Liabilities / Assets
56th percentile
Higher debt load relative to assets than 56% of similar nonprofits.
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
56th percentile
Higher debt load relative to assets than 56% of similar nonprofits.
Liabilities / Revenue
73rd percentile
Higher debt load relative to revenue than 73% of similar nonprofits.
Net Margin
1st percentile
Higher net margin than 1% of similar nonprofits.
Top Officer Pay
67th percentile
Higher top officer pay than 67% of similar nonprofits.
Top officer pay equals 28.9% of source-year revenue.
Asset Growth
4th percentile
Faster asset growth than 4% of similar nonprofits.
Revenue Growth
3rd percentile
Faster revenue growth than 3% of similar nonprofits.
Assets
Down$503,433
Down $328,697 (-40%) from 2013
Net Assets
Down$464,839
Down $336,991 (-42%) from 2013
Liabilities
Up$38,594
Up $8,294 (+27%) from 2013
Revenue
Down$183,232
Down $324,754 (-64%) from 2013
Expenses
Up$735,425
Up $140,960 (+24%) from 2013
Net Income
Down-$552,193
Down $465,714 (-539%) from 2013
Fightsma engages leading scientists and policymakers to pursue a cure for, and raises public awareness of spinal muscular atrophy (sma), a degenerative neuromuscular disease which is the leading genetic cause of death for children under 2. Approximately 1 in 40 people carry the gene for this disease, and about 1 in 10,000 live births are affected. In addition to funding vital scientific research, fightsma works to maintain an active dialog between the scientific research community, the patient community, and policymakers.
To educate the public about and to raise funds for research to develop a cure for spinal muscular atrophy.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Savings and Temporary Cash Investments | $465,795 | $285,941 | ▼ $179,854 |
| Cash and Non-Interest-Bearing Accounts | $337,208 | $117,227 | ▼ $219,981 |
| Land, Buildings, and Equipment, Net | $25,109 | $58,281 | ▲ $33,172 |
| Prepaid Expenses and Deferred Charges | - | $39,591 | - |
| Total Assets | $832,130 | $503,433 | ▼ $328,697 |
| Other Assets Total | $4,018 | $2,393 | ▼ $1,625 |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $30,300 | $38,594 | ▲ $8,294 |
| Total Liabilities | $30,300 | $38,594 | ▲ $8,294 |
| Net Assets / Fund Balance | |||
| Unrestricted Net Assets | $801,830 | $392,339 | ▼ $409,491 |
| Temporarily Rstr Net Assets | - | $72,500 | - |
| Total Net Assets Fund Balance | $801,830 | $464,839 | ▼ $336,991 |
| Total Liabilities and Net Assets / Fund Balance | $832,130 | $503,433 | ▼ $328,697 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Equipment | $58,281 | $45,102 | $103,383 |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Daniel Hayden | Interim Exec | PT | $53,037 | $53,037 |
| Name | Title |
|---|---|
| Michael Calise | Chairman |
| Bill Strong | Director |
| Duncan Elliott | Director |
| Kathy Tompkins | Director |
| Martha Slay | Director |
| Rod Adams | Director |
| Terry Griffin | Director |
| Elise Finkner | Secretary |
| Joseph Slay | Treasurer |
| Line Item | Amount |
|---|---|
| Other Expenses | $391,765 |
| Grants and Similar Amounts Paid | $187,378 |
| Salaries, Compensation, and Employee Benefits | $156,282 |
| Total Fundraising Expense | $69,094 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Grants to Domestic Orgs | $118,211 | - | - | $118,211 |
| Other Salaries and Wages | $58,457 | $24,203 | $12,265 | $94,925 |
| Office Expenses | $60,380 | $17,190 | $15,293 | $92,863 |
| Conferences and Meetings | $66,706 | $11,571 | $237 | $78,514 |
| Foreign Grants | $69,167 | - | - | $69,167 |
| Fees for Services Other | $42,178 | $8,995 | $9,006 | $60,179 |
| Fees for Services Lobbying | $42,053 | $8,969 | $8,978 | $60,000 |
| Current Officers, Directors, Trustees, and Key Employees | $37,172 | $7,928 | $7,937 | $53,037 |
| Fees for Services Accounting | $29,678 | $6,330 | $6,336 | $42,344 |
| Occupancy | $19,415 | $6,347 | $4,107 | $29,869 |
| Travel | $4,470 | $5,863 | $-1,062 | $9,271 |
| Payroll Taxes | $5,124 | $2,121 | $1,075 | $8,320 |
| Depreciation Depletion | $3,479 | $3,478 | - | $6,957 |
| Other Expenses | $4,664 | $2,182 | $25 | $25 |
| Total Functional Expenses | $561,154 | $105,177 | $69,094 | $735,425 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| Johns Hopkins | Baltimore, MD | 3 | Medical Research | $57,291 |
| Henry M Jackson Foundation | Bethesda, MD | 3 | Medical Research | $27,500 |
| Indiana University | Indianapolis, IN | 3 | Medical Research | $27,500 |
| Sma Foundation | New York, NY | 3 | Medical Research | $5,920 |
| Line Item | Amount |
|---|---|
| Fundraising Gross Income | $602 |
| Fundraising Direct Expenses | $23 |
| Professional Fundraising Fees | $0 |
“Martha slay joseph slay director treasurer spouse”
“The chapters follow the same policies and procedures as the parent chapter. These policies and procedures are communicated annually to all chapters.”
“A copy of the form 990 was made available to the board of directors and was carefully reviewed prior to filing.”
“The board of directors has a conflict of interest policy which is set forth in the bylaws and is reviewed annually or when there is a need to consider the possible abstention of a board member from the decision making process. Each year, the board members must disclose any possible conflicts of interest and the remaining board members will determine how the situation should be addressed.”
“The board of directors determines salaries and approves a total budget for salary increases.”
“The governing documents are available upon request.”
“Net assets from affiliates 113,203”
“The internal revenue service has determined that the organization is exempt from federal income tax under section 501(c)(3) of the internal revenue code. The organization's federal tax returns from 2012 forward are subject to examination by the internal revenue service, generally for three years after they were filed.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | false |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 30300 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 38594 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | TO EDUCATE THE PUBLIC ABOUT AND TO RAISE FUNDS FOR RESEARCH TO DEVELOP A CURE FOR SPINAL MUSCULAR ATROPHY. |
| IRS990/AddressChangeInd | 0 | X |
| IRS990/AllOtherContributionsAmt | 0 | 182493 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/AuditCommitteeInd | 0 | true |
| IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt | 0 | NET 30 INC |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 8047169070 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 8016 STAPLES MILL ROAD |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | RICHMOND |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | VA |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 23228 |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOfficerEntInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 337208 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 117227 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 7937 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 7928 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 37172 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 53037 |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | true |
| IRS990/CompensationProcessOtherInd | 0 | false |
| IRS990/ConferencesMeetingsGrp/FundraisingAmt | 0 | 237 |
| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | 11571 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 66706 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 78514 |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | true |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 182493 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 187378 |
| IRS990/CYInvestmentIncomeAmt | 0 | 160 |
| IRS990/CYOtherExpensesAmt | 0 | 391765 |
| IRS990/CYOtherRevenueAmt | 0 | 579 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | -552193 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 156282 |
| IRS990/CYTotalExpensesAmt | 0 | 735425 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 69094 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 183232 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt | 0 | 3478 |
| IRS990/DepreciationDepletionGrp/ProgramServicesAmt | 0 | 3479 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 6957 |
| IRS990/Desc | 0 | RAISED PUBLIC AWARENESS REGARDING SPINAL MUSCULAR ATROPHY AND FUNDS FOR RESEARCH. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | false |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 2 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | true |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 373776 |
| IRS990/FamilyOrBusinessRlnInd | 0 | true |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FeesForServicesAccountingGrp/FundraisingAmt | 0 | 6336 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 6330 |
| IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt | 0 | 29678 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 42344 |
| IRS990/FeesForServicesLobbyingGrp/FundraisingAmt | 0 | 8978 |
| IRS990/FeesForServicesLobbyingGrp/ManagementAndGeneralAmt | 0 | 8969 |
| IRS990/FeesForServicesLobbyingGrp/ProgramServicesAmt | 0 | 42053 |
| IRS990/FeesForServicesLobbyingGrp/TotalAmt | 0 | 60000 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 9006 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 8995 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 42178 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 60179 |
| IRS990/ForeignActivitiesInd | 0 | false |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignGrantsGrp/ProgramServicesAmt | 0 | 69167 |
| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 69167 |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form1098CFiledInd | 0 | false |
| IRS990/Form8282PropertyDisposedOfInd | 0 | false |
| IRS990/Form8899Filedind | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 24.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | DANIEL HAYDEN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | ROD ADAMS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | DUNCAN ELLIOTT |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | TERRY GRIFFIN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | MARTHA SLAY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | BILL STRONG |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | KATHY TOMPKINS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | MICHAEL CALISE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | JOSEPH SLAY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | ELISE FINKNER |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 53037 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | INTERIM EXEC |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | CHAIRMAN |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | TREASURER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | SECRETARY |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/FormationYr | 0 | 1991 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedBasisGrp/ConsolidatedBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | true |
| IRS990/FundraisingActivitiesInd | 0 | false |
| IRS990/FundraisingDirectExpensesAmt | 0 | 23 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 602 |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 10 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 118211 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 118211 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | true |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossReceiptsAmt | 0 | 183255 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | true |
| IRS990/IndependentAuditFinclStmtInd | 0 | false |
| IRS990/IndependentVotingMemberCnt | 0 | 9 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 160 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 160 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/IRPDocumentCnt | 0 | 13 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 45102 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 25109 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 58281 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 103383 |
| IRS990/LegalDomicileStateCd | 0 | VA |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | true |
| IRS990/LocalChaptersInd | 0 | true |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | true |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | TO EDUCATE THE PUBLIC ABOUT AND TO RAISE FUNDS FOR RESEARCH TO DEVELOP A CURE FOR SPINAL MUSCULAR ATROPHY. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | true |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 801830 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 464839 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 579 |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OccupancyGrp/FundraisingAmt | 0 | 4107 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 6347 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 19415 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 29869 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 15293 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 17190 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 60380 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 92863 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsSFAS117Ind | 0 | X |
| IRS990/OtherAssetsTotalGrp/BOYAmt | 0 | 4018 |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 2393 |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 113203 |
| IRS990/OtherExpensesGrp/Desc | 0 | TELEPHONE |
| IRS990/OtherExpensesGrp/Desc | 1 | BANK CHARGES |
| IRS990/OtherExpensesGrp/Desc | 2 | DIRECT EXPENSES |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 971 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 3926 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 2 | 25 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 2182 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 4664 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 7817 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 3926 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 25 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 12265 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 24203 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 58457 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 94925 |
| IRS990/OtherWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | false |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 1075 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 2121 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 5124 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 8320 |
| IRS990/PoliciesReferenceChaptersInd | 0 | false |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 39591 |
| IRS990/PrincipalOfficerNm | 0 | JOSEPH SLAY |
| IRS990/PriorPeriodAdjustmentsAmt | 0 | 101999 |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | AWARDED GRANTS FOR RESEARCH. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 187378 |
| IRS990/ProgSrvcAccomActy2Grp/GrantAmt | 0 | 187378 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 485673 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 128249 |
| IRS990/PYInvestmentIncomeAmt | 0 | 260 |
| IRS990/PYOtherExpensesAmt | 0 | 291312 |
| IRS990/PYOtherRevenueAmt | 0 | 22053 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | -86479 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 174904 |
| IRS990/PYTotalExpensesAmt | 0 | 594465 |
| IRS990/PYTotalRevenueAmt | 0 | 507986 |
| IRS990/QuidProQuoContributionsInd | 0 | false |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | false |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | -552193 |
| IRS990/RegularMonitoringEnfrcInd | 0 | true |
| IRS990/RelatedEntityInd | 0 | true |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | true |
| IRS990/ReportInvestmentsOtherSecInd | 0 | false |
| IRS990/ReportLandBuildingEquipmentInd | 0 | true |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | false |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 465795 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 285941 |
| IRS990ScheduleA/Form990ScheduleAPartVIGrp/ExplanationTxt | 0 | OTHER INCOME 3,235 |
| IRS990ScheduleA/Form990ScheduleAPartVIGrp/FormAndLineReferenceDesc | 0 | PART II, LINE 10 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 182493 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 485673 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 315586 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 394715 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 734684 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 2113151 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt | 0 | 160 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 260 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 545 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 1289 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 1035 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 3289 |
| IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt | 0 | 602 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1330 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 1905 |
| IRS990ScheduleA/OtherIncome170Grp/TotalAmt | 0 | 3235 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.45600 |
| IRS990ScheduleA/PublicSupportPY170Pct | 0 | 0.48690 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 966517 |
| IRS990ScheduleA/SubstantialContributorsTotAmt | 0 | 1146634 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind | 0 | X |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 182493 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 485673 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 315586 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 394715 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 734684 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 2113151 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 2119675 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | true |
| IRS990ScheduleC/AvgGrassrootsNontaxableGrp/CurrentYearAmt | 0 | 33829 |
| IRS990ScheduleC/AvgGrassrootsNontaxableGrp/CurrentYearMinus1Amt | 0 | 28594 |
| IRS990ScheduleC/AvgGrassrootsNontaxableGrp/CurrentYearMinus2Amt | 0 | 26952 |
| IRS990ScheduleC/AvgGrassrootsNontaxableGrp/CurrentYearMinus3Amt | 0 | 26238 |
| IRS990ScheduleC/AvgGrassrootsNontaxableGrp/TotalAmt | 0 | 115613 |
| IRS990ScheduleC/AvgLobbyingNontaxableAmountGrp/CurrentYearAmt | 0 | 135317 |
| IRS990ScheduleC/AvgLobbyingNontaxableAmountGrp/CurrentYearMinus1Amt | 0 | 114375 |
| IRS990ScheduleC/AvgLobbyingNontaxableAmountGrp/CurrentYearMinus2Amt | 0 | 107807 |
| IRS990ScheduleC/AvgLobbyingNontaxableAmountGrp/CurrentYearMinus3Amt | 0 | 104952 |
| IRS990ScheduleC/AvgLobbyingNontaxableAmountGrp/TotalAmt | 0 | 462451 |
| IRS990ScheduleC/AvgTotalLobbyingExpendGrp/CurrentYearAmt | 0 | 60000 |
| IRS990ScheduleC/AvgTotalLobbyingExpendGrp/CurrentYearMinus1Amt | 0 | 65152 |
| IRS990ScheduleC/AvgTotalLobbyingExpendGrp/CurrentYearMinus2Amt | 0 | 61157 |
| IRS990ScheduleC/AvgTotalLobbyingExpendGrp/CurrentYearMinus3Amt | 0 | 62751 |
| IRS990ScheduleC/AvgTotalLobbyingExpendGrp/TotalAmt | 0 | 249060 |
| IRS990ScheduleC/GrassrootsCeilingAmt | 0 | 173420 |
| IRS990ScheduleC/GrassrootsNontaxableGrp/FilingOrganizationsTotalAmt | 0 | 33829 |
| IRS990ScheduleC/LobbyingCeilingAmt | 0 | 693677 |
| IRS990ScheduleC/LobbyingNontaxableAmountGrp/FilingOrganizationsTotalAmt | 0 | 135317 |
| IRS990ScheduleC/OtherExemptPurposeExpendGrp/FilingOrganizationsTotalAmt | 0 | 675448 |
| IRS990ScheduleC/TotalDirectLobbyingGrp/FilingOrganizationsTotalAmt | 0 | 60000 |
| IRS990ScheduleC/TotalExemptPurposeExpendGrp/FilingOrganizationsTotalAmt | 0 | 735448 |
| IRS990ScheduleC/TotalLobbyingExpendGrp/FilingOrganizationsTotalAmt | 0 | 60000 |
| IRS990ScheduleD/EquipmentGrp/BookValueAmt | 0 | 58281 |
| IRS990ScheduleD/EquipmentGrp/DepreciationAmt | 0 | 45102 |
| IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt | 0 | 103383 |
| IRS990ScheduleD/FootnoteTextInd | 0 | X |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 0 | THE INTERNAL REVENUE SERVICE HAS DETERMINED THAT THE ORGANIZATION IS EXEMPT FROM FEDERAL INCOME TAX UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE. THE ORGANIZATION'S FEDERAL TAX RETURNS FROM 2012 FORWARD ARE SUBJECT TO EXAMINATION BY THE INTERNAL REVENUE SERVICE, GENERALLY FOR THREE YEARS AFTER THEY WERE FILED. |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | SCHEDULE D, PAGE 3, PART X |
| IRS990ScheduleD/TotalBookValueLandBuildingsAmt | 0 | 58281 |
| IRS990ScheduleF/BoycottCountriesInd | 0 | false |
| IRS990ScheduleF/ForeignCorpOwnershipInd | 0 | false |
| IRS990ScheduleF/ForeignPartnershipInd | 0 | false |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt | 0 | 41667 |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt | 1 | 27500 |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/MannerOfCashDisbursementTxt | 0 | CHECK |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/MannerOfCashDisbursementTxt | 1 | CHECK |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt | 0 | MEDICAL RESEARCH |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt | 1 | MEDICAL RESEARCH |
| IRS990ScheduleF/InterestInForeignTrustInd | 0 | false |
| IRS990ScheduleF/PassiveForeignInvestmestCoInd | 0 | false |
| IRS990ScheduleF/SupplementalInformationDetail/ExplanationTxt | 0 | THE ORGANIZATION REQUIRES GRANT RECIPIENTS TO PROVIDE STATUS REPORTS AND ANNUAL REPORTS DURING THE GRANT PERIOD. THE ORGANIZATION MAY ALSO REQUEST SITE VISITS AND DATA STUDY TO CONFIRM THE RESEARCH IS BEING CONDUCTED IN CONFORMANCE WITH THE ORGANIZATION'S GOALS. |
| IRS990ScheduleF/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | SCHEDULE F, PAGE 1, PART I, LINE 2 |
| IRS990ScheduleF/Total501c3OrgCnt | 0 | 2 |
| IRS990ScheduleF/TransferToForeignCorpInd | 0 | false |
| IRS990ScheduleI/GrantRecordsMaintainedInd | 0 | true |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 0 | 27500 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 1 | 57291 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 2 | 27500 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 3 | 5920 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 0 | 3 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 1 | 3 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 2 | 3 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 3 | 3 |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 0 | MEDICAL RESEARCH |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 1 | MEDICAL RESEARCH |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 2 | MEDICAL RESEARCH |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 3 | MEDICAL RESEARCH |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 0 | INDIANA UNIVERSITY |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 1 | JOHNS HOPKINS |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 2 | HENRY M JACKSON FOUNDATION |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 3 | SMA FOUNDATION |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 0 | 356018940 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 1 | 520591656 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 2 | 521317896 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 3 | 010759380 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 0 | PO BOX 66057 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 1 | 855 N WOLFE ST |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 2 | 6720-A ROCKLEDGE DR STE 100 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 3 | 888 SEVENTH AVE STE 400 |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 0 | INDIANAPOLIS |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 1 | BALTIMORE |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 2 | BETHESDA |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 3 | NEW YORK |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 0 | IN |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 1 | MD |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 2 | MD |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 3 | NY |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 0 | 46266 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 1 | 21205 |
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Displayed year
2014 • Form 990Detailed filing. Detailed filing data is available for this year.
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