National Marrow Donor Program

“The nmdp bylaws state: "the executive committee shall at all times include the chair of the board, the immediate past chair (when in office), the chair-elect (when in office), the secretary, the chief executive officer, and any government representatives. Any and all additional members of the executive committee shall be voting directors, except the chief executive officer and government representatives, who shall serve as non-voting ex officio members of the committee. The executive committee shall, to the extent allowed by applicable law, have the authority of the board in the oversight of the business of the corporation between meetings of the full board and shall have such other authority and responsibilities as set forth in the executive committee charter." the executive committee charter states: "the executive committee shall, to the extent determined by the board of directors, have the authority of the board in the oversight of the business of the corporation between meetings of the full board. The executive committee shall manage the business of the corporation and direct and coordinate the work activities of committees between meetings of the board. The executive committee shall also review key board-level policies and procedures on a periodic basis and recommend new or modified policies and initiatives. With the board, the executive committee is responsible for oversight of the strategic planning process, developing a calendar for board activities, and providing guidance to the board and corporation staff regarding the appropriate roles of each. The executive committee, in close coordination with the audit & finance committee, shall monitor the financial integrity of operations, including evaluating performance against the corporation's budget and strategic and business plans. In addition, the executive committee shall represent the corporation in its interactions with other organizations, congress, federal agencies, participating centers, constituent groups, professional organizations, and the public."”

“The following directors of nmdp have a reportable business relationship: anne mcgeorge and amy ronneberg (ms. Mcgeorge and ms. Ronneberg were both voting directors of clear insurance, ltd. During fy 2024).”

“The organization contracted with an outside public accounting firm to prepare the form 990. Preparing the details and supporting reports for the return is a collaborative effort among a small group of individuals in the financial reporting & compliance area of finance, compliance and human resources. Once a draft is received, it is reviewed by the team that pulled the details together, director, finance and corporate controller, and nmdp chief financial officer. Nmdp general counsel & chief compliance officer also reviews the governance sections. A copy of the return is provided to the organization's audit & finance committee and board of directors prior to filing with the irs.”

“The conflict of interest policy states the following: "the existence of an actual or potential conflict of interest turns on the specific facts and circumstances in each case. If a member has an interest which may conflict with those of the organizations, he or she must immediately disclose the matters and discuss them fully and frankly with the applicable organization's full board or its executive committee, as set forth in detail below. A member must not participate in any matter in which that member may have an actual or potential conflict of interest without the express approval of the applicable organization's board of directors or executive committee of the board of directors (executive committee). All members must disclose to the applicable organization's board of directors or executive committee all conflicts of interest and reportable relationships, and must annually complete and submit the conflict of interest questionnaire which is required by this policy. Whenever in the course of events a member's circumstances change such that the member knows or has reason to believe that the member may have an actual or perceived conflict of interest, such member shall promptly disclose the potential conflict to the applicable organization's board of directors or executive committee. For the purposes of this article, a member may formally disclose a conflict or reportable relationship to the nmdp chief executive officer (ceo), the chief advancement officer, or the the nmdp legal team, as applicable, who shall inform the applicable organization's board of directors or executive committee for resolution. As noted herein, if the potential conflict involves a director or committee member, that director or committee member shall not participate in or vote upon such matters until the question of the existence of the conflict of interest has been resolved in accordance with this policy. Likewise, an officer or key employee may not become substantially involved in decision-making involving any covered litigation, contract or transaction until the resolution of the matter in accordance with this policy."”

“The nmdp bylaws state: "the compensation committee shall be comprised only of voting directors and shall include the chair of the board and at least one (1) non-officer board member as voting committee members. The compensation committee shall review and evaluate the overall compensation and benefit structure of the corporation and shall have such other authority and responsibilities as set forth in the compensation committee charter." the compensation committee charter states: "the committee shall review and evaluate the overall compensation and benefit structure of the corporation, and approve and adopt a compensation philosophy and principles consistent with the corporation's not-for-profit status (the "compensation philosophy and principles"). The committee shall conduct the chief executive officer ("ceo") performance evaluation. The committee shall make ceo total compensation and benefit recommendations to the executive committee, consistent with the compensation philosophy and principles. In making compensation and benefit recommendations for the ceo, the committee shall utilize, among other things, comparability data for compliance with irs intermediate sanction provisions so as to allow the corporation to take advantage of the rebuttable presumption of reasonableness. On a periodic basis, the committee shall obtain comparability data from an independent compensation consultant. In addition, the committee shall advise the ceo in his/her evaluation of and decisions regarding the compensation of and benefits for senior corporation employees, as well as the president (or equivalent leader) of any subsidiary of the corporation reporting to the ceo (together, "senior leadership"). In advising the ceo in making his/her compensation and benefit decisions for senior leadership, the committee shall ensure that such decisions are consistent with the compensation philosophy and principles, and utilize, among other things, comparability data for compliance with irs intermediate sanction provisions. If decisions proposed by the ceo are outside the parameters of the compensation philosophy and principles, the ceo must obtain the committee's approval prior to implementation."”

“The conflict of interest policy, articles of incorporation and consolidated audited financial statements are available to the public upon request. Summary financial statements are also included in our annual report, which is mailed to key stakeholders and posted on our website. Additionally, articles of incorporation are available through the mn office of the secretary of state, and consolidated audited financial statements may be obtained at the mn office of the attorney general.”

“At nmdp, we believe each of us holds the key to curing blood cancers and disorders. As a global nonprofit leader in cell therapy, nmdp creates essential connections between researchers and supporters to inspire action and accelerate innovation to find life-saving cures. With the help of blood stem donors from the world's most diverse registry and our extensive network of transplant partners, physicians and caregivers, we're expanding access to treatment so that every patient can receive their life-saving cell therapy. Nmdp. Find cures. Save lives. Our mission: we save lives through cell therapy. Our vision: create a world where every patient can receive their life-saving cell therapy. The nmdp foundation raises funds for three programs critical to our life-saving mission: transplant research, patient financial assistance and blood stem cell donor recruitment. Some of the life-changing work that we're doing is solely funded by our community of supporters. We conduct research through our research program, cibmtr (center for international blood and marrow transplant research) in collaboration with the medical college of wisconsin. Our research leads to more lives saved and an enriched quality of life for thousands of patients. Through the nmdp amy strelzer manasevit research program and other research grants, outstanding early-career researchers are doing innovative work to find solutions to the complications that can arise after transplant. They're developing treatment approaches that will help the next generation of transplant patients live longer and healthier lives. Patient financial assistance helps cover transplant-related costs not covered by insurance. These costs, including transportation, lodging, lost wages and prescriptions, would otherwise cause significant hardship for patients or even prevent patients from moving forward with transplant. Nmdp connects patients with a matching, unrelated donor - a selfless stranger who can step up and donate healthy blood stem cells to give them the chance at a life-saving transplant.”