Civic Intelligence

Siegel Rare Neuroimmune Association

990 • Fiscal year 2012 • EIN 91-1780467

Jan 01, 2012 to Dec 31, 2012 • Filed on Jul 30, 2013

Organization Profilewww.wearesrna.org
1787 Sutter Parkway43065-8806
Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

31st percentile

0.01x

Higher debt load relative to assets than 31% of similar nonprofits.

2012 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2012

Liabilities / Revenue

Score unavailable

No value available

Liabilities-to-revenue requires both liabilities and revenue on this filing.

Source year 2012

Net Margin

Score unavailable

No value available

Net margin requires both revenue and expenses on this filing.

Source year 2012

Top Officer Pay

Score unavailable

No value available

This filing does not contain officer compensation rows.

Source year 2012

Asset Growth

15th percentile

-12%

Faster asset growth than 15% of similar nonprofits.

2012 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2011 to 2012

Revenue Growth

Score unavailable

No value available

No valid filing value is available for this score.

Balance Sheet
Liabilities / Assets31st percentile

Assets

Down

$580,639

Down $80,794 (-12%) from 2011

Net Assets

Down

$577,470

Down $83,230 (-13%) from 2011

Liabilities

Up

$3,169

Up $2,436 (+332%) from 2011

Revenue And Expenses
Liabilities / RevenueScore unavailableNet MarginScore unavailable

Revenue

-

No earlier filing loaded for comparison.

Expenses

Up

$289,220

Up $169,674 (+142%) from 2011

Net Income

-

No earlier filing loaded for comparison.

Historical Trend

Balance Sheet Trend

Asset Growth15th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$2.0M$1.5M$1.0M$500K$0Assets 2011: $661,433Liabilities 2011: $733Net Assets 2011: $660,7002011Assets 2012: $580,639Liabilities 2012: $3,169Net Assets 2012: $577,4702012Assets 2013: $545,675Liabilities 2013: $17,988Net Assets 2013: $527,6872013Assets 2014: $740,305Liabilities 2014: $29,286Net Assets 2014: $711,0192014Assets 2015: $898,366Liabilities 2015: $54,225Net Assets 2015: $844,1412015Assets 2016: $748,335Liabilities 2016: $57,817Net Assets 2016: $690,5182016Assets 2017: $612,200Liabilities 2017: $107,553Net Assets 2017: $504,6472017Assets 2018: $699,946Liabilities 2018: $120,185Net Assets 2018: $579,7612018Assets 2019: $675,082Liabilities 2019: $154,805Net Assets 2019: $520,2772019Assets 2020: $776,844Liabilities 2020: $81,446Net Assets 2020: $695,3982020Assets 2021: $1,538,757Liabilities 2021: $110,589Net Assets 2021: $1,428,1682021Assets 2022: $1,636,191Liabilities 2022: $85,987Net Assets 2022: $1,550,2042022Assets 2023: $1,723,037Liabilities 2023: $127,786Net Assets 2023: $1,595,2512023Assets 2024: $1,638,076Liabilities 2024: $164,084Net Assets 2024: $1,473,9922024

Highlighted filing

2012

Assets$580,639
Liabilities$3,169
Net Assets$577,470
Open 2012 Filing

Operations Trend

Revenue GrowthScore unavailable

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$2.0M$1.5M$1.0M$500K$0-$500KExpenses 2011: $119,5462011Expenses 2012: $289,2202012Revenue 2013: $396,411Expenses 2013: $446,195Net Income 2013: -$49,7842013Revenue 2014: $619,001Expenses 2014: $435,669Net Income 2014: $183,3322014Revenue 2015: $613,280Expenses 2015: $480,158Net Income 2015: $133,1222015Revenue 2016: $529,517Expenses 2016: $683,140Net Income 2016: -$153,6232016Revenue 2017: $691,880Expenses 2017: $877,751Net Income 2017: -$185,8712017Revenue 2018: $792,264Expenses 2018: $717,150Net Income 2018: $75,1142018Revenue 2019: $906,729Expenses 2019: $966,213Net Income 2019: -$59,4842019Revenue 2020: $752,124Expenses 2020: $577,003Net Income 2020: $175,1212020Revenue 2021: $1,415,891Expenses 2021: $683,121Net Income 2021: $732,7702021Revenue 2022: $1,218,351Expenses 2022: $1,096,315Net Income 2022: $122,0362022Revenue 2023: $1,270,268Expenses 2023: $1,225,221Net Income 2023: $45,0472023Revenue 2024: $1,493,618Expenses 2024: $1,614,877Net Income 2024: -$121,2592024

Highlighted filing

2012

Revenue-
Expenses$289,220
Net Income-
Open 2012 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2012 to Dec 31, 2012
Signed
Jul 30, 2013
Return Version
2012v2.1
Gross Receipts
$205,990
Mission and Program Overview

Mission

To support and advocate for individuals and their families diagnosed with rare neuroimmune disorders of the central nervous system; to promote awareness and to empower patients, families, clinicians and scientists through education programs and publications and to advance the scientific understanding of and therapy development for these rare disorders by supporting the training of clinicians-scientists dedicated to these rare disorders and by supporting basic and clinical research. Our goal is to improve the quality of life of individuals with rare neuroimmune disorders.

Major Activities

Activity 2
The tma is partnering with the camp for courageous kids (cck) in scottsville, ky to hold an annual summer camp for children (ages 5-17) and their families who have been impacted by these rare neuroimmunologic diseases. The entire week of camp is offered to these children and their families free of charge and allows these children to experience the joys of camp and connect with others who experience the same symptoms and conditions.
Activity 3
The tma provides research grants to medical institutions for work on treatments for neuroimmunologic diseases. The first james t. Lubin fellowship was awarded in 2012. This fellowship supports the post-residency training of a clinician at utsw, who is committed to a career in academic medicine with a specialization in rare neuroimmunologic diseases and research.
Filing and Contact Details

Filer

EIN
91-1780467
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IRS990ScheduleI/RecipientTable/IRCSection1170
IRS990ScheduleI/RecipientTable/IRCSection2170
IRS990ScheduleI/RecipientTable/RecipientNameBusiness/BusinessNameLine10HUGO W MOSER RESEARCH INSTITUTE
IRS990ScheduleI/RecipientTable/RecipientNameBusiness/BusinessNameLine11UT SOUTHWESTERN DEPARTMENT OF NEURO
IRS990ScheduleI/RecipientTable/RecipientNameBusiness/BusinessNameLine12JOHNS HOPKINS UNIV SCHOOL OF MEDICI
IRS990ScheduleI/RecipientTable/RecipientNameBusiness/BusinessNameLine20HUGO W MOSER RESEARCH INSTITUTE
IRS990ScheduleI/RecipientTable/RecipientNameBusiness/BusinessNameLine21UT SOUTHWESTERN DEPARTMENT OF NEURO
IRS990ScheduleI/RecipientTable/RecipientNameBusiness/BusinessNameLine22JOHNS HOPKINS UNIV SCHOOL OF MEDICI
IRS990ScheduleI/RecordsMaintained0true
IRS990ScheduleI/TotalNbrOf501C3AndGovtGrants03
IRS990/ScheduleJRequired0false
IRS990ScheduleL/Form990ScheduleLPartIII/AmountOfGrant039000
IRS990ScheduleL/Form990ScheduleLPartIII/AmountOfGrant130000
IRS990ScheduleL/Form990ScheduleLPartIII/NameOfInterestedBusiness/BusinessNameLine10UT SOUTHWESTERN DEPT OF NEUROLOGY
IRS990ScheduleL/Form990ScheduleLPartIII/NameOfInterestedBusiness/BusinessNameLine11JOHNS HOPKINS UNIV SCHOOL OF MEDICI
IRS990ScheduleL/Form990ScheduleLPartIII/NameOfInterestedBusiness/BusinessNameLine20UT SOUTHWESTERN DEPT OF NEUROLOGY
IRS990ScheduleL/Form990ScheduleLPartIII/NameOfInterestedBusiness/BusinessNameLine21JOHNS HOPKINS UNIV SCHOOL OF MEDICI
IRS990ScheduleL/Form990ScheduleLPartIII/PurposeOfAssistance0RESEARCH
IRS990ScheduleL/Form990ScheduleLPartIII/PurposeOfAssistance1RESEARCH
IRS990ScheduleL/Form990ScheduleLPartIII/RelationshipWithOrganization0BOARD MEMBER - RESEA
IRS990ScheduleL/Form990ScheduleLPartIII/RelationshipWithOrganization1BOARD MEMBER - RESEA
IRS990ScheduleL/Form990ScheduleLPartIII/TypeOfAssistance0RESEARCH GRANT
IRS990ScheduleL/Form990ScheduleLPartIII/TypeOfAssistance1RESEARCH GRANT
IRS990ScheduleM/AnyPropertyThatMustBeHeld0false
IRS990ScheduleM/Form990ScheduleMPartII/Explanation0BROKERAGE FIRM CUSTODIAN
IRS990ScheduleM/Form990ScheduleMPartII/Identifier0THIRD PARTY USED TO PROCESS NONCASH CONTRIBUTIONS
IRS990ScheduleM/Form990ScheduleMPartII/ReturnReference0SCHEDULE M, PAGE 1, PART I, LINE 32B
IRS990ScheduleM/ReviewProcessUnusualNCGifts0false
IRS990ScheduleM/SecuritiesPubliclyTraded/MethodOfDeterminingRevenues0STOCK EXCHANGE PRICE
IRS990ScheduleM/SecuritiesPubliclyTraded/NonCashCheckbox0X
IRS990ScheduleM/SecuritiesPubliclyTraded/NoncashContribsRptdF990030123
IRS990ScheduleM/SecuritiesPubliclyTraded/NumberOfContributions02
IRS990ScheduleM/ThirdPartiesUsed0true
IRS990ScheduleO/GeneralExplanation/Explanation0VOLUNTEERS AT CAMP, SUPPORT GROUP LEADERS TO DISSEMINATE INFORMATION ON RARE NEURO-IMMUNE DISEASES, AND BOARD MEMBERS. NO COMPENSATION MADE.
IRS990ScheduleO/GeneralExplanation/Explanation1NONE REQUIRED.
IRS990ScheduleO/GeneralExplanation/Explanation2990 REVIEWED BY OFFICERS.
IRS990ScheduleO/GeneralExplanation/Explanation3BOARD REVIEW OF ANY CONFLICT PER POLICY.
IRS990ScheduleO/GeneralExplanation/Explanation4NUMEROUS ORGANIZATIONS OF SIMILAR SIZE AND PROGRAM CRITERIA WERE CONTACTED AND INTERVIEWED REGARDING APPROPRIATE COMPENSATION FOR EXECUTIVE DIRECTOR AND ADMINISTRATION POSITIONS. OANA WAS ALSO CONSULTED FOR SIMILAR INFORMATION.
IRS990ScheduleO/GeneralExplanation/Explanation5KENTUCKY, MAINE, MARYLAND, MASSACHUSETTS, MICHIGAN, MINNESOTA, MISSISSIPPI, NEW HAMPSHIRE, NEW JERSEY, NEW MEXICO, NEW YORK, NORTH CAROLINA, NORTH DAKOTA, OHIO, OKLAHOMA, OREGON, PENNSYLVANIA, RHODE ISLAND, SOUTH CAROLINA, TENNESSEE, UTAH, VIRGINIA, WEST VIRGINIA, WISCONSIN
IRS990ScheduleO/GeneralExplanation/Explanation6THE GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS ARE NOT PUBLICLY AVAILABLE.
IRS990ScheduleO/GeneralExplanation/Explanation7DUE TO THE EXPECTATION OF NEED FOR AUDITED FINANCIAL STATEMENTS THE ORGANIZATION CHOSE TO USE THE ACCRUAL METHOD OF ACCOUNTING FOR ITS TAX RETURN AS WELL AS FINANCIAL STATEMENTS.
IRS990ScheduleO/GeneralExplanation/Identifier0EXPLANATION ON VOLUNTEERS AND TYPES OF SERVICES OR BENEFITS
IRS990ScheduleO/GeneralExplanation/Identifier1EXPLANATION FOR WHY FORM 990-T NOT FILED
IRS990ScheduleO/GeneralExplanation/Identifier2ORGANIZATION'S PROCESS USED TO REVIEW FORM 990
IRS990ScheduleO/GeneralExplanation/Identifier3ENFORCEMENT OF CONFLICTS POLICY
IRS990ScheduleO/GeneralExplanation/Identifier4COMPENSATION PROCESS FOR TOP OFFICIAL
IRS990ScheduleO/GeneralExplanation/Identifier5STATES WHERE COPY OF RETURN IS FILED
IRS990ScheduleO/GeneralExplanation/Identifier6GOVERNING DOCUMENTS DISCLOSURE EXPLANATION
IRS990ScheduleO/GeneralExplanation/Identifier7CHANGE IN ACCOUNTING METHOD EXPLANATION
IRS990ScheduleO/GeneralExplanation/ReturnReference0FORM 990, PAGE 1, PART I, LINE 6
IRS990ScheduleO/GeneralExplanation/ReturnReference1FORM 990, PAGE 5, PART V, LINE 3B
IRS990ScheduleO/GeneralExplanation/ReturnReference2FORM 990, PAGE 6, PART VI, LINE 11B
IRS990ScheduleO/GeneralExplanation/ReturnReference3FORM 990, PAGE 6, PART VI, LINE 12C
IRS990ScheduleO/GeneralExplanation/ReturnReference4FORM 990, PAGE 6, PART VI, LINE 15A
IRS990ScheduleO/GeneralExplanation/ReturnReference5FORM 990, PAGE 6, PART VI, LINE 17
IRS990ScheduleO/GeneralExplanation/ReturnReference6FORM 990, PAGE 6, PART VI, LINE 19
IRS990ScheduleO/GeneralExplanation/ReturnReference7FORM 990, PAGE 12, PART XII, LINE 1
IRS990/ScheduleORequired0true
IRS990/School0false
IRS990/SignificantChange0false
IRS990/SignificantNewProgramServices0false
IRS990/StateLegalDomicile0WA
IRS990/StatesWhereCopyOfReturnIsFiled0AL
IRS990/StatesWhereCopyOfReturnIsFiled1AK
IRS990/StatesWhereCopyOfReturnIsFiled2AZ
IRS990/StatesWhereCopyOfReturnIsFiled3AR
IRS990/StatesWhereCopyOfReturnIsFiled4CA
IRS990/StatesWhereCopyOfReturnIsFiled5CO
IRS990/StatesWhereCopyOfReturnIsFiled6CT
IRS990/StatesWhereCopyOfReturnIsFiled7DC
IRS990/StatesWhereCopyOfReturnIsFiled8FL
IRS990/StatesWhereCopyOfReturnIsFiled9GA
IRS990/StatesWhereCopyOfReturnIsFiled10HI

Document Assets

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Filings

Displayed year

2012 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$580,639
Liabilities
$3,169
Net assets
$577,470
Revenue
-
Expenses
$289,220
Net income
-
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.64$0.16$1.47$1.49$1.61$0.12
2023Summary only. Only limited summary data is available for this year.$1.72$0.13$1.60$1.27$1.23$0.05
2022Summary only. Only limited summary data is available for this year.$1.64$0.09$1.55$1.22$1.10$0.12
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.54$0.11$1.43$1.42$0.68$0.73
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.78$0.08$0.70$0.75$0.58$0.18
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.68$0.15$0.52$0.91$0.97$0.06
2018Summary only. Only limited summary data is available for this year.$0.70$0.12$0.58$0.79$0.72$0.08
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.61$0.11$0.50$0.69$0.88$0.19
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.75$0.06$0.69$0.53$0.68$0.15
2015XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.90$0.05$0.84$0.61$0.48$0.13
2014Detailed filing. Detailed filing data is available for this year.$0.74$0.03$0.71$0.62$0.44$0.18
2013Detailed filing. Detailed filing data is available for this year.$0.55$0.02$0.53$0.40$0.45$0.05
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.58$0.00$0.58$0.29
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.66$0.00$0.66$0.12