Civic Intelligence

Immune Deficiency Foundation

990 • Fiscal year 2018 • EIN 52-1214782

Jan 01, 2018 to Dec 31, 2018 • Filed on Jun 14, 2019

Organization ProfileWWW.PRIMARYIMMUNE.ORG

View Organization Page

110 West Road No 300Towson, MD 21204

(410) 321-6647

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

36th percentile

0.07x

Higher debt load relative to assets than 36% of similar nonprofits.

2018 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2018

Liabilities / Revenue

38th percentile

0.10x

Higher debt load relative to revenue than 38% of similar nonprofits.

2018 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2018

Net Margin

34th percentile

-0.9%

Higher net margin than 34% of similar nonprofits.

2018 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2018

Top Officer Pay

73rd percentile

$188,240

Higher top officer pay than 73% of similar nonprofits.

Top officer pay equals 3.0% of source-year revenue.

2018 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2018

Asset Growth

13th percentile

-8.5%

Faster asset growth than 13% of similar nonprofits.

2018 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2017 to 2018

Revenue Growth

11th percentile

-23%

Faster revenue growth than 11% of similar nonprofits.

2018 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2017 to 2018

Balance Sheet
Liabilities / Assets36th percentile

Assets

Down

$9,299,139

Down $861,623 (-8.5%) from 2017

Net Assets

Down

$8,675,670

Down $899,316 (-9.4%) from 2017

Liabilities

Up

$623,469

Up $37,693 (+6.4%) from 2017

Revenue And Expenses
Liabilities / Revenue38th percentileNet Margin34th percentile

Revenue

Down

$6,350,758

Down $1,910,292 (-23%) from 2017

Expenses

Down

$6,409,783

Down $1,940,135 (-23%) from 2017

Net Income

Up

-$59,025

Up $29,843 (+34%) from 2017

Historical Trend

Balance Sheet Trend

Asset Growth13th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$20M$15M$10M$5.0M$0Assets 2010: $5,635,512Liabilities 2010: $376,774Net Assets 2010: $5,258,7382010Assets 2011: $5,687,750Liabilities 2011: $145,383Net Assets 2011: $5,542,3672011Assets 2012: $7,009,757Liabilities 2012: $217,272Net Assets 2012: $6,792,4852012Assets 2013: $7,911,797Liabilities 2013: $309,767Net Assets 2013: $7,602,0302013Assets 2014: $8,950,816Liabilities 2014: $415,246Net Assets 2014: $8,535,5702014Assets 2015: $8,670,010Liabilities 2015: $492,415Net Assets 2015: $8,177,5952015Assets 2016: $9,403,278Liabilities 2016: $343,283Net Assets 2016: $9,059,9952016Assets 2017: $10,160,762Liabilities 2017: $585,776Net Assets 2017: $9,574,9862017Assets 2018: $9,299,139Liabilities 2018: $623,469Net Assets 2018: $8,675,6702018Assets 2019: $11,518,997Liabilities 2019: $915,547Net Assets 2019: $10,603,4502019Assets 2020: $12,389,861Liabilities 2020: $943,863Net Assets 2020: $11,445,9982020Assets 2021: $14,287,227Liabilities 2021: $444,776Net Assets 2021: $13,842,4512021Assets 2022: $14,567,941Liabilities 2022: $1,525,931Net Assets 2022: $13,042,0102022Assets 2023: $17,355,217Liabilities 2023: $1,438,468Net Assets 2023: $15,916,7492023Assets 2024: $18,802,131Liabilities 2024: $1,362,276Net Assets 2024: $17,439,8552024

Highlighted filing

2018

Assets$9,299,139
Liabilities$623,469
Net Assets$8,675,670
Open 2018 Filing

Operations Trend

Revenue Growth11th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$15M$10M$5.0M$0-$5.0MExpenses 2010: $4,406,2032010Revenue 2011: $6,058,424Expenses 2011: $5,735,821Net Income 2011: $322,6032011Expenses 2012: $4,578,7242012Revenue 2013: $6,497,886Expenses 2013: $5,918,638Net Income 2013: $579,2482013Revenue 2014: $7,071,963Expenses 2014: $6,043,642Net Income 2014: $1,028,3212014Revenue 2015: $7,958,072Expenses 2015: $8,028,597Net Income 2015: -$70,5252015Revenue 2016: $7,604,690Expenses 2016: $6,872,104Net Income 2016: $732,5862016Revenue 2017: $8,261,050Expenses 2017: $8,349,918Net Income 2017: -$88,8682017Revenue 2018: $6,350,758Expenses 2018: $6,409,783Net Income 2018: -$59,0252018Revenue 2019: $9,460,017Expenses 2019: $8,601,612Net Income 2019: $858,4052019Revenue 2020: $6,782,778Expenses 2020: $6,532,541Net Income 2020: $250,2372020Revenue 2021: $9,938,471Expenses 2021: $8,023,615Net Income 2021: $1,914,8562021Revenue 2022: $8,852,448Expenses 2022: $7,936,471Net Income 2022: $915,9772022Revenue 2023: $8,985,857Expenses 2023: $7,402,254Net Income 2023: $1,583,6032023Revenue 2024: $10,131,702Expenses 2024: $9,612,798Net Income 2024: $518,9042024

Highlighted filing

2018

Revenue$6,350,758
Expenses$6,409,783
Net Income-$59,025
Open 2018 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2018 to Dec 31, 2018
Signed
Jun 14, 2019
Return Version
2018v3.1
Gross Receipts
$6,804,735
Mission and Program Overview

Mission

The immune deficiency foundation is the national patient organization dedicated to improving the diagnosis, treatment and quality of life of persons with primary immunodeficiency disease through advocacy, education and research.

U.s. Organization dedicated to improving lives of people with primary immunodeficiency diseases

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments Other Securities$6,501,849$6,568,971▲ $67,122
Savings and Temporary Cash Investments$2,412,159$1,415,922▼ $996,237
Cash and Non-Interest-Bearing Accounts$312,097$566,049▲ $253,952
Accounts Receivable$527,238$398,347▼ $128,891
Land, Buildings, and Equipment, Net$213,910$204,010▼ $9,900
Prepaid Expenses and Deferred Charges$193,509$145,840▼ $47,669
Total Assets$10,160,762$9,299,139▼ $861,623
Liabilities
Accounts Payable and Accrued Expenses$585,776$623,469▲ $37,693
Total Liabilities$585,776$623,469▲ $37,693
Net Assets / Fund Balance
Unrestricted Net Assets$8,448,518$8,182,591▼ $265,927
Temporarily Rstr Net Assets$1,126,468$493,079▼ $633,389
Total Net Assets Fund Balance$9,574,986$8,675,670▼ $899,316
Total Liabilities and Net Assets / Fund Balance$10,160,762$9,299,139▼ $861,623

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$204,010$298,599$502,609
Other Securities$449,048--

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2018$4,412,670-▼ $272,110-$4,140,560
2017$4,211,532-▲ $201,138-$4,412,670
2016$4,103,383-▲ $108,149-$4,211,532
2015$4,238,345$12,000▼ $88,437$-58,525$4,103,383
2014$3,134,756$1,004,183▲ $99,406-$4,238,345
Compensation and Service Providers
Top Officer Pay73rd percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
John G BoylePresident & CEOFT$181,000$7,240$188,240
Katherine AntillaVP EducationFT$120,003$21,681$141,684
Sarah RoseChief Financial OfficerFT$124,524$16,147$140,671
Christopher ScalchunesVP ResearchFT$125,711$14,748$140,459
Kara MoranVP of CommunicationsFT$103,292$9,347$112,639

Board Members and Trustees

NameTitle
John SeymourChair
Kate SullivanMac Co-chair
Rebecca H BuckleyMac Co-chair
Steve FietekVice Chair
Amy WalshTrustee
Barbara BallardTrustee
Carlos LageTrustee
Carol Ann DemaretTrustee
Joel BuckbergTrustee
John SmithTrustee
Richard Low JrTrustee
Terry HalperTrustee
Tracy a ShawTrustee
Yvette ShortenTrustee
Brian N RathSecretary

Highest Paid Contractors

ContractorServicesLocationCompensation
Back Office Thinking LLCWebsite Redisgn, Civi & Idf "portal" Sup790 E MARKET STREET, West Chester, PA 19382$158,147
Accent GraphicsDesign, Layout, PrintPO BOX 158, Hunt Valley, MD 21030$132,609
Faegre Baker Daniels LLPPublic Policy Government Affairs1050 K STREET NW SUITE 400, Washington, DC 20001-4448$132,000
Nevins & AssociatesPublic Relations Consulting32 WEST ROAD SUITE 220, Towson, MD 21204$116,300
Revenue and Support

Revenue Composition

Contributions and Grants
$5,305,252
Program Service Revenue
$544,376
Investment Income
$499,810
Other Revenue
$1,320
All Other Contributions
$3,580,597
Change in Net Assets
$-59,025

Audited Revenue Reconciliation

Revenue per Audited Statements
$6,804,735
Revenue Not Reported on Financial Statements
$-453,977
Revenue Not Reported on Form 990
$-840,291
Other Revenue Adjustments
$-453,977
Total Revenue per Audited Statements
$5,964,444
Total Revenue per Form 990
$6,350,758
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$3,200,406
Salaries, Compensation, and Employee Benefits$2,976,090
Total Fundraising Expense$330,725
Grants and Similar Amounts Paid$233,287
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$1,409,834$249,939$67,590$1,727,363
Fees for Services Other$1,402,310$116,775$27,054$1,546,139
Current Officers, Directors, Trustees, and Key Employees$540,371$101,317$82,005$723,693
Conferences and Meetings$640,129$66-$640,195
Other Employee Benefits$225,368$54,049$37,549$316,966
Occupancy$215,472$33,510$26,593$275,575
Grants to Domestic Individuals$233,287--$233,287
Payroll Taxes$155,553$26,832$25,683$208,068
Travel$154,471$2,338$17,389$174,198
All Other Expenses$47,801$15,750$3,771$67,322
Office Expenses$51,045$6,073-$57,118
Depreciation Depletion$37,492$5,831$9,254$52,577
Other Expenses$37,887$9,892$2,960$50,739
Insurance$25,508$4,360$3,459$33,327
Fees for Services Accounting$26,575$4,064$625$31,264
Fees for Services Legal$16,823$2,734$421$19,978
Advertising$6,195--$6,195
Total Functional Expenses$5,434,817$644,241$330,725$6,409,783

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$6,863,760
Expenses per Audited Statements$6,409,783
Total Expenses per Form 990$6,409,783
Expenses Not Reported on Form 990$453,977
Expenses Not Reported on Financial Statements$0
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$453,977
Fundraising Gross Income$453,977
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Walk Fundraisers$870,750$442,029$442,029$0
Plasma Center Partners$143,447$11,948$11,948$0
Total Events$1,014,197$453,977$453,977$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“The 990 is reviewed by the chief financial officer once completed by the auditors. Once the chief financial officer is satisfied with the accuracy, the 990 is then passed on to the president & ceo for review. After that level of review is complete, it is then passed on to the finance committee for approval. Once that happens it is reviewed and once accurate, approved by the board of trustees.”

Form 990, Part VI, Section B, Line 12C

“Each year idf requests that all board of trustee members and staff complete a conflict of interest statement disclosing any potential conflict that may exist. These are kept on file in the idf office. The board liaison/cfo, distributes the statement annually for signatures to the board. The board liaision/cfo would distribute to any staff necessary. The board liaison/cfo would review and would bring it to the president & ceo's attention if there are conflicts. Any restrictions, if necessary, would be made at his level or above, depending on who/what the conflict is.”

Form 990, Part VI, Section B, Line 15

“The president & ceo's compensation is reviewed and documented by the personnel committee. The committee reviews websites such as salary.com and/or review of materials such as asae's compensation and benefits study book to determine the correct salary for the position. The compensation is presented and approved by the full board. The personnel committee informs the president & ceo, human resources, and accounting. For all employees, an annual review is conducted by the employee's supervisor. Based on this review, it is determined if the person gets an annual increase beyond the cost of living. Review of websites such as salary.com and/or review of materials such as asae's compensation and benefits study book helps determine the correct salary for the position. If the supervisor approves an increase, paperwork is drawn up and submitted to the president & ceo for approval and is also reviewed by the personnel committee. Once approval is complete, human resources and accounting is informed of the increase. The employee is notified as well.”

Form 990, Part VI, Section C, Line 19

“The governing documents, conflict of interest policy and financial statements are available upon request. In addition, the financial statements are available on the website.”

Filing and Contact Details

Filer

Filer Name
Immune Deficiency Foundation
EIN
52-1214782
Phone
4103216647
Address
110 WEST ROAD NO 300, TOWSON, MD 21204

Signing Officer

Name
John G Boyle
Title
President & CEO
Phone
4103216647
Signed
2019-06-14
Discuss with paid preparer
Yes

Organization Details

Principal Officer
John G Boyle
Formed
1980
Legal Domicile
De
Voting Board Members
15
Independent Board Members
15
Employees
42
Volunteers
640

Preparer

Firm
Weyrich Cronin & Sorra LLC
Address
1301 YORK ROAD SUITE 800, LUTHERVILLE, MD 21093
Preparer
Karen L Dojan CPA
Phone
4103396464
Supplemental Narrative

Additional Explanations

Part XII, Line 2C

“The finance committee assumes responsibility for oversight of the audit and selection of an independent accountant. The process has not changed from the prior year.”

Part X, Line 27(B)

“Of the $8,182,591 of unrestricted net assets, the board has designated $7,427,120. Of the $7,427,120 the board has designated $433,604 for a research fund. Contributions for this fund are generated from idf's fundraising walks for pi.”

Financial Statement Notes

PART XI, LINE 4B - OTHER ADJUSTMENTS:

“FUNDRAISING EXPENSES”

PART XII, LINE 2D - OTHER ADJUSTMENTS:

“FUNDRAISING EXPENSES”

Part V, Line 4

“The endowment is funded contributions and monies generated by fundraising events that are specifically designated as funds allocated for the endowment. The investment return goal is to generate a 5% to 8% annual return while invested in conservative investment instruments.”

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IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd12X
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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt130
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt140
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt150
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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt179347
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1821681
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1914748
IRS990/Form990PartVIISectionAGrp/PersonNm0JOHN G BOYLE
IRS990/Form990PartVIISectionAGrp/PersonNm1JOHN SEYMOUR
IRS990/Form990PartVIISectionAGrp/PersonNm2STEVE FIETEK
IRS990/Form990PartVIISectionAGrp/PersonNm3BRIAN N RATH
IRS990/Form990PartVIISectionAGrp/PersonNm4REBECCA H BUCKLEY
IRS990/Form990PartVIISectionAGrp/PersonNm5KATE SULLIVAN
IRS990/Form990PartVIISectionAGrp/PersonNm6BARBARA BALLARD
IRS990/Form990PartVIISectionAGrp/PersonNm7CAROL ANN DEMARET
IRS990/Form990PartVIISectionAGrp/PersonNm8TERRY HALPER
IRS990/Form990PartVIISectionAGrp/PersonNm9JOHN SMITH
IRS990/Form990PartVIISectionAGrp/PersonNm10AMY WALSH
IRS990/Form990PartVIISectionAGrp/PersonNm11CARLOS LAGE
IRS990/Form990PartVIISectionAGrp/PersonNm12RICHARD LOW JR
IRS990/Form990PartVIISectionAGrp/PersonNm13YVETTE SHORTEN
IRS990/Form990PartVIISectionAGrp/PersonNm14JOEL BUCKBERG
IRS990/Form990PartVIISectionAGrp/PersonNm15TRACY A SHAW
IRS990/Form990PartVIISectionAGrp/PersonNm16SARAH ROSE
IRS990/Form990PartVIISectionAGrp/PersonNm17KARA MORAN
IRS990/Form990PartVIISectionAGrp/PersonNm18KATHERINE ANTILLA
IRS990/Form990PartVIISectionAGrp/PersonNm19CHRISTOPHER SCALCHUNES
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt16124524
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt17103292
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt18120003
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt19125711
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt190
IRS990/Form990PartVIISectionAGrp/TitleTxt0PRESIDENT & CEO
IRS990/Form990PartVIISectionAGrp/TitleTxt1CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt2VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt3SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt4MAC CO-CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt5MAC CO-CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt6TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt7TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt8TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt9TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt10TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt11TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt12TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt13TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt14TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt15TRUSTEE
IRS990/Form990PartVIISectionAGrp/TitleTxt16CHIEF FINANCIAL OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt17VP OF COMMUNICATIONS
IRS990/Form990PartVIISectionAGrp/TitleTxt18VP EDUCATION
IRS990/Form990PartVIISectionAGrp/TitleTxt19VP RESEARCH
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr01980
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt0560220
IRS990/FundraisingDirectExpensesAmt0453977
IRS990/FundraisingGrossIncomeAmt0453977
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt015
IRS990/GovernmentGrantsAmt01164435
IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt0233287
IRS990/GrantsToDomesticIndividualsGrp/TotalAmt0233287
IRS990/GrantsToIndividualsInd01
IRS990/GrantsToOrganizationsInd00
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt06804735
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd00
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt015
IRS990/IndivRcvdGreaterThan100KCnt05
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InsuranceGrp/FundraisingAmt03459
IRS990/InsuranceGrp/ManagementAndGeneralAmt04360
IRS990/InsuranceGrp/ProgramServicesAmt025508
IRS990/InsuranceGrp/TotalAmt033327
IRS990/InvestmentIncomeGrp/ExclusionAmt0499810
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt0499810
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsOtherSecuritiesGrp/BOYAmt06501849
IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt06568971
IRS990/IRPDocumentCnt028
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt0298599
IRS990/LandBldgEquipBasisNetGrp/BOYAmt0213910
IRS990/LandBldgEquipBasisNetGrp/EOYAmt0204010
IRS990/LandBldgEquipCostOrOtherBssAmt0502609
IRS990/LegalDomicileStateCd0DE
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd01
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0THE IMMUNE DEFICIENCY FOUNDATION (IDF) IS THE NATIONAL PATIENT ORGANIZATION DEDICATED TO IMPROVING THE DIAGNOSIS, TREATMENT AND QUALITY OF LIFE OF PERSONS WITH PRIMARY IMMUNODEFICIENCY DISEASES (PI) THROUGH ADVOCACY, EDUCATION AND RESEARCH.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt09574986
IRS990/NetAssetsOrFundBalancesEOYAmt08675670
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt00
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt0-840291
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt026593
IRS990/OccupancyGrp/ManagementAndGeneralAmt033510
IRS990/OccupancyGrp/ProgramServicesAmt0215472
IRS990/OccupancyGrp/TotalAmt0275575
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt06073
IRS990/OfficeExpensesGrp/ProgramServicesAmt051045
IRS990/OfficeExpensesGrp/TotalAmt057118
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt037549
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt054049
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt0225368
IRS990/OtherEmployeeBenefitsGrp/TotalAmt0316966
IRS990/OtherExpensesGrp/Desc0POSTAGE & SHIPPING
IRS990/OtherExpensesGrp/Desc1DUES AND SUBSCRIPTIONS
IRS990/OtherExpensesGrp/Desc2PRINTING & PUBLICATIONS
IRS990/OtherExpensesGrp/Desc3REPAIRS & MAINTENANCE
IRS990/OtherExpensesGrp/FundraisingAmt026372
IRS990/OtherExpensesGrp/FundraisingAmt12960
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt03276
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt16608
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt2827
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt39892
IRS990/OtherExpensesGrp/ProgramServicesAmt0117956
IRS990/OtherExpensesGrp/ProgramServicesAmt130061
IRS990/OtherExpensesGrp/ProgramServicesAmt260679
IRS990/OtherExpensesGrp/ProgramServicesAmt337887
IRS990/OtherExpensesGrp/TotalAmt0121232
IRS990/OtherExpensesGrp/TotalAmt163041
IRS990/OtherExpensesGrp/TotalAmt261506
IRS990/OtherExpensesGrp/TotalAmt350739
IRS990/OtherRevenueMiscGrp/BusinessCd0541900
IRS990/OtherRevenueMiscGrp/Desc0OTHER
IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt01320
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt01320
IRS990/OtherRevenueTotalAmt01320
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt067590
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt0249939
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt01409834
IRS990/OtherSalariesAndWagesGrp/TotalAmt01727363
IRS990/OtherWebsiteInd0X
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt025683
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt026832
IRS990/PayrollTaxesGrp/ProgramServicesAmt0155553
IRS990/PayrollTaxesGrp/TotalAmt0208068
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt0193509
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt0145840
IRS990/PrincipalOfficerNm0JOHN G BOYLE
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0541900
IRS990/ProgramServiceRevenueGrp/Desc0REGISTRATION FEES
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt0544376
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt0544376
IRS990/ProgSrvcAccomActy2Grp/Desc0THE PRIMARY IMMUNODEFICIENCY COMMUNITY TURNS TO IDF FOR INDIVIDUALIZED ASSISTANCE WITH INSURANCE QUESTIONS, LOCATING A SPECIALIST, TREATMENT INFORMATION, AND OTHER RESOURCES. IDF'S PATIENT ADVOCACY SERVICES FULFILLED OVER 9,725 REQUESTS FROM PATIENTS AND FAMILIES SEEKING EDUCATION, INFORMATION AND ASSISTANCE. LOCATING A SPECIALIST WAS THE NUMBER ONE NEED WITH 1,258 REQUESTS. IN TERMS OF PUBLIC ADVOCACY, IDF WORKS THROUGHOUT THE YEAR TO EDUCATE PATIENTS ABOUT ISSUES, ON THE FEDERAL AND STATE LEVELS, THAT IMPACT THE PI COMMUNITY. IDF CONTINUES TO DEVELOP ITS STRONG VOLUNTEER GRASSROOTS ADVOCACY NETWORK TO EDUCATE POLICYMAKERS ABOUT ISSUES AFFECTING OUR COMMUNITY. THIS YEAR THERE WERE OVER 2,000 LETTERS AND CALLS TO POLICYMAKERS. THE ANNUAL IDF ADVOCACY DAY ON CAPITOL HILL GATHERED 49 VOLUNTEERS WHO MET WITH MEMBERS OF CONGRESS ABOUT LEGISLATION THAT WOULD NEGATIVELY IMPACT A PATIENT'S ACCESS TO CARE.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0730547
IRS990/ProgSrvcAccomActy2Grp/RevenueAmt0940110
IRS990/ProgSrvcAccomActy3Grp/Desc0MEDICAL OUTREACH AND EDUCATION AND SURVEY RESEARCH: IDF ACTIVELY PROMOTES AND DEVELOPS MEDICAL EDUCATION AND RESOURCES TO IMPROVE THE DIAGNOSIS, TREATMENT AND CARE OF PI. IDF EXHIBITED AT SIX MEDICAL CONFERENCES, AND 91 PHYSICIANS TOOK ADVANTAGE OF OUR CONSULTING IMMUNOLOGIST PROGRAM, WHERE THEY CONSULT WITH AN EXPERT CLINICAL IMMUNOLOGIST ABOUT PATIENT SPECIFIC QUESTIONS TO OBTAIN VALUABLE DIAGNOSTIC, TREATMENT AND DISEASE MANAGEMENT INFORMATION. IDF EPHR, THE ONLINE PERSONAL HEALTH RECORD FOR PATIENTS WITH PI DEVELOPED BY IDF, CURRENTLY HAS 4,077 HEALTH RECORDS. IT IS AN ONLINE TOOL FOR INDIVIDUALS AND FAMILIES LIVING WITH PI THAT HELP PATIENTS TAKE CHARGE OF THEIR HEALTH AND MANAGE THEIR INFORMATION IN ONE PLACE. PI CONNECT, THE IDF PATIENT POWERED RESEARCH NETWORK WHICH IS ACCESSED THROUGH IDF EPHR, GREW TO 2,247 USERS. PI CONNECT USERS CONSENT INTO THE UNITED STATES IMMUNODEFICIENCY NETWORK (USIDNET) PATIENT REGISTRY, A PROGRAM OF IDF. USIDNET UTILIZES A NETWORK OF LEADING IMMUNOLOGISTS WHO HAVE JOINED TOGETHER TO ADVANCE KNOWLEDGE IN THE FIELD OF PI. A KEY COMPONENT IS THE PATIENT-CONSENTED REGISTRY, WHICH SURPASSED THE 7,054 REGISTRATION MARK. IDF FOSTERS OPPORTUNITY FOR CONTINUING EDUCATION PROGRAMS SO THAT HEALTHCARE PROFESSIONALS MAY IMPROVE THE DIAGNOSIS AND TREATMENT OF PATIENTS. IDF CONDUCTS NATIONAL SURVEYS AND FOCUS GROUPS OF PATIENTS, PHYSICIANS AND OTHER HEALTHCARE PROFESSIONALS THAT HELP PROVIDE QUANTIFIABLE DATA WHICH HAS BEEN EXTREMELY VALUABLE. IN 2018, MORE THAN 1,800 PATIENTS AND HEALTHCARE PROFESSIONALS PARTICIPATED IN TWO IDF SURVEYS.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt01863957
IRS990/ProgSrvcAccomActy3Grp/GrantAmt0227904
IRS990/ProgSrvcAccomActy3Grp/RevenueAmt01279580
IRS990/ProgSrvcAccomActyOtherGrp/Desc0OTHER SERVICES TO PATIENTS AND FAMILIES.
IRS990/ProgSrvcAccomActyOtherGrp/ExpenseAmt0993937
IRS990/ProgSrvcAccomActyOtherGrp/GrantAmt05383
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00

Document Assets

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Filings

Displayed year

2018 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$9,299,139
Liabilities
$623,469
Net assets
$8,675,670
Revenue
$6,350,758
Expenses
$6,409,783
Net income
-$59,025
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$18.8$1.36$17.4$10.1$9.61$0.52
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$17.4$1.44$15.9$8.99$7.40$1.58
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$14.6$1.53$13.0$8.85$7.94$0.92
2021Detailed filing. Detailed filing data is available for this year.$14.3$0.44$13.8$9.94$8.02$1.91
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$12.4$0.94$11.4$6.78$6.53$0.25
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$11.5$0.92$10.6$9.46$8.60$0.86
2018Detailed filing. Detailed filing data is available for this year.$9.30$0.62$8.68$6.35$6.41$0.06
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$10.2$0.59$9.57$8.26$8.35$0.09
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$9.40$0.34$9.06$7.60$6.87$0.73
2015XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$8.67$0.49$8.18$7.96$8.03$0.07
2014Detailed filing. Detailed filing data is available for this year.$8.95$0.42$8.54$7.07$6.04$1.03
2013XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$7.91$0.31$7.60$6.50$5.92$0.58
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$7.01$0.22$6.79$4.58
2011Summary only. Only limited summary data is available for this year.$5.69$0.15$5.54$6.06$5.74$0.32
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.64$0.38$5.26$4.41