Liabilities / Assets
34th percentile
Higher debt load relative to assets than 34% of similar nonprofits.
990 • Fiscal year 2013 • EIN 71-0874241
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
34th percentile
Higher debt load relative to assets than 34% of similar nonprofits.
Liabilities / Revenue
28th percentile
Higher debt load relative to revenue than 28% of similar nonprofits.
Net Margin
24th percentile
Higher net margin than 24% of similar nonprofits.
Top Officer Pay
49th percentile
Higher top officer pay than 49% of similar nonprofits.
Top officer pay equals 0.0% of source-year revenue.
Asset Growth
9th percentile
Faster asset growth than 9% of similar nonprofits.
Revenue Growth
14th percentile
Faster revenue growth than 14% of similar nonprofits.
Assets
Down$180,000
Down $48,413 (-21%) from 2012
Net Assets
Down$178,444
Down $49,742 (-22%) from 2012
Liabilities
Up$1,556
Up $1,329 (+585%) from 2012
Revenue
Down$712,926
Down $155,941 (-18%) from 2012
Expenses
Down$766,590
Down $156,735 (-17%) from 2012
Net Income
Up-$53,664
Up $794 (+1.5%) from 2012
The organization's mission is to provide research grants to fund aggressive research into treatments for duchenne muscular dystrophy and to support the effort to treat, and ultimately cure, this disease.
To fund research into treatments for duchenne muscular dystrophy, in hopes of finding a cure.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $153,047 | $105,704 | ▼ $47,343 |
| Investments Program Related | $50,000 | $50,000 | → $0 |
| Investments in Publicly Traded Securities | $10,366 | $14,296 | ▲ $3,930 |
| Prepaid Expenses and Deferred Charges | $15,000 | $10,000 | ▼ $5,000 |
| Total Assets | $228,413 | $180,000 | ▼ $48,413 |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $227 | $1,556 | ▲ $1,329 |
| Total Liabilities | $227 | $1,556 | ▲ $1,329 |
| Net Assets / Fund Balance | |||
| Unrestricted Net Assets | $228,186 | $178,444 | ▼ $49,742 |
| Total Net Assets Fund Balance | $228,186 | $178,444 | ▼ $49,742 |
| Total Liabilities and Net Assets / Fund Balance | $228,413 | $180,000 | ▼ $48,413 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Investment Program Related Org | $50,000 | - | - |
| Name | Title |
|---|---|
| Joel Wood | President |
| Brad Todd | Director |
| Dan Carson | Director |
| Scott Sinder | Secretary |
| James WOOD | Treasurer |
| Contractor | Services | Location | Compensation |
|---|---|---|---|
| Epiphany Productions INC | Fundraising & Administrative | - | $120,000 |
| Line Item | Amount |
|---|---|
| Grants and Similar Amounts Paid | $505,000 |
| Other Expenses | $189,590 |
| Total Fundraising Expense | $101,408 |
| Professional Fundraising Fees | $72,000 |
| Salaries, Compensation, and Employee Benefits | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Grants to Domestic Orgs | $505,000 | - | - | $505,000 |
| Fees for Services Professional Fundraising | - | - | $72,000 | $72,000 |
| Fees for Services Lobbying | $60,000 | - | - | $60,000 |
| Fees for Services Management | $25,000 | - | - | $25,000 |
| Fees for Services Other | - | - | $18,473 | $18,473 |
| Fees for Services Accounting | - | $9,240 | - | $9,240 |
| Office Expenses | $1,237 | $6,579 | - | $7,816 |
| Travel | $1,576 | - | $2,770 | $4,346 |
| Other Expenses | - | $8,550 | $350 | $350 |
| Total Functional Expenses | $592,813 | $72,369 | $101,408 | $766,590 |
| Line Item | Amount |
|---|---|
| Total Expenses per Audited Statements | $857,042 |
| Expenses per Audited Statements | $766,590 |
| Total Expenses per Form 990 | $766,590 |
| Expenses Not Reported on Form 990 | $90,452 |
| Expenses Not Reported on Financial Statements | $0 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| 52-1640402 | - | 501(c)(3) | Fund research for treatment of Duchenne Muscular Dystrophy | $480,000 |
| 26-3808415 | - | 501(c)(3) | Fund research for treatment of Duchenne Muscular Dystrophy | $20,000 |
| 31-1405490 | - | 501(c)(3) | Fund research for treatment of Duchenne Muscular Dystrophy | $5,000 |
| Line Item | Amount |
|---|---|
| Fundraising Direct Expenses | $90,452 |
| Fundraising Gross Income | $90,452 |
| Professional Fundraising Fees | $72,000 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Event 1 | $469,115 | $73,195 | $73,195 | $0 |
| Event 2 | $122,827 | $17,257 | $17,257 | $0 |
| Total Events | $802,873 | $90,452 | $90,452 | $0 |
| Line Item | Amount |
|---|---|
| Political Expenditures | $60,000 |
| Interested Party | Relationship | Description | Shared Revenue | Amount |
|---|---|---|---|---|
| - | James Wood (Treasurer) is a member of the CPA firm | Tax Services | No | $3,240 |
“James e. Wood (president) and joel wood (treasurer) are brothers.”
“The treasurer of the foundation, james e. Wood, presents the prepared form 990 to the governing body. The information contained in the form 990 is reviewed and explained and any questions posed are answered. After the governing body has reviewed the form 990 and agrees with the information contained therein, the form 990 is filed with the internal revenue service.”
“The affiliations of the board members and officers are regularly monitored to ensure that no conflicts of interest occur, either perceived or actual, with respect to the foundation to eradicate duchenne and those charged with its governance.”
“UPON REQUEST.”
“Unrealized gain on investments 3,922.”
“The auditor meets with the Board of Directors making a full presentation at the completion of the audit for the year answering any of the Board's questions. The auditor works closely with the Board of Directors during the year should any concerns arise.”
“Fundraising Events 90,452.”
“Fundraising Events 90,452.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 227 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 1556 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | TO FUND RESEARCH INTO TREATMENTS FOR DUCHENNE MUSCULAR DYSTROPHY, IN HOPES OF FINDING A CURE. |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 1 |
| IRS990/AuditCommitteeInd | 0 | 1 |
| IRS990/BackupWthldComplianceInd | 0 | 1 |
| IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1 | 0 | peggy lively |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 7036837500 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1 | 0 | 104 EAST HUME AVE |
| IRS990/BooksInCareOfDetail/USAddress/City | 0 | ALEXANDRIA |
| IRS990/BooksInCareOfDetail/USAddress/State | 0 | VA |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCode | 0 | 22301 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 1 |
| IRS990/BusinessRlnWithOfficerEntInd | 0 | 1 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 1 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 153047 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 105704 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 1 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 0 |
| IRS990/CompensationProcessOtherInd | 0 | 0 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 1 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/ContractorCompensationGrp/CompensationAmt | 0 | 120000 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1 | 0 | 104 EAST HUME AVENUE |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/City | 0 | ALEXANDRIA |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/State | 0 | VA |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCode | 0 | 22301 |
| IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1 | 0 | EPIPHANY PRODUCTIONS INC |
| IRS990/ContractorCompensationGrp/ServicesDesc | 0 | FUNDRAISING & ADMINISTRATIVE |
| IRS990/ContriRptFundraisingEventAmt | 0 | 712421 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 712421 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 505000 |
| IRS990/CYInvestmentIncomeAmt | 0 | 505 |
| IRS990/CYOtherExpensesAmt | 0 | 189590 |
| IRS990/CYOtherRevenueAmt | 0 | 0 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | -53664 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 0 |
| IRS990/CYTotalExpensesAmt | 0 | 766590 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 101408 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 72000 |
| IRS990/CYTotalRevenueAmt | 0 | 712926 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 0 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 0 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/Desc | 0 | THE ORGANIZATION AWARDED RESEARCH GRANTS IN THE AMOUNT OF $505,000 DURING 2013. THESE GRANTS WERE AWARDED TO FUND THE DEVELOPMENT OF POTENTIAL THERAPIES FOR DUCHENNE MUSCULAL DYSTROPHY UTILIZING STRATEGIES DESIGNED TO REPAIR THE GENETIC FLAW OF THIS CATASTROPHIC, SINGLE-GENE-DEFECT DISORDER; SUPPORT ACADEMIC RESEARCH INSTITUTIONS IN EFFORTS TO BRING THERAPIES TO THE MARKETPLACE THAT WOULD COMPENSATE FOR THE LACK OF A PROTEIN ESSENTIAL IN MUSCLE REGENERATION AND REPAIR; AND FUND SCIENTIFIC WORKSHOPS FOR LEADING MUSCLE RESEARCHERS AND CLINICIANS TO EFFECTIVELY COLLABORATE ON STRATEGIES FOR TRANSLATION APPROACHES TO MUSCULAR DYSTROPHY. |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DistributionToDonorInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 1 |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 0 |
| IRS990/EmployeeCnt | 0 | 0 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExcessBusinessHoldingsInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 592813 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 1 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 9240 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 9240 |
| IRS990/FeesForServicesLobbyingGrp/ProgramServicesAmt | 0 | 60000 |
| IRS990/FeesForServicesLobbyingGrp/TotalAmt | 0 | 60000 |
| IRS990/FeesForServicesManagementGrp/ProgramServicesAmt | 0 | 25000 |
| IRS990/FeesForServicesManagementGrp/TotalAmt | 0 | 25000 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 18473 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 18473 |
| IRS990/FeesForServicesProfFundraising/FundraisingAmt | 0 | 72000 |
| IRS990/FeesForServicesProfFundraising/TotalAmt | 0 | 72000 |
| IRS990/ForeignActivitiesInd | 0 | 0 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 10.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | JOEL WOOD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | SCOTT SINDER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | James WOOD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | DAN CARSON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | BRAD TODD |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | PRESIDENT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | TREASURER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | DIRECTOR |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 1 |
| IRS990/FormationYr | 0 | 2002 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedBasisGrp/ConsolidatedBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | 1 |
| IRS990/FundraisingActivitiesInd | 0 | 1 |
| IRS990/FundraisingAmt | 0 | 712421 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 90452 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 90452 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 5 |
| IRS990/GrantAmt | 0 | 505000 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 505000 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 505000 |
| IRS990/GrantsToIndividualsInd | 0 | 0 |
| IRS990/GrantsToOrganizationsInd | 0 | 1 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossReceiptsAmt | 0 | 803378 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 0 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 1 |
| IRS990/IndependentVotingMemberCnt | 0 | 5 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InfoInScheduleOPartXIIInd | 0 | X |
| IRS990/InfoInScheduleOPartXIInd | 0 | X |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 505 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 505 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/InvestmentsProgramRelatedGrp/BOYAmt | 0 | 50000 |
| IRS990/InvestmentsProgramRelatedGrp/EOYAmt | 0 | 50000 |
| IRS990/InvestmentsPubTradedSecGrp/BOYAmt | 0 | 10366 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 14296 |
| IRS990/IRPDocumentCnt | 0 | 13 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LegalDomicileStateCd | 0 | VA |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 1 |
| IRS990/LocalChaptersInd | 0 | 0 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembersOrStockholdersInd | 0 | 0 |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | THE ORGANIZATION'S MISSION IS TO PROVIDE RESEARCH GRANTS TO FUND AGGRESSIVE RESEARCH INTO TREATMENTS FOR DUCHENNE MUSCULAR DYSTROPHY AND TO SUPPORT THE EFFORT TO TREAT, AND ULTIMATELY CURE, THIS DISEASE. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
| IRS990/MoreThan5000KToOrgInd | 0 | 0 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 228186 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 178444 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NoListedPersonsCompensatedInd | 0 | X |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 6579 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 1237 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 7816 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsSFAS117Ind | 0 | X |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 3922 |
| IRS990/OtherExpensesGrp/Desc | 0 | Administrative Expense |
| IRS990/OtherExpensesGrp/Desc | 1 | Bank Charges |
| IRS990/OtherExpensesGrp/Desc | 2 | Equipment Rental |
| IRS990/OtherExpensesGrp/Desc | 3 | Licenses |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 7815 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 350 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 48000 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 8550 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 48000 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 8550 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 7815 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 350 |
| IRS990/PartialLiquidationInd | 0 | 0 |
| IRS990/PoliticalCampaignActyInd | 0 | 0 |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 15000 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 10000 |
| IRS990/PrincipalOfficerNm | 0 | James Wood |
| IRS990/ProfessionalFundraisingInd | 0 | 1 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990/PYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/PYContributionsGrantsAmt | 0 | 868840 |
| IRS990/PYExcessBenefitTransInd | 0 | 0 |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 540000 |
| IRS990/PYInvestmentIncomeAmt | 0 | 27 |
| IRS990/PYOtherExpensesAmt | 0 | 311325 |
| IRS990/PYOtherRevenueAmt | 0 | 0 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | -54458 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 0 |
| IRS990/PYTotalExpensesAmt | 0 | 923325 |
| IRS990/PYTotalProfFndrsngExpnsAmt | 0 | 72000 |
| IRS990/PYTotalRevenueAmt | 0 | 868867 |
| IRS990/QuidProQuoContributionsInd | 0 | 1 |
| IRS990/QuidProQuoContriDisclInd | 0 | 1 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | -53664 |
| IRS990/RegularMonitoringEnfrcInd | 0 | 1 |
| IRS990/RelatedEntityInd | 0 | 0 |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990/ReportInvestmentsOtherSecInd | 0 | 0 |
| IRS990/ReportLandBuildingEquipmentInd | 0 | 1 |
| IRS990/ReportOtherAssetsInd | 0 | 0 |
| IRS990/ReportOtherLiabilitiesInd | 0 | 0 |
| IRS990/ReportProgramRelatedInvstInd | 0 | 1 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 802873 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 868840 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 729081 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 800844 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 928110 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 4129748 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt | 0 | 505 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 27 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 149 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 359 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 827 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 1867 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.91130 |
| IRS990ScheduleA/PublicSupportPY170Pct | 0 | 0.90640 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 3765026 |
| IRS990ScheduleA/SubstantialContributorsTotAmt | 0 | 364722 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind | 0 | X |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 802873 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 868840 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 729081 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 800844 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 928110 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 4129748 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 4131615 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | 1 |
| IRS990ScheduleC/AvgGrassrootsNontaxableGrp/CurrentYearAmt | 0 | 33889 |
| IRS990ScheduleC/AvgGrassrootsNontaxableGrp/CurrentYearMinus1Amt | 0 | 36375 |
| IRS990ScheduleC/AvgGrassrootsNontaxableGrp/CurrentYearMinus2Amt | 0 | 27756 |
| IRS990ScheduleC/AvgGrassrootsNontaxableGrp/CurrentYearMinus3Amt | 0 | 32687 |
| IRS990ScheduleC/AvgGrassrootsNontaxableGrp/TotalAmt | 0 | 130707 |
| IRS990ScheduleC/AvgLobbyingNontaxableAmountGrp/CurrentYearAmt | 0 | 135556 |
| IRS990ScheduleC/AvgLobbyingNontaxableAmountGrp/CurrentYearMinus1Amt | 0 | 145499 |
| IRS990ScheduleC/AvgLobbyingNontaxableAmountGrp/CurrentYearMinus2Amt | 0 | 111022 |
| IRS990ScheduleC/AvgLobbyingNontaxableAmountGrp/CurrentYearMinus3Amt | 0 | 130747 |
| IRS990ScheduleC/AvgLobbyingNontaxableAmountGrp/TotalAmt | 0 | 522824 |
| IRS990ScheduleC/AvgTotalLobbyingExpendGrp/CurrentYearAmt | 0 | 60000 |
| IRS990ScheduleC/AvgTotalLobbyingExpendGrp/CurrentYearMinus1Amt | 0 | 60000 |
| IRS990ScheduleC/AvgTotalLobbyingExpendGrp/CurrentYearMinus2Amt | 0 | 60000 |
| IRS990ScheduleC/AvgTotalLobbyingExpendGrp/CurrentYearMinus3Amt | 0 | 60000 |
| IRS990ScheduleC/AvgTotalLobbyingExpendGrp/TotalAmt | 0 | 240000 |
| IRS990ScheduleC/GrassrootsCeilingAmt | 0 | 196061 |
| IRS990ScheduleC/GrassrootsNontaxableGrp/FilingOrganizationsTotalAmt | 0 | 33889 |
| IRS990ScheduleC/LobbyingCeilingAmt | 0 | 784236 |
| IRS990ScheduleC/LobbyingNontaxableAmountGrp/FilingOrganizationsTotalAmt | 0 | 135556 |
| IRS990ScheduleC/OtherExemptPurposeExpendGrp/FilingOrganizationsTotalAmt | 0 | 677042 |
| IRS990ScheduleC/PoliticalExpendituresAmt | 0 | 60000 |
| IRS990ScheduleC/SupplementalInformationDetail/ExplanationTxt | 0 | The Organization lobbied for Federal appropriations via two accounts with the Department of Defense: The Duchenne Muscular Dystrophy national program in Defense Health Programs, and the Coordinated International Neuromuscular Research Group in the Army Research and Development Accounts. These programs are exclusively administered for research for Duchenne Muscular Dystophy and proceeds are not received by the Organization. |
| IRS990ScheduleC/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Part I-A, Line 1: |
| IRS990ScheduleC/TotalDirectLobbyingGrp/FilingOrganizationsTotalAmt | 0 | 60000 |
| IRS990ScheduleC/TotalExemptPurposeExpendGrp/FilingOrganizationsTotalAmt | 0 | 737042 |
| IRS990ScheduleC/TotalLobbyingExpendGrp/FilingOrganizationsTotalAmt | 0 | 60000 |
| IRS990ScheduleC/TotLbbyExpendMnsLbbyngNonTxGrp/FilingOrganizationsTotalAmt | 0 | 0 |
| IRS990ScheduleC/TotLbbyngGrassrootMnsNonTxGrp/FilingOrganizationsTotalAmt | 0 | 0 |
| IRS990ScheduleD/ExpensesNotReportedAmt | 0 | 90452 |
| IRS990ScheduleD/ExpensesNotRptFinclStmtAmt | 0 | 0 |
| IRS990ScheduleD/ExpensesSubtotalAmt | 0 | 766590 |
| IRS990ScheduleD/InvstProgramRelatedOrgGrp/BookValueAmt | 0 | 50000 |
| IRS990ScheduleD/InvstProgramRelatedOrgGrp/Desc | 0 | Validus BioPharma, Inc. |
| IRS990ScheduleD/InvstProgramRelatedOrgGrp/MethodValuationCd | 0 | C |
| IRS990ScheduleD/NetUnrealizedGainsInvstAmt | 0 | 3922 |
| IRS990ScheduleD/OtherExpensesIncludedAmt | 0 | 90452 |
| IRS990ScheduleD/OtherRevenueAmt | 0 | 90452 |
| IRS990ScheduleD/RevenueNotReportedAmt | 0 | 94374 |
| IRS990ScheduleD/RevenueNotReportedFinclStmtAmt | 0 | 0 |
| IRS990ScheduleD/RevenueSubtotalAmt | 0 | 712926 |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 0 | Fundraising Events 90,452. |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 1 | Fundraising Events 90,452. |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Part XI, Line 2d - Other Adjustments: |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | Part XII, Line 2d - Other Adjustments: |
| IRS990ScheduleD/TotalBookValueLandBuildingsAmt | 0 | 0 |
| IRS990ScheduleD/TotalBookValueProgramRltdAmt | 0 | 50000 |
| IRS990ScheduleD/TotalExpensesPerForm990Amt | 0 | 766590 |
| IRS990ScheduleD/TotalRevenuePerForm990Amt | 0 | 712926 |
| IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt | 0 | 807300 |
| IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt | 0 | 857042 |
| IRS990ScheduleG/AgrmtProfFundraisingActyInd | 0 | 1 |
| IRS990ScheduleG/EmailSolicitationsInd | 0 | X |
| IRS990ScheduleG/FundraiserActivityInfoGrp/ActivityTxt | 0 | fund-raising,event planning, consulting |
| IRS990ScheduleG/FundraiserActivityInfoGrp/FundraiserControlOfFundsInd | 0 | 0 |
| IRS990ScheduleG/FundraiserActivityInfoGrp/GrossReceiptsAmt | 0 | 802873 |
| IRS990ScheduleG/FundraiserActivityInfoGrp/NetToOrganizationAmt | 0 | 730873 |
| IRS990ScheduleG/FundraiserActivityInfoGrp/OrganizationBusinessName/BusinessNameLine1 | 0 | Epiphany Productions Inc |
| IRS990ScheduleG/FundraiserActivityInfoGrp/RetainedByContractorAmt | 0 | 72000 |
| IRS990ScheduleG/FundraiserActivityInfoGrp/USAddress/AddressLine1 | 0 | 104 EAST HUME AVENUE |
| IRS990ScheduleG/FundraiserActivityInfoGrp/USAddress/City | 0 | ALEXANDRIA |
| IRS990ScheduleG/FundraiserActivityInfoGrp/USAddress/State | 0 | VA |
| IRS990ScheduleG/FundraiserActivityInfoGrp/USAddress/ZIPCode | 0 | 22301 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt | 0 | 712421 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt | 0 | 395920 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent2Amt | 0 | 105570 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriOtherEventsAmt | 0 | 210931 |
| IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt | 0 | 90452 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt | 0 | 469115 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent2Amt | 0 | 122827 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsOtherEventsAmt | 0 | 210931 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt | 0 | 802873 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt | 0 | 73195 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent2Amt | 0 | 17257 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt | 0 | 90452 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NameOfEvent1Amt | 0 | DINING AWAY DUCHENNE |
| IRS990ScheduleG/FundraisingEventInformationGrp/NameOfEvent2Amt | 0 | FORE DUCHENNE |
| IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt | 0 | 0 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt | 0 | 90452 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt | 0 | 73195 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent2Amt | 0 | 17257 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherEventsTotalCnt | 0 | 4 |
| IRS990ScheduleG/InPersonSolicitationsInd | 0 | X |
| IRS990ScheduleG/LicensedStatesCd | 0 | CA |
| IRS990ScheduleG/LicensedStatesCd | 1 | CT |
| IRS990ScheduleG/LicensedStatesCd | 2 | DC |
| IRS990ScheduleG/LicensedStatesCd | 3 | FL |
| IRS990ScheduleG/LicensedStatesCd | 4 | IL |
| IRS990ScheduleG/LicensedStatesCd | 5 | KY |
| IRS990ScheduleG/LicensedStatesCd | 6 | MD |
| IRS990ScheduleG/LicensedStatesCd | 7 | MN |
| IRS990ScheduleG/LicensedStatesCd | 8 | MO |
| IRS990ScheduleG/LicensedStatesCd | 9 | MS |
| IRS990ScheduleG/LicensedStatesCd | 10 | NC |
| IRS990ScheduleG/LicensedStatesCd | 11 | NJ |
| IRS990ScheduleG/LicensedStatesCd | 12 | NY |
| IRS990ScheduleG/LicensedStatesCd | 13 | OH |
| IRS990ScheduleG/LicensedStatesCd | 14 | PA |
| IRS990ScheduleG/LicensedStatesCd | 15 | SC |
| IRS990ScheduleG/LicensedStatesCd | 16 | TN |
| IRS990ScheduleG/LicensedStatesCd | 17 | VA |
| IRS990ScheduleG/LicensedStatesCd | 18 | WI |
| IRS990ScheduleG/MailSolicitationsInd | 0 | X |
| IRS990ScheduleG/PhoneSolicitationsInd | 0 | X |
| IRS990ScheduleG/SolicitationOfNonGovtGrantsInd | 0 | X |
| IRS990ScheduleG/SpecialFundraisingEventsInd | 0 | X |
| IRS990ScheduleG/TotalGrossReceiptsAmt | 0 | 802873 |
| IRS990ScheduleG/TotalNetToOrganizationAmt | 0 | 730873 |
| IRS990ScheduleG/TotalRetainedByContractorsAmt | 0 | 72000 |
| IRS990ScheduleI/GrantRecordsMaintainedInd | 0 | 1 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 0 | 480000 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 1 | 5000 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 2 | 20000 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 0 | 501(c)(3) |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 1 | 501(c)(3) |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 2 | 501(c)(3) |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 0 | Fund research for treatment of Duchenne Muscular Dystrophy |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 1 | Fund research for treatment of Duchenne Muscular Dystrophy |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 2 | Fund research for treatment of Duchenne Muscular Dystrophy |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1 | 0 | Children's National Medical Center |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1 | 1 | Parent Project Muscular Dystrophy |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1 | 2 | ReveraGen BioPharma Inc |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 0 | 521640402 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 1 | 311405490 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 2 | 263808415 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1 | 0 | 111 Michigan Avenue NW |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1 | 1 | 1012 N University Blvd |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1 | 2 | 9700 Great Seneca Hwy Suite 160 |
| IRS990ScheduleI/RecipientTable/USAddress/City | 0 | Washington |
| IRS990ScheduleI/RecipientTable/USAddress/City | 1 | Middletown |
| IRS990ScheduleI/RecipientTable/USAddress/City | 2 | Rockville |
| IRS990ScheduleI/RecipientTable/USAddress/State | 0 | DC |
| IRS990ScheduleI/RecipientTable/USAddress/State | 1 | OH |
| IRS990ScheduleI/RecipientTable/USAddress/State | 2 | MD |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCode | 0 | 200102970 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCode | 1 | 450423387 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCode | 2 | 20850 |
| IRS990/ScheduleJRequiredInd | 0 | 0 |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/NameOfInterested/BusinessName/BusinessNameLine1 | 0 | Eubank Betts Hirn WOod |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/RelationshipDescriptionTxt | 0 | James Wood (Treasurer) is a member of the CPA firm |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/SharingOfRevenuesInd | 0 | 0 |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionAmt | 0 | 3240 |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionDesc | 0 | TAX SERVICES |
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Displayed year
2013 • Form 990Detailed filing. Detailed filing data is available for this year.