Civic Intelligence

Narcolepsy Network Inc.

990 • Fiscal year 2015 • EIN 22-2762623

Jan 01, 2015 to Dec 31, 2015 • Filed on May 19, 2016

Organization Profilewww.narcolepsynetwork.org
46 Union Drive A212North Kingstown, RI 02852

(888) 292-6522

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

64th percentile

0.02x

Higher debt load relative to assets than 64% of similar nonprofits.

2015 filings • 501(c)3 • <$500k nonprofits • Source year 2015

Liabilities / Revenue

67th percentile

0.02x

Higher debt load relative to revenue than 67% of similar nonprofits.

2015 filings • 501(c)3 • <$500k nonprofits • Source year 2015

Net Margin

23rd percentile

-10%

Higher net margin than 23% of similar nonprofits.

2015 filings • 501(c)3 • <$500k nonprofits • Source year 2015

Top Officer Pay

Score unavailable

No value available

This filing does not contain officer compensation rows.

Source year 2015

Asset Growth

21st percentile

-19%

Faster asset growth than 21% of similar nonprofits.

2015 filings • 501(c)3 • <$500k nonprofits • Annualized from 2014 to 2015

Revenue Growth

23rd percentile

-21%

Faster revenue growth than 23% of similar nonprofits.

2015 filings • 501(c)3 • <$500k nonprofits • Annualized from 2014 to 2015

Balance Sheet
Liabilities / Assets64th percentile

Assets

Down

$391,466

Down $93,408 (-19%) from 2014

Net Assets

Down

$383,820

Down $39,409 (-9.3%) from 2014

Liabilities

Down

$7,646

Down $53,999 (-88%) from 2014

Revenue And Expenses
Liabilities / Revenue67th percentileNet Margin23rd percentile

Revenue

Down

$375,868

Down $98,002 (-21%) from 2014

Expenses

Up

$415,277

Up $39,060 (+10%) from 2014

Net Income

Down

-$39,409

Down $137,062 (-140%) from 2014

Historical Trend

Balance Sheet Trend

Asset Growth21st percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$800K$600K$400K$200K$0Assets 2010: $289,666Liabilities 2010: $16,332Net Assets 2010: $273,3342010Assets 2011: $311,453Liabilities 2011: $8,040Net Assets 2011: $303,4132011Assets 2012: $317,705Liabilities 2012: $3,337Net Assets 2012: $314,3682012Assets 2013: $359,938Liabilities 2013: $34,362Net Assets 2013: $325,5762013Assets 2014: $484,874Liabilities 2014: $61,645Net Assets 2014: $423,2292014Assets 2015: $391,466Liabilities 2015: $7,646Net Assets 2015: $383,8202015Assets 2016: $326,334Liabilities 2016: $38,007Net Assets 2016: $288,3272016Assets 2017: $305,453Liabilities 2017: $43,679Net Assets 2017: $261,7742017Assets 2018: $360,153Liabilities 2018: $18,013Net Assets 2018: $342,1402018Assets 2019: $534,942Liabilities 2019: $36,616Net Assets 2019: $498,3262019Assets 2020: $703,473Liabilities 2020: $22,256Net Assets 2020: $681,2172020Assets 2021: $615,842Liabilities 2021: $16,295Net Assets 2021: $599,5472021Assets 2022: $499,771Liabilities 2022: $85,159Net Assets 2022: $414,6122022Assets 2023: $383,865Liabilities 2023: $16,512Net Assets 2023: $367,3532023Assets 2024: $356,559Liabilities 2024: $10,586Net Assets 2024: $345,9732024

Highlighted filing

2015

Assets$391,466
Liabilities$7,646
Net Assets$383,820
Open 2015 Filing

Operations Trend

Revenue Growth23rd percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$800K$600K$400K$200K$0-$200KExpenses 2010: $201,8332010Revenue 2011: $307,386Expenses 2011: $276,521Net Income 2011: $30,8652011Expenses 2012: $269,1902012Revenue 2013: $356,284Expenses 2013: $345,076Net Income 2013: $11,2082013Revenue 2014: $473,870Expenses 2014: $376,217Net Income 2014: $97,6532014Revenue 2015: $375,868Expenses 2015: $415,277Net Income 2015: -$39,4092015Revenue 2016: $323,075Expenses 2016: $417,135Net Income 2016: -$94,0602016Revenue 2017: $396,493Expenses 2017: $423,046Net Income 2017: -$26,5532017Revenue 2018: $465,238Expenses 2018: $384,872Net Income 2018: $80,3662018Revenue 2019: $603,529Expenses 2019: $447,343Net Income 2019: $156,1862019Revenue 2020: $475,127Expenses 2020: $305,036Net Income 2020: $170,0912020Revenue 2021: $370,027Expenses 2021: $462,162Net Income 2021: -$92,1352021Revenue 2022: $395,403Expenses 2022: $562,494Net Income 2022: -$167,0912022Revenue 2023: $497,974Expenses 2023: $559,178Net Income 2023: -$61,2042023Revenue 2024: $455,706Expenses 2024: $489,101Net Income 2024: -$33,3952024

Highlighted filing

2015

Revenue$375,868
Expenses$415,277
Net Income-$39,409
Open 2015 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2015 to Dec 31, 2015
Signed
May 19, 2016
Return Version
2015v2.1
Gross Receipts
$375,868
Mission and Program Overview

Mission

The Network is organized to educate the public about narcolepsy, support individuals with narcolepsy, promote efficient diagnosis, encourage and promote scientific research for cause, treatments, prevention and cure of narcolepsy, provide the formation of Chapters, provide funding through solicitation and fund-raising activities for these purposes.

Narcolepsy Network is dedicated to improving the lives of people with narcolepsy. Goals include: increasing public awareness, advocating and providing education and resources for people with narcolepsy, promoting and supporting narcolepsy and related research.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$418,424$284,332▼ $134,092
Investments in Publicly Traded Securities$5,519$58,460▲ $52,941
Cash and Non-Interest-Bearing Accounts$57,842$43,880▼ $13,962
Land, Buildings, and Equipment, Net$2,500$2,500→ $0
Prepaid Expenses and Deferred Charges$37$2,294▲ $2,257
Inventories for Sale or Use$552$0▼ $552
Total Assets$484,874$391,466▼ $93,408
Liabilities
Accounts Payable and Accrued Expenses$61,645$7,646▼ $53,999
Other Liabilities$0$0→ $0
Total Liabilities$61,645$7,646▼ $53,999
Net Assets / Fund Balance
Unrestricted Net Assets$423,229$383,820▼ $39,409
Permanently Rstr Net Assets$0$0→ $0
Temporarily Rstr Net Assets$0$0→ $0
Total Net Assets Fund Balance$423,229$383,820▼ $39,409
Total Liabilities and Net Assets / Fund Balance$484,874$391,466▼ $93,408

Asset Categories

AssetBook ValueDepreciationBasis
Buildings$0$0$0
Other Land Buildings$2,500$0$0
Land$0-$0
Equipment$0$0$0
Leasehold Improvements$0$0$0
Compensation and Service Providers
Top Officer PayScore unavailable

Employees

NameTitleFull / Part TimeBaseTotal
Eveline V Honig MD MPHExecutive DirectorFT$57,882$57,882

Board Members and Trustees

NameTitle
Sarah DiDavidePresident
Rahul Kakkar MDVice President
Brianna EspanaTrustee
Keith HarperTrustee
Mark Patterson MD PhDTrustee
Mee Warren CFA CAIATrustee
Piper Paul JDTrustee
Sara Kowalczyk MA MPHTrustee
Suporn Sukprarut PhDTrustee
Niss RyanTrustee Emerita
Ellen PowisSecretary
Louise O'ConnellTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$315,849
Program Service Revenue
$60,080
Investment Income
$-61
Other Revenue
$0
All Other Contributions
$259,964
Change in Net Assets
$-39,409

Audited Revenue Reconciliation

Revenue per Audited Statements
$375,868
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$0
Other Revenue Adjustments
$0
Total Revenue per Audited Statements
$375,868
Total Revenue per Form 990
$375,868
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$240,961
Salaries, Compensation, and Employee Benefits$146,986
Grants and Similar Amounts Paid$27,330
Total Fundraising Expense$11,924
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Conferences and Meetings$111,502$0$0$111,502
Other Salaries and Wages$60,390$10,400$467$71,257
Current Officers, Directors, Trustees, and Key Employees$57,063$3,170$3,170$63,403
Office Expenses$20,232$6,494$6,861$33,587
Travel$26,123$2,946$63$29,132
Fees for Services Other$23,010$1,460$0$24,470
Information Technology$13,898$602$124$14,624
Grants to Domestic Orgs$13,770--$13,770
Payroll Taxes$9,155$1,503$268$10,926
Grants to Domestic Individuals$8,560--$8,560
Insurance$2,705$4,031$0$6,736
Foreign Grants$5,000--$5,000
Fees for Services Accounting$0$3,596$0$3,596
Other Expenses$0$2,813$0$2,813
Occupancy$0$2,194$0$2,194
Other Employee Benefits$1,300$50$50$1,400
All Other Expenses$760$436$0$1,196
Advertising$249$0$0$249
Fees for Services Legal$0$100$0$100
Total Functional Expenses$363,390$39,963$11,924$415,277

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$415,277
Total Expenses per Audited Statements$415,277
Total Expenses per Form 990$415,277
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
Other Expense Adjustments$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Project Camp IncScottsville, KY501(c)(3)Family Retreat Grant for families with children with narcolepsy$7,500
Patient Advocate FoundationHampton, VA501(c)(3)Conference Presentation Grant$6,270

International Compliance

Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Insider Transactions and Loans

Interested-Person Transactions

Interested PartyRelationshipDescriptionShared RevenueAmount
Melissa Pattersondaughter of board memberemploymentNo$16,275
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
Yes
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
Yes
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 6

“Narcolepsy Network is a membership organization.”

Form 990, Part VI, Section A, Line 7A

“Any person who supports the purpose of the corporation may become a member for each calendar year by paying the annual membership dues as required by the bylaws. Only those persons whose dues are current or have been granted complimentary membership shall be eligible to vote at membership meetings. There shall be no membership certificates of this corporation.”

Form 990, Part VI, Section A, Line 7B

“Any member may attend a membership meeting. Voting privileges shall be extended to any member whose dues are paid by the close of business on the day prior to giving notice of the meeting, which shall be the record date for determining the members entitled to vote at the meeting. Each voting member shall have one (1) vote. Membership standing in the name of a corporation may be voted on by any officer or agent, or by proxy appointed by any of them, unless some other person, by resolution of its board or pursuant to its bylaws, shall be appointed to vote the membership.”

Form 990, Part VI, Section B, Line 11B

“The Board of Trustees shall be called to review the annual Form 990 and accompanying schedules.”

Form 990, Part VI, Section B, Line 12C

“All Board members are provided conflict of interest forms and asked to signed a statement of compliance. The President then follows up with each board member by email or phone until they were returned.”

Form 990, Part VI, Section C, Line 19

“The Narcolepsy Network governing documents, including the conflict of interest policy, are available to the public upon request. The financial statements are published in the Narcolepsy Network Annual Report, which is available on the Narcolepsy Network website. Additionally, the bylaws are on the Narcolepsy Network website member's only section and are available upon request.”

Filing and Contact Details

Filer

Filer Name
Narcolepsy Network Inc
EIN
22-2762623
Phone
8882926522
Address
46 Union Drive A212, North Kingstown, RI 02852

Signing Officer

Name
Sarah DiDavide
Title
President
Phone
4016672523
Signed
2016-05-19

Organization Details

Principal Officer
Sarah DiDavide
Formed
1986
Legal Domicile
Nj
Voting Board Members
11
Independent Board Members
11
Employees
8
Volunteers
50
Supplemental Narrative

Additional Explanations

Form 990, Part IX, Line 11G

“Conference Event Planning $13,880, Youth Ambassador Consulting $7,450, Editing & Design Services $2,640, Administrative Services $500”

Financial Statement Notes

Schedule D, Part III, Line 4

“Maureen D Garnier donated "The Dream", her original watercolor with black and metallic inks. The painting measures 26" x 39". "The Dream" may be used in a variety of print images to further awareness of narcolepsy and its symptoms.”

Schedule D, Part X, Line 2

“The organization has adopted the accounting standard related to uncertainty in income taxes. For the periods ended December 31, 2015 and 2014 respectively, the organization did not identify any uncertain tax positions taken in an income tax return that would require adjustment to or disclosure in its financial statements. In addition, the organization believes that its tax status as a tax exempt entity would be sustained under federal and state tax examination. The organization is subject to federal and state tax examination for three years.”

Raw XML AppendixShowing 400 of 802 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Form990PartVIISectionAGrp/PersonNm0Sarah DiDavide
IRS990/Form990PartVIISectionAGrp/PersonNm1Rahul Kakkar MD
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IRS990/Form990PartVIISectionAGrp/PersonNm6Sara Kowalczyk MA MPH
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IRS990/Form990PartVIISectionAGrp/PersonNm11Niss Ryan
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IRS990/Form990PartVIISectionAGrp/TitleTxt0President
IRS990/Form990PartVIISectionAGrp/TitleTxt1Vice President
IRS990/Form990PartVIISectionAGrp/TitleTxt2Secretary
IRS990/Form990PartVIISectionAGrp/TitleTxt3Treasurer
IRS990/Form990PartVIISectionAGrp/TitleTxt4Trustee
IRS990/Form990PartVIISectionAGrp/TitleTxt5Trustee
IRS990/Form990PartVIISectionAGrp/TitleTxt6Trustee
IRS990/Form990PartVIISectionAGrp/TitleTxt7Trustee
IRS990/Form990PartVIISectionAGrp/TitleTxt8Trustee
IRS990/Form990PartVIISectionAGrp/TitleTxt9Trustee
IRS990/Form990PartVIISectionAGrp/TitleTxt10Trustee
IRS990/Form990PartVIISectionAGrp/TitleTxt11Trustee Emerita
IRS990/Form990PartVIISectionAGrp/TitleTxt12Executive Director
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IRS990/MissionDesc0The purposes for which the corporation is organized are: educate the public about narcolepsy, support individuals with narcolepsy, promote efficient diagnosis, encourage and promote scientific research for cause, treatments, prevention and cure of narcolepsy, provide for the formation of Chapters, provide funding through solicitation and fund-raising activities for the above-mentioned purposes.
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IRS990/ProgSrvcAccomActy2Grp/Desc0PUBLIC INFORMATION: Information provided for public, academic, medical, and other persons interested in obtaining information about narcolepsy, its causes, symptoms and treatments. Creation and distribution of educational materials and brochures, maintenance of website, interactive forum discussion and social media outreach. NN's Facebook and Twitter pages, with more than 6,000 followers, and an active Facebook support group with nearly 5,000 members continued to bring narcolepsy news and information to people around the world. Fun awareness events continued, including The New York Dream Big Walk, which had more than 145 walkers raise awareness along the Hudson River in New York City. The Third Annual Narcolepsy Bed Race in Virginia also reached more than 60,000 in Southwest Virginia. Narcolepsy Network continued outreach to healthcare providers and educators in 2015, including an initiative to educate medical professionals with two posters that were presented at the SLEEP 2015 meeting, which is attended, by approximately 5,000 sleep professionals. A Youth Ambassador program to support youth with Narcolepsy.
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IRS990/ProgSrvcAccomActy3Grp/Desc0NEWSLETTER, MEMBERSHIP & SCHOLARSHIPS: Our quarterly newsletter, "The Network" is for many people the only source of information about narcolepsy. The newsletter is distributed to the membership as well as many non-member sleep centers and professionals. Each newsletter provides information on diagnosis, effective treatments, resources, updates detailing new narcolepsy research, ideas for coping, personal stories and interviews, industry news, legal and insurance guidance and much more. Approximately 2,000 newsletters are printed quarterly. As part of its mission to provide support to people with narcolepsy, Narcolepsy Network encourages the formation of support groups. There are more than 30 active in-person groups in the U.S. Approximately 30 full and partial membership, and 25 conference scholarships were provided to members in need.
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Document Assets

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Filings

Displayed year

2015 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$391,466
Liabilities
$7,646
Net assets
$383,820
Revenue
$375,868
Expenses
$415,277
Net income
-$39,409
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.57$0.11$3.46$4.56$4.89$0.33
2023Summary only. Only limited summary data is available for this year.$3.84$0.17$3.67$4.98$5.59$0.61
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.00$0.85$4.15$3.95$5.62$1.67
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$6.16$0.16$6.00$3.70$4.62$0.92
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$7.03$0.22$6.81$4.75$3.05$1.70
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$5.35$0.37$4.98$6.04$4.47$1.56
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.60$0.18$3.42$4.65$3.85$0.80
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.05$0.44$2.62$3.96$4.23$0.27
2016Summary only. Only limited summary data is available for this year.$3.26$0.38$2.88$3.23$4.17$0.94
2015Detailed filing. Detailed filing data is available for this year.$3.91$0.08$3.84$3.76$4.15$0.39
2014Detailed filing. Detailed filing data is available for this year.$4.85$0.62$4.23$4.74$3.76$0.98
2013Detailed filing. Detailed filing data is available for this year.$3.60$0.34$3.26$3.56$3.45$0.11
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.18$0.03$3.14$2.69
2011Summary only. Only limited summary data is available for this year.$3.11$0.08$3.03$3.07$2.77$0.31
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.90$0.16$2.73$2.02
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