Civic Intelligence

Siegel Rare Neuroimmune Association

990 • Fiscal year 2016 • EIN 91-1780467

Jan 01, 2016 to Dec 31, 2016 • Filed on Nov 13, 2017

1787 Sutter ParkwayPowell, OH 43065

(855) 380-3330

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

58th percentile

0.08x

Higher debt load relative to assets than 58% of similar nonprofits.

2016 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2016

Liabilities / Revenue

65th percentile

0.11x

Higher debt load relative to revenue than 65% of similar nonprofits.

2016 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2016

Net Margin

11th percentile

-29%

Higher net margin than 11% of similar nonprofits.

2016 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2016

Top Officer Pay

85th percentile

$90,640

Higher top officer pay than 85% of similar nonprofits.

Top officer pay equals 17.1% of source-year revenue.

2016 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2016

Asset Growth

11th percentile

-17%

Faster asset growth than 11% of similar nonprofits.

2016 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2015 to 2016

Revenue Growth

22nd percentile

-14%

Faster revenue growth than 22% of similar nonprofits.

2016 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2015 to 2016

Assets

Down

$748,335

Down $150,031 (-17%) from 2015

Net Assets

Down

$690,518

Down $153,623 (-18%) from 2015

Liabilities

Up

$57,817

Up $3,592 (+6.6%) from 2015

Revenue

Down

$529,517

Down $83,763 (-14%) from 2015

Expenses

Up

$683,140

Up $202,982 (+42%) from 2015

Net Income

Down

-$153,623

Down $286,745 (-215%) from 2015

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$2.0M$1.5M$1.0M$500K$0Assets 2011: $661,433Liabilities 2011: $733Net Assets 2011: $660,7002011Assets 2012: $580,639Liabilities 2012: $3,169Net Assets 2012: $577,4702012Assets 2013: $545,675Liabilities 2013: $17,988Net Assets 2013: $527,6872013Assets 2014: $740,305Liabilities 2014: $29,286Net Assets 2014: $711,0192014Assets 2015: $898,366Liabilities 2015: $54,225Net Assets 2015: $844,1412015Assets 2016: $748,335Liabilities 2016: $57,817Net Assets 2016: $690,5182016Assets 2017: $612,200Liabilities 2017: $107,553Net Assets 2017: $504,6472017Assets 2018: $699,946Liabilities 2018: $120,185Net Assets 2018: $579,7612018Assets 2019: $675,082Liabilities 2019: $154,805Net Assets 2019: $520,2772019Assets 2020: $776,844Liabilities 2020: $81,446Net Assets 2020: $695,3982020Assets 2021: $1,538,757Liabilities 2021: $110,589Net Assets 2021: $1,428,1682021Assets 2022: $1,636,191Liabilities 2022: $85,987Net Assets 2022: $1,550,2042022Assets 2023: $1,723,037Liabilities 2023: $127,786Net Assets 2023: $1,595,2512023Assets 2024: $1,638,076Liabilities 2024: $164,084Net Assets 2024: $1,473,9922024

Highlighted filing

2016

Assets$748,335
Liabilities$57,817
Net Assets$690,518

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$2.0M$1.5M$1.0M$500K$0-$500KExpenses 2011: $119,5462011Expenses 2012: $289,2202012Revenue 2013: $396,411Expenses 2013: $446,195Net Income 2013: -$49,7842013Revenue 2014: $619,001Expenses 2014: $435,669Net Income 2014: $183,3322014Revenue 2015: $613,280Expenses 2015: $480,158Net Income 2015: $133,1222015Revenue 2016: $529,517Expenses 2016: $683,140Net Income 2016: -$153,6232016Revenue 2017: $691,880Expenses 2017: $877,751Net Income 2017: -$185,8712017Revenue 2018: $792,264Expenses 2018: $717,150Net Income 2018: $75,1142018Revenue 2019: $906,729Expenses 2019: $966,213Net Income 2019: -$59,4842019Revenue 2020: $752,124Expenses 2020: $577,003Net Income 2020: $175,1212020Revenue 2021: $1,415,891Expenses 2021: $683,121Net Income 2021: $732,7702021Revenue 2022: $1,218,351Expenses 2022: $1,096,315Net Income 2022: $122,0362022Revenue 2023: $1,270,268Expenses 2023: $1,225,221Net Income 2023: $45,0472023Revenue 2024: $1,493,618Expenses 2024: $1,614,877Net Income 2024: -$121,2592024

Highlighted filing

2016

Revenue$529,517
Expenses$683,140
Net Income-$153,623
Jump To
Filing Snapshot
Filing Period
Jan 1, 2016 to Dec 31, 2016
Signed
Nov 13, 2017
Return Version
2016v3.0
Gross Receipts
$529,517
Mission and Program Overview

Mission

To support and advocate for individuals and their families diagnosed with rare neuroimmune disorders of the central nervous system; to promote awareness and to empower patients, families, clinicians and scientists through education programs and publications and to advance the scientific understanding of and therapy development for these rare disorders by supporting the training of clinicians-scientists dedicated to these rare disorders and by supporting basic and clinical research. Our goal is to improve the quality of life of individuals with rare neuroimmune disorders.

To support and advocate for individuals and their families diagnosed with rare neuro-immune disorders of the central nervous system; to promote awareness and to empower patients, families, clinicians and scientists through education programs and publications and to advance the scientific understanding of and therapy development for these rare disorders by supporting the training of clinicians-scientists dedicated to these rare diseases and by supporting basic and clinical research. Our goal is to improve the quality of life of individuals with rare neuro-immune disorders.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$625,059$519,637▼ $105,422
Cash and Non-Interest-Bearing Accounts$116,992$138,436▲ $21,444
Pledges and Grants Receivable$85,382$0▼ $85,382
Investments in Publicly Traded Securities$54,289$61,994▲ $7,705
Accounts Receivable$12,713$22,167▲ $9,454
Land, Buildings, and Equipment, Net$3,931$6,101▲ $2,170
Other Notes and Loans Receivable, Net$0$0→ $0
Receivable From Disqualified Prsn$0$0→ $0
Receivables From Officers Etc$0$0→ $0
Investments Other Securities$0$0→ $0
Investments Program Related$0$0→ $0
Intangible Assets$0$0→ $0
Inventories for Sale or Use$0$0→ $0
Prepaid Expenses and Deferred Charges-$0-
Total Assets$898,366$748,335▼ $150,031
Other Assets Total$0$0→ $0
Liabilities
Accounts Payable and Accrued Expenses$40,540$47,885▲ $7,345
Unsecured Notes Loans Payable$13,685$9,932▼ $3,753
Total Liabilities$54,225$57,817▲ $3,592
Net Assets / Fund Balance
Unrestricted Net Assets$486,216$477,917▼ $8,299
Temporarily Rstr Net Assets$357,925$212,601▼ $145,324
Permanently Rstr Net Assets$0$0→ $0
Total Net Assets Fund Balance$844,141$690,518▼ $153,623
Total Liabilities and Net Assets / Fund Balance$898,366$748,335▼ $150,031

Asset Categories

AssetBook ValueDepreciationBasis
Buildings$0$0$0
Other Land Buildings$0$0$0
Land$0-$0
Equipment$6,101$12,241$0
Leasehold Improvements$0$0$0
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseTotal
Chitra KrishnanExecutive DirectorFT$90,640$90,640

Board Members and Trustees

Revenue and Support

Revenue Composition

Contributions and Grants
$520,011
Program Service Revenue
$387
Investment Income
$9,119
Other Revenue
$0
All Other Contributions
$378,027
Change in Net Assets
$-153,623

Audited Revenue Reconciliation

Revenue per Audited Statements
$529,517
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$0
Other Revenue Adjustments
$0
Total Revenue per Audited Statements
$529,517
Total Revenue per Form 990
$529,517
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$265,938
Salaries, Compensation, and Employee Benefits$251,058
Grants and Similar Amounts Paid$166,144
Total Fundraising Expense$73,244
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$166,144--$166,144
Other Salaries and Wages$118,090$2,925$9,407$130,422
Current Officers, Directors, Trustees, and Key Employees$67,980$13,596$9,064$90,640
Fees for Services Management$43,325$5,587$15,216$64,128
Fees for Services Other$23,191$6,462$0$29,653
Other Expenses$0$0$26,603$26,603
Payroll Taxes$13,943$1,328$1,384$16,655
Information Technology$4,916$3,349$6,608$14,873
All Other Expenses$100$14,538$0$14,638
Travel$8,575$443$3,611$12,629
Conferences and Meetings$12,254$0$0$12,254
Pension Plan Contributions$9,135$870$907$10,912
Insurance$0$4,023$0$4,023
Office Expenses$783$2,133$0$2,916
Other Employee Benefits$2,033$194$202$2,429
Depreciation Depletion$1,836$191$242$2,269
Total Functional Expenses$6,402$0$26,603$33,005

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$683,140
Total Expenses per Audited Statements$683,140
Total Expenses per Form 990$683,140
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
Other Expense Adjustments$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
UT Southwestern Dept of NeurologyDallas, TX170This grant will be used to fund staff in order to obtain pretreatment blood or CSF specimens from rare neuro-immune disease patients at Children's Health in Dallas for the UT Southwestern Neuroimmunology Biorepository. These specimens can be used in pediatric research studies and biomarker discovery projects.$30,000
John Hopkins Univ School of MedicineBaltimore, MD170This grant is for developing research strategies for assessment and improvement of the specificity of etiological clinical diagnosis and laboratory validation of possible serological biomarkers for TM based on previous studies supported by the TMA.$25,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
TMA Gala Dinner and Walk$82,820$82,820$17,542$65,278
Massachusetts Walk Run N' Roll$27,935$27,935$0$27,935
Total Events$142,675$142,675$33,005$109,670
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons$0$0→ $0
Receivables from Officers, Directors, Trustees, and Key Employees$0$0→ $0
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

990 Reviewed by officers and independent auditor

Form 990, Part VI, Section B, Line 12C

Board review of conflict per policy

Form 990, Part VI, Section B, Line 15

Compensation process for Executive Director. Numerous organizations of similar size and program criteria were contacted and interviewed regarding appropriate compensation for Executive Director. OANA was also consulted for similar information. Compensation process for key employees is to do a market survey of similar organizations advertising for positions with similar responsibilities.

Form 990, Part VI, Section C, Line 19

The Governing Documents and Conflict of Interest Policy are not publicly available. Financial statements are posted on the website, are available by request, and are also available on Guidestar.

Filing and Contact Details

Filer

Filer Name
The Transverse Myelitis Association
EIN
91-1780467
Phone
8553803330
Address
1787 Sutter Parkway, Powell, OH 43065

Signing Officer

Name
Linda Malecky
Title
Treasurer
Phone
2154999335
Signed
2017-11-13

Organization Details

Principal Officer
Sanford J Siegel
Formed
1996
Legal Domicile
Wa
Voting Board Members
13
Independent Board Members
3
Employees
5
Volunteers
150
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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0TO SUPPORT AND ADVOCATE FOR INDIVIDUALS AND THEIR FAMILIES DIAGNOSED WITH RARE NEURO-IMMUNE DISORDERS OF THE CENTRAL NERVOUS SYSTEM; TO PROMOTE AWARENESS AND TO EMPOWER PATIENTS, FAMILIES, CLINICIANS AND SCIENTISTS THROUGH EDUCATION PROGRAMS AND PUBLICATIONS AND TO ADVANCE THE SCIENTIFIC UNDERSTANDING OF AND THERAPY DEVELOPMENT FOR THESE RARE DISORDERS BY SUPPORTING THE TRAINING OF CLINICIANS-SCIENTISTS DEDICATED TO THESE RARE DISEASES AND BY SUPPORTING BASIC AND CLINICAL RESEARCH. OUR GOAL IS TO IMPROVE THE QUALITY OF LIFE OF INDIVIDUALS WITH RARE NEURO-IMMUNE DISORDERS.
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IRS990/Desc0The TMA publishes a quarterly newsletter that is distributed to its membership. The newsletters contain articles written by physicians that focus on rare neuroimmunologic disorders as well as the most effective treatments for symptom management. Regular updates that relate information about new treatments and research are also included. The TMA maintains an extensive website with educational materials that include specific symptom and condition information for rare neuroimmunologic diseases; podcasts with physicians, blogs written by medical professionals as well as TMA members; and archives of all past newsletters. The website also facilitates support contracts between patients and their families through support groups and social media contacts.
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IRS990/Form990PartVIISectionAGrp/PersonNm3Linda Malecky
IRS990/Form990PartVIISectionAGrp/PersonNm4Bruce L Downey
IRS990/Form990PartVIISectionAGrp/PersonNm5Benjamin M Greenberg MD
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IRS990/Form990PartVIISectionAGrp/PersonNm11Peter C Johnson
IRS990/Form990PartVIISectionAGrp/PersonNm12Chitra Krishnan
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt1290640
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/TitleTxt0President
IRS990/Form990PartVIISectionAGrp/TitleTxt1Secretary
IRS990/Form990PartVIISectionAGrp/TitleTxt2IT Director
IRS990/Form990PartVIISectionAGrp/TitleTxt3Treasurer, Vice President
IRS990/Form990PartVIISectionAGrp/TitleTxt4Director
IRS990/Form990PartVIISectionAGrp/TitleTxt5Director
IRS990/Form990PartVIISectionAGrp/TitleTxt6Director
IRS990/Form990PartVIISectionAGrp/TitleTxt7Director
IRS990/Form990PartVIISectionAGrp/TitleTxt8Director
IRS990/Form990PartVIISectionAGrp/TitleTxt9Director
IRS990/Form990PartVIISectionAGrp/TitleTxt10Director
IRS990/Form990PartVIISectionAGrp/TitleTxt11Director
IRS990/Form990PartVIISectionAGrp/TitleTxt12Executive Director
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr01996
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt0141984
IRS990/GainOrLossGrp/OtherAmt00
IRS990/GainOrLossGrp/SecuritiesAmt00
IRS990/GamingActivitiesInd00
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IRS990/GovernmentGrantsAmt00
IRS990/GrantAmt00
IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt00
IRS990/GrantsToDomesticIndividualsGrp/TotalAmt00
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IRS990/GrantsToDomesticOrgsGrp/TotalAmt0166144
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd01
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IRS990/IncludeFIN48FootnoteInd00
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IRS990/IncmFromInvestBondProceedsGrp/UnrelatedBusinessRevenueAmt00
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt03
IRS990/IndivRcvdGreaterThan100KCnt00
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt06608
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt03349
IRS990/InformationTechnologyGrp/ProgramServicesAmt04916
IRS990/InformationTechnologyGrp/TotalAmt014873
IRS990/InsuranceGrp/FundraisingAmt00
IRS990/InsuranceGrp/ManagementAndGeneralAmt04023
IRS990/InsuranceGrp/ProgramServicesAmt00
IRS990/InsuranceGrp/TotalAmt04023
IRS990/IntangibleAssetsGrp/BOYAmt00
IRS990/IntangibleAssetsGrp/EOYAmt00
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IRS990/InterestGrp/ManagementAndGeneralAmt00
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IRS990/InterestGrp/TotalAmt00
IRS990/InventoriesForSaleOrUseGrp/BOYAmt00
IRS990/InventoriesForSaleOrUseGrp/EOYAmt00
IRS990/InvestmentExpenseAmt00
IRS990/InvestmentIncomeGrp/ExclusionAmt04598
IRS990/InvestmentIncomeGrp/RelatedOrExemptFuncIncomeAmt04521
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt09119
IRS990/InvestmentIncomeGrp/UnrelatedBusinessRevenueAmt00
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsOtherSecuritiesGrp/BOYAmt00
IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt00
IRS990/InvestmentsProgramRelatedGrp/BOYAmt00
IRS990/InvestmentsProgramRelatedGrp/EOYAmt00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt054289
IRS990/InvestmentsPubTradedSecGrp/EOYAmt061994
IRS990/IRPDocumentCnt00
IRS990/IRPDocumentW2GCnt00
IRS990/JointCostsInd0X
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IRS990/LandBldgEquipBasisNetGrp/BOYAmt03931
IRS990/LandBldgEquipBasisNetGrp/EOYAmt06101
IRS990/LandBldgEquipCostOrOtherBssAmt018342
IRS990/LegalDomicileStateCd0WA
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembershipDuesAmt00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0TO SUPPORT AND ADVOCATE FOR INDIVIDUALS AND THEIR FAMILIES DIAGNOSED WITH RARE NEURO-IMMUNE DISORDERS OF THE CENTRAL NERVOUS SYSTEM; TO PROMOTE AWARENESS AND TO EMPOWER PATIENTS, FAMILIES, CLINICIANS AND SCIENTISTS THROUGH EDUCATION PROGRAMS AND PUBLICATIONS AND TO ADVANCE THE SCIENTIFIC UNDERSTANDING OF AND THERAPY DEVELOPMENT FOR THESE RARE DISORDERS BY SUPPORTING THE TRAINING OF CLINICIANS-SCIENTISTS DEDICATED TO THESE RARE DISEASES AND BY SUPPORTING BASIC AND CLINICAL RESEARCH. OUR GOAL IS TO IMPROVE THE QUALITY OF LIFE OF INDIVIDUALS WITH RARE NEURO-IMMUNE DISORDERS.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt0844141
IRS990/NetAssetsOrFundBalancesEOYAmt0690518
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt00
IRS990/NoncashContributionsAmt010237
IRS990/NondeductibleContributionsInd01
IRS990/NondeductibleContriDisclInd01
IRS990/OccupancyGrp/FundraisingAmt00
IRS990/OccupancyGrp/ManagementAndGeneralAmt00
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IRS990/OccupancyGrp/TotalAmt00
IRS990/OfficeExpensesGrp/FundraisingAmt00
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt02133
IRS990/OfficeExpensesGrp/ProgramServicesAmt0783
IRS990/OfficeExpensesGrp/TotalAmt02916
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
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IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt0202
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt0194
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt02033
IRS990/OtherEmployeeBenefitsGrp/TotalAmt02429
IRS990/OtherExpensesGrp/Desc0TMA Summer Family Camp
IRS990/OtherExpensesGrp/Desc1Education and Member Support
IRS990/OtherExpensesGrp/Desc2Postage
IRS990/OtherExpensesGrp/Desc3Fundraising Event Expenses
IRS990/OtherExpensesGrp/FundraisingAmt00
IRS990/OtherExpensesGrp/FundraisingAmt10
IRS990/OtherExpensesGrp/FundraisingAmt20
IRS990/OtherExpensesGrp/FundraisingAmt326603
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt00
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt10
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt21920
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt30
IRS990/OtherExpensesGrp/ProgramServicesAmt035926
IRS990/OtherExpensesGrp/ProgramServicesAmt134149
IRS990/OtherExpensesGrp/ProgramServicesAmt29957
IRS990/OtherExpensesGrp/ProgramServicesAmt30
IRS990/OtherExpensesGrp/TotalAmt035926
IRS990/OtherExpensesGrp/TotalAmt134149
IRS990/OtherExpensesGrp/TotalAmt211877
IRS990/OtherExpensesGrp/TotalAmt326603
IRS990/OtherRevenueTotalAmt00
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt09407
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt02925
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0118090
IRS990/OtherSalariesAndWagesGrp/TotalAmt0130422
IRS990/OtherWebsiteInd0X
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IRS990/OthNotesLoansReceivableNetGrp/EOYAmt00
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PaymentsToAffiliatesGrp/FundraisingAmt00
IRS990/PaymentsToAffiliatesGrp/ManagementAndGeneralAmt00
IRS990/PaymentsToAffiliatesGrp/ProgramServicesAmt00
IRS990/PaymentsToAffiliatesGrp/TotalAmt00
IRS990/PayrollTaxesGrp/FundraisingAmt01384
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt01328
IRS990/PayrollTaxesGrp/ProgramServicesAmt013943
IRS990/PayrollTaxesGrp/TotalAmt016655
IRS990/PensionPlanContributionsGrp/FundraisingAmt0907
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt0870
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt09135
IRS990/PensionPlanContributionsGrp/TotalAmt010912
IRS990/PermanentlyRstrNetAssetsGrp/BOYAmt00
IRS990/PermanentlyRstrNetAssetsGrp/EOYAmt00
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt085382
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt00
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt00
IRS990/PrincipalOfficerNm0Sanford J Siegel
IRS990/PriorPeriodAdjustmentsAmt00
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0813212
IRS990/ProgramServiceRevenueGrp/Desc0Symposium Event Fee
IRS990/ProgramServiceRevenueGrp/ExclusionAmt00
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt0387
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt0387
IRS990/ProgramServiceRevenueGrp/UnrelatedBusinessRevenueAmt00
IRS990/ProgSrvcAccomActy2Grp/Desc0The TMA partners with the Center for Courageous Kids (CCK) in Scottsville, KY to hold an annual summer camp for children (ages 5 - 17) and their families who have been impacted by these rare neuroimmunologic diseases. The entire week of camp is offered to these children and their families free of charge and allows these children to experience the joys of camp and connect with others who experience the same symptoms and conditions.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt058721
IRS990/ProgSrvcAccomActy2Grp/GrantAmt00
IRS990/ProgSrvcAccomActy2Grp/RevenueAmt019718
IRS990/ProgSrvcAccomActy3Grp/Desc0The TMA provides research grants to medical institutions for work on understanding of treatments for these neuroimmunologic diseases. The third James T. Lubin Fellowship was awarded in 2015 with training completed in 2016. This fellowship supports the post-residency training of a clinician at an academic medical facility, who is committed to a career in academic medicine with a specialization in rare neuroimmunologic diseases and research. Two additional JTL Fellowships were awarded in 2016. The TMA is also providing support to participating medical centers by assisting in the recruitment of pediatric patients to take part in the CAPTURE (Collaborative Assessment of Pediatric Transverse Myelitis: Understand, Reveal, Educate) study funded by PCORI. The study is designed to assess the current state of Pediatric TM (including AFM or Acute Flaccid Myelitis) in terms of diagnosis, treatment and outcomes.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt0263393
IRS990/ProgSrvcAccomActy3Grp/GrantAmt0166144

Document Assets

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Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.64$0.16$1.47$1.49$1.61$0.12
2023Summary only. Only limited summary data is available for this year.$1.72$0.13$1.60$1.27$1.23$0.05
2022Summary only. Only limited summary data is available for this year.$1.64$0.09$1.55$1.22$1.10$0.12
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.54$0.11$1.43$1.42$0.68$0.73
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.78$0.08$0.70$0.75$0.58$0.18
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.68$0.15$0.52$0.91$0.97$0.06
2018Summary only. Only limited summary data is available for this year.$0.70$0.12$0.58$0.79$0.72$0.08
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.61$0.11$0.50$0.69$0.88$0.19
2016Detailed filing. Detailed filing data is available for this year.$0.75$0.06$0.69$0.53$0.68$0.15
2015XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.90$0.05$0.84$0.61$0.48$0.13
2014Detailed filing. Detailed filing data is available for this year.$0.74$0.03$0.71$0.62$0.44$0.18
2013Detailed filing. Detailed filing data is available for this year.$0.55$0.02$0.53$0.40$0.45$0.05
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.58$0.00$0.58$0.29
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.66$0.00$0.66$0.12
Peer Organizations

Similar nonprofits based on the same Siviq industry and scale cohort. 2016 filings • 501(c)3 • $500k-$1M nonprofits