Civic Intelligence

Hydrocephalus Association Incorporated

990 • Fiscal year 2015 • EIN 94-3000301

Jan 01, 2015 to Dec 31, 2015 • Filed on Nov 08, 2016

4340 East West Highway No 905Bethesda, MD 20814

(301) 202-3811

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

31st percentile

0.02x

Higher debt load relative to assets than 31% of similar nonprofits.

2015 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2015

Liabilities / Revenue

25th percentile

0.02x

Higher debt load relative to revenue than 25% of similar nonprofits.

2015 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2015

Net Margin

49th percentile

2.3%

Higher net margin than 49% of similar nonprofits.

2015 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2015

Top Officer Pay

86th percentile

$163,122

Higher top officer pay than 86% of similar nonprofits.

Top officer pay equals 4.9% of source-year revenue.

2015 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2015

Asset Growth

18th percentile

-6.4%

Faster asset growth than 18% of similar nonprofits.

2015 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2014 to 2015

Revenue Growth

56th percentile

6.0%

Faster revenue growth than 56% of similar nonprofits.

2015 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2014 to 2015

Assets

Down

$3,017,833

Down $206,922 (-6.4%) from 2014

Net Assets

Up

$2,948,165

Up $72,823 (+2.5%) from 2014

Liabilities

Down

$69,668

Down $279,745 (-80%) from 2014

Revenue

Up

$3,357,377

Up $190,802 (+6.0%) from 2014

Expenses

Up

$3,279,047

Up $500,041 (+18%) from 2014

Net Income

Down

$78,330

Down $309,239 (-80%) from 2014

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$6.0M$4.0M$2.0M$0Assets 2010: $1,675,677Liabilities 2010: $400,956Net Assets 2010: $1,274,7212010Assets 2011: $1,215,491Liabilities 2011: $143,095Net Assets 2011: $1,072,3962011Assets 2012: $1,652,061Liabilities 2012: $194,607Net Assets 2012: $1,457,4542012Assets 2013: $2,771,059Liabilities 2013: $274,841Net Assets 2013: $2,496,2182013Assets 2014: $3,224,755Liabilities 2014: $349,413Net Assets 2014: $2,875,3422014Assets 2015: $3,017,833Liabilities 2015: $69,668Net Assets 2015: $2,948,1652015Assets 2016: $4,082,568Liabilities 2016: $436,998Net Assets 2016: $3,645,5702016Assets 2017: $3,179,190Liabilities 2017: $425,582Net Assets 2017: $2,753,6082017Assets 2018: $3,033,090Liabilities 2018: $617,168Net Assets 2018: $2,415,9222018Assets 2019: $2,356,079Liabilities 2019: $384,999Net Assets 2019: $1,971,0802019Assets 2020: $2,750,883Liabilities 2020: $666,296Net Assets 2020: $2,084,5872020Assets 2021: $3,795,524Liabilities 2021: $542,795Net Assets 2021: $3,252,7292021Assets 2022: $4,516,368Liabilities 2022: $852,119Net Assets 2022: $3,664,2492022Assets 2023: $4,359,202Liabilities 2023: $612,422Net Assets 2023: $3,746,7802023Assets 2024: $3,458,025Liabilities 2024: $488,203Net Assets 2024: $2,969,8222024

Highlighted filing

2015

Assets$3,017,833
Liabilities$69,668
Net Assets$2,948,165

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$6.0M$4.0M$2.0M$0-$2.0MRevenue 2010: $1,867,992Expenses 2010: $1,972,440Net Income 2010: -$104,4482010Revenue 2011: $1,603,636Expenses 2011: $1,805,015Net Income 2011: -$201,3792011Expenses 2012: $1,838,5022012Revenue 2013: $3,461,436Expenses 2013: $2,417,538Net Income 2013: $1,043,8982013Revenue 2014: $3,166,575Expenses 2014: $2,779,006Net Income 2014: $387,5692014Revenue 2015: $3,357,377Expenses 2015: $3,279,047Net Income 2015: $78,3302015Revenue 2016: $4,695,627Expenses 2016: $3,980,661Net Income 2016: $714,9662016Revenue 2017: $3,864,095Expenses 2017: $4,756,366Net Income 2017: -$892,2712017Revenue 2018: $4,569,449Expenses 2018: $4,901,982Net Income 2018: -$332,5332018Revenue 2019: $3,409,455Expenses 2019: $3,857,581Net Income 2019: -$448,1262019Revenue 2020: $3,247,779Expenses 2020: $3,139,397Net Income 2020: $108,3822020Revenue 2021: $3,909,969Expenses 2021: $2,745,199Net Income 2021: $1,164,7702021Revenue 2022: $4,148,543Expenses 2022: $3,617,494Net Income 2022: $531,0492022Revenue 2023: $3,628,383Expenses 2023: $3,629,656Net Income 2023: -$1,2732023Revenue 2024: $3,558,664Expenses 2024: $4,411,991Net Income 2024: -$853,3272024

Highlighted filing

2015

Revenue$3,357,377
Expenses$3,279,047
Net Income$78,330
Jump To
Filing Snapshot
Filing Period
Jan 1, 2015 to Dec 31, 2015
Signed
Nov 8, 2016
Return Version
2015v2.1
Gross Receipts
$3,621,789
Mission and Program Overview

Mission

Find a cure for hydrocephalus and improve the lives of those impacted. We will accomplish this by collaborating with patients, caregivers, researchers and industry, raising awareness, and funding innovative, high-impact research to prevent, treat and cure hydrocephalus.

Raise awareness and fund innovative high impact research to prevent, treat and ultimately cure hydrocephalus.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$2,357,827$2,286,295▼ $71,532
Pledges and Grants Receivable$454,988$328,489▼ $126,499
Investments in Publicly Traded Securities$317,480$304,375▼ $13,105
Prepaid Expenses and Deferred Charges$34,441$36,599▲ $2,158
Land, Buildings, and Equipment, Net$34,384$16,372▼ $18,012
Inventories for Sale or Use$5,307$5,307→ $0
Total Assets$3,224,755$3,017,833▼ $206,922
Other Assets Total$20,328$40,396▲ $20,068
Liabilities
Accounts Payable and Accrued Expenses$349,413$69,668▼ $279,745
Total Liabilities$349,413$69,668▼ $279,745
Net Assets / Fund Balance
Unrestricted Net Assets$2,269,865$1,963,303▼ $306,562
Temporarily Rstr Net Assets$524,359$893,744▲ $369,385
Permanently Rstr Net Assets$81,118$91,118▲ $10,000
Total Net Assets Fund Balance$2,875,342$2,948,165▲ $72,823
Total Liabilities and Net Assets / Fund Balance$3,224,755$3,017,833▼ $206,922

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$16,372$68,797$85,169

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2015$81,118$10,000--$91,118
2014$81,118-▲ $628-$81,118
2013$81,118-▲ $105-$81,118
2012$80,818$300▲ $4,731-$81,118
2011$80,718$100▲ $1,386-$80,818
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Dawn MancusoFormer CEOFT$157,569$5,553$163,122
Diana GrayCEOFT$25,833-$25,833

Board Members and Trustees

Revenue and Support

Revenue Composition

Contributions and Grants
$3,540,508
Program Service Revenue
$0
Investment Income
$6,416
Other Revenue
$-189,547
All Other Contributions
$2,001,315
Change in Net Assets
$78,330

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
Yes
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded11$151,527Fair Market Value
Other Non Cash Contri Table1$1,641Fair Market Value
Total Noncash Contributions12$153,168-

Audited Revenue Reconciliation

Revenue per Audited Statements
$3,357,377
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$-5,507
Total Revenue per Audited Statements
$3,351,870
Total Revenue per Form 990
$3,357,377
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$1,219,785
Salaries, Compensation, and Employee Benefits$1,112,592
Grants and Similar Amounts Paid$946,670
Total Fundraising Expense$652,021
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$892,369--$892,369
Other Salaries and Wages$370,949$61,763$300,135$732,847
Fees for Services Other$139,905$135,616$44,046$319,567
Office Expenses$165,641$16,991$73,784$256,416
Travel$111,869$47,755$54,826$214,450
Current Officers, Directors, Trustees, and Key Employees$52,598$113,313$17,492$183,403
Occupancy$73,194$20,329$15,665$109,188
Other Employee Benefits$44,813$18,344$34,843$98,000
Information Technology$40,128$6,798$48,987$95,913
Payroll Taxes$32,085$12,984$24,015$69,084
Fees for Services Accounting-$61,520-$61,520
Foreign Grants$53,301--$53,301
Pension Plan Contributions$13,459$5,559$10,240$29,258
Insurance$11,044$15,044$2,287$28,375
Depreciation Depletion$12,610$3,908$2,958$19,476
Other Expenses$1,861$2,178$9,484$13,523
All Other Expenses$8,157$815$4,347$13,319
Advertising$3,929$24$1,338$5,291
Fees for Services Legal$2,406$205$239$2,850
Grants to Domestic Individuals$1,000--$1,000
Conferences and Meetings$490-$130$620
Interest-$238-$238
Total Functional Expenses$2,093,851$533,175$652,021$3,279,047

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$3,279,047
Total Expenses per Audited Statements$3,279,047
Total Expenses per Form 990$3,279,047
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
PRIMARY CHILDREN'S MEDICAL CENTER FOUNDATIONSalt Lake City, UT501(c)(3)To Fund the Clinical Research Site for the Adult Hydrocephalus Clinical Research Network$205,165
PRIMARY CHILDREN'S MEDICAL CENTER FOUNDATIONSalt Lake City, UT501(c)(3)To Fund the Clinical Research Site for the Hydrocephalus Clinical Research Network$174,487
Cincinnati Childrens Hospital Medical CenterCincinnati, OH501(c)(3)Mechanisms of Hydrocephalus Research Grant - to Fund Basic Research on Hydrocephalus$133,000
Weill CornellNew York, NY501(c)(3)To Fund the Clinical Research Site for the Adult Hydrocephalus Clinical Research Network$71,278
SEATTLE CHILDREN'S HOSPITALSeattle, WA501(c)(3)To Fund the Clinical Research Site for the Hydrocephalus Clinical Research Network$52,119
Cincinnati Childrens Hospital Medical CenterCincinnati, OH501(c)(3)Mechanisms of Hydrocephalus Research Grant - to Fund Basic Research on Hydrocephalus$50,000
Indiana University Purdue University IndianapolisDetroit, MI501(c)(3)Mechanisms of Hydrocephalus Research Grant - to Fund Basic Research on Hydrocephalus$50,000
Washington University in St LouisSt Louis, MO501(c)(3)Mechanisms of Hydrocephalus Research Grant - to Fund Basic Research on Hydrocephalus$50,000
University of Illinois ChicagoChicago, IL501(c)(3)Mechanisms of Hydrocephalus Research Grant - to Fund Basic Research on Hydrocephalus$49,784
Cleveland Clinic FoundationCleveland, OH501(c)(3)To Fund the Clinical Research Site for the Adult Hydrocephalus Clinical Research Network$32,236
Sanford ResearchSioux Falls, SD501(c)(3)Mechanisms of Hydrocephalus Research Grant - to Fund Basic Research on Hydrocephalus$25,000

International Summary

Offices
0
Employees
0
Spending
$53,301

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
North AmericaGrant to Recipient-00$31,301
East Asia and PacificGrant to Recipient-00$22,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
Yes
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$263,294
Gaming Gross Income$38,832
Fundraising Gross Income$0
Gaming Direct Expenses$0
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
La Walk 2015$194,078-$10,653-
Chicago Walk 2015$106,002-$7,155-
Total Events$1,527,910-$263,293$-263,293
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 1

According to our bylaws, the executive committee, unless limited in a resolution of the board, shall have and may exercise all of the authority of the board in the management of the business and affairs of the corporation between meetings of the board.

Form 990, Part VI, Section B, Line 11

All board members receive an electronic or paper copy of the irs form 990 prior to its submission. Board members must submit any questions or changes to the chief executive officer, who submits the changes to the tax preparer.

Form 990, Part VI, Section B, Line 12C

Each year board members get a copy of the conflict of interest policy and a disclosure form to fill out with details of any possible conflicts that may exist. Conflicts are reviewed at each board meeting.

Form 990, Part VI, Section B, Line 15A

The process for determining the compensation for the chief executive officer (who is also in charge of financial management of the organization) position includes the following steps: 1) the board chair and chief executive officer each collect comparable salary information (e.g., salary studies). 2) the salary comparison information is forwarded to the treasurer who documents findings from the data collected. 3) the treasurer makes a recommendation for ceo compensation to the full board. 4) board members (without a conflict of interest) vote on the recommendation by the treasurer for proposed ceo compensation, and a record of the vote is recorded in board minutes. Other salaries of senior managers are benchmarked using current salary survey data; our goal is to provide the median salary provided by similar organizations. This process is followed on a periodic basis for the ceo, based on contract renewal dates.

Form 990, Part VI, Section C, Line 18

Form 990 is available on the hydrocephalus association website at http://www.hydroassoc.org/about-us/who-we-are/financial-reports/

Form 990, Part VI, Section C, Line 19

The organization's governing documents, conflict of interest policy, and financial statements are available to the public at the oraganization's office upon request.

Filing and Contact Details

Filer

Filer Name
Hydrocephalus Association
EIN
94-3000301
Phone
3012023811
Address
4340 EAST WEST HIGHWAY NO 905, BETHESDA, MD 20814

Signing Officer

Name
Diana Gray
Title
CEO
Phone
3012023811
Signed
2016-11-08
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Diana Gray
Formed
1986
Legal Domicile
CA
Voting Board Members
21
Independent Board Members
21
Employees
21
Volunteers
1,080

Preparer

Firm
Kimble
Address
6806 PARAGON PLACE SUITE 250, RICHMOND, VA 23230
Preparer
Kimberley D Vanhuss
Phone
8046124380
Supplemental Narrative

Additional Explanations

FORM 990, PART XII, LINE 2C:

The audit committee selects and oversees an independent acccounting firm to conduct the audit. No change in the selection method occurred this year.

Financial Statement Notes

PART X, LINE 2:

The association is a qualifying nonprofit organization as defined in section 501(c)(3) of the internal revenue code and the tax statutes of california, and therefore is exempt from federal and state income taxes. Accordingly, the accompanying financial statements do not reflect a provision or liability for federal and state income taxes. The association does not believe it has any uncertain tax positions as of december 31, 2015. Fiscal years ending on or after 2012 remain subject to examination by federal and state authorities.

PART V, LINE 4:

The organization uses endowment funds for educational scholarships to young adults with hydrocephalus.

Raw XML AppendixShowing 400 of 925 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0RAISE AWARENESS AND FUND INNOVATIVE HIGH IMPACT RESEARCH TO PREVENT, TREAT AND ULTIMATELY CURE HYDROCEPHALUS.
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IRS990/Desc0RESEARCH THE HYDROCEPHALUS ASSOCIATION (HA) REMAINS DEDICATED TO SUPPORTING HIGH QUALITY, HIGH-IMPACT RESEARCH THROUGH CONTINUED SUPPORT OF THE HA NETWORK FOR DISCOVERY SCIENCE (HANDS), HYDROCEPHALUS CLINICAL RESEARCH NETWORK (HCRN), AND ADULT HCRN (AHCRN). HANDS PROVIDES THE CONNECTIONS, TECHNOLOGY, AND TOOLS NEEDED TO SPUR AND SUPPORT INNOVATIVE BASIC AND TRANSLATIONAL RESEARCH, WHILE THE PEDIATRIC FOCUSED HCRN AND ADULT FOCUSED AHCRN PROVIDE THE STRUCTURE AND EXPERTISE NECESSARY TO EFFICIENTLY AND THOROUGHLY TEST THESE NEW TECHNOLOGIES AND CLINICAL THERAPIES WITH THE HIGHEST CLINICAL STANDARDS. BY LINKING BASIC, TRANSLATIONAL, AND CLINICAL RESEARCHERS, HA HAS CREATED A PIPELINE TO MOVE RESEARCH FROM THE BENCH TO THE BEDSIDE.HA NETWORK FOR DISCOVERY SCIENCE (HANDS) WORK ON THE HA NETWORK FOR DISCOVERY SCIENCE (HANDS) BEGAN IN EARNEST THIS YEAR. DEVELOPED OUT OF DISCUSSIONS FROM HA AND NATIONAL INSTITUTES OF HEALTH (NIH) SPONSORED WORKSHOPS, HANDS IS A PLATFORM FOR BOTH COMMUNICATION AND COLLABORATION AMONG HYDROCEPHALUS BASIC, TRANSLATIONAL, AND CLINICAL RESEARCHERS WITH A FOCUS ON MENTORSHIP, INNOVATION, AND SHARED INFRASTRUCTURE TO SUPPORT HIGH-QUALITY, HIGH- IMPACT RESEARCH. HANDS MEMBERSHIP ALREADY EXTENDS TO 18 COUNTRIES AND IS HAVING A NOTICEABLE IMPACT ON THE COLLABORATIVE EFFORTS IN HYDROCEPHALUS RESEARCH. THE HANDS CEREBROSPINAL FLUID (CSF) REPOSITORY WAS CREATED AT WASHINGTON UNIVERSITY SCHOOL OF MEDICINE IN ST. LOUIS, MISSOURI. THIS REPOSITORY OPERATES WITHIN THE WASHINGTON UNIVERSITY TISSUE PROCUREMENT CENTER, WHICH ALSO HOSTS THE CENTRAL SPECIMEN BANK FOR THE AMERICAN COLLEGE OF SURGEONS ONCOLOGY GROUP, THE NEUROLOGIC AIDS RESEARCH CONSORTIUM, THE HYDROCEPHALUS CLINICAL RESEARCH NETWORK, AND OTHER MAJOR MULTI-INSTITUTIONAL STUDIES AND CONTAINS >400,000 BIOSPECIMENS. BY BUILDING SHARED INFRASTRUCTURE, SUCH AS THE CSF REPOSITORY, FORWARD-THINKING RESEARCHERS WILL BE ABLE TO TEST THEIR HYPOTHESES AT AN ACCELERATED PACE AND BRING NEW THERAPIES, PREVENTS, AND HOPEFULLY CURES TO THE HYDROCEPHALUS COMMUNITY. ONGOING EFFORTS WILL BE FOCUSED ON EXPANDING THE NETWORK, DEVELOPING ADDITIONAL SHARED INFRASTRUCTURE, AND SUPPORTING NEW COLLABORATIVE EFFORTS AND RESEARCH STUDIES. IN 2016, HANDS WILL FOCUS ON SPURRING RESEARCH EFFORTS IN POSTHEMORRHAGIC HYDROCEPHALUS, THE MOST PREVALENT FORM OF PEDIATRIC HYDROCEPHALUS IN THE UNITED STATES. 2015 INNOVATOR AWARDSTHROUGH THE HA NETWORK FOR DISCOVERY SCIENCE (HANDS), HA LAUNCHED THE FIRST EVER INNOVATOR AWARD FOR INVESTIGATORS IN HYDROCEPHALUS THERAPEUTICS RESEARCH IN LATE 2015. THE GOAL OF THIS AWARD WAS TO PROVIDE SEED FUNDING FOR BOLD AND INNOVATIVE RESEARCH WITH THE POTENTIAL TO TRANSFORM THE FIELD OF HYDROCEPHALUS THROUGH THE UNDERSTANDING OF DISEASE MECHANISMS AND THE DEVELOPMENT OF NOVEL THERAPIES.HYDROCEPHALUS CLINICAL RESEARCH NETWORK (HCRN)IN LATE OCTOBER, THE HYDROCEPHALUS CLINICAL RESEARCH NETWORK (HCRN) PRINCIPAL INVESTIGATORS AND CLINICAL RESEARCH COORDINATORS MET IN DEER VALLEY, UTAH TO DISCUSS STUDY PROGRESS IN THE NETWORK.SIGNIFICANT MILESTONES WERE REACHED IN A NUMBER OF STUDIES. THE QUALITY IMPROVEMENT (QI) SHUNT SURGERY PROTOCOL, AIMED AT REDUCING RATES OF SURGERY COMPLICATIONS SUCH AS SHUNT INFECTION, WAS DISCUSSED AND PLANS WERE MADE TO EVALUATE MODIFICATIONS FOR THE THIRD ITERATION OF THE PROTOCOL AT THE SPRING MEETING. A RELATED STUDY FOCUSED ON IMPLEMENTATION OF THE QI PROTOCOL IN NON-HCRN HOSPITALS. THE SURVEY REVEALED SIGNIFICANT PRACTICE VARIATION AMONG NEUROSURGEONS, BUT A UNANIMOUS INTEREST IN AN HCRN-DRIVEN IMPLEMENTATION STUDY. DR. MANDEEP TAMBER WITH THE HYDROCEPHALUS ASSOCIATION'S RESEARCH AND SUPPORT & EDUCATION DEPARTMENTS ARE DEVELOPING SUCH AN INITIATIVE.THE STUDY, "VENTRICULAR INVOLVEMENT IN NEUROPSYCHOLOGICAL OUTCOMES FOR HYDROCEPHALUS (VINOH)," FUNDED BY THE HYDROCEPHALUS ASSOCIATION, HAS COMPLETED PATIENT ACCRUAL. ANALYSIS OF THE VINOH STUDY WILL BEGIN AFTER NEUROPSYCHOLOGICAL TESTING FOLLOW-UPS ARE COMPLETED. IN ADDITION, THE PILOT STUDY, "
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IRS990/FeesForServicesLegalGrp/ProgramServicesAmt02406
IRS990/FeesForServicesLegalGrp/TotalAmt02850
IRS990/FeesForServicesOtherGrp/FundraisingAmt044046
IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt0135616
IRS990/FeesForServicesOtherGrp/ProgramServicesAmt0139905
IRS990/FeesForServicesOtherGrp/TotalAmt0319567
IRS990/ForeignActivitiesInd01
IRS990/ForeignFinancialAccountInd00
IRS990/ForeignGrantsGrp/ProgramServicesAmt053301
IRS990/ForeignGrantsGrp/TotalAmt053301
IRS990/ForeignOfficeInd00
IRS990/Form8282PropertyDisposedOfInd00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt04.00
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IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt203.00
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IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd8X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd9X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd10X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd11X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd12X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd13X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd14X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd15X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd16X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd17X
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IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd19X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd20X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
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IRS990/Form990PartVIISectionAGrp/OfficerInd5X
IRS990/Form990PartVIISectionAGrp/OfficerInd6X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt130
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt140
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt150
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt160
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt170
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt180
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt190
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt200
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt210
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt225553
IRS990/Form990PartVIISectionAGrp/PersonNm0ASEEM CHANDRA
IRS990/Form990PartVIISectionAGrp/PersonNm1CRAIG BROWN
IRS990/Form990PartVIISectionAGrp/PersonNm2DAVID BROWDY
IRS990/Form990PartVIISectionAGrp/PersonNm3MIKE SCHWAB
IRS990/Form990PartVIISectionAGrp/PersonNm4RICK SMITH
IRS990/Form990PartVIISectionAGrp/PersonNm5SALLY BALDUS
IRS990/Form990PartVIISectionAGrp/PersonNm6PAM FINLAYSON
IRS990/Form990PartVIISectionAGrp/PersonNm7SUSAN FIORELLA
IRS990/Form990PartVIISectionAGrp/PersonNm8CLIFF GOLDMAN
IRS990/Form990PartVIISectionAGrp/PersonNm9MARK HAMILTON MD
IRS990/Form990PartVIISectionAGrp/PersonNm10JOHN KESTLE MD FRCSC FACS
IRS990/Form990PartVIISectionAGrp/PersonNm11JOHN LAWRENCE
IRS990/Form990PartVIISectionAGrp/PersonNm12TERESA MASTRANGELO
IRS990/Form990PartVIISectionAGrp/PersonNm13RAYMOND R MOSER JR
IRS990/Form990PartVIISectionAGrp/PersonNm14BARRETT O'CONNOR
IRS990/Form990PartVIISectionAGrp/PersonNm15JENNIFER POPE
IRS990/Form990PartVIISectionAGrp/PersonNm16JASON PRESTON
IRS990/Form990PartVIISectionAGrp/PersonNm17EILEEN RODGER
IRS990/Form990PartVIISectionAGrp/PersonNm18TESSA VAN DER WILLIGEN
IRS990/Form990PartVIISectionAGrp/PersonNm19MARION WALKER MD
IRS990/Form990PartVIISectionAGrp/PersonNm20MICHAEL WILLIAMS MD
IRS990/Form990PartVIISectionAGrp/PersonNm21DIANA GRAY
IRS990/Form990PartVIISectionAGrp/PersonNm22DAWN MANCUSO
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt190
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt200
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt2125833
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt22157569
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt190
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt200
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt210
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt220
IRS990/Form990PartVIISectionAGrp/TitleTxt0CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt1SENIOR VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt2VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt3SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt4TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt16DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt17DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt18DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt19DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt20DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt21CEO
IRS990/Form990PartVIISectionAGrp/TitleTxt22FORMER CEO
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr01986
IRS990/FormerOfcrEmployeesListedInd01
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt01527910
IRS990/FundraisingDirectExpensesAmt0263294
IRS990/FundraisingGrossIncomeAmt00
IRS990/GainOrLossGrp/SecuritiesAmt0-1118
IRS990/GamingActivitiesInd01
IRS990/GamingDirectExpensesAmt00
IRS990/GamingGrossIncomeAmt038832
IRS990/GoverningBodyVotingMembersCnt021
IRS990/GovernmentGrantsAmt011283
IRS990/GrantAmt0894253
IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt01000
IRS990/GrantsToDomesticIndividualsGrp/TotalAmt01000
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt0892369
IRS990/GrantsToDomesticOrgsGrp/TotalAmt0892369
IRS990/GrantsToIndividualsInd01
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt03621789
IRS990/GrossSalesOfInventoryAmt028621
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt021
IRS990/IndivRcvdGreaterThan100KCnt01
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt048987
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt06798
IRS990/InformationTechnologyGrp/ProgramServicesAmt040128
IRS990/InformationTechnologyGrp/TotalAmt095913
IRS990/InsuranceGrp/FundraisingAmt02287
IRS990/InsuranceGrp/ManagementAndGeneralAmt015044
IRS990/InsuranceGrp/ProgramServicesAmt011044
IRS990/InsuranceGrp/TotalAmt028375
IRS990/InterestGrp/ManagementAndGeneralAmt0238
IRS990/InterestGrp/TotalAmt0238
IRS990/InventoriesForSaleOrUseGrp/BOYAmt05307
IRS990/InventoriesForSaleOrUseGrp/EOYAmt05307
IRS990/InvestmentIncomeGrp/ExclusionAmt07534
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt07534
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt0317480
IRS990/InvestmentsPubTradedSecGrp/EOYAmt0304375
IRS990/IRPDocumentCnt010
IRS990/IRPDocumentW2GCnt010
IRS990/LandBldgEquipAccumDeprecAmt068797
IRS990/LandBldgEquipBasisNetGrp/BOYAmt034384
IRS990/LandBldgEquipBasisNetGrp/EOYAmt016372
IRS990/LandBldgEquipCostOrOtherBssAmt085169
IRS990/LegalDomicileStateCd0CA
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt01118
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd01
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0RAISE AWARENESS AND FUND INNOVATIVE HIGH IMPACT RESEARCH TO PREVENT, TREAT, AND ULTIMATELY CURE HYDROCEPHALUS.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd01
IRS990/NetAssetsOrFundBalancesBOYAmt02875342
IRS990/NetAssetsOrFundBalancesEOYAmt02948165
IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt0-1118
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt0-1118
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0-263294
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0-263294
IRS990/NetIncomeFromGamingGrp/ExclusionAmt038832
IRS990/NetIncomeFromGamingGrp/TotalRevenueColumnAmt038832
IRS990/NetIncomeOrLossGrp/RelatedOrExemptFuncIncomeAmt028621
IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt028621
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt0-5507
IRS990/NoncashContributionsAmt0153168
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt015665
IRS990/OccupancyGrp/ManagementAndGeneralAmt020329
IRS990/OccupancyGrp/ProgramServicesAmt073194
IRS990/OccupancyGrp/TotalAmt0109188
IRS990/OfficeExpensesGrp/FundraisingAmt073784
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt016991
IRS990/OfficeExpensesGrp/ProgramServicesAmt0165641
IRS990/OfficeExpensesGrp/TotalAmt0256416
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt020328
IRS990/OtherAssetsTotalGrp/EOYAmt040396
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt034843
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt018344
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt044813
IRS990/OtherEmployeeBenefitsGrp/TotalAmt098000
IRS990/OtherExpensesGrp/Desc0SITE EXPENSES
IRS990/OtherExpensesGrp/Desc1FOOD, MEALS & CATERING
IRS990/OtherExpensesGrp/Desc2DUES AND SUBSCRIPTIONS
IRS990/OtherExpensesGrp/Desc3TAXES AND OTHER FEES
IRS990/OtherExpensesGrp/FundraisingAmt01981
IRS990/OtherExpensesGrp/FundraisingAmt11764
IRS990/OtherExpensesGrp/FundraisingAmt23460
IRS990/OtherExpensesGrp/FundraisingAmt39484
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt02522
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt15854
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt21415
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt32178
IRS990/OtherExpensesGrp/ProgramServicesAmt035447
IRS990/OtherExpensesGrp/ProgramServicesAmt112461
IRS990/OtherExpensesGrp/ProgramServicesAmt214135
IRS990/OtherExpensesGrp/ProgramServicesAmt31861
IRS990/OtherExpensesGrp/TotalAmt039950
IRS990/OtherExpensesGrp/TotalAmt120079
IRS990/OtherExpensesGrp/TotalAmt219010
IRS990/OtherExpensesGrp/TotalAmt313523
IRS990/OtherRevenueMiscGrp/BusinessCd0900099
IRS990/OtherRevenueMiscGrp/Desc0OTHER INCOME
IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt06294
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt06294
IRS990/OtherRevenueTotalAmt06294
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt0300135
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt061763
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0370949
IRS990/OtherSalariesAndWagesGrp/TotalAmt0732847
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt024015
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt012984
IRS990/PayrollTaxesGrp/ProgramServicesAmt032085

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.46$0.49$2.97$3.56$4.41$0.85
2023Summary only. Only limited summary data is available for this year.$4.36$0.61$3.75$3.63$3.63$0.00
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$4.52$0.85$3.66$4.15$3.62$0.53
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.80$0.54$3.25$3.91$2.75$1.16
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.75$0.67$2.08$3.25$3.14$0.11
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.36$0.38$1.97$3.41$3.86$0.45
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.03$0.62$2.42$4.57$4.90$0.33
2017Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.18$0.43$2.75$3.86$4.76$0.89
2016Summary only. Only limited summary data is available for this year.$4.08$0.44$3.65$4.70$3.98$0.71
2015Detailed filing. Detailed filing data is available for this year.$3.02$0.07$2.95$3.36$3.28$0.08
2014Detailed filing. Detailed filing data is available for this year.$3.22$0.35$2.88$3.17$2.78$0.39
2013Summary only. Only limited summary data is available for this year.$2.77$0.27$2.50$3.46$2.42$1.04
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.65$0.19$1.46$1.84
2011Summary only. Only limited summary data is available for this year.$1.22$0.14$1.07$1.60$1.81$0.20
2010Summary only. Only limited summary data is available for this year.$1.68$0.40$1.27$1.87$1.97$0.10
Peer Organizations

Similar nonprofits based on the same Siviq industry and scale cohort. 2015 filings • 501(c)3 • $1M-$5M nonprofits