Liabilities / Assets
46th percentile
Higher debt load relative to assets than 46% of similar nonprofits.
990 • Fiscal year 2017 • EIN 71-0874241
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
46th percentile
Higher debt load relative to assets than 46% of similar nonprofits.
Liabilities / Revenue
36th percentile
Higher debt load relative to revenue than 36% of similar nonprofits.
Net Margin
21st percentile
Higher net margin than 21% of similar nonprofits.
Top Officer Pay
49th percentile
Higher top officer pay than 49% of similar nonprofits.
Top officer pay equals 0.0% of source-year revenue.
Asset Growth
9th percentile
Faster asset growth than 9% of similar nonprofits.
Revenue Growth
44th percentile
Faster revenue growth than 44% of similar nonprofits.
Assets
Down$279,620
Down $64,654 (-19%) from 2016
Net Assets
Down$272,783
Down $70,419 (-21%) from 2016
Liabilities
Up$6,837
Up $5,765 (+538%) from 2016
Revenue
Up$745,876
Up $12,887 (+1.8%) from 2016
Expenses
Down$819,071
Down $107,620 (-12%) from 2016
Net Income
Up-$73,195
Up $120,507 (+62%) from 2016
The organization's mission is to provide research grants to fund aggressive research into treatments for duchenne muscular dystrophy and to support the effort to treat, and ultimately cure, this disease.
To fund research into treatments for duchenne muscular dystrophy, in hopes of finding a cure.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Investments Program Related | $149,209 | $131,508 | ▼ $17,701 |
| Cash and Non-Interest-Bearing Accounts | $147,957 | $114,531 | ▼ $33,426 |
| Investments in Publicly Traded Securities | $19,820 | $23,581 | ▲ $3,761 |
| Accounts Receivable | $20,000 | $0 | ▼ $20,000 |
| Prepaid Expenses and Deferred Charges | $7,288 | $10,000 | ▲ $2,712 |
| Total Assets | $344,274 | $279,620 | ▼ $64,654 |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $1,072 | $6,837 | ▲ $5,765 |
| Total Liabilities | $1,072 | $6,837 | ▲ $5,765 |
| Net Assets / Fund Balance | |||
| Unrestricted Net Assets | $238,202 | $165,283 | ▼ $72,919 |
| Temporarily Rstr Net Assets | $105,000 | $107,500 | ▲ $2,500 |
| Total Net Assets Fund Balance | $343,202 | $272,783 | ▼ $70,419 |
| Total Liabilities and Net Assets / Fund Balance | $344,274 | $279,620 | ▼ $64,654 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Investment Program Related Org | $50,000 | - | - |
| Name | Title |
|---|---|
| Joel R Wood | President/chairman |
| Brad Todd | Director |
| Dan Carson | Director |
| Scott Sinder | Secretary |
| James Wood | Treasurer |
| Contractor | Services | Location | Compensation |
|---|---|---|---|
| Epiphany Productions INC | Fundraising & Administrative | 104 EAST HUME AVENUE, Alexandria, VA 22301 | $120,000 |
| Line Item | Amount |
|---|---|
| Grants and Similar Amounts Paid | $656,246 |
| Other Expenses | $90,825 |
| Total Fundraising Expense | $76,200 |
| Professional Fundraising Fees | $72,000 |
| Salaries, Compensation, and Employee Benefits | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Grants to Domestic Orgs | $595,572 | - | - | $595,572 |
| Fees for Services Professional Fundraising | - | - | $72,000 | $72,000 |
| Foreign Grants | $60,674 | - | - | $60,674 |
| Other Expenses | - | $48,000 | - | $48,000 |
| Fees for Services Management | $25,000 | - | - | $25,000 |
| Office Expenses | $1,233 | $8,032 | - | $9,265 |
| Fees for Services Other | - | $2,200 | $4,200 | $6,400 |
| Fees for Services Accounting | - | $2,000 | - | $2,000 |
| Travel | - | $160 | - | $160 |
| Total Functional Expenses | $682,479 | $60,392 | $76,200 | $819,071 |
| Line Item | Amount |
|---|---|
| Total Expenses per Audited Statements | $942,117 |
| Expenses per Audited Statements | $819,071 |
| Total Expenses per Form 990 | $819,071 |
| Expenses Not Reported on Form 990 | $123,046 |
| Expenses Not Reported on Financial Statements | $0 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| University of Pittsburgh | Pittsburgh, PA | 501(c)(3) | Fund Research for Treatment of Duchenne Muscular Dystrophy | $289,299 |
| CHILDREN'S NATIONAL MEDICAL CENTER | Washington, DC | 501(c)(3) | Fund Research for Treatment of Duchenne Muscular Dystrophy | $181,273 |
| Parent Project Muscular Dystrophy | Hackensack, NJ | 501(c)(3) | Fund Research for Treatment of Duchenne Muscular Dystrophy | $100,000 |
| Binghampton University Foundation | Binghampton, NY | 501(c)(3) | Fund Research for Treatment of Duchenne Muscular Dystrophy | $25,000 |
| Line Item | Amount |
|---|---|
| Fundraising Direct Expenses | $123,046 |
| Fundraising Gross Income | $123,046 |
| Professional Fundraising Fees | $72,000 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Dining Away Duchenne | $563,530 | $83,739 | $2,296 | $81,443 |
| Fore Duchenne | $114,156 | $20,868 | $1,803 | $19,065 |
| Total Events | $834,888 | $123,046 | $123,046 | $0 |
“James e. Wood (president) and joel wood (treasurer) are brothers.”
“The treasurer of the foundation, james e. Wood, presents the prepared form 990 to the governing body. The information contained in the form 990 is reviewed and explained and any questions posed are answered. After the governing body has reviewed the form 990 and agrees with the information contained therein, the form 990 is filed with the internal revenue service.”
“The affiliations of the board members and officers are regularly monitored to ensure that no conflicts of interest occur, either perceived or actual, with respect to the foundation to eradicate duchenne and those charged with its governance. The board members are provided a copy of the policy and review and disclose any conflicts on an annual basis. Any issues are brought to the board, discussed and reported in the board minutes.”
“The organization makes its governing documents, conflict of interest policy and financial statements available to the general public upon request.”
“The auditor meets with the board of directors making a full presentation at the completion of the audit for the year answering any of the board's questions. The auditor works closely with the board of directors during the year should any concerns arise.”
“Fundraising events 123,046.”
“Fundraising expense 123,046.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 1072 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 6837 |
| IRS990/AccountsReceivableGrp/BOYAmt | 0 | 20000 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 0 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | TO FUND RESEARCH INTO TREATMENTS FOR DUCHENNE MUSCULAR DYSTROPHY, IN HOPES OF FINDING A CURE. |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 1 |
| IRS990/AuditCommitteeInd | 0 | 1 |
| IRS990/BackupWthldComplianceInd | 0 | 1 |
| IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt | 0 | PEGGY LIVELY |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 7036837500 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 104 EAST HUME AVE |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | ALEXANDRIA |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | VA |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 22301 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOfficerEntInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 147957 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 114531 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 1 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 0 |
| IRS990/CompensationProcessOtherInd | 0 | 0 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 1 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/ContractorCompensationGrp/CompensationAmt | 0 | 120000 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt | 0 | 104 EAST HUME AVENUE |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm | 0 | ALEXANDRIA |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd | 0 | VA |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd | 0 | 22301 |
| IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt | 0 | EPIPHANY PRODUCTIONS INC |
| IRS990/ContractorCompensationGrp/ServicesDesc | 0 | FUNDRAISING & ADMINISTRATIVE |
| IRS990/ContriRptFundraisingEventAmt | 0 | 711842 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 711842 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 656246 |
| IRS990/CYInvestmentIncomeAmt | 0 | 1735 |
| IRS990/CYOtherExpensesAmt | 0 | 90825 |
| IRS990/CYOtherRevenueAmt | 0 | 32299 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | -73195 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 0 |
| IRS990/CYTotalExpensesAmt | 0 | 819071 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 76200 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 72000 |
| IRS990/CYTotalRevenueAmt | 0 | 745876 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 0 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 0 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/Desc | 0 | THE ORGANIZATION AWARDED RESEARCH GRANTS IN THE AMOUNT OF $656,246 DURING 2017. THESE GRANTS WERE AWARDED TO FUND THE DEVELOPMENT OF POTENTIAL THERAPIES FOR DUCHENNE MUSCULAR DYSTROPHY UTILIZING STRATEGIES DESIGNED TO REPAIR THE GENETIC FLAW OF THIS CATASTROPHIC, SINGLE-GENE-DEFECT DISORDER; SUPPORT ACADEMIC RESEARCH INSTITUTIONS IN EFFORTS TO BRING THERAPIES TO THE MARKETPLACE THAT WOULD COMPENSATE FOR THE LACK OF A PROTEIN ESSENTIAL IN MUSCLE REGENERATION AND REPAIR; AND FUND SCIENTIFIC WORKSHOPS FOR LEADING MUSCLE RESEARCHERS AND CLINICIANS TO EFFECTIVELY COLLABORATE ON STRATEGIES FOR TRANSLATION APPROACHES TO MUSCULAR DYSTROPHY. |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 1 |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 0 |
| IRS990/EmployeeCnt | 0 | 0 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 682479 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 1 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 2000 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 2000 |
| IRS990/FeesForServicesManagementGrp/ProgramServicesAmt | 0 | 25000 |
| IRS990/FeesForServicesManagementGrp/TotalAmt | 0 | 25000 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 4200 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 2200 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 6400 |
| IRS990/FeesForServicesProfFundraising/FundraisingAmt | 0 | 72000 |
| IRS990/FeesForServicesProfFundraising/TotalAmt | 0 | 72000 |
| IRS990/ForeignActivitiesInd | 0 | 0 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignGrantsGrp/ProgramServicesAmt | 0 | 60674 |
| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 60674 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 10.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | JOEL R WOOD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | SCOTT SINDER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | JAMES WOOD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | DAN CARSON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | BRAD TODD |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | PRESIDENT/CHAIRMAN |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | TREASURER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | DIRECTOR |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 1 |
| IRS990/FormationYr | 0 | 2002 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | 1 |
| IRS990/FundraisingActivitiesInd | 0 | 1 |
| IRS990/FundraisingAmt | 0 | 711842 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 123046 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 123046 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 5 |
| IRS990/GrantAmt | 0 | 656246 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 595572 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 595572 |
| IRS990/GrantsToIndividualsInd | 0 | 0 |
| IRS990/GrantsToOrganizationsInd | 0 | 1 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossReceiptsAmt | 0 | 868922 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 0 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 1 |
| IRS990/IndependentVotingMemberCnt | 0 | 5 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InfoInScheduleOPartXIIInd | 0 | X |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 1735 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 1735 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/InvestmentsProgramRelatedGrp/BOYAmt | 0 | 149209 |
| IRS990/InvestmentsProgramRelatedGrp/EOYAmt | 0 | 131508 |
| IRS990/InvestmentsPubTradedSecGrp/BOYAmt | 0 | 19820 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 23581 |
| IRS990/IRPDocumentCnt | 0 | 12 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LegalDomicileStateCd | 0 | VA |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 0 |
| IRS990/LocalChaptersInd | 0 | 0 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembersOrStockholdersInd | 0 | 0 |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | THE ORGANIZATION'S MISSION IS TO PROVIDE RESEARCH GRANTS TO FUND AGGRESSIVE RESEARCH INTO TREATMENTS FOR DUCHENNE MUSCULAR DYSTROPHY AND TO SUPPORT THE EFFORT TO TREAT, AND ULTIMATELY CURE, THIS DISEASE. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
| IRS990/MoreThan5000KToOrgInd | 0 | 1 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 343202 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 272783 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | 2776 |
| IRS990/NoListedPersonsCompensatedInd | 0 | X |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 8032 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 1233 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 9265 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsSFAS117Ind | 0 | X |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherExpensesGrp/Desc | 0 | ADMINISTRATIVE EXPENSE |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 48000 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 48000 |
| IRS990/OtherRevenueMiscGrp/BusinessCd | 0 | 900099 |
| IRS990/OtherRevenueMiscGrp/Desc | 0 | TRINDS LLC K-1 |
| IRS990/OtherRevenueMiscGrp/ExclusionAmt | 0 | 32299 |
| IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt | 0 | 32299 |
| IRS990/OtherRevenueTotalAmt | 0 | 32299 |
| IRS990/PartialLiquidationInd | 0 | 0 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/PoliticalCampaignActyInd | 0 | 0 |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 7288 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 10000 |
| IRS990/PrincipalOfficerNm | 0 | JOEL R WOOD |
| IRS990/ProfessionalFundraisingInd | 0 | 1 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990/PYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/PYContributionsGrantsAmt | 0 | 707859 |
| IRS990/PYExcessBenefitTransInd | 0 | 0 |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 758927 |
| IRS990/PYInvestmentIncomeAmt | 0 | 25921 |
| IRS990/PYOtherExpensesAmt | 0 | 95764 |
| IRS990/PYOtherRevenueAmt | 0 | -791 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | -193702 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 0 |
| IRS990/PYTotalExpensesAmt | 0 | 926691 |
| IRS990/PYTotalProfFndrsngExpnsAmt | 0 | 72000 |
| IRS990/PYTotalRevenueAmt | 0 | 732989 |
| IRS990/QuidProQuoContributionsInd | 0 | 0 |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | -73195 |
| IRS990/RegularMonitoringEnfrcInd | 0 | 1 |
| IRS990/RelatedEntityInd | 0 | 0 |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990/ReportInvestmentsOtherSecInd | 0 | 0 |
| IRS990/ReportLandBuildingEquipmentInd | 0 | 0 |
| IRS990/ReportOtherAssetsInd | 0 | 0 |
| IRS990/ReportOtherLiabilitiesInd | 0 | 0 |
| IRS990/ReportProgramRelatedInvstInd | 0 | 1 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 834888 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 824674 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 867087 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 1010064 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 802873 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 4339586 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt | 0 | 1735 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 25130 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 714 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 631 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 505 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 28715 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearAmt | 0 | 32299 |
| IRS990ScheduleA/OtherIncome170Grp/TotalAmt | 0 | 32299 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.89840 |
| IRS990ScheduleA/PublicSupportPY170Pct | 0 | 0.89660 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 3953622 |
| IRS990ScheduleA/SubstantialContributorsTotAmt | 0 | 385964 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind | 0 | X |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 834888 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 824674 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 867087 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 1010064 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 802873 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 4339586 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 4400600 |
| IRS990/ScheduleBRequiredInd | 0 | 1 |
| IRS990ScheduleD/ExpensesNotReportedAmt | 0 | 123046 |
| IRS990ScheduleD/ExpensesNotRptFinclStmtAmt | 0 | 0 |
| IRS990ScheduleD/ExpensesSubtotalAmt | 0 | 819071 |
| IRS990ScheduleD/InvstProgramRelatedOrgGrp/BookValueAmt | 0 | 81508 |
| IRS990ScheduleD/InvstProgramRelatedOrgGrp/BookValueAmt | 1 | 50000 |
| IRS990ScheduleD/InvstProgramRelatedOrgGrp/Desc | 0 | INVESTMENT IN TRINDS, LLC |
| IRS990ScheduleD/InvstProgramRelatedOrgGrp/Desc | 1 | VALIDUS BIOPHARMA, INC. |
| IRS990ScheduleD/InvstProgramRelatedOrgGrp/MethodValuationCd | 0 | F |
| IRS990ScheduleD/InvstProgramRelatedOrgGrp/MethodValuationCd | 1 | C |
| IRS990ScheduleD/NetUnrealizedGainsInvstAmt | 0 | 2776 |
| IRS990ScheduleD/OtherExpensesIncludedAmt | 0 | 123046 |
| IRS990ScheduleD/OtherRevenueAmt | 0 | 123046 |
| IRS990ScheduleD/RevenueNotReportedAmt | 0 | 125822 |
| IRS990ScheduleD/RevenueNotReportedFinclStmtAmt | 0 | 0 |
| IRS990ScheduleD/RevenueSubtotalAmt | 0 | 745876 |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 0 | FUNDRAISING EVENTS 123,046. |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 1 | FUNDRAISING EXPENSE 123,046. |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | PART XI, LINE 2D - OTHER ADJUSTMENTS: |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | PART XII, LINE 2D - OTHER ADJUSTMENTS: |
| IRS990ScheduleD/TotalBookValueLandBuildingsAmt | 0 | 0 |
| IRS990ScheduleD/TotalBookValueProgramRltdAmt | 0 | 131508 |
| IRS990ScheduleD/TotalExpensesPerForm990Amt | 0 | 819071 |
| IRS990ScheduleD/TotalRevenuePerForm990Amt | 0 | 745876 |
| IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt | 0 | 871698 |
| IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt | 0 | 942117 |
| IRS990ScheduleF/BoycottCountriesInd | 0 | 0 |
| IRS990ScheduleF/ContinuationSpentAmt | 0 | 0 |
| IRS990ScheduleF/ContinuationTotalEmployeeCnt | 0 | 0 |
| IRS990ScheduleF/ContinuationTotalOfficeCnt | 0 | 0 |
| IRS990ScheduleF/ForeignCorpOwnershipInd | 0 | 0 |
| IRS990ScheduleF/ForeignPartnershipInd | 0 | 0 |
| IRS990ScheduleF/GrantRecordsMaintainedInd | 0 | 0 |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt | 0 | 60574 |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt | 0 | FUND RESEARCH FOR THE TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt | 0 | NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES |
| IRS990ScheduleF/InterestInForeignTrustInd | 0 | 0 |
| IRS990ScheduleF/PassiveForeignInvestmestCoInd | 0 | 0 |
| IRS990ScheduleF/SubtotalEmployeesCnt | 0 | 0 |
| IRS990ScheduleF/SubtotalOfficesCnt | 0 | 0 |
| IRS990ScheduleF/SubtotalSpentAmt | 0 | 0 |
| IRS990ScheduleF/Total501c3OrgCnt | 0 | 1 |
| IRS990ScheduleF/TotalEmployeeCnt | 0 | 0 |
| IRS990ScheduleF/TotalOfficeCnt | 0 | 0 |
| IRS990ScheduleF/TotalOtherOrgCnt | 0 | 1 |
| IRS990ScheduleF/TotalSpentAmt | 0 | 0 |
| IRS990ScheduleF/TransferToForeignCorpInd | 0 | 0 |
| IRS990ScheduleG/AgrmtProfFundraisingActyInd | 0 | 1 |
| IRS990ScheduleG/EmailSolicitationsInd | 0 | X |
| IRS990ScheduleG/FundraiserActivityInfoGrp/ActivityTxt | 0 | FUND-RAISING,EVENT PLANNING, CONSULTING |
| IRS990ScheduleG/FundraiserActivityInfoGrp/FundraiserControlOfFundsInd | 0 | 0 |
| IRS990ScheduleG/FundraiserActivityInfoGrp/GrossReceiptsAmt | 0 | 834888 |
| IRS990ScheduleG/FundraiserActivityInfoGrp/NetToOrganizationAmt | 0 | 762888 |
| IRS990ScheduleG/FundraiserActivityInfoGrp/OrganizationBusinessName/BusinessNameLine1Txt | 0 | EPIPHANY PRODUCTIONS INC |
| IRS990ScheduleG/FundraiserActivityInfoGrp/RetainedByContractorAmt | 0 | 72000 |
| IRS990ScheduleG/FundraiserActivityInfoGrp/USAddress/AddressLine1Txt | 0 | 104 EAST HUME AVENUE |
| IRS990ScheduleG/FundraiserActivityInfoGrp/USAddress/CityNm | 0 | ALEXANDRIA |
| IRS990ScheduleG/FundraiserActivityInfoGrp/USAddress/StateAbbreviationCd | 0 | VA |
| IRS990ScheduleG/FundraiserActivityInfoGrp/USAddress/ZIPCd | 0 | 22301 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt | 0 | 711842 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt | 0 | 479791 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent2Amt | 0 | 93288 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriOtherEventsAmt | 0 | 138763 |
| IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt | 0 | 123046 |
| IRS990ScheduleG/FundraisingEventInformationGrp/EntertainmentEvent1Amt | 0 | 66 |
| IRS990ScheduleG/FundraisingEventInformationGrp/EntertainmentEvent2Amt | 0 | 18811 |
| IRS990ScheduleG/FundraisingEventInformationGrp/EntertainmentOtherEventsAmt | 0 | 7802 |
| IRS990ScheduleG/FundraisingEventInformationGrp/EntertainmentTotalEventsAmt | 0 | 26679 |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm | 0 | DINING AWAY DUCHENNE |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event2Nm | 0 | FORE DUCHENNE |
| IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageEvent1Amt | 0 | 8500 |
| IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageEvent2Amt | 0 | 254 |
| IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageOtherEventsAmt | 0 | 3276 |
| IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageTotalEventsAmt | 0 | 12030 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt | 0 | 563530 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent2Amt | 0 | 114156 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsOtherEventsAmt | 0 | 157202 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt | 0 | 834888 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt | 0 | 83739 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent2Amt | 0 | 20868 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueOtherEventsAmt | 0 | 18439 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt | 0 | 123046 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt | 0 | 0 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssOtherEventsAmt | 0 | 4036 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt | 0 | 8135 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt | 0 | 2296 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent2Amt | 0 | 1803 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherEventsTotalCnt | 0 | 4 |
| IRS990ScheduleG/FundraisingEventInformationGrp/RentFacilityCostsEvent1Amt | 0 | 72877 |
| IRS990ScheduleG/FundraisingEventInformationGrp/RentFcltyCostsOtherEventsAmt | 0 | 3325 |
| IRS990ScheduleG/FundraisingEventInformationGrp/RentFcltyCostsTotalEventsAmt | 0 | 76202 |
| IRS990ScheduleG/InPersonSolicitationsInd | 0 | X |
| IRS990ScheduleG/LicensedStatesCd | 0 | CA |
| IRS990ScheduleG/LicensedStatesCd | 1 | CT |
| IRS990ScheduleG/LicensedStatesCd | 2 | DC |
| IRS990ScheduleG/LicensedStatesCd | 3 | FL |
| IRS990ScheduleG/LicensedStatesCd | 4 | IL |
| IRS990ScheduleG/LicensedStatesCd | 5 | KY |
| IRS990ScheduleG/LicensedStatesCd | 6 | MD |
| IRS990ScheduleG/LicensedStatesCd | 7 | MN |
| IRS990ScheduleG/LicensedStatesCd | 8 | MO |
| IRS990ScheduleG/LicensedStatesCd | 9 | NC |
| IRS990ScheduleG/LicensedStatesCd | 10 | NJ |
| IRS990ScheduleG/LicensedStatesCd | 11 | NY |
| IRS990ScheduleG/LicensedStatesCd | 12 | OH |
| IRS990ScheduleG/LicensedStatesCd | 13 | PA |
| IRS990ScheduleG/LicensedStatesCd | 14 | SC |
| IRS990ScheduleG/LicensedStatesCd | 15 | TN |
| IRS990ScheduleG/LicensedStatesCd | 16 | VA |
| IRS990ScheduleG/LicensedStatesCd | 17 | WI |
| IRS990ScheduleG/MailSolicitationsInd | 0 | X |
| IRS990ScheduleG/PhoneSolicitationsInd | 0 | X |
| IRS990ScheduleG/SolicitationOfNonGovtGrantsInd | 0 | X |
| IRS990ScheduleG/SpecialFundraisingEventsInd | 0 | X |
| IRS990ScheduleG/TotalGrossReceiptsAmt | 0 | 834888 |
| IRS990ScheduleG/TotalNetToOrganizationAmt | 0 | 762888 |
| IRS990ScheduleG/TotalRetainedByContractorsAmt | 0 | 72000 |
| IRS990ScheduleI/GrantRecordsMaintainedInd | 0 | 1 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 0 | 100000 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 1 | 289299 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 2 | 181273 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 3 | 25000 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 0 | 501(C)(3) |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 1 | 501(C)(3) |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 2 | 501(C)(3) |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 3 | 501(C)(3) |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 0 | FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 1 | FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 2 | FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 3 | FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 0 | PARENT PROJECT MUSCULAR DYSTROPHY |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 1 | UNIVERSITY OF PITTSBURGH |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 2 | CHILDREN'S NATIONAL MEDICAL CENTER |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 3 | BINGHAMPTON UNIVERSITY FOUNDATION |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 0 | 311405490 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 1 | 250965591 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 2 | 521640402 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 3 | 541774403 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 0 | 401 HACKENSACK AVE 9TH FL |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 1 | 200 LOTHROP STREET |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 2 | 111 MICHIGAN AVE NW |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 3 | POST OFFICE BOX 6005 |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 0 | HACKENSACK |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 1 | PITTSBURGH |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 2 | WASHINGTON |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 3 | BINGHAMPTON |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 0 | NJ |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 1 | PA |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 2 | DC |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 3 | NY |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 0 | 07601 |
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Displayed year
2017 • Form 990Detailed filing. Detailed filing data is available for this year.