Civic Intelligence

National Scleroderma Foundation Inc

990 • Fiscal year 2015 • EIN 52-1375827

Jul 01, 2014 to Jun 30, 2015 • Filed on Nov 12, 2015

Organization ProfileWWW.SCLERODERMA.ORG

View Organization Page

300 Rosewood Drive No 105Danvers, MA 01923

(800) 722-4673

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

44th percentile

0.18x

Higher debt load relative to assets than 44% of similar nonprofits.

2015 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2015

Liabilities / Revenue

64th percentile

0.45x

Higher debt load relative to revenue than 64% of similar nonprofits.

2015 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2015

Net Margin

17th percentile

-7.7%

Higher net margin than 17% of similar nonprofits.

2015 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2015

Top Officer Pay

27th percentile

$113,186

Higher top officer pay than 27% of similar nonprofits.

Top officer pay equals 2.2% of source-year revenue.

2015 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2015

Asset Growth

55th percentile

2.3%

Faster asset growth than 55% of similar nonprofits.

2015 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2014 to 2015

Revenue Growth

62nd percentile

7.7%

Faster revenue growth than 62% of similar nonprofits.

2015 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2014 to 2015

Balance Sheet
Liabilities / Assets44th percentile

Assets

Up

$12,755,110

Up $289,924 (+2.3%) from 2014

Net Assets

Down

$10,417,973

Down $554,696 (-5.1%) from 2014

Liabilities

Up

$2,337,137

Up $844,620 (+57%) from 2014

Revenue And Expenses
Liabilities / Revenue64th percentileNet Margin17th percentile

Revenue

Up

$5,222,808

Up $374,098 (+7.7%) from 2014

Expenses

Up

$5,627,220

Up $1,296,155 (+30%) from 2014

Net Income

Down

-$404,412

Down $922,057 (-178%) from 2014

Historical Trend

Balance Sheet Trend

Asset Growth55th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$15M$10M$5.0M$0Assets 2010: $9,935,037Liabilities 2010: $1,579,840Net Assets 2010: $8,355,1972010Assets 2011: $11,045,930Liabilities 2011: $1,560,031Net Assets 2011: $9,485,8992011Assets 2012: $10,615,606Liabilities 2012: $1,432,774Net Assets 2012: $9,182,8322012Assets 2013: $11,639,084Liabilities 2013: $1,621,659Net Assets 2013: $10,017,4252013Assets 2014: $12,465,186Liabilities 2014: $1,492,517Net Assets 2014: $10,972,6692014Assets 2015: $12,755,110Liabilities 2015: $2,337,137Net Assets 2015: $10,417,9732015Assets 2016: $12,011,971Liabilities 2016: $2,360,474Net Assets 2016: $9,651,4972016Assets 2017: $12,288,226Liabilities 2017: $2,219,558Net Assets 2017: $10,068,6682017Assets 2018: $11,983,494Liabilities 2018: $1,911,822Net Assets 2018: $10,071,6722018Assets 2019: $12,200,138Liabilities 2019: $1,781,516Net Assets 2019: $10,418,6222019Assets 2020: $11,612,013Liabilities 2020: $2,097,634Net Assets 2020: $9,514,3792020Assets 2021: $13,492,271Liabilities 2021: $2,093,581Net Assets 2021: $11,398,6902021Assets 2022: $11,463,074Liabilities 2022: $2,913,453Net Assets 2022: $8,549,6212022Assets 2023: $12,897,422Liabilities 2023: $3,086,186Net Assets 2023: $9,811,2362023Assets 2025: $11,259,408Liabilities 2025: $2,926,793Net Assets 2025: $8,332,6152025

Highlighted filing

2015

Assets$12,755,110
Liabilities$2,337,137
Net Assets$10,417,973
Open 2015 Filing

Operations Trend

Revenue Growth62nd percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$10M$5.0M$0-$5.0MRevenue 2010: $1,606,276Expenses 2010: $807,667Net Income 2010: $798,6092010Revenue 2011: $5,692,673Expenses 2011: $5,411,841Net Income 2011: $280,8322011Expenses 2012: $4,446,1582012Expenses 2013: $4,069,7232013Revenue 2014: $4,848,710Expenses 2014: $4,331,065Net Income 2014: $517,6452014Revenue 2015: $5,222,808Expenses 2015: $5,627,220Net Income 2015: -$404,4122015Revenue 2016: $4,338,344Expenses 2016: $4,935,756Net Income 2016: -$597,4122016Revenue 2017: $5,165,236Expenses 2017: $5,211,320Net Income 2017: -$46,0842017Revenue 2018: $4,939,002Expenses 2018: $5,001,317Net Income 2018: -$62,3152018Revenue 2019: $4,729,306Expenses 2019: $4,798,303Net Income 2019: -$68,9972019Revenue 2020: $3,811,707Expenses 2020: $5,012,061Net Income 2020: -$1,200,3542020Revenue 2021: $4,188,631Expenses 2021: $4,468,676Net Income 2021: -$280,0452021Revenue 2022: $4,581,467Expenses 2022: $6,210,712Net Income 2022: -$1,629,2452022Revenue 2023: $6,915,898Expenses 2023: $6,461,742Net Income 2023: $454,1562023Revenue 2025: $6,628,652Expenses 2025: $6,783,274Net Income 2025: -$154,6222025

Highlighted filing

2015

Revenue$5,222,808
Expenses$5,627,220
Net Income-$404,412
Open 2015 Filing
Jump To
Filing Snapshot
Filing Period
Jul 1, 2014 to Jun 30, 2015
Signed
Nov 12, 2015
Return Version
2014v5.0
Gross Receipts
$8,912,605
Mission and Program Overview

Mission

Scleroderma foundation's mission is threefold: 1) support to help patients and their families cope with scleroderma through mutual support programs, peer counseling, physician referrals, and educational information. 2) education to promote public awareness and education through patient and health professional seminars, literature, and publicity campaigns. And 3) research to stimulate and support research to improve treatments and, ultimately, find the cause of and cure for scleroderma.

Scleroderma foundation, inc. Is a nonprofit organization dedicated to the concerns of people whose lives have been impacted by the autoimmune disease scleroderma (a.k.a. Systemic sclerosis), and related conditions. Its three fold mission of support, education and research guides the organization's work in providing education programs for patients and their families, peer-to-peer support through its nationwide network of chapters and support groups, and advocacy efforts to increase awareness of the disease among the general public and medical community. The organization also has a research program that funds clinical and bench research to find treatment modalities, the cause, and hopefully the cure for scleroderma and related conditions.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$9,601,916$9,937,157▲ $335,241
Cash and Non-Interest-Bearing Accounts$1,522,935$1,606,161▲ $83,226
Savings and Temporary Cash Investments$373,993$689,198▲ $315,205
Prepaid Expenses and Deferred Charges$215,659$127,911▼ $87,748
Pledges and Grants Receivable$478,970$69,920▼ $409,050
Accounts Receivable$31,856$31,422▼ $434
Land, Buildings, and Equipment, Net$12,606$8,758▼ $3,848
Total Assets$12,465,186$12,755,110▲ $289,924
Other Assets Total$227,251$284,583▲ $57,332
Liabilities
Grants Payable$1,177,500$2,044,417▲ $866,917
Accounts Payable and Accrued Expenses$126,911$148,528▲ $21,617
Deferred Revenue$67,980$73,045▲ $5,065
Other Liabilities$120,126$71,147▼ $48,979
Total Liabilities$1,492,517$2,337,137▲ $844,620
Net Assets / Fund Balance
Unrestricted Net Assets$9,119,805$8,298,303▼ $821,502
Permanently Rstr Net Assets$1,542,375$1,542,375→ $0
Temporarily Rstr Net Assets$310,489$577,295▲ $266,806
Total Net Assets Fund Balance$10,972,669$10,417,973▼ $554,696
Total Liabilities and Net Assets / Fund Balance$12,465,186$12,755,110▲ $289,924

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$0$70,690$70,690
Equipment$6,758$61,587$68,345
Leasehold Improvements$0$8,393$8,393
Land$2,000-$2,000

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2014$2,051,305-▲ $4,828$-29,953$2,086,086
2013$1,885,727-▲ $165,578-$2,051,305
2012$1,819,237-▲ $66,490-$1,885,727
2011$1,814,793-▲ $4,444-$1,819,237
2010$1,542,375-▲ $272,418-$1,814,793
Compensation and Service Providers
Top Officer Pay27th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Robert J RiggsCEOFT$101,870$11,316$113,186

Board Members and Trustees

NameTitle
Joseph P Camerino PhdChair
Carol Feghali-bostwick PhdVice Chair & Acting Secret
Bob SlappeyDirector
Cos MallozziDirector
Greg MarionDirector
James EvansDirector
Lee Roy JonesDirector
Marie CoyleDirector
Mary BladesDirector
Robert KacickDirector

Highest Paid Contractors

ContractorServicesLocationCompensation
Blackbaud INCWebsite SupportPO BOX 930256, Atlanta, GA 31193$112,438
Revenue and Support

Revenue Composition

Contributions and Grants
$4,662,117
Program Service Revenue
$95,672
Investment Income
$351,928
Other Revenue
$113,091
All Other Contributions
$3,840,692
Change in Net Assets
$-404,412

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded1$1,000,000Fair Market Value (FMV)
Total Noncash Contributions1$1,000,000-

Audited Revenue Reconciliation

Revenue per Audited Statements
$5,222,808
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$-150,284
Total Revenue per Audited Statements
$5,072,524
Total Revenue per Form 990
$5,222,808
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$2,512,657
Grants and Similar Amounts Paid$2,145,957
Salaries, Compensation, and Employee Benefits$968,606
Total Fundraising Expense$226,802
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$1,960,000--$1,960,000
Other Salaries and Wages$490,814$173,121$52,458$716,393
Conferences and Meetings$658,827$13,040$1,831$673,698
Payments to Affiliates$430,986--$430,986
Fees for Services Other$235,181$11,218$10,810$257,209
Office Expenses$150,609$19,103$85,494$255,206
Occupancy$118,078$40,789$12,421$171,288
Information Technology$90,262$48,502$14,770$153,534
Foreign Grants$139,223--$139,223
Current Officers, Directors, Trustees, and Key Employees$66,303$36,581$11,432$114,316
Travel$78,910--$78,910
Insurance$45,417$24,404$7,432$77,253
Payroll Taxes$46,300$17,331$5,277$68,908
Other Employee Benefits$32,422$17,737$5,381$55,540
Grants to Domestic Individuals$46,734--$46,734
Royalties-$25,327$7,279$32,606
Other Expenses$24,933$5,425$1,653$32,011
Depreciation Depletion$14,555$7,688$2,341$24,584
Fees for Services Accounting-$23,009-$23,009
Advertising$14,406--$14,406
Pension Plan Contributions$9,321$3,171$957$13,449
Fees for Services Legal-$1,272-$1,272
Total Functional Expenses$4,908,842$491,576$226,802$5,627,220

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$5,627,220
Total Expenses per Audited Statements$5,627,220
Total Expenses per Form 990$5,627,220
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Stanford UniversityPalo Alto, CA501(c)3Research$500,000
The University of Texas Health Science CenterHouston, TX501(c)3Research$500,000
BRIGHAM'S & WOMEN'S HOSPITALBoston, MA501(c)3Research$150,000
Johns Hopkins UniversityBaltimore, MD501(c)3Research$150,000
Massachusetts General HospitalBoston, MA501(c)3Research$150,000
Northwestern UniversityChicago, IL501(c)3Research$150,000
UclaLos Angeles, CA501(c)3Research$150,000
University of ToledoToledo, OH501(c)3Research$150,000
Ats FoundationNew York, NY501(c)3Research and Advocacy$60,000

International Summary

Offices
0
Employees
0
Spending
$239,223

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
North AmericaResearch Grants to UniversityResearch Grants to University00$139,223
North AmericaOutreachOutreach00$100,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$272,304
Fundraising Gross Income$272,304
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Se Florida Comedy Night$144,621$18,776$18,776$0
Ohio Stepping Out Walk$101,177$16,379$16,379$0
Total Events$1,093,729$272,304$272,304$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Due to Affiliates$71,147
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11

“Prior to filing, the form 990 is given to all board members for review. Any questions are answered by either mangement of the organization or the independent auditor.”

Form 990, Part VI, Section B, Line 12C

“A written conflict of interest policy is established which describes and prohibits transactions and/or relationships which might be construed as a conflict of interest. Board members must sign off on the conflict of interest policy on an annual basis.”

Form 990, Part VI, Section B, Line 15

“The board of directors of the organization votes and approves the compensation of the chief executive officer (ceo). The ceo establishes the compensation for all other employees of the organization. No board members are compensated.”

Form 990, Part VI, Section C, Line 19

“The organization makes its governing documents, conflict of interest policy and financial statements available to the public upon request. The organization's financial statements are also available on the organization's website.”

Filing and Contact Details

Filer

Filer Name
Scleroderma Foundation Inc
EIN
52-1375827
Phone
8007224673
Address
300 ROSEWOOD DRIVE NO 105, DANVERS, MA 01923

Signing Officer

Name
Robert J Riggs
Title
Chief Executive Officer
Phone
8007224673
Signed
2015-11-12
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Robert J Riggs
Formed
1993
Legal Domicile
Il
Voting Board Members
10
Independent Board Members
10
Employees
24
Volunteers
675

Preparer

Firm
Moody Famiglietti & Andronico Llp
Address
1 HIGHWOOD DRIVE, TEWKSBURY, MA 01876
Preparer
Joyce Ripianzi CPA
Phone
9785575300
Supplemental Narrative

Financial Statement Notes

PART V, LINE 4:

“The endowment consists of a permanently restricted fund established in 2007. The endowment is to support research for the disease scleroderma.”

PART X, LINE 2:

“The organization is a nonprofit corporation as described in section 501(c)(3) of the internal revenue code and is exempt from federal and state income taxes on trade or business profits generated by activities related to the organization's exempt function. The organization may be subject to federal and state income taxes for profits generated from unrelated trade or business income. The organization has determined that it does not have any liabilities associated with unrelated trade or business income and as a result, no provision for income taxes is presented in these financial statements. The organization assesses the recording of uncertain tax positions by evaluating the minimum recognition threshold and measurement requirements a tax position must meet before being recognized as a benefit in the financial statements. The organization's policy is to recognize interest and penalties accrued on any uncertain tax positions as a component of income tax expense, if any, in its statement of activities. The organization has not recognized any liabilities for uncertain tax positions or unrecognized benefits as of june 30, 2015. The organization does not expect any material changes in uncertain tax benefits within the next twelve months. As of june 30, 2015, the organization is not currently under examination by any taxing authorities and is generally open for examination for three years from the date of filing.”

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IRS990/ActivityOrMissionDesc0SCLERODERMA FOUNDATION, INC. IS A NONPROFIT ORGANIZATION DEDICATED TO THE CONCERNS OF PEOPLE WHOSE LIVES HAVE BEEN IMPACTED BY THE AUTOIMMUNE DISEASE SCLERODERMA (A.K.A. SYSTEMIC SCLEROSIS), AND RELATED CONDITIONS. ITS THREE FOLD MISSION OF SUPPORT, EDUCATION AND RESEARCH GUIDES THE ORGANIZATION'S WORK IN PROVIDING EDUCATION PROGRAMS FOR PATIENTS AND THEIR FAMILIES, PEER-TO-PEER SUPPORT THROUGH ITS NATIONWIDE NETWORK OF CHAPTERS AND SUPPORT GROUPS, AND ADVOCACY EFFORTS TO INCREASE AWARENESS OF THE DISEASE AMONG THE GENERAL PUBLIC AND MEDICAL COMMUNITY. THE ORGANIZATION ALSO HAS A RESEARCH PROGRAM THAT FUNDS CLINICAL AND BENCH RESEARCH TO FIND TREATMENT MODALITIES, THE CAUSE, AND HOPEFULLY THE CURE FOR SCLERODERMA AND RELATED CONDITIONS.
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IRS990/Desc0RESEARCH:A. THE SCLERODERMA FOUNDATION PROVIDES FUNDS FOR CLINICAL AND BENCH RESEARCH FOCUSED ON SCLERODERMA/SYSTEMIC SCLEROSIS AND COMORBID CONDITIONS THROUGH A PEER REVIEW RESEARCH PROGRAM MODELED ON PROTOCOLS SET FORTH BY THE NATIONAL INSTITUTES OF HEALTH. B. THE SCLERODERMA FOUNDATION ALSO PROVIDES MENTORING OPPORTUNITIES FOR YOUNG INVESTIGATORS ENTERING THE FIELD OF SCLERODERMA RESEARCH
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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
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IRS990/Form990PartVIISectionAGrp/PersonNm1CAROL FEGHALI-BOSTWICK PHD
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IRS990/Form990PartVIISectionAGrp/PersonNm3JAMES EVANS
IRS990/Form990PartVIISectionAGrp/PersonNm4ROBERT KACICK
IRS990/Form990PartVIISectionAGrp/PersonNm5LEE ROY JONES
IRS990/Form990PartVIISectionAGrp/PersonNm6GREG MARION
IRS990/Form990PartVIISectionAGrp/PersonNm7MARY BLADES
IRS990/Form990PartVIISectionAGrp/PersonNm8MARIE COYLE
IRS990/Form990PartVIISectionAGrp/PersonNm9BOB SLAPPEY
IRS990/Form990PartVIISectionAGrp/PersonNm10ROBERT J RIGGS
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IRS990/Form990PartVIISectionAGrp/TitleTxt1VICE CHAIR & ACTING SECRET
IRS990/Form990PartVIISectionAGrp/TitleTxt2DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
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IRS990/MissionDesc0SCLERODERMA FOUNDATION, INC. IS A NONPROFIT ORGANIZATION DEDICATED TO THE CONCERNS OF PEOPLE WHOSE LIVES HAVE BEEN IMPACTED BY THE AUTOIMMUNE DISEASE SCLERODERMA (A.K.A. SYSTEMIC SCLEROSIS), AND RELATED CONDITIONS. ITS THREE FOLD MISSION OF SUPPORT, EDUCATION AND RESEARCH GUIDES THE ORGANIZATION'S WORK IN PROVIDING EDUCATION PROGRAMS FOR PATIENTS AND THEIR FAMILIES, PEER-TO-PEER SUPPORT THROUGH ITS NATIONWIDE NETWORK OF CHAPTERS AND SUPPORT GROUPS, AND ADVOCACY EFFORTS TO INCREASE AWARENESS OF THE DISEASE AMONG THE GENERAL PUBLIC AND MEDICAL COMMUNITY. THE ORGANIZATION ALSO HAS A RESEARCH PROGRAM THAT FUNDS CLINICAL AND BENCH RESEARCH TO FIND TREATMENT MODALITIES, THE CAUSE, AND HOPEFULLY THE CURE FOR SCLERODERMA AND RELATED CONDITIONS.
IRS990/MoreThan5000KToIndividualsInd00
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IRS990/OtherExpensesGrp/ProgramServicesAmt145049
IRS990/OtherExpensesGrp/ProgramServicesAmt253815
IRS990/OtherExpensesGrp/ProgramServicesAmt324933
IRS990/OtherExpensesGrp/TotalAmt0156697
IRS990/OtherExpensesGrp/TotalAmt176173
IRS990/OtherExpensesGrp/TotalAmt253815
IRS990/OtherExpensesGrp/TotalAmt332011
IRS990/OtherLiabilitiesGrp/BOYAmt0120126
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IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0490814
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IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd00
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IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt05277
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt017331
IRS990/PayrollTaxesGrp/ProgramServicesAmt046300
IRS990/PayrollTaxesGrp/TotalAmt068908
IRS990/PensionPlanContributionsGrp/FundraisingAmt0957
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt03171
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt09321
IRS990/PensionPlanContributionsGrp/TotalAmt013449
IRS990/PermanentlyRstrNetAssetsGrp/BOYAmt01542375
IRS990/PermanentlyRstrNetAssetsGrp/EOYAmt01542375
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IRS990/PledgesAndGrantsReceivableGrp/EOYAmt069920
IRS990/PoliciesReferenceChaptersInd01
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt0215659
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt0127911
IRS990/PrincipalOfficerNm0ROBERT J RIGGS
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0611710
IRS990/ProgramServiceRevenueGrp/Desc0REGISTRATION FEES
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt095672
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt095672
IRS990/ProgSrvcAccomActy2Grp/Desc0EDUCATION AND SUPPORT:1. SUPPORT: A. THE SCLERODERMA PROVIDES INFORMATIONAL AND EMOTIONAL SUPPORT TO THOSE WHOSE LIVES HAVE BEEN IMPACTED BY THIS DISEASE THROUGH A VARIETY OF SERVICES INCLUDING:I. A NATION-WIDE NETWORK OF ACTIVE SUPPORT GROUPSII. A TOLL-FREE HELPLINE WHERE PATIENTS CAN CONNECT WITH TRAINED STAFF TO ASSIST WITH QUESTIONSIII. REFERRALS TO PHYSICIANS AND OTHER MEDICAL PROFESSIONALS WHO ARE EXPERT IN SCLERODERMA-RELATED ISSUESIV. ONLINE FORUMS FOR PEER-TO-PEER SUPPORT AND INFORMATION EXCHANGESV. WEEKLY AND QUARTERLY PUBLICATIONS FOCUSED ON ISSUES OF CONCERN AND IMPORTANCE TO THE SCLERODERMA COMMUNITY2. EDUCATION: A. THE SCLERODERMA FOUNDATION PROVIDES EDUCATIONAL OPPORTUNITIES TO PATIENTS AND FAMILY MEMBERS FOCUSED ON DISEASE MANAGEMENT, AND BEST PRACTICES TO ENSURE THE HIGHEST POSSIBLE QUALITY OF LIFE WHILE COPING WITH A CHRONIC AND DEBILITATING DISEASE. EDUCATIONAL PROGRAMS INCLUDE:I. NATIONAL AND REGIONAL CONFERENCES AND SYMPOSIAII. CONTINUOUSLY UPDATED LITERATURE ON A RANGE OF TOPICS AND ISSUES RELATED TO SCLERODERMA DISEASE MANAGEMENT VIA PRINT AND WEBIII. ONLINE FORUMS AND WEBINARSB. THE SCLERODERMA FOUNDATION ENGAGES IN OUTREACH AND EDUCATION INITIATIVES TO THE MEDICAL COMMUNITY TO ENHANCE AWARENESS AND UNDERSTANDING AMONG MEDCIAL AND ALLIED HEALTHCARE PROFESSIONALS, INCLUDING:I. CONTINUING MEDICAL EDUCATION PROGRAMSII. CONTINUING NURSE EDUCATION PROGRAMSIII. PARTICIPATION AT KEY MEDICAL/SCIENTIFIC CONFERENCEIV. SUPPORTING NATIONAL AND INTERNATIONAL MEDICAL/SCIENTIFIC MEETINGS FOCUSED ON RESEARCH AND TREATMENT OF SCLERODERMA AND COMORBID CONDITIONS
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt02723769
IRS990/ProgSrvcAccomActy2Grp/RevenueAmt095672
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IRS990/PYBenefitsPaidToMembersAmt00
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IRS990/RegularMonitoringEnfrcInd01
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Document Assets

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Filings

Displayed year

2015 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$12,755,110
Liabilities
$2,337,137
Net assets
$10,417,973
Revenue
$5,222,808
Expenses
$5,627,220
Net income
-$404,412
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Facts available. Structured filing facts are available, but richer extracted sections are limited.$11.3$2.93$8.33$6.63$6.78$0.15
2023Summary only. Only limited summary data is available for this year.$12.9$3.09$9.81$6.92$6.46$0.45
2022Summary only. Only limited summary data is available for this year.$11.5$2.91$8.55$4.58$6.21$1.63
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$13.5$2.09$11.4$4.19$4.47$0.28
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$11.6$2.10$9.51$3.81$5.01$1.20
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$12.2$1.78$10.4$4.73$4.80$0.07
2018Summary only. Only limited summary data is available for this year.$12.0$1.91$10.1$4.94$5.00$0.06
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$12.3$2.22$10.1$5.17$5.21$0.05
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$12.0$2.36$9.65$4.34$4.94$0.60
2015Detailed filing. Detailed filing data is available for this year.$12.8$2.34$10.4$5.22$5.63$0.40
2014Detailed filing. Detailed filing data is available for this year.$12.5$1.49$11.0$4.85$4.33$0.52
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$11.6$1.62$10.0$4.07
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$10.6$1.43$9.18$4.45
2011Summary only. Only limited summary data is available for this year.$11.0$1.56$9.49$5.69$5.41$0.28
2010Summary only. Only limited summary data is available for this year.$9.94$1.58$8.36$1.61$0.81$0.80
Peer Organizations

Similar nonprofits based on the same Siviq industry and scale cohort. 2015 filings • 501(c)3 • $10M-$25M nonprofits