Civic Intelligence

National Scleroderma Foundation Inc

990 • Fiscal year 2020 • EIN 52-1375827

Jul 01, 2019 to Jun 30, 2020 • Filed on Jan 11, 2021

Organization ProfileWWW.SCLERODERMA.ORG

View Organization Page

300 Rosewood Drive No 105Danvers, MA 01923

(800) 722-4673

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

45th percentile

0.18x

Higher debt load relative to assets than 45% of similar nonprofits.

2020 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2020

Liabilities / Revenue

67th percentile

0.55x

Higher debt load relative to revenue than 67% of similar nonprofits.

2020 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2020

Net Margin

9th percentile

-31%

Higher net margin than 9% of similar nonprofits.

2020 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2020

Top Officer Pay

Score unavailable

No value available

This filing does not contain officer compensation rows.

Source year 2020

Asset Growth

12th percentile

-4.8%

Faster asset growth than 12% of similar nonprofits.

2020 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2019 to 2020

Revenue Growth

19th percentile

-19%

Faster revenue growth than 19% of similar nonprofits.

2020 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2019 to 2020

Balance Sheet
Liabilities / Assets45th percentile

Assets

Down

$11,612,013

Down $588,125 (-4.8%) from 2019

Net Assets

Down

$9,514,379

Down $904,243 (-8.7%) from 2019

Liabilities

Up

$2,097,634

Up $316,118 (+18%) from 2019

Revenue And Expenses
Liabilities / Revenue67th percentileNet Margin9th percentile

Revenue

Down

$3,811,707

Down $917,599 (-19%) from 2019

Expenses

Up

$5,012,061

Up $213,758 (+4.5%) from 2019

Net Income

Down

-$1,200,354

Down $1,131,357 (-1640%) from 2019

Historical Trend

Balance Sheet Trend

Asset Growth12th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$15M$10M$5.0M$0Assets 2010: $9,935,037Liabilities 2010: $1,579,840Net Assets 2010: $8,355,1972010Assets 2011: $11,045,930Liabilities 2011: $1,560,031Net Assets 2011: $9,485,8992011Assets 2012: $10,615,606Liabilities 2012: $1,432,774Net Assets 2012: $9,182,8322012Assets 2013: $11,639,084Liabilities 2013: $1,621,659Net Assets 2013: $10,017,4252013Assets 2014: $12,465,186Liabilities 2014: $1,492,517Net Assets 2014: $10,972,6692014Assets 2015: $12,755,110Liabilities 2015: $2,337,137Net Assets 2015: $10,417,9732015Assets 2016: $12,011,971Liabilities 2016: $2,360,474Net Assets 2016: $9,651,4972016Assets 2017: $12,288,226Liabilities 2017: $2,219,558Net Assets 2017: $10,068,6682017Assets 2018: $11,983,494Liabilities 2018: $1,911,822Net Assets 2018: $10,071,6722018Assets 2019: $12,200,138Liabilities 2019: $1,781,516Net Assets 2019: $10,418,6222019Assets 2020: $11,612,013Liabilities 2020: $2,097,634Net Assets 2020: $9,514,3792020Assets 2021: $13,492,271Liabilities 2021: $2,093,581Net Assets 2021: $11,398,6902021Assets 2022: $11,463,074Liabilities 2022: $2,913,453Net Assets 2022: $8,549,6212022Assets 2023: $12,897,422Liabilities 2023: $3,086,186Net Assets 2023: $9,811,2362023Assets 2025: $11,259,408Liabilities 2025: $2,926,793Net Assets 2025: $8,332,6152025

Highlighted filing

2020

Assets$11,612,013
Liabilities$2,097,634
Net Assets$9,514,379
Open 2020 Filing

Operations Trend

Revenue Growth19th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$10M$5.0M$0-$5.0MRevenue 2010: $1,606,276Expenses 2010: $807,667Net Income 2010: $798,6092010Revenue 2011: $5,692,673Expenses 2011: $5,411,841Net Income 2011: $280,8322011Expenses 2012: $4,446,1582012Expenses 2013: $4,069,7232013Revenue 2014: $4,848,710Expenses 2014: $4,331,065Net Income 2014: $517,6452014Revenue 2015: $5,222,808Expenses 2015: $5,627,220Net Income 2015: -$404,4122015Revenue 2016: $4,338,344Expenses 2016: $4,935,756Net Income 2016: -$597,4122016Revenue 2017: $5,165,236Expenses 2017: $5,211,320Net Income 2017: -$46,0842017Revenue 2018: $4,939,002Expenses 2018: $5,001,317Net Income 2018: -$62,3152018Revenue 2019: $4,729,306Expenses 2019: $4,798,303Net Income 2019: -$68,9972019Revenue 2020: $3,811,707Expenses 2020: $5,012,061Net Income 2020: -$1,200,3542020Revenue 2021: $4,188,631Expenses 2021: $4,468,676Net Income 2021: -$280,0452021Revenue 2022: $4,581,467Expenses 2022: $6,210,712Net Income 2022: -$1,629,2452022Revenue 2023: $6,915,898Expenses 2023: $6,461,742Net Income 2023: $454,1562023Revenue 2025: $6,628,652Expenses 2025: $6,783,274Net Income 2025: -$154,6222025

Highlighted filing

2020

Revenue$3,811,707
Expenses$5,012,061
Net Income-$1,200,354
Open 2020 Filing
Jump To
Filing Snapshot
Filing Period
Jul 1, 2019 to Jun 30, 2020
Signed
Jan 11, 2021
Return Version
2019v5.1
Gross Receipts
$6,433,133
Mission and Program Overview

Mission

Scleroderma foundation, inc. Is a nonprofit organization dedicated to the concerns of people whose lives have been impacted by the autoimmune disease scleroderma (a.k.a. Systemic sclerosis), and related conditions. Its three fold mission of support, education and research guides the organization's work in providing education programs for patients and their families, peer-to-peer support through its nationwide network of chapters and support groups, and advocacy efforts to increase awareness of the disease among the general public and medical community. The organization also has a research program that funds clinical and bench research to find treatment modalities, the cause, and hopefully the cure for scleroderma and related conditions.

Scleroderma foundation's mission is threefold: 1) support to help patients and their families cope with scleroderma through mutual support programs, peer counseling, physician referrals, and educational information. 2) education to promote public awareness and education through patient and health professional seminars, literature, and publicity campaigns. And 3) research to stimulate and support research to improve treatments and, ultimately, find the cause of and cure for scleroderma.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$8,864,083$8,726,153▼ $137,930
Cash and Non-Interest-Bearing Accounts$2,174,510$2,170,807▼ $3,703
Savings and Temporary Cash Investments$608,653$205,356▼ $403,297
Prepaid Expenses and Deferred Charges$149,214$135,016▼ $14,198
Pledges and Grants Receivable$166,944$58,410▼ $108,534
Land, Buildings, and Equipment, Net$17,485$28,142▲ $10,657
Total Assets$12,200,138$11,612,013▼ $588,125
Other Assets Total$219,249$288,129▲ $68,880
Liabilities
Grants Payable$1,417,500$1,587,500▲ $170,000
Unsecured Notes Loans Payable-$249,962-
Accounts Payable and Accrued Expenses$168,690$185,509▲ $16,819
Deferred Revenue$128,542$0▼ $128,542
Other Liabilities$66,784$74,663▲ $7,879
Total Liabilities$1,781,516$2,097,634▲ $316,118
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$8,618,498$7,711,504▼ $906,994
Net Assets With Donor Restrictions$1,800,124$1,802,875▲ $2,751
Total Net Assets Fund Balance$10,418,622$9,514,379▼ $904,243
Total Liabilities and Net Assets / Fund Balance$12,200,138$11,612,013▼ $588,125

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$27,447$91,499$118,946
Other Land Buildings$695$77,633$78,328
Leasehold Improvements$0$8,393$8,393

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2019$1,627,038$31,682▲ $101,713$101,713$1,658,720
2018$1,662,877-▲ $115,953$151,792$1,627,038
2017$1,916,225-▲ $65,063$318,411$1,662,877
2016$1,886,371-▲ $114,671$84,817$1,916,225
2015$2,056,133-▲ $30,238$200,000$1,886,371
Compensation and Service Providers
Top Officer PayScore unavailable

Employees

NameTitleFull / Part TimeBaseOtherTotal
Robert J RiggsCEOFT$115,042$13,897$128,939

Board Members and Trustees

NameTitle
Cos MallozziChair
Carol Feghali-bostwick PhdVice Chair
Christina LocckeDirector
Cyndy BesselievreDirector
Jane LadasDirector
Kevin BoyanowskiDirector
Linda BaumDirector
Marcia WalkerDirector
Mark OrozcoDirector
Mary Beth TourbinDirector
Mary BladesDirector
Mike LevengoodSecretary
Greg MarionTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
Blackbaud INCWebsite SupportPO BOX 930256, Atlanta, GA 31193$128,020
Brogan & PartnersEvent & Education Services535 WOODWARD HEIGHTS, Ferndale, MI 48220$121,000
Revenue and Support

Revenue Composition

Contributions and Grants
$3,405,450
Program Service Revenue
$128,846
Investment Income
$247,976
Other Revenue
$29,435
All Other Contributions
$3,362,469
Change in Net Assets
$-1,200,354

Audited Revenue Reconciliation

Revenue per Audited Statements
$3,763,969
Revenue Not Reported on Financial Statements
$47,738
Revenue Not Reported on Form 990
$296,111
Total Revenue per Audited Statements
$4,060,080
Total Revenue per Form 990
$3,811,707
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$2,395,570
Salaries, Compensation, and Employee Benefits$1,415,946
Grants and Similar Amounts Paid$1,200,545
Total Fundraising Expense$207,761
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$1,200,000--$1,200,000
Other Salaries and Wages$731,570$268,810$81,561$1,081,941
Conferences and Meetings$641,634$16,611$281$658,526
Payments to Affiliates$479,589--$479,589
Fees for Services Other$215,560$23,758$22,676$261,994
Information Technology$146,474$78,706$23,968$249,148
Occupancy$126,550$39,157$11,924$177,631
Office Expenses$110,787$25,534$23,047$159,368
Current Officers, Directors, Trustees, and Key Employees$76,046$41,957$13,111$131,114
Other Employee Benefits$58,645$29,896$9,077$97,618
Payroll Taxes$61,663$23,622$7,194$92,479
Travel$45,510$22,717-$68,227
Insurance$38,085$20,465$6,233$64,783
Fees for Service Investment Mgmnt Fees-$47,738-$47,738
Fees for Services Accounting-$30,400-$30,400
Fees for Services Legal-$20,307-$20,307
Pension Plan Contributions$7,724$3,893$1,177$12,794
Advertising$5,668$1,725-$7,393
Depreciation Depletion$4,525$1,853$565$6,943
Other Expenses$2,558$2,339$712$2,558
Grants to Domestic Individuals$545--$545
Total Functional Expenses$4,084,336$719,964$207,761$5,012,061

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Form 990$5,012,061
Expenses per Audited Statements$4,964,323
Total Expenses per Audited Statements$4,964,323
Expenses Not Reported on Financial Statements$47,738
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
ANN & ROBERT H CHILDREN'S HOSPITAL OF CHICAGOChicago, IL501(c)3Research$150,000
Hospital for Special SurgeryNew York, NY501(c)3Research$150,000
Johns Hopkins UniversityBaltimore, MD501(c)3Research$150,000
Massachusetts General HospitalBoston, MA501(c)3Research$150,000
Regents of University of MichiganAnn Arbor, MI501(c)3Research$150,000
Trustees of Boston University BumcBoston, MA501(c)3Research$150,000
University of PittsburghPittsburgh, PA501(c)3Research$150,000
University of RochesterRochester, NY501(c)3Research$150,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$157,686
Fundraising Gross Income$157,686
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Coconut Creek Stepping Out Walk$51,100$40,155$40,155$0
Detroit Stepping Out Walk$49,930$39,235$39,235$0
Total Events$200,667$157,686$157,686$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Due to Affiliates$74,663
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“Prior to filing, the form 990 is given to all board members for review. Any questions are answered by either mangement of the organization or the independent auditor.”

Form 990, Part VI, Section B, Line 12C

“A written conflict of interest policy is established which describes and prohibits transactions and/or relationships which might be construed as a conflict of interest. Board members must sign off on the conflict of interest policy on an annual basis.”

Form 990, Part VI, Section B, Line 15

“The board of directors of the organization votes and approves the compensation of the chief executive officer (ceo). The ceo establishes the compensation for all other employees of the organization. No board members are compensated.”

Form 990, Part VI, Section C, Line 19

“The organization makes its governing documents, conflict of interest policy and financial statements available to the public upon request. The organization's financial statements are also available on the organization's website.”

Filing and Contact Details

Filer

Filer Name
Scleroderma Foundation Inc
EIN
52-1375827
Phone
8007224673
Address
300 ROSEWOOD DRIVE NO 105, DANVERS, MA 01923

Signing Officer

Name
Robert J Riggs
Title
Chief Executive Officer
Phone
8007224673
Signed
2021-01-11
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Robert J Riggs
Formed
1993
Legal Domicile
Il
Voting Board Members
13
Independent Board Members
13
Employees
24
Volunteers
713

Preparer

Firm
Moody Famiglietti & Andronico Llp
Address
1 HIGHWOOD DRIVE, TEWKSBURY, MA 01876
Preparer
Matthew Kalil CPA Mba
Phone
9785575300
Supplemental Narrative

Additional Explanations

FORM 990, PART XII, LINE 2C:

“The organization has a committee that assumes responsibility for oversight for the audit of its financial statements and selection of an independent accountant. This process has not changed during the year.”

Financial Statement Notes

PART V, LINE 4:

“The endowment consists of a funds restricted in perpetuity established in 2007 and board designated endowment funds. The endowment is to support research for the disease scleroderma.”

PART X, LINE 2:

“The organization is a nonprofit corporation as described in section 501(c)(3) of the internal revenue code and is exempt from federal and state income taxes on trade or business profits generated by activities related to the organization's exempt function. The organization may be subject to federal and state income taxes for profits generated from trade or business activities unrelated to the organization's exempt function. As of june 30, 2020, management believes that the organization has not generated any unrelated business taxable income. The organization assesses the recording of uncertain tax positions by evaluating the minimum recognition threshold and measurement requirements a tax position must meet before being recognized as a benefit in the financial statements. The organization's policy is to recognize interest and penalties accrued on any uncertain tax positions as a component of income tax expense, if any, in its statement of activities.”

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IRS990/Desc0EDUCATION AND SUPPORT:THE SCLERODERMA FOUNDATION AND ITS CHAPTERS OFFER EDUCATIONAL PROGRAMS TO INDIVIDUALS WHO HAVE SCLERODERMA AND TO THEIR CAREGIVERS AND FAMILY MEMBERS WHO ARE ALSO IMPACTED BY THE LIFE CHANGES CAUSED BY THE DISEASE. THE FOUNDATION'S ANNUAL "NATIONAL PATIENT EDUCATION CONFERENCE", IN RECENT YEARS HAS BEEN ATTENDED BY OVER 670 INDIVIDUALS. THE PROGRAM INCLUDED ABOUT 45 WORKSHOPS AND SEMINARS PRESENTED 57 EXPERT SPEAKERS IN SYMPTOM MANAGEMENT, RESEARCH DATA, AND COPING STRATEGIES. THE CONFERENCE ALSO INCLUDED A "KIDS & TEENS" PROGRAM THAT EMPHASIZED JUVENILE SCLERODERMA, WHICH PROVIDED CHILDREN DIAGNOSED WITH SCLERODERMA AGE-APPROPRIATE LEARNING ABOUT THEIR DISEASE, AT THE SAME TIME IT HELPED PARENTS UNDERSTAND THE ILLNESS. SIBLINGS OF CHILDREN WITH SCLERODERMA AND CHILDREN OF ADULTS WITH SCLERODERMA ALSO BENEFITED FROM THE PROGRAM. ADDITIONALLY, CHAPTERS IN THE FOUNDATION OFFERED THEIR OWN LOCAL EDUCATIONAL PROGRAMMING AT DIFFERENT TIMES OF THE YEAR TO PROVIDE THE SAME RANGE OF INFORMATION ON A SMALLER SCALE CLOSER TO HOME. THESE CHAPTER EVENTS ARE TYPICALLY ONE DAY AFFAIRS AND ARE ATTENDED BY THOSE WHO ARE UNABLE TO ATTEND THE NATIONAL CONFERENCE. SCHOLARSHIPS ARE OFFERED TO DEFRAY THE COST OF THE NATIONAL CONFERENCE BASE ON AN APPLICATION PROCESS.THE FOUNDATION AND ITS CHAPTERS MAINTAIN A NETWORK OF SUPPORT GROUPS AROUND THE COUNTRY. LED BY VOLUNTEERS WHO RECEIVE RESOURCES AND TRAINING FROM THE FOUNDATION, SUPPORT GROUPS ARE FOR MANY THE FRONT LINE OF COPING WITH THE EMOTIONAL IMPACT OF THE DISEASE. CHAPTERS MANAGE GROUPS THAT OCCUR WITHIN THEIR TERRITORY, AND THE NATIONAL OFFICE MANAGES GROUPS THAT FALL OUTSIDE OF ANY CHAPTER BOUNDARY. THERE ARE APPROXIMATELY 150 SUPPORT GROUPS IN TOTAL. THE NUMBER FLUXUATES AS VOLUNTEER LEADERS START UP NEW GROUPS OR AS THEY DROP OFF. CHAPTERS AND NATIONAL STAFF WORK TO DEVELOP REPLACEMENT GROUP LEADERS. MEETING DATES, TIMES, AND LOCATIONS, PLUS GROUP LEADER CONTACTS ARE POSTED ON THE FOUNDATION WEBSITE, SCLERODERMA.ORG, TO FACILITATE ACCESS TO THE GROUPS. FROM TIME TO TIME, SEVERAL CHAPTERS OFFER TELEPHONE SUPPORT GROUPS TO ENABLE CONTACT WITHOUT THE NEED TO TRAVEL, EVEN LOCALLY. ADDITIONALLY, THE FOUNDATION MAINTAINS AN ONLINE FORUM CALLED INSPIRE.COM SO THAT INDIVIDUALS CAN SHARE PERSONAL EXPERIENCES ABOUT THEIR DISEASE. THIS ONLINE COMMUNITY IS PROMOTED VIA THE FOUNDATION'S WEBSITE, THROUGH ITS SOCIAL MEDIA PLATFORMS, AND PRINT PUBLICATIONS.
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IRS990/Form990PartVIISectionAGrp/PersonNm1JANE LADAS
IRS990/Form990PartVIISectionAGrp/PersonNm2CHRISTINA LOCCKE
IRS990/Form990PartVIISectionAGrp/PersonNm3MARY BLADES
IRS990/Form990PartVIISectionAGrp/PersonNm4MARY BETH TOURBIN
IRS990/Form990PartVIISectionAGrp/PersonNm5MARK OROZCO
IRS990/Form990PartVIISectionAGrp/PersonNm6LINDA BAUM
IRS990/Form990PartVIISectionAGrp/PersonNm7MARCIA WALKER
IRS990/Form990PartVIISectionAGrp/PersonNm8CYNDY BESSELIEVRE
IRS990/Form990PartVIISectionAGrp/PersonNm9COS MALLOZZI
IRS990/Form990PartVIISectionAGrp/PersonNm10CAROL FEGHALI-BOSTWICK PHD
IRS990/Form990PartVIISectionAGrp/PersonNm11MIKE LEVENGOOD
IRS990/Form990PartVIISectionAGrp/PersonNm12GREG MARION
IRS990/Form990PartVIISectionAGrp/PersonNm13ROBERT J RIGGS
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
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IRS990/Form990PartVIISectionAGrp/TitleTxt1DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt2DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt10VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt11SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt12TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt13CEO
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IRS990/FormationYr01993
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IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt042981
IRS990/FundraisingDirectExpensesAmt0157686
IRS990/FundraisingGrossIncomeAmt0157686
IRS990/GainOrLossGrp/SecuritiesAmt067569
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt013
IRS990/GrantsPayableGrp/BOYAmt01417500
IRS990/GrantsPayableGrp/EOYAmt01587500
IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt0545
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IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt01200000
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IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
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IRS990/GrossReceiptsAmt06433133
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IRS990/InformationTechnologyGrp/TotalAmt0249148
IRS990/InsuranceGrp/FundraisingAmt06233
IRS990/InsuranceGrp/ManagementAndGeneralAmt020465
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IRS990/InsuranceGrp/TotalAmt064783
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IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd01
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0SCLERODERMA FOUNDATION'S MISSION IS THREEFOLD: 1) SUPPORT TO HELP PATIENTS AND THEIR FAMILIES COPE WITH SCLERODERMA THROUGH MUTUAL SUPPORT PROGRAMS, PEER COUNSELING, PHYSICIAN REFERRALS, AND EDUCATIONAL INFORMATION. 2) EDUCATION TO PROMOTE PUBLIC AWARENESS AND EDUCATION THROUGH PATIENT AND HEALTH PROFESSIONAL SEMINARS, LITERATURE, AND PUBLICITY CAMPAIGNS. AND 3) RESEARCH TO STIMULATE AND SUPPORT RESEARCH TO IMPROVE TREATMENTS AND, ULTIMATELY, FIND THE CAUSE OF AND CURE FOR SCLERODERMA.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt010418622
IRS990/NetAssetsOrFundBalancesEOYAmt09514379
IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt067569
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt067569
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt00
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt0296111
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt08618498
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt07711504
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt011924
IRS990/OccupancyGrp/ManagementAndGeneralAmt039157
IRS990/OccupancyGrp/ProgramServicesAmt0126550
IRS990/OccupancyGrp/TotalAmt0177631
IRS990/OfficeExpensesGrp/FundraisingAmt023047
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt025534
IRS990/OfficeExpensesGrp/ProgramServicesAmt0110787
IRS990/OfficeExpensesGrp/TotalAmt0159368
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt0219249
IRS990/OtherAssetsTotalGrp/EOYAmt0288129
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt09077
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt029896
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt058645
IRS990/OtherEmployeeBenefitsGrp/TotalAmt097618
IRS990/OtherExpensesGrp/Desc0ADVOCACY
IRS990/OtherExpensesGrp/Desc1FEES AND LICENSES
IRS990/OtherExpensesGrp/Desc2MISCELLANEOUS
IRS990/OtherExpensesGrp/Desc3OUTREACH
IRS990/OtherExpensesGrp/FundraisingAmt06235
IRS990/OtherExpensesGrp/FundraisingAmt1712
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt020476
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt12339
IRS990/OtherExpensesGrp/ProgramServicesAmt086130
IRS990/OtherExpensesGrp/ProgramServicesAmt139131
IRS990/OtherExpensesGrp/ProgramServicesAmt25942
IRS990/OtherExpensesGrp/ProgramServicesAmt32558
IRS990/OtherExpensesGrp/TotalAmt086130
IRS990/OtherExpensesGrp/TotalAmt165842
IRS990/OtherExpensesGrp/TotalAmt28993
IRS990/OtherExpensesGrp/TotalAmt32558
IRS990/OtherLiabilitiesGrp/BOYAmt066784
IRS990/OtherLiabilitiesGrp/EOYAmt074663
IRS990/OtherRevenueMiscGrp/BusinessCd0900099
IRS990/OtherRevenueMiscGrp/Desc0RETURNED GRANT AWARDS
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IRS990/OtherRevenueTotalAmt029435
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt081561
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt0268810
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0731570
IRS990/OtherSalariesAndWagesGrp/TotalAmt01081941
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IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt07194
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt023622
IRS990/PayrollTaxesGrp/ProgramServicesAmt061663
IRS990/PayrollTaxesGrp/TotalAmt092479
IRS990/PensionPlanContributionsGrp/FundraisingAmt01177
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt03893
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt07724
IRS990/PensionPlanContributionsGrp/TotalAmt012794
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt0166944
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt058410
IRS990/PoliciesReferenceChaptersInd01
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt0149214
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt0135016
IRS990/PrincipalOfficerNm0ROBERT J RIGGS
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0611710
IRS990/ProgramServiceRevenueGrp/Desc0REGISTRATION FEES
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt0128846
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt0128846
IRS990/ProgSrvcAccomActy2Grp/Desc0RESEARCH:THE SCLERODERMA FOUNDATION FUNDED PEER-REVIEWED, SCLERODERMA RESEARCH PROJECTS. EACH AWARD WAS $150,000 SPREAD OVER MULTIPLE YEARS. FOUR WERE TWO-YEAR ESTABLISHED INVESTIGATOR AWARDS, AND THREE WERE THREE-YEAR NEW INVESTIGATOR AWARDS. GRANTS ARE AWARDED FOLLOWING A PEER-REVIEW PROCESS THAT UTILIZES THE SAME SCORING METHOD FOLLOWED BY THE NATIONAL INSTITUTE OF HEALTH. THE PEER REVIEW PANEL IS COMPRISED OF INDEPENDENT SCIENTISTS, WHO DO NOT RECEIVE FUNDING FROM THE FOUNDATION. THEY REVIEW THE GRANT SUBMISSIONS INDEPENDENTLY AND THEN MEET TO DISCUSS AND DETERMINE FINAL SCORES. NEW INVESTIGATOR AWARDS ARE INTENDED TO HELP EMERGING SCIENTISTS GATHER SUFFICIENT DATA TO DEMONSTRATE THE VALUE OF THEIR AREA OF INVESTIGATION AND ATTRACT LARGER FUNDING FROM OTHER SOURCES, SUCH AS THE NATIONAL INSTITUTES OF HEALTH. ESTABLISHED INVESTIGATOR AWARDS ARE GIVEN TO INVESTIGATORS WHO HAVE YEARS OF EXPERIENCE, BUT ARE EXPLORING INNOVATIVE IDEAS THAT WOULD FALL OUTSIDE MAINSTREAM FUNDING SOURCES. FOUNDATION MONIES ARE PROVIDED TO DEMONSTRATE THE VIABILITY OF THEIR CONCEPT AND POSITION THEM FOR MORE SUBSTANTIAL GRANTS FROM LARGER FUNDING INSTITUTIONS.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt01280376
IRS990/ProgSrvcAccomActy2Grp/GrantAmt01200545
IRS990/ProgSrvcAccomActy2Grp/RevenueAmt029435
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IRS990/PYOtherExpensesAmt02193359
IRS990/PYOtherRevenueAmt070121
IRS990/PYProgramServiceRevenueAmt0114876
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IRS990/PYTotalExpensesAmt04798303
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt04729306
IRS990/QuidProQuoContributionsInd00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt0-1200354
IRS990/RegularMonitoringEnfrcInd01
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IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd01
IRS990/ReportProgramRelatedInvstInd00
IRS990/RevenueAmt0128846
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IRS990/SavingsAndTempCashInvstGrp/EOYAmt0205356
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IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt04326448
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt04193403
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt04581460
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt03939641
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IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt0166672
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt0172568
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt0864625
IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt0530563

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Filings

Displayed year

2020 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$11,612,013
Liabilities
$2,097,634
Net assets
$9,514,379
Revenue
$3,811,707
Expenses
$5,012,061
Net income
-$1,200,354
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Facts available. Structured filing facts are available, but richer extracted sections are limited.$11.3$2.93$8.33$6.63$6.78$0.15
2023Summary only. Only limited summary data is available for this year.$12.9$3.09$9.81$6.92$6.46$0.45
2022Summary only. Only limited summary data is available for this year.$11.5$2.91$8.55$4.58$6.21$1.63
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$13.5$2.09$11.4$4.19$4.47$0.28
2020Detailed filing. Detailed filing data is available for this year.$11.6$2.10$9.51$3.81$5.01$1.20
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$12.2$1.78$10.4$4.73$4.80$0.07
2018Summary only. Only limited summary data is available for this year.$12.0$1.91$10.1$4.94$5.00$0.06
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$12.3$2.22$10.1$5.17$5.21$0.05
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$12.0$2.36$9.65$4.34$4.94$0.60
2015Detailed filing. Detailed filing data is available for this year.$12.8$2.34$10.4$5.22$5.63$0.40
2014Detailed filing. Detailed filing data is available for this year.$12.5$1.49$11.0$4.85$4.33$0.52
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$11.6$1.62$10.0$4.07
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$10.6$1.43$9.18$4.45
2011Summary only. Only limited summary data is available for this year.$11.0$1.56$9.49$5.69$5.41$0.28
2010Summary only. Only limited summary data is available for this year.$9.94$1.58$8.36$1.61$0.81$0.80