Civic Intelligence

National Scleroderma Foundation Inc

990 • Fiscal year 2018 • EIN 52-1375827

Jul 01, 2017 to Jun 30, 2018 • Filed on Nov 15, 2018

Organization ProfileWWW.SCLERODERMA.ORG

View Organization Page

300 Rosewood Drive No 105Danvers, MA 01923

(800) 722-4673

Siviq Scores

Scores are not available for this record yet.

Balance Sheet

Assets

Flat

$11,983,494

Flat from 2018

Net Assets

Flat

$10,071,672

Flat from 2018

Liabilities

Flat

$1,911,822

Flat from 2018

Revenue And Expenses

Revenue

Flat

$4,939,002

Flat from 2018

Expenses

Flat

$5,001,317

Flat from 2018

Net Income

Flat

-$62,315

Flat from 2018

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$15M$10M$5.0M$0Assets 2010: $9,935,037Liabilities 2010: $1,579,840Net Assets 2010: $8,355,1972010Assets 2011: $11,045,930Liabilities 2011: $1,560,031Net Assets 2011: $9,485,8992011Assets 2012: $10,615,606Liabilities 2012: $1,432,774Net Assets 2012: $9,182,8322012Assets 2013: $11,639,084Liabilities 2013: $1,621,659Net Assets 2013: $10,017,4252013Assets 2014: $12,465,186Liabilities 2014: $1,492,517Net Assets 2014: $10,972,6692014Assets 2015: $12,755,110Liabilities 2015: $2,337,137Net Assets 2015: $10,417,9732015Assets 2016: $12,011,971Liabilities 2016: $2,360,474Net Assets 2016: $9,651,4972016Assets 2017: $12,288,226Liabilities 2017: $2,219,558Net Assets 2017: $10,068,6682017Assets 2018: $11,983,494Liabilities 2018: $1,911,822Net Assets 2018: $10,071,6722018Assets 2018: $11,983,494Liabilities 2018: $1,911,822Net Assets 2018: $10,071,6722018Assets 2019: $12,200,138Liabilities 2019: $1,781,516Net Assets 2019: $10,418,6222019Assets 2020: $11,612,013Liabilities 2020: $2,097,634Net Assets 2020: $9,514,3792020Assets 2021: $13,492,271Liabilities 2021: $2,093,581Net Assets 2021: $11,398,6902021Assets 2022: $11,463,074Liabilities 2022: $2,913,453Net Assets 2022: $8,549,6212022Assets 2023: $12,897,422Liabilities 2023: $3,086,186Net Assets 2023: $9,811,2362023Assets 2025: $11,259,408Liabilities 2025: $2,926,793Net Assets 2025: $8,332,6152025

Highlighted filing

2018

Assets$11,983,494
Liabilities$1,911,822
Net Assets$10,071,672
Open 2018 Filing

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$10M$5.0M$0-$5.0MRevenue 2010: $1,606,276Expenses 2010: $807,667Net Income 2010: $798,6092010Revenue 2011: $5,692,673Expenses 2011: $5,411,841Net Income 2011: $280,8322011Expenses 2012: $4,446,1582012Expenses 2013: $4,069,7232013Revenue 2014: $4,848,710Expenses 2014: $4,331,065Net Income 2014: $517,6452014Revenue 2015: $5,222,808Expenses 2015: $5,627,220Net Income 2015: -$404,4122015Revenue 2016: $4,338,344Expenses 2016: $4,935,756Net Income 2016: -$597,4122016Revenue 2017: $5,165,236Expenses 2017: $5,211,320Net Income 2017: -$46,0842017Revenue 2018: $4,939,002Expenses 2018: $5,001,317Net Income 2018: -$62,3152018Revenue 2018: $4,939,002Expenses 2018: $5,001,317Net Income 2018: -$62,3152018Revenue 2019: $4,729,306Expenses 2019: $4,798,303Net Income 2019: -$68,9972019Revenue 2020: $3,811,707Expenses 2020: $5,012,061Net Income 2020: -$1,200,3542020Revenue 2021: $4,188,631Expenses 2021: $4,468,676Net Income 2021: -$280,0452021Revenue 2022: $4,581,467Expenses 2022: $6,210,712Net Income 2022: -$1,629,2452022Revenue 2023: $6,915,898Expenses 2023: $6,461,742Net Income 2023: $454,1562023Revenue 2025: $6,628,652Expenses 2025: $6,783,274Net Income 2025: -$154,6222025

Highlighted filing

2018

Revenue$4,939,002
Expenses$5,001,317
Net Income-$62,315
Open 2018 Filing
Jump To
Filing Snapshot
Filing Period
Jul 1, 2017 to Jun 30, 2018
Signed
Nov 15, 2018
Return Version
2017v2.3
Gross Receipts
$7,405,248
Mission and Program Overview

Mission

Scleroderma foundation, inc. Is a nonprofit organization dedicated to the concerns of people whose lives have been impacted by the autoimmune disease scleroderma (a.k.a. Systemic sclerosis), and related conditions. Its three fold mission of support, education and research guides the organization's work in providing education programs for patients and their families, peer-to-peer support through its nationwide network of chapters and support groups, and advocacy efforts to increase awareness of the disease among the general public and medical community. The organization also has a research program that funds clinical and bench research to find treatment modalities, the cause, and hopefully the cure for scleroderma and related conditions.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$8,854,401$8,678,211▼ $176,190
Cash and Non-Interest-Bearing Accounts$2,389,165$2,032,531▼ $356,634
Savings and Temporary Cash Investments$621,245$596,476▼ $24,769
Pledges and Grants Receivable$78,461$267,749▲ $189,288
Prepaid Expenses and Deferred Charges$132,029$165,430▲ $33,401
Land, Buildings, and Equipment, Net$7,582$5,727▼ $1,855
Total Assets$12,288,226$11,983,494▼ $304,732
Other Assets Total$205,343$237,370▲ $32,027
Liabilities
Grants Payable$1,853,834$1,542,380▼ $311,454
Accounts Payable and Accrued Expenses$218,446$198,728▼ $19,718
Other Liabilities$59,853$86,658▲ $26,805
Deferred Revenue$87,425$84,056▼ $3,369
Total Liabilities$2,219,558$1,911,822▼ $307,736
Net Assets / Fund Balance
Unrestricted Net Assets$8,253,413$8,253,794▲ $381
Permanently Rstr Net Assets$1,542,375$1,542,375→ $0
Temporarily Rstr Net Assets$272,880$275,503▲ $2,623
Total Net Assets Fund Balance$10,068,668$10,071,672▲ $3,004
Total Liabilities and Net Assets / Fund Balance$12,288,226$11,983,494▼ $304,732

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$3,727$71,374$75,101
Other Land Buildings$0$70,690$70,690
Leasehold Improvements$0$8,393$8,393
Land$2,000-$2,000

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2017$1,916,225-▲ $65,063$318,411$1,662,877
2016$1,886,371-▲ $114,671$84,817$1,916,225
2015$2,056,133-▲ $30,238$200,000$1,886,371
2014$2,051,305-▲ $4,828-$2,056,133
2013$1,885,727-▲ $165,578-$2,051,305
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Robert J RiggsCEOFT$110,261$12,380$122,641

Board Members and Trustees

NameTitle
Cos MallozziChair
Carol Feghali-bostwick PhdVice Chair
Jane LadasDirector
Katayun JaffariDirector
Kevin BoyanowskiDirector
Mark OrozcoDirector
Mary BladesDirector
Mike LevengoodDirector
Bill MartinSecretary
Greg MarionTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
Brogran & PartnersEvent And Education Services800 N OLD WOODWARD AVE SUITE 100, Birmingham, MI 48009$137,600
Blackbaud INCWebsite SupportPO BOX 930256, Atlanta, GA 31193$120,240
Revenue and Support

Revenue Composition

Contributions and Grants
$4,193,403
Program Service Revenue
$89,020
Investment Income
$647,815
Other Revenue
$8,764
All Other Contributions
$3,691,956
Change in Net Assets
$-62,315

Audited Revenue Reconciliation

Revenue per Audited Statements
$4,939,002
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$65,319
Total Revenue per Audited Statements
$5,004,321
Total Revenue per Form 990
$4,939,002
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$2,532,584
Salaries, Compensation, and Employee Benefits$1,240,891
Grants and Similar Amounts Paid$1,227,842
Total Fundraising Expense$212,079
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$1,200,000--$1,200,000
Other Salaries and Wages$676,761$247,257$74,984$999,002
Conferences and Meetings$670,667$19,201$325$690,193
Payments to Affiliates$391,472--$391,472
Information Technology$162,984$87,578$26,670$277,232
Fees for Services Other$193,289$30,518$20,334$244,141
Office Expenses$158,229$44,387$33,570$236,186
Occupancy$128,136$39,648$12,074$179,858
Travel$98,377$49,106-$147,483
Current Officers, Directors, Trustees, and Key Employees$71,132$39,245$12,264$122,641
Other Employee Benefits$71,394$36,683$11,171$119,248
Insurance$28,849$15,502$4,721$49,072
Fees for Service Investment Mgmnt Fees$28,394$14,859$4,525$47,778
Advertising$22,020$6,700-$28,720
Grants to Domestic Individuals$27,842--$27,842
Fees for Services Accounting-$27,696-$27,696
Fees for Services Legal-$8,557-$8,557
Depreciation Depletion$2,080$852$260$3,192
Other Expenses$2,002$18,008$5,484$2,002
Total Functional Expenses$4,084,734$704,504$212,079$5,001,317

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$5,001,317
Total Expenses per Audited Statements$5,001,317
Total Expenses per Form 990$5,001,317
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Hospital for Special SurgeryNew York, NY501(c)3Research$150,000
Louisiana State University Health Sciences CenterNew Orleans, LA501(c)3Research$150,000
Massachusetts General HospitalBoston, MA501(c)3Research$150,000
Medical University of South CarolinaCharleston, SC501(c)3Research$150,000
Northwestern University Feinberg School of MedicineChicago, IL501(c)3Research$150,000
Regents of the University of Michigan Project Representative (grant 1)Ann Arbor, MI501(c)3Research$150,000
Regents of the University of Michigan Project Representative (grant 2)Ann Arbor, MI501(c)3Research$150,000
Trustees of Boston UniversityNew York, NY501(c)3Research$150,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$255,417
Fundraising Gross Income$255,417
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Detroit Stepping Out Walk$110,578$61,896$61,896$0
Coconut Creek Stepping Out Walk$34,144$9,389$9,389$0
Total Events$756,864$255,417$255,417$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Due to Affiliates$86,658
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“Prior to filing, the form 990 is given to all board members for review. Any questions are answered by either mangement of the organization or the independent auditor.”

Form 990, Part VI, Section B, Line 12C

“A written conflict of interest policy is established which describes and prohibits transactions and/or relationships which might be construed as a conflict of interest. Board members must sign off on the conflict of interest policy on an annual basis.”

Form 990, Part VI, Section B, Line 15

“The board of directors of the organization votes and approves the compensation of the chief executive officer (ceo). The ceo establishes the compensation for all other employees of the organization. No board members are compensated.”

Form 990, Part VI, Section C, Line 19

“The organization makes its governing documents, conflict of interest policy and financial statements available to the public upon request. The organization's financial statements are also available on the organization's website.”

Filing and Contact Details

Filer

Filer Name
Scleroderma Foundation Inc
EIN
52-1375827
Phone
8007224673
Address
300 ROSEWOOD DRIVE NO 105, DANVERS, MA 01923

Signing Officer

Name
Robert J Riggs
Title
Chief Executive Officer
Phone
8007224673
Signed
2018-11-15
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Robert J Riggs
Formed
1993
Legal Domicile
Il
Voting Board Members
10
Independent Board Members
10
Employees
26
Volunteers
914

Preparer

Firm
Moody Famiglietti & Andronico Llp
Address
1 HIGHWOOD DRIVE, TEWKSBURY, MA 01876
Preparer
Matthew Kalil CPA Mba
Phone
9785575300
Supplemental Narrative

Additional Explanations

FORM 990, PART XII, LINE 2C:

“The organization has a committee that assumes responsibility for oversight for the audit of its financial statements and selection of an independent accountant. This process has not changed during the year.”

Financial Statement Notes

PART V, LINE 4:

“The endowment consists of a permanently restricted fund established in 2007 and unrestricted board designated endowment. The endowment is to support research for the disease scleroderma.”

PART X, LINE 2:

“The organization is a nonprofit corporation as described in section 501(c)(3) of the internal revenue code and is exempt from federal and state income taxes on trade or business profits generated by activities related to the organization's exempt function. The organization may be subject to federal and state income taxes for profits generated from unrelated trade or business income. The organization has determined that it does not have any liabilities associated with unrelated trade or business income and as a result, no provision for income taxes is presented in these financial statements. The organization assesses the recording of uncertain tax positions by evaluating the minimum recognition threshold and measurement requirements a tax position must meet before being recognized as a benefit in the financial statements. The organization's policy is to recognize interest and penalties accrued on any uncertain tax positions as a component of income tax expense, if any, in its statement of activities.”

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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10110261
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
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IRS990/Form990PartVIISectionAGrp/TitleTxt0DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt1DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt2DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt7VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt8SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt9TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt10CEO
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IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt01200000
IRS990/GrantsToDomesticOrgsGrp/TotalAmt01200000
IRS990/GrantsToIndividualsInd01
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
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IRS990/GrossReceiptsAmt07405248
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IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
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IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd01
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IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0SCLERODERMA FOUNDATION, INC. IS A NONPROFIT ORGANIZATION DEDICATED TO THE CONCERNS OF PEOPLE WHOSE LIVES HAVE BEEN IMPACTED BY THE AUTOIMMUNE DISEASE SCLERODERMA (A.K.A. SYSTEMIC SCLEROSIS), AND RELATED CONDITIONS. ITS THREE FOLD MISSION OF SUPPORT, EDUCATION AND RESEARCH GUIDES THE ORGANIZATION'S WORK IN PROVIDING EDUCATION PROGRAMS FOR PATIENTS AND THEIR FAMILIES, PEER-TO-PEER SUPPORT THROUGH ITS NATIONWIDE NETWORK OF CHAPTERS AND SUPPORT GROUPS, AND ADVOCACY EFFORTS TO INCREASE AWARENESS OF THE DISEASE AMONG THE GENERAL PUBLIC AND MEDICAL COMMUNITY. THE ORGANIZATION ALSO HAS A RESEARCH PROGRAM THAT FUNDS CLINICAL AND BENCH RESEARCH TO FIND TREATMENT MODALITIES, THE CAUSE, AND HOPEFULLY THE CURE FOR SCLERODERMA AND RELATED CONDITIONS.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
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IRS990/NetAssetsOrFundBalancesEOYAmt010071672
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IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt00
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IRS990/NetUnrlzdGainsLossesInvstAmt065319
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt012074
IRS990/OccupancyGrp/ManagementAndGeneralAmt039648
IRS990/OccupancyGrp/ProgramServicesAmt0128136
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IRS990/OfficeExpensesGrp/FundraisingAmt033570
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt044387
IRS990/OfficeExpensesGrp/ProgramServicesAmt0158229
IRS990/OfficeExpensesGrp/TotalAmt0236186
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IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
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IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt011171
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt036683
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt071394
IRS990/OtherEmployeeBenefitsGrp/TotalAmt0119248
IRS990/OtherExpensesGrp/Desc0ADVOCACY
IRS990/OtherExpensesGrp/Desc1MISCELLANEOUS
IRS990/OtherExpensesGrp/Desc2FEES AND LICENSES
IRS990/OtherExpensesGrp/Desc3OUTREACH
IRS990/OtherExpensesGrp/FundraisingAmt05697
IRS990/OtherExpensesGrp/FundraisingAmt15484
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt018707
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt118008
IRS990/OtherExpensesGrp/ProgramServicesAmt073169
IRS990/OtherExpensesGrp/ProgramServicesAmt143520
IRS990/OtherExpensesGrp/ProgramServicesAmt234417
IRS990/OtherExpensesGrp/ProgramServicesAmt32002
IRS990/OtherExpensesGrp/TotalAmt073169
IRS990/OtherExpensesGrp/TotalAmt167924
IRS990/OtherExpensesGrp/TotalAmt257909
IRS990/OtherExpensesGrp/TotalAmt32002
IRS990/OtherLiabilitiesGrp/BOYAmt059853
IRS990/OtherLiabilitiesGrp/EOYAmt086658
IRS990/OtherRevenueMiscGrp/BusinessCd0900099
IRS990/OtherRevenueMiscGrp/Desc0RETURNED GRANT AWARDS
IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt08764
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt08764
IRS990/OtherRevenueTotalAmt08764
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt074984
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt0247257
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0676761
IRS990/OtherSalariesAndWagesGrp/TotalAmt0999002
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PaymentsToAffiliatesGrp/ProgramServicesAmt0391472
IRS990/PaymentsToAffiliatesGrp/TotalAmt0391472
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PermanentlyRstrNetAssetsGrp/BOYAmt01542375
IRS990/PermanentlyRstrNetAssetsGrp/EOYAmt01542375
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt078461
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt0267749
IRS990/PoliciesReferenceChaptersInd01
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt0132029
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt0165430
IRS990/PrincipalOfficerNm0ROBERT J RIGGS
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0611710
IRS990/ProgramServiceRevenueGrp/Desc0REGISTRATION FEES
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt089020
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt089020
IRS990/ProgSrvcAccomActy2Grp/Desc0EDUCATION AND SUPPORT:1. SUPPORT: A. THE SCLERODERMA FOUNDATION PROVIDES INFORMATIONAL AND EMOTIONAL SUPPORT TO THOSE WHOSE LIVES HAVE BEEN IMPACTED BY THIS DISEASE THROUGH A VARIETY OF SERVICES INCLUDING:I. A NATION-WIDE NETWORK OF ACTIVE SUPPORT GROUPSII. A TOLL-FREE HELPLINE WHERE PATIENTS CAN CONNECT WITH TRAINED STAFF TO ASSIST WITH QUESTIONSIII. REFERRALS TO PHYSICIANS AND OTHER MEDICAL PROFESSIONALS WHO ARE EXPERTS IN SCLERODERMA-RELATED ISSUESIV. ONLINE FORUMS FOR PEER-TO-PEER SUPPORT AND INFORMATION EXCHANGESV. WEEKLY AND QUARTERLY PUBLICATIONS FOCUSED ON ISSUES OF CONCERN AND IMPORTANCE TO THE SCLERODERMA COMMUNITY2. EDUCATION: A. THE SCLERODERMA FOUNDATION PROVIDES EDUCATIONAL OPPORTUNITIES TO PATIENTS AND FAMILY MEMBERS FOCUSED ON DISEASE MANAGEMENT, AND BEST PRACTICES TO ENSURE THE HIGHEST POSSIBLE QUALITY OF LIFE WHILE COPING WITH A CHRONIC AND DEBILITATING DISEASE. EDUCATIONAL PROGRAMS INCLUDE:I. NATIONAL AND REGIONAL CONFERENCES AND SYMPOSIAII. CONTINUOUSLY UPDATED LITERATURE ON A RANGE OF TOPICS AND ISSUES RELATED TO SCLERODERMA DISEASE MANAGEMENT VIA PRINT AND WEBIII. ONLINE FORUMS AND WEBINARSB. THE SCLERODERMA FOUNDATION ENGAGES IN OUTREACH AND EDUCATION INITIATIVES TO THE MEDICAL COMMUNITY TO ENHANCE AWARENESS AND UNDERSTANDING AMONG MEDICAL AND ALLIED HEALTHCARE PROFESSIONALS, INCLUDING:I. CONTINUING MEDICAL EDUCATION PROGRAMSII. CONTINUING NURSE EDUCATION PROGRAMSIII. PARTICIPATION AT KEY MEDICAL/SCIENTIFIC CONFERENCEIV. SUPPORTING NATIONAL AND INTERNATIONAL MEDICAL/SCIENTIFIC MEETINGS FOCUSED ON RESEARCH AND TREATMENT OF SCLERODERMA AND COMORBID CONDITIONS
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt02843263
IRS990/ProgSrvcAccomActy2Grp/RevenueAmt089020
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt04581460
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt01581496
IRS990/PYInvestmentIncomeAmt0468214
IRS990/PYOtherExpensesAmt02497971
IRS990/PYOtherRevenueAmt08756
IRS990/PYProgramServiceRevenueAmt0106806
IRS990/PYRevenuesLessExpensesAmt0-46084
IRS990/PYSalariesCompEmpBnftPaidAmt01131853
IRS990/PYTotalExpensesAmt05211320
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt05165236
IRS990/QuidProQuoContributionsInd00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt0-62315
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd01
IRS990/ReportProgramRelatedInvstInd00
IRS990/RevenueAmt08764
IRS990/SavingsAndTempCashInvstGrp/BOYAmt0621245
IRS990/SavingsAndTempCashInvstGrp/EOYAmt0596476
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt04193403
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt04581460
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt03939641
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt04662117
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt04005291
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt021381912
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt0169963
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt0166672
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt0172568
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt0176313
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt0186027
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt0871543
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IRS990ScheduleA/OtherIncome170Grp/TotalAmt02161
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IRS990ScheduleA/PublicSupportPY170Pct00.82970
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IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
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IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/BoardDesignatedBalanceEOYPct00.07000
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IRS990ScheduleD/CYEndwmtFundGrp/EndYearBalanceAmt01662877
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IRS990ScheduleD/CYEndwmtFundGrp/OtherExpendituresAmt0318411
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IRS990ScheduleD/CYMinus1YrEndwmtFundGrp/EndYearBalanceAmt01916225
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IRS990ScheduleD/CYMinus2YrEndwmtFundGrp/EndYearBalanceAmt01886371
IRS990ScheduleD/CYMinus2YrEndwmtFundGrp/InvestmentEarningsOrLossesAmt030238
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IRS990ScheduleD/CYMinus3YrEndwmtFundGrp/BeginningYearBalanceAmt02051305

Document Assets

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Filings

Displayed year

2018 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$11,983,494
Liabilities
$1,911,822
Net assets
$10,071,672
Revenue
$4,939,002
Expenses
$5,001,317
Net income
-$62,315
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Facts available. Structured filing facts are available, but richer extracted sections are limited.$11.3$2.93$8.33$6.63$6.78$0.15
2023Summary only. Only limited summary data is available for this year.$12.9$3.09$9.81$6.92$6.46$0.45
2022Summary only. Only limited summary data is available for this year.$11.5$2.91$8.55$4.58$6.21$1.63
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$13.5$2.09$11.4$4.19$4.47$0.28
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$11.6$2.10$9.51$3.81$5.01$1.20
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$12.2$1.78$10.4$4.73$4.80$0.07
2018Detailed filing. Detailed filing data is available for this year.$12.0$1.91$10.1$4.94$5.00$0.06
2018Summary only. Only limited summary data is available for this year.$12.0$1.91$10.1$4.94$5.00$0.06
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$12.3$2.22$10.1$5.17$5.21$0.05
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$12.0$2.36$9.65$4.34$4.94$0.60
2015Detailed filing. Detailed filing data is available for this year.$12.8$2.34$10.4$5.22$5.63$0.40
2014Detailed filing. Detailed filing data is available for this year.$12.5$1.49$11.0$4.85$4.33$0.52
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$11.6$1.62$10.0$4.07
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$10.6$1.43$9.18$4.45
2011Summary only. Only limited summary data is available for this year.$11.0$1.56$9.49$5.69$5.41$0.28
2010Summary only. Only limited summary data is available for this year.$9.94$1.58$8.36$1.61$0.81$0.80