Civic Intelligence

National Scleroderma Foundation Inc

990 • Fiscal year 2019 • EIN 52-1375827

Jul 01, 2018 to Jun 30, 2019 • Filed on Dec 04, 2019

Organization ProfileWWW.SCLERODERMA.ORG

View Organization Page

300 Rosewood Drive No 105Danvers, MA 01923

(800) 722-4673

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

44th percentile

0.15x

Higher debt load relative to assets than 44% of similar nonprofits.

2019 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2019

Liabilities / Revenue

62nd percentile

0.38x

Higher debt load relative to revenue than 62% of similar nonprofits.

2019 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2019

Net Margin

31st percentile

-1.5%

Higher net margin than 31% of similar nonprofits.

2019 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2019

Top Officer Pay

30th percentile

$125,034

Higher top officer pay than 30% of similar nonprofits.

Top officer pay equals 2.6% of source-year revenue.

2019 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2019

Asset Growth

43rd percentile

1.8%

Faster asset growth than 43% of similar nonprofits.

2019 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2018 to 2019

Revenue Growth

27th percentile

-4.2%

Faster revenue growth than 27% of similar nonprofits.

2019 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2018 to 2019

Balance Sheet
Liabilities / Assets44th percentile

Assets

Up

$12,200,138

Up $216,644 (+1.8%) from 2018

Net Assets

Up

$10,418,622

Up $346,950 (+3.4%) from 2018

Liabilities

Down

$1,781,516

Down $130,306 (-6.8%) from 2018

Revenue And Expenses
Liabilities / Revenue62nd percentileNet Margin31st percentile

Revenue

Down

$4,729,306

Down $209,696 (-4.2%) from 2018

Expenses

Down

$4,798,303

Down $203,014 (-4.1%) from 2018

Net Income

Down

-$68,997

Down $6,682 (-11%) from 2018

Historical Trend

Balance Sheet Trend

Asset Growth43rd percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$15M$10M$5.0M$0Assets 2010: $9,935,037Liabilities 2010: $1,579,840Net Assets 2010: $8,355,1972010Assets 2011: $11,045,930Liabilities 2011: $1,560,031Net Assets 2011: $9,485,8992011Assets 2012: $10,615,606Liabilities 2012: $1,432,774Net Assets 2012: $9,182,8322012Assets 2013: $11,639,084Liabilities 2013: $1,621,659Net Assets 2013: $10,017,4252013Assets 2014: $12,465,186Liabilities 2014: $1,492,517Net Assets 2014: $10,972,6692014Assets 2015: $12,755,110Liabilities 2015: $2,337,137Net Assets 2015: $10,417,9732015Assets 2016: $12,011,971Liabilities 2016: $2,360,474Net Assets 2016: $9,651,4972016Assets 2017: $12,288,226Liabilities 2017: $2,219,558Net Assets 2017: $10,068,6682017Assets 2018: $11,983,494Liabilities 2018: $1,911,822Net Assets 2018: $10,071,6722018Assets 2019: $12,200,138Liabilities 2019: $1,781,516Net Assets 2019: $10,418,6222019Assets 2020: $11,612,013Liabilities 2020: $2,097,634Net Assets 2020: $9,514,3792020Assets 2021: $13,492,271Liabilities 2021: $2,093,581Net Assets 2021: $11,398,6902021Assets 2022: $11,463,074Liabilities 2022: $2,913,453Net Assets 2022: $8,549,6212022Assets 2023: $12,897,422Liabilities 2023: $3,086,186Net Assets 2023: $9,811,2362023Assets 2025: $11,259,408Liabilities 2025: $2,926,793Net Assets 2025: $8,332,6152025

Highlighted filing

2019

Assets$12,200,138
Liabilities$1,781,516
Net Assets$10,418,622
Open 2019 Filing

Operations Trend

Revenue Growth27th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$10M$5.0M$0-$5.0MRevenue 2010: $1,606,276Expenses 2010: $807,667Net Income 2010: $798,6092010Revenue 2011: $5,692,673Expenses 2011: $5,411,841Net Income 2011: $280,8322011Expenses 2012: $4,446,1582012Expenses 2013: $4,069,7232013Revenue 2014: $4,848,710Expenses 2014: $4,331,065Net Income 2014: $517,6452014Revenue 2015: $5,222,808Expenses 2015: $5,627,220Net Income 2015: -$404,4122015Revenue 2016: $4,338,344Expenses 2016: $4,935,756Net Income 2016: -$597,4122016Revenue 2017: $5,165,236Expenses 2017: $5,211,320Net Income 2017: -$46,0842017Revenue 2018: $4,939,002Expenses 2018: $5,001,317Net Income 2018: -$62,3152018Revenue 2019: $4,729,306Expenses 2019: $4,798,303Net Income 2019: -$68,9972019Revenue 2020: $3,811,707Expenses 2020: $5,012,061Net Income 2020: -$1,200,3542020Revenue 2021: $4,188,631Expenses 2021: $4,468,676Net Income 2021: -$280,0452021Revenue 2022: $4,581,467Expenses 2022: $6,210,712Net Income 2022: -$1,629,2452022Revenue 2023: $6,915,898Expenses 2023: $6,461,742Net Income 2023: $454,1562023Revenue 2025: $6,628,652Expenses 2025: $6,783,274Net Income 2025: -$154,6222025

Highlighted filing

2019

Revenue$4,729,306
Expenses$4,798,303
Net Income-$68,997
Open 2019 Filing
Jump To
Filing Snapshot
Filing Period
Jul 1, 2018 to Jun 30, 2019
Signed
Dec 4, 2019
Return Version
2018v3.1
Gross Receipts
$8,497,195
Mission and Program Overview

Mission

The national scleroderma foundation's mission is to advance medical research, promote disease awareness, and provide support and education to people with scleroderma, their families and support networks.

Scleroderma foundation's mission is threefold: 1) support to help patients and their families cope with scleroderma through mutual support programs, peer counseling, physician referrals, and educational information. 2) education to promote public awareness and education through patient and health professional seminars, literature, and publicity campaigns. And 3) research to stimulate and support research to improve treatments and, ultimately, find the cause of and cure for scleroderma.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$8,678,211$8,864,083▲ $185,872
Cash and Non-Interest-Bearing Accounts$2,032,531$2,174,510▲ $141,979
Savings and Temporary Cash Investments$596,476$608,653▲ $12,177
Pledges and Grants Receivable$267,749$166,944▼ $100,805
Prepaid Expenses and Deferred Charges$165,430$149,214▼ $16,216
Land, Buildings, and Equipment, Net$5,727$17,485▲ $11,758
Total Assets$11,983,494$12,200,138▲ $216,644
Other Assets Total$237,370$219,249▼ $18,121
Liabilities
Grants Payable$1,542,380$1,417,500▼ $124,880
Accounts Payable and Accrued Expenses$198,728$168,690▼ $30,038
Deferred Revenue$84,056$128,542▲ $44,486
Other Liabilities$86,658$66,784▼ $19,874
Total Liabilities$1,911,822$1,781,516▼ $130,306
Net Assets / Fund Balance
Unrestricted Net Assets$8,253,794$8,618,498▲ $364,704
Permanently Rstr Net Assets$1,542,375$1,542,375→ $0
Temporarily Rstr Net Assets$275,503$257,749▼ $17,754
Total Net Assets Fund Balance$10,071,672$10,418,622▲ $346,950
Total Liabilities and Net Assets / Fund Balance$11,983,494$12,200,138▲ $216,644

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$7,847$91,499$99,346
Other Land Buildings$7,638$70,690$78,328
Leasehold Improvements$0$8,393$8,393
Land$2,000-$2,000

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2018$1,662,877-▲ $115,953$151,792$1,627,038
2017$1,916,225-▲ $65,063$318,411$1,662,877
2016$1,886,371-▲ $114,671$84,817$1,916,225
2015$2,056,133-▲ $30,238$200,000$1,886,371
2014$2,051,305-▲ $4,828-$2,056,133
Compensation and Service Providers
Top Officer Pay30th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Robert J RiggsCEOFT$112,008$13,026$125,034

Board Members and Trustees

NameTitle
Cos MallozziChair
Carol Feghali-bostwick PhdVice Chair
Bill MartinDirector
Jane LadasDirector
Katayun JaffariDirector
Kevin BoyanowskiDirector
Linda BaumDirector
Marcia WalkerDirector
Mark OrozcoDirector
Mary BladesDirector
Mike LevengoodSecretary
Greg MarionTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
Blackbaud INCWebsite SupportPO BOX 930256, Atlanta, GA 31193$125,752
Revenue and Support

Revenue Composition

Contributions and Grants
$4,326,448
Program Service Revenue
$114,876
Investment Income
$217,861
Other Revenue
$70,121
All Other Contributions
$4,139,828
Change in Net Assets
$-68,997

Audited Revenue Reconciliation

Revenue per Audited Statements
$4,682,581
Revenue Not Reported on Financial Statements
$46,725
Revenue Not Reported on Form 990
$415,947
Total Revenue per Audited Statements
$5,098,528
Total Revenue per Form 990
$4,729,306
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$2,193,359
Salaries, Compensation, and Employee Benefits$1,362,399
Grants and Similar Amounts Paid$1,242,545
Total Fundraising Expense$195,794
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$1,200,000--$1,200,000
Other Salaries and Wages$695,228$255,108$77,395$1,027,731
Conferences and Meetings$678,545$18,652$316$697,513
Payments to Affiliates$331,718--$331,718
Information Technology$166,218$89,316$27,199$282,733
Occupancy$144,103$44,588$13,578$202,269
Office Expenses$99,183$24,496$20,593$144,272
Current Officers, Directors, Trustees, and Key Employees$74,350$41,021$12,819$128,190
Fees for Services Other$106,343$8,132$11,187$125,662
Payroll Taxes$70,186$26,887$8,187$105,260
Other Employee Benefits$54,133$27,591$8,377$90,101
Travel$60,090$29,995-$90,085
Insurance$40,963$22,012$6,704$69,679
Fees for Service Investment Mgmnt Fees-$46,725-$46,725
Grants to Domestic Individuals$42,545--$42,545
Fees for Services Accounting-$28,604-$28,604
Advertising$17,915$5,451-$23,366
Pension Plan Contributions$6,719$3,378$1,020$11,117
Depreciation Depletion$3,393$1,390$424$5,207
Other Expenses$917$5,575$1,697$917
Total Functional Expenses$3,902,906$699,603$195,794$4,798,303

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Form 990$4,798,303
Expenses per Audited Statements$4,751,578
Total Expenses per Audited Statements$4,751,578
Expenses Not Reported on Financial Statements$46,725
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Northwestern UniversityChicago, IL501(c)3Research$150,000
The Medical University of South Carolina (grant 1)Charleston, SC501(c)3Research$150,000
The Medical University of South Carolina (grant 2)Charleston, SC501(c)3Research$150,000
Trustees of Dartmouth CollegeHanover, NH501(c)3Research$150,000
University of PittsburghPittsburgh, PA501(c)3Research$150,000
University of UtahSalt Lake City, UT501(c)3Research$150,000
Virginia Commonwealth UniversityRichmond, VA501(c)3Research$150,000
Drexel UniversityPhiladelphia, PA501(c)3Research$100,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$235,114
Fundraising Gross Income$235,114
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Detroit Stepping Out Walk$132,424$74,118$74,118$0
Coconut Creek Stepping Out Walk$46,242$12,712$12,712$0
Total Events$421,734$235,114$235,114$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Due to Affiliates$66,784
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“Prior to filing, the form 990 is given to all board members for review. Any questions are answered by either mangement of the organization or the independent auditor.”

Form 990, Part VI, Section B, Line 12C

“A written conflict of interest policy is established which describes and prohibits transactions and/or relationships which might be construed as a conflict of interest. Board members must sign off on the conflict of interest policy on an annual basis.”

Form 990, Part VI, Section B, Line 15

“The board of directors of the organization votes and approves the compensation of the chief executive officer (ceo). The ceo establishes the compensation for all other employees of the organization. No board members are compensated.”

Form 990, Part VI, Section C, Line 19

“The organization makes its governing documents, conflict of interest policy and financial statements available to the public upon request. The organization's financial statements are also available on the organization's website.”

Filing and Contact Details

Filer

Filer Name
Scleroderma Foundation Inc
EIN
52-1375827
Phone
8007224673
Address
300 ROSEWOOD DRIVE NO 105, DANVERS, MA 01923

Signing Officer

Name
Robert J Riggs
Title
Chief Executive Officer
Phone
8007224673
Signed
2019-12-04
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Robert J Riggs
Formed
1993
Legal Domicile
Il
Voting Board Members
12
Independent Board Members
12
Employees
28
Volunteers
981

Preparer

Firm
Moody Famiglietti & Andronico Llp
Address
1 HIGHWOOD DRIVE, TEWKSBURY, MA 01876
Preparer
Matthew Kalil CPA Mba
Phone
9785575300
Supplemental Narrative

Additional Explanations

FORM 990, PART XII, LINE 2C:

“The organization has a committee that assumes responsibility for oversight for the audit of its financial statements and selection of an independent accountant. This process has not changed during the year.”

Financial Statement Notes

PART V, LINE 4:

“The endowment consists of a funds restricted in perpetuity established in 2007 and board designated endowment funds. The endowment is to support research for the disease scleroderma.”

PART X, LINE 2:

“The organization is a nonprofit corporation as described in section 501(c)(3) of the internal revenue code and is exempt from federal and state income taxes on trade or business profits generated by activities related to the organization's exempt function. The organization may be subject to federal and state income taxes for profits generated from trade or business activities unrelated to the organization's exempt function. As of june 30, 2019, management believes that the organization has not generated any unrelated business taxable income. The organization assesses the recording of uncertain tax positions by evaluating the minimum recognition threshold and measurement requirements a tax position must meet before being recognized as a benefit in the financial statements. The organization's policy is to recognize interest and penalties accrued on any uncertain tax positions as a component of income tax expense, if any, in its statement of activities.”

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IRS990/ActivityOrMissionDesc0SCLERODERMA FOUNDATION'S MISSION IS THREEFOLD: 1) SUPPORT TO HELP PATIENTS AND THEIR FAMILIES COPE WITH SCLERODERMA THROUGH MUTUAL SUPPORT PROGRAMS, PEER COUNSELING, PHYSICIAN REFERRALS, AND EDUCATIONAL INFORMATION. 2) EDUCATION TO PROMOTE PUBLIC AWARENESS AND EDUCATION THROUGH PATIENT AND HEALTH PROFESSIONAL SEMINARS, LITERATURE, AND PUBLICITY CAMPAIGNS. AND 3) RESEARCH TO STIMULATE AND SUPPORT RESEARCH TO IMPROVE TREATMENTS AND, ULTIMATELY, FIND THE CAUSE OF AND CURE FOR SCLERODERMA.
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IRS990/Desc0EDUCATION AND SUPPORT:THE SCLERODERMA FOUNDATION AND ITS CHAPTERS OFFER EDUCATIONAL PROGRAMS TO INDIVIDUALS WHO HAVE SCLERODERMA AND TO THEIR CAREGIVERS AND FAMILY MEMBERS WHO ARE ALSO IMPACTED BY THE LIFE CHANGES CAUSED BY THE DISEASE. THE FOUNDATION'S ANNUAL "NATIONAL PATIENT EDUCATION CONFERENCE", IN RECENT YEARS HAS BEEN ATTENDED BY OVER 670 INDIVIDUALS. THE PROGRAM INCLUDED 77 WORKSHOPS AND SEMINARS PRESENTED 69 EXPERT SPEAKERS IN SYMPTOM MANAGEMENT, RESEARCH DATA, AND COPING STRATEGIES. THE CONFERENCE ALSO INCLUDED A "KIDS & TEENS" PROGRAM THAT EMPHASIZED JUVENILE SCLERODERMA, WHICH PROVIDED CHILDREN DIAGNOSED WITH SCLERODERMA AGE-APPROPRIATE LEARNING ABOUT THEIR DISEASE, AT THE SAME TIME IT HELPED PARENTS UNDERSTAND THE ILLNESS. SIBLINGS OF CHILDREN WITH SCLERODERMA AND CHILDREN OF ADULTS WITH SCLERODERMA ALSO BENEFITED FROM THE PROGRAM. ADDITIONALLY, CHAPTERS IN THE FOUNDATION OFFERED THEIR OWN LOCAL EDUCATIONAL PROGRAMMING AT DIFFERENT TIMES OF THE YEAR TO PROVIDE THE SAME RANGE OF INFORMATION ON A SMALLER SCALE CLOSER TO HOME. THESE CHAPTER EVENTS ARE TYPICALLY ONE DAY AFFAIRS AND ARE ATTENDED BY THOSE WHO ARE UNABLE TO ATTEND THE NATIONAL CONFERENCE. SCHOLARSHIPS ARE OFFERED TO DEFRAY THE COST OF THE NATIONAL CONFERENCE BASE ON AN APPLICATION PROCESS.THE FOUNDATION AND ITS CHAPTERS MAINTAIN A NETWORK OF SUPPORT GROUPS AROUND THE COUNTRY. LED BY VOLUNTEERS WHO RECEIVE RESOURCES AND TRAINING FROM THE FOUNDATION, SUPPORT GROUPS ARE FOR MANY THE FRONT LINE OF COPING WITH THE EMOTIONAL IMPACT OF THE DISEASE. CHAPTERS MANAGE GROUPS THAT OCCUR WITHIN THEIR TERRITORY, AND THE NATIONAL OFFICE MANAGES GROUPS THAT FALL OUTSIDE OF ANY CHAPTER BOUNDARY. THERE ARE APPROXIMATELY 150 SUPPORT GROUPS IN TOTAL. THE NUMBER FLUXUATES AS VOLUNTEER LEADERS START UP NEW GROUPS OR AS THEY DROP OFF. CHAPTERS AND NATIONAL STAFF WORK TO DEVELOP REPLACEMENT GROUP LEADERS. MEETING DATES, TIMES, AND LOCATIONS, PLUS GROUP LEADER CONTACTS ARE POSTED ON THE FOUNDATION WEBSITE, SCLERODERMA.ORG, TO FACILITATE ACCESS TO THE GROUPS. FROM TIME TO TIME, SEVERAL CHAPTERS OFFER TELEPHONE SUPPORT GROUPS TO ENABLE CONTACT WITHOUT THE NEED TO TRAVEL, EVEN LOCALLY. ADDITIONALLY, THE FOUNDATION MAINTAINS AN ONLINE FORUM CALLED INSPIRE.COM SO THAT INDIVIDUALS CAN SHARE PERSONAL EXPERIENCES ABOUT THEIR DISEASE. THIS ONLINE COMMUNITY IS PROMOTED VIA THE FOUNDATION'S WEBSITE, THROUGH ITS SOCIAL MEDIA PLATFORMS, AND PRINT PUBLICATIONS.
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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1213026
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IRS990/Form990PartVIISectionAGrp/PersonNm1JANE LADAS
IRS990/Form990PartVIISectionAGrp/PersonNm2BILL MARTIN
IRS990/Form990PartVIISectionAGrp/PersonNm3MARY BLADES
IRS990/Form990PartVIISectionAGrp/PersonNm4KATAYUN JAFFARI
IRS990/Form990PartVIISectionAGrp/PersonNm5MARK OROZCO
IRS990/Form990PartVIISectionAGrp/PersonNm6LINDA BAUM
IRS990/Form990PartVIISectionAGrp/PersonNm7MARCIA WALKER
IRS990/Form990PartVIISectionAGrp/PersonNm8COS MALLOZZI
IRS990/Form990PartVIISectionAGrp/PersonNm9CAROL FEGHALI-BOSTWICK PHD
IRS990/Form990PartVIISectionAGrp/PersonNm10MIKE LEVENGOOD
IRS990/Form990PartVIISectionAGrp/PersonNm11GREG MARION
IRS990/Form990PartVIISectionAGrp/PersonNm12ROBERT J RIGGS
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt12112008
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/TitleTxt0DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt1DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt2DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt9VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt10SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt11TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt12CEO
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IRS990/FormationYr01993
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IRS990/FSAuditedInd01
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IRS990/GrantsPayableGrp/EOYAmt01417500
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IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt01200000
IRS990/GrantsToDomesticOrgsGrp/TotalAmt01200000
IRS990/GrantsToIndividualsInd01
IRS990/GrantsToOrganizationsInd01
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IRS990/GrossReceiptsAmt08497195
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IRS990/IndoorTanningServicesInd00
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IRS990/InfoInScheduleOPartVIInd0X
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IRS990/InformationTechnologyGrp/FundraisingAmt027199
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt089316
IRS990/InformationTechnologyGrp/ProgramServicesAmt0166218
IRS990/InformationTechnologyGrp/TotalAmt0282733
IRS990/InsuranceGrp/FundraisingAmt06704
IRS990/InsuranceGrp/ManagementAndGeneralAmt022012
IRS990/InsuranceGrp/ProgramServicesAmt040963
IRS990/InsuranceGrp/TotalAmt069679
IRS990/InvestmentIncomeGrp/ExclusionAmt0175015
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt0175015
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt08678211
IRS990/InvestmentsPubTradedSecGrp/EOYAmt08864083
IRS990/IRPDocumentCnt013
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt0170582
IRS990/LandBldgEquipBasisNetGrp/BOYAmt05727
IRS990/LandBldgEquipBasisNetGrp/EOYAmt017485
IRS990/LandBldgEquipCostOrOtherBssAmt0188067
IRS990/LegalDomicileStateCd0IL
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt03532775
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd01
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0SCLERODERMA FOUNDATION'S MISSION IS THREEFOLD: 1) SUPPORT TO HELP PATIENTS AND THEIR FAMILIES COPE WITH SCLERODERMA THROUGH MUTUAL SUPPORT PROGRAMS, PEER COUNSELING, PHYSICIAN REFERRALS, AND EDUCATIONAL INFORMATION. 2) EDUCATION TO PROMOTE PUBLIC AWARENESS AND EDUCATION THROUGH PATIENT AND HEALTH PROFESSIONAL SEMINARS, LITERATURE, AND PUBLICITY CAMPAIGNS. AND 3) RESEARCH TO STIMULATE AND SUPPORT RESEARCH TO IMPROVE TREATMENTS AND, ULTIMATELY, FIND THE CAUSE OF AND CURE FOR SCLERODERMA.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
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IRS990/NetAssetsOrFundBalancesEOYAmt010418622
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IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt0415947
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt013578
IRS990/OccupancyGrp/ManagementAndGeneralAmt044588
IRS990/OccupancyGrp/ProgramServicesAmt0144103
IRS990/OccupancyGrp/TotalAmt0202269
IRS990/OfficeExpensesGrp/FundraisingAmt020593
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt024496
IRS990/OfficeExpensesGrp/ProgramServicesAmt099183
IRS990/OfficeExpensesGrp/TotalAmt0144272
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt0237370
IRS990/OtherAssetsTotalGrp/EOYAmt0219249
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt08377
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt027591
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt054133
IRS990/OtherEmployeeBenefitsGrp/TotalAmt090101
IRS990/OtherExpensesGrp/Desc0FEES AND LICENSES
IRS990/OtherExpensesGrp/Desc1ADVOCACY
IRS990/OtherExpensesGrp/Desc2MISCELLANEOUS
IRS990/OtherExpensesGrp/Desc3OUTREACH
IRS990/OtherExpensesGrp/FundraisingAmt06298
IRS990/OtherExpensesGrp/FundraisingAmt11697
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt020682
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt15575
IRS990/OtherExpensesGrp/ProgramServicesAmt039523
IRS990/OtherExpensesGrp/ProgramServicesAmt157864
IRS990/OtherExpensesGrp/ProgramServicesAmt212970
IRS990/OtherExpensesGrp/ProgramServicesAmt3917
IRS990/OtherExpensesGrp/TotalAmt066503
IRS990/OtherExpensesGrp/TotalAmt157864
IRS990/OtherExpensesGrp/TotalAmt220242
IRS990/OtherExpensesGrp/TotalAmt3917
IRS990/OtherLiabilitiesGrp/BOYAmt086658
IRS990/OtherLiabilitiesGrp/EOYAmt066784
IRS990/OtherRevenueMiscGrp/BusinessCd0900099
IRS990/OtherRevenueMiscGrp/Desc0RETURNED GRANT AWARDS
IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt070121
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt070121
IRS990/OtherRevenueTotalAmt070121
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt077395
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt0255108
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0695228
IRS990/OtherSalariesAndWagesGrp/TotalAmt01027731
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PaymentsToAffiliatesGrp/ProgramServicesAmt0331718
IRS990/PaymentsToAffiliatesGrp/TotalAmt0331718
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt08187
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt026887
IRS990/PayrollTaxesGrp/ProgramServicesAmt070186
IRS990/PayrollTaxesGrp/TotalAmt0105260
IRS990/PensionPlanContributionsGrp/FundraisingAmt01020
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt03378
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt06719
IRS990/PensionPlanContributionsGrp/TotalAmt011117
IRS990/PermanentlyRstrNetAssetsGrp/BOYAmt01542375
IRS990/PermanentlyRstrNetAssetsGrp/EOYAmt01542375
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt0267749
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt0166944
IRS990/PoliciesReferenceChaptersInd01
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt0165430
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt0149214
IRS990/PrincipalOfficerNm0ROBERT J RIGGS
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0611710
IRS990/ProgramServiceRevenueGrp/Desc0REGISTRATION FEES
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IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt0114876
IRS990/ProgSrvcAccomActy2Grp/Desc0RESEARCH:THE SCLERODERMA FOUNDATION FUNDED PEER-REVIEWED, SCLERODERMA RESEARCH PROJECTS. EACH AWARD WAS $150,000 SPREAD OVER MULTIPLE YEARS. FOUR WERE TWO-YEAR ESTABLISHED INVESTIGATOR AWARDS, AND THREE WERE THREE-YEAR NEW INVESTIGATOR AWARDS. GRANTS ARE AWARDED FOLLOWING A PEER-REVIEW PROCESS THAT UTILIZES THE SAME SCORING METHOD FOLLOWED BY THE NATIONAL INSTITUTE OF HEALTH. THE PEER REVIEW PANEL IS COMPRISED OF INDEPENDENT SCIENTISTS, WHO DO NOT RECEIVE FUNDING FROM THE FOUNDATION. THEY REVIEW THE GRANT SUBMISSIONS INDEPENDENTLY AND THEN MEET TO DISCUSS AND DETERMINE FINAL SCORES. NEW INVESTIGATOR AWARDS ARE INTENDED TO HELP EMERGING SCIENTISTS GATHER SUFFICIENT DATA TO DEMONSTRATE THE VALUE OF THEIR AREA OF INVESTIGATION AND ATTRACT LARGER FUNDING FROM OTHER SOURCES, SUCH AS THE NATIONAL INSTITUTES OF HEALTH. ESTABLISHED INVESTIGATOR AWARDS ARE GIVEN TO INVESTIGATORS WHO HAVE YEARS OF EXPERIENCE, BUT ARE EXPLORING INNOVATIVE IDEAS THAT WOULD FALL OUTSIDE MAINSTREAM FUNDING SOURCES. FOUNDATION MONIES ARE PROVIDED TO DEMONSTRATE THE VIABILITY OF THEIR CONCEPT AND POSITION THEM FOR MORE SUBSTANTIAL GRANTS FROM LARGER FUNDING INSTITUTIONS.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt01282868
IRS990/ProgSrvcAccomActy2Grp/GrantAmt01242545
IRS990/ProgSrvcAccomActy2Grp/RevenueAmt070121
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IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt04193403
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt01227842
IRS990/PYInvestmentIncomeAmt0647815
IRS990/PYOtherExpensesAmt02532584
IRS990/PYOtherRevenueAmt08764
IRS990/PYProgramServiceRevenueAmt089020
IRS990/PYRevenuesLessExpensesAmt0-62315
IRS990/PYSalariesCompEmpBnftPaidAmt01240891
IRS990/PYTotalExpensesAmt05001317
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt04939002
IRS990/QuidProQuoContributionsInd00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt0-68997
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd01
IRS990/ReportProgramRelatedInvstInd00
IRS990/RevenueAmt0114876
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IRS990/SavingsAndTempCashInvstGrp/EOYAmt0608653
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IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt04581460
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt03939641
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt04662117
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IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt0175015
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt0169963
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt0166672
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IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt0176313
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IRS990ScheduleA/PublicSupportPY170Pct00.83760
IRS990ScheduleA/PublicSupportTotal170Amt018973525
IRS990ScheduleA/SubstantialContributorsTotAmt02729544
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
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IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt04581460
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt03939641
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt04662117
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt021703069
IRS990ScheduleA/TotalSupportAmt022563600
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IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
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IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
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Filings

Displayed year

2019 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$12,200,138
Liabilities
$1,781,516
Net assets
$10,418,622
Revenue
$4,729,306
Expenses
$4,798,303
Net income
-$68,997
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Facts available. Structured filing facts are available, but richer extracted sections are limited.$11.3$2.93$8.33$6.63$6.78$0.15
2023Summary only. Only limited summary data is available for this year.$12.9$3.09$9.81$6.92$6.46$0.45
2022Summary only. Only limited summary data is available for this year.$11.5$2.91$8.55$4.58$6.21$1.63
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$13.5$2.09$11.4$4.19$4.47$0.28
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$11.6$2.10$9.51$3.81$5.01$1.20
2019Detailed filing. Detailed filing data is available for this year.$12.2$1.78$10.4$4.73$4.80$0.07
2018Summary only. Only limited summary data is available for this year.$12.0$1.91$10.1$4.94$5.00$0.06
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$12.3$2.22$10.1$5.17$5.21$0.05
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$12.0$2.36$9.65$4.34$4.94$0.60
2015Detailed filing. Detailed filing data is available for this year.$12.8$2.34$10.4$5.22$5.63$0.40
2014Detailed filing. Detailed filing data is available for this year.$12.5$1.49$11.0$4.85$4.33$0.52
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$11.6$1.62$10.0$4.07
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$10.6$1.43$9.18$4.45
2011Summary only. Only limited summary data is available for this year.$11.0$1.56$9.49$5.69$5.41$0.28
2010Summary only. Only limited summary data is available for this year.$9.94$1.58$8.36$1.61$0.81$0.80