
IRS990/PYTotalRevenueAmt0235119
IRS990/QuidProQuoContributionsInd0false
IRS990/RcvFndsToPayPrsnlBnftCntrctInd0false
IRS990/ReconcilationRevenueExpnssAmt0-298494
IRS990/RegularMonitoringEnfrcInd0true
IRS990/RelatedEntityInd0false
IRS990/RelatedOrganizationCtrlEntInd0false
IRS990/ReportInvestmentsOtherSecInd0false
IRS990/ReportLandBuildingEquipmentInd0false
IRS990/ReportOtherAssetsInd0false
IRS990/ReportOtherLiabilitiesInd0false
IRS990/ReportProgramRelatedInvstInd0false
IRS990/SavingsAndTempCashInvstGrp/BOYAmt0123072
IRS990ScheduleA/Form990ScheduleAPartVIGrp/ExplanationTxt0OTHER INCOME 61
IRS990ScheduleA/Form990ScheduleAPartVIGrp/FormAndLineReferenceDesc0PART II, LINE 10
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt017916
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt0234959
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0776359
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0182493
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0485673
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt01697400
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt040
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt099
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt063
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt0160
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt0260
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt0622
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus1YearAmt061
IRS990ScheduleA/OtherIncome170Grp/TotalAmt061
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.46550
IRS990ScheduleA/PublicSupportPY170Pct00.44860
IRS990ScheduleA/PublicSupportTotal170Amt0790494
IRS990ScheduleA/SubstantialContributorsTotAmt0906906
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt017916
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt0234959
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0776359
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0182493
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0485673
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt01697400
IRS990ScheduleA/TotalSupportAmt01698083
IRS990/ScheduleBRequiredInd0true
IRS990ScheduleC/AvgGrassrootsNontaxableGrp/CurrentYearAmt015823
IRS990ScheduleC/AvgGrassrootsNontaxableGrp/CurrentYearMinus1Amt027674
IRS990ScheduleC/AvgGrassrootsNontaxableGrp/CurrentYearMinus2Amt032422
IRS990ScheduleC/AvgGrassrootsNontaxableGrp/CurrentYearMinus3Amt033829
IRS990ScheduleC/AvgGrassrootsNontaxableGrp/TotalAmt0109748
IRS990ScheduleC/AvgLobbyingNontaxableAmountGrp/CurrentYearAmt063290
IRS990ScheduleC/AvgLobbyingNontaxableAmountGrp/CurrentYearMinus1Amt0110697
IRS990ScheduleC/AvgLobbyingNontaxableAmountGrp/CurrentYearMinus2Amt0129686
IRS990ScheduleC/AvgLobbyingNontaxableAmountGrp/CurrentYearMinus3Amt0135317
IRS990ScheduleC/AvgLobbyingNontaxableAmountGrp/TotalAmt0438990
IRS990ScheduleC/AvgTotalLobbyingExpendGrp/CurrentYearAmt085000
IRS990ScheduleC/AvgTotalLobbyingExpendGrp/CurrentYearMinus1Amt060000
IRS990ScheduleC/AvgTotalLobbyingExpendGrp/CurrentYearMinus2Amt060000
IRS990ScheduleC/AvgTotalLobbyingExpendGrp/CurrentYearMinus3Amt060000
IRS990ScheduleC/AvgTotalLobbyingExpendGrp/TotalAmt0265000
IRS990ScheduleC/Form4720FiledInd0false
IRS990ScheduleC/GrassrootsCeilingAmt0164622
IRS990ScheduleC/GrassrootsNontaxableGrp/FilingOrganizationsTotalAmt015823
IRS990ScheduleC/LobbyingCeilingAmt0658485
IRS990ScheduleC/LobbyingNontaxableAmountGrp/FilingOrganizationsTotalAmt063290
IRS990ScheduleC/OtherExemptPurposeExpendGrp/FilingOrganizationsTotalAmt0231452
IRS990ScheduleC/TotalDirectLobbyingGrp/FilingOrganizationsTotalAmt085000
IRS990ScheduleC/TotalExemptPurposeExpendGrp/FilingOrganizationsTotalAmt0316452
IRS990ScheduleC/TotalLobbyingExpendGrp/FilingOrganizationsTotalAmt085000
IRS990ScheduleC/TotLbbyExpendMnsLbbyngNonTxGrp/FilingOrganizationsTotalAmt021710
IRS990ScheduleI/GrantRecordsMaintainedInd0true
IRS990ScheduleI/RecipientTable/CashGrantAmt062500
IRS990ScheduleI/RecipientTable/CashGrantAmt162500
IRS990ScheduleI/RecipientTable/IRCSectionDesc03
IRS990ScheduleI/RecipientTable/IRCSectionDesc13
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0MEDICAL RESEARCH
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt1MEDICAL RESEARCH
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0THE TRUSTEES OF INDIANA UNIV
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1UNIVERSITY OF MISSOURI
IRS990ScheduleI/RecipientTable/RecipientEIN0356018940
IRS990ScheduleI/RecipientTable/RecipientEIN1436003859
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt0501 INDIANA AVE 100
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt1316 UNIVERSITY HALL
IRS990ScheduleI/RecipientTable/USAddress/CityNm0INDIANAPOLIS
IRS990ScheduleI/RecipientTable/USAddress/CityNm1COLUMBIA
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0IN
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd1MO
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd046202
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd165211
IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt0THE ORGANIZATION REQUIRES GRANT RECIPIENTS TO PROVIDE STATUS REPORTS AND ANNUAL REPORTS DURING THE GRANT PERIOD. THE ORGANIZATION MAY ALSO REQUEST SITE VISITS AND DATA STUDY TO CONFIRM THE RESEARCH IS BEING CONDUCTED IN CONFORMANCE WITH THE ORGANIZATION'S GOALS.
IRS990ScheduleI/SupplementalInformationDetail/FormAndLineReferenceDesc0SCHEDULE I, PAGE 1, PART I, LINE 2
IRS990ScheduleI/Total501c3OrgCnt02
IRS990/ScheduleJRequiredInd0false
IRS990ScheduleN/AssetsDistributedInd0true
IRS990ScheduleN/BondsOutstandingInd0false
IRS990ScheduleN/DirectorOfSuccessorInd0false
IRS990ScheduleN/EmployeeOfSuccessorInd0false
IRS990ScheduleN/LiabilitiesPaidInd0true
IRS990ScheduleN/LiquidationOfAssetsTableGrp/LiquidationOfAssetsDetail/AssetsDistriOrExpnssPaidDesc0TRANSFER OF CASH
IRS990ScheduleN/LiquidationOfAssetsTableGrp/LiquidationOfAssetsDetail/BusinessName/BusinessNameLine1Txt0GWENDOLYN STRONG FOUNDATION
IRS990ScheduleN/LiquidationOfAssetsTableGrp/LiquidationOfAssetsDetail/DistributionDt02017-12-26
IRS990ScheduleN/LiquidationOfAssetsTableGrp/LiquidationOfAssetsDetail/EIN0264734446
IRS990ScheduleN/LiquidationOfAssetsTableGrp/LiquidationOfAssetsDetail/FairMarketValueOfAssetAmt041846
IRS990ScheduleN/LiquidationOfAssetsTableGrp/LiquidationOfAssetsDetail/IRCSectionTxt0501(C)(3)
IRS990ScheduleN/LiquidationOfAssetsTableGrp/LiquidationOfAssetsDetail/MethodOfFMVDeterminationTxt0FMV
IRS990ScheduleN/LiquidationOfAssetsTableGrp/LiquidationOfAssetsDetail/USAddress/AddressLine1Txt027 WEST ANAPAMU STREET
IRS990ScheduleN/LiquidationOfAssetsTableGrp/LiquidationOfAssetsDetail/USAddress/CityNm0SANTA BARBARA
IRS990ScheduleN/LiquidationOfAssetsTableGrp/LiquidationOfAssetsDetail/USAddress/StateAbbreviationCd0CA
IRS990ScheduleN/LiquidationOfAssetsTableGrp/LiquidationOfAssetsDetail/USAddress/ZIPCd093101
IRS990ScheduleN/OwnerOfSuccessorInd0false
IRS990ScheduleN/ReceiveCompensationInd0false
IRS990ScheduleN/RequiredToNotifyAGInd0true
IRS990/ScheduleORequiredInd0true
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0FIGHTSMA ENGAGES LEADING SCIENTISTS AND POLICYMAKERS TO PURSUE A CURE FOR, AND RAISES PUBLIC AWARENESS OF SPINAL MUSCULAR ATROPHY (SMA), A DEGENERATIVE NEUROMUSCULAR DISEASE WHICH IS THE LEADING GENETIC CAUSE OF DEATH FOR CHILDREN UNDER 2. APPROXIMATELY 1 IN 40 PEOPLE CARRY THE GENE FOR THIS DISEASE, AND ABOUT 1 IN 10,000 LIVE BIRTHS ARE AFFECTED. IN ADDITION TO FUNDING VITAL SCIENTIFIC RESEARCH, FIGHTSMA WORKS TO MAINTAIN AN ACTIVE DIALOG BETWEEN THE SCIENTIFIC RESEARCH COMMUNITY, THE PATIENT COMMUNITY, AND POLICYMAKERS.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1MARTHA SLAY JOSEPH SLAY DIRECTOR CHAIR SPOUSE TERRY GRIFFIN DEANNA GRIFFIN VICE-CHAIR TREASURER SPOUSE TRACY LACEY SHAWN LACEY DIRECTOR DIRECTOR SPOUSE ELISE FINKNER JOSEPH SLAY SECRETARY CHAIR SIBLINGS
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2A COPY OF THE FORM 990 WAS MADE AVAILABLE TO THE BOARD OF DIRECTORS AND WAS CAREFULLY REVIEWED PRIOR TO FILING.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3THE BOARD OF DIRECTORS HAS A CONFLICT OF INTEREST POLICY WHICH IS SET FORTH IN THE BYLAWS AND IS REVIEWED ANNUALLY OR WHEN THERE IS A NEED TO CONSIDER THE POSSIBLE ABSTENTION OF A BOARD MEMBER FROM THE DECISION MAKING PROCESS. EACH YEAR, THE BOARD MEMBERS MUST DISCLOSE ANY POSSIBLE CONFLICTS OF INTEREST AND THE REMAINING BOARD MEMBERS WILL DETERMINE HOW THE SITUATION SHOULD BE ADDRESSED.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4THE GOVERNING DOCUMENTS ARE AVAILABLE UPON REQUEST.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5ELIMINATION OF ACCOUNTS PAYABLE 21,703
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990 - ORGANIZATION'S MISSION
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PAGE 6, PART VI, LINE 2
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PAGE 6, PART VI, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3FORM 990, PAGE 6, PART VI, LINE 12C
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4FORM 990, PAGE 6, PART VI, LINE 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc5FORM 990, PART XI, LINE 9
IRS990/SchoolOperatingInd0false
IRS990/SignificantChangeInd0false
IRS990/SignificantNewProgramSrvcInd0false
IRS990/SubjectToProxyTaxInd0false
IRS990/TaxablePartyNotificationInd0false
IRS990/TaxExemptBondsInd0false
IRS990/TemporarilyRstrNetAssetsGrp/BOYAmt045000
IRS990/TempOrPermanentEndowmentsInd0false
IRS990/TerminateOperationsInd0true
IRS990/TotalAssetsBOYAmt0298799
IRS990/TotalAssetsEOYAmt00
IRS990/TotalAssetsGrp/BOYAmt0298799
IRS990/TotalAssetsGrp/EOYAmt00
IRS990/TotalCompGreaterThan150KInd0false
IRS990/TotalContributionsAmt017916
IRS990/TotalEmployeeCnt00
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt04789
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt036203
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt0275458
IRS990/TotalFunctionalExpensesGrp/TotalAmt0316450
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesBOYAmt022008
IRS990/TotalLiabilitiesEOYAmt00
IRS990/TotalLiabilitiesGrp/BOYAmt022008
IRS990/TotalLiabilitiesGrp/EOYAmt00
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt0276791
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt00
IRS990/TotalProgramServiceExpensesAmt0275458
IRS990/TotalRevenueGrp/ExclusionAmt040
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt017956
IRS990/TotalVolunteersCnt012
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt0298799
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt00
IRS990/TrnsfrExmptNonChrtblRltdOrgInd0false

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2017 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$0
Liabilities
$0
Net assets
$0
Revenue
$17,956
Expenses
$316,450
Net income
-$298,494
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2017Detailed filing. Detailed filing data is available for this year.$0.00$0.00$0.00$0.18$3.16$2.98
2016Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.99$0.22$2.77$2.35$5.71$3.36
2015XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$5.84$0.38$5.45$7.73$7.04$0.69
2014Detailed filing. Detailed filing data is available for this year.$5.03$0.39$4.65$1.83$7.35$5.52
2013Detailed filing. Detailed filing data is available for this year.$8.32$0.30$8.02$5.08$5.94$0.86