Liabilities / Assets
37th percentile
Higher debt load relative to assets than 37% of similar nonprofits.
990 • Fiscal year 2020 • EIN 71-0874241
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
37th percentile
Higher debt load relative to assets than 37% of similar nonprofits.
Liabilities / Revenue
33rd percentile
Higher debt load relative to revenue than 33% of similar nonprofits.
Net Margin
74th percentile
Higher net margin than 74% of similar nonprofits.
Top Officer Pay
51st percentile
Higher top officer pay than 51% of similar nonprofits.
Top officer pay equals 0.0% of source-year revenue.
Asset Growth
86th percentile
Faster asset growth than 86% of similar nonprofits.
Revenue Growth
66th percentile
Faster revenue growth than 66% of similar nonprofits.
Assets
Up$507,921
Up $198,491 (+64%) from 2019
Net Assets
Up$503,521
Up $196,091 (+64%) from 2019
Liabilities
Up$4,400
Up $2,400 (+120%) from 2019
Revenue
Up$836,433
Up $74,597 (+9.8%) from 2019
Expenses
Down$643,311
Down $142,007 (-18%) from 2019
Net Income
Up$193,122
Up $216,604 (+922%) from 2019
The organization's mission is to provide research grants to fund aggressive research into treatments for duchenne muscular dystrophy and to support the effort to treat, and ultimately cure, this disease.
To fund research into treatments for duchenne muscular dystrophy, in hopes of finding a cure.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Investments Program Related | $196,324 | $299,714 | ▲ $103,390 |
| Cash and Non-Interest-Bearing Accounts | $67,986 | $146,558 | ▲ $78,572 |
| Investments in Publicly Traded Securities | $23,598 | $26,649 | ▲ $3,051 |
| Accounts Receivable | $11,522 | $25,000 | ▲ $13,478 |
| Prepaid Expenses and Deferred Charges | $10,000 | $10,000 | → $0 |
| Total Assets | $309,430 | $507,921 | ▲ $198,491 |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $2,000 | $4,400 | ▲ $2,400 |
| Total Liabilities | $2,000 | $4,400 | ▲ $2,400 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $252,430 | $393,521 | ▲ $141,091 |
| Net Assets With Donor Restrictions | $55,000 | $110,000 | ▲ $55,000 |
| Total Net Assets Fund Balance | $307,430 | $503,521 | ▲ $196,091 |
| Total Liabilities and Net Assets / Fund Balance | $309,430 | $507,921 | ▲ $198,491 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Investment Program Related Org | $50,000 | - | - |
| Name | Title |
|---|---|
| Joel R Wood | President/chairman |
| Brad Todd | Director |
| Dan Carson | Director |
| Dave Heil | Director |
| Scott Sinder | Secretary |
| James Wood | Treasurer |
| Contractor | Services | Location | Compensation |
|---|---|---|---|
| Epiphany Productions INC | Fundraising & Administrative | 4202 MAPLE TREE COURT, Alexandria, VA 22304 | $120,000 |
| Line Item | Amount |
|---|---|
| Grants and Similar Amounts Paid | $478,055 |
| Other Expenses | $93,256 |
| Total Fundraising Expense | $76,200 |
| Professional Fundraising Fees | $72,000 |
| Salaries, Compensation, and Employee Benefits | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Grants to Domestic Orgs | $478,055 | - | - | $478,055 |
| Fees for Services Professional Fundraising | - | - | $72,000 | $72,000 |
| Fees for Services Management | $25,000 | $4,200 | $4,200 | $33,400 |
| Other Expenses | - | $8,476 | - | $8,476 |
| Office Expenses | $933 | $2,447 | - | $3,380 |
| Total Functional Expenses | $503,988 | $63,123 | $76,200 | $643,311 |
| Line Item | Amount |
|---|---|
| Total Expenses per Audited Statements | $723,342 |
| Expenses per Audited Statements | $643,311 |
| Total Expenses per Form 990 | $643,311 |
| Expenses Not Reported on Form 990 | $80,031 |
| Expenses Not Reported on Financial Statements | $0 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| University of Pittsburgh | Pittsburgh, PA | 501(c)(3) | Fund Research for Treatment of Duchenne Muscular Dystrophy | $215,108 |
| CHILDREN'S RESEARCH INSTITUTE | Silver Spring, MD | 501(c)(3) | Fund Research for Treatment of Duchenne Muscular Dystrophy | $101,000 |
| Emory University | Atlanta, GA | 501(c)(3) | Fund Research for Treatment of Duchenne Muscular Dystrophy | $90,000 |
| Research Foundation for Suny | Binghampton, NY | 501(c)(3) | Fund Research for Treatment of Duchenne Muscular Dystrophy | $39,447 |
| Parent Project Muscular Dystrophy | Hackensack, NJ | 501(c)(3) | Fund Research for Treatment of Duchenne Muscular Dystrophy | $30,000 |
| Line Item | Amount |
|---|---|
| Fundraising Direct Expenses | $80,031 |
| Fundraising Gross Income | $80,031 |
| Professional Fundraising Fees | $72,000 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Fore Duchenne | $95,442 | $46,994 | - | $46,994 |
| Dining Away Duchenne | $515,143 | $18,237 | $796 | $17,441 |
| Total Events | $812,794 | $80,031 | $80,031 | $0 |
“Joel wood (president) and james wood (treasurer) are brothers.”
“The treasurer of the foundation, james e. Wood, presents the prepared form 990 to the governing body. The information contained in the form 990 is reviewed and explained and any questions posed are answered. After the governing body has reviewed the form 990 and agrees with the information contained therein, the form 990 is filed with the internal revenue service.”
“The affiliations of the board members and officers are regularly monitored to ensure that no conflicts of interest occur, either perceived or actual, with respect to the foundation to eradicate duchenne and those charged with its governance. The board members are provided a copy of the policy and review and disclose any conflicts on an annual basis. Any issues are brought to the board, discussed and reported in the board minutes.”
“The organization makes its governing documents, conflict of interest policy and financial statements available to the general public upon request.”
“The auditor meets with the board of directors making a full presentation at the completion of the audit for the year answering any of the board's questions. The auditor works closely with the board of directors during the year should any concerns arise.”
“Fundraising events 80,031.”
“Fundraising expense 80,031.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 2000 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 4400 |
| IRS990/AccountsReceivableGrp/BOYAmt | 0 | 11522 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 25000 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | TO FUND RESEARCH INTO TREATMENTS FOR DUCHENNE MUSCULAR DYSTROPHY, IN HOPES OF FINDING A CURE. |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 1 |
| IRS990/AuditCommitteeInd | 0 | 1 |
| IRS990/BackupWthldComplianceInd | 0 | 1 |
| IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt | 0 | PEGGY SMITH |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 7032835255 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 4202 MAPLE TREE CT |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | ALEXANDRIA |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | VA |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 22304 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | 0 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 67986 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 146558 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 1 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 0 |
| IRS990/CompensationProcessOtherInd | 0 | 0 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 1 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/ContractorCompensationGrp/CompensationAmt | 0 | 120000 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt | 0 | 4202 MAPLE TREE COURT |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm | 0 | ALEXANDRIA |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd | 0 | VA |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd | 0 | 22304 |
| IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt | 0 | EPIPHANY PRODUCTIONS INC |
| IRS990/ContractorCompensationGrp/ServicesDesc | 0 | FUNDRAISING & ADMINISTRATIVE |
| IRS990/ContriRptFundraisingEventAmt | 0 | 732763 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 732763 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 478055 |
| IRS990/CYInvestmentIncomeAmt | 0 | 280 |
| IRS990/CYOtherExpensesAmt | 0 | 93256 |
| IRS990/CYOtherRevenueAmt | 0 | 103390 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 193122 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 0 |
| IRS990/CYTotalExpensesAmt | 0 | 643311 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 76200 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 72000 |
| IRS990/CYTotalRevenueAmt | 0 | 836433 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 0 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 0 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/Desc | 0 | THE ORGANIZATION AWARDED RESEARCH GRANTS IN THE AMOUNT OF $478,055 DURING 2020. THESE GRANTS WERE AWARDED TO FUND THE DEVELOPMENT OF POTENTIAL THERAPIES FOR DUCHENNE MUSCULAR DYSTROPHY UTILIZING STRATEGIES DESIGNED TO REPAIR THE GENETIC FLAW OF THIS CATASTROPHIC, SINGLE-GENE-DEFECT DISORDER; SUPPORT ACADEMIC RESEARCH INSTITUTIONS IN EFFORTS TO BRING THERAPIES TO THE MARKETPLACE THAT WOULD COMPENSATE FOR THE LACK OF A PROTEIN ESSENTIAL IN MUSCLE REGENERATION AND REPAIR; AND FUND SCIENTIFIC WORKSHOPS FOR LEADING MUSCLE RESEARCHERS AND CLINICIANS TO EFFECTIVELY COLLABORATE ON STRATEGIES FOR TRANSLATION APPROACHES TO MUSCULAR DYSTROPHY. |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 1 |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/DonorRestrictionNetAssetsGrp/BOYAmt | 0 | 55000 |
| IRS990/DonorRestrictionNetAssetsGrp/EOYAmt | 0 | 110000 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 0 |
| IRS990/EmployeeCnt | 0 | 0 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 503988 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 1 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FeesForServicesManagementGrp/FundraisingAmt | 0 | 4200 |
| IRS990/FeesForServicesManagementGrp/ManagementAndGeneralAmt | 0 | 4200 |
| IRS990/FeesForServicesManagementGrp/ProgramServicesAmt | 0 | 25000 |
| IRS990/FeesForServicesManagementGrp/TotalAmt | 0 | 33400 |
| IRS990/FeesForServicesProfFundraising/FundraisingAmt | 0 | 72000 |
| IRS990/FeesForServicesProfFundraising/TotalAmt | 0 | 72000 |
| IRS990/ForeignActivitiesInd | 0 | 0 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 10.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | JOEL R WOOD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | SCOTT SINDER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | JAMES WOOD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | DAN CARSON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | BRAD TODD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | DAVE HEIL |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | PRESIDENT/CHAIRMAN |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | TREASURER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | DIRECTOR |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 1 |
| IRS990/FormationYr | 0 | 2002 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | 1 |
| IRS990/FundraisingActivitiesInd | 0 | 1 |
| IRS990/FundraisingAmt | 0 | 732763 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 80031 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 80031 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 6 |
| IRS990/GrantAmt | 0 | 478055 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 478055 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 478055 |
| IRS990/GrantsToIndividualsInd | 0 | 0 |
| IRS990/GrantsToOrganizationsInd | 0 | 1 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossReceiptsAmt | 0 | 916464 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 0 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 1 |
| IRS990/IndependentVotingMemberCnt | 0 | 6 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InfoInScheduleOPartXIIInd | 0 | X |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 280 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 280 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/InvestmentsProgramRelatedGrp/BOYAmt | 0 | 196324 |
| IRS990/InvestmentsProgramRelatedGrp/EOYAmt | 0 | 299714 |
| IRS990/InvestmentsPubTradedSecGrp/BOYAmt | 0 | 23598 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 26649 |
| IRS990/IRPDocumentCnt | 0 | 6 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LegalDomicileStateCd | 0 | VA |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 0 |
| IRS990/LocalChaptersInd | 0 | 0 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembersOrStockholdersInd | 0 | 0 |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | THE ORGANIZATION'S MISSION IS TO PROVIDE RESEARCH GRANTS TO FUND AGGRESSIVE RESEARCH INTO TREATMENTS FOR DUCHENNE MUSCULAR DYSTROPHY AND TO SUPPORT THE EFFORT TO TREAT, AND ULTIMATELY CURE, THIS DISEASE. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
| IRS990/MoreThan5000KToOrgInd | 0 | 0 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 307430 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 503521 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | 2969 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 252430 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 393521 |
| IRS990/NoListedPersonsCompensatedInd | 0 | X |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 2447 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 933 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 3380 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherExpensesGrp/Desc | 0 | ADMINISTRATIVE EXPENSE |
| IRS990/OtherExpensesGrp/Desc | 1 | BANK CHARGES |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 48000 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 8476 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 48000 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 8476 |
| IRS990/OtherRevenueMiscGrp/BusinessCd | 0 | 900099 |
| IRS990/OtherRevenueMiscGrp/Desc | 0 | TRINDS LLC K-1 |
| IRS990/OtherRevenueMiscGrp/ExclusionAmt | 0 | 103390 |
| IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt | 0 | 103390 |
| IRS990/OtherRevenueTotalAmt | 0 | 103390 |
| IRS990/PartialLiquidationInd | 0 | 0 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/PoliticalCampaignActyInd | 0 | 0 |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 10000 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 10000 |
| IRS990/PrincipalOfficerNm | 0 | JAMES WOOD |
| IRS990/ProfessionalFundraisingInd | 0 | 1 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990/PYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/PYContributionsGrantsAmt | 0 | 730951 |
| IRS990/PYExcessBenefitTransInd | 0 | 0 |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 561063 |
| IRS990/PYInvestmentIncomeAmt | 0 | 3470 |
| IRS990/PYOtherExpensesAmt | 0 | 152255 |
| IRS990/PYOtherRevenueAmt | 0 | 27415 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | -23482 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 0 |
| IRS990/PYTotalExpensesAmt | 0 | 785318 |
| IRS990/PYTotalProfFndrsngExpnsAmt | 0 | 72000 |
| IRS990/PYTotalRevenueAmt | 0 | 761836 |
| IRS990/QuidProQuoContributionsInd | 0 | 0 |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 193122 |
| IRS990/RegularMonitoringEnfrcInd | 0 | 1 |
| IRS990/RelatedEntityInd | 0 | 0 |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990/ReportInvestmentsOtherSecInd | 0 | 0 |
| IRS990/ReportLandBuildingEquipmentInd | 0 | 0 |
| IRS990/ReportOtherAssetsInd | 0 | 0 |
| IRS990/ReportOtherLiabilitiesInd | 0 | 0 |
| IRS990/ReportProgramRelatedInvstInd | 0 | 1 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 732763 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 857838 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 758928 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 834888 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 824674 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 4009091 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt | 0 | 280 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 3392 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 2101 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 1735 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 25130 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 32638 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearAmt | 0 | 103390 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 27415 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 65005 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 32299 |
| IRS990ScheduleA/OtherIncome170Grp/TotalAmt | 0 | 228109 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.88300 |
| IRS990ScheduleA/PublicSupportPY170Pct | 0 | 0.90240 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 3770282 |
| IRS990ScheduleA/SubstantialContributorsTotAmt | 0 | 238809 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind | 0 | X |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 732763 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 857838 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 758928 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 834888 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 824674 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 4009091 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 4269838 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | 1 |
| IRS990ScheduleD/ExpensesNotReportedAmt | 0 | 80031 |
| IRS990ScheduleD/ExpensesNotRptFinclStmtAmt | 0 | 0 |
| IRS990ScheduleD/ExpensesSubtotalAmt | 0 | 643311 |
| IRS990ScheduleD/InvstProgramRelatedOrgGrp/BookValueAmt | 0 | 249714 |
| IRS990ScheduleD/InvstProgramRelatedOrgGrp/BookValueAmt | 1 | 50000 |
| IRS990ScheduleD/InvstProgramRelatedOrgGrp/Desc | 0 | INVESTMENT IN TRINDS, LLC |
| IRS990ScheduleD/InvstProgramRelatedOrgGrp/Desc | 1 | VALIDUS BIOPHARMA, INC. |
| IRS990ScheduleD/InvstProgramRelatedOrgGrp/MethodValuationCd | 0 | F |
| IRS990ScheduleD/InvstProgramRelatedOrgGrp/MethodValuationCd | 1 | C |
| IRS990ScheduleD/NetUnrealizedGainsInvstAmt | 0 | 2969 |
| IRS990ScheduleD/OtherExpensesIncludedAmt | 0 | 80031 |
| IRS990ScheduleD/OtherRevenueAmt | 0 | 80031 |
| IRS990ScheduleD/RevenueNotReportedAmt | 0 | 83000 |
| IRS990ScheduleD/RevenueNotReportedFinclStmtAmt | 0 | 0 |
| IRS990ScheduleD/RevenueSubtotalAmt | 0 | 836433 |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 0 | FUNDRAISING EVENTS 80,031. |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 1 | FUNDRAISING EXPENSE 80,031. |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | PART XI, LINE 2D - OTHER ADJUSTMENTS: |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | PART XII, LINE 2D - OTHER ADJUSTMENTS: |
| IRS990ScheduleD/TotalBookValueLandBuildingsAmt | 0 | 0 |
| IRS990ScheduleD/TotalBookValueProgramRltdAmt | 0 | 299714 |
| IRS990ScheduleD/TotalExpensesPerForm990Amt | 0 | 643311 |
| IRS990ScheduleD/TotalRevenuePerForm990Amt | 0 | 836433 |
| IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt | 0 | 919433 |
| IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt | 0 | 723342 |
| IRS990ScheduleG/AgrmtProfFundraisingActyInd | 0 | 1 |
| IRS990ScheduleG/EmailSolicitationsInd | 0 | X |
| IRS990ScheduleG/FundraiserActivityInfoGrp/ActivityTxt | 0 | FUND-RAISING,EVENT PLANNING, CONSULTING |
| IRS990ScheduleG/FundraiserActivityInfoGrp/FundraiserControlOfFundsInd | 0 | 0 |
| IRS990ScheduleG/FundraiserActivityInfoGrp/GrossReceiptsAmt | 0 | 812794 |
| IRS990ScheduleG/FundraiserActivityInfoGrp/NetToOrganizationAmt | 0 | 740794 |
| IRS990ScheduleG/FundraiserActivityInfoGrp/OrganizationBusinessName/BusinessNameLine1Txt | 0 | EPIPHANY PRODUCTIONS INC |
| IRS990ScheduleG/FundraiserActivityInfoGrp/RetainedByContractorAmt | 0 | 72000 |
| IRS990ScheduleG/FundraiserActivityInfoGrp/USAddress/AddressLine1Txt | 0 | 104 EAST HUME AVENUE |
| IRS990ScheduleG/FundraiserActivityInfoGrp/USAddress/CityNm | 0 | ALEXANDRIA |
| IRS990ScheduleG/FundraiserActivityInfoGrp/USAddress/StateAbbreviationCd | 0 | VA |
| IRS990ScheduleG/FundraiserActivityInfoGrp/USAddress/ZIPCd | 0 | 22301 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt | 0 | 732763 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt | 0 | 496906 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent2Amt | 0 | 48448 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriOtherEventsAmt | 0 | 187409 |
| IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt | 0 | 80031 |
| IRS990ScheduleG/FundraisingEventInformationGrp/EntertainmentOtherEventsAmt | 0 | 700 |
| IRS990ScheduleG/FundraisingEventInformationGrp/EntertainmentTotalEventsAmt | 0 | 700 |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm | 0 | DINING AWAY DUCHENNE |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event2Nm | 0 | FORE DUCHENNE |
| IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageEvent1Amt | 0 | 17000 |
| IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageTotalEventsAmt | 0 | 17000 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt | 0 | 515143 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent2Amt | 0 | 95442 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsOtherEventsAmt | 0 | 202209 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt | 0 | 812794 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt | 0 | 18237 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent2Amt | 0 | 46994 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueOtherEventsAmt | 0 | 14800 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt | 0 | 80031 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt | 0 | 0 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssOtherEventsAmt | 0 | 1841 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt | 0 | 2637 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt | 0 | 796 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherEventsTotalCnt | 0 | 4 |
| IRS990ScheduleG/FundraisingEventInformationGrp/RentFacilityCostsEvent1Amt | 0 | 441 |
| IRS990ScheduleG/FundraisingEventInformationGrp/RentFacilityCostsEvent2Amt | 0 | 46994 |
| IRS990ScheduleG/FundraisingEventInformationGrp/RentFcltyCostsOtherEventsAmt | 0 | 12259 |
| IRS990ScheduleG/FundraisingEventInformationGrp/RentFcltyCostsTotalEventsAmt | 0 | 59694 |
| IRS990ScheduleG/InPersonSolicitationsInd | 0 | X |
| IRS990ScheduleG/LicensedStatesCd | 0 | CA |
| IRS990ScheduleG/LicensedStatesCd | 1 | CT |
| IRS990ScheduleG/LicensedStatesCd | 2 | DC |
| IRS990ScheduleG/LicensedStatesCd | 3 | FL |
| IRS990ScheduleG/LicensedStatesCd | 4 | IL |
| IRS990ScheduleG/LicensedStatesCd | 5 | KY |
| IRS990ScheduleG/LicensedStatesCd | 6 | MD |
| IRS990ScheduleG/LicensedStatesCd | 7 | MN |
| IRS990ScheduleG/LicensedStatesCd | 8 | MO |
| IRS990ScheduleG/LicensedStatesCd | 9 | NC |
| IRS990ScheduleG/LicensedStatesCd | 10 | NJ |
| IRS990ScheduleG/LicensedStatesCd | 11 | OH |
| IRS990ScheduleG/MailSolicitationsInd | 0 | X |
| IRS990ScheduleG/PhoneSolicitationsInd | 0 | X |
| IRS990ScheduleG/SolicitationOfNonGovtGrantsInd | 0 | X |
| IRS990ScheduleG/SpecialFundraisingEventsInd | 0 | X |
| IRS990ScheduleG/TotalGrossReceiptsAmt | 0 | 812794 |
| IRS990ScheduleG/TotalNetToOrganizationAmt | 0 | 740794 |
| IRS990ScheduleG/TotalRetainedByContractorsAmt | 0 | 72000 |
| IRS990ScheduleI/GrantRecordsMaintainedInd | 0 | 1 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 0 | 30000 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 1 | 39447 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 2 | 215108 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 3 | 90000 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 4 | 101000 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 0 | 501(C)(3) |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 1 | 501(C)(3) |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 2 | 501(C)(3) |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 3 | 501(C)(3) |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 4 | 501(C)(3) |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 0 | FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 1 | FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 2 | FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 3 | FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 4 | FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 0 | PARENT PROJECT MUSCULAR DYSTROPHY |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 1 | RESEARCH FOUNDATION FOR SUNY |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 2 | UNIVERSITY OF PITTSBURGH |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 3 | EMORY UNIVERSITY |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 4 | CHILDREN'S RESEARCH INSTITUTE |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 0 | 311405490 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 1 | 141368361 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 2 | 250965591 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 3 | 580566256 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 4 | 521654453 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 0 | 401 HACKENSACK AVE 9TH FL |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 1 | PO BOX 6000 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 2 | BIOMEDICAL SCIENCE TOWER - SOUTH |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 3 | 1762 CLIFTON ROAD NORTHEAST SUITE |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 4 | 1 INVENTA PLACE WEST TOWER THIRD |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine2Txt | 0 | SUITE S547 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine2Txt | 1 | 1400 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine2Txt | 2 | FLOOR |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 0 | HACKENSACK |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 1 | BINGHAMPTON |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 2 | PITTSBURGH |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 3 | ATLANTA |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 4 | SILVER SPRING |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 0 | NJ |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 1 | NY |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 2 | PA |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 3 | GA |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 4 | MD |
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Displayed year
2020 • Form 990Detailed filing. Detailed filing data is available for this year.