Civic Intelligence

National Foundation for Celiac Awareness

990 • Fiscal year 2018 • EIN 90-0108854

Nov 01, 2017 to Oct 31, 2018 • Filed on Mar 11, 2019

Organization ProfileWWW.BEYONDCELIAC.ORG
124 South Maple WayAmbler, PA 19002

(215) 325-1306

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

39th percentile

0.04x

Higher debt load relative to assets than 39% of similar nonprofits.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2018

Liabilities / Revenue

55th percentile

0.12x

Higher debt load relative to revenue than 55% of similar nonprofits.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2018

Net Margin

10th percentile

-31%

Higher net margin than 10% of similar nonprofits.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2018

Top Officer Pay

83rd percentile

$150,000

Higher top officer pay than 83% of similar nonprofits.

Top officer pay equals 12.4% of source-year revenue.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2018

Asset Growth

16th percentile

-8.6%

Faster asset growth than 16% of similar nonprofits.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2017 to 2018

Revenue Growth

11th percentile

-27%

Faster revenue growth than 11% of similar nonprofits.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2017 to 2018

Balance Sheet
Liabilities / Assets39th percentile

Assets

Down

$3,616,717

Down $340,333 (-8.6%) from 2017

Net Assets

Down

$3,470,443

Down $399,069 (-10%) from 2017

Liabilities

Up

$146,274

Up $58,736 (+67%) from 2017

Revenue And Expenses
Liabilities / Revenue55th percentileNet Margin10th percentile

Revenue

Down

$1,212,019

Down $449,604 (-27%) from 2017

Expenses

Up

$1,585,729

Up $181,736 (+13%) from 2017

Net Income

Down

-$373,710

Down $631,340 (-245%) from 2017

Historical Trend

Balance Sheet Trend

Asset Growth16th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$6.0M$4.0M$2.0M$0Assets 2010: $742,025Liabilities 2010: $149,295Net Assets 2010: $592,7302010Assets 2011: $603,160Liabilities 2011: $87,463Net Assets 2011: $515,6972011Assets 2012: $500,254Liabilities 2012: $47,163Net Assets 2012: $453,0912012Assets 2013: $904,527Liabilities 2013: $200,867Net Assets 2013: $703,6602013Assets 2014: $2,938,438Liabilities 2014: $191,376Net Assets 2014: $2,747,0622014Assets 2015: $2,773,491Liabilities 2015: $184,561Net Assets 2015: $2,588,9302015Assets 2016: $3,388,771Liabilities 2016: $119,020Net Assets 2016: $3,269,7512016Assets 2017: $3,957,050Liabilities 2017: $87,538Net Assets 2017: $3,869,5122017Assets 2018: $3,616,717Liabilities 2018: $146,274Net Assets 2018: $3,470,4432018Assets 2019: $3,933,668Liabilities 2019: $528,141Net Assets 2019: $3,405,5272019Assets 2020: $3,765,104Liabilities 2020: $305,222Net Assets 2020: $3,459,8822020Assets 2021: $4,983,659Liabilities 2021: $771,164Net Assets 2021: $4,212,4952021Assets 2022: $4,645,706Liabilities 2022: $1,153,396Net Assets 2022: $3,492,3102022Assets 2023: $4,610,157Liabilities 2023: $839,132Net Assets 2023: $3,771,0252023Assets 2024: $5,399,178Liabilities 2024: $589,552Net Assets 2024: $4,809,6262024

Highlighted filing

2018

Assets$3,616,717
Liabilities$146,274
Net Assets$3,470,443
Open 2018 Filing

Operations Trend

Revenue Growth11th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$4.0M$3.0M$2.0M$1.0M$0-$1.0MExpenses 2010: $948,4752010Revenue 2011: $718,330Expenses 2011: $795,363Net Income 2011: -$77,0332011Revenue 2012: $1,041,658Expenses 2012: $1,104,264Net Income 2012: -$62,6062012Revenue 2013: $1,369,832Expenses 2013: $1,119,263Net Income 2013: $250,5692013Revenue 2014: $3,408,056Expenses 2014: $1,440,896Net Income 2014: $1,967,1602014Revenue 2015: $1,344,423Expenses 2015: $1,518,451Net Income 2015: -$174,0282015Revenue 2016: $2,191,791Expenses 2016: $1,390,531Net Income 2016: $801,2602016Revenue 2017: $1,661,623Expenses 2017: $1,403,993Net Income 2017: $257,6302017Revenue 2018: $1,212,019Expenses 2018: $1,585,729Net Income 2018: -$373,7102018Revenue 2019: $1,938,199Expenses 2019: $2,263,431Net Income 2019: -$325,2322019Revenue 2020: $1,763,432Expenses 2020: $1,843,715Net Income 2020: -$80,2832020Revenue 2021: $2,452,023Expenses 2021: $2,319,686Net Income 2021: $132,3372021Revenue 2022: $2,656,405Expenses 2022: $2,550,939Net Income 2022: $105,4662022Revenue 2023: $3,093,277Expenses 2023: $2,940,619Net Income 2023: $152,6582023Revenue 2024: $3,296,947Expenses 2024: $2,985,918Net Income 2024: $311,0292024

Highlighted filing

2018

Revenue$1,212,019
Expenses$1,585,729
Net Income-$373,710
Open 2018 Filing
Jump To
Filing Snapshot
Filing Period
Nov 1, 2017 to Oct 31, 2018
Signed
Mar 11, 2019
Return Version
2017v2.3
Gross Receipts
$1,212,019
Mission and Program Overview

Mission

Beyond celiac unites with patients and partners to drive diagnosis, advance research and accelerate the discovery of new treatments and a cure.

The national foundation for celiac awareness, doing business as beyond celiac, unites with patients and partners to drive diagnosis, advance research and accelerate the discovery of new treatments and a cure. Beyond celiac envisions a world where the 1 in 5 people who are undiagnosed can restore their lives through a timely and accurate diagnosis. We believe that patients deserve options to treat this chronic autoimmune disease beyond the gluten-free diet, which has been the only treatment for celiac disease since the 1800's. Further, current research is proving that the gluten-free diet is not fully effective for most people. We aim to positively impact almost every aspect of celiac disease research by eliminating a major barrier to progress: the lack of reliable, in-depth patient information. Our aggressive research agenda advances pathways to new treatments and, one day, a cure. What we do beyond celiac serves the 21 million americans requiring a gluten-free diet as the only current

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$2,951,277$2,688,010▼ $263,267
Pledges and Grants Receivable$562,271$585,359▲ $23,088
Prepaid Expenses and Deferred Charges$203,185$164,540▼ $38,645
Cash and Non-Interest-Bearing Accounts$163,587$138,672▼ $24,915
Accounts Receivable$72,211$39,843▼ $32,368
Savings and Temporary Cash Investments$3,640--
Land, Buildings, and Equipment, Net$879$293▼ $586
Total Assets$3,957,050$3,616,717▼ $340,333
Liabilities
Accounts Payable and Accrued Expenses$65,537$108,660▲ $43,123
Deferred Revenue$22,001$37,614▲ $15,613
Total Liabilities$87,538$146,274▲ $58,736
Net Assets / Fund Balance
Permanently Rstr Net Assets$1,794,520$1,671,264▼ $123,256
Unrestricted Net Assets$1,497,721$1,213,820▼ $283,901
Temporarily Rstr Net Assets$577,271$585,359▲ $8,088
Total Net Assets Fund Balance$3,869,512$3,470,443▼ $399,069
Total Liabilities and Net Assets / Fund Balance$3,957,050$3,616,717▼ $340,333

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$293$14,667-

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2017$1,794,520-▲ $3,940$127,196$1,671,264
2016$1,722,964-▲ $205,065$133,509$1,794,520
2015$1,933,758-▼ $74,095$136,699$1,722,964
2014$2,065,108-▲ $13,687$145,037$1,933,758
2013$107,266$2,027,859▲ $76,095$146,112$2,065,108
Compensation and Service Providers
Top Officer Pay83rd percentile

Employees

NameTitleFull / Part TimeBaseTotal
Alice BastCEOFT$150,000$150,000

Board Members and Trustees

NameTitle
Alan M Ehrlich MdChair
Gregg MelinsonVice Chair
Aimee CorsoDirector
C Kane BrenanDirector
Chad P Shaffer Md FaafpDirector
Ciaran P Kelly MdDirector
Eric SeiferthDirector
Gerald Bertiger MdDirector
Jennifer P SnyderDirector
Linda S Deal MsDirector
Linnie CookDirector
R Bennett MuskinDirector
Robert J Beall PhdDirector
Wendi L WasikDirector
Barbara Weir PowersSecretary
Denise L DevineTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$931,083
Program Service Revenue
$222,296
Investment Income
$58,640
Other Revenue
$0
All Other Contributions
$915,749
Change in Net Assets
$-373,710

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,190,553
Revenue Not Reported on Financial Statements
$21,466
Revenue Not Reported on Form 990
$209,634
Total Revenue per Audited Statements
$1,400,187
Total Revenue per Form 990
$1,212,019
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$892,746
Other Expenses$692,983
Total Fundraising Expense$182,522
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$482,028$127,861$31,909$641,798
Fees for Services Other$198,571$2,018$7,024$207,613
Current Officers, Directors, Trustees, and Key Employees$138,000$3,000$9,000$150,000
Payroll Taxes$50,685$10,171$3,011$63,867
Travel$30,599$4,913$12,529$48,041
Depreciation Depletion$40,830--$40,830
Conferences and Meetings$35,791$2,055$2,880$40,726
Office Expenses$37,081$847$2,225$40,153
Fees for Services Accounting$37,473$381$1,325$39,179
Occupancy$30,890$1,758$5,156$37,804
Other Employee Benefits$29,427$5,905$1,749$37,081
All Other Expenses$21,727$2,271$3,567$27,565
Fees for Service Investment Mgmnt Fees-$21,466-$21,466
Other Expenses$12,845$642$1,884$15,371
Advertising$9,875-$1,678$11,553
Insurance$7,403$421$1,236$9,060
Fees for Services Legal$6,866$70$243$7,179
Interest-$7-$7
Total Functional Expenses$1,217,894$185,313$182,522$1,585,729

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$1,799,256
Total Expenses per Form 990$1,585,729
Expenses per Audited Statements$1,564,263
Expenses Not Reported on Form 990$234,993
Expenses Not Reported on Financial Statements$21,466
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Interested-Person Transactions

Interested PartyRelationshipDescriptionShared RevenueAmount
-See Part VRentNo$30,000
Beatrice BastSee Part VIt ServicesNo$2,052
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
Yes
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 11B

“All board members are provided copies of the 990 for review prior to being filed. Any questions are directed to the business manager and necessary corrections are made.”

Form 990, Page 6, Part VI, Line 12C

“Beyond celiac does not deal with conflicted interest parties except when fair market value or better deals are offered.”

Form 990, Page 6, Part VI, Line 15A

“Beyond celiac board chair, treasurer, and beyond celiac board committee members solicit salary and job description information directly from comparable non-profit organizations in philadelphia area and across the us. Information from available online sources (i.e. Guidestar) regarding non- profit salaries assisted with these comparisons.”

Form 990, Page 6, Part VI, Line 17

“Texas, virginia, washington, arizona, nebraska”

Form 990, Page 6, Part VI, Line 19

“Documents are made available to public upon request.”

Filing and Contact Details

Filer

Filer Name
National Foundation for Celiac
EIN
90-0108854
Phone
2153251306
Address
124 SOUTH MAPLE WAY, AMBLER, PA 19002
Doing Business As
Beyond Celiac

Signing Officer

Name
Alice Bast
Title
CEO
Phone
2153251306
Signed
2019-03-11
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Alice Bast
Formed
2003
Legal Domicile
Pa
Voting Board Members
17
Independent Board Members
17
Employees
14
Volunteers
199

Preparer

Firm
O'CONNELL & COMPANY LLC
Address
165 TOWNSHIP LINE RD STE 1100, JENKINTOWN, PA 19046
Preparer
TERENCE M O'CONNELL
Phone
2158874425
Supplemental Narrative

Additional Explanations

Form 990

“The national foundation for celiac awareness changed their doing business as (d/b/a) name to "beyond celiac" on december 16, 2015.”

Form 990, Page 2, Part III, Line 4A

“Media and monthly e-newsletters. In 2017, launched go beyond celiac, a digital community engagement platform providing a direct path to advancing research and the availability of clinical trials. Provides free educational tools online and in printed material to enhance the physical, social and emotional well-being of the celiac disease/gluten sensitive populations of all ages and ethnicities. Produces educational campaigns such as "seriously, celiac disease", a program designed to advance family testing of this genetically-based disease. Participates in major national and international healthcare conferences and speaking engagements.”

Form 990, Page 2, Part III, Line 4B

“Most rigorous gluten-free certification standard in the world.”

Form 990, Part IX, Line 11G

“Other fees 198,571 2,018 7,024”

Financial Statement Notes

Schedule D, Page 3, Part X

“Income taxes - beyond celiac adopted the accounting standard related to the recognition and measurement of uncertain tax positions. The adoption of this standard had no financial statement effect for beyond celiac. Beyond celiac is no longer subject to federal and state tax examinations for the years prior to 2015.”

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IRS990/ActivityOrMissionDesc0THE NATIONAL FOUNDATION FOR CELIAC AWARENESS, DOING BUSINESS AS BEYOND CELIAC, UNITES WITH PATIENTS AND PARTNERS TO DRIVE DIAGNOSIS, ADVANCE RESEARCH AND ACCELERATE THE DISCOVERY OF NEW TREATMENTS AND A CURE. BEYOND CELIAC ENVISIONS A WORLD WHERE THE 1 IN 5 PEOPLE WHO ARE UNDIAGNOSED CAN RESTORE THEIR LIVES THROUGH A TIMELY AND ACCURATE DIAGNOSIS. WE BELIEVE THAT PATIENTS DESERVE OPTIONS TO TREAT THIS CHRONIC AUTOIMMUNE DISEASE BEYOND THE GLUTEN-FREE DIET, WHICH HAS BEEN THE ONLY TREATMENT FOR CELIAC DISEASE SINCE THE 1800'S. FURTHER, CURRENT RESEARCH IS PROVING THAT THE GLUTEN-FREE DIET IS NOT FULLY EFFECTIVE FOR MOST PEOPLE. WE AIM TO POSITIVELY IMPACT ALMOST EVERY ASPECT OF CELIAC DISEASE RESEARCH BY ELIMINATING A MAJOR BARRIER TO PROGRESS: THE LACK OF RELIABLE, IN-DEPTH PATIENT INFORMATION. OUR AGGRESSIVE RESEARCH AGENDA ADVANCES PATHWAYS TO NEW TREATMENTS AND, ONE DAY, A CURE. WHAT WE DO BEYOND CELIAC SERVES THE 21 MILLION AMERICANS REQUIRING A GLUTEN-FREE DIET AS THE ONLY CURRENT
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Filings

Displayed year

2018 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$3,616,717
Liabilities
$146,274
Net assets
$3,470,443
Revenue
$1,212,019
Expenses
$1,585,729
Net income
-$373,710
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.40$0.59$4.81$3.30$2.99$0.31
2023Detailed filing. Detailed filing data is available for this year.$4.61$0.84$3.77$3.09$2.94$0.15
2022Detailed filing. Detailed filing data is available for this year.$4.65$1.15$3.49$2.66$2.55$0.11
2021Detailed filing. Detailed filing data is available for this year.$4.98$0.77$4.21$2.45$2.32$0.13
2020Detailed filing. Detailed filing data is available for this year.$3.77$0.31$3.46$1.76$1.84$0.08
2019Detailed filing. Detailed filing data is available for this year.$3.93$0.53$3.41$1.94$2.26$0.33
2018Detailed filing. Detailed filing data is available for this year.$3.62$0.15$3.47$1.21$1.59$0.37
2017Detailed filing. Detailed filing data is available for this year.$3.96$0.09$3.87$1.66$1.40$0.26
2016Detailed filing. Detailed filing data is available for this year.$3.39$0.12$3.27$2.19$1.39$0.80
2015Detailed filing. Detailed filing data is available for this year.$2.77$0.18$2.59$1.34$1.52$0.17
2014Summary only. Only limited summary data is available for this year.$2.94$0.19$2.75$3.41$1.44$1.97
2013Summary only. Only limited summary data is available for this year.$0.90$0.20$0.70$1.37$1.12$0.25
2012Summary only. Only limited summary data is available for this year.$0.50$0.05$0.45$1.04$1.10$0.06
2011Summary only. Only limited summary data is available for this year.$0.60$0.09$0.52$0.72$0.80$0.08
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.74$0.15$0.59$0.95