Civic Intelligence

National Foundation for Celiac Awareness

990 • Fiscal year 2019 • EIN 90-0108854

Nov 01, 2018 to Oct 31, 2019 • Filed on Feb 06, 2020

Organization ProfileWWW.BEYONDCELIAC.ORG

View Organization Page

124 South Maple WayAmbler, PA 19002

(215) 325-1306

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

58th percentile

0.13x

Higher debt load relative to assets than 58% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2019

Liabilities / Revenue

70th percentile

0.27x

Higher debt load relative to revenue than 70% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2019

Net Margin

15th percentile

-17%

Higher net margin than 15% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2019

Top Officer Pay

84th percentile

$154,268

Higher top officer pay than 84% of similar nonprofits.

Top officer pay equals 8.0% of source-year revenue.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2019

Asset Growth

64th percentile

8.8%

Faster asset growth than 64% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2018 to 2019

Revenue Growth

89th percentile

60%

Faster revenue growth than 89% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2018 to 2019

Balance Sheet
Liabilities / Assets58th percentile

Assets

Up

$3,933,668

Up $316,951 (+8.8%) from 2018

Net Assets

Down

$3,405,527

Down $64,916 (-1.9%) from 2018

Liabilities

Up

$528,141

Up $381,867 (+261%) from 2018

Revenue And Expenses
Liabilities / Revenue70th percentileNet Margin15th percentile

Revenue

Up

$1,938,199

Up $726,180 (+60%) from 2018

Expenses

Up

$2,263,431

Up $677,702 (+43%) from 2018

Net Income

Up

-$325,232

Up $48,478 (+13%) from 2018

Historical Trend

Balance Sheet Trend

Asset Growth64th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$6.0M$4.0M$2.0M$0Assets 2010: $742,025Liabilities 2010: $149,295Net Assets 2010: $592,7302010Assets 2011: $603,160Liabilities 2011: $87,463Net Assets 2011: $515,6972011Assets 2012: $500,254Liabilities 2012: $47,163Net Assets 2012: $453,0912012Assets 2013: $904,527Liabilities 2013: $200,867Net Assets 2013: $703,6602013Assets 2014: $2,938,438Liabilities 2014: $191,376Net Assets 2014: $2,747,0622014Assets 2015: $2,773,491Liabilities 2015: $184,561Net Assets 2015: $2,588,9302015Assets 2016: $3,388,771Liabilities 2016: $119,020Net Assets 2016: $3,269,7512016Assets 2017: $3,957,050Liabilities 2017: $87,538Net Assets 2017: $3,869,5122017Assets 2018: $3,616,717Liabilities 2018: $146,274Net Assets 2018: $3,470,4432018Assets 2019: $3,933,668Liabilities 2019: $528,141Net Assets 2019: $3,405,5272019Assets 2020: $3,765,104Liabilities 2020: $305,222Net Assets 2020: $3,459,8822020Assets 2021: $4,983,659Liabilities 2021: $771,164Net Assets 2021: $4,212,4952021Assets 2022: $4,645,706Liabilities 2022: $1,153,396Net Assets 2022: $3,492,3102022Assets 2023: $4,610,157Liabilities 2023: $839,132Net Assets 2023: $3,771,0252023Assets 2024: $5,399,178Liabilities 2024: $589,552Net Assets 2024: $4,809,6262024

Highlighted filing

2019

Assets$3,933,668
Liabilities$528,141
Net Assets$3,405,527
Open 2019 Filing

Operations Trend

Revenue Growth89th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$4.0M$3.0M$2.0M$1.0M$0-$1.0MExpenses 2010: $948,4752010Revenue 2011: $718,330Expenses 2011: $795,363Net Income 2011: -$77,0332011Revenue 2012: $1,041,658Expenses 2012: $1,104,264Net Income 2012: -$62,6062012Revenue 2013: $1,369,832Expenses 2013: $1,119,263Net Income 2013: $250,5692013Revenue 2014: $3,408,056Expenses 2014: $1,440,896Net Income 2014: $1,967,1602014Revenue 2015: $1,344,423Expenses 2015: $1,518,451Net Income 2015: -$174,0282015Revenue 2016: $2,191,791Expenses 2016: $1,390,531Net Income 2016: $801,2602016Revenue 2017: $1,661,623Expenses 2017: $1,403,993Net Income 2017: $257,6302017Revenue 2018: $1,212,019Expenses 2018: $1,585,729Net Income 2018: -$373,7102018Revenue 2019: $1,938,199Expenses 2019: $2,263,431Net Income 2019: -$325,2322019Revenue 2020: $1,763,432Expenses 2020: $1,843,715Net Income 2020: -$80,2832020Revenue 2021: $2,452,023Expenses 2021: $2,319,686Net Income 2021: $132,3372021Revenue 2022: $2,656,405Expenses 2022: $2,550,939Net Income 2022: $105,4662022Revenue 2023: $3,093,277Expenses 2023: $2,940,619Net Income 2023: $152,6582023Revenue 2024: $3,296,947Expenses 2024: $2,985,918Net Income 2024: $311,0292024

Highlighted filing

2019

Revenue$1,938,199
Expenses$2,263,431
Net Income-$325,232
Open 2019 Filing
Jump To
Filing Snapshot
Filing Period
Nov 1, 2018 to Oct 31, 2019
Signed
Feb 6, 2020
Return Version
2018v3.2
Gross Receipts
$2,090,401
Mission and Program Overview

Mission

Beyond celiac unites with patients and partners to drive diagnosis, advance research and accelerate the discovery of new treatments and a cure.

The national foundation for celiac awareness, doing business as beyond celiac, unites with patients and partners to drive diagnosis, advance research and accelerate the discovery of new treatments and a cure. Beyond celiac envisions a world where the 1 in 5 people who are undiagnosed can restore their lives through a timely and accurate diagnosis. We believe that patients deserve options to treat this chronic autoimmune disease beyond the gluten-free diet, which has been the only treatment for celiac disease since the 1800's. Further, current research is proving that the gluten-free diet is not fully effective for most people. We aim to positively impact almost every aspect of celiac disease research by eliminating a major barrier to progress: the lack of reliable, in-depth patient information. Our aggressive research agenda advances pathways to new treatments and, one day, a cure. What we do beyond celiac serves the 21 million americans requiring a gluten-free diet as the only current

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$2,688,010$2,797,273▲ $109,263
Pledges and Grants Receivable$585,359$604,284▲ $18,925
Prepaid Expenses and Deferred Charges$164,540$220,507▲ $55,967
Cash and Non-Interest-Bearing Accounts$138,672$176,940▲ $38,268
Accounts Receivable$39,843$134,664▲ $94,821
Land, Buildings, and Equipment, Net$293--
Total Assets$3,616,717$3,933,668▲ $316,951
Liabilities
Accounts Payable and Accrued Expenses$108,660$446,975▲ $338,315
Deferred Revenue$37,614$81,166▲ $43,552
Total Liabilities$146,274$528,141▲ $381,867
Net Assets / Fund Balance
Permanently Rstr Net Assets$1,671,264$1,725,258▲ $53,994
Unrestricted Net Assets$1,213,820$1,052,651▼ $161,169
Temporarily Rstr Net Assets$585,359$627,618▲ $42,259
Total Net Assets Fund Balance$3,470,443$3,405,527▼ $64,916
Total Liabilities and Net Assets / Fund Balance$3,616,717$3,933,668▲ $316,951

Asset Categories

AssetBook ValueDepreciationBasis
Equipment-$14,960-

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2018$1,671,264-▲ $175,065$121,071$1,725,258
2017$1,794,520-▲ $3,940$127,196$1,671,264
2016$1,722,964-▲ $205,065$133,509$1,794,520
2015$1,933,758-▼ $74,095$136,699$1,722,964
2014$2,065,108-▲ $13,687$145,037$1,933,758
Compensation and Service Providers
Top Officer Pay84th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Alice BastCEOFT$150,000$4,268$154,268

Board Members and Trustees

NameTitle
Alan M Ehrlich MdChair
Aimee CorsoDirector
Brittany BakerDirector
C Kane BrenanDirector
Carolyn JacksonDirector
Chad Shaffer Md FaafpDirector
Gerard Bertiger MdDirector
Jennifer P SnyderDirector
Linda S Deal MsDirector
Ritu Verma MdDirector
Robert J Beall PhdDirector
Barbara Weir PowersSecretary
Denise L DevineTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$1,403,653
Program Service Revenue
$82,678
Investment Income
$61,604
Other Revenue
$390,264
All Other Contributions
$1,381,153
Change in Net Assets
$-325,232

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,917,703
Revenue Not Reported on Financial Statements
$20,496
Revenue Not Reported on Form 990
$-130,210
Total Revenue per Audited Statements
$1,787,493
Total Revenue per Form 990
$1,938,199
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$859,188
Other Expenses$805,443
Grants and Similar Amounts Paid$598,800
Total Fundraising Expense$291,135
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$485,526$35,176$86,704$607,406
Fees for Services Other$233,830$22,979$71,836$328,645
Foreign Grants$324,000--$324,000
Grants to Domestic Orgs$274,800--$274,800
Current Officers, Directors, Trustees, and Key Employees$138,000$3,000$9,000$150,000
Information Technology$84,170$2,878$2,775$89,823
Office Expenses$43,656$1,386$25,413$70,455
Payroll Taxes$51,842$2,895$7,345$62,082
Travel$18,877$3,465$30,610$52,952
Depreciation Depletion$47,133--$47,133
Other Employee Benefits$32,750$3,619$3,331$39,700
Fees for Services Accounting$27,302$2,683$8,388$38,373
Occupancy$27,741$1,649$4,630$34,020
Conferences and Meetings$15,667$2,276$3,026$20,969
All Other Expenses$6,590$5,797$8,146$20,533
Fees for Service Investment Mgmnt Fees-$20,496-$20,496
Other Expenses$10,141$563$1,622$12,326
Insurance-$7,333$435$7,768
Advertising$4,788$266$1,968$7,022
Interest-$331-$331
Total Functional Expenses$1,839,478$132,818$291,135$2,263,431

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$2,373,041
Total Expenses per Form 990$2,263,431
Expenses per Audited Statements$2,242,935
Expenses Not Reported on Form 990$130,106
Expenses Not Reported on Financial Statements$20,496
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
The Society for the Study Celiac DiDowners Grove, IL-Research Grant$75,000
BOSTON CHILDREN'S HOSPITALBoston, MA-Research Grant$64,800

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$542,466
Fundraising Direct Expenses$152,202
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Gala$348,272$348,272$63,271$285,001
5k$173,409$173,409$59,418$113,991
Total Events$521,681$521,681$122,689$398,992
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Interested-Person Transactions

Interested PartyRelationshipDescriptionShared RevenueAmount
Beatrice BastSee Part VRentNo-
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
Yes
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 11B

“All board members are provided copies of the 990 for review prior to being filed. Any questions are directed to the business manager and necessary corrections are made.”

Form 990, Page 6, Part VI, Line 12C

“Beyond celiac does not deal with conflicted interest parties except when fair market value or better deals are offered.”

Form 990, Page 6, Part VI, Line 15A

“Beyond celiac board chair, treasurer, and beyond celiac board committee members solicit salary and job description information directly from comparable non-profit organizations in philadelphia area and across the us. Information from available online sources (i.e. Guidestar) regarding non- profit salaries assisted with these comparisons.”

Form 990, Page 6, Part VI, Line 17

“Texas, virginia, washington, arizona, nebraska”

Form 990, Page 6, Part VI, Line 19

“Documents are made available to public upon request.”

Filing and Contact Details

Filer

Filer Name
National Foundation for Celiac
EIN
90-0108854
Phone
2153251306
Address
124 SOUTH MAPLE WAY, AMBLER, PA 19002
Doing Business As
Beyond Celiac

Signing Officer

Name
Alice Bast
Title
CEO
Phone
2153251306
Signed
2020-02-06
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Alice Bast
Formed
2003
Legal Domicile
Pa
Voting Board Members
14
Independent Board Members
14
Employees
13
Volunteers
361

Preparer

Firm
O'CONNELL & COMPANY LLC
Address
165 TOWNSHIP LINE RD STE 1100, JENKINTOWN, PA 19046
Preparer
TERENCE M O'CONNELL
Phone
2158874425
Supplemental Narrative

Additional Explanations

Form 990

“The national foundation for celiac awareness changed their doing business as (d/b/a) name to "beyond celiac" on december 16, 2015.”

Form 990, Page 2, Part III, Line 4A

“Diagnosis, research & disease management: using a patient-centered approach and working with the beyond celiac patient and family advisory council and the beyond celiac scientific advisory council, beyond celiac address the unmet needs of the celiac disease/gluten sensitive communities, works to accelerate research, and promotes testing of family members of those who have been diagnosed to rapidly advance diagnosis. Beyond celiac produces research symposia to explore the current state and future direction of celiac disease and to encourage participation in celiac disease research, including clinical trials. The symposia are made available worldwide via a live webcast and on demand replay. Beyond celiac communicates through beyondceliac.org, social media and monthly e-newsletters. In 2019, beyond celiac awarded three major celiac disease research grants that will accelerate research in diagnosis, testing, and potential treatments. Continued development of go beyond celiac, a patient database, includes the launch of a mobile app. Go beyond celiac provides a direct path to advancing research and the availability of clinical trial participants. Beyond celiac provides free educational tools online and in printed materials to enhance the physical, social and emotional well-being of the celiac disease/gluten sensitive populations of all ages and ethnicities. The organization participates in major national and international healthcare conferences and speaking engagements.”

Form 990, Page 2, Part III, Line 4B

“The great kitchens program teaches members of the restaurant and food service industry how to safely offer gluten-free options with confidence. The american culinary federation and the academy of nutrition and dietetics offers members of these societies' continuing education units (ceus) for completion of the great kitchens program. The great schools, colleges and camps program is recognized as approved training for the usda-mandated professional standards for school nutrition professionals. Since 2008, nearly 8,000 food service professionals have completed the training program. In 2019, the great kitchens and schools programs trained over 250 food service professionals in gluten-free cooking and handling. Beyond celiac endorses the gluten-free certification program that certifies facilities covering a broad range of branded products through a rigorous gluten-free certification standard.”

Form 990, Page 2, Part III, Line 4D

“Research grants have been issued to further the research and study of celiac disease.”

Form 990, Part IX, Line 11G

“233,830 22,979 71,836”

Financial Statement Notes

Schedule D, Page 3, Part X

“Income taxes - beyond celiac adopted the accounting standard related to the recognition and measurement of uncertain tax positions. The adoption of this standard had no financial statement effect for beyond celiac. Beyond celiac is no longer subject to federal and state tax examinations for the years prior to 2016.”

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IRS990/ActivityOrMissionDesc0THE NATIONAL FOUNDATION FOR CELIAC AWARENESS, DOING BUSINESS AS BEYOND CELIAC, UNITES WITH PATIENTS AND PARTNERS TO DRIVE DIAGNOSIS, ADVANCE RESEARCH AND ACCELERATE THE DISCOVERY OF NEW TREATMENTS AND A CURE. BEYOND CELIAC ENVISIONS A WORLD WHERE THE 1 IN 5 PEOPLE WHO ARE UNDIAGNOSED CAN RESTORE THEIR LIVES THROUGH A TIMELY AND ACCURATE DIAGNOSIS. WE BELIEVE THAT PATIENTS DESERVE OPTIONS TO TREAT THIS CHRONIC AUTOIMMUNE DISEASE BEYOND THE GLUTEN-FREE DIET, WHICH HAS BEEN THE ONLY TREATMENT FOR CELIAC DISEASE SINCE THE 1800'S. FURTHER, CURRENT RESEARCH IS PROVING THAT THE GLUTEN-FREE DIET IS NOT FULLY EFFECTIVE FOR MOST PEOPLE. WE AIM TO POSITIVELY IMPACT ALMOST EVERY ASPECT OF CELIAC DISEASE RESEARCH BY ELIMINATING A MAJOR BARRIER TO PROGRESS: THE LACK OF RELIABLE, IN-DEPTH PATIENT INFORMATION. OUR AGGRESSIVE RESEARCH AGENDA ADVANCES PATHWAYS TO NEW TREATMENTS AND, ONE DAY, A CURE. WHAT WE DO BEYOND CELIAC SERVES THE 21 MILLION AMERICANS REQUIRING A GLUTEN-FREE DIET AS THE ONLY CURRENT
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IRS990/ProgSrvcAccomActy2Grp/Desc0THE GREAT KITCHENS PROGRAM TEACHES MEMBERS OF THE RESTAURANT AND FOOD SERVICE INDUSTRY HOW TO SAFELY OFFER GLUTEN-FREE OPTIONS WITH CONFIDENCE. THE AMERICAN CULINARY FEDERATION AND THE ACADEMY OF NUTRITION AND DIETETICS OFFERS MEMBERS OF THESE SOCIETIES' CONTINUING EDUCATION UNITS (CEUS) FOR COMPLETION OF THE GREAT KITCHENS PROGRAM. THE GREAT SCHOOLS, COLLEGES AND CAMPS PROGRAM IS RECOGNIZED AS APPROVED TRAINING FOR THE USDA-MANDATED PROFESSIONAL STANDARDS FOR SCHOOL NUTRITION PROFESSIONALS. SINCE 2008, NEARLY 8,000 FOOD SERVICE PROFESSIONALS HAVE COMPLETED THE TRAINING PROGRAM. IN 2019, THE GREAT KITCHENS AND SCHOOLS PROGRAMS TRAINED OVER 250 FOOD SERVICE PROFESSIONALS IN GLUTEN-FREE COOKING AND HANDLING. BEYOND CELIAC ENDORSES THE GLUTEN-FREE CERTIFICATION PROGRAM THAT CERTIFIES FACILITIES COVERING A BROAD RANGE OF BRANDED PRODUCTS THROUGH A RIGOROUS GLUTEN-FREE CERTIFICATION STANDARD.
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Document Assets

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Filings

Displayed year

2019 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$3,933,668
Liabilities
$528,141
Net assets
$3,405,527
Revenue
$1,938,199
Expenses
$2,263,431
Net income
-$325,232
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.40$0.59$4.81$3.30$2.99$0.31
2023Detailed filing. Detailed filing data is available for this year.$4.61$0.84$3.77$3.09$2.94$0.15
2022Detailed filing. Detailed filing data is available for this year.$4.65$1.15$3.49$2.66$2.55$0.11
2021Detailed filing. Detailed filing data is available for this year.$4.98$0.77$4.21$2.45$2.32$0.13
2020Detailed filing. Detailed filing data is available for this year.$3.77$0.31$3.46$1.76$1.84$0.08
2019Detailed filing. Detailed filing data is available for this year.$3.93$0.53$3.41$1.94$2.26$0.33
2018Detailed filing. Detailed filing data is available for this year.$3.62$0.15$3.47$1.21$1.59$0.37
2017Detailed filing. Detailed filing data is available for this year.$3.96$0.09$3.87$1.66$1.40$0.26
2016Detailed filing. Detailed filing data is available for this year.$3.39$0.12$3.27$2.19$1.39$0.80
2015Detailed filing. Detailed filing data is available for this year.$2.77$0.18$2.59$1.34$1.52$0.17
2014Summary only. Only limited summary data is available for this year.$2.94$0.19$2.75$3.41$1.44$1.97
2013Summary only. Only limited summary data is available for this year.$0.90$0.20$0.70$1.37$1.12$0.25
2012Summary only. Only limited summary data is available for this year.$0.50$0.05$0.45$1.04$1.10$0.06
2011Summary only. Only limited summary data is available for this year.$0.60$0.09$0.52$0.72$0.80$0.08
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.74$0.15$0.59$0.95