Civic Intelligence

Narcolepsy Network Inc

EIN 22-2762623 • 501(c)3 • Camas, WA

Profile

The purposes for which the corporation is organized are: educate the public about narcolepsy, support individuals with narcolepsy, promote efficient diagnosis, encourage and promote scientific research for cause, treatments, prevention and cure of narcolepsy, provide for the formation of Chapters, provide funding through solicitation and fund-raising activities for the above-mentioned purposes.

3242 NE 3rd Ave 1101Camas, WA 98607

www.narcolepsynetwork.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

71st percentile

0.03x

Higher debt load relative to assets than 71% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2024

Liabilities / Revenue

73rd percentile

0.02x

Higher debt load relative to revenue than 73% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2024

Net Margin

33rd percentile

-7.3%

Higher net margin than 33% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2024

Top Officer Pay

Score unavailable

No value available

No filing with officer rows is available for this organization yet.

Asset Growth

42nd percentile

-7.1%

Faster asset growth than 42% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2023 to 2024

Revenue Growth

41st percentile

-8.5%

Faster revenue growth than 41% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets71st percentile

Assets

Down

$356,559

Down $27,306 (-7.1%) from 2023

Liabilities

Down

$10,586

Down $5,926 (-36%) from 2023

Net Assets

Down

$345,973

Down $21,380 (-5.8%) from 2023

Operations
Liabilities / Revenue73rd percentileNet Margin33rd percentile

Revenue

Down

$455,706

Down $42,268 (-8.5%) from 2023

Expenses

Down

$489,101

Down $70,077 (-13%) from 2023

Net Income

Up

-$33,395

Up $27,809 (+45%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth42nd percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$800K$600K$400K$200K$0Assets 2010: $289,666Liabilities 2010: $16,332Net Assets 2010: $273,3342010Assets 2011: $311,453Liabilities 2011: $8,040Net Assets 2011: $303,4132011Assets 2012: $317,705Liabilities 2012: $3,337Net Assets 2012: $314,3682012Assets 2013: $359,938Liabilities 2013: $34,362Net Assets 2013: $325,5762013Assets 2014: $484,874Liabilities 2014: $61,645Net Assets 2014: $423,2292014Assets 2015: $391,466Liabilities 2015: $7,646Net Assets 2015: $383,8202015Assets 2016: $326,334Liabilities 2016: $38,007Net Assets 2016: $288,3272016Assets 2017: $305,453Liabilities 2017: $43,679Net Assets 2017: $261,7742017Assets 2018: $360,153Liabilities 2018: $18,013Net Assets 2018: $342,1402018Assets 2019: $534,942Liabilities 2019: $36,616Net Assets 2019: $498,3262019Assets 2020: $703,473Liabilities 2020: $22,256Net Assets 2020: $681,2172020Assets 2021: $615,842Liabilities 2021: $16,295Net Assets 2021: $599,5472021Assets 2022: $499,771Liabilities 2022: $85,159Net Assets 2022: $414,6122022Assets 2023: $383,865Liabilities 2023: $16,512Net Assets 2023: $367,3532023Assets 2024: $356,559Liabilities 2024: $10,586Net Assets 2024: $345,9732024

Highlighted filing

2024

Assets$356,559
Liabilities$10,586
Net Assets$345,973
Open 2024 Filing

Operations Trend

Revenue Growth41st percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$800K$600K$400K$200K$0-$200KExpenses 2010: $201,8332010Revenue 2011: $307,386Expenses 2011: $276,521Net Income 2011: $30,8652011Expenses 2012: $269,1902012Revenue 2013: $356,284Expenses 2013: $345,076Net Income 2013: $11,2082013Revenue 2014: $473,870Expenses 2014: $376,217Net Income 2014: $97,6532014Revenue 2015: $375,868Expenses 2015: $415,277Net Income 2015: -$39,4092015Revenue 2016: $323,075Expenses 2016: $417,135Net Income 2016: -$94,0602016Revenue 2017: $396,493Expenses 2017: $423,046Net Income 2017: -$26,5532017Revenue 2018: $465,238Expenses 2018: $384,872Net Income 2018: $80,3662018Revenue 2019: $603,529Expenses 2019: $447,343Net Income 2019: $156,1862019Revenue 2020: $475,127Expenses 2020: $305,036Net Income 2020: $170,0912020Revenue 2021: $370,027Expenses 2021: $462,162Net Income 2021: -$92,1352021Revenue 2022: $395,403Expenses 2022: $562,494Net Income 2022: -$167,0912022Revenue 2023: $497,974Expenses 2023: $559,178Net Income 2023: -$61,2042023Revenue 2024: $455,706Expenses 2024: $489,101Net Income 2024: -$33,3952024

Highlighted filing

2024

Revenue$455,706
Expenses$489,101
Net Income-$33,395
Open 2024 Filing

Filings

Most recent year

2024 • Form 990XML pending. An XML filing is linked for this year, but detailed extraction is still pending.

Open filing
Assets
$356,559
Liabilities
$10,586
Net assets
$345,973
Revenue
$455,706
Expenses
$489,101
Net income
-$33,395
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.57$0.11$3.46$4.56$4.89$0.33
2023Summary only. Only limited summary data is available for this year.$3.84$0.17$3.67$4.98$5.59$0.61
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.00$0.85$4.15$3.95$5.62$1.67
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$6.16$0.16$6.00$3.70$4.62$0.92
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$7.03$0.22$6.81$4.75$3.05$1.70
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$5.35$0.37$4.98$6.04$4.47$1.56
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.60$0.18$3.42$4.65$3.85$0.80
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.05$0.44$2.62$3.96$4.23$0.27
2016Summary only. Only limited summary data is available for this year.$3.26$0.38$2.88$3.23$4.17$0.94
2015Detailed filing. Detailed filing data is available for this year.$3.91$0.08$3.84$3.76$4.15$0.39
2014Detailed filing. Detailed filing data is available for this year.$4.85$0.62$4.23$4.74$3.76$0.98
2013Detailed filing. Detailed filing data is available for this year.$3.60$0.34$3.26$3.56$3.45$0.11
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.18$0.03$3.14$2.69
2011Summary only. Only limited summary data is available for this year.$3.11$0.08$3.03$3.07$2.77$0.31
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.90$0.16$2.73$2.02
Latest Detailed Filing

The latest 2024 filing currently has linked XML that has not been fully parsed yet. Showing the latest detailed filing from 2022 below.

Jump To
Filing Snapshot
Filing Period
Jan 1, 2022 to Dec 31, 2022
Signed
Nov 15, 2023
Return Version
2022v5.0
Gross Receipts
$396,302
Mission and Program Overview

Mission

The Network is organized to educate the public about narcolepsy, support individuals with narcolepsy, promote efficient diagnosis, encourage and promote scientific research for cause, treatments, prevention and cure of narcolepsy, provide the formation of Chapters, provide funding through solicitation and fund-raising activities for these purposes.

Narcolepsy network is dedicated to improving the lives of men, women, and children with narcolepsy. The organization's goals include increasing public awareness to foster early diagnoses, advocating for all people with narcolepsy (pwns), promoting and supporting narcolepsy and related research, and providing education and resources both to people living with narcolepsy and the public at large.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$390,319$368,343▼ $21,976
Investments in Publicly Traded Securities$109,700$92,896▼ $16,804
Cash and Non-Interest-Bearing Accounts$90,760$31,111▼ $59,649
Prepaid Expenses and Deferred Charges$18,528$4,921▼ $13,607
Pledges and Grants Receivable$4,035--
Total Assets$615,842$499,771▼ $116,071
Other Assets Total$2,500$2,500→ $0
Liabilities
Accounts Payable and Accrued Expenses$10,692$80,027▲ $69,335
Deferred Revenue$5,603$5,132▼ $471
Total Liabilities$16,295$85,159▲ $68,864
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$442,972$397,236▼ $45,736
Net Assets With Donor Restrictions$156,575$17,376▼ $139,199
Total Net Assets Fund Balance$599,547$414,612▼ $184,935
Total Liabilities and Net Assets / Fund Balance$615,842$499,771▼ $116,071
Compensation and Service Providers
Top Officer PayScore unavailable

Board Members and Trustees

NameTitle
Keith HarperPresident
Paul ReynoldsVice President
SHARON O'SHAUGHNESSYBoard Member
Stephanie FischerBoard Member
Rajeev SachdevaSecretary
John EnsmingerTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
Amy KantManagement Consulting34 CYPRESS ST 2, Watertown, MA 02472$182,550
Revenue and Support

Revenue Composition

Contributions and Grants
$336,318
Program Service Revenue
$55,919
Investment Income
$4,065
Other Revenue
$-899
All Other Contributions
$303,067
Change in Net Assets
$-167,091

Audited Revenue Reconciliation

Revenue per Audited Statements
$395,403
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$-17,844
Total Revenue per Audited Statements
$377,559
Total Revenue per Form 990
$395,403
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$426,417
Salaries, Compensation, and Employee Benefits$136,077
Total Fundraising Expense$15,846
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Fees for Services Other$136,800$76,784$907$214,491
Conferences and Meetings$124,022--$124,022
Other Salaries and Wages$96,975$10,342$10,155$117,472
Office Expenses$5,357$19,854$1,023$26,234
Information Technology$10,882$7,136$2,152$20,170
Travel$19,162$425-$19,587
Payroll Taxes$8,973$957$940$10,870
Fees for Services Accounting-$10,638-$10,638
Other Employee Benefits$6,385$681$669$7,735
Advertising$2,871$1,113-$3,984
Insurance-$3,929-$3,929
Other Expenses$3,362--$3,362
Total Functional Expenses$414,789$131,859$15,846$562,494

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$562,494
Total Expenses per Audited Statements$562,494
Total Expenses per Form 990$562,494
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$899
Fundraising Gross Income$0
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Nyc Marathon 2022$30,093-$899-
Total Events$30,093-$899$-899
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
Yes
Management duties delegated
Yes

Governance Explanations

Form 990, Part VI, Section A, Line 3

“Amy kant is fulfilling the role of transition director/ceo.”

Form 990, Part VI, Section A, Line 6

“Narcolepsy network is a membership organization.”

Form 990, Part VI, Section A, Line 7A

“Members vote for the board of directors annually.”

Form 990, Part VI, Section A, Line 7B

“Members vote for the board of directors annually.”

Form 990, Part VI, Section B, Line 11B

“The board of directors are given a copy of the irs form 990 to review before it is filed with the irs.”

Form 990, Part VI, Section B, Line 12C

“All board members are provided conflict of interest forms and asked to sign a statement of compliance annually. The president then follows up with each board member by email or phone until they are all returned.”

Form 990, Part VI, Section B, Line 15A

“There are no other officers or key employees identified. The president and treasurer meet and review performance evaluations in conjunction with reasonable compensation data, such as the nonprofit times salary & benefits report, to determine appropriate salary levels, annual increase and employee benefits.”

Form 990, Part VI, Section C, Line 19

“UPON REQUEST.”

Filing and Contact Details

Filer

Filer Name
Narcolepsy Network
EIN
22-2762623
Phone
8882926522
Address
3242 NE 3RD AVE 1101, CAMAS, WA 98607

Signing Officer

Name
Keith Harper
Title
President
Phone
8882926522
Signed
2023-11-15
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Keith Harper
Formed
1986
Legal Domicile
Nj
Voting Board Members
10
Independent Board Members
10
Employees
2
Volunteers
20

Preparer

Firm
Jacobson Jarvis & Co Pllc
Address
200 1ST AVE W SUITE 200, SEATTLE, WA 98119
Preparer
Jacob J Dehne CPA
Phone
2066288990
Supplemental Narrative

Additional Explanations

Form 990, Part IX, Line 11G

“Other: program service expenses 136,800. Management and general expenses 76,784. Fundraising expenses 907. Total expenses 214,491.”

Financial Statement Notes

PART III, LINE 4:

“Use image on merchandise for further awareness.”

Raw XML AppendixShowing 400 of 477 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd00
IRS990/AccountsPayableAccrExpnssGrp/BOYAmt010692
IRS990/AccountsPayableAccrExpnssGrp/EOYAmt080027
IRS990/ActivitiesConductedPrtshpInd00
IRS990/ActivityOrMissionDesc0NARCOLEPSY NETWORK IS DEDICATED TO IMPROVING THE LIVES OF MEN, WOMEN, AND CHILDREN WITH NARCOLEPSY. THE ORGANIZATION'S GOALS INCLUDE INCREASING PUBLIC AWARENESS TO FOSTER EARLY DIAGNOSES, ADVOCATING FOR ALL PEOPLE WITH NARCOLEPSY (PWNS), PROMOTING AND SUPPORTING NARCOLEPSY AND RELATED RESEARCH, AND PROVIDING EDUCATION AND RESOURCES BOTH TO PEOPLE LIVING WITH NARCOLEPSY AND THE PUBLIC AT LARGE.
IRS990/AdvertisingGrp/ManagementAndGeneralAmt01113
IRS990/AdvertisingGrp/ProgramServicesAmt02871
IRS990/AdvertisingGrp/TotalAmt03984
IRS990/AllOtherContributionsAmt0303067
IRS990/AnnualDisclosureCoveredPrsnInd01
IRS990/AuditCommitteeInd01
IRS990/BackupWthldComplianceInd01
IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt0EBCFO LLC
IRS990/BooksInCareOfDetail/PhoneNum08163928425
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt05550 TECH CENTER DR 203
IRS990/BooksInCareOfDetail/USAddress/CityNm0COLORADO SPRINGS
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0CO
IRS990/BooksInCareOfDetail/USAddress/ZIPCd080919
IRS990/BusinessRlnWith35CtrlEntInd00
IRS990/BusinessRlnWithFamMemInd00
IRS990/BusinessRlnWithOrgMemInd00
IRS990/CashNonInterestBearingGrp/BOYAmt090760
IRS990/CashNonInterestBearingGrp/EOYAmt031111
IRS990/ChangeToOrgDocumentsInd00
IRS990/CntrctRcvdGreaterThan100KCnt01
IRS990/CollectionsOfArtInd01
IRS990/CompensationFromOtherSrcsInd00
IRS990/CompensationProcessCEOInd01
IRS990/CompensationProcessOtherInd00
IRS990/ConferencesMeetingsGrp/ProgramServicesAmt0124022
IRS990/ConferencesMeetingsGrp/TotalAmt0124022
IRS990/ConflictOfInterestPolicyInd01
IRS990/ConservationEasementsInd00
IRS990/ConsolidatedAuditFinclStmtInd00
IRS990/ContractorCompensationGrp/CompensationAmt0182550
IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt034 CYPRESS ST 2
IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm0WATERTOWN
IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd0MA
IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd002472
IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt0AMY KANT
IRS990/ContractorCompensationGrp/ServicesDesc0MANAGEMENT CONSULTING
IRS990/ContriRptFundraisingEventAmt030093
IRS990/CreditCounselingInd00
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt0336318
IRS990/CYGrantsAndSimilarPaidAmt00
IRS990/CYInvestmentIncomeAmt04065
IRS990/CYOtherExpensesAmt0426417
IRS990/CYOtherRevenueAmt0-899
IRS990/CYProgramServiceRevenueAmt055919
IRS990/CYRevenuesLessExpensesAmt0-167091
IRS990/CYSalariesCompEmpBnftPaidAmt0136077
IRS990/CYTotalExpensesAmt0562494
IRS990/CYTotalFundraisingExpenseAmt015846
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt0395403
IRS990/DecisionsSubjectToApprovaInd01
IRS990/DeductibleArtContributionInd00
IRS990/DeductibleNonCashContriInd00
IRS990/DeferredRevenueGrp/BOYAmt05603
IRS990/DeferredRevenueGrp/EOYAmt05132
IRS990/DelegationOfMgmtDutiesInd01
IRS990/Desc0ANNUAL CONFERENCE.
IRS990/DescribedInSection501c3Ind01
IRS990/DisregardedEntityInd00
IRS990/DocumentRetentionPolicyInd01
IRS990/DonorAdvisedFundInd00
IRS990/DonorRestrictionNetAssetsGrp/BOYAmt0156575
IRS990/DonorRestrictionNetAssetsGrp/EOYAmt017376
IRS990/DonorRstrOrQuasiEndowmentsInd00
IRS990/ElectionOfBoardMembersInd01
IRS990/EmployeeCnt02
IRS990/EmploymentTaxReturnsFiledInd01
IRS990/EngagedInExcessBenefitTransInd00
IRS990/ExpenseAmt0246444
IRS990/FamilyOrBusinessRlnInd00
IRS990/FederalGrantAuditRequiredInd00
IRS990/FederatedCampaignsAmt03158
IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt010638
IRS990/FeesForServicesAccountingGrp/TotalAmt010638
IRS990/FeesForServicesOtherGrp/FundraisingAmt0907
IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt076784
IRS990/FeesForServicesOtherGrp/ProgramServicesAmt0136800
IRS990/FeesForServicesOtherGrp/TotalAmt0214491
IRS990/ForeignActivitiesInd00
IRS990/ForeignFinancialAccountInd00
IRS990/ForeignOfficeInd00
IRS990/Form8282PropertyDisposedOfInd00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt020.00
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IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt33.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt45.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt53.00
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/PersonNm0KEITH HARPER
IRS990/Form990PartVIISectionAGrp/PersonNm1PAUL REYNOLDS
IRS990/Form990PartVIISectionAGrp/PersonNm2RAJEEV SACHDEVA
IRS990/Form990PartVIISectionAGrp/PersonNm3JOHN ENSMINGER
IRS990/Form990PartVIISectionAGrp/PersonNm4SHARON O'SHAUGHNESSY
IRS990/Form990PartVIISectionAGrp/PersonNm5STEPHANIE FISCHER
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/TitleTxt0PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt1VICE PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt2SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt3TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt4BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt5BOARD MEMBER
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IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt030093
IRS990/FundraisingDirectExpensesAmt0899
IRS990/FundraisingGrossIncomeAmt00
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt010
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd00
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt0396302
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd00
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt010
IRS990/IndivRcvdGreaterThan100KCnt00
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartIXInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt02152
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt07136
IRS990/InformationTechnologyGrp/ProgramServicesAmt010882
IRS990/InformationTechnologyGrp/TotalAmt020170
IRS990/InsuranceGrp/ManagementAndGeneralAmt03929
IRS990/InsuranceGrp/TotalAmt03929
IRS990/InvestmentIncomeGrp/ExclusionAmt04065
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt04065
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt0109700
IRS990/InvestmentsPubTradedSecGrp/EOYAmt092896
IRS990/IRPDocumentCnt05
IRS990/IRPDocumentW2GCnt00
IRS990/LegalDomicileStateCd0NJ
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd01
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0THE NETWORK IS ORGANIZED TO EDUCATE THE PUBLIC ABOUT NARCOLEPSY, SUPPORT INDIVIDUALS WITH NARCOLEPSY, PROMOTE EFFICIENT DIAGNOSIS, ENCOURAGE AND PROMOTE SCIENTIFIC RESEARCH FOR CAUSE, TREATMENTS, PREVENTION AND CURE OF NARCOLEPSY, PROVIDE THE FORMATION OF CHAPTERS, PROVIDE FUNDING THROUGH SOLICITATION AND FUND-RAISING ACTIVITIES FOR THESE PURPOSES.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt0599547
IRS990/NetAssetsOrFundBalancesEOYAmt0414612
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0-899
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0-899
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt0-17844
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt0442972
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt0397236
IRS990/NoListedPersonsCompensatedInd0X
IRS990/NondeductibleContributionsInd00
IRS990/OfficeExpensesGrp/FundraisingAmt01023
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt019854
IRS990/OfficeExpensesGrp/ProgramServicesAmt05357
IRS990/OfficeExpensesGrp/TotalAmt026234
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt02500
IRS990/OtherAssetsTotalGrp/EOYAmt02500
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt0669
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt0681
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt06385
IRS990/OtherEmployeeBenefitsGrp/TotalAmt07735
IRS990/OtherExpensesGrp/Desc0SUPPLIES
IRS990/OtherExpensesGrp/ProgramServicesAmt03362
IRS990/OtherExpensesGrp/TotalAmt03362
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt010155
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt010342
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt096975
IRS990/OtherSalariesAndWagesGrp/TotalAmt0117472
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt0940
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt0957
IRS990/PayrollTaxesGrp/ProgramServicesAmt08973
IRS990/PayrollTaxesGrp/TotalAmt010870
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt04035
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt018528
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt04921
IRS990/PrincipalOfficerNm0KEITH HARPER
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0900099
IRS990/ProgramServiceRevenueGrp/BusinessCd1900099
IRS990/ProgramServiceRevenueGrp/Desc0CONFERENCE
IRS990/ProgramServiceRevenueGrp/Desc1MEMBERSHIP DUES
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt043135
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt112784
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt043135
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt112784
IRS990/ProgSrvcAccomActy2Grp/Desc0SUPPORT AND ADVOCACY - PROVIDE WEEKLY VIRTUAL SUPPORT GROUPS AND FINANICAL ASSISTANCE TO IN-PERSON SUPPORT GROUPS.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt060062
IRS990/ProgSrvcAccomActy2Grp/RevenueAmt012784
IRS990/ProgSrvcAccomActy3Grp/Desc0AWARENESS AND EDUCATION - VIRTUAL CLINICAL UPDATE WEBINAR SERIES.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt0108283
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt0355184
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt00
IRS990/PYInvestmentIncomeAmt01247
IRS990/PYOtherExpensesAmt0356355
IRS990/PYOtherRevenueAmt0-8265
IRS990/PYProgramServiceRevenueAmt021861
IRS990/PYRevenuesLessExpensesAmt0-92135
IRS990/PYSalariesCompEmpBnftPaidAmt0105807
IRS990/PYTotalExpensesAmt0462162
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt0370027
IRS990/QuidProQuoContributionsInd00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt0-167091
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd00
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990/RevenueAmt043135
IRS990/SavingsAndTempCashInvstGrp/BOYAmt0390319
IRS990/SavingsAndTempCashInvstGrp/EOYAmt0368343
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt0336318
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt0355184
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0415674
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0474621
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0367418
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt01949215
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt04065
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt01247
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt01973
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt015651
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt01330
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt024266
IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt0345007
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.39040
IRS990ScheduleA/PublicSupportPY170Pct00.37650
IRS990ScheduleA/PublicSupportTotal170Amt0770380
IRS990ScheduleA/SubstantialContributorsTotAmt01178835
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt0336318
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt0355184
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0415674
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0474621
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0367418
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt01949215
IRS990ScheduleA/TotalSupportAmt01973481
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/ArtPublicExhibitionAmountsGrp/AssetsIncludedAmt02500
IRS990ScheduleD/CollectionUsedOtherPurposesGrp/CollectionUsedOtherPurposesInd0X
IRS990ScheduleD/CollectionUsedOtherPurposesGrp/OtherPurposesDesc0IMAGE
IRS990ScheduleD/CollectionUsedPreservationInd0X
IRS990ScheduleD/CollectionUsedPubExhibitionInd0X
IRS990ScheduleD/ExpensesNotReportedAmt00
IRS990ScheduleD/ExpensesNotRptFinclStmtAmt00
IRS990ScheduleD/ExpensesSubtotalAmt0562494
IRS990ScheduleD/NetUnrealizedGainsInvstAmt0-17844
IRS990ScheduleD/RevenueNotReportedAmt0-17844
IRS990ScheduleD/RevenueNotReportedFinclStmtAmt00
IRS990ScheduleD/RevenueSubtotalAmt0395403
IRS990ScheduleD/SolicitedAssetsSaleInd00
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0USE IMAGE ON MERCHANDISE FOR FURTHER AWARENESS.
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0PART III, LINE 4:
IRS990ScheduleD/TotalBookValueLandBuildingsAmt00
IRS990ScheduleD/TotalExpensesPerForm990Amt0562494
IRS990ScheduleD/TotalRevenuePerForm990Amt0395403
IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt0377559
IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt0562494
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt030093
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt030093
IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt0899
IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm0NYC MARATHON 2022
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt030093
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt030093
IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt0-899
IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt0899
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt0899
IRS990/ScheduleJRequiredInd00
IRS990/ScheduleORequiredInd01
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0AMY KANT IS FULFILLING THE ROLE OF TRANSITION DIRECTOR/CEO.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1NARCOLEPSY NETWORK IS A MEMBERSHIP ORGANIZATION.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2MEMBERS VOTE FOR THE BOARD OF DIRECTORS ANNUALLY.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3MEMBERS VOTE FOR THE BOARD OF DIRECTORS ANNUALLY.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4THE BOARD OF DIRECTORS ARE GIVEN A COPY OF THE IRS FORM 990 TO REVIEW BEFORE IT IS FILED WITH THE IRS.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5ALL BOARD MEMBERS ARE PROVIDED CONFLICT OF INTEREST FORMS AND ASKED TO SIGN A STATEMENT OF COMPLIANCE ANNUALLY. THE PRESIDENT THEN FOLLOWS UP WITH EACH BOARD MEMBER BY EMAIL OR PHONE UNTIL THEY ARE ALL RETURNED.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt6THERE ARE NO OTHER OFFICERS OR KEY EMPLOYEES IDENTIFIED. THE PRESIDENT AND TREASURER MEET AND REVIEW PERFORMANCE EVALUATIONS IN CONJUNCTION WITH REASONABLE COMPENSATION DATA, SUCH AS THE NONPROFIT TIMES SALARY & BENEFITS REPORT, TO DETERMINE APPROPRIATE SALARY LEVELS, ANNUAL INCREASE AND EMPLOYEE BENEFITS.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt7UPON REQUEST.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt8OTHER: PROGRAM SERVICE EXPENSES 136,800. MANAGEMENT AND GENERAL EXPENSES 76,784. FUNDRAISING EXPENSES 907. TOTAL EXPENSES 214,491.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990, PART VI, SECTION A, LINE 3
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PART VI, SECTION A, LINE 6
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PART VI, SECTION A, LINE 7A
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3FORM 990, PART VI, SECTION A, LINE 7B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4FORM 990, PART VI, SECTION B, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc5FORM 990, PART VI, SECTION B, LINE 12C
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc6FORM 990, PART VI, SECTION B, LINE 15A
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc7FORM 990, PART VI, SECTION C, LINE 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc8FORM 990, PART IX, LINE 11G
IRS990/SchoolOperatingInd00
IRS990/SignificantChangeInd00
IRS990/SignificantNewProgramSrvcInd00
IRS990/StatesWhereCopyOfReturnIsFldCd0AL
IRS990/StatesWhereCopyOfReturnIsFldCd1AK
IRS990/StatesWhereCopyOfReturnIsFldCd2AR
IRS990/StatesWhereCopyOfReturnIsFldCd3CA
IRS990/StatesWhereCopyOfReturnIsFldCd4CO
IRS990/StatesWhereCopyOfReturnIsFldCd5CT
IRS990/StatesWhereCopyOfReturnIsFldCd6DC
IRS990/StatesWhereCopyOfReturnIsFldCd7FL
IRS990/StatesWhereCopyOfReturnIsFldCd8GA
IRS990/StatesWhereCopyOfReturnIsFldCd9HI
IRS990/StatesWhereCopyOfReturnIsFldCd10IL
IRS990/StatesWhereCopyOfReturnIsFldCd11KS
IRS990/StatesWhereCopyOfReturnIsFldCd12KY
IRS990/StatesWhereCopyOfReturnIsFldCd13MA
IRS990/StatesWhereCopyOfReturnIsFldCd14MD
IRS990/StatesWhereCopyOfReturnIsFldCd15ME
IRS990/StatesWhereCopyOfReturnIsFldCd16MI
IRS990/StatesWhereCopyOfReturnIsFldCd17MN
IRS990/StatesWhereCopyOfReturnIsFldCd18MO
IRS990/StatesWhereCopyOfReturnIsFldCd19MS
IRS990/StatesWhereCopyOfReturnIsFldCd20NC
IRS990/StatesWhereCopyOfReturnIsFldCd21ND
IRS990/StatesWhereCopyOfReturnIsFldCd22NH
IRS990/StatesWhereCopyOfReturnIsFldCd23NJ
IRS990/StatesWhereCopyOfReturnIsFldCd24NM
IRS990/StatesWhereCopyOfReturnIsFldCd25NY
IRS990/StatesWhereCopyOfReturnIsFldCd26OH
IRS990/StatesWhereCopyOfReturnIsFldCd27OK
IRS990/StatesWhereCopyOfReturnIsFldCd28OR
IRS990/StatesWhereCopyOfReturnIsFldCd29PA
IRS990/StatesWhereCopyOfReturnIsFldCd30RI
IRS990/StatesWhereCopyOfReturnIsFldCd31SC
IRS990/StatesWhereCopyOfReturnIsFldCd32TN
IRS990/StatesWhereCopyOfReturnIsFldCd33UT
IRS990/StatesWhereCopyOfReturnIsFldCd34VA
IRS990/StatesWhereCopyOfReturnIsFldCd35WI
IRS990/StatesWhereCopyOfReturnIsFldCd36WV
IRS990/SubjectToExcsTaxNetInvstIncInd00
IRS990/SubjectToProxyTaxInd00
IRS990/SubjToTaxRmnrtnExPrchtPymtInd00
IRS990/TaxablePartyNotificationInd00
IRS990/TaxExemptBondsInd00
IRS990/TerminateOperationsInd00
IRS990/TotalAssetsBOYAmt0615842
IRS990/TotalAssetsEOYAmt0499771

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