Civic Intelligence

Immune Deficiency Foundation

990 • Fiscal year 2019 • EIN 52-1214782

Jan 01, 2019 to Dec 31, 2019 • Filed on Sep 22, 2020

Organization ProfileWWW.PRIMARYIMMUNE.ORG

View Organization Page

110 West Road No 300Towson, MD 21204

(410) 321-6647

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

34th percentile

0.08x

Higher debt load relative to assets than 34% of similar nonprofits.

2019 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2019

Liabilities / Revenue

29th percentile

0.10x

Higher debt load relative to revenue than 29% of similar nonprofits.

2019 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2019

Net Margin

66th percentile

9.1%

Higher net margin than 66% of similar nonprofits.

2019 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2019

Top Officer Pay

58th percentile

$201,500

Higher top officer pay than 58% of similar nonprofits.

Top officer pay equals 2.1% of source-year revenue.

2019 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2019

Asset Growth

86th percentile

24%

Faster asset growth than 86% of similar nonprofits.

2019 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2018 to 2019

Revenue Growth

89th percentile

49%

Faster revenue growth than 89% of similar nonprofits.

2019 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2018 to 2019

Balance Sheet
Liabilities / Assets34th percentile

Assets

Up

$11,518,997

Up $2,219,858 (+24%) from 2018

Net Assets

Up

$10,603,450

Up $1,927,780 (+22%) from 2018

Liabilities

Up

$915,547

Up $292,078 (+47%) from 2018

Revenue And Expenses
Liabilities / Revenue29th percentileNet Margin66th percentile

Revenue

Up

$9,460,017

Up $3,109,259 (+49%) from 2018

Expenses

Up

$8,601,612

Up $2,191,829 (+34%) from 2018

Net Income

Up

$858,405

Up $917,430 (+1554%) from 2018

Historical Trend

Balance Sheet Trend

Asset Growth86th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$20M$15M$10M$5.0M$0Assets 2010: $5,635,512Liabilities 2010: $376,774Net Assets 2010: $5,258,7382010Assets 2011: $5,687,750Liabilities 2011: $145,383Net Assets 2011: $5,542,3672011Assets 2012: $7,009,757Liabilities 2012: $217,272Net Assets 2012: $6,792,4852012Assets 2013: $7,911,797Liabilities 2013: $309,767Net Assets 2013: $7,602,0302013Assets 2014: $8,950,816Liabilities 2014: $415,246Net Assets 2014: $8,535,5702014Assets 2015: $8,670,010Liabilities 2015: $492,415Net Assets 2015: $8,177,5952015Assets 2016: $9,403,278Liabilities 2016: $343,283Net Assets 2016: $9,059,9952016Assets 2017: $10,160,762Liabilities 2017: $585,776Net Assets 2017: $9,574,9862017Assets 2018: $9,299,139Liabilities 2018: $623,469Net Assets 2018: $8,675,6702018Assets 2019: $11,518,997Liabilities 2019: $915,547Net Assets 2019: $10,603,4502019Assets 2020: $12,389,861Liabilities 2020: $943,863Net Assets 2020: $11,445,9982020Assets 2021: $14,287,227Liabilities 2021: $444,776Net Assets 2021: $13,842,4512021Assets 2022: $14,567,941Liabilities 2022: $1,525,931Net Assets 2022: $13,042,0102022Assets 2023: $17,355,217Liabilities 2023: $1,438,468Net Assets 2023: $15,916,7492023Assets 2024: $18,802,131Liabilities 2024: $1,362,276Net Assets 2024: $17,439,8552024

Highlighted filing

2019

Assets$11,518,997
Liabilities$915,547
Net Assets$10,603,450
Open 2019 Filing

Operations Trend

Revenue Growth89th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$15M$10M$5.0M$0-$5.0MExpenses 2010: $4,406,2032010Revenue 2011: $6,058,424Expenses 2011: $5,735,821Net Income 2011: $322,6032011Expenses 2012: $4,578,7242012Revenue 2013: $6,497,886Expenses 2013: $5,918,638Net Income 2013: $579,2482013Revenue 2014: $7,071,963Expenses 2014: $6,043,642Net Income 2014: $1,028,3212014Revenue 2015: $7,958,072Expenses 2015: $8,028,597Net Income 2015: -$70,5252015Revenue 2016: $7,604,690Expenses 2016: $6,872,104Net Income 2016: $732,5862016Revenue 2017: $8,261,050Expenses 2017: $8,349,918Net Income 2017: -$88,8682017Revenue 2018: $6,350,758Expenses 2018: $6,409,783Net Income 2018: -$59,0252018Revenue 2019: $9,460,017Expenses 2019: $8,601,612Net Income 2019: $858,4052019Revenue 2020: $6,782,778Expenses 2020: $6,532,541Net Income 2020: $250,2372020Revenue 2021: $9,938,471Expenses 2021: $8,023,615Net Income 2021: $1,914,8562021Revenue 2022: $8,852,448Expenses 2022: $7,936,471Net Income 2022: $915,9772022Revenue 2023: $8,985,857Expenses 2023: $7,402,254Net Income 2023: $1,583,6032023Revenue 2024: $10,131,702Expenses 2024: $9,612,798Net Income 2024: $518,9042024

Highlighted filing

2019

Revenue$9,460,017
Expenses$8,601,612
Net Income$858,405
Open 2019 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2019 to Dec 31, 2019
Signed
Sep 22, 2020
Return Version
2019v5.1
Gross Receipts
$9,998,535
Mission and Program Overview

Mission

The immune deficiency foundation is the national patient organization dedicated to improving the diagnosis, treatment and quality of life of persons with primary immunodeficiency disease through advocacy, education and research.

U.s. Organization dedicated to improving lives of people affected by primary immunodeficiencies

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments Other Securities$6,568,971$7,847,097▲ $1,278,126
Savings and Temporary Cash Investments$1,415,922$1,834,513▲ $418,591
Cash and Non-Interest-Bearing Accounts$566,049$760,444▲ $194,395
Accounts Receivable$398,347$675,724▲ $277,377
Prepaid Expenses and Deferred Charges$145,840$219,057▲ $73,217
Land, Buildings, and Equipment, Net$204,010$156,371▼ $47,639
Intangible Assets-$25,791-
Total Assets$9,299,139$11,518,997▲ $2,219,858
Liabilities
Accounts Payable and Accrued Expenses$623,469$915,547▲ $292,078
Total Liabilities$623,469$915,547▲ $292,078
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$8,182,591$10,062,179▲ $1,879,588
Net Assets With Donor Restrictions$493,079$541,271▲ $48,192
Total Net Assets Fund Balance$8,675,670$10,603,450▲ $1,927,780
Total Liabilities and Net Assets / Fund Balance$9,299,139$11,518,997▲ $2,219,858

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$156,371$346,238$502,609
Other Securities$12,918--

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2019$4,140,560-▲ $821,490-$4,962,050
2018$4,412,670-▼ $272,110-$4,140,560
2017$4,211,532-▲ $201,138-$4,412,670
2016$4,103,383-▲ $108,149-$4,211,532
2015$4,238,345$12,000▼ $88,437$-58,525$4,103,383
Compensation and Service Providers
Top Officer Pay58th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
John G BoylePresident & CEOFT$193,750$7,750$201,500
Katherine AntillaVP EducationFT$121,000$23,656$144,656
Sarah RoseChief Financial OfficerFT$124,524$16,354$140,878
Christopher ScalchunesVP ResearchFT$125,711$5,028$130,739

Board Members and Trustees

NameTitle
John SeymourChair
Kate SullivanMac Co-chair
Rebecca H BuckleyMac Co-chair
Steve FietekVice Chair
Amy WalshTrustee
Barbara BallardTrustee
Carlos LageTrustee
Carol Ann DemaretTrustee
Joel BuckbergTrustee
John SmithTrustee
Richard Low JrTrustee
Terry HalperTrustee
Tracy a ShawTrustee
Yvette ShortenTrustee
Brian N RathSecretary

Highest Paid Contractors

ContractorServicesLocationCompensation
Back Office Thinking LLCWebsite Redisgn, Civi & Idf "portal" Sup790 E MARKET STREET, West Chester, PA 19382$211,881
Strategic FactoryDesign, Printing Postage For Mailings, E11195 DOLFIELD BLVD, Owings Mills, MD 21117$185,115
Faegre Baker Daniels LLPPublic Policy Government Affairs1050 K STREET NW SUITE 400, Washington, DC 20001-4448$156,608
Simple ItIt Consulting568 OLD BACHMANS VALLEY ROAD, Westminister, MD 21157$113,155
Cmi CommunicationsAudio Visual Services At National Confer400 MILE CROSING BLVD, Rochester, NY 14624$110,696
Revenue and Support

Revenue Composition

Contributions and Grants
$8,943,841
Program Service Revenue
$149,900
Investment Income
$329,215
Other Revenue
$37,061
All Other Contributions
$6,432,216
Change in Net Assets
$858,405

Audited Revenue Reconciliation

Revenue per Audited Statements
$9,460,017
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$1,069,375
Total Revenue per Audited Statements
$10,529,392
Total Revenue per Form 990
$9,460,017
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$4,995,771
Salaries, Compensation, and Employee Benefits$3,386,950
Total Fundraising Expense$930,546
Grants and Similar Amounts Paid$218,891
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Fees for Services Other$2,016,156$174,207$50,686$2,241,049
Other Salaries and Wages$1,404,929$251,617$303,824$1,960,370
Conferences and Meetings$1,380,585$1,612$150,993$1,533,190
Current Officers, Directors, Trustees, and Key Employees$530,171$94,952$114,653$739,776
Other Employee Benefits$331,754$74,447$71,280$477,481
Occupancy$216,781$34,458$23,885$275,124
Grants to Domestic Individuals$218,891--$218,891
Payroll Taxes$150,930$24,879$33,514$209,323
Travel$165,818$2,656$22,833$191,307
Office Expenses$66,297$10,653$13,497$90,447
All Other Expenses$29,188$19,674$13,934$62,796
Depreciation Depletion$47,030$8,324$5,182$60,536
Advertising$18,263-$29,401$47,664
Other Expenses$33,628$5,603$4,766$43,997
Insurance$29,141$4,202$3,512$36,855
Total Functional Expenses$6,952,665$718,401$930,546$8,601,612

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$8,601,612
Total Expenses per Audited Statements$8,601,612
Total Expenses per Form 990$8,601,612
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$538,518
Fundraising Gross Income$538,518
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Walk Fundraisers$959,852$516,639$516,639$0
Plasma Center Partners$161,380$21,879$21,879$0
Total Events$1,121,232$538,518$538,518$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“The 990 is reviewed by the chief financial officer once completed by the auditors. Once the chief financial officer is satisfied with the accuracy, the 990 is then passed on to the president & ceo for review. After that level of review is complete, it is then passed on to the finance committee for approval. Once that happens it is reviewed and once accurate, approved by the board of trustees.”

Form 990, Part VI, Section B, Line 12C

“Each year idf requests that all board of trustee members and staff complete a conflict of interest statement disclosing any potential conflict that may exist. These are kept on file in the idf office. The board liaison/cfo, distributes the statement annually for signatures to the board. The board liaision/cfo would distribute to any staff necessary. The board liaison/cfo would review and would bring it to the president & ceo's attention if there are conflicts. Any restrictions, if necessary, would be made at his level or above, depending on who/what the conflict is.”

Form 990, Part VI, Section B, Line 15

“The president & ceo's compensation is reviewed and documented by the personnel committee. The committee reviews websites such as salary.com and/or review of materials such as asae's compensation and benefits study book to determine the correct salary for the position. The compensation is presented and approved by the full board. The personnel committee informs the president & ceo, human resources, and accounting. For all employees, an annual review is conducted by the employee's supervisor. Based on this review, it is determined if the person gets an annual increase beyond the cost of living. Review of websites such as salary.com and/or review of materials such as asae's compensation and benefits study book helps determine the correct salary for the position. If the supervisor approves an increase, paperwork is drawn up and submitted to the president & ceo for approval and is also reviewed by the personnel committee. Once approval is complete, human resources and accounting is informed of the increase. The employee is notified as well.”

Form 990, Part VI, Section C, Line 19

“The governing documents, conflict of interest policy and financial statements are available upon request. In addition, the financial statements are available on the website.”

Filing and Contact Details

Filer

Filer Name
Immune Deficiency Foundation
EIN
52-1214782
Phone
4103216647
Address
110 WEST ROAD NO 300, TOWSON, MD 21204

Signing Officer

Name
John G Boyle
Title
President & CEO
Phone
4103216647
Signed
2020-09-22
Discuss with paid preparer
Yes

Organization Details

Principal Officer
John G Boyle
Formed
1980
Legal Domicile
De
Voting Board Members
15
Independent Board Members
15
Employees
45
Volunteers
626

Preparer

Firm
Weyrich Cronin & Sorra LLC
Address
20 WIGHT AVENUE SUITE 210, HUNT VALLEY, MD 21030
Preparer
Karen L Dojan CPA
Phone
4103396464
Supplemental Narrative

Additional Explanations

Part XII, Line 2C

“The finance committee assumes responsibility for oversight of the audit and selection of an independent accountant. The process has not changed from the prior year.”

Part X, Line 27(B)

“Of the $10,062,179 of unrestricted net assets, the board has designated $8,849,543. Of the $8,849,543 the board has designated $433,604 for a research fund. Contributions for this fund are generated from idf's fundraising walks for pi.”

Financial Statement Notes

PART XI, LINE 4B - OTHER ADJUSTMENTS:

“FUNDRAISING EXPENSES”

PART XII, LINE 2D - OTHER ADJUSTMENTS:

“FUNDRAISING EXPENSES”

Part V, Line 4

“The endowment is funded contributions and monies generated by fundraising events that are specifically designated as funds allocated for the endowment. The investment return goal is to generate a 5% to 8% annual return while invested in conservative investment instruments.”

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IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1640.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1740.00
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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt130
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt140
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt150
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1616354
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1723656
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt185028
IRS990/Form990PartVIISectionAGrp/PersonNm0JOHN G BOYLE
IRS990/Form990PartVIISectionAGrp/PersonNm1JOHN SEYMOUR
IRS990/Form990PartVIISectionAGrp/PersonNm2STEVE FIETEK
IRS990/Form990PartVIISectionAGrp/PersonNm3BRIAN N RATH
IRS990/Form990PartVIISectionAGrp/PersonNm4REBECCA H BUCKLEY
IRS990/Form990PartVIISectionAGrp/PersonNm5KATE SULLIVAN
IRS990/Form990PartVIISectionAGrp/PersonNm6BARBARA BALLARD
IRS990/Form990PartVIISectionAGrp/PersonNm7CAROL ANN DEMARET
IRS990/Form990PartVIISectionAGrp/PersonNm8TERRY HALPER
IRS990/Form990PartVIISectionAGrp/PersonNm9JOHN SMITH
IRS990/Form990PartVIISectionAGrp/PersonNm10AMY WALSH
IRS990/Form990PartVIISectionAGrp/PersonNm11CARLOS LAGE
IRS990/Form990PartVIISectionAGrp/PersonNm12RICHARD LOW JR
IRS990/Form990PartVIISectionAGrp/PersonNm13YVETTE SHORTEN
IRS990/Form990PartVIISectionAGrp/PersonNm14JOEL BUCKBERG
IRS990/Form990PartVIISectionAGrp/PersonNm15TRACY A SHAW
IRS990/Form990PartVIISectionAGrp/PersonNm16SARAH ROSE
IRS990/Form990PartVIISectionAGrp/PersonNm17KATHERINE ANTILLA
IRS990/Form990PartVIISectionAGrp/PersonNm18CHRISTOPHER SCALCHUNES
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt0193750
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt16124524
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt17121000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt18125711
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt180
IRS990/Form990PartVIISectionAGrp/TitleTxt0PRESIDENT & CEO
IRS990/Form990PartVIISectionAGrp/TitleTxt1CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt2VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt3SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt4MAC CO-CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt5MAC CO-CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt6TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt7TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt8TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt9TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt10TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt11TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt12TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt13TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt14TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt15TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt16CHIEF FINANCIAL OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt17VP EDUCATION
IRS990/Form990PartVIISectionAGrp/TitleTxt18VP RESEARCH
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr01980
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt0582714
IRS990/FundraisingDirectExpensesAmt0538518
IRS990/FundraisingGrossIncomeAmt0538518
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt015
IRS990/GovernmentGrantsAmt01928911
IRS990/GrantAmt02500
IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt0218891
IRS990/GrantsToDomesticIndividualsGrp/TotalAmt0218891
IRS990/GrantsToIndividualsInd01
IRS990/GrantsToOrganizationsInd00
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt09998535
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd00
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt015
IRS990/IndivRcvdGreaterThan100KCnt04
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InsuranceGrp/FundraisingAmt03512
IRS990/InsuranceGrp/ManagementAndGeneralAmt04202
IRS990/InsuranceGrp/ProgramServicesAmt029141
IRS990/InsuranceGrp/TotalAmt036855
IRS990/IntangibleAssetsGrp/EOYAmt025791
IRS990/InvestmentIncomeGrp/ExclusionAmt0329215
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt0329215
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsOtherSecuritiesGrp/BOYAmt06568971
IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt07847097
IRS990/IRPDocumentCnt046
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt0346238
IRS990/LandBldgEquipBasisNetGrp/BOYAmt0204010
IRS990/LandBldgEquipBasisNetGrp/EOYAmt0156371
IRS990/LandBldgEquipCostOrOtherBssAmt0502609
IRS990/LegalDomicileStateCd0DE
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd01
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0THE IMMUNE DEFICIENCY FOUNDATION IMPROVES THE DIAGNOSIS, TREATMENT, AND QUALITY OF LIFE OF PEOPLE AFFECTED BY PRIMARY IMMUNODEFICIENCY THROUGH FOSTERING A COMMUNITY EMPOWERED BY ADVOCACY, EDUCATION, AND RESEARCH.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt08675670
IRS990/NetAssetsOrFundBalancesEOYAmt010603450
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt00
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt01069375
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt08182591
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt010062179
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt023885
IRS990/OccupancyGrp/ManagementAndGeneralAmt034458
IRS990/OccupancyGrp/ProgramServicesAmt0216781
IRS990/OccupancyGrp/TotalAmt0275124
IRS990/OfficeExpensesGrp/FundraisingAmt013497
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt010653
IRS990/OfficeExpensesGrp/ProgramServicesAmt066297
IRS990/OfficeExpensesGrp/TotalAmt090447
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt071280
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt074447
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt0331754
IRS990/OtherEmployeeBenefitsGrp/TotalAmt0477481
IRS990/OtherExpensesGrp/Desc0POSTAGE & SHIPPING
IRS990/OtherExpensesGrp/Desc1PRINTING & PUBLICATIONS
IRS990/OtherExpensesGrp/Desc2REPAIRS & MAINTENANCE
IRS990/OtherExpensesGrp/Desc3TELEPHONE
IRS990/OtherExpensesGrp/FundraisingAmt059589
IRS990/OtherExpensesGrp/FundraisingAmt125782
IRS990/OtherExpensesGrp/FundraisingAmt23215
IRS990/OtherExpensesGrp/FundraisingAmt34766
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt04159
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt11076
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt25882
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt35603
IRS990/OtherExpensesGrp/ProgramServicesAmt0120071
IRS990/OtherExpensesGrp/ProgramServicesAmt1142226
IRS990/OtherExpensesGrp/ProgramServicesAmt250806
IRS990/OtherExpensesGrp/ProgramServicesAmt333628
IRS990/OtherExpensesGrp/TotalAmt0183819
IRS990/OtherExpensesGrp/TotalAmt1169084
IRS990/OtherExpensesGrp/TotalAmt259903
IRS990/OtherExpensesGrp/TotalAmt343997
IRS990/OtherRevenueMiscGrp/BusinessCd0541900
IRS990/OtherRevenueMiscGrp/Desc0OTHER
IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt037061
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt037061
IRS990/OtherRevenueTotalAmt037061
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt0303824
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt0251617
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt01404929
IRS990/OtherSalariesAndWagesGrp/TotalAmt01960370
IRS990/OtherWebsiteInd0X
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt033514
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt024879
IRS990/PayrollTaxesGrp/ProgramServicesAmt0150930
IRS990/PayrollTaxesGrp/TotalAmt0209323
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt0145840
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt0219057
IRS990/PrincipalOfficerNm0JOHN G BOYLE
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0541900
IRS990/ProgramServiceRevenueGrp/Desc0REGISTRATION FEES
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt0149900
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt0149900
IRS990/ProgSrvcAccomActy2Grp/Desc0THE PRIMARY IMMUNODEFICIENCY COMMUNITY TURNS TO IDF FOR INDIVIDUAL ASSISTANCE TO ANSWER INSURANCE QUESTIONS, LOCATE A SPECIALIST IN THEIR AREA, FIND INFORMATION ABOUT TREATMENT, AND LEARN MORE ABOUT THEIR DIAGNOSIS. IDF'S PATIENT ADVOCACY SPECIALISTS FULFILLED MORE THAN 10,142 REQUESTS FROM INDIVIDUALS AND FAMILIES SEEKING EDUCATION, INFORMATION, AND ASSISTANCE. IDF FILLED 460 REQUESTS TO LOCATE A SPECIALIST; THE MOST COMMON INQUIRY FROM CONSTITUENTS. IDF WORKS THROUGHOUT THE YEAR AT THE FEDERAL AND STATE LEVEL TO EDUCATE LAWMAKERS AND THE PUBLIC ABOUT ISSUES THAT IMPACT THE PI COMMUNITY. A STRONG VOLUNTEER GRASSROOTS ADVOCACY NETWORK WORKS TO EDUCATE POLICYMAKERS ABOUT ISSUES AFFECTING THOSE WITH PI. AT IDF ADVOCACY DAY, 161 INDIVIDUALS GATHERED ON CAPITOL HILL AND MET WITH MEMBERS OF CONGRESS TO ENSURE THAT PEOPLE WITH PI ARE ABLE TO LIVE HEALTHY AND PRODUCTIVE LIVES WITH EXCELLENT TREATMENT OPTIONS AND ACCESS TO THE MOST APPROPRIATE HEALTHCARE AVAILABLE.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0510195
IRS990/ProgSrvcAccomActy2Grp/RevenueAmt0928118
IRS990/ProgSrvcAccomActy3Grp/Desc0IN AN EFFORT TO IMPROVE THE DIAGNOSIS, TREATMENT, AND CARE OF THOSE AFFECTED BY PI, IDF HAS SEVERAL INITIATIVES TO PROVIDE RESOURCES DIRECTLY TO THE MEDICAL COMMUNITY, INCLUDING EXHIBITING AT 11 MEDICAL CONFERENCES AND ADMINISTERING A CONSULTING IMMUNOLOGIST PROGRAM THAT ALLOWS PHYSICIANS TO CONSULT WITH AN EXPERT CLINICAL IMMUNOLOGIST ABOUT PATIENT-SPECIFIC QUESTIONS TO OBTAIN VALUABLE DIAGNOSTIC, TREATMENT, AND DISEASE MANAGEMENT INFORMATION. IN 2019, 91 PHYSICIANS PARTICIPATED. BECAUSE MEDICAL RESEARCH IS A PRIORITY, THE IDF RESEARCH GRANT PROGRAM FUNDED 4 RESEARCH GRANTS IN 2019.IDF EPHR, AN ONLINE PERSONAL HEALTH RECORD FOR 4,420 INDIVIDUALS WITH PI IS AN ONLINE TOOL THAT HELPS PATIENTS TAKE CHARGE OF THEIR HEALTH AND MANAGE THEIR INFORMATION IN ONE PLACE. PI CONNECT, A RESEARCH NETWORK ACCESSED THROUGH IDF EPHR, GREW TO 2,679 USERS IN 2019. PI CONNECT USERS CONSENT INTO THE UNITED STATES IMMUNODEFICIENCY NETWORK (USIDNET) PATIENT REGISTRY, WHICH UTILIZED A NETWORK OF LEADING IMMUNOLOGISTS WHO COLLABORATE TO ADVANCE KNOWLEDGE IN THE FIELD OF PI. A KEY COMPONENT IS A PATIENT-CONSENTED REGISTRY, WHICH HAS 7,487 REGISTRANTS. IDF CONDUCTS NATIONAL SURVEYS AND FOCUS GROUPS OF PATIENTS, PHYSICIANS, AND OTHER HEALTHCARE PROFESSIONALS, BUILDING A COLLECTION OF QUANTIFIABLE DATA RELATED TO PRIMARY IMMUNODEFICIENCIES.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt01300605
IRS990/ProgSrvcAccomActy3Grp/GrantAmt0177596
IRS990/ProgSrvcAccomActy3Grp/RevenueAmt0819608
IRS990/ProgSrvcAccomActyOtherGrp/Desc0OTHER SERVICES TO PATIENTS AND FAMILIES.

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2019 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$11,518,997
Liabilities
$915,547
Net assets
$10,603,450
Revenue
$9,460,017
Expenses
$8,601,612
Net income
$858,405
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$18.8$1.36$17.4$10.1$9.61$0.52
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$17.4$1.44$15.9$8.99$7.40$1.58
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$14.6$1.53$13.0$8.85$7.94$0.92
2021Detailed filing. Detailed filing data is available for this year.$14.3$0.44$13.8$9.94$8.02$1.91
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$12.4$0.94$11.4$6.78$6.53$0.25
2019Detailed filing. Detailed filing data is available for this year.$11.5$0.92$10.6$9.46$8.60$0.86
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$9.30$0.62$8.68$6.35$6.41$0.06
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$10.2$0.59$9.57$8.26$8.35$0.09
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$9.40$0.34$9.06$7.60$6.87$0.73
2015XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$8.67$0.49$8.18$7.96$8.03$0.07
2014Detailed filing. Detailed filing data is available for this year.$8.95$0.42$8.54$7.07$6.04$1.03
2013XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$7.91$0.31$7.60$6.50$5.92$0.58
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$7.01$0.22$6.79$4.58
2011Summary only. Only limited summary data is available for this year.$5.69$0.15$5.54$6.06$5.74$0.32
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.64$0.38$5.26$4.41