Liabilities / Assets
61st percentile
Higher debt load relative to assets than 61% of similar nonprofits.
EIN 94-3000301 • 501(c)3 • North Bethesda, MD
Profile
Raise awareness and fund innovative high impact research to prevent, treat, and ultimately cure hydrocephalus.
Refreshing map…
Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.
Liabilities / Assets
61st percentile
Higher debt load relative to assets than 61% of similar nonprofits.
Liabilities / Revenue
60th percentile
Higher debt load relative to revenue than 60% of similar nonprofits.
Net Margin
12th percentile
Higher net margin than 12% of similar nonprofits.
Top Officer Pay
93rd percentile
Higher top officer pay than 93% of similar nonprofits.
Top officer pay equals 7.4% of source-year revenue.
Asset Growth
10th percentile
Faster asset growth than 10% of similar nonprofits.
Revenue Growth
33rd percentile
Faster revenue growth than 33% of similar nonprofits.
Assets
Down$3,458,025
Down $901,177 (-21%) from 2023
Liabilities
Down$488,203
Down $124,219 (-20%) from 2023
Net Assets
Down$2,969,822
Down $776,958 (-21%) from 2023
Revenue
Down$3,558,664
Down $69,719 (-1.9%) from 2023
Expenses
Up$4,411,991
Up $782,335 (+22%) from 2023
Net Income
Down-$853,327
Down $852,054 (-66933%) from 2023
Most recent year
2024 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.
Find a cure for hydrocephalus and improve the lives of those impacted. We will accomplish this by collaborating with patients, caregivers, researchers and industry, raising awareness, and funding innovative, high-impact research to prevent, treat and cure hydrocephalus.
Find a cure for hydrocephalus and improve the lives of those impacted by the condition.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Investments in Publicly Traded Securities | $2,529,577 | $2,282,221 | ▼ $247,356 |
| Cash and Non-Interest-Bearing Accounts | $1,206,278 | $656,749 | ▼ $549,529 |
| Pledges and Grants Receivable | $254,386 | $210,018 | ▼ $44,368 |
| Prepaid Expenses and Deferred Charges | $97,903 | $120,089 | ▲ $22,186 |
| Intangible Assets | $51,627 | $49,674 | ▼ $1,953 |
| Inventories for Sale or Use | $40,324 | $39,471 | ▼ $853 |
| Land, Buildings, and Equipment, Net | $15,330 | $15,406 | ▲ $76 |
| Accounts Receivable | - | $4,263 | - |
| Total Assets | $4,359,202 | $3,458,025 | ▼ $901,177 |
| Other Assets Total | $163,777 | $80,134 | ▼ $83,643 |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $280,022 | $236,776 | ▼ $43,246 |
| Other Liabilities | $332,400 | $201,427 | ▼ $130,973 |
| Deferred Revenue | - | $50,000 | - |
| Total Liabilities | $612,422 | $488,203 | ▼ $124,219 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $2,532,659 | $1,936,849 | ▼ $595,810 |
| Net Assets With Donor Restrictions | $1,214,121 | $1,032,973 | ▼ $181,148 |
| Total Net Assets Fund Balance | $3,746,780 | $2,969,822 | ▼ $776,958 |
| Total Liabilities and Net Assets / Fund Balance | $4,359,202 | $3,458,025 | ▼ $901,177 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Equipment | $15,406 | $102,949 | $118,355 |
| Other Land Buildings | $0 | $117,595 | $117,595 |
| Period | Beginning | Contrib. | Gain/Loss | Other Uses | End |
|---|---|---|---|---|---|
| 2024 | $91,318 | - | ▲ $13,142 | - | $91,318 |
| 2023 | $79,544 | - | ▲ $11,774 | - | $91,318 |
| 2022 | $91,318 | - | ▼ $11,774 | - | $79,544 |
| 2021 | $91,318 | - | ▲ $1,573 | - | $91,318 |
| 2020 | $91,118 | $200 | ▲ $2,973 | - | $91,318 |
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Diana Gray | President and CEO | FT | $240,680 | $22,619 | $263,299 |
| Amanda Garzon | Chief Operating Officer | FT | $141,772 | $14,247 | $156,019 |
| Linda Riley | National Director of Development | FT | $138,921 | $16,517 | $155,438 |
| Brian Saphier | Treasurer and CFO | FT | $141,557 | $12,399 | $153,956 |
| Judith Froehlich | National Director of Marketing | FT | $130,796 | $14,357 | $145,153 |
| Monica Chau | National Director of Research | FT | $131,153 | $7,521 | $138,674 |
| Name | Title |
|---|---|
| Jason Preston | Chair |
| Hugh Allen | Finance Committee Chair |
| Brett Weitz | Past Chair |
| Lydia Valadez-mcstay | Vice Chair |
| Teresa Mastrangelo | Vice Chair |
| Tessa Van Der Willigen | Vice Chair |
| David Limbrick Md | Director |
| Deitra Matthews Mpa | Director |
| Kipp Coco | Director |
| Michael Siegel Phd | Director |
| Michael Williams Md | Director |
| Mike Muhonen Md | Director |
| Pam Finlayson | Director |
| Peter Finlayson | Director |
| Raymond R Moser Jr Jd | Director |
| Sally Dunkelberger Daniel | Director |
| Sheryl Rosenberg Jd | Director |
| Stephanie Vogt | Director |
| Tammy Lee | Director |
| Tim Harris | Director |
| Contribution Type | Contribution Count | Reported Amount | Valuation Method |
|---|---|---|---|
| Securities Publicly Traded | 6 | $47,087 | Fair Market Value (FMV) |
| Other Non Cash Contri Table | 3 | $7,095 | Fair Market Value (FMV) |
| Total Noncash Contributions | 9 | $54,182 | - |
| Line Item | Amount |
|---|---|
| Salaries, Compensation, and Employee Benefits | $2,248,081 |
| Other Expenses | $1,284,320 |
| Grants and Similar Amounts Paid | $879,590 |
| Total Fundraising Expense | $105,462 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Other Salaries and Wages | $1,200,762 | $131,360 | $43,646 | $1,375,768 |
| Grants to Domestic Orgs | $823,833 | - | - | $823,833 |
| Current Officers, Directors, Trustees, and Key Employees | $410,337 | $159,274 | $3,662 | $573,273 |
| Office Expenses | $336,133 | $11,074 | $10,828 | $358,035 |
| Information Technology | $242,632 | $13,929 | $3,722 | $260,283 |
| Travel | $176,008 | $4 | $3,748 | $179,760 |
| Payroll Taxes | $117,459 | $20,229 | $3,530 | $141,218 |
| Occupancy | $105,602 | $15,691 | $3,480 | $124,773 |
| Other Employee Benefits | $77,576 | $38,735 | $3,424 | $119,735 |
| Fees for Services Other | $98,742 | $12,672 | $4,404 | $115,818 |
| Foreign Grants | $42,757 | - | - | $42,757 |
| Pension Plan Contributions | $34,066 | $2,680 | $1,341 | $38,087 |
| Depreciation Depletion | $28,282 | $4,202 | $932 | $33,416 |
| Advertising | $1,969 | - | $20,716 | $22,685 |
| Fees for Services Accounting | $71 | $20,080 | - | $20,151 |
| Other Expenses | $14,413 | $2,023 | $1,612 | $14,413 |
| Grants to Domestic Individuals | $13,000 | - | - | $13,000 |
| Insurance | $1,159 | $11,286 | $38 | $12,483 |
| All Other Expenses | $2,782 | $8,367 | $264 | $11,413 |
| Fees for Services Legal | $3,823 | $4,140 | $112 | $8,075 |
| Interest | - | $3,778 | - | $3,778 |
| Fees for Services Lobbying | $3,000 | - | - | $3,000 |
| Total Functional Expenses | $3,797,454 | $509,075 | $105,462 | $4,411,991 |
| Line Item | Amount |
|---|---|
| Total Expenses per Form 990 | $4,411,991 |
| Expenses per Audited Statements | $4,402,900 |
| Total Expenses per Audited Statements | $4,402,900 |
| Expenses Not Reported on Financial Statements | $9,091 |
| Other Expense Adjustments | $9,091 |
| Expenses Not Reported on Form 990 | $0 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| University of Utah | Salt Lake City, UT | 501(c)(3) | To Fund the Clinical Research Site for the Adult Hydrocephalus Clinical Research Network | $173,222 |
| BOSTON CHILDREN'S HOSPITAL | Boston, MA | 501(c)(3) | Mechanisms of Hydrocepahlus Research Grant - to Fund Basic Research for the Treatment of Hydrocephalus | $85,000 |
| Johns Hopkins University | Baltimore, MD | 501(c)(3) | Mechanisms of Hydrocepahlus Research Grant - to Fund Basic Research for the Treatment of Hydrocephalus | $85,000 |
| Umass Chan Medical School Foundation | Worcester, MA | 501(c)(3) | Mechanisms of Hydrocepahlus Research Grant - to Fund Basic Research for the Treatment of Hydrocephalus | $85,000 |
| PRIMARY CHILDREN'S FOUNDATION | Salt Lake City, UT | 501(c)(3) | To Fund the Clinical Research Site for the Hydrocephalus Clinical Research Network | $75,000 |
| University of California San Francisco Foundation | San Francisco, CA | 501(c)(3) | Mechanisms of Hydrocepahlus Research Grant - to Fund Basic Research for the Treatment of Hydrocephalus | $75,000 |
| CHILDREN'S HOSPITAL LOS ANGELES | Los Angeles, CA | 501(c)(3) | Mechanisms of Hydrocepahlus Research Grant - to Fund Basic Research for the Treatment of Hydrocephalus | $50,000 |
| Virginia Commonwealth University Foundation | Richmond, VA | 501(c)(3) | Mechanisms of Hydrocepahlus Research Grant - to Fund Basic Research for the Treatment of Hydrocephalus | $50,000 |
| Yale University | New Haven, CT | 501(c)(3) | Mechanisms of Hydrocepahlus Research Grant - to Fund Basic Research for the Treatment of Hydrocephalus | $50,000 |
| University of Colorado Foundation | Denver, CO | 501(c)(3) | Mechanisms of Hydrocepahlus Research Grant - to Fund Basic Research for the Treatment of Hydrocephalus | $49,400 |
| Cleveland Clinic Foundation | Cleveland, OH | 501(c)(3) | To Fund the Clinical Research Site for the Adult Hydrocephalus Clinical Research Network | $46,211 |
| Region | Activity | Services | Offices | Employees | Spending |
|---|---|---|---|---|---|
| North America - Canada and Mexico, But Not the United States | To Fund the Clinical Research Site for the Adult Hydrocephalus Clinical Research Network | - | - | - | $42,757 |
| Line Item | Amount |
|---|---|
| Fundraising Direct Expenses | $159,876 |
| Gaming Gross Income | $57,595 |
| Fundraising Gross Income | $0 |
| Gaming Direct Expenses | $0 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| South Florida Walk | $273,753 | - | $5,028 | - |
| Long Island Walk | $157,452 | - | $6,604 | - |
| Total Events | $1,887,584 | - | $159,876 | $-159,876 |
| Liability | Amount |
|---|---|
| Sba Loan | $147,011 |
| Operating Lease Liability | $54,416 |
“According to our bylaws, the executive committee, unless limited in a resolution of the board, shall have and may exercise all of the authority of the board in the management of the business and affairs of the corporation between meetings of the board.”
“All board members receive an electronic or paper copy of the irs form 990 prior to its submission. Board members must submit any questions or changes to the president & chief executive officer, who submits the changes to the tax preparer.”
“Each year board members get a copy of the conflict of interest policy and a disclosure form to fill out with details of any possible conflicts that may exist.”
“The process for determining the compensation for the president & chief executive officer (who is also in charge of financial management of the organization) position includes the following steps: 1) the board chair and president & chief executive officer each collect comparable salary information (e.g., salary studies). 2) the board chair makes a recommendation for president & ceo compensation to the executive committee. 3) executive committee members (without a conflict of interest) vote on the recommendation by the board chair for proposed ceo compensation, and a record of the vote is recorded in executive committee minutes.”
“Form 990 is available on the hydrocephalus association website at www.hydroassoc.org/annual-reports-and-financials”
“The organization's governing documents, conflict of interest policy, and financial statements are available to the public at the organization's office or on the organization's website upon request.”
“The 18th national conference on hydrocephalus, ha connect, was held in tampa florida july 14-16, 2024. The national conference attracted participants from 46 states. 552 individuals attended the three-day event. The conference featured educational tracks for parents, teens, adults, and individuals living with normal pressure hydrocephalus. There were over 70 educational sessions held with over 80 speakers. The conference featured an interactive exhibit hall to engage attendees. Additional events were hosted around innovation and research.”
“The audit committee selects and oversees an independent accounting firm to conduct the audit. No change in the selection method occurred this year.”
“The association is a qualifying nonprofit organization as defined in section 501(c)(3) of the internal revenue code and the tax statutes of delaware, and therefore is exempt from federal and state income taxes. Accordingly, the accompanying financial statements do not reflect a provision or liability for federal and state income taxes. The association does not believe it has any uncertain tax positions as of december 31, 2024. Fiscal years ending on or after 2021 remain subject to examination by federal and state authorities.”
“RETURNED GRANT AWARD”
“RETURNED GRANT AWARD”
“The organization uses endowment funds for educational scholarships to young adults with hydrocephalus.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
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|---|---|---|
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| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 236776 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 4263 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | FIND A CURE FOR HYDROCEPHALUS AND IMPROVE THE LIVES OF THOSE IMPACTED BY THE CONDITION. |
| IRS990/AddressChangeInd | 0 | X |
| IRS990/AdvertisingGrp/FundraisingAmt | 0 | 20716 |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 1969 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 22685 |
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| IRS990/AllOtherExpensesGrp/FundraisingAmt | 0 | 264 |
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| IRS990/Desc | 0 | RESEARCHTHE HYDROCEPHALUS ASSOCIATION (HA) IS DEDICATED TO ADVANCING HIGH-QUALITY RESEARCH. EACH YEAR THE HA FUNDS TALENTED SCIENTISTS THROUGH DIRECT GRANT FUNDING ENABLING THEM TO LEVERAGE THESE PROJECTS AND SECURE LARGER FEDERAL GRANTS FOR GREATER IMPACT. THE HA FUNDS RESEARCH THAT IS ALIGNED WITH PATIENT-IDENTIFIED PRIORITIES TO IMPROVE UNDERSTANDING OF THE CONDITION, IDENTIFY AND TEST NEW TREATMENTS, MOVE DISCOVERIES TOWARDS CLINICAL USE, ENHANCE DIAGNOSIS, IMPROVE ACCESS TO CARE, AND ULTIMATELY ELEVATE THE QUALITY OF LIFE OF THOSE LIVING WITH HYDROCEPHALUS. GRANT PROGRAMS INCLUDE THE INNOVATOR AWARD, ACCELERATOR AWARD, NEUROPSYCHOLOGY AND COGNITION AWARD, ENGINEERING PRIZE, AND THE NEXT GENERATION AWARD. HA'S IMPACT IS AMPLIFIED THROUGH THE MANY RESEARCH NETWORKS THAT WE SUPPORT: THE HA PATIENT-POWERED INTERACTIVE ENGAGEMENT REGISTRY (HAPPIER), HA NETWORK FOR DISCOVERY SCIENCE (HANDS), HYDROCEPHALUS CLINICAL RESEARCH NETWORK (HCRN), AND ADULT HCRN (AHCRN). HAPPIER PROVIDES PATIENTS AND CAREGIVERS THE OPPORTUNITY TO ENGAGE IN RESEARCH WHILE PROVIDING RESEARCHERS WITH ACCESS TO CRITICAL DATA. HANDS PROVIDES THE CONNECTIONS, TECHNOLOGY, AND TOOLS NEEDED TO SPUR AND SUPPORT INNOVATIVE RESEARCH, WHILE THE PEDIATRIC-FOCUSED HCRN AND ADULT- FOCUSED AHCRN PROVIDE THE STRUCTURE AND EXPERTISE NECESSARY TO EFFICIENTLY AND THOROUGHLY TEST THESE NEW TECHNOLOGIES AND CLINICAL THERAPIES WITH THE HIGHEST CLINICAL STANDARDS. BY FUNDING BASIC, TRANSLATIONAL, AND CLINICAL RESEARCHERS, HA HAS CREATED A PIPELINE TO MOVE RESEARCH FROM THE BENCH TO THE BEDSIDE. |
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| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 25 | 40.00 |
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| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 16 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 17 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 18 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 19 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 16 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 17 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 18 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 19 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 20 | 22619 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 21 | 14247 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 22 | 12399 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 23 | 16517 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 24 | 7521 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 25 | 14357 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | JASON PRESTON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | TERESA MASTRANGELO |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | LYDIA VALADEZ-MCSTAY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | TESSA VAN DER WILLIGEN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | BRETT WEITZ |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | HUGH ALLEN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | RAYMOND R MOSER JR JD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | SALLY DUNKELBERGER DANIEL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | PAM FINLAYSON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | MICHAEL SIEGEL PHD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | DAVID LIMBRICK MD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | MIKE MUHONEN MD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 12 | STEPHANIE VOGT |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 13 | MICHAEL WILLIAMS MD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 14 | DEITRA MATTHEWS MPA |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 15 | SHERYL ROSENBERG JD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 16 | KIPP COCO |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 17 | TAMMY LEE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 18 | PETER FINLAYSON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 19 | TIM HARRIS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 20 | DIANA GRAY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 21 | AMANDA GARZON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 22 | BRIAN SAPHIER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 23 | LINDA RILEY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 24 | MONICA CHAU |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 25 | JUDITH FROEHLICH |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 16 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 17 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 18 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 19 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 20 | 240680 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 21 | 141772 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 22 | 141557 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 23 | 138921 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 24 | 131153 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 25 | 130796 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 16 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 17 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 18 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 19 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 20 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 21 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 22 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 23 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 24 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 25 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | VICE CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | VICE CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | VICE CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | PAST CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | FINANCE COMMITTEE CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 12 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 13 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 14 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 15 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 16 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 17 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 18 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 19 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 20 | PRESIDENT AND CEO |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 21 | CHIEF OPERATING OFFICER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 22 | TREASURER AND CFO |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 23 | NATIONAL DIRECTOR OF DEVELOPMENT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 24 | NATIONAL DIRECTOR OF RESEARCH |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 25 | NATIONAL DIRECTOR OF MARKETING |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 1 |
| IRS990/FormationYr | 0 | 1986 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | 1 |
| IRS990/FundraisingActivitiesInd | 0 | 1 |
| IRS990/FundraisingAmt | 0 | 1887584 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 159876 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 0 |
| IRS990/GainOrLossGrp/OtherAmt | 0 | 91 |
| IRS990/GainOrLossGrp/SecuritiesAmt | 0 | 55803 |
| IRS990/GamingActivitiesInd | 0 | 1 |
| IRS990/GamingDirectExpensesAmt | 0 | 0 |
| IRS990/GamingGrossIncomeAmt | 0 | 57595 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 20 |
| IRS990/GrantAmt | 0 | 866590 |
| IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt | 0 | 13000 |
| IRS990/GrantsToDomesticIndividualsGrp/TotalAmt | 0 | 13000 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 823833 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 823833 |
| IRS990/GrantsToIndividualsInd | 0 | 1 |
| IRS990/GrantsToOrganizationsInd | 0 | 1 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossAmountSalesAssetsGrp/OtherAmt | 0 | 750 |
| IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt | 0 | 193907 |
| IRS990/GrossReceiptsAmt | 0 | 3861276 |
| IRS990/GrossSalesOfInventoryAmt | 0 | 10797 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 1 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 1 |
| IRS990/IndependentVotingMemberCnt | 0 | 20 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 6 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartIIIInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InfoInScheduleOPartXIIInd | 0 | X |
| IRS990/InformationTechnologyGrp/FundraisingAmt | 0 | 3722 |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 13929 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 242632 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 260283 |
| IRS990/InsuranceGrp/FundraisingAmt | 0 | 38 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 11286 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 1159 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 12483 |
| IRS990/IntangibleAssetsGrp/BOYAmt | 0 | 51627 |
| IRS990/IntangibleAssetsGrp/EOYAmt | 0 | 49674 |
| IRS990/InterestGrp/ManagementAndGeneralAmt | 0 | 3778 |
| IRS990/InterestGrp/TotalAmt | 0 | 3778 |
| IRS990/InventoriesForSaleOrUseGrp/BOYAmt | 0 | 40324 |
| IRS990/InventoriesForSaleOrUseGrp/EOYAmt | 0 | 39471 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 124449 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 124449 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/InvestmentsPubTradedSecGrp/BOYAmt | 0 | 2529577 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 2282221 |
| IRS990/IRPDocumentCnt | 0 | 4 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 220544 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 15330 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 15406 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 235950 |
| IRS990/LegalDomicileStateCd | 0 | DE |
| IRS990/LessCostOthBasisSalesExpnssGrp/OtherAmt | 0 | 659 |
| IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt | 0 | 138104 |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 1 |
| IRS990/LocalChaptersInd | 0 | 0 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembersOrStockholdersInd | 0 | 0 |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | FIND A CURE FOR HYROCEPHALUS AND IMPROVE THE LIVES OF THOSE IMPACTED. WE WILL ACCOMPLISH THIS BY COLLABORATING WITH PATIENTS, CAREGIVERS, RESEARCHERS AND INDUSTRY, RAISING AWARENESS, AND FUNDING INNOVATIVE, HIGH-IMPACT RESEARCH TO PREVENT, TREAT AND CURE HYDROCEPHALUS. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
| IRS990/MoreThan5000KToOrgInd | 0 | 1 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 3746780 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 2969822 |
| IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt | 0 | 55894 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | 55894 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | -159876 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | -159876 |
| IRS990/NetIncomeFromGamingGrp/ExclusionAmt | 0 | 57595 |
| IRS990/NetIncomeFromGamingGrp/TotalRevenueColumnAmt | 0 | 57595 |
| IRS990/NetIncomeOrLossGrp/RelatedOrExemptFuncIncomeAmt | 0 | 6824 |
| IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt | 0 | 6824 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | 76369 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 2532659 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 1936849 |
| IRS990/NoncashContributionsAmt | 0 | 54182 |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OccupancyGrp/FundraisingAmt | 0 | 3480 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 15691 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 105602 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 124773 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 10828 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 11074 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 336133 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 358035 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherAssetsTotalGrp/BOYAmt | 0 | 163777 |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 80134 |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 3424 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 38735 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 77576 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 119735 |
| IRS990/OtherExpensesGrp/Desc | 0 | SERVICE CHARGES |
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