Civic Intelligence

Immune Deficiency Foundation

990 • Fiscal year 2011 • EIN 52-1214782

Jan 01, 2011 to Dec 31, 2011 • Filed on Sep 24, 2012

Organization ProfileWWW.PRIMARYIMMUNE.ORG

View Organization Page

40 West Chesapeake Avenue No 30821204
Siviq Scores

Scores are not available for this record yet.

Balance Sheet

Assets

Flat

$5,687,750

Flat from 2011

Net Assets

Flat

$5,542,367

Flat from 2011

Liabilities

Flat

$145,383

Flat from 2011

Revenue And Expenses

Revenue

-

No earlier filing loaded for comparison.

Expenses

Flat

$5,735,821

Flat from 2011

Net Income

-

No earlier filing loaded for comparison.

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$20M$15M$10M$5.0M$0Assets 2010: $5,635,512Liabilities 2010: $376,774Net Assets 2010: $5,258,7382010Assets 2011: $5,687,750Liabilities 2011: $145,383Net Assets 2011: $5,542,3672011Assets 2011: $5,687,750Liabilities 2011: $145,383Net Assets 2011: $5,542,3672011Assets 2012: $7,009,757Liabilities 2012: $217,272Net Assets 2012: $6,792,4852012Assets 2013: $7,911,797Liabilities 2013: $309,767Net Assets 2013: $7,602,0302013Assets 2014: $8,950,816Liabilities 2014: $415,246Net Assets 2014: $8,535,5702014Assets 2015: $8,670,010Liabilities 2015: $492,415Net Assets 2015: $8,177,5952015Assets 2016: $9,403,278Liabilities 2016: $343,283Net Assets 2016: $9,059,9952016Assets 2017: $10,160,762Liabilities 2017: $585,776Net Assets 2017: $9,574,9862017Assets 2018: $9,299,139Liabilities 2018: $623,469Net Assets 2018: $8,675,6702018Assets 2019: $11,518,997Liabilities 2019: $915,547Net Assets 2019: $10,603,4502019Assets 2020: $12,389,861Liabilities 2020: $943,863Net Assets 2020: $11,445,9982020Assets 2021: $14,287,227Liabilities 2021: $444,776Net Assets 2021: $13,842,4512021Assets 2022: $14,567,941Liabilities 2022: $1,525,931Net Assets 2022: $13,042,0102022Assets 2023: $17,355,217Liabilities 2023: $1,438,468Net Assets 2023: $15,916,7492023Assets 2024: $18,802,131Liabilities 2024: $1,362,276Net Assets 2024: $17,439,8552024

Highlighted filing

2011

Assets$5,687,750
Liabilities$145,383
Net Assets$5,542,367
Open 2011 Filing

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$15M$10M$5.0M$0-$5.0MExpenses 2010: $4,406,2032010Expenses 2011: $5,735,8212011Revenue 2011: $6,058,424Expenses 2011: $5,735,821Net Income 2011: $322,6032011Expenses 2012: $4,578,7242012Revenue 2013: $6,497,886Expenses 2013: $5,918,638Net Income 2013: $579,2482013Revenue 2014: $7,071,963Expenses 2014: $6,043,642Net Income 2014: $1,028,3212014Revenue 2015: $7,958,072Expenses 2015: $8,028,597Net Income 2015: -$70,5252015Revenue 2016: $7,604,690Expenses 2016: $6,872,104Net Income 2016: $732,5862016Revenue 2017: $8,261,050Expenses 2017: $8,349,918Net Income 2017: -$88,8682017Revenue 2018: $6,350,758Expenses 2018: $6,409,783Net Income 2018: -$59,0252018Revenue 2019: $9,460,017Expenses 2019: $8,601,612Net Income 2019: $858,4052019Revenue 2020: $6,782,778Expenses 2020: $6,532,541Net Income 2020: $250,2372020Revenue 2021: $9,938,471Expenses 2021: $8,023,615Net Income 2021: $1,914,8562021Revenue 2022: $8,852,448Expenses 2022: $7,936,471Net Income 2022: $915,9772022Revenue 2023: $8,985,857Expenses 2023: $7,402,254Net Income 2023: $1,583,6032023Revenue 2024: $10,131,702Expenses 2024: $9,612,798Net Income 2024: $518,9042024

Highlighted filing

2011

Revenue-
Expenses$5,735,821
Net Income-
Open 2011 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2011 to Dec 31, 2011
Signed
Sep 24, 2012
Return Version
2011v1.2
Gross Receipts
$6,073,215
Mission and Program Overview

Mission

The immune deficiency foundation is the national patient organization dedicated to improving the diagnosis, treatment and quality of life of persons with primary immunodeficiency disease through advocacy, education and research.

Major Activities

Activity 2
Advocacy education:the primary immunodeficiency community turns to idf for individualized assistance with insurance questions, physician location, treatment information, and other resources, and idf's patient advocacy education services directly helped more than 3,600 patients and family members. Thousands more were reached nationally by idf promoting health care policy that positively affects the primary immunodeficiency community. Idf's advocacy education programs educate patients about federal and state healthcare policies, insurance issues and scid newborn screening policies. Idf continues to develop its strong volunteer grassroots advocacy network to educate policymakers about issues important to our community.
Activity 3
Medical outreach and education and survey research:idf medical outreach programs include 10 lebien visiting professors programs and exhibits at four medical conferences. Idf participates in several medical meetings, including the american academy of allergy, asthma & immunology (aaaai) and american academy of pediatrics (aap). Idf sponsors the center of excellence at duke university, with the mission to provide state of the art healthcare services to patients with primary immunodeficiency diseases. The idf ehealthrecord, is part of our outreach and education. It is an online tool for individuals and families living with primary immunodeficiency diseases that help patients take charge of their health information and management in one place. Idf fosters opportunities for continuing education programs so that healthcare professionals may improve the diagnosis and treatment of patients. An online continuing education course for nurses was introduced and 564 nurses registered for this free five credit course. Idf conducts national surveys and focus groups of patients, physicians and pharmacists which help provide quantifiable data that has been extremely valuable in benefitting diagnosis and treatment.
Filing and Contact Details

Filer

EIN
52-1214782
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IRS990/NumberIndependentVotingMembers012
IRS990/NumberIndividualsGT100K04
IRS990/NumberOfContractorsGT100K03
IRS990/NumberOfEmployees028
IRS990/NumberW2GIncluded00
IRS990/Occupancy/Fundraising06295
IRS990/Occupancy/ManagementAndGeneral014564
IRS990/Occupancy/ProgramServices0144682
IRS990/Occupancy/Total0165541
IRS990/OfficeExpenses/Fundraising013806
IRS990/OfficeExpenses/ManagementAndGeneral031943
IRS990/OfficeExpenses/ProgramServices0317321
IRS990/OfficeExpenses/Total0363070
IRS990/OfficerEntityWithBsnssRltnshp00
IRS990/OfficerMailingAddress00
IRS990/Organization501c30X
IRS990/OtherAssetsTotal/BOY09820
IRS990/OtherAssetsTotal/EOY07220
IRS990/OtherEmployeeBenefits/Fundraising06974
IRS990/OtherEmployeeBenefits/ManagementAndGeneral016137
IRS990/OtherEmployeeBenefits/ProgramServices0160302
IRS990/OtherEmployeeBenefits/Total0183413
IRS990/OtherExpensePriorYear02465823
IRS990/OtherExpensesCurrentYear03693343
IRS990/OtherExpenses/Description0REPAIRS & MAINTENANCE
IRS990/OtherExpenses/Description1RESEARCH
IRS990/OtherExpenses/Description2ADMINISTRATION FEES
IRS990/OtherExpenses/Description3AWARDS
IRS990/OtherExpenses/Fundraising01301
IRS990/OtherExpenses/Fundraising11076
IRS990/OtherExpenses/Fundraising2709
IRS990/OtherExpenses/Fundraising3589
IRS990/OtherExpenses/ManagementAndGeneral03009
IRS990/OtherExpenses/ManagementAndGeneral12490
IRS990/OtherExpenses/ManagementAndGeneral21645
IRS990/OtherExpenses/ManagementAndGeneral31364
IRS990/OtherExpenses/ProgramServices029894
IRS990/OtherExpenses/ProgramServices124734
IRS990/OtherExpenses/ProgramServices216344
IRS990/OtherExpenses/ProgramServices313547
IRS990/OtherExpenses/Total034204
IRS990/OtherExpenses/Total128300
IRS990/OtherExpenses/Total218698
IRS990/OtherExpenses/Total315500
IRS990/OtherLiabilities/BOY00
IRS990/OtherLiabilities/EOY05775
IRS990/OtherRevenueCurrentYear018442
IRS990/OtherRevenueMisc/BusinessCode0541700
IRS990/OtherRevenueMisc/Description0OTHER INCOME
IRS990/OtherRevenueMisc/RelatedOrExemptFunctionIncome018442
IRS990/OtherRevenueMisc/TotalRevenueColumn018442
IRS990/OtherRevenuePriorYear014013
IRS990/OtherSalariesAndWages/Fundraising045888
IRS990/OtherSalariesAndWages/ManagementAndGeneral0106173
IRS990/OtherSalariesAndWages/ProgramServices01054714
IRS990/OtherSalariesAndWages/Total01206775
IRS990/PartialLiquidation00
IRS990/PayrollTaxes/Fundraising04923
IRS990/PayrollTaxes/ManagementAndGeneral011390
IRS990/PayrollTaxes/ProgramServices0113152
IRS990/PayrollTaxes/Total0129465
IRS990/PensionPlanContributions/Fundraising01026
IRS990/PensionPlanContributions/ManagementAndGeneral02373
IRS990/PensionPlanContributions/ProgramServices023574
IRS990/PensionPlanContributions/Total026973
IRS990/PermanentlyRestrictedNetAssets/BOY016213
IRS990/PermanentlyRestrictedNetAssets/EOY027338
IRS990/PoliticalActivities00
IRS990/PremiumsPaid00
IRS990/PrepaidExpensesDeferredCharges/BOY065329
IRS990/PrepaidExpensesDeferredCharges/EOY046816
IRS990/PriorExcessBenefitTransaction00
IRS990/ProfessionalFundraising00
IRS990/ProgramServiceRevenue/BusinessCode0541900
IRS990/ProgramServiceRevenueCY085884
IRS990/ProgramServiceRevenue/Description0REGISTRATION FEES
IRS990/ProgramServiceRevenuePriorYear097597
IRS990/ProgramServiceRevenue/RelatedOrExemptFunctionIncome085884
IRS990/ProgramServiceRevenue/TotalRevenueColumn085884
IRS990/ProhibitedTaxShelterTrans00
IRS990/QuidProQuoContributions00
IRS990/ReconcilationOtherChanges0-38974
IRS990/ReconcilationRevenueExpenses0322603
IRS990/RegularMonitoringEnforcement01
IRS990/RelatedEntity01
IRS990/RelatedOrgControlledEntity01
IRS990/ReportFin48Footnote01

Document Assets

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Filings

Displayed year

2011 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$5,687,750
Liabilities
$145,383
Net assets
$5,542,367
Revenue
-
Expenses
$5,735,821
Net income
-
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$18.8$1.36$17.4$10.1$9.61$0.52
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$17.4$1.44$15.9$8.99$7.40$1.58
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$14.6$1.53$13.0$8.85$7.94$0.92
2021Detailed filing. Detailed filing data is available for this year.$14.3$0.44$13.8$9.94$8.02$1.91
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$12.4$0.94$11.4$6.78$6.53$0.25
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$11.5$0.92$10.6$9.46$8.60$0.86
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$9.30$0.62$8.68$6.35$6.41$0.06
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$10.2$0.59$9.57$8.26$8.35$0.09
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$9.40$0.34$9.06$7.60$6.87$0.73
2015XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$8.67$0.49$8.18$7.96$8.03$0.07
2014Detailed filing. Detailed filing data is available for this year.$8.95$0.42$8.54$7.07$6.04$1.03
2013XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$7.91$0.31$7.60$6.50$5.92$0.58
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$7.01$0.22$6.79$4.58
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.69$0.15$5.54$5.74
2011Summary only. Only limited summary data is available for this year.$5.69$0.15$5.54$6.06$5.74$0.32
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.64$0.38$5.26$4.41