Civic Intelligence

Siegel Rare Neuroimmune Association

990 • Fiscal year 2017 • EIN 91-1780467

Jan 01, 2017 to Dec 31, 2017 • Filed on Nov 15, 2018

Organization Profilewww.myelitis.org
1787 Sutter ParkwayPowell, OH 43065

(855) 380-3330

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

70th percentile

0.18x

Higher debt load relative to assets than 70% of similar nonprofits.

2017 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2017

Liabilities / Revenue

72nd percentile

0.16x

Higher debt load relative to revenue than 72% of similar nonprofits.

2017 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2017

Net Margin

10th percentile

-27%

Higher net margin than 10% of similar nonprofits.

2017 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2017

Top Officer Pay

49th percentile

$0

Higher top officer pay than 49% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2017 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2017

Asset Growth

10th percentile

-18%

Faster asset growth than 10% of similar nonprofits.

2017 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2016 to 2017

Revenue Growth

78th percentile

31%

Faster revenue growth than 78% of similar nonprofits.

2017 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2016 to 2017

Balance Sheet
Liabilities / Assets70th percentile

Assets

Down

$612,200

Down $136,135 (-18%) from 2016

Net Assets

Down

$504,647

Down $185,871 (-27%) from 2016

Liabilities

Up

$107,553

Up $49,736 (+86%) from 2016

Revenue And Expenses
Liabilities / Revenue72nd percentileNet Margin10th percentile

Revenue

Up

$691,880

Up $162,363 (+31%) from 2016

Expenses

Up

$877,751

Up $194,611 (+28%) from 2016

Net Income

Down

-$185,871

Down $32,248 (-21%) from 2016

Historical Trend

Balance Sheet Trend

Asset Growth10th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$2.0M$1.5M$1.0M$500K$0Assets 2011: $661,433Liabilities 2011: $733Net Assets 2011: $660,7002011Assets 2012: $580,639Liabilities 2012: $3,169Net Assets 2012: $577,4702012Assets 2013: $545,675Liabilities 2013: $17,988Net Assets 2013: $527,6872013Assets 2014: $740,305Liabilities 2014: $29,286Net Assets 2014: $711,0192014Assets 2015: $898,366Liabilities 2015: $54,225Net Assets 2015: $844,1412015Assets 2016: $748,335Liabilities 2016: $57,817Net Assets 2016: $690,5182016Assets 2017: $612,200Liabilities 2017: $107,553Net Assets 2017: $504,6472017Assets 2018: $699,946Liabilities 2018: $120,185Net Assets 2018: $579,7612018Assets 2019: $675,082Liabilities 2019: $154,805Net Assets 2019: $520,2772019Assets 2020: $776,844Liabilities 2020: $81,446Net Assets 2020: $695,3982020Assets 2021: $1,538,757Liabilities 2021: $110,589Net Assets 2021: $1,428,1682021Assets 2022: $1,636,191Liabilities 2022: $85,987Net Assets 2022: $1,550,2042022Assets 2023: $1,723,037Liabilities 2023: $127,786Net Assets 2023: $1,595,2512023Assets 2024: $1,638,076Liabilities 2024: $164,084Net Assets 2024: $1,473,9922024

Highlighted filing

2017

Assets$612,200
Liabilities$107,553
Net Assets$504,647
Open 2017 Filing

Operations Trend

Revenue Growth78th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$2.0M$1.5M$1.0M$500K$0-$500KExpenses 2011: $119,5462011Expenses 2012: $289,2202012Revenue 2013: $396,411Expenses 2013: $446,195Net Income 2013: -$49,7842013Revenue 2014: $619,001Expenses 2014: $435,669Net Income 2014: $183,3322014Revenue 2015: $613,280Expenses 2015: $480,158Net Income 2015: $133,1222015Revenue 2016: $529,517Expenses 2016: $683,140Net Income 2016: -$153,6232016Revenue 2017: $691,880Expenses 2017: $877,751Net Income 2017: -$185,8712017Revenue 2018: $792,264Expenses 2018: $717,150Net Income 2018: $75,1142018Revenue 2019: $906,729Expenses 2019: $966,213Net Income 2019: -$59,4842019Revenue 2020: $752,124Expenses 2020: $577,003Net Income 2020: $175,1212020Revenue 2021: $1,415,891Expenses 2021: $683,121Net Income 2021: $732,7702021Revenue 2022: $1,218,351Expenses 2022: $1,096,315Net Income 2022: $122,0362022Revenue 2023: $1,270,268Expenses 2023: $1,225,221Net Income 2023: $45,0472023Revenue 2024: $1,493,618Expenses 2024: $1,614,877Net Income 2024: -$121,2592024

Highlighted filing

2017

Revenue$691,880
Expenses$877,751
Net Income-$185,871
Open 2017 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2017 to Dec 31, 2017
Signed
Nov 15, 2018
Return Version
2017v2.0
Gross Receipts
$691,880
Mission and Program Overview

Mission

To support and advocate for individuals and their families diagnosed with rare neuroimmune disorders of the central nervous system; to promote awareness and to empower patients, families, clinicians and scientists through education programs and publications and to advance the scientific understanding of and therapy development for these rare disorders by supporting the training of clinicians-scientists dedicated to these rare disorders and by supporting basic and clinical research. Our goal is to improve the quality of life of individuals with rare neuroimmune disorders.

To support and advocate for individuals and their families diagnosed with rare neuro-immune disorders of the central nervous system; to promote awareness and to empower patients, families, clinicians and scientists through education programs and publications and to advance the scientific understanding of and therapy development for these rare disorders by supporting the training of clinicians-scientists dedicated to these rare diseases and by supporting basic and clinical research. Our goal is to improve the quality of life of individuals with rare neuro-immune disorders.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$519,637$306,309▼ $213,328
Pledges and Grants Receivable$0$150,000▲ $150,000
Investments in Publicly Traded Securities$61,994$73,416▲ $11,422
Cash and Non-Interest-Bearing Accounts$138,436$44,889▼ $93,547
Accounts Receivable$22,167$34,200▲ $12,033
Land, Buildings, and Equipment, Net$6,101$3,386▼ $2,715
Other Notes and Loans Receivable, Net$0$0→ $0
Receivable From Disqualified Prsn$0$0→ $0
Receivables From Officers Etc$0$0→ $0
Investments Other Securities$0$0→ $0
Investments Program Related$0$0→ $0
Intangible Assets$0$0→ $0
Inventories for Sale or Use$0$0→ $0
Loans From Officers Directors-$0-
Prepaid Expenses and Deferred Charges$0$0→ $0
Total Assets$748,335$612,200▼ $136,135
Other Assets Total$0$0→ $0
Liabilities
Accounts Payable and Accrued Expenses$47,885$105,796▲ $57,911
Unsecured Notes Loans Payable$9,932$1,757▼ $8,175
Grants Payable-$0-
Mortgage Notes Payable Secured by Investment Property-$0-
Deferred Revenue-$0-
Escrow Account Liability-$0-
Tax Exempt Bond Liabilities-$0-
Total Liabilities$57,817$107,553▲ $49,736
Net Assets / Fund Balance
Temporarily Rstr Net Assets$212,601$479,843▲ $267,242
Unrestricted Net Assets$477,917$24,804▼ $453,113
Permanently Rstr Net Assets$0$0→ $0
Total Net Assets Fund Balance$690,518$504,647▼ $185,871
Total Liabilities and Net Assets / Fund Balance$748,335$612,200▼ $136,135

Asset Categories

AssetBook ValueDepreciationBasis
Buildings$0$0$0
Other Land Buildings$0$0$0
Land$0-$0
Equipment$3,386$15,593$0
Leasehold Improvements$0$0$0
Compensation and Service Providers
Top Officer Pay49th percentile

Board Members and Trustees

NameTitle
Sanford J SiegelPresident
Linda MaleckyTreasurer, Vice President
Anjali Forber-PrattDirector
Barbara SattlerDirector
Benjamin M Greenberg MDDirector
Bruce L DowneyDirector
Carlos A Pardo-Villamizar MDDirector
Dennis WolfeDirector
Douglas A Kerr MD PHDDirector
Jason RobbinsDirector
Lana HarderDirector
Peter C JohnsonDirector
James Timothy LubinIT Director
Deborah CapenSecretary
Revenue and Support

Revenue Composition

Contributions and Grants
$680,610
Program Service Revenue
$9,780
Investment Income
$1,490
Other Revenue
$0
All Other Contributions
$514,749
Change in Net Assets
$-185,871

Audited Revenue Reconciliation

Revenue per Audited Statements
$691,880
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$0
Other Revenue Adjustments
$0
Total Revenue per Audited Statements
$691,880
Total Revenue per Form 990
$691,880
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$373,525
Salaries, Compensation, and Employee Benefits$283,288
Grants and Similar Amounts Paid$220,938
Total Fundraising Expense$62,798
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$220,938--$220,938
Other Salaries and Wages$186,121$5,156$0$191,277
Conferences and Meetings$107,502$0$0$107,502
Fees for Services Other$61,548$0$5,966$67,514
Current Officers, Directors, Trustees, and Key Employees$40,788$5,099$5,099$50,986
Other Expenses$42,063$0$0$42,063
Payroll Taxes$17,509$791$393$18,693
Information Technology$3,337$4,131$7,756$15,224
Pension Plan Contributions$11,345$513$255$12,113
Travel$6,494$4,685$551$11,730
Other Employee Benefits$9,571$433$215$10,219
Office Expenses$5,645$2,416$0$8,061
Fees for Services Legal$0$5,603$0$5,603
Insurance$0$4,231$0$4,231
Depreciation Depletion$2,916$194$242$3,352
Fees for Services Accounting$0$2,886$0$2,886
All Other Expenses$0$1,014$50$1,064
Total Functional Expenses$19,896$0$32,703$52,599

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$877,751
Total Expenses per Audited Statements$877,751
Total Expenses per Form 990$877,751
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
Other Expense Adjustments$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
John Hopkins Univ School of MedicineBaltimore, MD170This grant is for developing research strategies for assessment and improvement of the specificity of etiological clinical diagnosis and laboratory validation of possible serological biomarkers for TM based on previous studies supported by the TMA. Additional monies were also provided to test DNA from TMA community members with diagnosed transverse myelitis for a newly discovered genetic mutation.$18,500
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$0
Fundraising Gross Income$0
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
2017 TMA Gala Dinner and Auction$96,854$96,854$26,040$70,814
2017 Ohio Walk-Run-N-Roll$27,736$27,736$0$27,736
Total Events$165,861$165,861$52,599$113,262
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Loans from Officers, Directors, Trustees, and Key Employees-$0-
Receivables from Disqualified Persons$0$0→ $0
Receivables from Officers, Directors, Trustees, and Key Employees$0$0→ $0
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“990 reviewed by officers and independent auditor”

Form 990, Part VI, Section B, Line 12C

“Board review of conflict per policy”

Form 990, Part VI, Section B, Line 15

“Compensation for Executive Director. Numerous organizations of similar size and program criteria were contacted and interviewed regarding appropriate compensation for Executive Director. OANA was also consulted for similar information. Compensation process for key employees is to do a market survey of similar organizations advertising for positions with similar responsibilities.”

Form 990, Part VI, Section C, Line 19

“The Governing Documents and Conflict of Interest Policy are not publicly available. Financial statements are posted on the website, are available by request, and are also available on Guidestar.”

Filing and Contact Details

Filer

Filer Name
The Transverse Myelitis Association
EIN
91-1780467
Phone
8553803330
Address
1787 Sutter Parkway, Powell, OH 43065

Signing Officer

Name
Linda Malecky
Title
Treasurer
Phone
2154999335
Signed
2018-11-15

Organization Details

Principal Officer
Sanford J Siegel
Formed
1996
Legal Domicile
Wa
Voting Board Members
14
Independent Board Members
12
Employees
9
Volunteers
150
Raw XML AppendixShowing 400 of 743 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0TO SUPPORT AND ADVOCATE FOR INDIVIDUALS AND THEIR FAMILIES DIAGNOSED WITH RARE NEURO-IMMUNE DISORDERS OF THE CENTRAL NERVOUS SYSTEM; TO PROMOTE AWARENESS AND TO EMPOWER PATIENTS, FAMILIES, CLINICIANS AND SCIENTISTS THROUGH EDUCATION PROGRAMS AND PUBLICATIONS AND TO ADVANCE THE SCIENTIFIC UNDERSTANDING OF AND THERAPY DEVELOPMENT FOR THESE RARE DISORDERS BY SUPPORTING THE TRAINING OF CLINICIANS-SCIENTISTS DEDICATED TO THESE RARE DISEASES AND BY SUPPORTING BASIC AND CLINICAL RESEARCH. OUR GOAL IS TO IMPROVE THE QUALITY OF LIFE OF INDIVIDUALS WITH RARE NEURO-IMMUNE DISORDERS.
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IRS990/Desc0The TMA publishes a newsletter 3 times a year and an annual report that is distributed to its membership. The newsletters contain articles written by physicians that focus on rare neuroimmunologic disorders as well as the most effective treatments for symptom management. Regular updates that relate information about new treatments and research are also included. The TMA maintains an extensive website with educational materials that include specific symptom and condition information for rare neuroimmunologic diseases; podcasts with physicians, blogs written by medical professionals as well as TMA members; and archives of all past newsletters. The website also facilitates support contracts between patients and their families through support groups and social media contacts. In addition, the TMA has held a symposium to bring together individuals diagnosed with rare neuro-immune disorders and the clinicians and researchers that focus on these disorders. This event is the only one of its kind. Our goal is to continue providing this valuable resource to our community for many years to come.
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IRS990/Form990PartVIISectionAGrp/PersonNm3Linda Malecky
IRS990/Form990PartVIISectionAGrp/PersonNm4Bruce L Downey
IRS990/Form990PartVIISectionAGrp/PersonNm5Benjamin M Greenberg MD
IRS990/Form990PartVIISectionAGrp/PersonNm6Douglas A Kerr MD PHD
IRS990/Form990PartVIISectionAGrp/PersonNm7Carlos A Pardo-Villamizar MD
IRS990/Form990PartVIISectionAGrp/PersonNm8Barbara Sattler
IRS990/Form990PartVIISectionAGrp/PersonNm9Jason Robbins
IRS990/Form990PartVIISectionAGrp/PersonNm10Anjali Forber-Pratt
IRS990/Form990PartVIISectionAGrp/PersonNm11Peter C Johnson
IRS990/Form990PartVIISectionAGrp/PersonNm12Dennis Wolfe
IRS990/Form990PartVIISectionAGrp/PersonNm13Lana Harder
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/TitleTxt0President
IRS990/Form990PartVIISectionAGrp/TitleTxt1Secretary
IRS990/Form990PartVIISectionAGrp/TitleTxt2IT Director
IRS990/Form990PartVIISectionAGrp/TitleTxt3Treasurer, Vice President
IRS990/Form990PartVIISectionAGrp/TitleTxt4Director
IRS990/Form990PartVIISectionAGrp/TitleTxt5Director
IRS990/Form990PartVIISectionAGrp/TitleTxt6Director
IRS990/Form990PartVIISectionAGrp/TitleTxt7Director
IRS990/Form990PartVIISectionAGrp/TitleTxt8Director
IRS990/Form990PartVIISectionAGrp/TitleTxt9Director
IRS990/Form990PartVIISectionAGrp/TitleTxt10Director
IRS990/Form990PartVIISectionAGrp/TitleTxt11Director
IRS990/Form990PartVIISectionAGrp/TitleTxt12Director
IRS990/Form990PartVIISectionAGrp/TitleTxt13Director
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr01996
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt0165861
IRS990/FundraisingDirectExpensesAmt00
IRS990/FundraisingGrossIncomeAmt00
IRS990/GainOrLossGrp/OtherAmt00
IRS990/GainOrLossGrp/SecuritiesAmt00
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt014
IRS990/GovernmentGrantsAmt00
IRS990/GrantAmt00
IRS990/GrantsPayableGrp/EOYAmt00
IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt00
IRS990/GrantsToDomesticIndividualsGrp/TotalAmt00
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt0220938
IRS990/GrantsToDomesticOrgsGrp/TotalAmt0220938
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd01
IRS990/GrossReceiptsAmt0691880
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd00
IRS990/IncmFromInvestBondProceedsGrp/ExclusionAmt00
IRS990/IncmFromInvestBondProceedsGrp/RelatedOrExemptFuncIncomeAmt00
IRS990/IncmFromInvestBondProceedsGrp/TotalRevenueColumnAmt00
IRS990/IncmFromInvestBondProceedsGrp/UnrelatedBusinessRevenueAmt00
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt012
IRS990/IndivRcvdGreaterThan100KCnt00
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt07756
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt04131
IRS990/InformationTechnologyGrp/ProgramServicesAmt03337
IRS990/InformationTechnologyGrp/TotalAmt015224
IRS990/InsuranceGrp/FundraisingAmt00
IRS990/InsuranceGrp/ManagementAndGeneralAmt04231
IRS990/InsuranceGrp/ProgramServicesAmt00
IRS990/InsuranceGrp/TotalAmt04231
IRS990/IntangibleAssetsGrp/BOYAmt00
IRS990/IntangibleAssetsGrp/EOYAmt00
IRS990/InterestGrp/FundraisingAmt00
IRS990/InterestGrp/ManagementAndGeneralAmt00
IRS990/InterestGrp/ProgramServicesAmt00
IRS990/InterestGrp/TotalAmt00
IRS990/InventoriesForSaleOrUseGrp/BOYAmt00
IRS990/InventoriesForSaleOrUseGrp/EOYAmt00
IRS990/InvestmentExpenseAmt00
IRS990/InvestmentIncomeGrp/ExclusionAmt0-1839
IRS990/InvestmentIncomeGrp/RelatedOrExemptFuncIncomeAmt03329
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt01490
IRS990/InvestmentIncomeGrp/UnrelatedBusinessRevenueAmt00
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsOtherSecuritiesGrp/BOYAmt00
IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt00
IRS990/InvestmentsProgramRelatedGrp/BOYAmt00
IRS990/InvestmentsProgramRelatedGrp/EOYAmt00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt061994
IRS990/InvestmentsPubTradedSecGrp/EOYAmt073416
IRS990/IRPDocumentCnt00
IRS990/IRPDocumentW2GCnt00
IRS990/JointCostsInd0X
IRS990/LandBldgEquipAccumDeprecAmt015593
IRS990/LandBldgEquipBasisNetGrp/BOYAmt06101
IRS990/LandBldgEquipBasisNetGrp/EOYAmt03386
IRS990/LandBldgEquipCostOrOtherBssAmt018979
IRS990/LegalDomicileStateCd0WA
IRS990/LoanOutstandingInd00
IRS990/LoansFromOfficersDirectorsGrp/EOYAmt00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembershipDuesAmt00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0TO SUPPORT AND ADVOCATE FOR INDIVIDUALS AND THEIR FAMILIES DIAGNOSED WITH RARE NEURO-IMMUNE DISORDERS OF THE CENTRAL NERVOUS SYSTEM; TO PROMOTE AWARENESS AND TO EMPOWER PATIENTS, FAMILIES, CLINICIANS AND SCIENTISTS THROUGH EDUCATION PROGRAMS AND PUBLICATIONS AND TO ADVANCE THE SCIENTIFIC UNDERSTANDING OF AND THERAPY DEVELOPMENT FOR THESE RARE DISORDERS BY SUPPORTING THE TRAINING OF CLINICIANS-SCIENTISTS DEDICATED TO THESE RARE DISEASES AND BY SUPPORTING BASIC AND CLINICAL RESEARCH. OUR GOAL IS TO IMPROVE THE QUALITY OF LIFE OF INDIVIDUALS WITH RARE NEURO-IMMUNE DISORDERS.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/MortgNotesPyblScrdInvstPropGrp/EOYAmt00
IRS990/NetAssetsOrFundBalancesBOYAmt0690518
IRS990/NetAssetsOrFundBalancesEOYAmt0504647
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt00
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt00
IRS990/NetIncmFromFundraisingEvtGrp/UnrelatedBusinessRevenueAmt00
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt00
IRS990/NoncashContributionsAmt010364
IRS990/NondeductibleContributionsInd01
IRS990/NondeductibleContriDisclInd01
IRS990/OccupancyGrp/FundraisingAmt00
IRS990/OccupancyGrp/ManagementAndGeneralAmt00
IRS990/OccupancyGrp/ProgramServicesAmt00
IRS990/OccupancyGrp/TotalAmt00
IRS990/OfficeExpensesGrp/FundraisingAmt00
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt02416
IRS990/OfficeExpensesGrp/ProgramServicesAmt05645
IRS990/OfficeExpensesGrp/TotalAmt08061
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt00
IRS990/OtherAssetsTotalGrp/EOYAmt00
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt0215
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt0433
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt09571
IRS990/OtherEmployeeBenefitsGrp/TotalAmt010219
IRS990/OtherExpensesGrp/Desc0Bank Fees
IRS990/OtherExpensesGrp/Desc1Publications
IRS990/OtherExpensesGrp/Desc2Member Support
IRS990/OtherExpensesGrp/Desc3Camp
IRS990/OtherExpensesGrp/FundraisingAmt00
IRS990/OtherExpensesGrp/FundraisingAmt13778
IRS990/OtherExpensesGrp/FundraisingAmt238493
IRS990/OtherExpensesGrp/FundraisingAmt30
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt09480
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt10
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt20
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt30
IRS990/OtherExpensesGrp/ProgramServicesAmt00
IRS990/OtherExpensesGrp/ProgramServicesAmt127934
IRS990/OtherExpensesGrp/ProgramServicesAmt224610
IRS990/OtherExpensesGrp/ProgramServicesAmt342063
IRS990/OtherExpensesGrp/TotalAmt09480
IRS990/OtherExpensesGrp/TotalAmt131712
IRS990/OtherExpensesGrp/TotalAmt263103
IRS990/OtherExpensesGrp/TotalAmt342063
IRS990/OtherRevenueTotalAmt00
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt00
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt05156
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0186121
IRS990/OtherSalariesAndWagesGrp/TotalAmt0191277
IRS990/OtherWebsiteInd0X
IRS990/OthNotesLoansReceivableNetGrp/BOYAmt00
IRS990/OthNotesLoansReceivableNetGrp/EOYAmt00
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PaymentsToAffiliatesGrp/FundraisingAmt00
IRS990/PaymentsToAffiliatesGrp/ManagementAndGeneralAmt00
IRS990/PaymentsToAffiliatesGrp/ProgramServicesAmt00
IRS990/PaymentsToAffiliatesGrp/TotalAmt00
IRS990/PayrollTaxesGrp/FundraisingAmt0393
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt0791
IRS990/PayrollTaxesGrp/ProgramServicesAmt017509
IRS990/PayrollTaxesGrp/TotalAmt018693
IRS990/PensionPlanContributionsGrp/FundraisingAmt0255
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt0513
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt011345
IRS990/PensionPlanContributionsGrp/TotalAmt012113
IRS990/PermanentlyRstrNetAssetsGrp/BOYAmt00
IRS990/PermanentlyRstrNetAssetsGrp/EOYAmt00
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt00
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt0150000
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt00
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt00

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2017 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$612,200
Liabilities
$107,553
Net assets
$504,647
Revenue
$691,880
Expenses
$877,751
Net income
-$185,871
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.64$0.16$1.47$1.49$1.61$0.12
2023Summary only. Only limited summary data is available for this year.$1.72$0.13$1.60$1.27$1.23$0.05
2022Summary only. Only limited summary data is available for this year.$1.64$0.09$1.55$1.22$1.10$0.12
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.54$0.11$1.43$1.42$0.68$0.73
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.78$0.08$0.70$0.75$0.58$0.18
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.68$0.15$0.52$0.91$0.97$0.06
2018Summary only. Only limited summary data is available for this year.$0.70$0.12$0.58$0.79$0.72$0.08
2017Detailed filing. Detailed filing data is available for this year.$0.61$0.11$0.50$0.69$0.88$0.19
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.75$0.06$0.69$0.53$0.68$0.15
2015XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.90$0.05$0.84$0.61$0.48$0.13
2014Detailed filing. Detailed filing data is available for this year.$0.74$0.03$0.71$0.62$0.44$0.18
2013Detailed filing. Detailed filing data is available for this year.$0.55$0.02$0.53$0.40$0.45$0.05
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.58$0.00$0.58$0.29
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.66$0.00$0.66$0.12