Civic Intelligence

Hydrocephalus Association Incorporated

990 • Fiscal year 2022 • EIN 94-3000301

Jan 01, 2022 to Dec 31, 2022 • Filed on Jun 16, 2023

4340 East West Highway 905Bethesda, MD 20814

(301) 202-3811

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

67th percentile

0.19x

Higher debt load relative to assets than 67% of similar nonprofits.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2022

Liabilities / Revenue

66th percentile

0.21x

Higher debt load relative to revenue than 66% of similar nonprofits.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2022

Net Margin

61st percentile

13%

Higher net margin than 61% of similar nonprofits.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2022

Top Officer Pay

93rd percentile

$237,463

Higher top officer pay than 93% of similar nonprofits.

Top officer pay equals 5.7% of source-year revenue.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2022

Asset Growth

76th percentile

19%

Faster asset growth than 76% of similar nonprofits.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2021 to 2022

Revenue Growth

51st percentile

6.1%

Faster revenue growth than 51% of similar nonprofits.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2021 to 2022

Assets

Up

$4,516,368

Up $720,844 (+19%) from 2021

Net Assets

Up

$3,664,249

Up $411,520 (+13%) from 2021

Liabilities

Up

$852,119

Up $309,324 (+57%) from 2021

Revenue

Up

$4,148,543

Up $238,574 (+6.1%) from 2021

Expenses

Up

$3,617,494

Up $872,295 (+32%) from 2021

Net Income

Down

$531,049

Down $633,721 (-54%) from 2021

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$6.0M$4.0M$2.0M$0Assets 2010: $1,675,677Liabilities 2010: $400,956Net Assets 2010: $1,274,7212010Assets 2011: $1,215,491Liabilities 2011: $143,095Net Assets 2011: $1,072,3962011Assets 2012: $1,652,061Liabilities 2012: $194,607Net Assets 2012: $1,457,4542012Assets 2013: $2,771,059Liabilities 2013: $274,841Net Assets 2013: $2,496,2182013Assets 2014: $3,224,755Liabilities 2014: $349,413Net Assets 2014: $2,875,3422014Assets 2015: $3,017,833Liabilities 2015: $69,668Net Assets 2015: $2,948,1652015Assets 2016: $4,082,568Liabilities 2016: $436,998Net Assets 2016: $3,645,5702016Assets 2017: $3,179,190Liabilities 2017: $425,582Net Assets 2017: $2,753,6082017Assets 2018: $3,033,090Liabilities 2018: $617,168Net Assets 2018: $2,415,9222018Assets 2019: $2,356,079Liabilities 2019: $384,999Net Assets 2019: $1,971,0802019Assets 2020: $2,750,883Liabilities 2020: $666,296Net Assets 2020: $2,084,5872020Assets 2021: $3,795,524Liabilities 2021: $542,795Net Assets 2021: $3,252,7292021Assets 2022: $4,516,368Liabilities 2022: $852,119Net Assets 2022: $3,664,2492022Assets 2023: $4,359,202Liabilities 2023: $612,422Net Assets 2023: $3,746,7802023Assets 2024: $3,458,025Liabilities 2024: $488,203Net Assets 2024: $2,969,8222024

Highlighted filing

2022

Assets$4,516,368
Liabilities$852,119
Net Assets$3,664,249

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$6.0M$4.0M$2.0M$0-$2.0MRevenue 2010: $1,867,992Expenses 2010: $1,972,440Net Income 2010: -$104,4482010Revenue 2011: $1,603,636Expenses 2011: $1,805,015Net Income 2011: -$201,3792011Expenses 2012: $1,838,5022012Revenue 2013: $3,461,436Expenses 2013: $2,417,538Net Income 2013: $1,043,8982013Revenue 2014: $3,166,575Expenses 2014: $2,779,006Net Income 2014: $387,5692014Revenue 2015: $3,357,377Expenses 2015: $3,279,047Net Income 2015: $78,3302015Revenue 2016: $4,695,627Expenses 2016: $3,980,661Net Income 2016: $714,9662016Revenue 2017: $3,864,095Expenses 2017: $4,756,366Net Income 2017: -$892,2712017Revenue 2018: $4,569,449Expenses 2018: $4,901,982Net Income 2018: -$332,5332018Revenue 2019: $3,409,455Expenses 2019: $3,857,581Net Income 2019: -$448,1262019Revenue 2020: $3,247,779Expenses 2020: $3,139,397Net Income 2020: $108,3822020Revenue 2021: $3,909,969Expenses 2021: $2,745,199Net Income 2021: $1,164,7702021Revenue 2022: $4,148,543Expenses 2022: $3,617,494Net Income 2022: $531,0492022Revenue 2023: $3,628,383Expenses 2023: $3,629,656Net Income 2023: -$1,2732023Revenue 2024: $3,558,664Expenses 2024: $4,411,991Net Income 2024: -$853,3272024

Highlighted filing

2022

Revenue$4,148,543
Expenses$3,617,494
Net Income$531,049
Jump To
Filing Snapshot
Filing Period
Jan 1, 2022 to Dec 31, 2022
Signed
Jun 16, 2023
Return Version
2022v5.0
Gross Receipts
$4,347,634
Mission and Program Overview

Mission

Find a cure for hydrocephalus and improve the lives of those impacted. We will accomplish this by collaborating with patients, caregivers, researchers and industry, raising awareness, and funding innovative, high-impact research to prevent, treat and cure hydrocephalus.

Find a cure for hydrocephalus and improve the lives of those impacted by the condition.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$785,065$2,264,530▲ $1,479,465
Cash and Non-Interest-Bearing Accounts$2,698,630$1,431,128▼ $1,267,502
Pledges and Grants Receivable$194,680$394,679▲ $199,999
Prepaid Expenses and Deferred Charges$76,190$89,047▲ $12,857
Inventories for Sale or Use$28,689$46,849▲ $18,160
Land, Buildings, and Equipment, Net$12,270$12,823▲ $553
Total Assets$3,795,524$4,516,368▲ $720,844
Other Assets Total$0$277,312▲ $277,312
Liabilities
Other Liabilities$156,188$457,429▲ $301,241
Accounts Payable and Accrued Expenses$237,014$221,391▼ $15,623
Grants Payable$149,593$173,299▲ $23,706
Total Liabilities$542,795$852,119▲ $309,324
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$2,525,456$2,568,262▲ $42,806
Net Assets With Donor Restrictions$727,273$1,095,987▲ $368,714
Total Net Assets Fund Balance$3,252,729$3,664,249▲ $411,520
Total Liabilities and Net Assets / Fund Balance$3,795,524$4,516,368▲ $720,844

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$0$117,595$117,595
Equipment$12,823$86,530$99,353
Other Assets Org$277,312--

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2022$91,318-▼ $11,774-$79,544
2021$91,318-▲ $1,573-$91,318
2020$91,118$200▲ $2,973-$91,318
2019$91,118-▲ $3,862-$91,118
2018$91,118-▲ $456-$91,118
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Diana GrayPresident and CEOFT$216,015$21,448$237,463
Linda RileyDirector of Fund DevelopmeFT$129,220$15,586$144,806
Brian SaphierChief Financial OfficerFT$125,082$15,411$140,493
Amanda GarzonChief Operating OfficerFT$123,921$15,163$139,084
Revenue and Support

Revenue Composition

Contributions and Grants
$4,244,362
Program Service Revenue
$0
Investment Income
$48,407
Other Revenue
$-144,226
All Other Contributions
$2,315,068
Change in Net Assets
$531,049

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded2$530,477Nyse Value
Total Noncash Contributions2$530,477-

Audited Revenue Reconciliation

Revenue per Audited Statements
$4,148,543
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$-119,529
Total Revenue per Audited Statements
$4,029,014
Total Revenue per Form 990
$4,148,543
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$1,738,289
Other Expenses$1,163,895
Grants and Similar Amounts Paid$715,310
Total Fundraising Expense$97,558
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$746,368$108,553$18,866$873,787
Current Officers, Directors, Trustees, and Key Employees$477,339$165,031$19,474$661,844
Grants to Domestic Orgs$637,798--$637,798
Office Expenses$306,380$16,497$11,563$334,440
Information Technology$201,808$15,017$6,372$223,197
Travel$159,463$1,589$1,727$162,779
Fees for Services Other$111,264$11,998$4,853$128,115
Occupancy$95,355$16,982$3,736$116,073
Payroll Taxes$89,219$16,412$2,739$108,370
Other Employee Benefits$38,625$28,535$1,903$69,063
Foreign Grants$66,512--$66,512
Pension Plan Contributions$22,137$2,578$510$25,225
Advertising$2,768$410$19,891$23,069
Other Expenses$16,742$302$5,463$17,044
Fees for Services Accounting-$12,500-$12,500
All Other Expenses$1,971$10,374$38$12,383
Grants to Domestic Individuals$11,000--$11,000
Insurance-$10,221-$10,221
Depreciation Depletion$7,301$1,300$286$8,887
Interest-$3,625-$3,625
Fees for Services Legal$425--$425
Total Functional Expenses$3,041,108$478,828$97,558$3,617,494

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$3,617,494
Total Expenses per Audited Statements$3,617,494
Total Expenses per Form 990$3,617,494
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
University of UtahSalt Lake City, UT501(c)(3)To Fund the Clinical Research Site for the Adult Hydrocephalus Clinical Research Network$145,474
PRIMARY CHILDREN'S FOUNDATIONSalt Lake City, UT501(c)(3)To Fund the Clinical Research Site for the Hydrocephalus Clinical Research Network$100,000
Washington UniversitySt Louis, MO501(c)(3)Mechanisms of Hydrocephalus Research Grant - to Fund Basic Research on Hydrocephalus$100,000
Wayne State UniversityDetroit, MI501(c)(3)Mechanisms of Hydrocepahlus Research Grant - to Fund Basic Research for the Treatment of Hydrocephalus$100,000
BOSTON CHILDREN'S HOSPITALBoston, MA501(c)(3)To Fund the Clinical Research Site for the Hydrocephalus Clinical Research Network$50,000
Stanford UniversityStanford, CA501(c)(3)Mechanisms of Hydrocepahlus Research Grant - to Fund Basic Research for the Treatment of Hydrocephalus$50,000
Cleveland Clinic FoundationCleveland, OH501(c)(3)To Fund the Clinical Research Site for the Adult Hydrocephalus Clinical Research Network$46,211
South Carolina AwardNa, SC501(c)(3)Mechanisms of Hydrocepahlus Research Grant - to Fund Basic Research for the Treatment of Hydrocephalus$46,113

International Summary

Offices
0
Employees
0
Spending
$66,512

International Compliance

Foreign grant records maintained
No
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
North America - Canada and Mexico, But Not the United StatesTo Fund the Clinical Research Site for the Adult Hydrocephalus Clinical Research Network-00$42,757
Africa - LagosMechanisms of Hydrocephalus Research Grant - to Fund Basic Research to Help Diagnose Hydrocephalus-00$23,755
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
Yes
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$193,450
Gaming Gross Income$42,309
Fundraising Gross Income$0
Gaming Direct Expenses$0
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Orange County Walk$165,203-$12,493-
Long Island Walk$137,326-$6,636-
Total Events$1,779,644-$179,365$-179,365
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Operating Lease Liability$303,385
Sba Loan$154,044
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 1A

According to our bylaws, the executive committee, unless limited in a resolution of the board, shall have and may exercise all of the authority of the board in the management of the business and affairs of the corporation between meetings of the board.

Form 990, Part VI, Section B, Line 11B

All board members receive an electronic or paper copy of the irs form 990 prior to its submission. Board members must submit any questions or changes to the president & chief executive officer, who submits the changes to the tax preparer.

Form 990, Part VI, Section B, Line 12C

Each year board members get a copy of the conflict of interest policy and a disclosure form to fill out with details of any possible conflicts that may exist.

Form 990, Part VI, Section B, Line 15A

The process for determining the compensation for the president & chief executive officer (who is also in charge of financial management of the organization) position includes the following steps: 1) the board chair and president & chief executive officer each collect comparable salary information (e.g., salary studies). 2) the board chair makes a recommendation for president & ceo compensation to the executive committee. 3) executive committee members (without a conflict of interest) vote on the recommendation by the board chair for proposed ceo compensation, and a record of the vote is recorded in executive committee minutes.

Form 990, Part VI, Section C, Line 18

Form 990 is available on the hydrocephalus association website at www.hydroassoc.org/annual-reports-and-financials

Form 990, Part VI, Section C, Line 19

The organization's governing documents, conflict of interest policy, and financial statements are available to the public at the organization's office or on the organization's website upon request.

Filing and Contact Details

Filer

Filer Name
Hydrocephalus Association
EIN
94-3000301
Phone
3012023811
Address
4340 EAST WEST HIGHWAY 905, BETHESDA, MD 20814

Signing Officer

Name
Diana Gray
Title
President and CEO
Phone
3012023811
Signed
2023-06-16
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Diana Gray
Formed
1986
Legal Domicile
De
Voting Board Members
21
Independent Board Members
21
Employees
23
Volunteers
1,700

Preparer

Firm
Kositzka Wicks and Company
Address
4405 COX ROAD SUITE 200, GLEN ALLEN, VA 23060
Preparer
Jennica Jardine Whitfield CPA
Phone
8048551200
Supplemental Narrative

Additional Explanations

Form 990, Part III, Line 2

The 17th national conference on hydrocephalus, ha connect, was held in austin texas on july 14-16, 2022. The national conference attracted participants from 39 states. 520 individuals attended the three-day event. The conference featured educational tracks for parents, teens, adults, and individuals living with normal pressure hydrocephalus. There were 80 educational sessions held with 75 speakers. The conference featured an interactive exhibit hall to engage attendees. Additional events were hosted around innovation and research.

FORM 990, PART XII, LINE 2C:

The audit committee selects and oversees an independent accounting firm to conduct the audit. No change in the selection method occurred this year.

Financial Statement Notes

PART X, LINE 2:

The association is a qualifying nonprofit organization as defined in section 501(c)(3) of the internal revenue code and the tax statutes of delaware, and therefore is exempt from federal and state income taxes. Accordingly, the accompanying financial statements do not reflect a provision or liability for federal and state income taxes. The association does not believe it has any uncertain tax positions as of december 31, 2022. Fiscal years ending on or after 2019 remain subject to examination by federal and state authorities.

PART V, LINE 4:

The organization uses endowment funds for educational scholarships to young adults with hydrocephalus.

Raw XML AppendixShowing 400 of 910 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0FIND A CURE FOR HYDROCEPHALUS AND IMPROVE THE LIVES OF THOSE IMPACTED BY THE CONDITION.
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IRS990/Desc0RESEARCHTHE HYDROCEPHALUS ASSOCIATION (HA) REMAINS DEDICATED TO SUPPORTING HIGH QUALITY, HIGH-IMPACT RESEARCH THROUGH CONTINUED SUPPORT OF THE HA PATIENT POWERED INTERACTIVE ENGAGEMENT REGISTRY (HAPPIER), HA NETWORK FOR DISCOVERY SCIENCE (HANDS), HYDROCEPHALUS CLINICAL RESEARCH NETWORK (HCRN), AND ADULT HCRN (AHCRN). HAPPIER PROVIDES PATIENTS AND CAREGIVERS THE OPPORTUNITY TO ENGAGE IN RESEARCH WHILE PROVIDING RESEARCHERS ACCESS TO CRITICAL DATA. HANDS PROVIDES THE CONNECTIONS, TECHNOLOGY, AND TOOLS NEEDED TO SPUR AND SUPPORT INNOVATIVE BASIC AND TRANSLATIONAL RESEARCH, WHILE THE PEDIATRIC FOCUSED HCRN AND ADULT FOCUSED AHCRN PROVIDE THE STRUCTURE AND EXPERTISE NECESSARY TO EFFICIENTLY AND THOROUGHLY TEST THESE NEW TECHNOLOGIES AND CLINICAL THERAPIES WITH THE HIGHEST CLINICAL STANDARDS. BY LINKING BASIC, TRANSLATIONAL, AND CLINICAL RESEARCHERS, HA HAS CREATED A PIPELINE TO MOVE RESEARCH FROM THE BENCH TO THE BEDSIDE.
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IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd10X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd11X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd12X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd13X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd14X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd15X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd16X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd17X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd18X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd19X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd20X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OfficerInd4X
IRS990/Form990PartVIISectionAGrp/OfficerInd5X
IRS990/Form990PartVIISectionAGrp/OfficerInd6X
IRS990/Form990PartVIISectionAGrp/OfficerInd7X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt130
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt140
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt150
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt160
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt170
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt180
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt190
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt200
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt2121448
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt2215411
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt2315163
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt2415586
IRS990/Form990PartVIISectionAGrp/PersonNm0BRETT WEITZ
IRS990/Form990PartVIISectionAGrp/PersonNm1JASON PRESTON
IRS990/Form990PartVIISectionAGrp/PersonNm2TERESA MASTRANGELO
IRS990/Form990PartVIISectionAGrp/PersonNm3RAYMOND R MOSER JR JD
IRS990/Form990PartVIISectionAGrp/PersonNm4LYDIA VALADEZ-MCSTAY
IRS990/Form990PartVIISectionAGrp/PersonNm5TESSA VAN DER WILLIGEN
IRS990/Form990PartVIISectionAGrp/PersonNm6HUGH ALLEN
IRS990/Form990PartVIISectionAGrp/PersonNm7SALLY BALDUS
IRS990/Form990PartVIISectionAGrp/PersonNm8SALLY DUNKELBERGER DANIEL
IRS990/Form990PartVIISectionAGrp/PersonNm9PAM FINLAYSON
IRS990/Form990PartVIISectionAGrp/PersonNm10SUSAN FIORELLA
IRS990/Form990PartVIISectionAGrp/PersonNm11MICHAEL SIEGEL PHD
IRS990/Form990PartVIISectionAGrp/PersonNm12MARK HAMILTON MD
IRS990/Form990PartVIISectionAGrp/PersonNm13DAVID LIMBRICK MD
IRS990/Form990PartVIISectionAGrp/PersonNm14MIKE MUHONEN MD
IRS990/Form990PartVIISectionAGrp/PersonNm15JENNIFER POPE
IRS990/Form990PartVIISectionAGrp/PersonNm16EILEEN RODGER
IRS990/Form990PartVIISectionAGrp/PersonNm17STEPHANIE VOGT
IRS990/Form990PartVIISectionAGrp/PersonNm18MICHAEL WILLIAMS MD
IRS990/Form990PartVIISectionAGrp/PersonNm19DEITRA MATTHEWS MPA
IRS990/Form990PartVIISectionAGrp/PersonNm20SHERYL ROSENBERG JD
IRS990/Form990PartVIISectionAGrp/PersonNm21DIANA GRAY
IRS990/Form990PartVIISectionAGrp/PersonNm22BRIAN SAPHIER
IRS990/Form990PartVIISectionAGrp/PersonNm23AMANDA GARZON
IRS990/Form990PartVIISectionAGrp/PersonNm24LINDA RILEY
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt190
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt200
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt21216015
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt22125082
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt23123921
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt24129220
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt190
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt200
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt210
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt220
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt230
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt240
IRS990/Form990PartVIISectionAGrp/TitleTxt0CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt1VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt2VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt3VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt4VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt5VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt16DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt17DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt18DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt19DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt20DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt21PRESIDENT AND CEO
IRS990/Form990PartVIISectionAGrp/TitleTxt22CHIEF FINANCIAL OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt23CHIEF OPERATING OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt24DIRECTOR OF FUND DEVELOPME
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr01986
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt01929294
IRS990/FundraisingDirectExpensesAmt0193450
IRS990/FundraisingGrossIncomeAmt00
IRS990/GamingActivitiesInd01
IRS990/GamingDirectExpensesAmt00
IRS990/GamingGrossIncomeAmt042309
IRS990/GoverningBodyVotingMembersCnt021
IRS990/GrantAmt0704310
IRS990/GrantsPayableGrp/BOYAmt0149593
IRS990/GrantsPayableGrp/EOYAmt0173299
IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt011000
IRS990/GrantsToDomesticIndividualsGrp/TotalAmt011000
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt0637798
IRS990/GrantsToDomesticOrgsGrp/TotalAmt0637798
IRS990/GrantsToIndividualsInd01
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt04347634
IRS990/GrossSalesOfInventoryAmt012406
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt021
IRS990/IndivRcvdGreaterThan100KCnt04
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt06372
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt015017
IRS990/InformationTechnologyGrp/ProgramServicesAmt0201808
IRS990/InformationTechnologyGrp/TotalAmt0223197
IRS990/InsuranceGrp/ManagementAndGeneralAmt010221
IRS990/InsuranceGrp/TotalAmt010221
IRS990/InterestGrp/ManagementAndGeneralAmt03625
IRS990/InterestGrp/TotalAmt03625
IRS990/InventoriesForSaleOrUseGrp/BOYAmt028689
IRS990/InventoriesForSaleOrUseGrp/EOYAmt046849
IRS990/InvestmentIncomeGrp/ExclusionAmt048407
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt048407
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt0785065
IRS990/InvestmentsPubTradedSecGrp/EOYAmt02264530
IRS990/IRPDocumentCnt06
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt0204125
IRS990/LandBldgEquipBasisNetGrp/BOYAmt012270
IRS990/LandBldgEquipBasisNetGrp/EOYAmt012823
IRS990/LandBldgEquipCostOrOtherBssAmt0216948
IRS990/LegalDomicileStateCd0DE
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd01
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0FIND A CURE FOR HYROCEPHALUS AND IMPORVE THE LIVES OF THOSE IMPACTED. WE WILL ACCOMPLISH THIS BY COLLABORATING WITH PATIENTS, CAREGIVERS, RESEARCHERS AND INDUSTRY, RAISING AWARENESS, AND FUNDING INNOVATIVE, HIGH-IMPACT RESEARCH TO PREVENT, TREAT AND CURE HYDROCEPHALUS.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd01
IRS990/NetAssetsOrFundBalancesBOYAmt03252729
IRS990/NetAssetsOrFundBalancesEOYAmt03664249
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0-193450
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0-193450
IRS990/NetIncomeFromGamingGrp/ExclusionAmt042309
IRS990/NetIncomeFromGamingGrp/TotalRevenueColumnAmt042309
IRS990/NetIncomeOrLossGrp/RelatedOrExemptFuncIncomeAmt06765
IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt06765
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt0-119529
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt02525456
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt02568262
IRS990/NoncashContributionsAmt0530477
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt03736
IRS990/OccupancyGrp/ManagementAndGeneralAmt016982
IRS990/OccupancyGrp/ProgramServicesAmt095355
IRS990/OccupancyGrp/TotalAmt0116073
IRS990/OfficeExpensesGrp/FundraisingAmt011563
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt016497
IRS990/OfficeExpensesGrp/ProgramServicesAmt0306380
IRS990/OfficeExpensesGrp/TotalAmt0334440
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt00
IRS990/OtherAssetsTotalGrp/EOYAmt0277312
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt01903
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt028535
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt038625
IRS990/OtherEmployeeBenefitsGrp/TotalAmt069063
IRS990/OtherExpensesGrp/Desc0SERVICE CHARGES
IRS990/OtherExpensesGrp/Desc1SITE EXPENSES
IRS990/OtherExpensesGrp/Desc2DUES AND SUBSCRIPTIONS
IRS990/OtherExpensesGrp/Desc3PRIZES AND AWARDS
IRS990/OtherExpensesGrp/FundraisingAmt05
IRS990/OtherExpensesGrp/FundraisingAmt1132
IRS990/OtherExpensesGrp/FundraisingAmt25463
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt056280
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt10
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt2624
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt3302
IRS990/OtherExpensesGrp/ProgramServicesAmt0132
IRS990/OtherExpensesGrp/ProgramServicesAmt132659
IRS990/OtherExpensesGrp/ProgramServicesAmt215842
IRS990/OtherExpensesGrp/ProgramServicesAmt316742
IRS990/OtherExpensesGrp/TotalAmt056417
IRS990/OtherExpensesGrp/TotalAmt132791
IRS990/OtherExpensesGrp/TotalAmt221929
IRS990/OtherExpensesGrp/TotalAmt317044
IRS990/OtherLiabilitiesGrp/BOYAmt0156188
IRS990/OtherLiabilitiesGrp/EOYAmt0457429
IRS990/OtherRevenueMiscGrp/BusinessCd0990999
IRS990/OtherRevenueMiscGrp/Desc0MISCELLANEOUS REVENUE
IRS990/OtherRevenueMiscGrp/ExclusionAmt0150
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt0150

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.46$0.49$2.97$3.56$4.41$0.85
2023Summary only. Only limited summary data is available for this year.$4.36$0.61$3.75$3.63$3.63$0.00
2022Detailed filing. Detailed filing data is available for this year.$4.52$0.85$3.66$4.15$3.62$0.53
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.80$0.54$3.25$3.91$2.75$1.16
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.75$0.67$2.08$3.25$3.14$0.11
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.36$0.38$1.97$3.41$3.86$0.45
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.03$0.62$2.42$4.57$4.90$0.33
2017Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.18$0.43$2.75$3.86$4.76$0.89
2016Summary only. Only limited summary data is available for this year.$4.08$0.44$3.65$4.70$3.98$0.71
2015Detailed filing. Detailed filing data is available for this year.$3.02$0.07$2.95$3.36$3.28$0.08
2014Detailed filing. Detailed filing data is available for this year.$3.22$0.35$2.88$3.17$2.78$0.39
2013Summary only. Only limited summary data is available for this year.$2.77$0.27$2.50$3.46$2.42$1.04
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.65$0.19$1.46$1.84
2011Summary only. Only limited summary data is available for this year.$1.22$0.14$1.07$1.60$1.81$0.20
2010Summary only. Only limited summary data is available for this year.$1.68$0.40$1.27$1.87$1.97$0.10
Peer Organizations

Similar nonprofits based on the same Siviq industry and scale cohort. 2022 filings • 501(c)3 • $1M-$5M nonprofits