Liabilities / Assets
58th percentile
Higher debt load relative to assets than 58% of similar nonprofits.
990 • Fiscal year 2016 • EIN 91-1780467
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
58th percentile
Higher debt load relative to assets than 58% of similar nonprofits.
Liabilities / Revenue
65th percentile
Higher debt load relative to revenue than 65% of similar nonprofits.
Net Margin
11th percentile
Higher net margin than 11% of similar nonprofits.
Top Officer Pay
85th percentile
Higher top officer pay than 85% of similar nonprofits.
Top officer pay equals 17.1% of source-year revenue.
Asset Growth
11th percentile
Faster asset growth than 11% of similar nonprofits.
Revenue Growth
22nd percentile
Faster revenue growth than 22% of similar nonprofits.
Assets
Down$748,335
Down $150,031 (-17%) from 2015
Net Assets
Down$690,518
Down $153,623 (-18%) from 2015
Liabilities
Up$57,817
Up $3,592 (+6.6%) from 2015
Revenue
Down$529,517
Down $83,763 (-14%) from 2015
Expenses
Up$683,140
Up $202,982 (+42%) from 2015
Net Income
Down-$153,623
Down $286,745 (-215%) from 2015
To support and advocate for individuals and their families diagnosed with rare neuroimmune disorders of the central nervous system; to promote awareness and to empower patients, families, clinicians and scientists through education programs and publications and to advance the scientific understanding of and therapy development for these rare disorders by supporting the training of clinicians-scientists dedicated to these rare disorders and by supporting basic and clinical research. Our goal is to improve the quality of life of individuals with rare neuroimmune disorders.
To support and advocate for individuals and their families diagnosed with rare neuro-immune disorders of the central nervous system; to promote awareness and to empower patients, families, clinicians and scientists through education programs and publications and to advance the scientific understanding of and therapy development for these rare disorders by supporting the training of clinicians-scientists dedicated to these rare diseases and by supporting basic and clinical research. Our goal is to improve the quality of life of individuals with rare neuro-immune disorders.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Savings and Temporary Cash Investments | $625,059 | $519,637 | ▼ $105,422 |
| Cash and Non-Interest-Bearing Accounts | $116,992 | $138,436 | ▲ $21,444 |
| Pledges and Grants Receivable | $85,382 | $0 | ▼ $85,382 |
| Investments in Publicly Traded Securities | $54,289 | $61,994 | ▲ $7,705 |
| Accounts Receivable | $12,713 | $22,167 | ▲ $9,454 |
| Land, Buildings, and Equipment, Net | $3,931 | $6,101 | ▲ $2,170 |
| Other Notes and Loans Receivable, Net | $0 | $0 | → $0 |
| Receivable From Disqualified Prsn | $0 | $0 | → $0 |
| Receivables From Officers Etc | $0 | $0 | → $0 |
| Investments Other Securities | $0 | $0 | → $0 |
| Investments Program Related | $0 | $0 | → $0 |
| Intangible Assets | $0 | $0 | → $0 |
| Inventories for Sale or Use | $0 | $0 | → $0 |
| Prepaid Expenses and Deferred Charges | - | $0 | - |
| Total Assets | $898,366 | $748,335 | ▼ $150,031 |
| Other Assets Total | $0 | $0 | → $0 |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $40,540 | $47,885 | ▲ $7,345 |
| Unsecured Notes Loans Payable | $13,685 | $9,932 | ▼ $3,753 |
| Total Liabilities | $54,225 | $57,817 | ▲ $3,592 |
| Net Assets / Fund Balance | |||
| Unrestricted Net Assets | $486,216 | $477,917 | ▼ $8,299 |
| Temporarily Rstr Net Assets | $357,925 | $212,601 | ▼ $145,324 |
| Permanently Rstr Net Assets | $0 | $0 | → $0 |
| Total Net Assets Fund Balance | $844,141 | $690,518 | ▼ $153,623 |
| Total Liabilities and Net Assets / Fund Balance | $898,366 | $748,335 | ▼ $150,031 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Buildings | $0 | $0 | $0 |
| Other Land Buildings | $0 | $0 | $0 |
| Land | $0 | - | $0 |
| Equipment | $6,101 | $12,241 | $0 |
| Leasehold Improvements | $0 | $0 | $0 |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Chitra Krishnan | Executive Director | FT | $90,640 | $90,640 |
| Name | Title |
|---|---|
| Sanford J Siegel | President |
| Linda Malecky | Treasurer, Vice President |
| Anjali Forber-Pratt | Director |
| Barbara Sattler | Director |
| Benjamin M Greenberg MD | Director |
| Bruce L Downey | Director |
| Carlos A Pardo-Villamizar MD | Director |
| Douglas A Kerr MD PHD | Director |
| Jason Robbins | Director |
| Peter C Johnson | Director |
| James Timothy Lubin | IT Director |
| Deborah Capen | Secretary |
| Line Item | Amount |
|---|---|
| Other Expenses | $265,938 |
| Salaries, Compensation, and Employee Benefits | $251,058 |
| Grants and Similar Amounts Paid | $166,144 |
| Total Fundraising Expense | $73,244 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Grants to Domestic Orgs | $166,144 | - | - | $166,144 |
| Other Salaries and Wages | $118,090 | $2,925 | $9,407 | $130,422 |
| Current Officers, Directors, Trustees, and Key Employees | $67,980 | $13,596 | $9,064 | $90,640 |
| Fees for Services Management | $43,325 | $5,587 | $15,216 | $64,128 |
| Fees for Services Other | $23,191 | $6,462 | $0 | $29,653 |
| Other Expenses | $0 | $0 | $26,603 | $26,603 |
| Payroll Taxes | $13,943 | $1,328 | $1,384 | $16,655 |
| Information Technology | $4,916 | $3,349 | $6,608 | $14,873 |
| All Other Expenses | $100 | $14,538 | $0 | $14,638 |
| Travel | $8,575 | $443 | $3,611 | $12,629 |
| Conferences and Meetings | $12,254 | $0 | $0 | $12,254 |
| Pension Plan Contributions | $9,135 | $870 | $907 | $10,912 |
| Insurance | $0 | $4,023 | $0 | $4,023 |
| Office Expenses | $783 | $2,133 | $0 | $2,916 |
| Other Employee Benefits | $2,033 | $194 | $202 | $2,429 |
| Depreciation Depletion | $1,836 | $191 | $242 | $2,269 |
| Total Functional Expenses | $6,402 | $0 | $26,603 | $33,005 |
| Line Item | Amount |
|---|---|
| Expenses per Audited Statements | $683,140 |
| Total Expenses per Audited Statements | $683,140 |
| Total Expenses per Form 990 | $683,140 |
| Expenses Not Reported on Financial Statements | $0 |
| Expenses Not Reported on Form 990 | $0 |
| Other Expense Adjustments | $0 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| UT Southwestern Dept of Neurology | Dallas, TX | 170 | This grant will be used to fund staff in order to obtain pretreatment blood or CSF specimens from rare neuro-immune disease patients at Children's Health in Dallas for the UT Southwestern Neuroimmunology Biorepository. These specimens can be used in pediatric research studies and biomarker discovery projects. | $30,000 |
| John Hopkins Univ School of Medicine | Baltimore, MD | 170 | This grant is for developing research strategies for assessment and improvement of the specificity of etiological clinical diagnosis and laboratory validation of possible serological biomarkers for TM based on previous studies supported by the TMA. | $25,000 |
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| TMA Gala Dinner and Walk | $82,820 | $82,820 | $17,542 | $65,278 |
| Massachusetts Walk Run N' Roll | $27,935 | $27,935 | $0 | $27,935 |
| Total Events | $142,675 | $142,675 | $33,005 | $109,670 |
| Line Item | Beginning | End | Change |
|---|---|---|---|
| Receivables from Disqualified Persons | $0 | $0 | → $0 |
| Receivables from Officers, Directors, Trustees, and Key Employees | $0 | $0 | → $0 |
“990 Reviewed by officers and independent auditor”
“Board review of conflict per policy”
“Compensation process for Executive Director. Numerous organizations of similar size and program criteria were contacted and interviewed regarding appropriate compensation for Executive Director. OANA was also consulted for similar information. Compensation process for key employees is to do a market survey of similar organizations advertising for positions with similar responsibilities.”
“The Governing Documents and Conflict of Interest Policy are not publicly available. Financial statements are posted on the website, are available by request, and are also available on Guidestar.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 40540 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 47885 |
| IRS990/AccountsReceivableGrp/BOYAmt | 0 | 12713 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 22167 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | TO SUPPORT AND ADVOCATE FOR INDIVIDUALS AND THEIR FAMILIES DIAGNOSED WITH RARE NEURO-IMMUNE DISORDERS OF THE CENTRAL NERVOUS SYSTEM; TO PROMOTE AWARENESS AND TO EMPOWER PATIENTS, FAMILIES, CLINICIANS AND SCIENTISTS THROUGH EDUCATION PROGRAMS AND PUBLICATIONS AND TO ADVANCE THE SCIENTIFIC UNDERSTANDING OF AND THERAPY DEVELOPMENT FOR THESE RARE DISORDERS BY SUPPORTING THE TRAINING OF CLINICIANS-SCIENTISTS DEDICATED TO THESE RARE DISEASES AND BY SUPPORTING BASIC AND CLINICAL RESEARCH. OUR GOAL IS TO IMPROVE THE QUALITY OF LIFE OF INDIVIDUALS WITH RARE NEURO-IMMUNE DISORDERS. |
| IRS990/AdvertisingGrp/FundraisingAmt | 0 | 0 |
| IRS990/AdvertisingGrp/ManagementAndGeneralAmt | 0 | 0 |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 0 |
| IRS990/AllOtherContributionsAmt | 0 | 378027 |
| IRS990/AllOtherExpensesGrp/FundraisingAmt | 0 | 0 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 14538 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 100 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 14638 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 1 |
| IRS990/AuditCommitteeInd | 0 | 1 |
| IRS990/BackupWthldComplianceInd | 0 | 1 |
| IRS990/BenefitsToMembersGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/BenefitsToMembersGrp/TotalAmt | 0 | 0 |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | Linda Malecky |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 2154999335 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 1787 Sutter Parkway |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | Powell |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | OH |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 43065 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOfficerEntInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 116992 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 138436 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 9064 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 13596 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 67980 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 90640 |
| IRS990/CompDisqualPersonsGrp/FundraisingAmt | 0 | 0 |
| IRS990/CompDisqualPersonsGrp/ManagementAndGeneralAmt | 0 | 0 |
| IRS990/CompDisqualPersonsGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/CompDisqualPersonsGrp/TotalAmt | 0 | 0 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 1 |
| IRS990/CompensationProcessOtherInd | 0 | 1 |
| IRS990/ConferencesMeetingsGrp/FundraisingAmt | 0 | 0 |
| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | 0 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 12254 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 12254 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 1 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/ContriRptFundraisingEventAmt | 0 | 141984 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 520011 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 166144 |
| IRS990/CYInvestmentIncomeAmt | 0 | 9119 |
| IRS990/CYOtherExpensesAmt | 0 | 265938 |
| IRS990/CYOtherRevenueAmt | 0 | 0 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 387 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | -153623 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 251058 |
| IRS990/CYTotalExpensesAmt | 0 | 683140 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 73244 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 529517 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 0 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 0 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/DepreciationDepletionGrp/FundraisingAmt | 0 | 242 |
| IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt | 0 | 191 |
| IRS990/DepreciationDepletionGrp/ProgramServicesAmt | 0 | 1836 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 2269 |
| IRS990/Desc | 0 | The TMA publishes a quarterly newsletter that is distributed to its membership. The newsletters contain articles written by physicians that focus on rare neuroimmunologic disorders as well as the most effective treatments for symptom management. Regular updates that relate information about new treatments and research are also included. The TMA maintains an extensive website with educational materials that include specific symptom and condition information for rare neuroimmunologic diseases; podcasts with physicians, blogs written by medical professionals as well as TMA members; and archives of all past newsletters. The website also facilitates support contracts between patients and their families through support groups and social media contacts. |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 0 |
| IRS990/DonatedServicesAndUseFcltsAmt | 0 | 0 |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 0 |
| IRS990/EmployeeCnt | 0 | 5 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | 1 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 230223 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 0 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FederatedCampaignsAmt | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/FundraisingAmt | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesLegalGrp/FundraisingAmt | 0 | 0 |
| IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt | 0 | 0 |
| IRS990/FeesForServicesLegalGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesLobbyingGrp/FundraisingAmt | 0 | 0 |
| IRS990/FeesForServicesLobbyingGrp/ManagementAndGeneralAmt | 0 | 0 |
| IRS990/FeesForServicesLobbyingGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/FeesForServicesLobbyingGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesManagementGrp/FundraisingAmt | 0 | 15216 |
| IRS990/FeesForServicesManagementGrp/ManagementAndGeneralAmt | 0 | 5587 |
| IRS990/FeesForServicesManagementGrp/ProgramServicesAmt | 0 | 43325 |
| IRS990/FeesForServicesManagementGrp/TotalAmt | 0 | 64128 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 0 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 6462 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 23191 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 29653 |
| IRS990/FeesForServicesProfFundraising/FundraisingAmt | 0 | 0 |
| IRS990/FeesForServicesProfFundraising/TotalAmt | 0 | 0 |
| IRS990/FeesForSrvcInvstMgmntFeesGrp/FundraisingAmt | 0 | 0 |
| IRS990/FeesForSrvcInvstMgmntFeesGrp/ManagementAndGeneralAmt | 0 | 0 |
| IRS990/FeesForSrvcInvstMgmntFeesGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/FeesForSrvcInvstMgmntFeesGrp/TotalAmt | 0 | 0 |
| IRS990/ForeignActivitiesInd | 0 | 0 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignGrantsGrp/ProgramServicesAmt | 0 | 0 |
| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 20 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 20 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 20 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 20 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 2 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 2 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 2 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 2 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 2 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 5 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 2 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 11 | 2 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 12 | 50 |
| IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 10 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 11 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 12 | X |
| IRS990/Form990PartVIISectionAGrp/KeyEmployeeInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/KeyEmployeeInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | Sanford J Siegel |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | Deborah Capen |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | James Timothy Lubin |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | Linda Malecky |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | Bruce L Downey |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | Benjamin M Greenberg MD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | Douglas A Kerr MD PHD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | Carlos A Pardo-Villamizar MD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | Barbara Sattler |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | Jason Robbins |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | Anjali Forber-Pratt |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | Peter C Johnson |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 12 | Chitra Krishnan |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 12 | 90640 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | President |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | Secretary |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | IT Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | Treasurer, Vice President |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 12 | Executive Director |
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| IRS990/FormationYr | 0 | 1996 |
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| IRS990/FSAuditedInd | 0 | 1 |
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| IRS990/FundraisingAmt | 0 | 141984 |
| IRS990/GainOrLossGrp/OtherAmt | 0 | 0 |
| IRS990/GainOrLossGrp/SecuritiesAmt | 0 | 0 |
| IRS990/GamingActivitiesInd | 0 | 0 |
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| IRS990/GrantsToDomesticIndividualsGrp/TotalAmt | 0 | 0 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 166144 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 166144 |
| IRS990/GrantsToIndividualsInd | 0 | 0 |
| IRS990/GrantsToOrganizationsInd | 0 | 1 |
| IRS990/GrantToRelatedPersonInd | 0 | 1 |
| IRS990/GrossReceiptsAmt | 0 | 529517 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 0 |
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| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 3349 |
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| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 14873 |
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| IRS990/MissionDesc | 0 | TO SUPPORT AND ADVOCATE FOR INDIVIDUALS AND THEIR FAMILIES DIAGNOSED WITH RARE NEURO-IMMUNE DISORDERS OF THE CENTRAL NERVOUS SYSTEM; TO PROMOTE AWARENESS AND TO EMPOWER PATIENTS, FAMILIES, CLINICIANS AND SCIENTISTS THROUGH EDUCATION PROGRAMS AND PUBLICATIONS AND TO ADVANCE THE SCIENTIFIC UNDERSTANDING OF AND THERAPY DEVELOPMENT FOR THESE RARE DISORDERS BY SUPPORTING THE TRAINING OF CLINICIANS-SCIENTISTS DEDICATED TO THESE RARE DISEASES AND BY SUPPORTING BASIC AND CLINICAL RESEARCH. OUR GOAL IS TO IMPROVE THE QUALITY OF LIFE OF INDIVIDUALS WITH RARE NEURO-IMMUNE DISORDERS. |
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| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 2429 |
| IRS990/OtherExpensesGrp/Desc | 0 | TMA Summer Family Camp |
| IRS990/OtherExpensesGrp/Desc | 1 | Education and Member Support |
| IRS990/OtherExpensesGrp/Desc | 2 | Postage |
| IRS990/OtherExpensesGrp/Desc | 3 | Fundraising Event Expenses |
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| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 34149 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 9957 |
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| IRS990/OtherExpensesGrp/TotalAmt | 1 | 34149 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 11877 |
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| IRS990/OthNotesLoansReceivableNetGrp/EOYAmt | 0 | 0 |
| IRS990/OwnWebsiteInd | 0 | X |
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| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 1328 |
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| IRS990/PrincipalOfficerNm | 0 | Sanford J Siegel |
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| IRS990/ProgramServiceRevenueGrp/BusinessCd | 0 | 813212 |
| IRS990/ProgramServiceRevenueGrp/Desc | 0 | Symposium Event Fee |
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| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | The TMA partners with the Center for Courageous Kids (CCK) in Scottsville, KY to hold an annual summer camp for children (ages 5 - 17) and their families who have been impacted by these rare neuroimmunologic diseases. The entire week of camp is offered to these children and their families free of charge and allows these children to experience the joys of camp and connect with others who experience the same symptoms and conditions. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 58721 |
| IRS990/ProgSrvcAccomActy2Grp/GrantAmt | 0 | 0 |
| IRS990/ProgSrvcAccomActy2Grp/RevenueAmt | 0 | 19718 |
| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | The TMA provides research grants to medical institutions for work on understanding of treatments for these neuroimmunologic diseases. The third James T. Lubin Fellowship was awarded in 2015 with training completed in 2016. This fellowship supports the post-residency training of a clinician at an academic medical facility, who is committed to a career in academic medicine with a specialization in rare neuroimmunologic diseases and research. Two additional JTL Fellowships were awarded in 2016. The TMA is also providing support to participating medical centers by assisting in the recruitment of pediatric patients to take part in the CAPTURE (Collaborative Assessment of Pediatric Transverse Myelitis: Understand, Reveal, Educate) study funded by PCORI. The study is designed to assess the current state of Pediatric TM (including AFM or Acute Flaccid Myelitis) in terms of diagnosis, treatment and outcomes. |
| IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt | 0 | 263393 |
| IRS990/ProgSrvcAccomActy3Grp/GrantAmt | 0 | 166144 |
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Displayed year
2016 • Form 990Detailed filing. Detailed filing data is available for this year.
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