Civic Intelligence

National Scleroderma Foundation Inc

990 • Fiscal year 2017 • EIN 52-1375827

Jul 01, 2016 to Jun 30, 2017 • Filed on Apr 27, 2018

Organization ProfileWWW.SCLERODERMA.ORG

View Organization Page

300 Rosewood Drive No 105Danvers, MA 01923

(800) 722-4673

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

46th percentile

0.18x

Higher debt load relative to assets than 46% of similar nonprofits.

2017 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2017

Liabilities / Revenue

65th percentile

0.43x

Higher debt load relative to revenue than 65% of similar nonprofits.

2017 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2017

Net Margin

32nd percentile

-0.9%

Higher net margin than 32% of similar nonprofits.

2017 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2017

Top Officer Pay

30th percentile

$122,329

Higher top officer pay than 30% of similar nonprofits.

Top officer pay equals 2.4% of source-year revenue.

2017 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2017

Asset Growth

41st percentile

2.3%

Faster asset growth than 41% of similar nonprofits.

2017 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2016 to 2017

Revenue Growth

75th percentile

19%

Faster revenue growth than 75% of similar nonprofits.

2017 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2016 to 2017

Balance Sheet
Liabilities / Assets46th percentile

Assets

Up

$12,288,226

Up $276,255 (+2.3%) from 2016

Net Assets

Up

$10,068,668

Up $417,171 (+4.3%) from 2016

Liabilities

Down

$2,219,558

Down $140,916 (-6.0%) from 2016

Revenue And Expenses
Liabilities / Revenue65th percentileNet Margin32nd percentile

Revenue

Up

$5,165,236

Up $826,892 (+19%) from 2016

Expenses

Up

$5,211,320

Up $275,564 (+5.6%) from 2016

Net Income

Up

-$46,084

Up $551,328 (+92%) from 2016

Historical Trend

Balance Sheet Trend

Asset Growth41st percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$15M$10M$5.0M$0Assets 2010: $9,935,037Liabilities 2010: $1,579,840Net Assets 2010: $8,355,1972010Assets 2011: $11,045,930Liabilities 2011: $1,560,031Net Assets 2011: $9,485,8992011Assets 2012: $10,615,606Liabilities 2012: $1,432,774Net Assets 2012: $9,182,8322012Assets 2013: $11,639,084Liabilities 2013: $1,621,659Net Assets 2013: $10,017,4252013Assets 2014: $12,465,186Liabilities 2014: $1,492,517Net Assets 2014: $10,972,6692014Assets 2015: $12,755,110Liabilities 2015: $2,337,137Net Assets 2015: $10,417,9732015Assets 2016: $12,011,971Liabilities 2016: $2,360,474Net Assets 2016: $9,651,4972016Assets 2017: $12,288,226Liabilities 2017: $2,219,558Net Assets 2017: $10,068,6682017Assets 2018: $11,983,494Liabilities 2018: $1,911,822Net Assets 2018: $10,071,6722018Assets 2019: $12,200,138Liabilities 2019: $1,781,516Net Assets 2019: $10,418,6222019Assets 2020: $11,612,013Liabilities 2020: $2,097,634Net Assets 2020: $9,514,3792020Assets 2021: $13,492,271Liabilities 2021: $2,093,581Net Assets 2021: $11,398,6902021Assets 2022: $11,463,074Liabilities 2022: $2,913,453Net Assets 2022: $8,549,6212022Assets 2023: $12,897,422Liabilities 2023: $3,086,186Net Assets 2023: $9,811,2362023Assets 2025: $11,259,408Liabilities 2025: $2,926,793Net Assets 2025: $8,332,6152025

Highlighted filing

2017

Assets$12,288,226
Liabilities$2,219,558
Net Assets$10,068,668
Open 2017 Filing

Operations Trend

Revenue Growth75th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$10M$5.0M$0-$5.0MRevenue 2010: $1,606,276Expenses 2010: $807,667Net Income 2010: $798,6092010Revenue 2011: $5,692,673Expenses 2011: $5,411,841Net Income 2011: $280,8322011Expenses 2012: $4,446,1582012Expenses 2013: $4,069,7232013Revenue 2014: $4,848,710Expenses 2014: $4,331,065Net Income 2014: $517,6452014Revenue 2015: $5,222,808Expenses 2015: $5,627,220Net Income 2015: -$404,4122015Revenue 2016: $4,338,344Expenses 2016: $4,935,756Net Income 2016: -$597,4122016Revenue 2017: $5,165,236Expenses 2017: $5,211,320Net Income 2017: -$46,0842017Revenue 2018: $4,939,002Expenses 2018: $5,001,317Net Income 2018: -$62,3152018Revenue 2019: $4,729,306Expenses 2019: $4,798,303Net Income 2019: -$68,9972019Revenue 2020: $3,811,707Expenses 2020: $5,012,061Net Income 2020: -$1,200,3542020Revenue 2021: $4,188,631Expenses 2021: $4,468,676Net Income 2021: -$280,0452021Revenue 2022: $4,581,467Expenses 2022: $6,210,712Net Income 2022: -$1,629,2452022Revenue 2023: $6,915,898Expenses 2023: $6,461,742Net Income 2023: $454,1562023Revenue 2025: $6,628,652Expenses 2025: $6,783,274Net Income 2025: -$154,6222025

Highlighted filing

2017

Revenue$5,165,236
Expenses$5,211,320
Net Income-$46,084
Open 2017 Filing
Jump To
Filing Snapshot
Filing Period
Jul 1, 2016 to Jun 30, 2017
Signed
Apr 27, 2018
Return Version
2016v3.0
Gross Receipts
$10,409,431
Mission and Program Overview

Mission

The national scleroderma foundation's mission is to advance medical research, promote disease awareness, and provide support and education to people with scleroderma, their families and support networks.

Scleroderma foundation, inc. Is a nonprofit organization dedicated to the concerns of people whose lives have been impacted by the autoimmune disease scleroderma (a.k.a. Systemic sclerosis), and related conditions. Its three fold mission of support, education and research guides the organization's work in providing education programs for patients and their families, peer-to-peer support through its nationwide network of chapters and support groups, and advocacy efforts to increase awareness of the disease among the general public and medical community. The organization also has a research program that funds clinical and bench research to find treatment modalities, the cause, and hopefully the cure for scleroderma and related conditions.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$9,586,594$8,854,401▼ $732,193
Cash and Non-Interest-Bearing Accounts$1,379,719$2,389,165▲ $1,009,446
Savings and Temporary Cash Investments$482,976$621,245▲ $138,269
Prepaid Expenses and Deferred Charges$165,547$132,029▼ $33,518
Accounts Receivable$24,166$39,312▲ $15,146
Pledges and Grants Receivable$75,000$39,149▼ $35,851
Land, Buildings, and Equipment, Net$10,714$7,582▼ $3,132
Total Assets$12,011,971$12,288,226▲ $276,255
Other Assets Total$287,255$205,343▼ $81,912
Liabilities
Grants Payable$2,012,112$1,853,834▼ $158,278
Accounts Payable and Accrued Expenses$180,399$218,446▲ $38,047
Deferred Revenue$84,851$87,425▲ $2,574
Other Liabilities$83,112$59,853▼ $23,259
Total Liabilities$2,360,474$2,219,558▼ $140,916
Net Assets / Fund Balance
Unrestricted Net Assets$7,834,454$8,253,413▲ $418,959
Permanently Rstr Net Assets$1,542,375$1,542,375→ $0
Temporarily Rstr Net Assets$274,668$272,880▼ $1,788
Total Net Assets Fund Balance$9,651,497$10,068,668▲ $417,171
Total Liabilities and Net Assets / Fund Balance$12,011,971$12,288,226▲ $276,255

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$5,582$69,519$75,101
Other Land Buildings$0$70,690$70,690
Leasehold Improvements$0$8,393$8,393
Land$2,000-$2,000

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2016$1,886,371-▲ $114,671$84,817$1,916,225
2015$2,056,133-▲ $30,238$200,000$1,886,371
2014$2,051,305-▲ $4,828-$2,056,133
2013$1,885,727-▲ $165,578-$2,051,305
2012$1,819,237-▲ $66,490-$1,885,727
Compensation and Service Providers
Top Officer Pay30th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Robert J RiggsCEOFT$110,230$12,099$122,329

Board Members and Trustees

NameTitle
Cos MallozziChair
Carol Feghali-bostwick PhdVice Chair
Jane LadasDirector
Katayun JaffariDirector
Kevin BoyanowskiDirector
Mark OrozcoDirector
Mary BladesDirector
Mike LevengoodDirector
Bill MartinSecretary
Greg MarionTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
Blackbaud INCWebsite SupportPO BOX 930256, Atlanta, GA 31193$191,024
Revenue and Support

Revenue Composition

Contributions and Grants
$4,581,460
Program Service Revenue
$106,806
Investment Income
$468,214
Other Revenue
$8,756
All Other Contributions
$3,960,513
Change in Net Assets
$-46,084

Audited Revenue Reconciliation

Revenue per Audited Statements
$5,156,480
Revenue Not Reported on Financial Statements
$8,756
Revenue Not Reported on Form 990
$463,255
Other Revenue Adjustments
$8,756
Total Revenue per Audited Statements
$5,619,735
Total Revenue per Form 990
$5,165,236
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$2,497,971
Grants and Similar Amounts Paid$1,581,496
Salaries, Compensation, and Employee Benefits$1,131,853
Total Fundraising Expense$203,168
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$1,522,909--$1,522,909
Other Salaries and Wages$574,005$211,679$64,180$849,864
Conferences and Meetings$653,302$27,187$9$680,498
Payments to Affiliates$411,529--$411,529
Information Technology$151,274$81,285$24,754$257,313
Fees for Services Other$173,081$30,957$18,205$222,243
Office Expenses$108,102$46,896$35,457$190,455
Occupancy$123,677$40,035$12,192$175,904
Travel$106,335$33,189$2,569$142,093
Current Officers, Directors, Trustees, and Key Employees$70,950$39,145$12,234$122,329
Payroll Taxes$54,084$20,936$6,376$81,396
Insurance$41,235$22,156$6,745$70,136
Other Employee Benefits$40,376$20,286$6,154$66,816
Advertising$60,975$1,799$570$63,344
Grants to Domestic Individuals$58,587--$58,587
Fees for Services Accounting-$26,820-$26,820
Depreciation Depletion$11,439$6,014$1,831$19,284
Pension Plan Contributions$7,886$2,737$825$11,448
Other Expenses$6,497$5,452$1,661$6,497
Fees for Services Legal-$2,003-$2,003
Total Functional Expenses$4,358,689$649,463$203,168$5,211,320

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$5,211,320
Total Expenses per Form 990$5,211,320
Total Expenses per Audited Statements$5,202,564
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$-8,756
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Trustees of Boston UniversityNew York, NY501(c)3Research$500,000
BRIGHAM AND WOMEN'S HOSPITALBoston, MA501(c)3Research$150,000
Baltimore Research and Education FoundationBaltimore, MD501(c)3Research$150,000
John Hopkins University School of MedicineBaltimore, MD501(c)3Research$150,000
Medical University of South CarolinaCharleston, SC501(c)3Research$150,000
Northwestern UniversityChicago, IL501(c)3Research$150,000
University of PittsburghPittsburg, PA501(c)3Research$150,000
Thomas Jefferson UniversityPhiladelphia, PA501(c)3Research$122,909
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$290,964
Fundraising Gross Income$290,964
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Florida Stepping Out Walk$60,827$8,334$8,334$0
Georgia Hiking & Hotcakes Walk$50,593$6,099$6,099$0
Total Events$911,911$290,964$290,964$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Due to Affiliates$59,853
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“Prior to filing, the form 990 is given to all board members for review. Any questions are answered by either mangement of the organization or the independent auditor.”

Form 990, Part VI, Section B, Line 12C

“A written conflict of interest policy is established which describes and prohibits transactions and/or relationships which might be construed as a conflict of interest. Board members must sign off on the conflict of interest policy on an annual basis.”

Form 990, Part VI, Section B, Line 15

“The board of directors of the organization votes and approves the compensation of the chief executive officer (ceo). The ceo establishes the compensation for all other employees of the organization. No board members are compensated.”

Form 990, Part VI, Section C, Line 19

“The organization makes its governing documents, conflict of interest policy and financial statements available to the public upon request. The organization's financial statements are also available on the organization's website.”

Filing and Contact Details

Filer

Filer Name
Scleroderma Foundation Inc
EIN
52-1375827
Phone
8007224673
Address
300 ROSEWOOD DRIVE NO 105, DANVERS, MA 01923

Signing Officer

Name
Robert J Riggs
Title
Chief Executive Officer
Phone
8007224673
Signed
2018-04-27
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Robert J Riggs
Formed
1993
Legal Domicile
Il
Voting Board Members
10
Independent Board Members
10
Employees
30
Volunteers
711

Preparer

Firm
Moody Famiglietti & Andronico Llp
Address
1 HIGHWOOD DRIVE, TEWKSBURY, MA 01876
Preparer
Joyce Ripianzi CPA
Phone
9785575300
Supplemental Narrative

Additional Explanations

FORM 990, PART XII, LINE 2C:

“The organization has a committee that assumes responsibility for oversight for the audit of its financial statements and selection of an independent accountant. This process has not changed during the year.”

Financial Statement Notes

PART V, LINE 4:

“The endowment consists of a permanently restricted fund established in 2007. The endowment is to support research for the disease scleroderma.”

PART X, LINE 2:

“The organization is a nonprofit corporation as described in section 501(c)(3) of the internal revenue code and is exempt from federal and state income taxes on trade or business profits generated by activities related to the organization's exempt function. The organization may be subject to federal and state income taxes for profits generated from unrelated trade or business income. The organization has determined that it does not have any liabilities associated with unrelated trade or business income and as a result, no provision for income taxes is presented in these financial statements. The organization assesses the recording of uncertain tax positions by evaluating the minimum recognition threshold and measurement requirements a tax position must meet before being recognized as a benefit in the financial statements. The organization's policy is to recognize interest and penalties accrued on any uncertain tax positions as a component of income tax expense, if any, in its statement of activities.”

PART XI, LINE 4B - OTHER ADJUSTMENTS:

“Returned grant awards 8,756.”

PART XII, LINE 2D - OTHER ADJUSTMENTS:

“Returned grant awards -8,756.”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0SCLERODERMA FOUNDATION, INC. IS A NONPROFIT ORGANIZATION DEDICATED TO THE CONCERNS OF PEOPLE WHOSE LIVES HAVE BEEN IMPACTED BY THE AUTOIMMUNE DISEASE SCLERODERMA (A.K.A. SYSTEMIC SCLEROSIS), AND RELATED CONDITIONS. ITS THREE FOLD MISSION OF SUPPORT, EDUCATION AND RESEARCH GUIDES THE ORGANIZATION'S WORK IN PROVIDING EDUCATION PROGRAMS FOR PATIENTS AND THEIR FAMILIES, PEER-TO-PEER SUPPORT THROUGH ITS NATIONWIDE NETWORK OF CHAPTERS AND SUPPORT GROUPS, AND ADVOCACY EFFORTS TO INCREASE AWARENESS OF THE DISEASE AMONG THE GENERAL PUBLIC AND MEDICAL COMMUNITY. THE ORGANIZATION ALSO HAS A RESEARCH PROGRAM THAT FUNDS CLINICAL AND BENCH RESEARCH TO FIND TREATMENT MODALITIES, THE CAUSE, AND HOPEFULLY THE CURE FOR SCLERODERMA AND RELATED CONDITIONS.
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IRS990/Form990PartVIISectionAGrp/PersonNm5MARK OROZCO
IRS990/Form990PartVIISectionAGrp/PersonNm6COS MALLOZZI
IRS990/Form990PartVIISectionAGrp/PersonNm7CAROL FEGHALI-BOSTWICK PHD
IRS990/Form990PartVIISectionAGrp/PersonNm8BILL MARTIN
IRS990/Form990PartVIISectionAGrp/PersonNm9GREG MARION
IRS990/Form990PartVIISectionAGrp/PersonNm10ROBERT J RIGGS
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
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IRS990/Form990PartVIISectionAGrp/TitleTxt0DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt1DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt2DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt7VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt8SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt9TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt10CEO
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IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0SCLERODERMA FOUNDATION, INC. IS A NONPROFIT ORGANIZATION DEDICATED TO THE CONCERNS OF PEOPLE WHOSE LIVES HAVE BEEN IMPACTED BY THE AUTOIMMUNE DISEASE SCLERODERMA (A.K.A. SYSTEMIC SCLEROSIS), AND RELATED CONDITIONS. ITS THREE FOLD MISSION OF SUPPORT, EDUCATION AND RESEARCH GUIDES THE ORGANIZATION'S WORK IN PROVIDING EDUCATION PROGRAMS FOR PATIENTS AND THEIR FAMILIES, PEER-TO-PEER SUPPORT THROUGH ITS NATIONWIDE NETWORK OF CHAPTERS AND SUPPORT GROUPS, AND ADVOCACY EFFORTS TO INCREASE AWARENESS OF THE DISEASE AMONG THE GENERAL PUBLIC AND MEDICAL COMMUNITY. THE ORGANIZATION ALSO HAS A RESEARCH PROGRAM THAT FUNDS CLINICAL AND BENCH RESEARCH TO FIND TREATMENT MODALITIES, THE CAUSE, AND HOPEFULLY THE CURE FOR SCLERODERMA AND RELATED CONDITIONS.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
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IRS990/OccupancyGrp/ManagementAndGeneralAmt040035
IRS990/OccupancyGrp/ProgramServicesAmt0123677
IRS990/OccupancyGrp/TotalAmt0175904
IRS990/OfficeExpensesGrp/FundraisingAmt035457
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt046896
IRS990/OfficeExpensesGrp/ProgramServicesAmt0108102
IRS990/OfficeExpensesGrp/TotalAmt0190455
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
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IRS990/OtherExpensesGrp/Desc0BANK CHARGES AND WEB DO
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IRS990/OtherExpensesGrp/FundraisingAmt09406
IRS990/OtherExpensesGrp/FundraisingAmt11661
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt030887
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt15452
IRS990/OtherExpensesGrp/ProgramServicesAmt059516
IRS990/OtherExpensesGrp/ProgramServicesAmt192926
IRS990/OtherExpensesGrp/ProgramServicesAmt230004
IRS990/OtherExpensesGrp/ProgramServicesAmt36497
IRS990/OtherExpensesGrp/TotalAmt099809
IRS990/OtherExpensesGrp/TotalAmt192926
IRS990/OtherExpensesGrp/TotalAmt237117
IRS990/OtherExpensesGrp/TotalAmt36497
IRS990/OtherLiabilitiesGrp/BOYAmt083112
IRS990/OtherLiabilitiesGrp/EOYAmt059853
IRS990/OtherRevenueMiscGrp/BusinessCd0900099
IRS990/OtherRevenueMiscGrp/Desc0RETURNED GRANT AWARDS
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IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt08756
IRS990/OtherRevenueTotalAmt08756
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt064180
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt0211679
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0574005
IRS990/OtherSalariesAndWagesGrp/TotalAmt0849864
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PaymentsToAffiliatesGrp/ProgramServicesAmt0411529
IRS990/PaymentsToAffiliatesGrp/TotalAmt0411529
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt06376
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt020936
IRS990/PayrollTaxesGrp/ProgramServicesAmt054084
IRS990/PayrollTaxesGrp/TotalAmt081396
IRS990/PensionPlanContributionsGrp/FundraisingAmt0825
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt02737
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt07886
IRS990/PensionPlanContributionsGrp/TotalAmt011448
IRS990/PermanentlyRstrNetAssetsGrp/BOYAmt01542375
IRS990/PermanentlyRstrNetAssetsGrp/EOYAmt01542375
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt075000
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt039149
IRS990/PoliciesReferenceChaptersInd01
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt0165547
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt0132029
IRS990/PrincipalOfficerNm0ROBERT J RIGGS
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0611710
IRS990/ProgramServiceRevenueGrp/Desc0REGISTRATION FEES
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt0106806
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt0106806
IRS990/ProgSrvcAccomActy2Grp/Desc0EDUCATION AND SUPPORT:1. SUPPORT: A. THE SCLERODERMA FOUNDATION PROVIDES INFORMATIONAL AND EMOTIONAL SUPPORT TO THOSE WHOSE LIVES HAVE BEEN IMPACTED BY THIS DISEASE THROUGH A VARIETY OF SERVICES INCLUDING:I. A NATION-WIDE NETWORK OF ACTIVE SUPPORT GROUPSII. A TOLL-FREE HELPLINE WHERE PATIENTS CAN CONNECT WITH TRAINED STAFF TO ASSIST WITH QUESTIONSIII. REFERRALS TO PHYSICIANS AND OTHER MEDICAL PROFESSIONALS WHO ARE EXPERTS IN SCLERODERMA-RELATED ISSUESIV. ONLINE FORUMS FOR PEER-TO-PEER SUPPORT AND INFORMATION EXCHANGESV. WEEKLY AND QUARTERLY PUBLICATIONS FOCUSED ON ISSUES OF CONCERN AND IMPORTANCE TO THE SCLERODERMA COMMUNITY2. EDUCATION: A. THE SCLERODERMA FOUNDATION PROVIDES EDUCATIONAL OPPORTUNITIES TO PATIENTS AND FAMILY MEMBERS FOCUSED ON DISEASE MANAGEMENT, AND BEST PRACTICES TO ENSURE THE HIGHEST POSSIBLE QUALITY OF LIFE WHILE COPING WITH A CHRONIC AND DEBILITATING DISEASE. EDUCATIONAL PROGRAMS INCLUDE:I. NATIONAL AND REGIONAL CONFERENCES AND SYMPOSIAII. CONTINUOUSLY UPDATED LITERATURE ON A RANGE OF TOPICS AND ISSUES RELATED TO SCLERODERMA DISEASE MANAGEMENT VIA PRINT AND WEBIII. ONLINE FORUMS AND WEBINARSB. THE SCLERODERMA FOUNDATION ENGAGES IN OUTREACH AND EDUCATION INITIATIVES TO THE MEDICAL COMMUNITY TO ENHANCE AWARENESS AND UNDERSTANDING AMONG MEDICAL AND ALLIED HEALTHCARE PROFESSIONALS, INCLUDING:I. CONTINUING MEDICAL EDUCATION PROGRAMSII. CONTINUING NURSE EDUCATION PROGRAMSIII. PARTICIPATION AT KEY MEDICAL/SCIENTIFIC CONFERENCEIV. SUPPORTING NATIONAL AND INTERNATIONAL MEDICAL/SCIENTIFIC MEETINGS FOCUSED ON RESEARCH AND TREATMENT OF SCLERODERMA AND COMORBID CONDITIONS
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt02792323
IRS990/ProgSrvcAccomActy2Grp/RevenueAmt0106806
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt03939641
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt01649990
IRS990/PYInvestmentIncomeAmt0208482
IRS990/PYOtherExpensesAmt02341508
IRS990/PYOtherRevenueAmt099206
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IRS990/PYRevenuesLessExpensesAmt0-597412
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IRS990/PYTotalProfFndrsngExpnsAmt00
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IRS990/QuidProQuoContributionsInd00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
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IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
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IRS990/ReportLandBuildingEquipmentInd01
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IRS990/ReportOtherLiabilitiesInd01
IRS990/ReportProgramRelatedInvstInd00
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IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt03939641
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt04662117
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt04005291
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt04202914
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IRS990ScheduleA/OtherIncome170Grp/TotalAmt02161
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Document Assets

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Filings

Displayed year

2017 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$12,288,226
Liabilities
$2,219,558
Net assets
$10,068,668
Revenue
$5,165,236
Expenses
$5,211,320
Net income
-$46,084
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Facts available. Structured filing facts are available, but richer extracted sections are limited.$11.3$2.93$8.33$6.63$6.78$0.15
2023Summary only. Only limited summary data is available for this year.$12.9$3.09$9.81$6.92$6.46$0.45
2022Summary only. Only limited summary data is available for this year.$11.5$2.91$8.55$4.58$6.21$1.63
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$13.5$2.09$11.4$4.19$4.47$0.28
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$11.6$2.10$9.51$3.81$5.01$1.20
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$12.2$1.78$10.4$4.73$4.80$0.07
2018Summary only. Only limited summary data is available for this year.$12.0$1.91$10.1$4.94$5.00$0.06
2017Detailed filing. Detailed filing data is available for this year.$12.3$2.22$10.1$5.17$5.21$0.05
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$12.0$2.36$9.65$4.34$4.94$0.60
2015Detailed filing. Detailed filing data is available for this year.$12.8$2.34$10.4$5.22$5.63$0.40
2014Detailed filing. Detailed filing data is available for this year.$12.5$1.49$11.0$4.85$4.33$0.52
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$11.6$1.62$10.0$4.07
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$10.6$1.43$9.18$4.45
2011Summary only. Only limited summary data is available for this year.$11.0$1.56$9.49$5.69$5.41$0.28
2010Summary only. Only limited summary data is available for this year.$9.94$1.58$8.36$1.61$0.81$0.80