Civic Intelligence

National Foundation for Celiac Awareness

990 • Fiscal year 2016 • EIN 90-0108854

Nov 01, 2015 to Oct 31, 2016 • Filed on Feb 22, 2017

Organization ProfileWWW.BEYONDCELIAC.ORG

View Organization Page

124 South Maple WayAmbler, PA 19002

(215) 325-1306

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

36th percentile

0.04x

Higher debt load relative to assets than 36% of similar nonprofits.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2016

Liabilities / Revenue

37th percentile

0.05x

Higher debt load relative to revenue than 37% of similar nonprofits.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2016

Net Margin

88th percentile

37%

Higher net margin than 88% of similar nonprofits.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2016

Top Officer Pay

84th percentile

$150,865

Higher top officer pay than 84% of similar nonprofits.

Top officer pay equals 6.9% of source-year revenue.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2016

Asset Growth

83rd percentile

22%

Faster asset growth than 83% of similar nonprofits.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2015 to 2016

Revenue Growth

91st percentile

63%

Faster revenue growth than 91% of similar nonprofits.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2015 to 2016

Balance Sheet
Liabilities / Assets36th percentile

Assets

Up

$3,388,771

Up $615,280 (+22%) from 2015

Net Assets

Up

$3,269,751

Up $680,821 (+26%) from 2015

Liabilities

Down

$119,020

Down $65,541 (-36%) from 2015

Revenue And Expenses
Liabilities / Revenue37th percentileNet Margin88th percentile

Revenue

Up

$2,191,791

Up $847,368 (+63%) from 2015

Expenses

Down

$1,390,531

Down $127,920 (-8.4%) from 2015

Net Income

Up

$801,260

Up $975,288 (+560%) from 2015

Historical Trend

Balance Sheet Trend

Asset Growth83rd percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$6.0M$4.0M$2.0M$0Assets 2010: $742,025Liabilities 2010: $149,295Net Assets 2010: $592,7302010Assets 2011: $603,160Liabilities 2011: $87,463Net Assets 2011: $515,6972011Assets 2012: $500,254Liabilities 2012: $47,163Net Assets 2012: $453,0912012Assets 2013: $904,527Liabilities 2013: $200,867Net Assets 2013: $703,6602013Assets 2014: $2,938,438Liabilities 2014: $191,376Net Assets 2014: $2,747,0622014Assets 2015: $2,773,491Liabilities 2015: $184,561Net Assets 2015: $2,588,9302015Assets 2016: $3,388,771Liabilities 2016: $119,020Net Assets 2016: $3,269,7512016Assets 2017: $3,957,050Liabilities 2017: $87,538Net Assets 2017: $3,869,5122017Assets 2018: $3,616,717Liabilities 2018: $146,274Net Assets 2018: $3,470,4432018Assets 2019: $3,933,668Liabilities 2019: $528,141Net Assets 2019: $3,405,5272019Assets 2020: $3,765,104Liabilities 2020: $305,222Net Assets 2020: $3,459,8822020Assets 2021: $4,983,659Liabilities 2021: $771,164Net Assets 2021: $4,212,4952021Assets 2022: $4,645,706Liabilities 2022: $1,153,396Net Assets 2022: $3,492,3102022Assets 2023: $4,610,157Liabilities 2023: $839,132Net Assets 2023: $3,771,0252023Assets 2024: $5,399,178Liabilities 2024: $589,552Net Assets 2024: $4,809,6262024

Highlighted filing

2016

Assets$3,388,771
Liabilities$119,020
Net Assets$3,269,751
Open 2016 Filing

Operations Trend

Revenue Growth91st percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$4.0M$3.0M$2.0M$1.0M$0-$1.0MExpenses 2010: $948,4752010Revenue 2011: $718,330Expenses 2011: $795,363Net Income 2011: -$77,0332011Revenue 2012: $1,041,658Expenses 2012: $1,104,264Net Income 2012: -$62,6062012Revenue 2013: $1,369,832Expenses 2013: $1,119,263Net Income 2013: $250,5692013Revenue 2014: $3,408,056Expenses 2014: $1,440,896Net Income 2014: $1,967,1602014Revenue 2015: $1,344,423Expenses 2015: $1,518,451Net Income 2015: -$174,0282015Revenue 2016: $2,191,791Expenses 2016: $1,390,531Net Income 2016: $801,2602016Revenue 2017: $1,661,623Expenses 2017: $1,403,993Net Income 2017: $257,6302017Revenue 2018: $1,212,019Expenses 2018: $1,585,729Net Income 2018: -$373,7102018Revenue 2019: $1,938,199Expenses 2019: $2,263,431Net Income 2019: -$325,2322019Revenue 2020: $1,763,432Expenses 2020: $1,843,715Net Income 2020: -$80,2832020Revenue 2021: $2,452,023Expenses 2021: $2,319,686Net Income 2021: $132,3372021Revenue 2022: $2,656,405Expenses 2022: $2,550,939Net Income 2022: $105,4662022Revenue 2023: $3,093,277Expenses 2023: $2,940,619Net Income 2023: $152,6582023Revenue 2024: $3,296,947Expenses 2024: $2,985,918Net Income 2024: $311,0292024

Highlighted filing

2016

Revenue$2,191,791
Expenses$1,390,531
Net Income$801,260
Open 2016 Filing
Jump To
Filing Snapshot
Filing Period
Nov 1, 2015 to Oct 31, 2016
Signed
Feb 22, 2017
Return Version
2015v3.0
Gross Receipts
$2,191,791
Mission and Program Overview

Mission

Beyond celiac unites with patients and partners to drive diagnosis, advance research and accelerate the discovery of new treatments and a cure.

The National Foundation for Celiac Awareness, doing business as Beyond Celiac, advances widespread understanding of celiac disease as a serious genetic autoimmune condition and works to secure early diagnosis and effective management of this disease. We empower our community to live life to the fullest, and serve as a leading and trusted resource that inspires hope, accelerates innovation and forges pathways to a cure. We work to build a strong community and serve as a trusted resource on celiac disease. See attached.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$2,235,471$3,010,345▲ $774,874
Accounts Receivable$151,360$168,282▲ $16,922
Prepaid Expenses and Deferred Charges$106,273$89,523▼ $16,750
Cash and Non-Interest-Bearing Accounts$161,788$79,496▼ $82,292
Pledges and Grants Receivable$103,913$26,971▼ $76,942
Savings and Temporary Cash Investments$12,732$12,689▼ $43
Land, Buildings, and Equipment, Net$1,954$1,465▼ $489
Total Assets$2,773,491$3,388,771▲ $615,280
Liabilities
Accounts Payable and Accrued Expenses$67,061$82,984▲ $15,923
Deferred Revenue$117,500$36,036▼ $81,464
Total Liabilities$184,561$119,020▼ $65,541
Net Assets / Fund Balance
Permanently Rstr Net Assets$1,933,758$1,722,964▼ $210,794
Unrestricted Net Assets$651,259$1,489,816▲ $838,557
Temporarily Rstr Net Assets$3,913$56,971▲ $53,058
Total Net Assets Fund Balance$2,588,930$3,269,751▲ $680,821
Total Liabilities and Net Assets / Fund Balance$2,773,491$3,388,771▲ $615,280

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$1,465$13,495-

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2015$1,933,758-▼ $74,095$136,699$1,722,964
2014$2,065,108-▲ $13,687$145,037$1,933,758
2013$107,266$2,027,859▲ $76,095$146,112$2,065,108
2012-$107,266--$107,266
Compensation and Service Providers
Top Officer Pay84th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Alice BastCEOFT$150,000$865$150,865
R Bennett MuskinDirector-$95,717$8,867$104,584

Board Members and Trustees

NameTitle
Wendi L WasikChair
David H CohenVice-chair
Aimee CorsoDirector
Alan M Ehrlich MdDirector
C Kane BrenanDirector
David S YadgaroffDirector
Dorothy BinswangerDirector
Eileen SpampataDirector
Eugene KempDirector
Gerald Bertiger MdDirector
Gregg MelinsonDirector
Joseph H Jacovini EsqDirector
Linda S DealDirector
Linnie CookDirector
Tina BattistoniDirector
Vittoria ZaslavskyDirector
Jennifer NorthEmployee
Barbara Weir PowersSecretary
Denise L DevineTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$1,780,054
Program Service Revenue
$339,968
Investment Income
$71,769
Other Revenue
$0
All Other Contributions
$1,780,054
Change in Net Assets
$801,260

Audited Revenue Reconciliation

Revenue per Audited Statements
$2,165,402
Revenue Not Reported on Financial Statements
$26,389
Revenue Not Reported on Form 990
$-80,602
Total Revenue per Audited Statements
$2,084,800
Total Revenue per Form 990
$2,191,791
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$809,045
Other Expenses$581,486
Total Fundraising Expense$75,477
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$495,977$31,926$18,239$546,142
Fees for Services Other$116,455$22,796$19,286$158,537
Current Officers, Directors, Trustees, and Key Employees$138,732$3,107$9,026$150,865
All Other Expenses$50,195$3,345$8,972$62,512
Other Employee Benefits$51,000$7,480$1,802$60,282
Payroll Taxes$47,656$2,355$1,745$51,756
Depreciation Depletion$49,194$487$0$49,681
Conferences and Meetings$40,424$4,445$1,337$46,206
Fees for Services Accounting$39,360$1,749$2,624$43,733
Occupancy$29,219$1,299$1,948$32,466
Travel$20,846$1,973$3,667$26,486
Fees for Service Investment Mgmnt Fees$0$26,389$0$26,389
Advertising$13,348$91$980$14,419
Other Expenses$11,608$511$766$12,885
Fees for Services Legal$2,899$1,754$193$4,846
Insurance$1,453$64$97$1,614
Interest$22$1$1$24
Total Functional Expenses$1,203,824$111,230$75,477$1,390,531

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$1,403,979
Total Expenses per Form 990$1,390,531
Expenses per Audited Statements$1,364,142
Expenses Not Reported on Form 990$39,837
Expenses Not Reported on Financial Statements$26,389
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Interested-Person Transactions

Interested PartyRelationshipDescriptionShared RevenueAmount
Robert BastSee belowRentNo$30,000
NetreachSee BelowIT ServicesNo$16,539
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
Yes
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No
Filing and Contact Details

Filer

Filer Name
National Foundation for Celiac Awareness
EIN
90-0108854
Phone
2153251306
Address
124 South Maple Way, Ambler, PA 19002

Signing Officer

Name
Alice Bast
Title
CEO
Phone
2153251306
Signed
2017-02-22
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Alice Bast
Formed
2003
Legal Domicile
Pa
Voting Board Members
18
Independent Board Members
18
Employees
17
Volunteers
158

Preparer

Firm
O'Connell & Company LLC
Address
Ste 1100 165 Township Line Road, Jenkintown, PA 19046
Preparer
GEORGE R O'CONNELL
Phone
2158874425
Supplemental Narrative

Additional Explanations

Pt VI, Line 12C

“NFCA does not deal with conflicted interest parties except when fair market value or better deals are offered.”

Pt VI, Line 11B

“All Board members are provided copies of the 990 for review prior to being filed. Any questions are directed to the business manager and necessary corrections are made.”

Pt VI, Line 19

“Documents are made available to public upon request.”

Pt VI, Line 15A

“NFCA Board chair, treasurer, and NFCA Board committee members solicit salary and job description information directly from comparable non-profit organizations in Philadelphia area and across the US. Information from available online sources (i.e. GuideStar) regarding non-profit salaries assisted with these comparisons.”

Other

“The National Foundation for Celiac Awareness changed their doing business as (d/b/a) name to "Beyond Celiac" on December 16, 2015.”

Form 990, Part IX, Line 24E

“Printing and Publications 26438. 20834. 845. 4759.”

Form 990, Part IX, Line 24E

“Postage 5966. 5433. 287. 246.”

Form 990, Part IX, Line 24E

“Gifts and Grants 2134. 1620. 476. 38.”

Form 990, Part IX, Line 24E

“Miscellaneous Expenses 2970. 1595. 1119. 256.”

Form 990, Part IX, Line 24E

“Dues and Subscriptions 7964. 7082. 536. 346.”

Form 990, Part IX, Line 24E

“Bank Charges 2464. 1849. 82. 533.”

Form 990, Part IX, Line 24E

“Programs and Productions 14576. 11782. 0. 2794.”

Financial Statement Notes

Pt V, Line 4

“The foundation adopted the accounting standard related to the recognition and measurement of uncertain tax positions. The adoption of this standard had no financial statement effect for the foundation. The foundation is no longer subject to federal and state tax examinations for the years prior to 2013.”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Desc0DIAGNOSIS, RESEARCH & DISEASE MANAGEMENT: USING A PATIENT-CENTERED APPROACH AND WORKING WITH THE BEYOND CELIAC PATIENT AND FAMILY ADVISORY COUNCIL, BEYOND CELIAC ADDRESSES THE UNMET NEEDS OF THE CELIAC DISEASE/GLUTEN SENSITIVE COMMUNITIES, WORKS TO ACCELERATE RESEARCH, PROMOTE TESTING OF HIGH-RISK FAMILY MEMBERS OF THOSE WHO HAVE BEEN DIAGNOSED TO RAPIDLY ADVANCE DIAGNOSIS. PRODUCED INAUGURAL INTERNATIONAL RESEARCH SUMMIT WITH STAKEHOLDERS REPRESENTING A BROAD RANGE OF DISCIPLINES AS FIRST STEP TO FINDING IMPROVED TREATMENTS AND A CURE FOR CELIAC DISEASE. COMMUNICATES THROUGH BEYONDCELIAC.ORG, SOCIAL MEDIA, MONTHLY E-NEWSLETTERS, AND EDUCATIONAL WEBINARS. PROVIDES FREE EDUCATIONAL TOOLS ONLINE AND IN PRINTED MATERIAL TO ENHANCE THE PHYSICAL, SOCIAL AND EMOTIONAL WELL-BEING OF THE CELIAC DISEASE/GLUTEN SENSITIVE POPULATIONS OF ALL AGES AND ETHNICITIES. PRODUCES EDUCATIONAL CAMPAIGNS SUCH AS "SERIOUSLY, CELIAC DISEASE" AND INFORMATIVE ACTIVITIES SUCH AS "TEST YOUR GLUTEN-FREE KNOWLEDGE". PARTICIPATES IN MAJOR NATIONAL AND INTERNATIONAL HEALTHCARE CONFERENCES AND SPEAKING ENGAGEMENTS.
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IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt223569
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Document Assets

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Filings

Displayed year

2016 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$3,388,771
Liabilities
$119,020
Net assets
$3,269,751
Revenue
$2,191,791
Expenses
$1,390,531
Net income
$801,260
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.40$0.59$4.81$3.30$2.99$0.31
2023Detailed filing. Detailed filing data is available for this year.$4.61$0.84$3.77$3.09$2.94$0.15
2022Detailed filing. Detailed filing data is available for this year.$4.65$1.15$3.49$2.66$2.55$0.11
2021Detailed filing. Detailed filing data is available for this year.$4.98$0.77$4.21$2.45$2.32$0.13
2020Detailed filing. Detailed filing data is available for this year.$3.77$0.31$3.46$1.76$1.84$0.08
2019Detailed filing. Detailed filing data is available for this year.$3.93$0.53$3.41$1.94$2.26$0.33
2018Detailed filing. Detailed filing data is available for this year.$3.62$0.15$3.47$1.21$1.59$0.37
2017Detailed filing. Detailed filing data is available for this year.$3.96$0.09$3.87$1.66$1.40$0.26
2016Detailed filing. Detailed filing data is available for this year.$3.39$0.12$3.27$2.19$1.39$0.80
2015Detailed filing. Detailed filing data is available for this year.$2.77$0.18$2.59$1.34$1.52$0.17
2014Summary only. Only limited summary data is available for this year.$2.94$0.19$2.75$3.41$1.44$1.97
2013Summary only. Only limited summary data is available for this year.$0.90$0.20$0.70$1.37$1.12$0.25
2012Summary only. Only limited summary data is available for this year.$0.50$0.05$0.45$1.04$1.10$0.06
2011Summary only. Only limited summary data is available for this year.$0.60$0.09$0.52$0.72$0.80$0.08
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.74$0.15$0.59$0.95