Civic Intelligence

Fightsma Inc

990 • Fiscal year 2014 • EIN 54-1610701

Jan 01, 2014 to Dec 31, 2014 • Filed on Nov 16, 2015

8016 Staples Mill RoadRichmond, VA 23228

(703) 299-1144

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

56th percentile

0.08x

Higher debt load relative to assets than 56% of similar nonprofits.

2014 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2014

Liabilities / Revenue

73rd percentile

0.21x

Higher debt load relative to revenue than 73% of similar nonprofits.

2014 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2014

Net Margin

1st percentile

-301%

Higher net margin than 1% of similar nonprofits.

2014 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2014

Top Officer Pay

67th percentile

$53,037

Higher top officer pay than 67% of similar nonprofits.

Top officer pay equals 28.9% of source-year revenue.

2014 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2014

Asset Growth

4th percentile

-40%

Faster asset growth than 4% of similar nonprofits.

2014 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2013 to 2014

Revenue Growth

3rd percentile

-64%

Faster revenue growth than 3% of similar nonprofits.

2014 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2013 to 2014

Assets

Down

$503,433

Down $328,697 (-40%) from 2013

Net Assets

Down

$464,839

Down $336,991 (-42%) from 2013

Liabilities

Up

$38,594

Up $8,294 (+27%) from 2013

Revenue

Down

$183,232

Down $324,754 (-64%) from 2013

Expenses

Up

$735,425

Up $140,960 (+24%) from 2013

Net Income

Down

-$552,193

Down $465,714 (-539%) from 2013

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.0M$500K$0Assets 2013: $832,130Liabilities 2013: $30,300Net Assets 2013: $801,8302013Assets 2014: $503,433Liabilities 2014: $38,594Net Assets 2014: $464,8392014Assets 2015: $583,511Liabilities 2015: $38,166Net Assets 2015: $545,3452015Assets 2016: $298,799Liabilities 2016: $22,008Net Assets 2016: $276,7912016Assets 2017: $0Liabilities 2017: $0Net Assets 2017: $02017

Highlighted filing

2014

Assets$503,433
Liabilities$38,594
Net Assets$464,839

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.0M$500K$0-$500K-$1.0MRevenue 2013: $507,986Expenses 2013: $594,465Net Income 2013: -$86,4792013Revenue 2014: $183,232Expenses 2014: $735,425Net Income 2014: -$552,1932014Revenue 2015: $772,903Expenses 2015: $703,955Net Income 2015: $68,9482015Revenue 2016: $235,119Expenses 2016: $571,317Net Income 2016: -$336,1982016Revenue 2017: $17,956Expenses 2017: $316,450Net Income 2017: -$298,4942017

Highlighted filing

2014

Revenue$183,232
Expenses$735,425
Net Income-$552,193
Jump To
Filing Snapshot
Filing Period
Jan 1, 2014 to Dec 31, 2014
Signed
Nov 16, 2015
Return Version
2014v5.0
Gross Receipts
$183,255
Mission and Program Overview

Mission

Fightsma engages leading scientists and policymakers to pursue a cure for, and raises public awareness of spinal muscular atrophy (sma), a degenerative neuromuscular disease which is the leading genetic cause of death for children under 2. Approximately 1 in 40 people carry the gene for this disease, and about 1 in 10,000 live births are affected. In addition to funding vital scientific research, fightsma works to maintain an active dialog between the scientific research community, the patient community, and policymakers.

To educate the public about and to raise funds for research to develop a cure for spinal muscular atrophy.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$465,795$285,941▼ $179,854
Cash and Non-Interest-Bearing Accounts$337,208$117,227▼ $219,981
Land, Buildings, and Equipment, Net$25,109$58,281▲ $33,172
Prepaid Expenses and Deferred Charges-$39,591-
Total Assets$832,130$503,433▼ $328,697
Other Assets Total$4,018$2,393▼ $1,625
Liabilities
Accounts Payable and Accrued Expenses$30,300$38,594▲ $8,294
Total Liabilities$30,300$38,594▲ $8,294
Net Assets / Fund Balance
Unrestricted Net Assets$801,830$392,339▼ $409,491
Temporarily Rstr Net Assets-$72,500-
Total Net Assets Fund Balance$801,830$464,839▼ $336,991
Total Liabilities and Net Assets / Fund Balance$832,130$503,433▼ $328,697

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$58,281$45,102$103,383
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseTotal
Daniel HaydenInterim ExecPT$53,037$53,037

Board Members and Trustees

NameTitle
Michael CaliseChairman
Bill StrongDirector
Duncan ElliottDirector
Kathy TompkinsDirector
Martha SlayDirector
Rod AdamsDirector
Terry GriffinDirector
Elise FinknerSecretary
Joseph SlayTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$182,493
Program Service Revenue
$0
Investment Income
$160
Other Revenue
$579
All Other Contributions
$182,493
Change in Net Assets
$-552,193
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$391,765
Grants and Similar Amounts Paid$187,378
Salaries, Compensation, and Employee Benefits$156,282
Total Fundraising Expense$69,094
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$118,211--$118,211
Other Salaries and Wages$58,457$24,203$12,265$94,925
Office Expenses$60,380$17,190$15,293$92,863
Conferences and Meetings$66,706$11,571$237$78,514
Foreign Grants$69,167--$69,167
Fees for Services Other$42,178$8,995$9,006$60,179
Fees for Services Lobbying$42,053$8,969$8,978$60,000
Current Officers, Directors, Trustees, and Key Employees$37,172$7,928$7,937$53,037
Fees for Services Accounting$29,678$6,330$6,336$42,344
Occupancy$19,415$6,347$4,107$29,869
Travel$4,470$5,863$-1,062$9,271
Payroll Taxes$5,124$2,121$1,075$8,320
Depreciation Depletion$3,479$3,478-$6,957
Other Expenses$4,664$2,182$25$25
Total Functional Expenses$561,154$105,177$69,094$735,425
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Johns HopkinsBaltimore, MD3Medical Research$57,291
Henry M Jackson FoundationBethesda, MD3Medical Research$27,500
Indiana UniversityIndianapolis, IN3Medical Research$27,500
Sma FoundationNew York, NY3Medical Research$5,920

International Compliance

Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$602
Fundraising Direct Expenses$23
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
Yes
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 2

Martha slay joseph slay director treasurer spouse

Form 990, Page 6, Part VI, Line 10B

The chapters follow the same policies and procedures as the parent chapter. These policies and procedures are communicated annually to all chapters.

Form 990, Page 6, Part VI, Line 11B

A copy of the form 990 was made available to the board of directors and was carefully reviewed prior to filing.

Form 990, Page 6, Part VI, Line 12C

The board of directors has a conflict of interest policy which is set forth in the bylaws and is reviewed annually or when there is a need to consider the possible abstention of a board member from the decision making process. Each year, the board members must disclose any possible conflicts of interest and the remaining board members will determine how the situation should be addressed.

Form 990, Page 6, Part VI, Line 15A

The board of directors determines salaries and approves a total budget for salary increases.

Form 990, Page 6, Part VI, Line 19

The governing documents are available upon request.

Filing and Contact Details

Filer

Filer Name
Fightsma Inc
EIN
54-1610701
Phone
7032991144
Address
8016 STAPLES MILL ROAD, RICHMOND, VA 23228

Signing Officer

Name
Joseph Slay
Title
Treasurer
Phone
7032991144
Signed
2015-11-16
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Joseph Slay
Formed
1991
Legal Domicile
Va
Voting Board Members
10
Independent Board Members
9
Employees
2
Volunteers
41

Preparer

Firm
Wellscoleman
Address
3800 PATTERSON AVE, RICHMOND, VA 23221-2034
Preparer
Phyllis S Mutchnick
Phone
8043581150
Supplemental Narrative

Additional Explanations

Form 990, Part XI, Line 9

Net assets from affiliates 113,203

Financial Statement Notes

Schedule D, Page 3, Part X

The internal revenue service has determined that the organization is exempt from federal income tax under section 501(c)(3) of the internal revenue code. The organization's federal tax returns from 2012 forward are subject to examination by the internal revenue service, generally for three years after they were filed.

Raw XML AppendixShowing 400 of 536 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd0false
IRS990/AccountsPayableAccrExpnssGrp/BOYAmt030300
IRS990/AccountsPayableAccrExpnssGrp/EOYAmt038594
IRS990/ActivitiesConductedPrtshpInd0false
IRS990/ActivityOrMissionDesc0TO EDUCATE THE PUBLIC ABOUT AND TO RAISE FUNDS FOR RESEARCH TO DEVELOP A CURE FOR SPINAL MUSCULAR ATROPHY.
IRS990/AddressChangeInd0X
IRS990/AllOtherContributionsAmt0182493
IRS990/AnnualDisclosureCoveredPrsnInd0true
IRS990/AuditCommitteeInd0true
IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt0NET 30 INC
IRS990/BooksInCareOfDetail/PhoneNum08047169070
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt08016 STAPLES MILL ROAD
IRS990/BooksInCareOfDetail/USAddress/CityNm0RICHMOND
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0VA
IRS990/BooksInCareOfDetail/USAddress/ZIPCd023228
IRS990/BusinessRlnWithFamMemInd0false
IRS990/BusinessRlnWithOfficerEntInd0false
IRS990/BusinessRlnWithOrgMemInd0false
IRS990/CashNonInterestBearingGrp/BOYAmt0337208
IRS990/CashNonInterestBearingGrp/EOYAmt0117227
IRS990/ChangeToOrgDocumentsInd0false
IRS990/CollectionsOfArtInd0false
IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt07937
IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt07928
IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt037172
IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt053037
IRS990/CompensationFromOtherSrcsInd0false
IRS990/CompensationProcessCEOInd0true
IRS990/CompensationProcessOtherInd0false
IRS990/ConferencesMeetingsGrp/FundraisingAmt0237
IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt011571
IRS990/ConferencesMeetingsGrp/ProgramServicesAmt066706
IRS990/ConferencesMeetingsGrp/TotalAmt078514
IRS990/ConflictOfInterestPolicyInd0true
IRS990/ConservationEasementsInd0false
IRS990/ConsolidatedAuditFinclStmtInd0true
IRS990/CreditCounselingInd0false
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt0182493
IRS990/CYGrantsAndSimilarPaidAmt0187378
IRS990/CYInvestmentIncomeAmt0160
IRS990/CYOtherExpensesAmt0391765
IRS990/CYOtherRevenueAmt0579
IRS990/CYProgramServiceRevenueAmt00
IRS990/CYRevenuesLessExpensesAmt0-552193
IRS990/CYSalariesCompEmpBnftPaidAmt0156282
IRS990/CYTotalExpensesAmt0735425
IRS990/CYTotalFundraisingExpenseAmt069094
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt0183232
IRS990/DecisionsSubjectToApprovaInd0false
IRS990/DeductibleArtContributionInd0false
IRS990/DeductibleNonCashContriInd0false
IRS990/DelegationOfMgmtDutiesInd0false
IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt03478
IRS990/DepreciationDepletionGrp/ProgramServicesAmt03479
IRS990/DepreciationDepletionGrp/TotalAmt06957
IRS990/Desc0RAISED PUBLIC AWARENESS REGARDING SPINAL MUSCULAR ATROPHY AND FUNDS FOR RESEARCH.
IRS990/DescribedInSection501c3Ind0true
IRS990/DisregardedEntityInd0false
IRS990/DocumentRetentionPolicyInd0false
IRS990/DonorAdvisedFundInd0false
IRS990/ElectionOfBoardMembersInd0false
IRS990/EmployeeCnt02
IRS990/EmploymentTaxReturnsFiledInd0true
IRS990/EngagedInExcessBenefitTransInd0false
IRS990/ExpenseAmt0373776
IRS990/FamilyOrBusinessRlnInd0true
IRS990/FederalGrantAuditRequiredInd0false
IRS990/FeesForServicesAccountingGrp/FundraisingAmt06336
IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt06330
IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt029678
IRS990/FeesForServicesAccountingGrp/TotalAmt042344
IRS990/FeesForServicesLobbyingGrp/FundraisingAmt08978
IRS990/FeesForServicesLobbyingGrp/ManagementAndGeneralAmt08969
IRS990/FeesForServicesLobbyingGrp/ProgramServicesAmt042053
IRS990/FeesForServicesLobbyingGrp/TotalAmt060000
IRS990/FeesForServicesOtherGrp/FundraisingAmt09006
IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt08995
IRS990/FeesForServicesOtherGrp/ProgramServicesAmt042178
IRS990/FeesForServicesOtherGrp/TotalAmt060179
IRS990/ForeignActivitiesInd0false
IRS990/ForeignFinancialAccountInd0false
IRS990/ForeignGrantsGrp/ProgramServicesAmt069167
IRS990/ForeignGrantsGrp/TotalAmt069167
IRS990/ForeignOfficeInd0false
IRS990/Form1098CFiledInd0false
IRS990/Form8282PropertyDisposedOfInd0false
IRS990/Form8899Filedind0false
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt024.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt11.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt21.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt31.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt41.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt51.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt61.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt71.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt81.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt91.00
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd8X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd9X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/PersonNm0DANIEL HAYDEN
IRS990/Form990PartVIISectionAGrp/PersonNm1ROD ADAMS
IRS990/Form990PartVIISectionAGrp/PersonNm2DUNCAN ELLIOTT
IRS990/Form990PartVIISectionAGrp/PersonNm3TERRY GRIFFIN
IRS990/Form990PartVIISectionAGrp/PersonNm4MARTHA SLAY
IRS990/Form990PartVIISectionAGrp/PersonNm5BILL STRONG
IRS990/Form990PartVIISectionAGrp/PersonNm6KATHY TOMPKINS
IRS990/Form990PartVIISectionAGrp/PersonNm7MICHAEL CALISE
IRS990/Form990PartVIISectionAGrp/PersonNm8JOSEPH SLAY
IRS990/Form990PartVIISectionAGrp/PersonNm9ELISE FINKNER
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt053037
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/TitleTxt0INTERIM EXEC
IRS990/Form990PartVIISectionAGrp/TitleTxt1DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt2DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7CHAIRMAN
IRS990/Form990PartVIISectionAGrp/TitleTxt8TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt9SECRETARY
IRS990/Form990ProvidedToGvrnBodyInd0true
IRS990/FormationYr01991
IRS990/FormerOfcrEmployeesListedInd0false
IRS990/FSAuditedBasisGrp/ConsolidatedBasisFinclStmtInd0X
IRS990/FSAuditedInd0true
IRS990/FundraisingActivitiesInd0false
IRS990/FundraisingDirectExpensesAmt023
IRS990/FundraisingGrossIncomeAmt0602
IRS990/GamingActivitiesInd0false
IRS990/GoverningBodyVotingMembersCnt010
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt0118211
IRS990/GrantsToDomesticOrgsGrp/TotalAmt0118211
IRS990/GrantsToIndividualsInd0false
IRS990/GrantsToOrganizationsInd0true
IRS990/GrantToRelatedPersonInd0false
IRS990/GrossReceiptsAmt0183255
IRS990/GroupReturnForAffiliatesInd0false
IRS990/IncludeFIN48FootnoteInd0true
IRS990/IndependentAuditFinclStmtInd0false
IRS990/IndependentVotingMemberCnt09
IRS990/IndoorTanningServicesInd0false
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InvestmentIncomeGrp/ExclusionAmt0160
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt0160
IRS990/InvestmentInJointVentureInd0false
IRS990/IRPDocumentCnt013
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt045102
IRS990/LandBldgEquipBasisNetGrp/BOYAmt025109
IRS990/LandBldgEquipBasisNetGrp/EOYAmt058281
IRS990/LandBldgEquipCostOrOtherBssAmt0103383
IRS990/LegalDomicileStateCd0VA
IRS990/LoanOutstandingInd0false
IRS990/LobbyingActivitiesInd0true
IRS990/LocalChaptersInd0true
IRS990/MaterialDiversionOrMisuseInd0false
IRS990/MembersOrStockholdersInd0false
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd0true
IRS990/MinutesOfGoverningBodyInd0true
IRS990/MissionDesc0TO EDUCATE THE PUBLIC ABOUT AND TO RAISE FUNDS FOR RESEARCH TO DEVELOP A CURE FOR SPINAL MUSCULAR ATROPHY.
IRS990/MoreThan5000KToIndividualsInd0false
IRS990/MoreThan5000KToOrgInd0true
IRS990/NetAssetsOrFundBalancesBOYAmt0801830
IRS990/NetAssetsOrFundBalancesEOYAmt0464839
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0579
IRS990/NondeductibleContributionsInd0false
IRS990/OccupancyGrp/FundraisingAmt04107
IRS990/OccupancyGrp/ManagementAndGeneralAmt06347
IRS990/OccupancyGrp/ProgramServicesAmt019415
IRS990/OccupancyGrp/TotalAmt029869
IRS990/OfficeExpensesGrp/FundraisingAmt015293
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt017190
IRS990/OfficeExpensesGrp/ProgramServicesAmt060380
IRS990/OfficeExpensesGrp/TotalAmt092863
IRS990/OfficerMailingAddressInd0false
IRS990/OperateHospitalInd0false
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt04018
IRS990/OtherAssetsTotalGrp/EOYAmt02393
IRS990/OtherChangesInNetAssetsAmt0113203
IRS990/OtherExpensesGrp/Desc0TELEPHONE
IRS990/OtherExpensesGrp/Desc1BANK CHARGES
IRS990/OtherExpensesGrp/Desc2DIRECT EXPENSES
IRS990/OtherExpensesGrp/FundraisingAmt0971
IRS990/OtherExpensesGrp/FundraisingAmt13926
IRS990/OtherExpensesGrp/FundraisingAmt225
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt02182
IRS990/OtherExpensesGrp/ProgramServicesAmt04664
IRS990/OtherExpensesGrp/TotalAmt07817
IRS990/OtherExpensesGrp/TotalAmt13926
IRS990/OtherExpensesGrp/TotalAmt225
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt012265
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt024203
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt058457
IRS990/OtherSalariesAndWagesGrp/TotalAmt094925
IRS990/OtherWebsiteInd0X
IRS990/PartialLiquidationInd0false
IRS990/PayPremiumsPrsnlBnftCntrctInd0false
IRS990/PayrollTaxesGrp/FundraisingAmt01075
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt02121
IRS990/PayrollTaxesGrp/ProgramServicesAmt05124
IRS990/PayrollTaxesGrp/TotalAmt08320
IRS990/PoliciesReferenceChaptersInd0false
IRS990/PoliticalCampaignActyInd0false
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt039591
IRS990/PrincipalOfficerNm0JOSEPH SLAY
IRS990/PriorPeriodAdjustmentsAmt0101999
IRS990/ProfessionalFundraisingInd0false
IRS990/ProgSrvcAccomActy2Grp/Desc0AWARDED GRANTS FOR RESEARCH.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0187378
IRS990/ProgSrvcAccomActy2Grp/GrantAmt0187378
IRS990/ProhibitedTaxShelterTransInd0false
IRS990/PYContributionsGrantsAmt0485673
IRS990/PYExcessBenefitTransInd0false
IRS990/PYGrantsAndSimilarPaidAmt0128249
IRS990/PYInvestmentIncomeAmt0260
IRS990/PYOtherExpensesAmt0291312
IRS990/PYOtherRevenueAmt022053
IRS990/PYRevenuesLessExpensesAmt0-86479
IRS990/PYSalariesCompEmpBnftPaidAmt0174904
IRS990/PYTotalExpensesAmt0594465
IRS990/PYTotalRevenueAmt0507986
IRS990/QuidProQuoContributionsInd0false
IRS990/RcvFndsToPayPrsnlBnftCntrctInd0false
IRS990/ReconcilationRevenueExpnssAmt0-552193
IRS990/RegularMonitoringEnfrcInd0true
IRS990/RelatedEntityInd0true
IRS990/RelatedOrganizationCtrlEntInd0true
IRS990/ReportInvestmentsOtherSecInd0false
IRS990/ReportLandBuildingEquipmentInd0true
IRS990/ReportOtherAssetsInd0false
IRS990/ReportOtherLiabilitiesInd0false
IRS990/ReportProgramRelatedInvstInd0false
IRS990/SavingsAndTempCashInvstGrp/BOYAmt0465795
IRS990/SavingsAndTempCashInvstGrp/EOYAmt0285941
IRS990ScheduleA/Form990ScheduleAPartVIGrp/ExplanationTxt0OTHER INCOME 3,235
IRS990ScheduleA/Form990ScheduleAPartVIGrp/FormAndLineReferenceDesc0PART II, LINE 10
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt0182493
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt0485673
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0315586
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0394715
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0734684
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt02113151
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt0160
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt0260
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt0545
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt01289
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt01035
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt03289
IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt0602
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus2YearsAmt01330
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus3YearsAmt01905
IRS990ScheduleA/OtherIncome170Grp/TotalAmt03235
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.45600
IRS990ScheduleA/PublicSupportPY170Pct00.48690
IRS990ScheduleA/PublicSupportTotal170Amt0966517
IRS990ScheduleA/SubstantialContributorsTotAmt01146634
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt0182493
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt0485673
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0315586
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0394715
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0734684
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt02113151
IRS990ScheduleA/TotalSupportAmt02119675
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd0true
IRS990ScheduleC/AvgGrassrootsNontaxableGrp/CurrentYearAmt033829
IRS990ScheduleC/AvgGrassrootsNontaxableGrp/CurrentYearMinus1Amt028594
IRS990ScheduleC/AvgGrassrootsNontaxableGrp/CurrentYearMinus2Amt026952
IRS990ScheduleC/AvgGrassrootsNontaxableGrp/CurrentYearMinus3Amt026238
IRS990ScheduleC/AvgGrassrootsNontaxableGrp/TotalAmt0115613
IRS990ScheduleC/AvgLobbyingNontaxableAmountGrp/CurrentYearAmt0135317
IRS990ScheduleC/AvgLobbyingNontaxableAmountGrp/CurrentYearMinus1Amt0114375
IRS990ScheduleC/AvgLobbyingNontaxableAmountGrp/CurrentYearMinus2Amt0107807
IRS990ScheduleC/AvgLobbyingNontaxableAmountGrp/CurrentYearMinus3Amt0104952
IRS990ScheduleC/AvgLobbyingNontaxableAmountGrp/TotalAmt0462451
IRS990ScheduleC/AvgTotalLobbyingExpendGrp/CurrentYearAmt060000
IRS990ScheduleC/AvgTotalLobbyingExpendGrp/CurrentYearMinus1Amt065152
IRS990ScheduleC/AvgTotalLobbyingExpendGrp/CurrentYearMinus2Amt061157
IRS990ScheduleC/AvgTotalLobbyingExpendGrp/CurrentYearMinus3Amt062751
IRS990ScheduleC/AvgTotalLobbyingExpendGrp/TotalAmt0249060
IRS990ScheduleC/GrassrootsCeilingAmt0173420
IRS990ScheduleC/GrassrootsNontaxableGrp/FilingOrganizationsTotalAmt033829
IRS990ScheduleC/LobbyingCeilingAmt0693677
IRS990ScheduleC/LobbyingNontaxableAmountGrp/FilingOrganizationsTotalAmt0135317
IRS990ScheduleC/OtherExemptPurposeExpendGrp/FilingOrganizationsTotalAmt0675448
IRS990ScheduleC/TotalDirectLobbyingGrp/FilingOrganizationsTotalAmt060000
IRS990ScheduleC/TotalExemptPurposeExpendGrp/FilingOrganizationsTotalAmt0735448
IRS990ScheduleC/TotalLobbyingExpendGrp/FilingOrganizationsTotalAmt060000
IRS990ScheduleD/EquipmentGrp/BookValueAmt058281
IRS990ScheduleD/EquipmentGrp/DepreciationAmt045102
IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt0103383
IRS990ScheduleD/FootnoteTextInd0X
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0THE INTERNAL REVENUE SERVICE HAS DETERMINED THAT THE ORGANIZATION IS EXEMPT FROM FEDERAL INCOME TAX UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE. THE ORGANIZATION'S FEDERAL TAX RETURNS FROM 2012 FORWARD ARE SUBJECT TO EXAMINATION BY THE INTERNAL REVENUE SERVICE, GENERALLY FOR THREE YEARS AFTER THEY WERE FILED.
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0SCHEDULE D, PAGE 3, PART X
IRS990ScheduleD/TotalBookValueLandBuildingsAmt058281
IRS990ScheduleF/BoycottCountriesInd0false
IRS990ScheduleF/ForeignCorpOwnershipInd0false
IRS990ScheduleF/ForeignPartnershipInd0false
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt041667
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt127500
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/MannerOfCashDisbursementTxt0CHECK
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/MannerOfCashDisbursementTxt1CHECK
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt0MEDICAL RESEARCH
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt1MEDICAL RESEARCH
IRS990ScheduleF/InterestInForeignTrustInd0false
IRS990ScheduleF/PassiveForeignInvestmestCoInd0false
IRS990ScheduleF/SupplementalInformationDetail/ExplanationTxt0THE ORGANIZATION REQUIRES GRANT RECIPIENTS TO PROVIDE STATUS REPORTS AND ANNUAL REPORTS DURING THE GRANT PERIOD. THE ORGANIZATION MAY ALSO REQUEST SITE VISITS AND DATA STUDY TO CONFIRM THE RESEARCH IS BEING CONDUCTED IN CONFORMANCE WITH THE ORGANIZATION'S GOALS.
IRS990ScheduleF/SupplementalInformationDetail/FormAndLineReferenceDesc0SCHEDULE F, PAGE 1, PART I, LINE 2
IRS990ScheduleF/Total501c3OrgCnt02
IRS990ScheduleF/TransferToForeignCorpInd0false
IRS990ScheduleI/GrantRecordsMaintainedInd0true
IRS990ScheduleI/RecipientTable/CashGrantAmt027500
IRS990ScheduleI/RecipientTable/CashGrantAmt157291
IRS990ScheduleI/RecipientTable/CashGrantAmt227500
IRS990ScheduleI/RecipientTable/CashGrantAmt35920
IRS990ScheduleI/RecipientTable/IRCSectionDesc03
IRS990ScheduleI/RecipientTable/IRCSectionDesc13
IRS990ScheduleI/RecipientTable/IRCSectionDesc23
IRS990ScheduleI/RecipientTable/IRCSectionDesc33
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0MEDICAL RESEARCH
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt1MEDICAL RESEARCH
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt2MEDICAL RESEARCH
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt3MEDICAL RESEARCH
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0INDIANA UNIVERSITY
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1JOHNS HOPKINS
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt2HENRY M JACKSON FOUNDATION
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt3SMA FOUNDATION
IRS990ScheduleI/RecipientTable/RecipientEIN0356018940
IRS990ScheduleI/RecipientTable/RecipientEIN1520591656
IRS990ScheduleI/RecipientTable/RecipientEIN2521317896
IRS990ScheduleI/RecipientTable/RecipientEIN3010759380
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt0PO BOX 66057
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt1855 N WOLFE ST
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt26720-A ROCKLEDGE DR STE 100
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt3888 SEVENTH AVE STE 400
IRS990ScheduleI/RecipientTable/USAddress/CityNm0INDIANAPOLIS
IRS990ScheduleI/RecipientTable/USAddress/CityNm1BALTIMORE
IRS990ScheduleI/RecipientTable/USAddress/CityNm2BETHESDA
IRS990ScheduleI/RecipientTable/USAddress/CityNm3NEW YORK
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0IN
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd1MD
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd2MD
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd3NY
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd046266
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd121205

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Peer Organizations

Similar nonprofits based on the same Siviq industry and scale cohort. 2014 filings • 501(c)3 • $500k-$1M nonprofits