Civic Intelligence

Hydrocephalus Association Incorporated

990 • Fiscal year 2023 • EIN 94-3000301

Jan 01, 2023 to Dec 31, 2023 • Filed on Jul 15, 2024

4340 East West Highway Suite 905Bethesda, MD 20814

(301) 202-3811

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

61st percentile

0.14x

Higher debt load relative to assets than 61% of similar nonprofits.

2023 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2023

Liabilities / Revenue

62nd percentile

0.17x

Higher debt load relative to revenue than 62% of similar nonprofits.

2023 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2023

Net Margin

39th percentile

-0.0%

Higher net margin than 39% of similar nonprofits.

2023 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2023

Top Officer Pay

93rd percentile

$247,781

Higher top officer pay than 93% of similar nonprofits.

Top officer pay equals 6.8% of source-year revenue.

2023 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2023

Asset Growth

24th percentile

-3.5%

Faster asset growth than 24% of similar nonprofits.

2023 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2022 to 2023

Revenue Growth

23rd percentile

-13%

Faster revenue growth than 23% of similar nonprofits.

2023 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2022 to 2023

Assets

Flat

$4,359,202

Flat from 2023

Net Assets

Flat

$3,746,780

Flat from 2023

Liabilities

Flat

$612,422

Flat from 2023

Revenue

Flat

$3,628,383

Flat from 2023

Expenses

Flat

$3,629,656

Flat from 2023

Net Income

Flat

-$1,273

Flat from 2023

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$6.0M$4.0M$2.0M$0Assets 2010: $1,675,677Liabilities 2010: $400,956Net Assets 2010: $1,274,7212010Assets 2011: $1,215,491Liabilities 2011: $143,095Net Assets 2011: $1,072,3962011Assets 2012: $1,652,061Liabilities 2012: $194,607Net Assets 2012: $1,457,4542012Assets 2013: $2,771,059Liabilities 2013: $274,841Net Assets 2013: $2,496,2182013Assets 2014: $3,224,755Liabilities 2014: $349,413Net Assets 2014: $2,875,3422014Assets 2015: $3,017,833Liabilities 2015: $69,668Net Assets 2015: $2,948,1652015Assets 2016: $4,082,568Liabilities 2016: $436,998Net Assets 2016: $3,645,5702016Assets 2017: $3,179,190Liabilities 2017: $425,582Net Assets 2017: $2,753,6082017Assets 2018: $3,033,090Liabilities 2018: $617,168Net Assets 2018: $2,415,9222018Assets 2019: $2,356,079Liabilities 2019: $384,999Net Assets 2019: $1,971,0802019Assets 2020: $2,750,883Liabilities 2020: $666,296Net Assets 2020: $2,084,5872020Assets 2021: $3,795,524Liabilities 2021: $542,795Net Assets 2021: $3,252,7292021Assets 2022: $4,516,368Liabilities 2022: $852,119Net Assets 2022: $3,664,2492022Assets 2023: $4,359,202Liabilities 2023: $612,422Net Assets 2023: $3,746,7802023Assets 2023: $4,359,202Liabilities 2023: $612,422Net Assets 2023: $3,746,7802023Assets 2024: $3,458,025Liabilities 2024: $488,203Net Assets 2024: $2,969,8222024

Highlighted filing

2023

Assets$4,359,202
Liabilities$612,422
Net Assets$3,746,780

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$6.0M$4.0M$2.0M$0-$2.0MRevenue 2010: $1,867,992Expenses 2010: $1,972,440Net Income 2010: -$104,4482010Revenue 2011: $1,603,636Expenses 2011: $1,805,015Net Income 2011: -$201,3792011Expenses 2012: $1,838,5022012Revenue 2013: $3,461,436Expenses 2013: $2,417,538Net Income 2013: $1,043,8982013Revenue 2014: $3,166,575Expenses 2014: $2,779,006Net Income 2014: $387,5692014Revenue 2015: $3,357,377Expenses 2015: $3,279,047Net Income 2015: $78,3302015Revenue 2016: $4,695,627Expenses 2016: $3,980,661Net Income 2016: $714,9662016Revenue 2017: $3,864,095Expenses 2017: $4,756,366Net Income 2017: -$892,2712017Revenue 2018: $4,569,449Expenses 2018: $4,901,982Net Income 2018: -$332,5332018Revenue 2019: $3,409,455Expenses 2019: $3,857,581Net Income 2019: -$448,1262019Revenue 2020: $3,247,779Expenses 2020: $3,139,397Net Income 2020: $108,3822020Revenue 2021: $3,909,969Expenses 2021: $2,745,199Net Income 2021: $1,164,7702021Revenue 2022: $4,148,543Expenses 2022: $3,617,494Net Income 2022: $531,0492022Revenue 2023: $3,628,383Expenses 2023: $3,629,656Net Income 2023: -$1,2732023Revenue 2023: $3,628,383Expenses 2023: $3,629,656Net Income 2023: -$1,2732023Revenue 2024: $3,558,664Expenses 2024: $4,411,991Net Income 2024: -$853,3272024

Highlighted filing

2023

Revenue$3,628,383
Expenses$3,629,656
Net Income-$1,273
Jump To
Filing Snapshot
Filing Period
Jan 1, 2023 to Dec 31, 2023
Signed
Jul 15, 2024
Return Version
2023v5.1
Gross Receipts
$3,960,989
Mission and Program Overview

Mission

Find a cure for hydrocephalus and improve the lives of those impacted. We will accomplish this by collaborating with patients, caregivers, researchers and industry, raising awareness, and funding innovative, high-impact research to prevent, treat and cure hydrocephalus.

Find a cure for hydrocephalus and improve the lives of those impacted by the condition.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$2,264,530$2,529,577▲ $265,047
Cash and Non-Interest-Bearing Accounts$1,431,128$1,206,278▼ $224,850
Pledges and Grants Receivable$394,679$254,386▼ $140,293
Prepaid Expenses and Deferred Charges$89,047$97,903▲ $8,856
Intangible Assets-$51,627-
Inventories for Sale or Use$46,849$40,324▼ $6,525
Land, Buildings, and Equipment, Net$12,823$15,330▲ $2,507
Total Assets$4,516,368$4,359,202▼ $157,166
Other Assets Total$277,312$163,777▼ $113,535
Liabilities
Other Liabilities$457,429$332,400▼ $125,029
Accounts Payable and Accrued Expenses$221,391$280,022▲ $58,631
Grants Payable$173,299--
Total Liabilities$852,119$612,422▼ $239,697
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$2,568,262$2,532,659▼ $35,603
Net Assets With Donor Restrictions$1,095,987$1,214,121▲ $118,134
Total Net Assets Fund Balance$3,664,249$3,746,780▲ $82,531
Total Liabilities and Net Assets / Fund Balance$4,516,368$4,359,202▼ $157,166

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$0$117,595$117,595
Equipment$15,330$95,326$110,656

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2023$79,544-▲ $11,774-$91,318
2022$91,318-▼ $11,774-$79,544
2021$91,318-▲ $1,573-$91,318
2020$91,118$200▲ $2,973-$91,318
2019$91,118-▲ $3,862-$91,118
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Diana GrayPresident and CEOFT$224,971$22,810$247,781
Amanda GarzonChief Operating OfficerFT$137,714$16,433$154,147
Brian SaphierTreasurer and CFOFT$137,458$16,389$153,847
Linda RileyNational Director of DevelopmentFT$135,010$16,145$151,155
Monica ChauNational Director of Research ProgramsFT$129,492$15,085$144,577
Judith FroehlichNational Director of Marketing and CommunicationsFT$127,120$14,868$141,988
Revenue and Support

Revenue Composition

Contributions and Grants
$3,520,084
Program Service Revenue
$0
Investment Income
$137,427
Other Revenue
$-29,128
All Other Contributions
$1,102,497
Change in Net Assets
$-1,273

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded8$78,203Nyse Value
Total Noncash Contributions8$78,203-

Audited Revenue Reconciliation

Revenue per Audited Statements
$3,419,085
Revenue Not Reported on Financial Statements
$209,298
Revenue Not Reported on Form 990
$83,804
Other Revenue Adjustments
$209,298
Total Revenue per Audited Statements
$3,502,889
Total Revenue per Form 990
$3,628,383
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$1,993,111
Other Expenses$1,071,147
Grants and Similar Amounts Paid$565,398
Total Fundraising Expense$199,405
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$1,007,342$254,574$62,311$1,324,227
Grants to Domestic Orgs$510,641--$510,641
Current Officers, Directors, Trustees, and Key Employees$295,611$84,285$21,732$401,628
Office Expenses$182,053$22,724$22,549$227,326
Information Technology$160,792$20,474$7,231$188,497
Travel$113,747$8,771$26,300$148,818
Fees for Services Other$112,695$11,352$11,271$135,318
Occupancy$96,409$22,237$7,043$125,689
Payroll Taxes$93,433$23,056$6,070$122,559
Other Employee Benefits$62,897$37,119$4,460$104,476
Foreign Grants$42,757--$42,757
Pension Plan Contributions$30,676$7,675$1,870$40,221
Advertising$9,129-$16,909$26,038
Fees for Services Accounting-$18,580-$18,580
Depreciation Depletion$12,667$2,922$925$16,514
Insurance-$12,208$33$12,241
Grants to Domestic Individuals$12,000--$12,000
Fees for Services Legal$1,590$7,707-$9,297
Other Expenses$36,178$6,799$4,802$6,799
All Other Expenses$5,311$1,339$41$6,691
Interest-$4,574-$4,574
Fees for Services Lobbying$3,000--$3,000
Total Functional Expenses$2,832,615$597,636$199,405$3,629,656

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Form 990$3,629,656
Expenses per Audited Statements$3,420,358
Total Expenses per Audited Statements$3,420,358
Expenses Not Reported on Financial Statements$209,298
Other Expense Adjustments$209,298
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
University of UtahSalt Lake City, UT501(c)(3)To Fund the Clinical Research Site for the Adult Hydrocephalus Clinical Research Network$140,614
BOSTON CHILDREN'S HOSPITALBoston, MA501(c)(3)Mechanisms of Hydrocepahlus Research Grant - to Fund Basic Research for the Treatment of Hydrocephalus$50,000
Baylor College of MedicineHouston, TX501(c)(3)Mechanisms of Hydrocepahlus Research Grant - to Fund Basic Research for the Treatment of Hydrocephalus$50,000
SEATTLE CHILDREN'S HOSPITALSeattle, WA501(c)(3)Mechanisms of Hydrocepahlus Research Grant - to Fund Basic Research for the Treatment of Hydrocephalus$50,000
University of California San Francisco FoundationSan Francisco, CA501(c)(3)Mechanisms of Hydrocepahlus Research Grant - to Fund Basic Research for the Treatment of Hydrocephalus$50,000
University of MichiganAnn Harbor, MI501(c)(3)Mechanisms of Hydrocepahlus Research Grant - to Fund Basic Research for the Treatment of Hydrocephalus$50,000
Washington UniversitySt Louis, MO501(c)(3)Mechanisms of Hydrocephalus Research Grant - to Fund Basic Research on Hydrocephalus$48,816
Cleveland Clinic FoundationCleveland, OH501(c)(3)To Fund the Clinical Research Site for the Adult Hydrocephalus Clinical Research Network$46,211
PRIMARY CHILDREN'S FOUNDATIONSalt Lake City, UT501(c)(3)To Fund the Clinical Research Site for the Hydrocephalus Clinical Research Network$25,000

International Summary

Offices
0
Employees
0
Spending
$42,757

International Compliance

Foreign grant records maintained
No
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
North America - Canada and Mexico, But Not the United StatesTo Fund the Clinical Research Site for the Adult Hydrocephalus Clinical Research Network-00$42,757
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
Yes
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$331,577
Gaming Gross Income$75,623
Fundraising Gross Income$0
Gaming Direct Expenses$0
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Ha 40th Anniversary Gala$436,703-$161,349-
South Florida Walk$162,625-$8,383-
Total Events$2,196,302-$325,417$-325,417
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Operating Lease Liability$181,474
Sba Loan$150,926
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 1A

According to our bylaws, the executive committee, unless limited in a resolution of the board, shall have and may exercise all of the authority of the board in the management of the business and affairs of the corporation between meetings of the board.

Form 990, Part VI, Section B, Line 11B

All board members receive an electronic or paper copy of the irs form 990 prior to its submission. Board members must submit any questions or changes to the president & chief executive officer, who submits the changes to the tax preparer.

Form 990, Part VI, Section B, Line 12C

Each year board members get a copy of the conflict of interest policy and a disclosure form to fill out with details of any possible conflicts that may exist.

Form 990, Part VI, Section B, Line 15A

The process for determining the compensation for the president & chief executive officer (who is also in charge of financial management of the organization) position includes the following steps: 1) the board chair and president & chief executive officer each collect comparable salary information (e.g., salary studies). 2) the board chair makes a recommendation for president & ceo compensation to the executive committee. 3) executive committee members (without a conflict of interest) vote on the recommendation by the board chair for proposed ceo compensation, and a record of the vote is recorded in executive committee minutes.

Form 990, Part VI, Section C, Line 18

Form 990 is available on the hydrocephalus association website at www.hydroassoc.org/annual-reports-and-financials

Form 990, Part VI, Section C, Line 19

The organization's governing documents, conflict of interest policy, and financial statements are available to the public at the organization's office or on the organization's website upon request.

Filing and Contact Details

Filer

Filer Name
Hydrocephalus Association
EIN
94-3000301
Phone
3012023811
Address
4340 EAST WEST HIGHWAY SUITE 905, BETHESDA, MD 20814

Signing Officer

Name
Diana Gray
Title
President and CEO
Phone
3012023811
Signed
2024-07-15
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Diana Gray
Formed
1986
Legal Domicile
De
Voting Board Members
24
Independent Board Members
24
Employees
25
Volunteers
1,600

Preparer

Firm
Kositzka Wicks and Company
Address
4405 COX ROAD SUITE 200, GLEN ALLEN, VA 23060
Preparer
Jennica Jardine Whitfield CPA
Phone
8048551200
Supplemental Narrative

Additional Explanations

Form 990, Statement of Revenue Line 11A

Consists of an unspent grant award returned to the association in 2023.

FORM 990, PART XII, LINE 2C:

The audit committee selects and oversees an independent accounting firm to conduct the audit. No change in the selection method occurred this year.

Financial Statement Notes

PART X, LINE 2:

The association is a qualifying nonprofit organization as defined in section 501(c)(3) of the internal revenue code and the tax statutes of delaware, and therefore is exempt from federal and state income taxes. Accordingly, the accompanying financial statements do not reflect a provision or liability for federal and state income taxes. The association does not believe it has any uncertain tax positions as of december 31, 2023. Fiscal years ending on or after 2020 remain subject to examination by federal and state authorities.

PART XI, LINE 4B - OTHER ADJUSTMENTS:

RETURNED GRANT AWARD

PART XII, LINE 4B - OTHER ADJUSTMENTS:

RETURNED GRANT AWARD

PART V, LINE 4:

The organization uses endowment funds for educational scholarships to young adults with hydrocephalus.

Raw XML AppendixShowing 400 of 1,004 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Desc0RESEARCHTHE HYDROCEPHALUS ASSOCIATION (HA) REMAINS DEDICATED TO SUPPORTING HIGH QUALITY, HIGH-IMPACT RESEARCH THROUGH CONTINUED SUPPORT OF THE HA PATIENT POWERED INTERACTIVE ENGAGEMENT REGISTRY (HAPPIER), HA NETWORK FOR DISCOVERY SCIENCE (HANDS), HYDROCEPHALUS CLINICAL RESEARCH NETWORK (HCRN), AND ADULT HCRN (AHCRN). HAPPIER PROVIDES PATIENTS AND CAREGIVERS THE OPPORTUNITY TO ENGAGE IN RESEARCH WHILE PROVIDING RESEARCHERS ACCESS TO CRITICAL DATA. HANDS PROVIDES THE CONNECTIONS, TECHNOLOGY, AND TOOLS NEEDED TO SPUR AND SUPPORT INNOVATIVE BASIC AND TRANSLATIONAL RESEARCH, WHILE THE PEDIATRIC FOCUSED HCRN AND ADULT FOCUSED AHCRN PROVIDE THE STRUCTURE AND EXPERTISE NECESSARY TO EFFICIENTLY AND THOROUGHLY TEST THESE NEW TECHNOLOGIES AND CLINICAL THERAPIES WITH THE HIGHEST CLINICAL STANDARDS. BY LINKING BASIC, TRANSLATIONAL, AND CLINICAL RESEARCHERS, HA HAS CREATED A PIPELINE TO MOVE RESEARCH FROM THE BENCH TO THE BEDSIDE.
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IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt2840.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt2940.00
IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd0X
IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd1X
IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd2X
IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd8X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd9X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd10X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd11X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd12X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd13X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd14X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd15X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd16X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd17X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd18X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd19X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd20X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd21X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd22X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd23X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OfficerInd4X
IRS990/Form990PartVIISectionAGrp/OfficerInd5X
IRS990/Form990PartVIISectionAGrp/OfficerInd6X
IRS990/Form990PartVIISectionAGrp/OfficerInd7X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt130
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt140
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt150
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt160
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt170
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt180
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt190
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt200
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt210
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt220
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt230
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt2422810
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt2516389
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt2616433
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt2716145
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt2815085
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt2914868
IRS990/Form990PartVIISectionAGrp/PersonNm0BRETT WEITZ
IRS990/Form990PartVIISectionAGrp/PersonNm1JASON PRESTON
IRS990/Form990PartVIISectionAGrp/PersonNm2TERESA MASTRANGELO
IRS990/Form990PartVIISectionAGrp/PersonNm3RAYMOND R MOSER JR JD
IRS990/Form990PartVIISectionAGrp/PersonNm4LYDIA VALADEZ-MCSTAY
IRS990/Form990PartVIISectionAGrp/PersonNm5TESSA VAN DER WILLIGEN
IRS990/Form990PartVIISectionAGrp/PersonNm6HUGH ALLEN
IRS990/Form990PartVIISectionAGrp/PersonNm7SALLY BALDUS
IRS990/Form990PartVIISectionAGrp/PersonNm8SALLY DUNKELBERGER DANIEL
IRS990/Form990PartVIISectionAGrp/PersonNm9PAM FINLAYSON
IRS990/Form990PartVIISectionAGrp/PersonNm10SUSAN FIORELLA
IRS990/Form990PartVIISectionAGrp/PersonNm11MICHAEL SIEGEL PHD
IRS990/Form990PartVIISectionAGrp/PersonNm12MARK HAMILTON MD
IRS990/Form990PartVIISectionAGrp/PersonNm13DAVID LIMBRICK MD
IRS990/Form990PartVIISectionAGrp/PersonNm14MIKE MUHONEN MD
IRS990/Form990PartVIISectionAGrp/PersonNm15JENNIFER POPE
IRS990/Form990PartVIISectionAGrp/PersonNm16EILEEN RODGER
IRS990/Form990PartVIISectionAGrp/PersonNm17STEPHANIE VOGT
IRS990/Form990PartVIISectionAGrp/PersonNm18MICHAEL WILLIAMS MD
IRS990/Form990PartVIISectionAGrp/PersonNm19DEITRA MATTHEWS MPA
IRS990/Form990PartVIISectionAGrp/PersonNm20SHERYL ROSENBERG JD
IRS990/Form990PartVIISectionAGrp/PersonNm21KIPP COCO
IRS990/Form990PartVIISectionAGrp/PersonNm22TAMMY LEE
IRS990/Form990PartVIISectionAGrp/PersonNm23JASON SPEARS
IRS990/Form990PartVIISectionAGrp/PersonNm24DIANA GRAY
IRS990/Form990PartVIISectionAGrp/PersonNm25BRIAN SAPHIER
IRS990/Form990PartVIISectionAGrp/PersonNm26AMANDA GARZON
IRS990/Form990PartVIISectionAGrp/PersonNm27LINDA RILEY
IRS990/Form990PartVIISectionAGrp/PersonNm28MONICA CHAU
IRS990/Form990PartVIISectionAGrp/PersonNm29JUDITH FROEHLICH
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt190
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt200
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt210
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt220
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt230
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt24224971
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt25137458
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt26137714
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt27135010
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt28129492
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt29127120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt190
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt200
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt210
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt220
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt230
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt240
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt250
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt260
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt270
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt280
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt290
IRS990/Form990PartVIISectionAGrp/TitleTxt0PAST CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt1CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt2VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt5VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt16DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt17DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt18DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt19DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt20DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt21DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt22DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt23DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt24PRESIDENT AND CEO
IRS990/Form990PartVIISectionAGrp/TitleTxt25TREASURER AND CFO
IRS990/Form990PartVIISectionAGrp/TitleTxt26CHIEF OPERATING OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt27NATIONAL DIRECTOR OF DEVELOPMENT
IRS990/Form990PartVIISectionAGrp/TitleTxt28NATIONAL DIRECTOR OF RESEARCH PROGRAMS
IRS990/Form990PartVIISectionAGrp/TitleTxt29NATIONAL DIRECTOR OF MARKETING AND COMMUNICATIONS
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr01986
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt02417587
IRS990/FundraisingDirectExpensesAmt0331577
IRS990/FundraisingGrossIncomeAmt00
IRS990/GamingActivitiesInd01
IRS990/GamingDirectExpensesAmt00
IRS990/GamingGrossIncomeAmt075623
IRS990/GoverningBodyVotingMembersCnt024
IRS990/GrantAmt0553398
IRS990/GrantsPayableGrp/BOYAmt0173299
IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt012000
IRS990/GrantsToDomesticIndividualsGrp/TotalAmt012000
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt0510641
IRS990/GrantsToDomesticOrgsGrp/TotalAmt0510641
IRS990/GrantsToIndividualsInd01
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt03960989
IRS990/GrossSalesOfInventoryAmt03257
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt024
IRS990/IndivRcvdGreaterThan100KCnt06
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt07231
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt020474
IRS990/InformationTechnologyGrp/ProgramServicesAmt0160792
IRS990/InformationTechnologyGrp/TotalAmt0188497
IRS990/InsuranceGrp/FundraisingAmt033
IRS990/InsuranceGrp/ManagementAndGeneralAmt012208
IRS990/InsuranceGrp/TotalAmt012241
IRS990/IntangibleAssetsGrp/EOYAmt051627
IRS990/InterestGrp/ManagementAndGeneralAmt04574
IRS990/InterestGrp/TotalAmt04574
IRS990/InventoriesForSaleOrUseGrp/BOYAmt046849
IRS990/InventoriesForSaleOrUseGrp/EOYAmt040324
IRS990/InvestmentIncomeGrp/ExclusionAmt0137427
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt0137427
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt02264530
IRS990/InvestmentsPubTradedSecGrp/EOYAmt02529577
IRS990/IRPDocumentCnt05
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt0212921
IRS990/LandBldgEquipBasisNetGrp/BOYAmt012823
IRS990/LandBldgEquipBasisNetGrp/EOYAmt015330
IRS990/LandBldgEquipCostOrOtherBssAmt0228251
IRS990/LegalDomicileStateCd0DE
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd01
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0FIND A CURE FOR HYROCEPHALUS AND IMPROVE THE LIVES OF THOSE IMPACTED. WE WILL ACCOMPLISH THIS BY COLLABORATING WITH PATIENTS, CAREGIVERS, RESEARCHERS AND INDUSTRY, RAISING AWARENESS, AND FUNDING INNOVATIVE, HIGH-IMPACT RESEARCH TO PREVENT, TREAT AND CURE HYDROCEPHALUS.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd01
IRS990/NetAssetsOrFundBalancesBOYAmt03664249
IRS990/NetAssetsOrFundBalancesEOYAmt03746780
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0-331577
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0-331577
IRS990/NetIncomeFromGamingGrp/RelatedOrExemptFuncIncomeAmt075623
IRS990/NetIncomeFromGamingGrp/TotalRevenueColumnAmt075623
IRS990/NetIncomeOrLossGrp/RelatedOrExemptFuncIncomeAmt02228
IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt02228
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt083804
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt02568262
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt02532659
IRS990/NoncashContributionsAmt04067
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt07043
IRS990/OccupancyGrp/ManagementAndGeneralAmt022237
IRS990/OccupancyGrp/ProgramServicesAmt096409
IRS990/OccupancyGrp/TotalAmt0125689
IRS990/OfficeExpensesGrp/FundraisingAmt022549

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.46$0.49$2.97$3.56$4.41$0.85
2023Detailed filing. Detailed filing data is available for this year.$4.36$0.61$3.75$3.63$3.63$0.00
2023Summary only. Only limited summary data is available for this year.$4.36$0.61$3.75$3.63$3.63$0.00
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$4.52$0.85$3.66$4.15$3.62$0.53
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.80$0.54$3.25$3.91$2.75$1.16
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.75$0.67$2.08$3.25$3.14$0.11
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.36$0.38$1.97$3.41$3.86$0.45
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.03$0.62$2.42$4.57$4.90$0.33
2017Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.18$0.43$2.75$3.86$4.76$0.89
2016Summary only. Only limited summary data is available for this year.$4.08$0.44$3.65$4.70$3.98$0.71
2015Detailed filing. Detailed filing data is available for this year.$3.02$0.07$2.95$3.36$3.28$0.08
2014Detailed filing. Detailed filing data is available for this year.$3.22$0.35$2.88$3.17$2.78$0.39
2013Summary only. Only limited summary data is available for this year.$2.77$0.27$2.50$3.46$2.42$1.04
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.65$0.19$1.46$1.84
2011Summary only. Only limited summary data is available for this year.$1.22$0.14$1.07$1.60$1.81$0.20
2010Summary only. Only limited summary data is available for this year.$1.68$0.40$1.27$1.87$1.97$0.10