Civic Intelligence

Immune Deficiency Foundation

990 • Fiscal year 2012 • EIN 52-1214782

Jan 01, 2012 to Dec 31, 2012 • Filed on Sep 25, 2013

Organization ProfileWWW.PRIMARYIMMUNE.ORG

View Organization Page

40 West Chesapeake Avenue No 30821204
Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

23rd percentile

0.03x

Higher debt load relative to assets than 23% of similar nonprofits.

2012 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2012

Liabilities / Revenue

Score unavailable

No value available

Liabilities-to-revenue requires both liabilities and revenue on this filing.

Source year 2012

Net Margin

Score unavailable

No value available

Net margin requires both revenue and expenses on this filing.

Source year 2012

Top Officer Pay

Score unavailable

No value available

This filing does not contain officer compensation rows.

Source year 2012

Asset Growth

88th percentile

23%

Faster asset growth than 88% of similar nonprofits.

2012 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2011 to 2012

Revenue Growth

Score unavailable

No value available

No valid filing value is available for this score.

Balance Sheet
Liabilities / Assets23rd percentile

Assets

Up

$7,009,757

Up $1,322,007 (+23%) from 2011

Net Assets

Up

$6,792,485

Up $1,250,118 (+23%) from 2011

Liabilities

Up

$217,272

Up $71,889 (+49%) from 2011

Revenue And Expenses
Liabilities / RevenueScore unavailableNet MarginScore unavailable

Revenue

-

No earlier filing loaded for comparison.

Expenses

Down

$4,578,724

Down $1,157,097 (-20%) from 2011

Net Income

-

No earlier filing loaded for comparison.

Historical Trend

Balance Sheet Trend

Asset Growth88th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$20M$15M$10M$5.0M$0Assets 2010: $5,635,512Liabilities 2010: $376,774Net Assets 2010: $5,258,7382010Assets 2011: $5,687,750Liabilities 2011: $145,383Net Assets 2011: $5,542,3672011Assets 2012: $7,009,757Liabilities 2012: $217,272Net Assets 2012: $6,792,4852012Assets 2013: $7,911,797Liabilities 2013: $309,767Net Assets 2013: $7,602,0302013Assets 2014: $8,950,816Liabilities 2014: $415,246Net Assets 2014: $8,535,5702014Assets 2015: $8,670,010Liabilities 2015: $492,415Net Assets 2015: $8,177,5952015Assets 2016: $9,403,278Liabilities 2016: $343,283Net Assets 2016: $9,059,9952016Assets 2017: $10,160,762Liabilities 2017: $585,776Net Assets 2017: $9,574,9862017Assets 2018: $9,299,139Liabilities 2018: $623,469Net Assets 2018: $8,675,6702018Assets 2019: $11,518,997Liabilities 2019: $915,547Net Assets 2019: $10,603,4502019Assets 2020: $12,389,861Liabilities 2020: $943,863Net Assets 2020: $11,445,9982020Assets 2021: $14,287,227Liabilities 2021: $444,776Net Assets 2021: $13,842,4512021Assets 2022: $14,567,941Liabilities 2022: $1,525,931Net Assets 2022: $13,042,0102022Assets 2023: $17,355,217Liabilities 2023: $1,438,468Net Assets 2023: $15,916,7492023Assets 2024: $18,802,131Liabilities 2024: $1,362,276Net Assets 2024: $17,439,8552024

Highlighted filing

2012

Assets$7,009,757
Liabilities$217,272
Net Assets$6,792,485
Open 2012 Filing

Operations Trend

Revenue GrowthScore unavailable

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$15M$10M$5.0M$0-$5.0MExpenses 2010: $4,406,2032010Revenue 2011: $6,058,424Expenses 2011: $5,735,821Net Income 2011: $322,6032011Expenses 2012: $4,578,7242012Revenue 2013: $6,497,886Expenses 2013: $5,918,638Net Income 2013: $579,2482013Revenue 2014: $7,071,963Expenses 2014: $6,043,642Net Income 2014: $1,028,3212014Revenue 2015: $7,958,072Expenses 2015: $8,028,597Net Income 2015: -$70,5252015Revenue 2016: $7,604,690Expenses 2016: $6,872,104Net Income 2016: $732,5862016Revenue 2017: $8,261,050Expenses 2017: $8,349,918Net Income 2017: -$88,8682017Revenue 2018: $6,350,758Expenses 2018: $6,409,783Net Income 2018: -$59,0252018Revenue 2019: $9,460,017Expenses 2019: $8,601,612Net Income 2019: $858,4052019Revenue 2020: $6,782,778Expenses 2020: $6,532,541Net Income 2020: $250,2372020Revenue 2021: $9,938,471Expenses 2021: $8,023,615Net Income 2021: $1,914,8562021Revenue 2022: $8,852,448Expenses 2022: $7,936,471Net Income 2022: $915,9772022Revenue 2023: $8,985,857Expenses 2023: $7,402,254Net Income 2023: $1,583,6032023Revenue 2024: $10,131,702Expenses 2024: $9,612,798Net Income 2024: $518,9042024

Highlighted filing

2012

Revenue-
Expenses$4,578,724
Net Income-
Open 2012 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2012 to Dec 31, 2012
Signed
Sep 25, 2013
Return Version
2012v2.1
Gross Receipts
$5,782,139
Mission and Program Overview

Mission

The immune deficiency foundation is the national patient organization dedicated to improving the diagnosis, treatment and quality of life of persons with primary immunodeficiency disease through advocacy, education and research.

Major Activities

Activity 2
Advocacy education:the primary immunodeficiency community turns to idf for individualized assistance with insurance questions, physician location, treatment information, and other resources, and idf's patient advocacy education services directly helped more than 4,300 patients and family members. Idf's advocacy education programs educates patients about federal and state healthcare policies, insurance issues and scid newborn screening policies. Idf continues to develop its strong volunteer grassroots advocacy network to educate policymakers about issues important to our community.
Activity 3
Medical outreach and education and survey research:idf medical outreach programs include six lebien visiting professors programs and exhibits at five medical conferences. Idf participates in several medical meetings, including the american academy of allergy, asthma & immunology (aaaai) and american academy of pediatrics (aap). 79 physicians took advantage of our consulting immunologist program and the opportunity to consult with expert clinical immunologists about patient specific questions to obtain valuable diagnostic, treatment and disease management information. The idf e-health record, is part of our outreach and education. It is an online tool for individuals and families living with primary immunodeficiency diseases that help patients take charge of their health information and management in one place. Idf fosters opportunities for continuing education programs so that healthcare professionals may improve the diagnosis and treatment of patients. Idf conducts national surveys and focus groups of patients, physicians and pharmacists which help provide quantifiable data that has been extremely valuable in benefitting diagnosis and treatment. In 2012, more than 2,400 patients participated in seven idf surveys.
Filing and Contact Details

Filer

EIN
52-1214782
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IRS990/MissionDescription0THE IMMUNE DEFICIENCY FOUNDATION IS THE NATIONAL PATIENT ORGANIZATION DEDICATED TO IMPROVING THE DIAGNOSIS, TREATMENT AND QUALITY OF LIFE OF PERSONS WITH PRIMARY IMMUNODEFICIENCY DISEASES THROUGH ADVOCACY, EDUCATION AND RESEARCH.
IRS990/MoreThan5000KToIndividuals00
IRS990/MoreThan5000KToOrganizations00
IRS990/NameOfPrincipalOfficerPerson0MARCIA L BOYLE
IRS990/NbrIndependentVotingMembers013
IRS990/NbrVotingGoverningBodyMembers014
IRS990/NbrVotingMembersGoverningBody014
IRS990/NetAssetsOrFundBalancesBOY05542367
IRS990/NetAssetsOrFundBalancesEOY06792485
IRS990/NetIncomeFromFundraisingEvents/ExclusionAmount0-2581
IRS990/NetIncomeFromFundraisingEvents/TotalRevenueColumn0-2581
IRS990/NetUnrelatedBusinessTxblIncome00
IRS990/NonDeductibleContributions00
IRS990/NumberFormsTransmittedWith1096020
IRS990/NumberIndependentVotingMembers013
IRS990/NumberIndividualsGT100K03
IRS990/NumberOfContractorsGT100K03
IRS990/NumberOfEmployees031
IRS990/NumberW2GIncluded00
IRS990/Occupancy/Fundraising03385
IRS990/Occupancy/ManagementAndGeneral020159
IRS990/Occupancy/ProgramServices0139705
IRS990/Occupancy/Total0163249
IRS990/OfficeExpenses/Fundraising05038
IRS990/OfficeExpenses/ManagementAndGeneral030004
IRS990/OfficeExpenses/ProgramServices0207928
IRS990/OfficeExpenses/Total0242970
IRS990/OfficerEntityWithBsnssRltnshp00
IRS990/OfficerMailingAddress00
IRS990/Organization501c30X
IRS990/OtherAssetsTotal/BOY07220
IRS990/OtherAssetsTotal/EOY07220
IRS990/OtherEmployeeBenefits/Fundraising02969
IRS990/OtherEmployeeBenefits/ManagementAndGeneral017683
IRS990/OtherEmployeeBenefits/ProgramServices0122548
IRS990/OtherEmployeeBenefits/Total0143200
IRS990/OtherExpensePriorYear03693343
IRS990/OtherExpensesCurrentYear02589022
IRS990/OtherExpenses/Description0REPAIRS & MAINTENANCE
IRS990/OtherExpenses/Description1ADMINISTRATION FEES
IRS990/OtherExpenses/Description2DUES & SUBSCRIPTIONS
IRS990/OtherExpenses/Description3EVENT EXPENSE
IRS990/OtherExpenses/Fundraising0735
IRS990/OtherExpenses/Fundraising1365
IRS990/OtherExpenses/Fundraising2255
IRS990/OtherExpenses/Fundraising311
IRS990/OtherExpenses/ManagementAndGeneral04377
IRS990/OtherExpenses/ManagementAndGeneral12180
IRS990/OtherExpenses/ManagementAndGeneral21516
IRS990/OtherExpenses/ManagementAndGeneral363
IRS990/OtherExpenses/ProgramServices030336
IRS990/OtherExpenses/ProgramServices115107
IRS990/OtherExpenses/ProgramServices210507
IRS990/OtherExpenses/ProgramServices3439
IRS990/OtherExpenses/Total035448
IRS990/OtherExpenses/Total117652
IRS990/OtherExpenses/Total212278
IRS990/OtherExpenses/Total3513
IRS990/OtherLiabilities/BOY05775
IRS990/OtherLiabilities/EOY00
IRS990/OtherRevenueCurrentYear031517
IRS990/OtherRevenueMisc/BusinessCode0541700
IRS990/OtherRevenueMisc/Description0OTHER INCOME
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IRS990/OtherRevenueMisc/TotalRevenueColumn034098
IRS990/OtherRevenuePriorYear018442
IRS990/OtherSalariesAndWages/Fundraising027254
IRS990/OtherSalariesAndWages/ManagementAndGeneral0162305
IRS990/OtherSalariesAndWages/ProgramServices01124791
IRS990/OtherSalariesAndWages/Total01314350
IRS990/PartialLiquidation00
IRS990/PayrollTaxes/Fundraising02906
IRS990/PayrollTaxes/ManagementAndGeneral017305
IRS990/PayrollTaxes/ProgramServices0119923
IRS990/PayrollTaxes/Total0140134
IRS990/PensionPlanContributions/Fundraising0675
IRS990/PensionPlanContributions/ManagementAndGeneral04019
IRS990/PensionPlanContributions/ProgramServices027852
IRS990/PensionPlanContributions/Total032546
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IRS990/PermanentlyRestrictedNetAssets/EOY033691
IRS990/PoliticalActivities00
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IRS990/ProfessionalFundraising00
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IRS990/ProgramServiceRevenue/Description0REGISTRATION FEES
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IRS990/ProgramServiceRevenue/TotalRevenueColumn023070
IRS990/ProhibitedTaxShelterTrans00
IRS990/QuidProQuoContributions00
IRS990/ReconcilationOtherChanges00
IRS990/ReconcilationRevenueExpenses01200834
IRS990/ReconciliationUnrealizedInvest049284
IRS990/RegularMonitoringEnforcement01
IRS990/RelatedEntity01
IRS990/RelatedOrgControlledEntity01

Document Assets

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Filings

Displayed year

2012 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$7,009,757
Liabilities
$217,272
Net assets
$6,792,485
Revenue
-
Expenses
$4,578,724
Net income
-
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$18.8$1.36$17.4$10.1$9.61$0.52
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$17.4$1.44$15.9$8.99$7.40$1.58
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$14.6$1.53$13.0$8.85$7.94$0.92
2021Detailed filing. Detailed filing data is available for this year.$14.3$0.44$13.8$9.94$8.02$1.91
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$12.4$0.94$11.4$6.78$6.53$0.25
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$11.5$0.92$10.6$9.46$8.60$0.86
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$9.30$0.62$8.68$6.35$6.41$0.06
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$10.2$0.59$9.57$8.26$8.35$0.09
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$9.40$0.34$9.06$7.60$6.87$0.73
2015XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$8.67$0.49$8.18$7.96$8.03$0.07
2014Detailed filing. Detailed filing data is available for this year.$8.95$0.42$8.54$7.07$6.04$1.03
2013XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$7.91$0.31$7.60$6.50$5.92$0.58
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$7.01$0.22$6.79$4.58
2011Summary only. Only limited summary data is available for this year.$5.69$0.15$5.54$6.06$5.74$0.32
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.64$0.38$5.26$4.41