Civic Intelligence

Hydrocephalus Association Incorporated

990 • Fiscal year 2019 • EIN 94-3000301

Jan 01, 2019 to Dec 31, 2019 • Filed on Jun 23, 2020

Organization ProfileWWW.HYDROASSOC.ORG

View Organization Page

4340 East West Highway No 905Bethesda, MD 20814

(301) 202-3811

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

61st percentile

0.16x

Higher debt load relative to assets than 61% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2019

Liabilities / Revenue

55th percentile

0.11x

Higher debt load relative to revenue than 55% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2019

Net Margin

18th percentile

-13%

Higher net margin than 18% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2019

Top Officer Pay

90th percentile

$204,253

Higher top officer pay than 90% of similar nonprofits.

Top officer pay equals 6.0% of source-year revenue.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2019

Asset Growth

5th percentile

-22%

Faster asset growth than 5% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2018 to 2019

Revenue Growth

12th percentile

-25%

Faster revenue growth than 12% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2018 to 2019

Balance Sheet
Liabilities / Assets61st percentile

Assets

Down

$2,356,079

Down $677,011 (-22%) from 2018

Net Assets

Down

$1,971,080

Down $444,842 (-18%) from 2018

Liabilities

Down

$384,999

Down $232,169 (-38%) from 2018

Revenue And Expenses
Liabilities / Revenue55th percentileNet Margin18th percentile

Revenue

Down

$3,409,455

Down $1,159,994 (-25%) from 2018

Expenses

Down

$3,857,581

Down $1,044,401 (-21%) from 2018

Net Income

Down

-$448,126

Down $115,593 (-35%) from 2018

Historical Trend

Balance Sheet Trend

Asset Growth5th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$6.0M$4.0M$2.0M$0Assets 2010: $1,675,677Liabilities 2010: $400,956Net Assets 2010: $1,274,7212010Assets 2011: $1,215,491Liabilities 2011: $143,095Net Assets 2011: $1,072,3962011Assets 2012: $1,652,061Liabilities 2012: $194,607Net Assets 2012: $1,457,4542012Assets 2013: $2,771,059Liabilities 2013: $274,841Net Assets 2013: $2,496,2182013Assets 2014: $3,224,755Liabilities 2014: $349,413Net Assets 2014: $2,875,3422014Assets 2015: $3,017,833Liabilities 2015: $69,668Net Assets 2015: $2,948,1652015Assets 2016: $4,082,568Liabilities 2016: $436,998Net Assets 2016: $3,645,5702016Assets 2017: $3,179,190Liabilities 2017: $425,582Net Assets 2017: $2,753,6082017Assets 2018: $3,033,090Liabilities 2018: $617,168Net Assets 2018: $2,415,9222018Assets 2019: $2,356,079Liabilities 2019: $384,999Net Assets 2019: $1,971,0802019Assets 2020: $2,750,883Liabilities 2020: $666,296Net Assets 2020: $2,084,5872020Assets 2021: $3,795,524Liabilities 2021: $542,795Net Assets 2021: $3,252,7292021Assets 2022: $4,516,368Liabilities 2022: $852,119Net Assets 2022: $3,664,2492022Assets 2023: $4,359,202Liabilities 2023: $612,422Net Assets 2023: $3,746,7802023Assets 2024: $3,458,025Liabilities 2024: $488,203Net Assets 2024: $2,969,8222024

Highlighted filing

2019

Assets$2,356,079
Liabilities$384,999
Net Assets$1,971,080
Open 2019 Filing

Operations Trend

Revenue Growth12th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$6.0M$4.0M$2.0M$0-$2.0MRevenue 2010: $1,867,992Expenses 2010: $1,972,440Net Income 2010: -$104,4482010Revenue 2011: $1,603,636Expenses 2011: $1,805,015Net Income 2011: -$201,3792011Expenses 2012: $1,838,5022012Revenue 2013: $3,461,436Expenses 2013: $2,417,538Net Income 2013: $1,043,8982013Revenue 2014: $3,166,575Expenses 2014: $2,779,006Net Income 2014: $387,5692014Revenue 2015: $3,357,377Expenses 2015: $3,279,047Net Income 2015: $78,3302015Revenue 2016: $4,695,627Expenses 2016: $3,980,661Net Income 2016: $714,9662016Revenue 2017: $3,864,095Expenses 2017: $4,756,366Net Income 2017: -$892,2712017Revenue 2018: $4,569,449Expenses 2018: $4,901,982Net Income 2018: -$332,5332018Revenue 2019: $3,409,455Expenses 2019: $3,857,581Net Income 2019: -$448,1262019Revenue 2020: $3,247,779Expenses 2020: $3,139,397Net Income 2020: $108,3822020Revenue 2021: $3,909,969Expenses 2021: $2,745,199Net Income 2021: $1,164,7702021Revenue 2022: $4,148,543Expenses 2022: $3,617,494Net Income 2022: $531,0492022Revenue 2023: $3,628,383Expenses 2023: $3,629,656Net Income 2023: -$1,2732023Revenue 2024: $3,558,664Expenses 2024: $4,411,991Net Income 2024: -$853,3272024

Highlighted filing

2019

Revenue$3,409,455
Expenses$3,857,581
Net Income-$448,126
Open 2019 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2019 to Dec 31, 2019
Signed
Jun 23, 2020
Return Version
2019v5.1
Gross Receipts
$3,929,698
Mission and Program Overview

Mission

Find a cure for hydrocephalus and improve the lives of those impacted. We will accomplish this by collaborating with patients, caregivers, researchers and industry, raising awareness, and funding innovative, high-impact research to prevent, treat and cure hydrocephalus.

Find a cure for hydrocephalus and improve the lives of those impacted by the condition.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$1,209,975$1,035,151▼ $174,824
Pledges and Grants Receivable$1,349,313$876,833▼ $472,480
Investments in Publicly Traded Securities$317,527$331,737▲ $14,210
Prepaid Expenses and Deferred Charges$62,386$45,783▼ $16,603
Inventories for Sale or Use$33,709$36,320▲ $2,611
Land, Buildings, and Equipment, Net$51,836$30,255▼ $21,581
Total Assets$3,033,090$2,356,079▼ $677,011
Other Assets Total$8,344$0▼ $8,344
Liabilities
Grants Payable$141,420$196,420▲ $55,000
Accounts Payable and Accrued Expenses$475,748$188,579▼ $287,169
Total Liabilities$617,168$384,999▼ $232,169
Net Assets / Fund Balance
Net Assets With Donor Restrictions$2,377,266$1,457,091▼ $920,175
Net Assets Without Donor Restrictions$38,656$513,989▲ $475,333
Total Net Assets Fund Balance$2,415,922$1,971,080▼ $444,842
Total Liabilities and Net Assets / Fund Balance$3,033,090$2,356,079▼ $677,011

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$7,592$110,003$117,595
Equipment$22,663$60,404$83,067

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2019$91,118-▲ $3,862-$91,118
2018$91,118-▲ $456-$91,118
2017$91,118-▲ $1,564-$91,118
2016$91,118---$91,118
2015$81,118$10,000--$91,118
Compensation and Service Providers
Top Officer Pay90th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Diana GrayPresident and CEOFT$195,982$8,271$204,253
Brian SaphierNational Director of FinanceFT$106,732$4,408$111,140
Amanda GarzonNational Director of Program Services and CommunicFT$101,380$3,882$105,262
Aisha HeathNational Director of DevelopmentFT$100,043$4,085$104,128

Board Members and Trustees

NameTitle
Brett WeitzChair
Aseem ChandraImmediate Past Chair
Jason PrestonVice Chair
Raymond R Moser JrVice Chair
Susan FiorellaVice Chair
Tessa Van Der WilligenVice Chair
BARRETT O'CONNORDirector
Cliff GoldmanDirector
Eileen RodgerDirector
Guy Fish MdDirector
Hugh AllenDirector
Jennifer PopeDirector
John Kestle Md Frcsc FacsDirector
John LawrenceDirector
Lydia Valadez-mcstayDirector
Mark Hamilton MdDirector
Michael Williams MdDirector
Mike Muhonen MdDirector
Pam FinlaysonDirector
Rick SmithDirector
Sally BaldusDirector
Sheryl RosenbergDirector
Teresa MastrangeloDirector
Revenue and Support

Revenue Composition

Contributions and Grants
$3,694,185
Program Service Revenue
$0
Investment Income
$9,588
Other Revenue
$-294,318
All Other Contributions
$1,165,906
Change in Net Assets
$-448,126

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
Yes
Third parties used for noncash contributions
Yes

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded8$148,144Fair Market Value
Total Noncash Contributions8$148,144-

Audited Revenue Reconciliation

Revenue per Audited Statements
$3,409,455
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$43,802
Total Revenue per Audited Statements
$3,453,257
Total Revenue per Form 990
$3,409,455
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$1,566,128
Grants and Similar Amounts Paid$1,358,237
Other Expenses$933,216
Total Fundraising Expense$138,084
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$1,303,480--$1,303,480
Other Salaries and Wages$771,777$280,278$36,678$1,088,733
Information Technology$160,109$33,882$11,347$205,338
Current Officers, Directors, Trustees, and Key Employees$115,831$77,503$2,648$195,982
Office Expenses$73,486$87,033$28,474$188,993
Other Employee Benefits$91,625$54,553$4,485$150,663
Occupancy$73,044$36,251$4,651$113,946
Travel$66,803$17,477$14,986$99,266
Payroll Taxes$65,781$26,782$3,534$96,097
Conferences and Meetings$82,196$8,302$3,423$93,921
Fees for Services Other$65,975$9,126$7,539$82,640
Depreciation Depletion$30,523$11,467$2,000$43,990
Foreign Grants$42,757--$42,757
Pension Plan Contributions$21,074$12,547$1,032$34,653
Fees for Services Accounting-$14,306-$14,306
Grants to Domestic Individuals$12,000--$12,000
All Other Expenses$3,913$4,485$1,792$10,190
Fees for Services Legal-$8,524-$8,524
Other Expenses$3,914$53$892$4,859
Insurance$165$4,642-$4,807
Advertising$1,868$323$146$2,337
Interest-$178-$178
Total Functional Expenses$3,019,574$699,923$138,084$3,857,581

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$3,898,099
Expenses per Audited Statements$3,857,581
Total Expenses per Form 990$3,857,581
Expenses Not Reported on Form 990$40,518
Expenses Not Reported on Financial Statements$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Univeristy of UtahSalt Lake City, UT501(c)(3)To Fund the Clinical Research Site for the Adult Hydrocephalus Clinical Research Network$292,839
PRIMARY CHILDREN'S FOUNDATIONSalt Lake City, UT501(c)(3)To Fund the Clinical Research Site for the Hydrocephalus Clinical Research Network$283,000
Washington UniversitySt Louis, MO501(c)(3)Mechanisms of Hydrocephalus Research Grant - to Fund Basic Research on Hydrocephalus$198,904
Yale UniversityNew Haven, CT501(c)(3)Mechanisms of Hydrocephalus Research Grant - to Fund Basic Research on Hydrocephalus$137,757
Scintillon InstituteSan Diego, CA501(c)(3)Mechanisms of Hydrocephalus Research Grant - to Fund Basic Research on Hydrocephalus$100,000
Boston Childrens HospitalBoston, MA501(c)(3)Mechanisms of Hydrocephalus Research Grant - to Fund Basic Research on Hydrocephalus$99,000
Research Foundation for State University of NyAlbany, NY501(c)(3)Mechanisms of Hydrocephalus Research Grant - to Fund Basic Research on Hydrocephalus$50,000
Univeristy of IowaIowa City, IA501(c)(3)Mechanisms of Hydrocephalus Research Grant - to Fund Basic Research on Hydrocephalus$50,000
University of KentuckyLexington, KY501(c)(3)Mechanisms of Hydrocephalus Research Grant - to Fund Basic Research on Hydrocephalus$50,000
Cleveland Clinic FoundationCleveland, OH501(c)(3)To Fund the Clinical Research Site for the Adult Hydrocephalus Clinical Research Network$40,939

International Summary

Offices
0
Employees
0
Spending
$42,757

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
North America - Canada and Mexico, But Not the United StatesGrant to Support Adult Hydrocephalus Clinical Research Site at University of Calgary-00$42,757
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
Yes
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$372,099
Gaming Gross Income$47,655
Fundraising Gross Income$0
Gaming Direct Expenses$0
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
In Stitches$305,981-$58,495-
Orange County Walk$148,591-$7,964-
Total Events$2,520,723-$372,099$-372,099
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 1

“According to our bylaws, the executive committee, unless limited in a resolution of the board, shall have and may exercise all of the authority of the board in the management of the business and affairs of the corporation between meetings of the board.”

Form 990, Part VI, Section B, Line 11B

“All board members receive an electronic or paper copy of the irs form 990 prior to its submission. Board members must submit any questions or changes to the president & chief executive officer, who submits the changes to the tax preparer.”

Form 990, Part VI, Section B, Line 12C

“Each year board members get a copy of the conflict of interest policy and a disclosure form to fill out with details of any possible conflicts that may exist.”

Form 990, Part VI, Section B, Line 15A

“The process for determining the compensation for the president & chief executive officer (who is also in charge of financial management of the organization) position includes the following steps: 1) the board chair and president & chief executive officer each collect comparable salary information (e.g., salary studies). 2) the board chair makes a recommendation for president & ceo compensation to the executive committee. 3) executive committee members (without a conflict of interest) vote on the recommendation by the board chair for proposed ceo compensation, and a record of the vote is recorded in executive committee minutes.”

Form 990, Part VI, Section C, Line 18

“Form 990 is available on the hydrocephalus association website at http://www.hydroassoc.org/about-us/who-we-are/financial-reports/”

Form 990, Part VI, Section C, Line 19

“The organization's governing documents, conflict of interest policy, and financial statements are available to the public at the organization's office or on the organization's website upon request.”

Filing and Contact Details

Filer

Filer Name
Hydrocephalus Association
EIN
94-3000301
Phone
3012023811
Address
4340 EAST WEST HIGHWAY NO 905, BETHESDA, MD 20814

Signing Officer

Name
Diana Gray
Title
President and CEO
Phone
3012023811
Signed
2020-06-23
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Diana Gray
Formed
1986
Legal Domicile
CA
Voting Board Members
23
Independent Board Members
23
Employees
22
Volunteers
1,700

Preparer

Firm
Kimble
Address
6806 PARAGON PLACE SUITE 250, RICHMOND, VA 23230
Preparer
Fabiola Santana
Phone
8046124380
Supplemental Narrative

Additional Explanations

PART XII, LINE 2C:

“The audit committee selects and oversees an independent acccounting firm to conduct the audit. No change in the selection method occurred this year.”

Financial Statement Notes

PART X, LINE 2:

“The association is a qualifying nonprofit organization as defined in section 501(c)(3) of the internal revenue code and the tax statutes of california, and therefore is exempt from federal and state income taxes. Accordingly, the accompanying financial statements do not reflect a provision or liability for federal and state income taxes. The association does not believe it has any uncertain tax positions as of december 31, 2019. Fiscal years ending on or after 2016 remain subject to examination by federal and state authorities.”

PART V, LINE 4:

“The organization uses endowment funds for educational scholarships to young adults with hydrocephalus.”

Raw XML AppendixShowing 400 of 939 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0FIND A CURE FOR HYDROCEPHALUS AND IMPROVE THE LIVES OF THOSE IMPACTED BY THE CONDITION.
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IRS990/Desc0RESEARCHTHE HYDROCEPHALUS ASSOCIATION (HA) REMAINS DEDICATED TO SUPPORTING HIGH QUALITY, HIGH-IMPACT RESEARCH THROUGH CONTINUED SUPPORT OF THE HA PATIENT POWERED INTERACTIVE ENGAGEMENT REGISTRY (HAPPIER), HA NETWORK FOR DISCOVERY SCIENCE (HANDS), HYDROCEPHALUS CLINICAL RESEARCH NETWORK (HCRN), AND ADULT HCRN (AHCRN). HAPPIER PROVIDES PATIENTS AND CAREGIVERS THE OPPORTUNITY TO ENGAGE IN RESEARCH WHILE PROVIDING RESEARCHERS ACCESS TO CRITICAL DATA. HANDS PROVIDES THE CONNECTIONS, TECHNOLOGY, AND TOOLS NEEDED TO SPUR AND SUPPORT INNOVATIVE BASIC AND TRANSLATIONAL RESEARCH, WHILE THE PEDIATRIC FOCUSED HCRN AND ADULT FOCUSED AHCRN PROVIDE THE STRUCTURE AND EXPERTISE NECESSARY TO EFFICIENTLY AND THOROUGHLY TEST THESE NEW TECHNOLOGIES AND CLINICAL THERAPIES WITH THE HIGHEST CLINICAL STANDARDS. BY LINKING BASIC, TRANSLATIONAL, AND CLINICAL RESEARCHERS, HA HAS CREATED A PIPELINE TO MOVE RESEARCH FROM THE BENCH TO THE BEDSIDE.
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IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd14X
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IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd17X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd18X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd19X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd20X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd21X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd22X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OfficerInd4X
IRS990/Form990PartVIISectionAGrp/OfficerInd5X
IRS990/Form990PartVIISectionAGrp/OfficerInd6X
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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt130
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt140
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt150
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt160
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt170
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt180
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt190
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt200
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt210
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt220
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt238271
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt244408
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt253882
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt264085
IRS990/Form990PartVIISectionAGrp/PersonNm0BRETT WEITZ
IRS990/Form990PartVIISectionAGrp/PersonNm1RICK SMITH
IRS990/Form990PartVIISectionAGrp/PersonNm2HUGH ALLEN
IRS990/Form990PartVIISectionAGrp/PersonNm3SALLY BALDUS
IRS990/Form990PartVIISectionAGrp/PersonNm4PAM FINLAYSON
IRS990/Form990PartVIISectionAGrp/PersonNm5GUY FISH MD
IRS990/Form990PartVIISectionAGrp/PersonNm6CLIFF GOLDMAN
IRS990/Form990PartVIISectionAGrp/PersonNm7MARK HAMILTON MD
IRS990/Form990PartVIISectionAGrp/PersonNm8JOHN KESTLE MD FRCSC FACS
IRS990/Form990PartVIISectionAGrp/PersonNm9JOHN LAWRENCE
IRS990/Form990PartVIISectionAGrp/PersonNm10TERESA MASTRANGELO
IRS990/Form990PartVIISectionAGrp/PersonNm11BARRETT O'CONNOR
IRS990/Form990PartVIISectionAGrp/PersonNm12JENNIFER POPE
IRS990/Form990PartVIISectionAGrp/PersonNm13EILEEN RODGER
IRS990/Form990PartVIISectionAGrp/PersonNm14MICHAEL WILLIAMS MD
IRS990/Form990PartVIISectionAGrp/PersonNm15ASEEM CHANDRA
IRS990/Form990PartVIISectionAGrp/PersonNm16RAYMOND R MOSER JR
IRS990/Form990PartVIISectionAGrp/PersonNm17SUSAN FIORELLA
IRS990/Form990PartVIISectionAGrp/PersonNm18JASON PRESTON
IRS990/Form990PartVIISectionAGrp/PersonNm19TESSA VAN DER WILLIGEN
IRS990/Form990PartVIISectionAGrp/PersonNm20MIKE MUHONEN MD
IRS990/Form990PartVIISectionAGrp/PersonNm21SHERYL ROSENBERG
IRS990/Form990PartVIISectionAGrp/PersonNm22LYDIA VALADEZ-MCSTAY
IRS990/Form990PartVIISectionAGrp/PersonNm23DIANA GRAY
IRS990/Form990PartVIISectionAGrp/PersonNm24BRIAN SAPHIER
IRS990/Form990PartVIISectionAGrp/PersonNm25AMANDA GARZON
IRS990/Form990PartVIISectionAGrp/PersonNm26AISHA HEATH
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt190
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt200
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt210
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt220
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt23195982
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt24106732
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt25101380
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt26100043
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt190
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt200
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt210
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt220
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt230
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt240
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt250
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt260
IRS990/Form990PartVIISectionAGrp/TitleTxt0CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt1DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt2DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15IMMEDIATE PAST CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt16VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt17VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt18VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt19VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt20DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt21DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt22DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt23PRESIDENT AND CEO
IRS990/Form990PartVIISectionAGrp/TitleTxt24NATIONAL DIRECTOR OF FINANCE
IRS990/Form990PartVIISectionAGrp/TitleTxt25NATIONAL DIRECTOR OF PROGRAM SERVICES AND COMMUNIC
IRS990/Form990PartVIISectionAGrp/TitleTxt26NATIONAL DIRECTOR OF DEVELOPMENT
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr01986
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt02520723
IRS990/FundraisingDirectExpensesAmt0372099
IRS990/FundraisingGrossIncomeAmt00
IRS990/GainOrLossGrp/SecuritiesAmt0-1368
IRS990/GamingActivitiesInd01
IRS990/GamingDirectExpensesAmt00
IRS990/GamingGrossIncomeAmt047655
IRS990/GoverningBodyVotingMembersCnt023
IRS990/GovernmentGrantsAmt07556
IRS990/GrantAmt01345196
IRS990/GrantsPayableGrp/BOYAmt0141420
IRS990/GrantsPayableGrp/EOYAmt0196420
IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt012000
IRS990/GrantsToDomesticIndividualsGrp/TotalAmt012000
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt01303480
IRS990/GrantsToDomesticOrgsGrp/TotalAmt01303480
IRS990/GrantsToIndividualsInd01
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt0146776
IRS990/GrossReceiptsAmt03929698
IRS990/GrossSalesOfInventoryAmt013976
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt023
IRS990/IndivRcvdGreaterThan100KCnt04
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt011347
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt033882
IRS990/InformationTechnologyGrp/ProgramServicesAmt0160109
IRS990/InformationTechnologyGrp/TotalAmt0205338
IRS990/InsuranceGrp/ManagementAndGeneralAmt04642
IRS990/InsuranceGrp/ProgramServicesAmt0165
IRS990/InsuranceGrp/TotalAmt04807
IRS990/InterestGrp/ManagementAndGeneralAmt0178
IRS990/InterestGrp/TotalAmt0178
IRS990/InventoriesForSaleOrUseGrp/BOYAmt033709
IRS990/InventoriesForSaleOrUseGrp/EOYAmt036320
IRS990/InvestmentIncomeGrp/ExclusionAmt010956
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt010956
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt0317527
IRS990/InvestmentsPubTradedSecGrp/EOYAmt0331737
IRS990/IRPDocumentCnt08
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt0170407
IRS990/LandBldgEquipBasisNetGrp/BOYAmt051836
IRS990/LandBldgEquipBasisNetGrp/EOYAmt030255
IRS990/LandBldgEquipCostOrOtherBssAmt0200662
IRS990/LegalDomicileStateCd0CA
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt0148144
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd01
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0FIND A CURE FOR HYDROCEPHALUS AND IMPROVE THE LIVES OF THOSE IMPACTED. WE WILL ACCOMPLISH THIS BY COLLABORATING WITH PATIENTS, CAREGIVERS, RESEARCHERS AND INDUSTRY, RAISING AWARENESS, AND FUNDING INNOVATIVE, HIGH-IMPACT RESEARCH TO PREVENT, TREAT AND CURE HYDROCEPHALUS.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd01
IRS990/NetAssetsOrFundBalancesBOYAmt02415922
IRS990/NetAssetsOrFundBalancesEOYAmt01971080
IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt0-1368
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt0-1368
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0-372099
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0-372099
IRS990/NetIncomeFromGamingGrp/ExclusionAmt047655
IRS990/NetIncomeFromGamingGrp/TotalRevenueColumnAmt047655
IRS990/NetIncomeOrLossGrp/RelatedOrExemptFuncIncomeAmt013976
IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt013976
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt03284
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt038656
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt0513989
IRS990/NoncashContributionsAmt0149151
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt04651
IRS990/OccupancyGrp/ManagementAndGeneralAmt036251
IRS990/OccupancyGrp/ProgramServicesAmt073044
IRS990/OccupancyGrp/TotalAmt0113946
IRS990/OfficeExpensesGrp/FundraisingAmt028474
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt087033
IRS990/OfficeExpensesGrp/ProgramServicesAmt073486
IRS990/OfficeExpensesGrp/TotalAmt0188993
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt08344
IRS990/OtherAssetsTotalGrp/EOYAmt00
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt04485
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt054553
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt091625
IRS990/OtherEmployeeBenefitsGrp/TotalAmt0150663
IRS990/OtherExpensesGrp/Desc0DUES AND SUBSCRIPTIONS

Document Assets

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Filings

Displayed year

2019 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$2,356,079
Liabilities
$384,999
Net assets
$1,971,080
Revenue
$3,409,455
Expenses
$3,857,581
Net income
-$448,126
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.46$0.49$2.97$3.56$4.41$0.85
2023Summary only. Only limited summary data is available for this year.$4.36$0.61$3.75$3.63$3.63$0.00
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$4.52$0.85$3.66$4.15$3.62$0.53
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.80$0.54$3.25$3.91$2.75$1.16
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.75$0.67$2.08$3.25$3.14$0.11
2019Detailed filing. Detailed filing data is available for this year.$2.36$0.38$1.97$3.41$3.86$0.45
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.03$0.62$2.42$4.57$4.90$0.33
2017Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.18$0.43$2.75$3.86$4.76$0.89
2016Summary only. Only limited summary data is available for this year.$4.08$0.44$3.65$4.70$3.98$0.71
2015Detailed filing. Detailed filing data is available for this year.$3.02$0.07$2.95$3.36$3.28$0.08
2014Detailed filing. Detailed filing data is available for this year.$3.22$0.35$2.88$3.17$2.78$0.39
2013Summary only. Only limited summary data is available for this year.$2.77$0.27$2.50$3.46$2.42$1.04
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.65$0.19$1.46$1.84
2011Summary only. Only limited summary data is available for this year.$1.22$0.14$1.07$1.60$1.81$0.20
2010Summary only. Only limited summary data is available for this year.$1.68$0.40$1.27$1.87$1.97$0.10