Civic Intelligence

The Transverse Myelitis Association

EIN 91-1780467 • 501(c)3 • Powell, OH

Profile

To support and advocate for individuals and their families diagnosed with rare neuro-immune disorders of the central nervous system; to promote awareness and to empower patients, families, clinicians and scientists through education programs and publications and to advance the scientific understanding of and therapy development for these rare disorders by supporting the training of clinicians-scientists dedicated to these rare diseases and by supporting basic and clinical research. Our goal is to improve the quality of life of individuals with rare neuro-immune disorders.

1787 Sutter ParkwayPowell, OH 43065

www.myelitis.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

56th percentile

0.10x

Higher debt load relative to assets than 56% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Liabilities / Revenue

56th percentile

0.11x

Higher debt load relative to revenue than 56% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Net Margin

24th percentile

-8.1%

Higher net margin than 24% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Top Officer Pay

81st percentile

$143,388

Higher top officer pay than 81% of similar nonprofits.

Top officer pay equals 9.6% of source-year revenue.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Asset Growth

24th percentile

-4.9%

Faster asset growth than 24% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Revenue Growth

65th percentile

18%

Faster revenue growth than 65% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets56th percentile

Assets

Down

$1,638,076

Down $84,961 (-4.9%) from 2023

Liabilities

Up

$164,084

Up $36,298 (+28%) from 2023

Net Assets

Down

$1,473,992

Down $121,259 (-7.6%) from 2023

Operations
Liabilities / Revenue56th percentileNet Margin24th percentile

Revenue

Up

$1,493,618

Up $223,350 (+18%) from 2023

Expenses

Up

$1,614,877

Up $389,656 (+32%) from 2023

Net Income

Down

-$121,259

Down $166,306 (-369%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth24th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$2.0M$1.5M$1.0M$500K$0Assets 2011: $661,433Liabilities 2011: $733Net Assets 2011: $660,7002011Assets 2012: $580,639Liabilities 2012: $3,169Net Assets 2012: $577,4702012Assets 2013: $545,675Liabilities 2013: $17,988Net Assets 2013: $527,6872013Assets 2014: $740,305Liabilities 2014: $29,286Net Assets 2014: $711,0192014Assets 2015: $898,366Liabilities 2015: $54,225Net Assets 2015: $844,1412015Assets 2016: $748,335Liabilities 2016: $57,817Net Assets 2016: $690,5182016Assets 2017: $612,200Liabilities 2017: $107,553Net Assets 2017: $504,6472017Assets 2018: $699,946Liabilities 2018: $120,185Net Assets 2018: $579,7612018Assets 2019: $675,082Liabilities 2019: $154,805Net Assets 2019: $520,2772019Assets 2020: $776,844Liabilities 2020: $81,446Net Assets 2020: $695,3982020Assets 2021: $1,538,757Liabilities 2021: $110,589Net Assets 2021: $1,428,1682021Assets 2022: $1,636,191Liabilities 2022: $85,987Net Assets 2022: $1,550,2042022Assets 2023: $1,723,037Liabilities 2023: $127,786Net Assets 2023: $1,595,2512023Assets 2024: $1,638,076Liabilities 2024: $164,084Net Assets 2024: $1,473,9922024

Highlighted filing

2024

Assets$1,638,076
Liabilities$164,084
Net Assets$1,473,992
Open 2024 Filing

Operations Trend

Revenue Growth65th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$2.0M$1.5M$1.0M$500K$0-$500KExpenses 2011: $119,5462011Expenses 2012: $289,2202012Revenue 2013: $396,411Expenses 2013: $446,195Net Income 2013: -$49,7842013Revenue 2014: $619,001Expenses 2014: $435,669Net Income 2014: $183,3322014Revenue 2015: $613,280Expenses 2015: $480,158Net Income 2015: $133,1222015Revenue 2016: $529,517Expenses 2016: $683,140Net Income 2016: -$153,6232016Revenue 2017: $691,880Expenses 2017: $877,751Net Income 2017: -$185,8712017Revenue 2018: $792,264Expenses 2018: $717,150Net Income 2018: $75,1142018Revenue 2019: $906,729Expenses 2019: $966,213Net Income 2019: -$59,4842019Revenue 2020: $752,124Expenses 2020: $577,003Net Income 2020: $175,1212020Revenue 2021: $1,415,891Expenses 2021: $683,121Net Income 2021: $732,7702021Revenue 2022: $1,218,351Expenses 2022: $1,096,315Net Income 2022: $122,0362022Revenue 2023: $1,270,268Expenses 2023: $1,225,221Net Income 2023: $45,0472023Revenue 2024: $1,493,618Expenses 2024: $1,614,877Net Income 2024: -$121,2592024

Highlighted filing

2024

Revenue$1,493,618
Expenses$1,614,877
Net Income-$121,259
Open 2024 Filing

Filings

Most recent year

2024 • Form 990XML pending. An XML filing is linked for this year, but detailed extraction is still pending.

Open filing
Assets
$1,638,076
Liabilities
$164,084
Net assets
$1,473,992
Revenue
$1,493,618
Expenses
$1,614,877
Net income
-$121,259
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.64$0.16$1.47$1.49$1.61$0.12
2023Summary only. Only limited summary data is available for this year.$1.72$0.13$1.60$1.27$1.23$0.05
2022Summary only. Only limited summary data is available for this year.$1.64$0.09$1.55$1.22$1.10$0.12
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.54$0.11$1.43$1.42$0.68$0.73
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.78$0.08$0.70$0.75$0.58$0.18
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.68$0.15$0.52$0.91$0.97$0.06
2018Summary only. Only limited summary data is available for this year.$0.70$0.12$0.58$0.79$0.72$0.08
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.61$0.11$0.50$0.69$0.88$0.19
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.75$0.06$0.69$0.53$0.68$0.15
2015XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.90$0.05$0.84$0.61$0.48$0.13
2014Detailed filing. Detailed filing data is available for this year.$0.74$0.03$0.71$0.62$0.44$0.18
2013Detailed filing. Detailed filing data is available for this year.$0.55$0.02$0.53$0.40$0.45$0.05
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.58$0.00$0.58$0.29
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.66$0.00$0.66$0.12
Latest Detailed Filing

The latest 2024 filing currently has linked XML that has not been fully parsed yet. Showing the latest detailed filing from 2014 below.

Jump To
Filing Snapshot
Filing Period
Jan 1, 2014 to Dec 31, 2014
Signed
Nov 13, 2015
Return Version
2014v5.0
Gross Receipts
$619,001
Mission and Program Overview

Mission

To support and advocate for individuals and their families diagnosed with rare neuroimmune disorders of the central nervous system; to promote awareness and to empower patients, families, clinicians and scientists through education programs and publications and to advance the scientific understanding of and therapy development for these rare disorders by supporting the training of clinicians-scientists dedicated to these rare disorders and by supporting basic and clinical research. Our goal is to improve the quality of life of individuals with rare neuroimmune disorders.

To support and advocate for individuals and their families diagnosed with rare neuro-immune disorders of the central nervous system; to promote awareness and to empower patients, families, clinicians and scientists through education programs and publications and to advance the scientific understanding of and therapy development for these rare disorders by supporting the training of clinicians-scientists dedicated to these rare diseases and by supporting basic and clinical research. Our goal is to improve the quality of life of individuals with rare neuro-immune disorders.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$481,127$541,127▲ $60,000
Cash and Non-Interest-Bearing Accounts$20,684$103,136▲ $82,452
Investments in Publicly Traded Securities$40,400$49,015▲ $8,615
Accounts Receivable$0$45,543▲ $45,543
Land, Buildings, and Equipment, Net$3,464$1,484▼ $1,980
Other Notes and Loans Receivable, Net$0$0→ $0
Pledges and Grants Receivable$0$0→ $0
Receivable From Disqualified Prsn$0$0→ $0
Receivables From Officers Etc$0$0→ $0
Inventories for Sale or Use$0$0→ $0
Prepaid Expenses and Deferred Charges$0--
Total Assets$545,675$740,305▲ $194,630
Liabilities
Accounts Payable and Accrued Expenses$20,156$21,954▲ $1,798
Unsecured Notes Loans Payable$-2,168$7,332▲ $9,500
Total Liabilities$17,988$29,286▲ $11,298
Net Assets / Fund Balance
Unrestricted Net Assets$468,472$605,032▲ $136,560
Temporarily Rstr Net Assets$59,215$105,987▲ $46,772
Permanently Rstr Net Assets$0$0→ $0
Total Net Assets Fund Balance$527,687$711,019▲ $183,332
Total Liabilities and Net Assets / Fund Balance$545,675$740,305▲ $194,630

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$1,484$7,896$9,380
Buildings$0$0$0
Other Land Buildings$0$0$0
Land$0-$0
Leasehold Improvements$0$0$0
Compensation and Service Providers
Top Officer Pay81st percentile

Employees

NameTitleFull / Part TimeBaseTotal
Chitra KrishnanExecutive DirectorFT$88,000$88,000

Board Members and Trustees

NameTitle
Sanford J SiegelPresident
Anjali Forber-PrattDirector
Barbara SattlerDirector
Benjamin M Greenberg MDDirector
Bruce L DowneyDirector
Carlos A Pardo-Villamizar MDDirector
Douglas A Kerr MD PHDDirector
Jason RobbinsDirector
Peter C JohnsonDirector
James Timothy LubinIT Director
Deborah CapenSecretary
Linda MaleckyTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$607,281
Program Service Revenue
$0
Investment Income
$11,720
Other Revenue
$0
All Other Contributions
$386,563
Change in Net Assets
$183,332

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
Yes

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded2$33,695Market price
Total Noncash Contributions2$33,695-

Audited Revenue Reconciliation

Revenue per Audited Statements
$619,001
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$0
Other Revenue Adjustments
$0
Total Revenue per Audited Statements
$619,001
Total Revenue per Form 990
$619,001
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$259,747
Salaries, Compensation, and Employee Benefits$146,422
Total Fundraising Expense$70,476
Grants and Similar Amounts Paid$29,500
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Current Officers, Directors, Trustees, and Key Employees$79,633$1,610$6,758$88,001
Fees for Services Management$63,902$2,567$9,276$75,745
Other Salaries and Wages$37,228$955$0$38,183
Other Expenses$0$0$36,217$36,217
Grants to Domestic Orgs$29,500--$29,500
Office Expenses$3,753$3,115$15,623$22,491
Fees for Services Other$0$10,770$1,058$11,828
Payroll Taxes$9,058$199$524$9,781
Pension Plan Contributions$6,069$133$357$6,559
Other Employee Benefits$3,538$72$288$3,898
Insurance-$3,129-$3,129
Travel$1,649$957$375$2,981
Information Technology$1,124$1,563-$2,687
Conferences and Meetings$2,189--$2,189
Depreciation Depletion-$1,980-$1,980
Total Functional Expenses$8,521$0$35,217$43,738

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$435,669
Total Expenses per Audited Statements$435,669
Total Expenses per Form 990$435,669
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
Other Expense Adjustments$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
UT Southwestern Dept of NeurologyDallas, TX170The intent of this program is to support up to two years of clinical care and research training in an environment where clinicians address problems in rare neuro-immunologic disorders with the most current scientific tools. It is expected that upon completion of the program, participants will be committed to a combined clinical and research career and will be prepared to direct robust research programs relevant to TM (including AFM), ADEM, NMOSD, and ON in their clinical department.$19,500
ConsanoPortland, OR501(c)(3)The purpose of the grant was to contribute to a crowdfunded study that will investigate whether there is brain damage, in addition to spinal cord damage, in TM patients that would cause cognitive dysfunction which has the potential to interfere with daily functioning (i.e., learning, school and work performance) and threaten one's quality of life.$10,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
TMA Florida Dinner and Walk-Run-N-Roll$60,006$60,006$13,645$46,361
TMA Annual Golf Outing$46,043$46,043$513$45,530
Total Events$220,719$220,719$43,738$176,981
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons$0$0→ $0
Receivables from Officers, Directors, Trustees, and Key Employees$0$0→ $0
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“990 reviewed by officers and independent auditor”

Form 990, Part VI, Section B, Line 12C

“Board review of conflict per policy”

Form 990, Part VI, Section B, Line 15

“Compensation process for Executive Director. Numerous organizations of similar size and program criteria were contracted and interviewed regarding appropriate compensation for Executive Director. OANA was also consulted for similar information.”

Form 990, Part VI, Section C, Line 19

“The Governing Documents and Conflict of Interest Policy are not publicly available. Financial statements are posted on the website, are available by request, and are also available on Guidestar.”

Filing and Contact Details

Filer

Filer Name
The Transverse Myelitis Association
EIN
91-1780467
Phone
8553803330
Address
1787 Sutter Parkway, Powell, OH 43065

Signing Officer

Name
Linda Malecky
Title
Treasurer
Phone
2154999335
Signed
2015-11-13

Organization Details

Formed
1996
Legal Domicile
Wa
Voting Board Members
13
Independent Board Members
10
Employees
2
Volunteers
150
Supplemental Narrative

Additional Explanations

Form 990, Part III, Line 2

“The TMA is providing support to participating medical centers by assisting in the recruitment of pediatric patients to take part in the CAPTURE (Collaborative Assessment of Pediatric Transverse Myelitis: Understand, Reveal, Educate) study funded by PCORI. The study is designed to assess the current state of Pediatric TM (including AFM or Acute Flaccid Myelitis) in terms of diagnosis, treatment and outcomes.”

Form 990, Part XI, Line 9

“Includes net proceeds sale of stock in 2014 that was received in 2013 [$10,128] and stock donation received in 2014 but not sold until 2015 [-$10,194].”

Raw XML AppendixShowing 400 of 729 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
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IRS990/AccountsPayableAccrExpnssGrp/EOYAmt021954
IRS990/AccountsReceivableGrp/BOYAmt00
IRS990/AccountsReceivableGrp/EOYAmt045543
IRS990/ActivitiesConductedPrtshpInd00
IRS990/ActivityOrMissionDesc0TO SUPPORT AND ADVOCATE FOR INDIVIDUALS AND THEIR FAMILIES DIAGNOSED WITH RARE NEURO-IMMUNE DISORDERS OF THE CENTRAL NERVOUS SYSTEM; TO PROMOTE AWARENESS AND TO EMPOWER PATIENTS, FAMILIES, CLINICIANS AND SCIENTISTS THROUGH EDUCATION PROGRAMS AND PUBLICATIONS AND TO ADVANCE THE SCIENTIFIC UNDERSTANDING OF AND THERAPY DEVELOPMENT FOR THESE RARE DISORDERS BY SUPPORTING THE TRAINING OF CLINICIANS-SCIENTISTS DEDICATED TO THESE RARE DISEASES AND BY SUPPORTING BASIC AND CLINICAL RESEARCH. OUR GOAL IS TO IMPROVE THE QUALITY OF LIFE OF INDIVIDUALS WITH RARE NEURO-IMMUNE DISORDERS.
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IRS990/Desc0The TMA publishes a quarterly newsletter that is distributed to its membership. The newsletters contain articles written by physicians that focus on rare neuroimmunologic disorders as well as the most effective treatments for symptom management. Regular updates that relate information about new treatments and research are also included. The TMA maintains an extensive website with educational materials that include specific symptom and condition information for rare neuroimmunologic diseases; podcasts with physicians, blogs written by medical professionals as well as TMA members; and archives of all past newsletters. The website also facilitates support contracts between patients and their families through support groups and social media contacts.
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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
IRS990/Form990PartVIISectionAGrp/PersonNm0Chitra Krishnan
IRS990/Form990PartVIISectionAGrp/PersonNm1Sanford J Siegel
IRS990/Form990PartVIISectionAGrp/PersonNm2Deborah Capen
IRS990/Form990PartVIISectionAGrp/PersonNm3James Timothy Lubin
IRS990/Form990PartVIISectionAGrp/PersonNm4Linda Malecky
IRS990/Form990PartVIISectionAGrp/PersonNm5Bruce L Downey
IRS990/Form990PartVIISectionAGrp/PersonNm6Benjamin M Greenberg MD
IRS990/Form990PartVIISectionAGrp/PersonNm7Douglas A Kerr MD PHD
IRS990/Form990PartVIISectionAGrp/PersonNm8Carlos A Pardo-Villamizar MD
IRS990/Form990PartVIISectionAGrp/PersonNm9Barbara Sattler
IRS990/Form990PartVIISectionAGrp/PersonNm10Jason Robbins
IRS990/Form990PartVIISectionAGrp/PersonNm11Anjali Forber-Pratt
IRS990/Form990PartVIISectionAGrp/PersonNm12Peter C Johnson
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IRS990/Form990PartVIISectionAGrp/TitleTxt0Executive Director
IRS990/Form990PartVIISectionAGrp/TitleTxt1President
IRS990/Form990PartVIISectionAGrp/TitleTxt2Secretary
IRS990/Form990PartVIISectionAGrp/TitleTxt3IT Director
IRS990/Form990PartVIISectionAGrp/TitleTxt4Treasurer
IRS990/Form990PartVIISectionAGrp/TitleTxt5Director
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IRS990/MissionDesc0TO SUPPORT AND ADVOCATE FOR INDIVIDUALS AND THEIR FAMILIES DIAGNOSED WITH RARE NEURO-IMMUNE DISORDERS OF THE CENTRAL NERVOUS SYSTEM; TO PROMOTE AWARENESS AND TO EMPOWER PATIENTS, FAMILIES, CLINICIANS AND SCIENTISTS THROUGH EDUCATION PROGRAMS AND PUBLICATIONS AND TO ADVANCE THE SCIENTIFIC UNDERSTANDING OF AND THERAPY DEVELOPMENT FOR THESE RARE DISORDERS BY SUPPORTING THE TRAINING OF CLINICIANS-SCIENTISTS DEDICATED TO THESE RARE DISEASES AND BY SUPPORTING BASIC AND CLINICAL RESEARCH. OUR GOAL IS TO IMPROVE THE QUALITY OF LIFE OF INDIVIDUALS WITH RARE NEURO-IMMUNE DISORDERS.
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IRS990/OtherExpensesGrp/Desc0TMA Summer Family Camp
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IRS990/PrincipalOfcrBusinessName/BusinessNameLine1Txt0The Transverse Myelitis Association
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IRS990/ProgSrvcAccomActy2Grp/Desc0The TMA partners with the Center for Courageous Kids (CCK) in Scottsville, KY to hold an annual summer camp for children (ages 5 - 17) and their families who have been impacted by these rare neuroimmunologic diseases. The entire week of camp is offered to these children and their families free of charge and allows these children to experience the joys of camp and connect with others who experience the same symptoms and conditions.
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IRS990/ProgSrvcAccomActy3Grp/Desc0The TMA provides research grants to medical institutions for work on understanding of treatments for these neuroimmunologic diseases. The first James T. Lubin Fellowship was awarded in 2012 with training completed in 2014. This fellowship supports the post-residency training of a clinician at an academic medical facility, who is committed to a career in academic medicine with a specialization in rare neuroimmunologic diseases and research. The second JTL Fellowship was awarded in 2015. The TMA is also providing support to participating medical centers by assisting in the recruitment of pediatric patients to take part in the CAPTURE (Collaborative Assessment of Pediatric Transverse Myelitis: Understand, Reveal, Educate) study funded by PCORI. The study is designed to assess the current state of Pediatric TM (including AFM or Acute Flaccid Myelitis) in terms of diagnosis, treatment and outcomes.
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