Civic Intelligence

Neurofibromatosis Network

990 • Fiscal year 2018 • EIN 04-3030760

Oct 01, 2017 to Sep 30, 2018 • Filed on Jun 26, 2019

213 South Wheaton AvenueWheaton, IL 60187

(630) 510-1115

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

65th percentile

0.11x

Higher debt load relative to assets than 65% of similar nonprofits.

2018 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2018

Liabilities / Revenue

67th percentile

0.10x

Higher debt load relative to revenue than 67% of similar nonprofits.

2018 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2018

Net Margin

75th percentile

18%

Higher net margin than 75% of similar nonprofits.

2018 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2018

Top Officer Pay

50th percentile

$0

Higher top officer pay than 50% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2018 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2018

Asset Growth

87th percentile

42%

Faster asset growth than 87% of similar nonprofits.

2018 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2017 to 2018

Revenue Growth

90th percentile

73%

Faster revenue growth than 90% of similar nonprofits.

2018 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2017 to 2018

Assets

Up

$417,083

Up $123,795 (+42%) from 2017

Net Assets

Up

$370,004

Up $90,007 (+32%) from 2017

Liabilities

Up

$47,079

Up $33,788 (+254%) from 2017

Revenue

Up

$453,800

Up $190,993 (+73%) from 2017

Expenses

Up

$371,076

Up $65,544 (+21%) from 2017

Net Income

Up

$82,724

Up $125,449 (+294%) from 2017

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.5M$1.0M$500K$0Assets 2011: $421,681Liabilities 2011: $2,447Net Assets 2011: $419,2342011Assets 2012: $435,958Liabilities 2012: $6,139Net Assets 2012: $429,8192012Assets 2013: $381,998Liabilities 2013: $4,929Net Assets 2013: $377,0692013Assets 2014: $413,464Liabilities 2014: $28,191Net Assets 2014: $385,2732014Assets 2015: $350,027Liabilities 2015: $3,290Net Assets 2015: $346,7372015Assets 2016: $387,744Liabilities 2016: $69,722Net Assets 2016: $318,0222016Assets 2017: $293,288Liabilities 2017: $13,291Net Assets 2017: $279,9972017Assets 2018: $417,083Liabilities 2018: $47,079Net Assets 2018: $370,0042018Assets 2019: $703,734Liabilities 2019: $3,094Net Assets 2019: $700,6402019Assets 2020: $771,011Liabilities 2020: $2,483Net Assets 2020: $768,5282020Assets 2021: $1,225,098Liabilities 2021: $32,605Net Assets 2021: $1,192,4932021Assets 2022: $1,209,936Liabilities 2022: $4,974Net Assets 2022: $1,204,9622022Assets 2023: $1,185,451Liabilities 2023: $16,744Net Assets 2023: $1,168,7072023Assets 2024: $1,228,709Liabilities 2024: $7,605Net Assets 2024: $1,221,1042024

Highlighted filing

2018

Assets$417,083
Liabilities$47,079
Net Assets$370,004

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$800K$600K$400K$200K$0-$200KRevenue 2011: $203,868Expenses 2011: $206,377Net Income 2011: -$2,5092011Revenue 2012: $212,084Expenses 2012: $216,669Net Income 2012: -$4,5852012Revenue 2013: $222,215Expenses 2013: $274,965Net Income 2013: -$52,7502013Revenue 2014: $290,602Expenses 2014: $295,252Net Income 2014: -$4,6502014Revenue 2015: $300,363Expenses 2015: $335,681Net Income 2015: -$35,3182015Revenue 2016: $360,728Expenses 2016: $380,949Net Income 2016: -$20,2212016Revenue 2017: $262,807Expenses 2017: $305,532Net Income 2017: -$42,7252017Revenue 2018: $453,800Expenses 2018: $371,076Net Income 2018: $82,7242018Revenue 2019: $673,420Expenses 2019: $329,499Net Income 2019: $343,9212019Revenue 2020: $346,583Expenses 2020: $307,827Net Income 2020: $38,7562020Revenue 2021: $683,316Expenses 2021: $315,772Net Income 2021: $367,5442021Revenue 2022: $548,640Expenses 2022: $377,639Net Income 2022: $171,0012022Revenue 2023: $410,383Expenses 2023: $488,110Net Income 2023: -$77,7272023Revenue 2024: $452,414Expenses 2024: $491,468Net Income 2024: -$39,0542024

Highlighted filing

2018

Revenue$453,800
Expenses$371,076
Net Income$82,724
Jump To
Filing Snapshot
Filing Period
Oct 1, 2017 to Sep 30, 2018
Signed
Jun 26, 2019
Return Version
2017v2.3
Gross Receipts
$606,273
Mission and Program Overview

Mission

To provide information about the disorder neurofibromatosis to those affected and help families find medical, social and genetic counseling. To raise and seek funds for research for a cure.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$92,401$221,535▲ $129,134
Investments in Publicly Traded Securities$199,242$188,922▼ $10,320
Accounts Receivable-$5,012-
Prepaid Expenses and Deferred Charges$1,645$1,614▼ $31
Total Assets$293,288$417,083▲ $123,795
Liabilities
Grants Payable-$39,468-
Accounts Payable and Accrued Expenses$13,291$7,611▼ $5,680
Total Liabilities$13,291$47,079▲ $33,788
Net Assets / Fund Balance
Temporarily Rstr Net Assets$186,931$284,986▲ $98,055
Unrestricted Net Assets$93,066$85,018▼ $8,048
Total Net Assets Fund Balance$279,997$370,004▲ $90,007
Total Liabilities and Net Assets / Fund Balance$293,288$417,083▲ $123,795
Compensation and Service Providers

Board Members and Trustees

NameTitle
Ryan GeierPresident
Cheri StewartBoard Member
Debi BellBoard Member
Gregg EricksonBoard Member
Michelle SlimkoBoard Member
Mike SheedyBoard Member
Rosemary AndersonBoard Member
Sharon LoftspringBoard Member
Yvonne GlassMember
Nicole HicksSecretary
Michael MontgomeryTreasurer
John ManthVP
Revenue and Support

Revenue Composition

Contributions and Grants
$400,906
Program Service Revenue
$0
Investment Income
$12,517
Other Revenue
$40,377
All Other Contributions
$319,291
Change in Net Assets
$82,724

Audited Revenue Reconciliation

Revenue per Audited Statements
$565,458
Revenue Not Reported on Financial Statements
$-111,658
Revenue Not Reported on Form 990
$7,283
Other Revenue Adjustments
$-111,658
Total Revenue per Audited Statements
$572,741
Total Revenue per Form 990
$453,800
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$229,042
Salaries, Compensation, and Employee Benefits$142,034
Total Fundraising Expense$4,873
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$112,389$14,375$3,921$130,685
Fees for Services Lobbying$25,000--$25,000
Conferences and Meetings$20,055--$20,055
Fees for Services Accounting$10,954$1,716$528$13,198
Payroll Taxes$9,761$1,248$340$11,349
Occupancy$7,282--$7,282
All Other Expenses$3,788$3,307-$7,095
Office Expenses$5,932$181-$6,113
Other Expenses$10,642$4,943-$4,943
Insurance$2,428$279$84$2,791
Total Functional Expenses$340,154$26,049$4,873$371,076

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$482,734
Total Expenses per Audited Statements$482,734
Total Expenses per Form 990$371,076
Expenses Not Reported on Financial Statements$-111,658
Other Expense Adjustments$-111,658
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$152,035
Fundraising Direct Expenses$111,658
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Nf Hope Concert$135,039$62,417$89,625$-27,208
Links for Laure$60,801$60,801$21,333$39,468
Total Events$224,657$152,035$111,658$40,377
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 11B

The 990 will be reviewed by several executive committee members and the treasurer before it is filed with the internal revenue service.

Form 990, Page 6, Part VI, Line 12C

The organization practices for monitoring proposed or ongoing transactions for conflicts of interest includes the following: description of persons covered under the policy: board members, officer's, directors, employees, trustees, volunteers. The level at which determinations of whether a conflict exists are made at the board level and are reviewed at the board level. A restriction is imposed on persons participating in a conflict by not allowing that person to participate in the governing body's deliberations and decision in the transaction.

Form 990, Page 6, Part VI, Line 15A

The executive director's salary is annually reviewed by the governing board members.

Form 990, Page 6, Part VI, Line 15B

Employee's salaries are reviewed by the executive director.

Form 990, Page 6, Part VI, Line 19

The organization makes it's governing documents, articles of incorporation, constitution, by laws, available to the public upon request.

Filing and Contact Details

Filer

Filer Name
Neurofibromatosis Network
EIN
04-3030760
Phone
6305101115
Address
213 SOUTH WHEATON AVENUE, WHEATON, IL 60187

Signing Officer

Name
Michael Montgomery
Title
Treasurer
Phone
6306271115
Signed
2019-06-26

Organization Details

Principal Officer
Michael Montgomery
Formed
1990
Legal Domicile
Ma
Voting Board Members
12
Independent Board Members
12
Employees
7
Volunteers
300

Preparer

Firm
KOLNICKI PETERSON & WIRTH CPA'S
Address
1400 OPUS PLACE SUITE 100, DOWNERS GROVE, IL 60515
Preparer
Kenneth W Peterson CPA
Phone
6303901140
Supplemental Narrative

Additional Explanations

Form 990, Part XI, Line 9

Special event expenses netted against income 111,658 special event expenses netted against income -111,658

Financial Statement Notes

Schedule D, Page 4, Part XI, Line 4B

Special event expenses netted against income -111,658

Schedule D, Page 4, Part XII, Line 4B

Special event expenses netted against income -111,658

Raw XML AppendixShowing 400 of 447 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd0false
IRS990/AccountsPayableAccrExpnssGrp/BOYAmt013291
IRS990/AccountsPayableAccrExpnssGrp/EOYAmt07611
IRS990/AccountsReceivableGrp/EOYAmt05012
IRS990/ActivitiesConductedPrtshpInd0false
IRS990/ActivityOrMissionDesc0TO PROVIDE INFORMATION ABOUT THE DISORDER NEUROFIBROMATOSIS TO THOSE AFFECTED AND HELP FAMILIES FIND MEDICAL, SOCIAL AND GENETIC COUNSELING. TO RAISE AND SEEK FUNDS FOR RESEARCH FOR A CURE.
IRS990/AllOtherContributionsAmt0319291
IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt03307
IRS990/AllOtherExpensesGrp/ProgramServicesAmt03788
IRS990/AllOtherExpensesGrp/TotalAmt07095
IRS990/AnnualDisclosureCoveredPrsnInd0true
IRS990/BooksInCareOfDetail/PersonNm0KIM BISCHOFF
IRS990/BooksInCareOfDetail/PhoneNum06305101115
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt0213 SOUTH WHEATON AVE
IRS990/BooksInCareOfDetail/USAddress/CityNm0WHEATON
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0IL
IRS990/BooksInCareOfDetail/USAddress/ZIPCd060187
IRS990/BusinessRlnWithFamMemInd0false
IRS990/BusinessRlnWithOfficerEntInd0false
IRS990/BusinessRlnWithOrgMemInd0false
IRS990/CashNonInterestBearingGrp/BOYAmt092401
IRS990/CashNonInterestBearingGrp/EOYAmt0221535
IRS990/ChangeToOrgDocumentsInd0false
IRS990/CollectionsOfArtInd0false
IRS990/CompensationFromOtherSrcsInd0false
IRS990/CompensationProcessCEOInd0true
IRS990/CompensationProcessOtherInd0true
IRS990/ConferencesMeetingsGrp/ProgramServicesAmt020055
IRS990/ConferencesMeetingsGrp/TotalAmt020055
IRS990/ConflictOfInterestPolicyInd0true
IRS990/ConservationEasementsInd0false
IRS990/ConsolidatedAuditFinclStmtInd0false
IRS990/ContriRptFundraisingEventAmt072622
IRS990/CreditCounselingInd0false
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt0400906
IRS990/CYGrantsAndSimilarPaidAmt00
IRS990/CYInvestmentIncomeAmt012517
IRS990/CYOtherExpensesAmt0229042
IRS990/CYOtherRevenueAmt040377
IRS990/CYProgramServiceRevenueAmt00
IRS990/CYRevenuesLessExpensesAmt082724
IRS990/CYSalariesCompEmpBnftPaidAmt0142034
IRS990/CYTotalExpensesAmt0371076
IRS990/CYTotalFundraisingExpenseAmt04873
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt0453800
IRS990/DecisionsSubjectToApprovaInd0false
IRS990/DeductibleArtContributionInd0false
IRS990/DeductibleNonCashContriInd0false
IRS990/DelegationOfMgmtDutiesInd0false
IRS990/Desc0TO PROVIDE THOSE WITH NEUROFIBROMATOSIS WITH INFORMATION ABOUT THE DISORDER AND HELP FAMILIES FIND MEDICAL, SOCIAL, AND GENETIC COUNSELING. TO RAISE AND SEEK FUNDS FOR RESEARCH FOR A CURE.
IRS990/DescribedInSection501c3Ind0true
IRS990/DisregardedEntityInd0false
IRS990/DocumentRetentionPolicyInd0true
IRS990/DonorAdvisedFundInd0false
IRS990/ElectionOfBoardMembersInd0false
IRS990/EmployeeCnt07
IRS990/EmploymentTaxReturnsFiledInd0true
IRS990/EngagedInExcessBenefitTransInd0false
IRS990/ExpenseAmt0340154
IRS990/FamilyOrBusinessRlnInd0false
IRS990/FederatedCampaignsAmt08993
IRS990/FeesForServicesAccountingGrp/FundraisingAmt0528
IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt01716
IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt010954
IRS990/FeesForServicesAccountingGrp/TotalAmt013198
IRS990/FeesForServicesLobbyingGrp/ProgramServicesAmt025000
IRS990/FeesForServicesLobbyingGrp/TotalAmt025000
IRS990/ForeignActivitiesInd0false
IRS990/ForeignFinancialAccountInd0false
IRS990/ForeignOfficeInd0false
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt015.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt15.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt215.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt35.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt45.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt515.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt65.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt75.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt85.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt95.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt105.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1115.00
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd8X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd9X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd10X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd11X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/PersonNm0RYAN GEIER
IRS990/Form990PartVIISectionAGrp/PersonNm1MICHELLE SLIMKO
IRS990/Form990PartVIISectionAGrp/PersonNm2NICOLE HICKS
IRS990/Form990PartVIISectionAGrp/PersonNm3GREGG ERICKSON
IRS990/Form990PartVIISectionAGrp/PersonNm4YVONNE GLASS
IRS990/Form990PartVIISectionAGrp/PersonNm5MICHAEL MONTGOMERY
IRS990/Form990PartVIISectionAGrp/PersonNm6DEBI BELL
IRS990/Form990PartVIISectionAGrp/PersonNm7CHERI STEWART
IRS990/Form990PartVIISectionAGrp/PersonNm8MIKE SHEEDY
IRS990/Form990PartVIISectionAGrp/PersonNm9ROSEMARY ANDERSON
IRS990/Form990PartVIISectionAGrp/PersonNm10SHARON LOFTSPRING
IRS990/Form990PartVIISectionAGrp/PersonNm11JOHN MANTH
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/TitleTxt0PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt1BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt2SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt3BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt4MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt5TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt6BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt7BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt8BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt9BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt10BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt11VP
IRS990/Form990ProvidedToGvrnBodyInd0false
IRS990/FormationYr01990
IRS990/FormerOfcrEmployeesListedInd0false
IRS990/FSAuditedInd0false
IRS990/FundraisingActivitiesInd0true
IRS990/FundraisingAmt072622
IRS990/FundraisingDirectExpensesAmt0111658
IRS990/FundraisingGrossIncomeAmt0152035
IRS990/GainOrLossGrp/SecuritiesAmt0-9408
IRS990/GamingActivitiesInd0false
IRS990/GoverningBodyVotingMembersCnt012
IRS990/GrantsPayableGrp/EOYAmt039468
IRS990/GrantsToIndividualsInd0false
IRS990/GrantsToOrganizationsInd0false
IRS990/GrantToRelatedPersonInd0false
IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt031407
IRS990/GrossReceiptsAmt0606273
IRS990/GroupReturnForAffiliatesInd0false
IRS990/IncludeFIN48FootnoteInd0false
IRS990/IndependentAuditFinclStmtInd0true
IRS990/IndependentVotingMemberCnt012
IRS990/IndoorTanningServicesInd0false
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InsuranceGrp/FundraisingAmt084
IRS990/InsuranceGrp/ManagementAndGeneralAmt0279
IRS990/InsuranceGrp/ProgramServicesAmt02428
IRS990/InsuranceGrp/TotalAmt02791
IRS990/InvestmentIncomeGrp/RelatedOrExemptFuncIncomeAmt021925
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt021925
IRS990/InvestmentInJointVentureInd0false
IRS990/InvestmentsPubTradedSecGrp/BOYAmt0199242
IRS990/InvestmentsPubTradedSecGrp/EOYAmt0188922
IRS990/IRPDocumentCnt05
IRS990/IRPDocumentW2GCnt00
IRS990/LegalDomicileStateCd0MA
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt040815
IRS990/LoanOutstandingInd0false
IRS990/LobbyingActivitiesInd0true
IRS990/LocalChaptersInd0false
IRS990/MaterialDiversionOrMisuseInd0false
IRS990/MembersOrStockholdersInd0false
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd0true
IRS990/MinutesOfGoverningBodyInd0true
IRS990/MissionDesc0TO PROVIDE INFORMATION ABOUT THE DISORDER NEUROFIBROMATOSIS TO THOSE AFFECTED AND HELP FAMILIES FIND MEDICAL, SOCIAL AND GENETIC COUNSELING. TO RAISE AND SEEK FUNDS FOR RESEARCH FOR A CURE.
IRS990/MoreThan5000KToIndividualsInd0false
IRS990/MoreThan5000KToOrgInd0false
IRS990/NetAssetsOrFundBalancesBOYAmt0279997
IRS990/NetAssetsOrFundBalancesEOYAmt0370004
IRS990/NetGainOrLossInvestmentsGrp/RelatedOrExemptFuncIncomeAmt0-9408
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt0-9408
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt040377
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt040377
IRS990/NetUnrlzdGainsLossesInvstAmt07283
IRS990/NoListedPersonsCompensatedInd0X
IRS990/NondeductibleContributionsInd0false
IRS990/OccupancyGrp/ProgramServicesAmt07282
IRS990/OccupancyGrp/TotalAmt07282
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt0181
IRS990/OfficeExpensesGrp/ProgramServicesAmt05932
IRS990/OfficeExpensesGrp/TotalAmt06113
IRS990/OfficerMailingAddressInd0false
IRS990/OperateHospitalInd0false
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OtherExpensesGrp/Desc0GRANTS <5K
IRS990/OtherExpensesGrp/Desc1COMMUNITY SERVICE EXPENSE
IRS990/OtherExpensesGrp/Desc2WEBSITE
IRS990/OtherExpensesGrp/Desc3SUPPLIES
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt04943
IRS990/OtherExpensesGrp/ProgramServicesAmt090490
IRS990/OtherExpensesGrp/ProgramServicesAmt141433
IRS990/OtherExpensesGrp/ProgramServicesAmt210642
IRS990/OtherExpensesGrp/TotalAmt090490
IRS990/OtherExpensesGrp/TotalAmt141433
IRS990/OtherExpensesGrp/TotalAmt210642
IRS990/OtherExpensesGrp/TotalAmt34943
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt03921
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt014375
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0112389
IRS990/OtherSalariesAndWagesGrp/TotalAmt0130685
IRS990/OtherWebsiteInd0X
IRS990/PartialLiquidationInd0false
IRS990/PayrollTaxesGrp/FundraisingAmt0340
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt01248
IRS990/PayrollTaxesGrp/ProgramServicesAmt09761
IRS990/PayrollTaxesGrp/TotalAmt011349
IRS990/PoliticalCampaignActyInd0false
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt01645
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt01614
IRS990/PrincipalOfficerNm0MICHAEL MONTGOMERY
IRS990/ProfessionalFundraisingInd0false
IRS990/ProhibitedTaxShelterTransInd0false
IRS990/PYContributionsGrantsAmt0197562
IRS990/PYExcessBenefitTransInd0false
IRS990/PYInvestmentIncomeAmt019523
IRS990/PYOtherExpensesAmt0162313
IRS990/PYOtherRevenueAmt045722
IRS990/PYRevenuesLessExpensesAmt0-42725
IRS990/PYSalariesCompEmpBnftPaidAmt0143219
IRS990/PYTotalExpensesAmt0305532
IRS990/PYTotalRevenueAmt0262807
IRS990/ReconcilationRevenueExpnssAmt082724
IRS990/RegularMonitoringEnfrcInd0true
IRS990/RelatedEntityInd0false
IRS990/RelatedOrganizationCtrlEntInd0false
IRS990/ReportInvestmentsOtherSecInd0false
IRS990/ReportLandBuildingEquipmentInd0false
IRS990/ReportOtherAssetsInd0false
IRS990/ReportOtherLiabilitiesInd0false
IRS990/ReportProgramRelatedInvstInd0false
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt0400906
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt0197562
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0365400
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0252177
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0253536
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt01469581
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt016877
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt016877
IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt021925
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.84990
IRS990ScheduleA/PublicSupportPY170Pct00.83440
IRS990ScheduleA/PublicSupportTotal170Amt01469581
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt0400906
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt0197562
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0365400
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0252177
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0253536
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt01469581
IRS990ScheduleA/TotalSupportAmt01729108
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearAmt039377
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus1YearAmt044722
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus2YearsAmt077094
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus3YearsAmt046939
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus4YearsAmt034518
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/TotalAmt0242650
IRS990/ScheduleBRequiredInd0true
IRS990ScheduleC/DirectContactLegislatorsInd0false
IRS990ScheduleC/GrantsOtherOrganizationsInd0false
IRS990ScheduleC/MailingsMembersInd0false
IRS990ScheduleC/MediaAdvertisementsInd0false
IRS990ScheduleC/NotDescribedSection501c3Ind0false
IRS990ScheduleC/OtherActivitiesAmt025000
IRS990ScheduleC/OtherActivitiesInd0true
IRS990ScheduleC/PaidStaffOrManagementInd0false
IRS990ScheduleC/PublicationsOrBroadcastInd0false
IRS990ScheduleC/RalliesDemonstrationsInd0false
IRS990ScheduleC/SupplementalInformationDetail/ExplanationTxt0LOBBYING FEES WERE PAID TO VAN SCOYOC ASSOCIATES, 800 MAINE AVENUE, SUITE 800,WASHINGTON DC 20024 TO PERSUADE MEMBERS OF THE GOVERNMENT TO ENACT LEGISLATION THAT WOULD FUND RESEARCH FOR INDIVIDUALS WITH NEUROFIBROMATOSIS.
IRS990ScheduleC/SupplementalInformationDetail/FormAndLineReferenceDesc0SCHEDULE C, PART II-B, LINE 1
IRS990ScheduleC/TotalLobbyingExpendituresAmt025000
IRS990ScheduleC/VolunteersInd0false
IRS990ScheduleD/ExpensesNotRptFinclStmtAmt0-111658
IRS990ScheduleD/ExpensesSubtotalAmt0482734
IRS990ScheduleD/NetUnrealizedGainsInvstAmt07283
IRS990ScheduleD/OtherExpensesNotIncludedAmt0-111658
IRS990ScheduleD/OtherRevenuesNotIncludedAmt0-111658
IRS990ScheduleD/RevenueNotReportedAmt07283
IRS990ScheduleD/RevenueNotReportedFinclStmtAmt0-111658
IRS990ScheduleD/RevenueSubtotalAmt0565458
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0SPECIAL EVENT EXPENSES NETTED AGAINST INCOME -111,658
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt1SPECIAL EVENT EXPENSES NETTED AGAINST INCOME -111,658
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0SCHEDULE D, PAGE 4, PART XI, LINE 4B
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc1SCHEDULE D, PAGE 4, PART XII, LINE 4B
IRS990ScheduleD/TotalExpensesPerForm990Amt0371076
IRS990ScheduleD/TotalRevenuePerForm990Amt0453800
IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt0572741
IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt0482734
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt072622
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt072622
IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt0111658
IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm0NF HOPE CONCERT
IRS990ScheduleG/FundraisingEventInformationGrp/Event2Nm0LINKS FOR LAURE
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt0135039
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent2Amt060801
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsOtherEventsAmt028817
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt0224657
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt062417
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent2Amt060801
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueOtherEventsAmt028817
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt0152035
IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt040377
IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssOtherEventsAmt0700
IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt0111658
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt089625
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent2Amt021333
IRS990ScheduleG/FundraisingEventInformationGrp/OtherEventsTotalCnt01
IRS990/ScheduleJRequiredInd0false
IRS990/ScheduleORequiredInd0true
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0THE 990 WILL BE REVIEWED BY SEVERAL EXECUTIVE COMMITTEE MEMBERS AND THE TREASURER BEFORE IT IS FILED WITH THE INTERNAL REVENUE SERVICE.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1THE ORGANIZATION PRACTICES FOR MONITORING PROPOSED OR ONGOING TRANSACTIONS FOR CONFLICTS OF INTEREST INCLUDES THE FOLLOWING: DESCRIPTION OF PERSONS COVERED UNDER THE POLICY: BOARD MEMBERS, OFFICER'S, DIRECTORS, EMPLOYEES, TRUSTEES, VOLUNTEERS. THE LEVEL AT WHICH DETERMINATIONS OF WHETHER A CONFLICT EXISTS ARE MADE AT THE BOARD LEVEL AND ARE REVIEWED AT THE BOARD LEVEL. A RESTRICTION IS IMPOSED ON PERSONS PARTICIPATING IN A CONFLICT BY NOT ALLOWING THAT PERSON TO PARTICIPATE IN THE GOVERNING BODY'S DELIBERATIONS AND DECISION IN THE TRANSACTION.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2THE EXECUTIVE DIRECTOR'S SALARY IS ANNUALLY REVIEWED BY THE GOVERNING BOARD MEMBERS.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3EMPLOYEE'S SALARIES ARE REVIEWED BY THE EXECUTIVE DIRECTOR.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4THE ORGANIZATION MAKES IT'S GOVERNING DOCUMENTS, ARTICLES OF INCORPORATION, CONSTITUTION, BY LAWS, AVAILABLE TO THE PUBLIC UPON REQUEST.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5SPECIAL EVENT EXPENSES NETTED AGAINST INCOME 111,658 SPECIAL EVENT EXPENSES NETTED AGAINST INCOME -111,658
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990, PAGE 6, PART VI, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PAGE 6, PART VI, LINE 12C
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PAGE 6, PART VI, LINE 15A
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3FORM 990, PAGE 6, PART VI, LINE 15B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4FORM 990, PAGE 6, PART VI, LINE 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc5FORM 990, PART XI, LINE 9
IRS990/SchoolOperatingInd0false
IRS990/SignificantChangeInd0false
IRS990/SignificantNewProgramSrvcInd0false
IRS990/StatesWhereCopyOfReturnIsFldCd0IL
IRS990/StatesWhereCopyOfReturnIsFldCd1MA
IRS990/SubjectToProxyTaxInd0false
IRS990/TaxablePartyNotificationInd0false
IRS990/TaxExemptBondsInd0false
IRS990/TemporarilyRstrNetAssetsGrp/BOYAmt0186931
IRS990/TemporarilyRstrNetAssetsGrp/EOYAmt0284986
IRS990/TempOrPermanentEndowmentsInd0false
IRS990/TerminateOperationsInd0false
IRS990/TotalAssetsBOYAmt0293288
IRS990/TotalAssetsEOYAmt0417083
IRS990/TotalAssetsGrp/BOYAmt0293288
IRS990/TotalAssetsGrp/EOYAmt0417083
IRS990/TotalCompGreaterThan150KInd0false
IRS990/TotalContributionsAmt0400906
IRS990/TotalEmployeeCnt07
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt04873
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt026049
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt0340154
IRS990/TotalFunctionalExpensesGrp/TotalAmt0371076
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesBOYAmt013291
IRS990/TotalLiabilitiesEOYAmt047079
IRS990/TotalLiabilitiesGrp/BOYAmt013291
IRS990/TotalLiabilitiesGrp/EOYAmt047079
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt0279997
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt0370004
IRS990/TotalProgramServiceExpensesAmt0340154
IRS990/TotalRevenueGrp/ExclusionAmt040377
IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt012517
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt0453800
IRS990/TotalVolunteersCnt0300
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt0293288
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt0417083
IRS990/TrnsfrExmptNonChrtblRltdOrgInd0false

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.23$0.01$1.22$0.45$0.49$0.04
2023Detailed filing. Detailed filing data is available for this year.$1.19$0.02$1.17$0.41$0.49$0.08
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.21$0.00$1.20$0.55$0.38$0.17
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.23$0.03$1.19$0.68$0.32$0.37
2020Import issue. A filing source exists for this year, but detailed import did not complete cleanly.$0.77$0.00$0.77$0.35$0.31$0.04
2019Detailed filing. Detailed filing data is available for this year.$0.70$0.00$0.70$0.67$0.33$0.34
2018Detailed filing. Detailed filing data is available for this year.$0.42$0.05$0.37$0.45$0.37$0.08
2017Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.29$0.01$0.28$0.26$0.31$0.04
2016Detailed filing. Detailed filing data is available for this year.$0.39$0.07$0.32$0.36$0.38$0.02
2015Summary only. Only limited summary data is available for this year.$0.35$0.00$0.35$0.30$0.34$0.04
2014Summary only. Only limited summary data is available for this year.$0.41$0.03$0.39$0.29$0.30$0.00
2013Summary only. Only limited summary data is available for this year.$0.38$0.00$0.38$0.22$0.27$0.05
2012Summary only. Only limited summary data is available for this year.$0.44$0.01$0.43$0.21$0.22$0.00
2011Summary only. Only limited summary data is available for this year.$0.42$0.00$0.42$0.20$0.21$0.00