Civic Intelligence

National Foundation for Celiac

EIN 90-0108854 • 501(c)3 • Ambler, PA

Profile

The national foundation for celiac awareness, doing business as beyond celiac, unites with patients and partners to drive diagnosis, advance research and accelerate the discovery of new treatments and a cure.

PO Box 544Ambler, PA 19002

www.beyondceliac.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

48th percentile

0.11x

Higher debt load relative to assets than 48% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2024

Liabilities / Revenue

53rd percentile

0.18x

Higher debt load relative to revenue than 53% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2024

Net Margin

60th percentile

9.4%

Higher net margin than 60% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2024

Top Officer Pay

Score unavailable

No value available

No filing with officer rows is available for this organization yet.

Asset Growth

76th percentile

17%

Faster asset growth than 76% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Annualized from 2023 to 2024

Revenue Growth

49th percentile

6.6%

Faster revenue growth than 49% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets48th percentile

Assets

Up

$5,399,178

Up $789,021 (+17%) from 2023

Liabilities

Down

$589,552

Down $249,580 (-30%) from 2023

Net Assets

Up

$4,809,626

Up $1,038,601 (+28%) from 2023

Operations
Liabilities / Revenue53rd percentileNet Margin60th percentile

Revenue

Up

$3,296,947

Up $203,670 (+6.6%) from 2023

Expenses

Up

$2,985,918

Up $45,299 (+1.5%) from 2023

Net Income

Up

$311,029

Up $158,371 (+104%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth76th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$6.0M$4.0M$2.0M$0Assets 2010: $742,025Liabilities 2010: $149,295Net Assets 2010: $592,7302010Assets 2011: $603,160Liabilities 2011: $87,463Net Assets 2011: $515,6972011Assets 2012: $500,254Liabilities 2012: $47,163Net Assets 2012: $453,0912012Assets 2013: $904,527Liabilities 2013: $200,867Net Assets 2013: $703,6602013Assets 2014: $2,938,438Liabilities 2014: $191,376Net Assets 2014: $2,747,0622014Assets 2015: $2,773,491Liabilities 2015: $184,561Net Assets 2015: $2,588,9302015Assets 2016: $3,388,771Liabilities 2016: $119,020Net Assets 2016: $3,269,7512016Assets 2017: $3,957,050Liabilities 2017: $87,538Net Assets 2017: $3,869,5122017Assets 2018: $3,616,717Liabilities 2018: $146,274Net Assets 2018: $3,470,4432018Assets 2019: $3,933,668Liabilities 2019: $528,141Net Assets 2019: $3,405,5272019Assets 2020: $3,765,104Liabilities 2020: $305,222Net Assets 2020: $3,459,8822020Assets 2021: $4,983,659Liabilities 2021: $771,164Net Assets 2021: $4,212,4952021Assets 2022: $4,645,706Liabilities 2022: $1,153,396Net Assets 2022: $3,492,3102022Assets 2023: $4,610,157Liabilities 2023: $839,132Net Assets 2023: $3,771,0252023Assets 2024: $5,399,178Liabilities 2024: $589,552Net Assets 2024: $4,809,6262024

Highlighted filing

2024

Assets$5,399,178
Liabilities$589,552
Net Assets$4,809,626
Open 2024 Filing

Operations Trend

Revenue Growth49th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$4.0M$3.0M$2.0M$1.0M$0-$1.0MExpenses 2010: $948,4752010Revenue 2011: $718,330Expenses 2011: $795,363Net Income 2011: -$77,0332011Revenue 2012: $1,041,658Expenses 2012: $1,104,264Net Income 2012: -$62,6062012Revenue 2013: $1,369,832Expenses 2013: $1,119,263Net Income 2013: $250,5692013Revenue 2014: $3,408,056Expenses 2014: $1,440,896Net Income 2014: $1,967,1602014Revenue 2015: $1,344,423Expenses 2015: $1,518,451Net Income 2015: -$174,0282015Revenue 2016: $2,191,791Expenses 2016: $1,390,531Net Income 2016: $801,2602016Revenue 2017: $1,661,623Expenses 2017: $1,403,993Net Income 2017: $257,6302017Revenue 2018: $1,212,019Expenses 2018: $1,585,729Net Income 2018: -$373,7102018Revenue 2019: $1,938,199Expenses 2019: $2,263,431Net Income 2019: -$325,2322019Revenue 2020: $1,763,432Expenses 2020: $1,843,715Net Income 2020: -$80,2832020Revenue 2021: $2,452,023Expenses 2021: $2,319,686Net Income 2021: $132,3372021Revenue 2022: $2,656,405Expenses 2022: $2,550,939Net Income 2022: $105,4662022Revenue 2023: $3,093,277Expenses 2023: $2,940,619Net Income 2023: $152,6582023Revenue 2024: $3,296,947Expenses 2024: $2,985,918Net Income 2024: $311,0292024

Highlighted filing

2024

Revenue$3,296,947
Expenses$2,985,918
Net Income$311,029
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$5,399,178
Liabilities
$589,552
Net assets
$4,809,626
Revenue
$3,296,947
Expenses
$2,985,918
Net income
$311,029
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.40$0.59$4.81$3.30$2.99$0.31
2023Detailed filing. Detailed filing data is available for this year.$4.61$0.84$3.77$3.09$2.94$0.15
2022Detailed filing. Detailed filing data is available for this year.$4.65$1.15$3.49$2.66$2.55$0.11
2021Detailed filing. Detailed filing data is available for this year.$4.98$0.77$4.21$2.45$2.32$0.13
2020Detailed filing. Detailed filing data is available for this year.$3.77$0.31$3.46$1.76$1.84$0.08
2019Detailed filing. Detailed filing data is available for this year.$3.93$0.53$3.41$1.94$2.26$0.33
2018Detailed filing. Detailed filing data is available for this year.$3.62$0.15$3.47$1.21$1.59$0.37
2017Detailed filing. Detailed filing data is available for this year.$3.96$0.09$3.87$1.66$1.40$0.26
2016Detailed filing. Detailed filing data is available for this year.$3.39$0.12$3.27$2.19$1.39$0.80
2015Detailed filing. Detailed filing data is available for this year.$2.77$0.18$2.59$1.34$1.52$0.17
2014Summary only. Only limited summary data is available for this year.$2.94$0.19$2.75$3.41$1.44$1.97
2013Summary only. Only limited summary data is available for this year.$0.90$0.20$0.70$1.37$1.12$0.25
2012Summary only. Only limited summary data is available for this year.$0.50$0.05$0.45$1.04$1.10$0.06
2011Summary only. Only limited summary data is available for this year.$0.60$0.09$0.52$0.72$0.80$0.08
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.74$0.15$0.59$0.95
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Nov 1, 2023 to Oct 31, 2024
Signed
Aug 29, 2025
Return Version
2023v6.0
Gross Receipts
$3,375,609
Mission and Program Overview

Mission

Beyond celiac unites with patients and partners to drive diagnosis, advance research and accelerate the discovery of new treatments and a cure.

Beyond celiac unites with patients and partners to drive diagnosis, advance research, and accelerate the discovery of new treatments and a cure for celiac disease.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$3,498,777$2,674,392▼ $824,385
Savings and Temporary Cash Investments$130,098$1,329,112▲ $1,199,014
Pledges and Grants Receivable$476,047$743,491▲ $267,444
Accounts Receivable$133,148$321,354▲ $188,206
Cash and Non-Interest-Bearing Accounts$302,186$306,900▲ $4,714
Prepaid Expenses and Deferred Charges$69,255$20,676▼ $48,579
Land, Buildings, and Equipment, Net$646$3,253▲ $2,607
Total Assets$4,610,157$5,399,178▲ $789,021
Liabilities
Deferred Revenue$614,759$248,241▼ $366,518
Accounts Payable and Accrued Expenses$159,373$200,093▲ $40,720
Grants Payable$65,000$141,218▲ $76,218
Total Liabilities$839,132$589,552▼ $249,580
Net Assets / Fund Balance
Net Assets With Donor Restrictions$2,259,738$2,847,970▲ $588,232
Net Assets Without Donor Restrictions$1,511,287$1,961,656▲ $450,369
Total Net Assets Fund Balance$3,771,025$4,809,626▲ $1,038,601
Total Liabilities and Net Assets / Fund Balance$4,610,157$5,399,178▲ $789,021

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$3,253$17,461$20,714

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2023$1,414,842-▲ $306,811$112,505$1,609,148
2022$1,458,791-▲ $75,100$119,049$1,414,842
2021$1,948,024-▼ $310,959$178,274$1,458,791
2020$1,695,283-▲ $381,550$118,809$1,958,024
2019$1,725,258-▲ $91,149$121,124$1,695,283
Compensation and Service Providers
Top Officer PayScore unavailable

Employees

NameTitleFull / Part TimeBaseOtherTotal
Alice BastCEOFT$253,795$51,556$305,351
Mary Kate CarofanoCOOFT$175,239$5,226$180,465

Board Members and Trustees

NameTitle
Alan M Ehrlich MdChair
Todd HammerVice Chair
Alison SolomonDirector
Arturo Chacon CruzDirector
Barbara Weir PowersDirector
Brittany BakerDirector
C Kane BrenanDirector
Carole Haas GravagnoDirector
James AndrewsDirector
Jennifer BrownsteinDirector
Jennifer Platzkere Snyder EsqDirector
Lisa R AgdernDirector
Sarena SniderDirector
Sharon GaffneyDirector
Valerie CohnDirector
R Bennett MuskinSecretary
Lawrence P Flynn CPATreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$2,116,163
Program Service Revenue
$637,581
Investment Income
$102,407
Other Revenue
$440,796
All Other Contributions
$2,116,163
Change in Net Assets
$311,029

Audited Revenue Reconciliation

Revenue per Audited Statements
$3,266,912
Revenue Not Reported on Financial Statements
$30,035
Revenue Not Reported on Form 990
$1,294,660
Total Revenue per Audited Statements
$4,561,572
Total Revenue per Form 990
$3,296,947
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$1,591,280
Grants and Similar Amounts Paid$786,988
Other Expenses$607,650
Total Fundraising Expense$405,214
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$813,811$25,456$134,078$973,345
Foreign Grants$549,912--$549,912
Current Officers, Directors, Trustees, and Key Employees$296,225$83,499$99,122$478,846
Grants to Domestic Orgs$237,076--$237,076
Fees for Services Other$52,621$79,657$47,998$180,276
Payroll Taxes$80,417$5,435$16,946$102,798
Travel$37,693$6,198$29,585$73,476
Information Technology$62,309$975$421$63,705
Office Expenses$36,809$705$14,468$51,982
Other Employee Benefits$29,139$1,194$5,958$36,291
Fees for Service Investment Mgmnt Fees-$30,035-$30,035
All Other Expenses$12,693$1,393$12,885$26,971
Conferences and Meetings$15,149$628$2,898$18,675
Fees for Services Accounting$14,708$837$2,455$18,000
Other Expenses$200$159$17,066$17,425
Depreciation Depletion$10,416-$561$10,977
Insurance$981$6,003$283$7,267
Advertising$148-$3,696$3,844
Occupancy$39$577$78$694
Total Functional Expenses$2,315,567$265,137$405,214$2,985,918

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$3,522,971
Total Expenses per Form 990$2,985,918
Expenses per Audited Statements$2,955,883
Expenses Not Reported on Form 990$567,088
Expenses Not Reported on Financial Statements$30,035
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Rok Seon Choung Mayo ClinicRochester, MN501(c3)Research$100,000

International Summary

Offices
0
Employees
0
Spending
$0

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$519,458
Fundraising Direct Expenses$78,662
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Gala$291,688$291,688$44,809$246,879
5k Step Beyond$116,293$116,293$33,047$83,246
Total Events$519,458$519,458$78,662$440,796
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“The form 990 is prepared by beyond celiac staff with input from leadership. The draft is reviewed by the ceo and provided to the all board of directors prior to filing. Audit, finance and advancement committees review and provide input before final submission to the irs.”

Form 990, Part VI, Section B, Line 12C

“All board members and key employees are required to complete annual conflict-of-interest disclosures. These are reviewed by the governance committee. Individuals with identified conflicts recuse themselves from related decisions in accordance with the organization's conflict of interest policy.”

Form 990, Part VI, Section B, Line 15A

“Beyond celiac board chair, treasurer, and beyond celiac board committee members solicit salary and job description information directly from comparable non-profit organizations in philadelphia area and across the u.s. Information from available online sources (i.e. Guidestar) regarding non-profit salaries assisted with these comparisons.”

Form 990, Part VI, Section C, Line 19

“Beyond celiac makes its governing documents, financial statements, and form 990 available to the public upon request and on its website. We also publish financial information through nonprofit transparency platforms such as guidestar (candid).”

Filing and Contact Details

Filer

Filer Name
Beyond Celiac
EIN
90-0108854
Phone
2153251306
Address
PO BOX 544, AMBLER, PA 19002
Doing Business As
Beyond Celiac

Signing Officer

Name
Alice Bast
Title
CEO
Phone
2153251306
Signed
2025-08-29
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Alice Bast
Formed
2003
Legal Domicile
Pa
Voting Board Members
18
Independent Board Members
17
Employees
22
Volunteers
418

Preparer

Firm
O'CONNELL & COMPANY LLC
Address
240 GIBRALTAR ROAD SUITE 260, HORSHAM, PA 19044
Preparer
John W Rutecki CPA
Phone
2158874425
Supplemental Narrative

Financial Statement Notes

PART X, LINE 2:

“Beyond celiac is exempt from income tax under irc section 501(c)(3), though it is subject to tax on income unrelated to its exempt purpose, unless that income is otherwise excluded by the code. Beyond celiac has processes presently in place to ensure the maintenance of its tax-exempt status; to identify and report unrelated income; to determine its filing and tax obligations; and to identify and evaluate other matters that may be considered tax positions. Beyond celiac has determined that there are no material uncertain tax positions that require recognition or disclosure in the financial statements.”

Raw XML AppendixShowing 400 of 725 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0BEYOND CELIAC UNITES WITH PATIENTS AND PARTNERS TO DRIVE DIAGNOSIS, ADVANCE RESEARCH, AND ACCELERATE THE DISCOVERY OF NEW TREATMENTS AND A CURE FOR CELIAC DISEASE.
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IRS990/ProgSrvcAccomActy2Grp/Desc0EVIDENCE GENERATION AND CLINICAL TRIALS: THROUGH THE GO BEYOND CELIAC PLATFORM AND OTHER INITIATIVES, BEYOND CELIAC COLLECTS REAL-WORLD DATA FROM INDIVIDUALS WITH CELIAC DISEASE AND NON-CELIAC GLUTEN SENSITIVITY... READ MORE ON SCHEDULE O.THIS EVIDENCE INFORMS RESEARCH PRIORITIES, SUPPORTS FUNDING APPLICATIONS, AND ENSURES PATIENT EXPERIENCES SHAPE THE PATH TOWARD NEW TREATMENTS.WITH UP TO 80% OF CELIAC DISEASE CASES STILL UNDIAGNOSED OR MISDIAGNOSED, GO BEYOND CELIAC PLAYS A VITAL ROLE IN BRIDGING THE GAP BETWEEN LIVED EXPERIENCE AND SCIENTIFIC ADVANCEMENT. THE PLATFORM HAS ENHANCED OUTREACH, INCREASED COMMUNITY PARTICIPATION IN RESEARCH, AND PROMOTED DIVERSITY AND HEALTHCARE EQUITY.BEYOND CELIAC ALSO CONNECTS PATIENTS TO CLINICAL TRIALS, ACCELERATING ENROLLMENT AND FACILITATING DRUG DEVELOPMENT. THESE EFFORTS ARE INSTRUMENTAL IN DE-RISKING THE THERAPEUTIC PIPELINE AND DRAWING INCREASED INTEREST FROM INVESTORS, PHARMACEUTICAL COMPANIES, AND BIOTECH.
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IRS990/ProgSrvcAccomActy3Grp/Desc0RESEARCH SUMMIT: IN OCTOBER 2024, BEYOND CELIAC CO-HOSTED THE 2024 BEYOND CELIAC RESEARCH SUMMIT WITH THE CHILDREN'S HOSPITAL OF PHILADELPHIA... READ MORE ON SCHEDULE O.THE SUMMIT BROUGHT TOGETHER RESEARCHERS, CLINICIANS, ACADEMICS, AND PATIENT ADVOCATES TO EXPLORE THE LATEST SCIENTIFIC DEVELOPMENTS.FEATURED PRESENTATIONS INCLUDED:1. DR. SONIA GONALVES PEREIRA ON MICROBIOME MECHANISMS IN DISEASE PROGRESSION.2. DR. MICHAEL FITZPATRICK ON NOVEL MONITORING METHODS BEYOND BLOOD TESTS.3. DR. ARNOLD HAN ON THE ROLE OF CD8 T CELLS IN CELIAC DISEASE. THE SUMMIT ALSO SPOTLIGHTED BEYOND CELIAC-FUNDED RESEARCH AND INCLUDED DISCUSSIONS ON CLINICAL TRIAL ACCELERATION, PATIENT REGISTRIES, AND EQUITY-FOCUSED RESEARCH. THESE SUMMITS SERVE AS A HUB FOR COLLABORATION AND PROGRESS IN THE FIELD OF CELIAC DISEASE SCIENCE.
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IRS990/ProgSrvcAccomActyOtherGrp/Desc0ADDITIONAL PROGRAM ACTIVITIES INCLUDING PATIENT, AMBASSADOR AND OTHER PROGRAMS:REACH BEYOND CELIAC PROGRAMSTHROUGH OUR REACH BEYOND CELIAC INITIATIVE, WE EMPOWER COMMUNITY LEADERS THROUGH THE AMBASSADOR PROGRAM, INTERN PROGRAM, AND OTHER VOLUNTEER-DRIVEN ENGAGEMENT. AMBASSADORS TAILOR THEIR EFFORTS TO THEIR COMMUNITIES HOSTING EVENTS, FOSTERING PEER-TO-PEER SUPPORT, AND RAISING AWARENESS NATIONWIDE. OUR INTERNS AND AMBASSADORS COLLABORATE WITH STAFF ON LOCAL OUTREACH, CONTENT DEVELOPMENT, AND ADVOCACY INITIATIVES, STRENGTHENING OUR NATIONAL PRESENCE AND EXPANDING THE ORGANIZATION'S REACH AND IMPACT. PATIENT EDUCATION & SUPPORT PROGRAMSBEYOND CELIAC PROVIDES ESSENTIAL EDUCATIONAL RESOURCES TO PATIENTS AT ALL STAGES OF THEIR CELIAC JOURNEY. OUR "NEWLY DIAGNOSED GUIDE" OFFERS COMPREHENSIVE TOOLS FOR UNDERSTANDING CELIAC DISEASE AND INITIATING A GLUTEN-FREE DIET. WE ALSO PUBLISH DOWNLOADABLE TOOLKITS AND HOST WEBINARS FOR SPECIFIC POPULATIONS, STUDENTS, PARENTS, AND ADULTS COVERING TOPICS LIKE READING FOOD LABELS, MANAGING CROSS-CONTAMINATION, AND NAVIGATING SOCIAL SETTINGS. THROUGH TOWN HALLS, VIRTUAL Q&A SESSIONS, AND ACCESSIBLE ONLINE MATERIALS, OUR PATIENT PROGRAMS PROMOTE SELF-ADVOCACY, INFORMED DECISION-MAKING, AND ONGOING COMMUNITY CONNECTION.
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