Liabilities / Assets
65th percentile
Higher debt load relative to assets than 65% of similar nonprofits.
990 • Fiscal year 2018 • EIN 04-3030760
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
65th percentile
Higher debt load relative to assets than 65% of similar nonprofits.
Liabilities / Revenue
67th percentile
Higher debt load relative to revenue than 67% of similar nonprofits.
Net Margin
75th percentile
Higher net margin than 75% of similar nonprofits.
Top Officer Pay
50th percentile
Higher top officer pay than 50% of similar nonprofits.
Top officer pay equals 0.0% of source-year revenue.
Asset Growth
87th percentile
Faster asset growth than 87% of similar nonprofits.
Revenue Growth
90th percentile
Faster revenue growth than 90% of similar nonprofits.
Assets
Up$417,083
Up $123,795 (+42%) from 2017
Net Assets
Up$370,004
Up $90,007 (+32%) from 2017
Liabilities
Up$47,079
Up $33,788 (+254%) from 2017
Revenue
Up$453,800
Up $190,993 (+73%) from 2017
Expenses
Up$371,076
Up $65,544 (+21%) from 2017
Net Income
Up$82,724
Up $125,449 (+294%) from 2017
To provide information about the disorder neurofibromatosis to those affected and help families find medical, social and genetic counseling. To raise and seek funds for research for a cure.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $92,401 | $221,535 | ▲ $129,134 |
| Investments in Publicly Traded Securities | $199,242 | $188,922 | ▼ $10,320 |
| Accounts Receivable | - | $5,012 | - |
| Prepaid Expenses and Deferred Charges | $1,645 | $1,614 | ▼ $31 |
| Total Assets | $293,288 | $417,083 | ▲ $123,795 |
| Liabilities | |||
| Grants Payable | - | $39,468 | - |
| Accounts Payable and Accrued Expenses | $13,291 | $7,611 | ▼ $5,680 |
| Total Liabilities | $13,291 | $47,079 | ▲ $33,788 |
| Net Assets / Fund Balance | |||
| Temporarily Rstr Net Assets | $186,931 | $284,986 | ▲ $98,055 |
| Unrestricted Net Assets | $93,066 | $85,018 | ▼ $8,048 |
| Total Net Assets Fund Balance | $279,997 | $370,004 | ▲ $90,007 |
| Total Liabilities and Net Assets / Fund Balance | $293,288 | $417,083 | ▲ $123,795 |
| Name | Title |
|---|---|
| Ryan Geier | President |
| Cheri Stewart | Board Member |
| Debi Bell | Board Member |
| Gregg Erickson | Board Member |
| Michelle Slimko | Board Member |
| Mike Sheedy | Board Member |
| Rosemary Anderson | Board Member |
| Sharon Loftspring | Board Member |
| Yvonne Glass | Member |
| Nicole Hicks | Secretary |
| Michael Montgomery | Treasurer |
| John Manth | VP |
| Line Item | Amount |
|---|---|
| Other Expenses | $229,042 |
| Salaries, Compensation, and Employee Benefits | $142,034 |
| Total Fundraising Expense | $4,873 |
| Grants and Similar Amounts Paid | $0 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Other Salaries and Wages | $112,389 | $14,375 | $3,921 | $130,685 |
| Fees for Services Lobbying | $25,000 | - | - | $25,000 |
| Conferences and Meetings | $20,055 | - | - | $20,055 |
| Fees for Services Accounting | $10,954 | $1,716 | $528 | $13,198 |
| Payroll Taxes | $9,761 | $1,248 | $340 | $11,349 |
| Occupancy | $7,282 | - | - | $7,282 |
| All Other Expenses | $3,788 | $3,307 | - | $7,095 |
| Office Expenses | $5,932 | $181 | - | $6,113 |
| Other Expenses | $10,642 | $4,943 | - | $4,943 |
| Insurance | $2,428 | $279 | $84 | $2,791 |
| Total Functional Expenses | $340,154 | $26,049 | $4,873 | $371,076 |
| Line Item | Amount |
|---|---|
| Expenses per Audited Statements | $482,734 |
| Total Expenses per Audited Statements | $482,734 |
| Total Expenses per Form 990 | $371,076 |
| Expenses Not Reported on Financial Statements | $-111,658 |
| Other Expense Adjustments | $-111,658 |
| Line Item | Amount |
|---|---|
| Fundraising Gross Income | $152,035 |
| Fundraising Direct Expenses | $111,658 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Nf Hope Concert | $135,039 | $62,417 | $89,625 | $-27,208 |
| Links for Laure | $60,801 | $60,801 | $21,333 | $39,468 |
| Total Events | $224,657 | $152,035 | $111,658 | $40,377 |
“The 990 will be reviewed by several executive committee members and the treasurer before it is filed with the internal revenue service.”
“The organization practices for monitoring proposed or ongoing transactions for conflicts of interest includes the following: description of persons covered under the policy: board members, officer's, directors, employees, trustees, volunteers. The level at which determinations of whether a conflict exists are made at the board level and are reviewed at the board level. A restriction is imposed on persons participating in a conflict by not allowing that person to participate in the governing body's deliberations and decision in the transaction.”
“The executive director's salary is annually reviewed by the governing board members.”
“Employee's salaries are reviewed by the executive director.”
“The organization makes it's governing documents, articles of incorporation, constitution, by laws, available to the public upon request.”
“Special event expenses netted against income 111,658 special event expenses netted against income -111,658”
“Special event expenses netted against income -111,658”
“Special event expenses netted against income -111,658”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | false |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 13291 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 7611 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 5012 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | TO PROVIDE INFORMATION ABOUT THE DISORDER NEUROFIBROMATOSIS TO THOSE AFFECTED AND HELP FAMILIES FIND MEDICAL, SOCIAL AND GENETIC COUNSELING. TO RAISE AND SEEK FUNDS FOR RESEARCH FOR A CURE. |
| IRS990/AllOtherContributionsAmt | 0 | 319291 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 3307 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 3788 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 7095 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | KIM BISCHOFF |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 6305101115 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 213 SOUTH WHEATON AVE |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | WHEATON |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | IL |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 60187 |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOfficerEntInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 92401 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 221535 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | true |
| IRS990/CompensationProcessOtherInd | 0 | true |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 20055 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 20055 |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/ContriRptFundraisingEventAmt | 0 | 72622 |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 400906 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 0 |
| IRS990/CYInvestmentIncomeAmt | 0 | 12517 |
| IRS990/CYOtherExpensesAmt | 0 | 229042 |
| IRS990/CYOtherRevenueAmt | 0 | 40377 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 82724 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 142034 |
| IRS990/CYTotalExpensesAmt | 0 | 371076 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 4873 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 453800 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/Desc | 0 | TO PROVIDE THOSE WITH NEUROFIBROMATOSIS WITH INFORMATION ABOUT THE DISORDER AND HELP FAMILIES FIND MEDICAL, SOCIAL, AND GENETIC COUNSELING. TO RAISE AND SEEK FUNDS FOR RESEARCH FOR A CURE. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | true |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 7 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | true |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 340154 |
| IRS990/FamilyOrBusinessRlnInd | 0 | false |
| IRS990/FederatedCampaignsAmt | 0 | 8993 |
| IRS990/FeesForServicesAccountingGrp/FundraisingAmt | 0 | 528 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 1716 |
| IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt | 0 | 10954 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 13198 |
| IRS990/FeesForServicesLobbyingGrp/ProgramServicesAmt | 0 | 25000 |
| IRS990/FeesForServicesLobbyingGrp/TotalAmt | 0 | 25000 |
| IRS990/ForeignActivitiesInd | 0 | false |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 15.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 15.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 15.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 11 | 15.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 10 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 11 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | RYAN GEIER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | MICHELLE SLIMKO |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | NICOLE HICKS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | GREGG ERICKSON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | YVONNE GLASS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | MICHAEL MONTGOMERY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | DEBI BELL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | CHERI STEWART |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | MIKE SHEEDY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | ROSEMARY ANDERSON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | SHARON LOFTSPRING |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | JOHN MANTH |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | PRESIDENT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | TREASURER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | VP |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | false |
| IRS990/FormationYr | 0 | 1990 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedInd | 0 | false |
| IRS990/FundraisingActivitiesInd | 0 | true |
| IRS990/FundraisingAmt | 0 | 72622 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 111658 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 152035 |
| IRS990/GainOrLossGrp/SecuritiesAmt | 0 | -9408 |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 12 |
| IRS990/GrantsPayableGrp/EOYAmt | 0 | 39468 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | false |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt | 0 | 31407 |
| IRS990/GrossReceiptsAmt | 0 | 606273 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | false |
| IRS990/IndependentAuditFinclStmtInd | 0 | true |
| IRS990/IndependentVotingMemberCnt | 0 | 12 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InsuranceGrp/FundraisingAmt | 0 | 84 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 279 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 2428 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 2791 |
| IRS990/InvestmentIncomeGrp/RelatedOrExemptFuncIncomeAmt | 0 | 21925 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 21925 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/InvestmentsPubTradedSecGrp/BOYAmt | 0 | 199242 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 188922 |
| IRS990/IRPDocumentCnt | 0 | 5 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LegalDomicileStateCd | 0 | MA |
| IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt | 0 | 40815 |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | true |
| IRS990/LocalChaptersInd | 0 | false |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | true |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | TO PROVIDE INFORMATION ABOUT THE DISORDER NEUROFIBROMATOSIS TO THOSE AFFECTED AND HELP FAMILIES FIND MEDICAL, SOCIAL AND GENETIC COUNSELING. TO RAISE AND SEEK FUNDS FOR RESEARCH FOR A CURE. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | false |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 279997 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 370004 |
| IRS990/NetGainOrLossInvestmentsGrp/RelatedOrExemptFuncIncomeAmt | 0 | -9408 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | -9408 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | 40377 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 40377 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | 7283 |
| IRS990/NoListedPersonsCompensatedInd | 0 | X |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 7282 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 7282 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 181 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 5932 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 6113 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsSFAS117Ind | 0 | X |
| IRS990/OtherExpensesGrp/Desc | 0 | GRANTS <5K |
| IRS990/OtherExpensesGrp/Desc | 1 | COMMUNITY SERVICE EXPENSE |
| IRS990/OtherExpensesGrp/Desc | 2 | WEBSITE |
| IRS990/OtherExpensesGrp/Desc | 3 | SUPPLIES |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 4943 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 90490 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 41433 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 10642 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 90490 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 41433 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 10642 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 4943 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 3921 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 14375 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 112389 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 130685 |
| IRS990/OtherWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 340 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 1248 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 9761 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 11349 |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 1645 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 1614 |
| IRS990/PrincipalOfficerNm | 0 | MICHAEL MONTGOMERY |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 197562 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYInvestmentIncomeAmt | 0 | 19523 |
| IRS990/PYOtherExpensesAmt | 0 | 162313 |
| IRS990/PYOtherRevenueAmt | 0 | 45722 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | -42725 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 143219 |
| IRS990/PYTotalExpensesAmt | 0 | 305532 |
| IRS990/PYTotalRevenueAmt | 0 | 262807 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 82724 |
| IRS990/RegularMonitoringEnfrcInd | 0 | true |
| IRS990/RelatedEntityInd | 0 | false |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990/ReportInvestmentsOtherSecInd | 0 | false |
| IRS990/ReportLandBuildingEquipmentInd | 0 | false |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | false |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 400906 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 197562 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 365400 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 252177 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 253536 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 1469581 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 16877 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 16877 |
| IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt | 0 | 21925 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.84990 |
| IRS990ScheduleA/PublicSupportPY170Pct | 0 | 0.83440 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 1469581 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind | 0 | X |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 400906 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 197562 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 365400 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 252177 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 253536 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 1469581 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 1729108 |
| IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearAmt | 0 | 39377 |
| IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus1YearAmt | 0 | 44722 |
| IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 77094 |
| IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 46939 |
| IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 34518 |
| IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/TotalAmt | 0 | 242650 |
| IRS990/ScheduleBRequiredInd | 0 | true |
| IRS990ScheduleC/DirectContactLegislatorsInd | 0 | false |
| IRS990ScheduleC/GrantsOtherOrganizationsInd | 0 | false |
| IRS990ScheduleC/MailingsMembersInd | 0 | false |
| IRS990ScheduleC/MediaAdvertisementsInd | 0 | false |
| IRS990ScheduleC/NotDescribedSection501c3Ind | 0 | false |
| IRS990ScheduleC/OtherActivitiesAmt | 0 | 25000 |
| IRS990ScheduleC/OtherActivitiesInd | 0 | true |
| IRS990ScheduleC/PaidStaffOrManagementInd | 0 | false |
| IRS990ScheduleC/PublicationsOrBroadcastInd | 0 | false |
| IRS990ScheduleC/RalliesDemonstrationsInd | 0 | false |
| IRS990ScheduleC/SupplementalInformationDetail/ExplanationTxt | 0 | LOBBYING FEES WERE PAID TO VAN SCOYOC ASSOCIATES, 800 MAINE AVENUE, SUITE 800,WASHINGTON DC 20024 TO PERSUADE MEMBERS OF THE GOVERNMENT TO ENACT LEGISLATION THAT WOULD FUND RESEARCH FOR INDIVIDUALS WITH NEUROFIBROMATOSIS. |
| IRS990ScheduleC/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | SCHEDULE C, PART II-B, LINE 1 |
| IRS990ScheduleC/TotalLobbyingExpendituresAmt | 0 | 25000 |
| IRS990ScheduleC/VolunteersInd | 0 | false |
| IRS990ScheduleD/ExpensesNotRptFinclStmtAmt | 0 | -111658 |
| IRS990ScheduleD/ExpensesSubtotalAmt | 0 | 482734 |
| IRS990ScheduleD/NetUnrealizedGainsInvstAmt | 0 | 7283 |
| IRS990ScheduleD/OtherExpensesNotIncludedAmt | 0 | -111658 |
| IRS990ScheduleD/OtherRevenuesNotIncludedAmt | 0 | -111658 |
| IRS990ScheduleD/RevenueNotReportedAmt | 0 | 7283 |
| IRS990ScheduleD/RevenueNotReportedFinclStmtAmt | 0 | -111658 |
| IRS990ScheduleD/RevenueSubtotalAmt | 0 | 565458 |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 0 | SPECIAL EVENT EXPENSES NETTED AGAINST INCOME -111,658 |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 1 | SPECIAL EVENT EXPENSES NETTED AGAINST INCOME -111,658 |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | SCHEDULE D, PAGE 4, PART XI, LINE 4B |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | SCHEDULE D, PAGE 4, PART XII, LINE 4B |
| IRS990ScheduleD/TotalExpensesPerForm990Amt | 0 | 371076 |
| IRS990ScheduleD/TotalRevenuePerForm990Amt | 0 | 453800 |
| IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt | 0 | 572741 |
| IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt | 0 | 482734 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt | 0 | 72622 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt | 0 | 72622 |
| IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt | 0 | 111658 |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm | 0 | NF HOPE CONCERT |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event2Nm | 0 | LINKS FOR LAURE |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt | 0 | 135039 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent2Amt | 0 | 60801 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsOtherEventsAmt | 0 | 28817 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt | 0 | 224657 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt | 0 | 62417 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent2Amt | 0 | 60801 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueOtherEventsAmt | 0 | 28817 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt | 0 | 152035 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt | 0 | 40377 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssOtherEventsAmt | 0 | 700 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt | 0 | 111658 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt | 0 | 89625 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent2Amt | 0 | 21333 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherEventsTotalCnt | 0 | 1 |
| IRS990/ScheduleJRequiredInd | 0 | false |
| IRS990/ScheduleORequiredInd | 0 | true |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | THE 990 WILL BE REVIEWED BY SEVERAL EXECUTIVE COMMITTEE MEMBERS AND THE TREASURER BEFORE IT IS FILED WITH THE INTERNAL REVENUE SERVICE. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | THE ORGANIZATION PRACTICES FOR MONITORING PROPOSED OR ONGOING TRANSACTIONS FOR CONFLICTS OF INTEREST INCLUDES THE FOLLOWING: DESCRIPTION OF PERSONS COVERED UNDER THE POLICY: BOARD MEMBERS, OFFICER'S, DIRECTORS, EMPLOYEES, TRUSTEES, VOLUNTEERS. THE LEVEL AT WHICH DETERMINATIONS OF WHETHER A CONFLICT EXISTS ARE MADE AT THE BOARD LEVEL AND ARE REVIEWED AT THE BOARD LEVEL. A RESTRICTION IS IMPOSED ON PERSONS PARTICIPATING IN A CONFLICT BY NOT ALLOWING THAT PERSON TO PARTICIPATE IN THE GOVERNING BODY'S DELIBERATIONS AND DECISION IN THE TRANSACTION. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | THE EXECUTIVE DIRECTOR'S SALARY IS ANNUALLY REVIEWED BY THE GOVERNING BOARD MEMBERS. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | EMPLOYEE'S SALARIES ARE REVIEWED BY THE EXECUTIVE DIRECTOR. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 4 | THE ORGANIZATION MAKES IT'S GOVERNING DOCUMENTS, ARTICLES OF INCORPORATION, CONSTITUTION, BY LAWS, AVAILABLE TO THE PUBLIC UPON REQUEST. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 5 | SPECIAL EVENT EXPENSES NETTED AGAINST INCOME 111,658 SPECIAL EVENT EXPENSES NETTED AGAINST INCOME -111,658 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | FORM 990, PAGE 6, PART VI, LINE 11B |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | FORM 990, PAGE 6, PART VI, LINE 12C |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | FORM 990, PAGE 6, PART VI, LINE 15A |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | FORM 990, PAGE 6, PART VI, LINE 15B |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 4 | FORM 990, PAGE 6, PART VI, LINE 19 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 5 | FORM 990, PART XI, LINE 9 |
| IRS990/SchoolOperatingInd | 0 | false |
| IRS990/SignificantChangeInd | 0 | false |
| IRS990/SignificantNewProgramSrvcInd | 0 | false |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 0 | IL |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 1 | MA |
| IRS990/SubjectToProxyTaxInd | 0 | false |
| IRS990/TaxablePartyNotificationInd | 0 | false |
| IRS990/TaxExemptBondsInd | 0 | false |
| IRS990/TemporarilyRstrNetAssetsGrp/BOYAmt | 0 | 186931 |
| IRS990/TemporarilyRstrNetAssetsGrp/EOYAmt | 0 | 284986 |
| IRS990/TempOrPermanentEndowmentsInd | 0 | false |
| IRS990/TerminateOperationsInd | 0 | false |
| IRS990/TotalAssetsBOYAmt | 0 | 293288 |
| IRS990/TotalAssetsEOYAmt | 0 | 417083 |
| IRS990/TotalAssetsGrp/BOYAmt | 0 | 293288 |
| IRS990/TotalAssetsGrp/EOYAmt | 0 | 417083 |
| IRS990/TotalCompGreaterThan150KInd | 0 | false |
| IRS990/TotalContributionsAmt | 0 | 400906 |
| IRS990/TotalEmployeeCnt | 0 | 7 |
| IRS990/TotalFunctionalExpensesGrp/FundraisingAmt | 0 | 4873 |
| IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt | 0 | 26049 |
| IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt | 0 | 340154 |
| IRS990/TotalFunctionalExpensesGrp/TotalAmt | 0 | 371076 |
| IRS990/TotalGrossUBIAmt | 0 | 0 |
| IRS990/TotalLiabilitiesBOYAmt | 0 | 13291 |
| IRS990/TotalLiabilitiesEOYAmt | 0 | 47079 |
| IRS990/TotalLiabilitiesGrp/BOYAmt | 0 | 13291 |
| IRS990/TotalLiabilitiesGrp/EOYAmt | 0 | 47079 |
| IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt | 0 | 279997 |
| IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt | 0 | 370004 |
| IRS990/TotalProgramServiceExpensesAmt | 0 | 340154 |
| IRS990/TotalRevenueGrp/ExclusionAmt | 0 | 40377 |
| IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 12517 |
| IRS990/TotalRevenueGrp/TotalRevenueColumnAmt | 0 | 453800 |
| IRS990/TotalVolunteersCnt | 0 | 300 |
| IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt | 0 | 293288 |
| IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt | 0 | 417083 |
| IRS990/TrnsfrExmptNonChrtblRltdOrgInd | 0 | false |
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Displayed year
2018 • Form 990Detailed filing. Detailed filing data is available for this year.