Civic Intelligence

Hydrocephalus Association

EIN 94-3000301 • 501(c)3 • North Bethesda, MD

Profile

Raise awareness and fund innovative high impact research to prevent, treat, and ultimately cure hydrocephalus.

Refreshing map…

6903 Rockledge Drive Suite 740North Bethesda, MD 20817

www.hydroassoc.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

61st percentile

0.14x

Higher debt load relative to assets than 61% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Liabilities / Revenue

60th percentile

0.14x

Higher debt load relative to revenue than 60% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Net Margin

12th percentile

-24%

Higher net margin than 12% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Top Officer Pay

93rd percentile

$263,299

Higher top officer pay than 93% of similar nonprofits.

Top officer pay equals 7.4% of source-year revenue.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Asset Growth

10th percentile

-21%

Faster asset growth than 10% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Revenue Growth

33rd percentile

-1.9%

Faster revenue growth than 33% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Assets

Down

$3,458,025

Down $901,177 (-21%) from 2023

Liabilities

Down

$488,203

Down $124,219 (-20%) from 2023

Net Assets

Down

$2,969,822

Down $776,958 (-21%) from 2023

Revenue

Down

$3,558,664

Down $69,719 (-1.9%) from 2023

Expenses

Up

$4,411,991

Up $782,335 (+22%) from 2023

Net Income

Down

-$853,327

Down $852,054 (-66933%) from 2023

Trend Graphs

Balance Sheet Trend

Grouped bars show assets, liabilities, and net assets across loaded filings.

$6.0M$4.0M$2.0M$0Assets 2010: $1,675,677Liabilities 2010: $400,956Net Assets 2010: $1,274,7212010Assets 2011: $1,215,491Liabilities 2011: $143,095Net Assets 2011: $1,072,3962011Assets 2012: $1,652,061Liabilities 2012: $194,607Net Assets 2012: $1,457,4542012Assets 2013: $2,771,059Liabilities 2013: $274,841Net Assets 2013: $2,496,2182013Assets 2014: $3,224,755Liabilities 2014: $349,413Net Assets 2014: $2,875,3422014Assets 2015: $3,017,833Liabilities 2015: $69,668Net Assets 2015: $2,948,1652015Assets 2016: $4,082,568Liabilities 2016: $436,998Net Assets 2016: $3,645,5702016Assets 2017: $3,179,190Liabilities 2017: $425,582Net Assets 2017: $2,753,6082017Assets 2018: $3,033,090Liabilities 2018: $617,168Net Assets 2018: $2,415,9222018Assets 2019: $2,356,079Liabilities 2019: $384,999Net Assets 2019: $1,971,0802019Assets 2020: $2,750,883Liabilities 2020: $666,296Net Assets 2020: $2,084,5872020Assets 2021: $3,795,524Liabilities 2021: $542,795Net Assets 2021: $3,252,7292021Assets 2022: $4,516,368Liabilities 2022: $852,119Net Assets 2022: $3,664,2492022Assets 2023: $4,359,202Liabilities 2023: $612,422Net Assets 2023: $3,746,7802023Assets 2024: $3,458,025Liabilities 2024: $488,203Net Assets 2024: $2,969,8222024

Highlighted filing

2024

Assets$3,458,025
Liabilities$488,203
Net Assets$2,969,822

Operations Trend

Revenue, expenses, and net income by year, with the latest filing highlighted.

$6.0M$4.0M$2.0M$0-$2.0MRevenue 2010: $1,867,992Expenses 2010: $1,972,440Net Income 2010: -$104,4482010Revenue 2011: $1,603,636Expenses 2011: $1,805,015Net Income 2011: -$201,3792011Expenses 2012: $1,838,5022012Revenue 2013: $3,461,436Expenses 2013: $2,417,538Net Income 2013: $1,043,8982013Revenue 2014: $3,166,575Expenses 2014: $2,779,006Net Income 2014: $387,5692014Revenue 2015: $3,357,377Expenses 2015: $3,279,047Net Income 2015: $78,3302015Revenue 2016: $4,695,627Expenses 2016: $3,980,661Net Income 2016: $714,9662016Revenue 2017: $3,864,095Expenses 2017: $4,756,366Net Income 2017: -$892,2712017Revenue 2018: $4,569,449Expenses 2018: $4,901,982Net Income 2018: -$332,5332018Revenue 2019: $3,409,455Expenses 2019: $3,857,581Net Income 2019: -$448,1262019Revenue 2020: $3,247,779Expenses 2020: $3,139,397Net Income 2020: $108,3822020Revenue 2021: $3,909,969Expenses 2021: $2,745,199Net Income 2021: $1,164,7702021Revenue 2022: $4,148,543Expenses 2022: $3,617,494Net Income 2022: $531,0492022Revenue 2023: $3,628,383Expenses 2023: $3,629,656Net Income 2023: -$1,2732023Revenue 2024: $3,558,664Expenses 2024: $4,411,991Net Income 2024: -$853,3272024

Highlighted filing

2024

Revenue$3,558,664
Expenses$4,411,991
Net Income-$853,327

Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.46$0.49$2.97$3.56$4.41$0.85
2023Summary only. Only limited summary data is available for this year.$4.36$0.61$3.75$3.63$3.63$0.00
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$4.52$0.85$3.66$4.15$3.62$0.53
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.80$0.54$3.25$3.91$2.75$1.16
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.75$0.67$2.08$3.25$3.14$0.11
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.36$0.38$1.97$3.41$3.86$0.45
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.03$0.62$2.42$4.57$4.90$0.33
2017Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.18$0.43$2.75$3.86$4.76$0.89
2016Summary only. Only limited summary data is available for this year.$4.08$0.44$3.65$4.70$3.98$0.71
2015Detailed filing. Detailed filing data is available for this year.$3.02$0.07$2.95$3.36$3.28$0.08
2014Detailed filing. Detailed filing data is available for this year.$3.22$0.35$2.88$3.17$2.78$0.39
2013Summary only. Only limited summary data is available for this year.$2.77$0.27$2.50$3.46$2.42$1.04
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.65$0.19$1.46$1.84
2011Summary only. Only limited summary data is available for this year.$1.22$0.14$1.07$1.60$1.81$0.20
2010Summary only. Only limited summary data is available for this year.$1.68$0.40$1.27$1.87$1.97$0.10
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Jul 9, 2025
Return Version
2024v5.2
Gross Receipts
$3,861,276
Mission and Program Overview

Mission

Find a cure for hydrocephalus and improve the lives of those impacted. We will accomplish this by collaborating with patients, caregivers, researchers and industry, raising awareness, and funding innovative, high-impact research to prevent, treat and cure hydrocephalus.

Find a cure for hydrocephalus and improve the lives of those impacted by the condition.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$2,529,577$2,282,221▼ $247,356
Cash and Non-Interest-Bearing Accounts$1,206,278$656,749▼ $549,529
Pledges and Grants Receivable$254,386$210,018▼ $44,368
Prepaid Expenses and Deferred Charges$97,903$120,089▲ $22,186
Intangible Assets$51,627$49,674▼ $1,953
Inventories for Sale or Use$40,324$39,471▼ $853
Land, Buildings, and Equipment, Net$15,330$15,406▲ $76
Accounts Receivable-$4,263-
Total Assets$4,359,202$3,458,025▼ $901,177
Other Assets Total$163,777$80,134▼ $83,643
Liabilities
Accounts Payable and Accrued Expenses$280,022$236,776▼ $43,246
Other Liabilities$332,400$201,427▼ $130,973
Deferred Revenue-$50,000-
Total Liabilities$612,422$488,203▼ $124,219
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$2,532,659$1,936,849▼ $595,810
Net Assets With Donor Restrictions$1,214,121$1,032,973▼ $181,148
Total Net Assets Fund Balance$3,746,780$2,969,822▼ $776,958
Total Liabilities and Net Assets / Fund Balance$4,359,202$3,458,025▼ $901,177

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$15,406$102,949$118,355
Other Land Buildings$0$117,595$117,595

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2024$91,318-▲ $13,142-$91,318
2023$79,544-▲ $11,774-$91,318
2022$91,318-▼ $11,774-$79,544
2021$91,318-▲ $1,573-$91,318
2020$91,118$200▲ $2,973-$91,318
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Diana GrayPresident and CEOFT$240,680$22,619$263,299
Amanda GarzonChief Operating OfficerFT$141,772$14,247$156,019
Linda RileyNational Director of DevelopmentFT$138,921$16,517$155,438
Brian SaphierTreasurer and CFOFT$141,557$12,399$153,956
Judith FroehlichNational Director of MarketingFT$130,796$14,357$145,153
Monica ChauNational Director of ResearchFT$131,153$7,521$138,674

Board Members and Trustees

Revenue and Support

Revenue Composition

Contributions and Grants
$3,350,909
Program Service Revenue
$73,155
Investment Income
$180,343
Other Revenue
$-45,743
All Other Contributions
$1,463,325
Change in Net Assets
$-853,327

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded6$47,087Fair Market Value (FMV)
Other Non Cash Contri Table3$7,095Fair Market Value (FMV)
Total Noncash Contributions9$54,182-

Audited Revenue Reconciliation

Revenue per Audited Statements
$3,549,573
Revenue Not Reported on Financial Statements
$9,091
Revenue Not Reported on Form 990
$76,369
Other Revenue Adjustments
$9,091
Total Revenue per Audited Statements
$3,625,942
Total Revenue per Form 990
$3,558,664
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$2,248,081
Other Expenses$1,284,320
Grants and Similar Amounts Paid$879,590
Total Fundraising Expense$105,462
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$1,200,762$131,360$43,646$1,375,768
Grants to Domestic Orgs$823,833--$823,833
Current Officers, Directors, Trustees, and Key Employees$410,337$159,274$3,662$573,273
Office Expenses$336,133$11,074$10,828$358,035
Information Technology$242,632$13,929$3,722$260,283
Travel$176,008$4$3,748$179,760
Payroll Taxes$117,459$20,229$3,530$141,218
Occupancy$105,602$15,691$3,480$124,773
Other Employee Benefits$77,576$38,735$3,424$119,735
Fees for Services Other$98,742$12,672$4,404$115,818
Foreign Grants$42,757--$42,757
Pension Plan Contributions$34,066$2,680$1,341$38,087
Depreciation Depletion$28,282$4,202$932$33,416
Advertising$1,969-$20,716$22,685
Fees for Services Accounting$71$20,080-$20,151
Other Expenses$14,413$2,023$1,612$14,413
Grants to Domestic Individuals$13,000--$13,000
Insurance$1,159$11,286$38$12,483
All Other Expenses$2,782$8,367$264$11,413
Fees for Services Legal$3,823$4,140$112$8,075
Interest-$3,778-$3,778
Fees for Services Lobbying$3,000--$3,000
Total Functional Expenses$3,797,454$509,075$105,462$4,411,991

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Form 990$4,411,991
Expenses per Audited Statements$4,402,900
Total Expenses per Audited Statements$4,402,900
Expenses Not Reported on Financial Statements$9,091
Other Expense Adjustments$9,091
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
University of UtahSalt Lake City, UT501(c)(3)To Fund the Clinical Research Site for the Adult Hydrocephalus Clinical Research Network$173,222
BOSTON CHILDREN'S HOSPITALBoston, MA501(c)(3)Mechanisms of Hydrocepahlus Research Grant - to Fund Basic Research for the Treatment of Hydrocephalus$85,000
Johns Hopkins UniversityBaltimore, MD501(c)(3)Mechanisms of Hydrocepahlus Research Grant - to Fund Basic Research for the Treatment of Hydrocephalus$85,000
Umass Chan Medical School FoundationWorcester, MA501(c)(3)Mechanisms of Hydrocepahlus Research Grant - to Fund Basic Research for the Treatment of Hydrocephalus$85,000
PRIMARY CHILDREN'S FOUNDATIONSalt Lake City, UT501(c)(3)To Fund the Clinical Research Site for the Hydrocephalus Clinical Research Network$75,000
University of California San Francisco FoundationSan Francisco, CA501(c)(3)Mechanisms of Hydrocepahlus Research Grant - to Fund Basic Research for the Treatment of Hydrocephalus$75,000
CHILDREN'S HOSPITAL LOS ANGELESLos Angeles, CA501(c)(3)Mechanisms of Hydrocepahlus Research Grant - to Fund Basic Research for the Treatment of Hydrocephalus$50,000
Virginia Commonwealth University FoundationRichmond, VA501(c)(3)Mechanisms of Hydrocepahlus Research Grant - to Fund Basic Research for the Treatment of Hydrocephalus$50,000
Yale UniversityNew Haven, CT501(c)(3)Mechanisms of Hydrocepahlus Research Grant - to Fund Basic Research for the Treatment of Hydrocephalus$50,000
University of Colorado FoundationDenver, CO501(c)(3)Mechanisms of Hydrocepahlus Research Grant - to Fund Basic Research for the Treatment of Hydrocephalus$49,400
Cleveland Clinic FoundationCleveland, OH501(c)(3)To Fund the Clinical Research Site for the Adult Hydrocephalus Clinical Research Network$46,211

International Summary

Offices
0
Employees
0
Spending
$42,757

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
North America - Canada and Mexico, But Not the United StatesTo Fund the Clinical Research Site for the Adult Hydrocephalus Clinical Research Network---$42,757
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
Yes
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$159,876
Gaming Gross Income$57,595
Fundraising Gross Income$0
Gaming Direct Expenses$0
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
South Florida Walk$273,753-$5,028-
Long Island Walk$157,452-$6,604-
Total Events$1,887,584-$159,876$-159,876
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Sba Loan$147,011
Operating Lease Liability$54,416
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 1A

According to our bylaws, the executive committee, unless limited in a resolution of the board, shall have and may exercise all of the authority of the board in the management of the business and affairs of the corporation between meetings of the board.

Form 990, Part VI, Section B, Line 11B

All board members receive an electronic or paper copy of the irs form 990 prior to its submission. Board members must submit any questions or changes to the president & chief executive officer, who submits the changes to the tax preparer.

Form 990, Part VI, Section B, Line 12C

Each year board members get a copy of the conflict of interest policy and a disclosure form to fill out with details of any possible conflicts that may exist.

Form 990, Part VI, Section B, Line 15A

The process for determining the compensation for the president & chief executive officer (who is also in charge of financial management of the organization) position includes the following steps: 1) the board chair and president & chief executive officer each collect comparable salary information (e.g., salary studies). 2) the board chair makes a recommendation for president & ceo compensation to the executive committee. 3) executive committee members (without a conflict of interest) vote on the recommendation by the board chair for proposed ceo compensation, and a record of the vote is recorded in executive committee minutes.

Form 990, Part VI, Section C, Line 18

Form 990 is available on the hydrocephalus association website at www.hydroassoc.org/annual-reports-and-financials

Form 990, Part VI, Section C, Line 19

The organization's governing documents, conflict of interest policy, and financial statements are available to the public at the organization's office or on the organization's website upon request.

Filing and Contact Details

Filer

Filer Name
Hydrocephalus Association
EIN
94-3000301
Phone
3012023811
Address
6903 ROCKLEDGE DRIVE SUITE 740, NORTH BETHESDA, MD 20817

Signing Officer

Name
Diana Gray
Title
President and CEO
Phone
3012023811
Signed
2025-07-09
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Diana Gray
Formed
1986
Legal Domicile
De
Voting Board Members
20
Independent Board Members
20
Employees
25
Volunteers
1,600

Preparer

Firm
Kositzka Wicks and Company
Address
4405 COX ROAD SUITE 200, GLEN ALLEN, VA 23060
Preparer
Jennica Jardine Whitfield CPA
Phone
8048551200
Supplemental Narrative

Additional Explanations

Form 990, Part III, Line 2

The 18th national conference on hydrocephalus, ha connect, was held in tampa florida july 14-16, 2024. The national conference attracted participants from 46 states. 552 individuals attended the three-day event. The conference featured educational tracks for parents, teens, adults, and individuals living with normal pressure hydrocephalus. There were over 70 educational sessions held with over 80 speakers. The conference featured an interactive exhibit hall to engage attendees. Additional events were hosted around innovation and research.

FORM 990, PART XII, LINE 2C:

The audit committee selects and oversees an independent accounting firm to conduct the audit. No change in the selection method occurred this year.

Financial Statement Notes

PART X, LINE 2:

The association is a qualifying nonprofit organization as defined in section 501(c)(3) of the internal revenue code and the tax statutes of delaware, and therefore is exempt from federal and state income taxes. Accordingly, the accompanying financial statements do not reflect a provision or liability for federal and state income taxes. The association does not believe it has any uncertain tax positions as of december 31, 2024. Fiscal years ending on or after 2021 remain subject to examination by federal and state authorities.

PART XI, LINE 4B - OTHER ADJUSTMENTS:

RETURNED GRANT AWARD

PART XII, LINE 4B - OTHER ADJUSTMENTS:

RETURNED GRANT AWARD

PART V, LINE 4:

The organization uses endowment funds for educational scholarships to young adults with hydrocephalus.

Raw XML AppendixShowing 400 of 1,018 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Desc0RESEARCHTHE HYDROCEPHALUS ASSOCIATION (HA) IS DEDICATED TO ADVANCING HIGH-QUALITY RESEARCH. EACH YEAR THE HA FUNDS TALENTED SCIENTISTS THROUGH DIRECT GRANT FUNDING ENABLING THEM TO LEVERAGE THESE PROJECTS AND SECURE LARGER FEDERAL GRANTS FOR GREATER IMPACT. THE HA FUNDS RESEARCH THAT IS ALIGNED WITH PATIENT-IDENTIFIED PRIORITIES TO IMPROVE UNDERSTANDING OF THE CONDITION, IDENTIFY AND TEST NEW TREATMENTS, MOVE DISCOVERIES TOWARDS CLINICAL USE, ENHANCE DIAGNOSIS, IMPROVE ACCESS TO CARE, AND ULTIMATELY ELEVATE THE QUALITY OF LIFE OF THOSE LIVING WITH HYDROCEPHALUS. GRANT PROGRAMS INCLUDE THE INNOVATOR AWARD, ACCELERATOR AWARD, NEUROPSYCHOLOGY AND COGNITION AWARD, ENGINEERING PRIZE, AND THE NEXT GENERATION AWARD. HA'S IMPACT IS AMPLIFIED THROUGH THE MANY RESEARCH NETWORKS THAT WE SUPPORT: THE HA PATIENT-POWERED INTERACTIVE ENGAGEMENT REGISTRY (HAPPIER), HA NETWORK FOR DISCOVERY SCIENCE (HANDS), HYDROCEPHALUS CLINICAL RESEARCH NETWORK (HCRN), AND ADULT HCRN (AHCRN). HAPPIER PROVIDES PATIENTS AND CAREGIVERS THE OPPORTUNITY TO ENGAGE IN RESEARCH WHILE PROVIDING RESEARCHERS WITH ACCESS TO CRITICAL DATA. HANDS PROVIDES THE CONNECTIONS, TECHNOLOGY, AND TOOLS NEEDED TO SPUR AND SUPPORT INNOVATIVE RESEARCH, WHILE THE PEDIATRIC-FOCUSED HCRN AND ADULT- FOCUSED AHCRN PROVIDE THE STRUCTURE AND EXPERTISE NECESSARY TO EFFICIENTLY AND THOROUGHLY TEST THESE NEW TECHNOLOGIES AND CLINICAL THERAPIES WITH THE HIGHEST CLINICAL STANDARDS. BY FUNDING BASIC, TRANSLATIONAL, AND CLINICAL RESEARCHERS, HA HAS CREATED A PIPELINE TO MOVE RESEARCH FROM THE BENCH TO THE BEDSIDE.
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IRS990/Form990PartVIISectionAGrp/TitleTxt24NATIONAL DIRECTOR OF RESEARCH
IRS990/Form990PartVIISectionAGrp/TitleTxt25NATIONAL DIRECTOR OF MARKETING
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IRS990/MissionDesc0FIND A CURE FOR HYROCEPHALUS AND IMPROVE THE LIVES OF THOSE IMPACTED. WE WILL ACCOMPLISH THIS BY COLLABORATING WITH PATIENTS, CAREGIVERS, RESEARCHERS AND INDUSTRY, RAISING AWARENESS, AND FUNDING INNOVATIVE, HIGH-IMPACT RESEARCH TO PREVENT, TREAT AND CURE HYDROCEPHALUS.
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