Civic Intelligence

Fightsma Inc

990 • Fiscal year 2015 • EIN 54-1610701

Jan 01, 2015 to Dec 31, 2015 • Filed on Aug 15, 2016

Organization ProfileWWW.FIGHTSMA.ORG
8016 Staples Mill RoadRichmond, VA 23228

(703) 299-1144

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

55th percentile

0.07x

Higher debt load relative to assets than 55% of similar nonprofits.

2015 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2015

Liabilities / Revenue

53rd percentile

0.05x

Higher debt load relative to revenue than 53% of similar nonprofits.

2015 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2015

Net Margin

64th percentile

8.9%

Higher net margin than 64% of similar nonprofits.

2015 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2015

Top Officer Pay

52nd percentile

$14,250

Higher top officer pay than 52% of similar nonprofits.

Top officer pay equals 1.8% of source-year revenue.

2015 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2015

Asset Growth

76th percentile

16%

Faster asset growth than 76% of similar nonprofits.

2015 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2014 to 2015

Revenue Growth

98th percentile

322%

Faster revenue growth than 98% of similar nonprofits.

2015 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2014 to 2015

Balance Sheet
Liabilities / Assets55th percentile

Assets

Up

$583,511

Up $80,078 (+16%) from 2014

Net Assets

Up

$545,345

Up $80,506 (+17%) from 2014

Liabilities

Down

$38,166

Down $428 (-1.1%) from 2014

Revenue And Expenses
Liabilities / Revenue53rd percentileNet Margin64th percentile

Revenue

Up

$772,903

Up $589,671 (+322%) from 2014

Expenses

Down

$703,955

Down $31,470 (-4.3%) from 2014

Net Income

Up

$68,948

Up $621,141 (+112%) from 2014

Historical Trend

Balance Sheet Trend

Asset Growth76th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.0M$500K$0Assets 2013: $832,130Liabilities 2013: $30,300Net Assets 2013: $801,8302013Assets 2014: $503,433Liabilities 2014: $38,594Net Assets 2014: $464,8392014Assets 2015: $583,511Liabilities 2015: $38,166Net Assets 2015: $545,3452015Assets 2016: $298,799Liabilities 2016: $22,008Net Assets 2016: $276,7912016Assets 2017: $0Liabilities 2017: $0Net Assets 2017: $02017

Highlighted filing

2015

Assets$583,511
Liabilities$38,166
Net Assets$545,345
Open 2015 Filing

Operations Trend

Revenue Growth98th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.0M$500K$0-$500K-$1.0MRevenue 2013: $507,986Expenses 2013: $594,465Net Income 2013: -$86,4792013Revenue 2014: $183,232Expenses 2014: $735,425Net Income 2014: -$552,1932014Revenue 2015: $772,903Expenses 2015: $703,955Net Income 2015: $68,9482015Revenue 2016: $235,119Expenses 2016: $571,317Net Income 2016: -$336,1982016Revenue 2017: $17,956Expenses 2017: $316,450Net Income 2017: -$298,4942017

Highlighted filing

2015

Revenue$772,903
Expenses$703,955
Net Income$68,948
Open 2015 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2015 to Dec 31, 2015
Signed
Aug 15, 2016
Return Version
2015v2.1
Gross Receipts
$778,405
Mission and Program Overview

Mission

Fightsma engages leading scientists and policymakers to pursue a cure for, and raises public awareness of spinal muscular atrophy (sma), a degenerative neuromuscular disease which is the leading genetic cause of death for children under 2. Approximately 1 in 40 people carry the gene for this disease, and about 1 in 10,000 live births are affected. In addition to funding vital scientific research, fightsma works to maintain an active dialog between the scientific research community, the patient community, and policymakers.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$285,941$225,988▼ $59,953
Cash and Non-Interest-Bearing Accounts$117,227$120,724▲ $3,497
Pledges and Grants Receivable-$100,000-
Prepaid Expenses and Deferred Charges$39,591$91,253▲ $51,662
Land, Buildings, and Equipment, Net$58,281$45,546▼ $12,735
Total Assets$503,433$583,511▲ $80,078
Other Assets Total$2,393--
Liabilities
Accounts Payable and Accrued Expenses$38,594$38,166▼ $428
Total Liabilities$38,594$38,166▼ $428
Net Assets / Fund Balance
Unrestricted Net Assets$392,339$312,845▼ $79,494
Temporarily Rstr Net Assets$72,500$232,500▲ $160,000
Total Net Assets Fund Balance$464,839$545,345▲ $80,506
Total Liabilities and Net Assets / Fund Balance$503,433$583,511▲ $80,078

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$45,546$37,133$82,679
Compensation and Service Providers
Top Officer Pay52nd percentile

Employees

NameTitleFull / Part TimeBaseTotal
Daniel O HaydenInterim ExecPT$14,250$14,250

Board Members and Trustees

NameTitle
Joseph SlayChairman
Michael CaliseChairman
Terry GriffinVice Chairma
Bill StrongDirector
Kathy TompkinsDirector
Martha SlayDirector
Rod AdamsDirector
Shawn LaceyDirector
Tracy LaceyDirector
Elise FinknerSecretary
Deanna GriffinTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$776,359
Program Service Revenue
$0
Investment Income
$-5,316
Other Revenue
$1,860
All Other Contributions
$776,359
Change in Net Assets
$68,948
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$398,422
Grants and Similar Amounts Paid$266,366
Salaries, Compensation, and Employee Benefits$39,167
Total Fundraising Expense$36,080
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$199,700--$199,700
Conferences and Meetings$89,631$14,474$69$104,174
Fees for Services Accounting$47,806$17,423$5,443$70,672
Fees for Services Other$46,474$16,937$5,292$68,703
Foreign Grants$66,666--$66,666
Fees for Services Lobbying$40,587$14,792$4,621$60,000
Office Expenses$28,478$14,502$8,072$51,052
Other Salaries and Wages$21,154$9,991$4,427$35,572
Occupancy$10,343$3,357$2,172$15,872
Depreciation Depletion$6,948$6,948-$13,896
Other Expenses$3,496$2,024$4,819$4,819
Payroll Taxes$2,137$1,010$448$3,595
Travel$1,503$1,494-$2,997
Total Functional Expenses$564,923$102,952$36,080$703,955
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
University of MissouriColumbia, MO3Medical Research$66,290
Henry M Jackson FoundationBethesda, MD3Medical Research$62,443
Ohio State UniversityColumbus, OH3Medical Research$39,167
Indiana UniversityIndianapolis, IN3Medical Research$26,592
Johns HopkinsBaltimore, MD3Medical Research$5,208

International Compliance

Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$1,983
Fundraising Direct Expenses$123
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
Yes
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 2

“Martha slay joseph slay director chair spouse terry griffin deanna griffin vice-chair treasurer spouse tracy lacey shawn lacey director director spouse”

Form 990, Page 6, Part VI, Line 10B

“The chapters follow the same policies and procedures as the parent chapter. These policies and procedures are communicated annually to all chapters.”

Form 990, Page 6, Part VI, Line 11B

“A copy of the form 990 was made available to the board of directors and was carefully reviewed prior to filing.”

Form 990, Page 6, Part VI, Line 12C

“The board of directors has a conflict of interest policy which is set forth in the bylaws and is reviewed annually or when there is a need to consider the possible abstention of a board member from the decision making process. Each year, the board members must disclose any possible conflicts of interest and the remaining board members will determine how the situation should be addressed.”

Form 990, Page 6, Part VI, Line 15A

“The board of directors determines salaries and approves a total budget for salary increases.”

Form 990, Page 6, Part VI, Line 19

“The governing documents are available upon request.”

Filing and Contact Details

Filer

Filer Name
Fightsma Inc
EIN
54-1610701
Phone
7032991144
Address
8016 STAPLES MILL ROAD, RICHMOND, VA 23228

Signing Officer

Name
Deanna Griffin
Title
Treasurer
Phone
8046988820
Signed
2016-08-15
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Deanna Griffin
Formed
1991
Legal Domicile
Va
Voting Board Members
11
Independent Board Members
10
Employees
2
Volunteers
20

Preparer

Firm
Wellscoleman
Address
3800 PATTERSON AVE, RICHMOND, VA 23221-2034
Preparer
Phyllis S Mutchnick
Phone
8043581150
Supplemental Narrative

Additional Explanations

FORM 990 - ORGANIZATION'S MISSION

“Fightsma engages leading scientists and policymakers to pursue a cure for, and raises public awareness of spinal muscular atrophy (sma), a degenerative neuromuscular disease which is the leading genetic cause of death for children under 2. Approximately 1 in 40 people carry the gene for this disease, and about 1 in 10,000 live births are affected. In addition to funding vital scientific research, fightsma works to maintain an active dialog between the scientific research community, the patient community, and policymakers.”

Form 990, Part XI, Line 9

“Net assets from affiliates 11,558 total 11,558”

Financial Statement Notes

Schedule D, Page 3, Part X

“The internal revenue service has determined that the organization is exempt from federal income tax under section 501(c)(3) of the internal revenue code. The organization's federal tax returns from 2013 forward are subject to examination by the internal revenue service, generally for three years after they were filed.”

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IRS990/Desc0ANNUALLY, FIGHTSMA BRINGS TOGETHER THE WORLDS LEADING SMA SCIENTISTS FOR AN INTENSIVE 3-DAY CONFERENCE TO DISCUSS UNPUBLISHED RESEARCH AND TO EDUCATE PATIENTS AND FAMILIES ABOUT PROMISING RESEARCH AND CLINICAL TRIALS AND STAYS ENGAGED WITH PUBLISHED RESEARCH UPDATES DURING THE YEAR. FIGHTSMA ACTIVELY ENGAGES GOVERNMENT LEADERS AND POLICY MAKERS TO BUILD SUPPORT FOR PEDIATRIC RESEARCH. FINALLY, FIGHTSMA PROVIDES PATIENTS AND FAMILIES WITH RESOURCES (ONLINE, IN SOCIAL MEDIA, AND IN PRINT) TO UNDERSTAND SMA AND WHAT THEY CAN DO TO LIVE WITH THE DISEASE, AND HELP IN THE FIGHT FOR A CURE.
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IRS990/OtherExpensesGrp/Desc0TELEPHONE
IRS990/OtherExpensesGrp/Desc1BANK CHARGES
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IRS990/OtherExpensesGrp/FundraisingAmt14819
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt02024
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IRS990/ProgSrvcAccomActy2Grp/Desc0FIGHTSMA ENGAGES IN A BROAD RANGE OF PROMISING RESEARCH EFFORTS. GRANTS ARE GIVEN TO ESTABLISHED SCIENTISTS/RESEARCH CENTERS WITH A TARGETED FOCUS ON RESEARCH THAT BRING PATIENTS CLOSER TO A TREATMENT FOR THE DISEASE. IN ADDITION, FIGHTSMA PARTNERS WITH THE GWENDOLYN STRONG FOUNDATION TO INSPIRE A NEW GENERATION OF SMA RESEARCHERS THROUGH THE EMERGING INVESTIGATOR AWARDS (3 GIVEN ANNUALLY), AWARDED TO EMERGING SCIENTISTS PROPOSING NOVEL RESEARCH IN THE SMA REALM.
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IRS990/PYOtherRevenueAmt0579
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IRS990/ReportLandBuildingEquipmentInd0true
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IRS990/SavingsAndTempCashInvstGrp/EOYAmt0225988
IRS990ScheduleA/Form990ScheduleAPartVIGrp/ExplanationTxt0OTHER INCOME 3,235
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IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt063
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IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt01983
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IRS990ScheduleA/PublicSupportPY170Pct00.45600
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IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt0182493
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0485673
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0315586
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0394715
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt02154826
IRS990ScheduleA/TotalSupportAmt02160378
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IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
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IRS990/ScheduleBRequiredInd0true
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IRS990ScheduleC/AvgGrassrootsNontaxableGrp/CurrentYearMinus3Amt026952
IRS990ScheduleC/AvgGrassrootsNontaxableGrp/TotalAmt0121797
IRS990ScheduleC/AvgLobbyingNontaxableAmountGrp/CurrentYearAmt0129686
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IRS990ScheduleC/AvgLobbyingNontaxableAmountGrp/CurrentYearMinus2Amt0114375
IRS990ScheduleC/AvgLobbyingNontaxableAmountGrp/CurrentYearMinus3Amt0107807
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IRS990ScheduleC/AvgTotalLobbyingExpendGrp/CurrentYearMinus2Amt065152
IRS990ScheduleC/AvgTotalLobbyingExpendGrp/CurrentYearMinus3Amt061157
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IRS990ScheduleD/EquipmentGrp/DepreciationAmt037133
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IRS990ScheduleD/FootnoteTextInd0X
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0THE INTERNAL REVENUE SERVICE HAS DETERMINED THAT THE ORGANIZATION IS EXEMPT FROM FEDERAL INCOME TAX UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE. THE ORGANIZATION'S FEDERAL TAX RETURNS FROM 2013 FORWARD ARE SUBJECT TO EXAMINATION BY THE INTERNAL REVENUE SERVICE, GENERALLY FOR THREE YEARS AFTER THEY WERE FILED.
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0SCHEDULE D, PAGE 3, PART X
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IRS990ScheduleF/GrantsToOrgOutsideUSGrp/MannerOfCashDisbursementTxt1CHECK
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt0MEDICAL RESEARCH
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt1MEDICAL RESEARCH
IRS990ScheduleF/InterestInForeignTrustInd0false
IRS990ScheduleF/PassiveForeignInvestmestCoInd0false
IRS990ScheduleF/SupplementalInformationDetail/ExplanationTxt0THE ORGANIZATION REQUIRES GRANT RECIPIENTS TO PROVIDE STATUS REPORTS AND ANNUAL REPORTS DURING THE GRANT PERIOD. THE ORGANIZATION MAY ALSO REQUEST SITE VISITS AND DATA STUDY TO CONFIRM THE RESEARCH IS BEING CONDUCTED IN CONFORMANCE WITH THE ORGANIZATION'S GOALS.
IRS990ScheduleF/SupplementalInformationDetail/FormAndLineReferenceDesc0SCHEDULE F, PAGE 1, PART I, LINE 2
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IRS990ScheduleI/RecipientTable/IRCSectionDesc43
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0MEDICAL RESEARCH
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt1MEDICAL RESEARCH
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt2MEDICAL RESEARCH
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt3MEDICAL RESEARCH
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt4MEDICAL RESEARCH
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0INDIANA UNIVERSITY
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1UNIVERSITY OF MISSOURI
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt2JOHNS HOPKINS
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt3OHIO STATE UNIVERSITY
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt4HENRY M JACKSON FOUNDATION
IRS990ScheduleI/RecipientTable/RecipientEIN0356018940
IRS990ScheduleI/RecipientTable/RecipientEIN1436003859

Document Assets

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Filings

Displayed year

2015 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$583,511
Liabilities
$38,166
Net assets
$545,345
Revenue
$772,903
Expenses
$703,955
Net income
$68,948
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.00$0.00$0.00$0.18$3.16$2.98
2016Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.99$0.22$2.77$2.35$5.71$3.36
2015Detailed filing. Detailed filing data is available for this year.$5.84$0.38$5.45$7.73$7.04$0.69
2014Detailed filing. Detailed filing data is available for this year.$5.03$0.39$4.65$1.83$7.35$5.52
2013Detailed filing. Detailed filing data is available for this year.$8.32$0.30$8.02$5.08$5.94$0.86