Civic Intelligence

Foundation to Eradicate Duchenne Inc

EIN 71-0874241 • 501(c)3 • Alexandria, VA

Profile

The organization's mission is to provide research grants to fund aggressive research into treatments for duchenne muscular dystrophy and to support the effort to treat, and ultimately cure, this disease.

PO Box 2371Alexandria, VA 22301-0371

www.duchennemd.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

76th percentile

0.21x

Higher debt load relative to assets than 76% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2022

Liabilities / Revenue

79th percentile

0.23x

Higher debt load relative to revenue than 79% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2022

Net Margin

44th percentile

1.7%

Higher net margin than 44% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2022

Top Officer Pay

Score unavailable

No value available

No filing with officer rows is available for this organization yet.

Asset Growth

61st percentile

8.3%

Faster asset growth than 61% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Annualized from 2021 to 2022

Revenue Growth

19th percentile

-16%

Faster revenue growth than 19% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Annualized from 2021 to 2022

Balance Sheet
Liabilities / Assets76th percentile

Assets

Up

$1,308,359

Up $277,472 (+27%) from 2023

Liabilities

Down

$139,818

Down $8,197 (-5.5%) from 2023

Net Assets

Up

$1,168,541

Up $285,669 (+32%) from 2023

Operations
Liabilities / Revenue79th percentileNet Margin44th percentile

Revenue

Up

$1,102,169

Up $275,386 (+33%) from 2023

Expenses

Up

$827,891

Up $188,181 (+29%) from 2023

Net Income

Up

$274,278

Up $87,205 (+47%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth61st percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$1.5M$1.0M$500K$0Assets 2011: $286,198Liabilities 2011: $5,162Net Assets 2011: $281,0362011Assets 2012: $228,413Liabilities 2012: $227Net Assets 2012: $228,1862012Assets 2013: $180,000Liabilities 2013: $1,556Net Assets 2013: $178,4442013Assets 2014: $285,220Liabilities 2014: $462Net Assets 2014: $284,7582014Assets 2015: $533,363Liabilities 2015: $0Net Assets 2015: $533,3632015Assets 2016: $344,274Liabilities 2016: $1,072Net Assets 2016: $343,2022016Assets 2017: $279,620Liabilities 2017: $6,837Net Assets 2017: $272,7832017Assets 2018: $492,208Liabilities 2018: $159,850Net Assets 2018: $332,3582018Assets 2019: $309,430Liabilities 2019: $2,000Net Assets 2019: $307,4302019Assets 2020: $507,921Liabilities 2020: $4,400Net Assets 2020: $503,5212020Assets 2021: $773,260Liabilities 2021: $126,989Net Assets 2021: $646,2712021Assets 2022: $837,468Liabilities 2022: $177,802Net Assets 2022: $659,6662022Assets 2023: $1,030,887Liabilities 2023: $148,015Net Assets 2023: $882,8722023Assets 2024: $1,308,359Liabilities 2024: $139,818Net Assets 2024: $1,168,5412024

Highlighted filing

2024

Assets$1,308,359
Liabilities$139,818
Net Assets$1,168,541
Open 2024 Filing

Operations Trend

Revenue Growth19th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$1.5M$1.0M$500K$0-$500KRevenue 2011: $729,230Expenses 2011: $693,475Net Income 2011: $35,7552011Revenue 2012: $868,867Expenses 2012: $923,325Net Income 2012: -$54,4582012Revenue 2013: $712,926Expenses 2013: $766,590Net Income 2013: -$53,6642013Revenue 2014: $897,991Expenses 2014: $794,423Net Income 2014: $103,5682014Revenue 2015: $755,786Expenses 2015: $505,403Net Income 2015: $250,3832015Revenue 2016: $732,989Expenses 2016: $926,691Net Income 2016: -$193,7022016Revenue 2017: $745,876Expenses 2017: $819,071Net Income 2017: -$73,1952017Revenue 2018: $699,037Expenses 2018: $638,144Net Income 2018: $60,8932018Revenue 2019: $761,836Expenses 2019: $785,318Net Income 2019: -$23,4822019Revenue 2020: $836,433Expenses 2020: $643,311Net Income 2020: $193,1222020Revenue 2021: $921,694Expenses 2021: $726,171Net Income 2021: $195,5232021Revenue 2022: $777,073Expenses 2022: $764,044Net Income 2022: $13,0292022Revenue 2023: $826,783Expenses 2023: $639,710Net Income 2023: $187,0732023Revenue 2024: $1,102,169Expenses 2024: $827,891Net Income 2024: $274,2782024

Highlighted filing

2024

Revenue$1,102,169
Expenses$827,891
Net Income$274,278
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$1,308,359
Liabilities
$139,818
Net assets
$1,168,541
Revenue
$1,102,169
Expenses
$827,891
Net income
$274,278
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$1.31$0.14$1.17$1.10$0.83$0.27
2023Detailed filing. Detailed filing data is available for this year.$1.03$0.15$0.88$0.83$0.64$0.19
2022Detailed filing. Detailed filing data is available for this year.$0.84$0.18$0.66$0.78$0.76$0.01
2021Detailed filing. Detailed filing data is available for this year.$0.77$0.13$0.65$0.92$0.73$0.20
2020Detailed filing. Detailed filing data is available for this year.$0.51$0.00$0.50$0.84$0.64$0.19
2019Detailed filing. Detailed filing data is available for this year.$0.31$0.00$0.31$0.76$0.79$0.02
2018Detailed filing. Detailed filing data is available for this year.$0.49$0.16$0.33$0.70$0.64$0.06
2017Detailed filing. Detailed filing data is available for this year.$0.28$0.01$0.27$0.75$0.82$0.07
2016Detailed filing. Detailed filing data is available for this year.$0.34$0.00$0.34$0.73$0.93$0.19
2015Detailed filing. Detailed filing data is available for this year.$0.53$0.00$0.53$0.76$0.51$0.25
2014Detailed filing. Detailed filing data is available for this year.$0.29$0.00$0.28$0.90$0.79$0.10
2013Detailed filing. Detailed filing data is available for this year.$0.18$0.00$0.18$0.71$0.77$0.05
2012Summary only. Only limited summary data is available for this year.$0.23$0.00$0.23$0.87$0.92$0.05
2011Summary only. Only limited summary data is available for this year.$0.29$0.01$0.28$0.73$0.69$0.04
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
May 7, 2025
Return Version
2024v5.1
Gross Receipts
$1,246,145
Mission and Program Overview

Mission

The organization's mission is to provide research grants to fund aggressive research into treatments for duchenne muscular dystrophy and to support the effort to treat, and ultimately cure, this disease.

To fund research into treatments for duchenne muscular dystrophy, in hopes of finding a cure.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments Program Related$715,499$954,381▲ $238,882
Savings and Temporary Cash Investments$239,870$289,943▲ $50,073
Investments in Publicly Traded Securities$39,981$51,434▲ $11,453
Pledges and Grants Receivable$30,487--
Cash and Non-Interest-Bearing Accounts$5,050$12,601▲ $7,551
Total Assets$1,030,887$1,308,359▲ $277,472
Liabilities
Grants Payable$72,487$129,000▲ $56,513
Accounts Payable and Accrued Expenses$75,528$10,818▼ $64,710
Total Liabilities$148,015$139,818▼ $8,197
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$882,872$1,168,541▲ $285,669
Total Net Assets Fund Balance$882,872$1,168,541▲ $285,669
Total Liabilities and Net Assets / Fund Balance$1,030,887$1,308,359▲ $277,472

Asset Categories

AssetBook ValueDepreciationBasis
Investment Program Related Org$50,000--
Compensation and Service Providers
Top Officer PayScore unavailable

Board Members and Trustees

NameTitle
Joel WoodPresident
Bill QuirkDirector
Brad ToddDirector
Dan CarsonDirector
Dave HeilDirector
Scott SinderSecretary
James WoodTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
Epiphany Productions INCFundraising & Administrative4102 MAPLE TREE COURT, Alexandria, VA 22304$162,500
Cornerstone Government AffarisAdvocacy & Lobbying800 MAINE AVE SW FLOOR 7, Washington, DC 20024$120,000
Revenue and Support

Revenue Composition

Contributions and Grants
$772,781
Program Service Revenue
$0
Investment Income
$141,543
Other Revenue
$187,845
All Other Contributions
$12,245
Change in Net Assets
$274,278

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,102,169
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$155,367
Total Revenue per Audited Statements
$1,257,536
Total Revenue per Form 990
$1,102,169
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$593,952
Other Expenses$143,939
Total Fundraising Expense$96,878
Professional Fundraising Fees$90,000
Salaries, Compensation, and Employee Benefits$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$322,308--$322,308
Foreign Grants$271,644--$271,644
Fees for Services Professional Fundraising--$90,000$90,000
Fees for Services Lobbying$60,000--$60,000
Fees for Services Management-$60,000-$60,000
Fees for Services Accounting-$6,150$6,150$12,300
Office Expenses-$2,014-$2,014
Other Expenses-$8,897$728$728
Total Functional Expenses$653,952$77,061$96,878$827,891

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$971,867
Expenses per Audited Statements$827,891
Total Expenses per Form 990$827,891
Expenses Not Reported on Form 990$143,976
Expenses Not Reported on Financial Statements$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Research Foundation for Suny for the State Univeristy of New YorkAlbany, NY-To Fund Research for Treatment of Duchenne Muscular Dystrophy$162,308
Virginia Commonwealth UniversityRichmond, VA-To Fund Research for Treatment of Duchenne Muscular Dystrophy$75,000
Duchenne ResearchRichmond, VA-To Fund Research for Treatment of Duchenne Muscular Dystrophy$38,703
Parent Project Muscular DystrophyWashington, DC-To Fund Research for Treatment of Duchenne Muscular Dystrophy$25,000
University of PittsburghPittsburgh, PA-To Fund Research for Treatment of Duchenne Muscular Dystrophy$11,300
CHILDREN'S RESEARCH INSTITUTEWashington, DC-To Fund Research for Treatment of Duchenne Muscular Dystrophy$9,997

International Summary

Offices
0
Employees
0
Spending
$271,644

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
North America - Canada and Mexico, But Not the United StatesGrant to Recipient Located in the Region-00$179,000
Europe (including Iceland & Greenland)Grant to Recipient Located in the Region-00$92,644
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
Yes

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$143,976
Professional Fundraising Fees$90,000
Fundraising Gross Income$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Dining Away Duchenne$651,886-$9,198-
Fore Duchenne$108,650-$615-
Total Events$760,536-$143,976$-143,976
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

“Joel wood (president) and james wood (treasurer) are brothers.”

Form 990, Part VI, Section B, Line 11B

“The treasurer of the foundation, james e. Wood, presents the prepared form 990 to the governing body. The information contained in the form 990 is reviewed and explained and any questions posed are answered. After the governing body has reviewed the form 990 and agrees with the information contained therein, the form 990 is filed with the internal revenue service.”

Form 990, Part VI, Section B, Line 12C

“The affiliations of the board members and officers are regularly monitored to ensure that no conflicts of interest occur, either perceived or actual, with respect to the foundation to eradicate duchenne and those charged with its governance. The board members are provided a copy of the policy and review and disclose any conflicts on an annual basis. Any issues are brought to the board, discussed and reported in the board minutes.”

Form 990, Part VI, Section C, Line 19

“The organization makes its governing documents, conflict of interest policy and financial statements available to the general public upon request.”

Filing and Contact Details

Filer

Filer Name
Foundation to Eradicate Duchenne Inc
EIN
71-0874241
Phone
7036837500
Address
PO BOX 2371, ALEXANDRIA, VA 22301-0371

Signing Officer

Name
James Wood
Title
Treasurer
Phone
7036837500
Signed
2025-05-07
Discuss with paid preparer
Yes

Organization Details

Principal Officer
James Wood
Formed
2002
Legal Domicile
Va
Voting Board Members
7
Independent Board Members
7
Employees
0
Volunteers
7

Preparer

Firm
Bmss LLC
Address
1020 HIGHLAND COLONY PKWY SUITE 600, RIDGELAND, MS 39157
Preparer
Maura Mcdevitt CPA
Phone
6019482924
Supplemental Narrative

Additional Explanations

Form 990, Part XII, Line 2C

“The auditor meets with the board of directors making a full presentation at the completion of the audit for the year answering any of the board's questions. The auditor works closeley with the board of directors during the year should any concerns arise.”

Financial Statement Notes

PART X, LINE 2:

“Management believes it has no material uncertain tax positions and, accordingly, it will not recognize any liability for unrecognized tax benefits.”

PART XI, LINE 2D - OTHER ADJUSTMENTS:

“Fundraising events 143,976. Rounding 1.”

PART XII, LINE 2D - OTHER ADJUSTMENTS:

“Fundraising events 143,976.”

Raw XML AppendixShowing 400 of 571 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/IndivRcvdGreaterThan100KCnt00
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InvestmentIncomeGrp/ExclusionAmt0141543
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt0141543
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsProgramRelatedGrp/BOYAmt0715499
IRS990/InvestmentsProgramRelatedGrp/EOYAmt0954381
IRS990/InvestmentsPubTradedSecGrp/BOYAmt039981
IRS990/InvestmentsPubTradedSecGrp/EOYAmt051434
IRS990/IRPDocumentCnt08
IRS990/IRPDocumentW2GCnt00
IRS990/LegalDomicileStateCd0VA
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd01
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0THE ORGANIZATION'S MISSION IS TO PROVIDE RESEARCH GRANTS TO FUND AGGRESSIVE RESEARCH INTO TREATMENTS FOR DUCHENNE MUSCULAR DYSTROPHY AND TO SUPPORT THE EFFORT TO TREAT, AND ULTIMATELY CURE, THIS DISEASE.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd01
IRS990/NetAssetsOrFundBalancesBOYAmt0882872
IRS990/NetAssetsOrFundBalancesEOYAmt01168541
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0-143976
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0-143976
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt011391
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt0882872
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt01168541
IRS990/NoListedPersonsCompensatedInd0X
IRS990/NondeductibleContributionsInd00
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt02014
IRS990/OfficeExpensesGrp/TotalAmt02014
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherExpensesGrp/Desc0BANK FEES
IRS990/OtherExpensesGrp/Desc1LICENSES & PERMITS
IRS990/OtherExpensesGrp/FundraisingAmt0728
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt08897
IRS990/OtherExpensesGrp/TotalAmt08897
IRS990/OtherExpensesGrp/TotalAmt1728
IRS990/OtherRevenueMiscGrp/BusinessCd0900099
IRS990/OtherRevenueMiscGrp/Desc0TRINDS LLC
IRS990/OtherRevenueMiscGrp/ExclusionAmt0331821
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt0331821
IRS990/OtherRevenueTotalAmt0331821
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt030487
IRS990/PoliticalCampaignActyInd00
IRS990/PrincipalOfficerNm0JAMES WOOD
IRS990/ProfessionalFundraisingInd01
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt0834048
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt0407352
IRS990/PYInvestmentIncomeAmt02721
IRS990/PYOtherExpensesAmt0142358
IRS990/PYOtherRevenueAmt0-9986
IRS990/PYProgramServiceRevenueAmt00
IRS990/PYRevenuesLessExpensesAmt0187073
IRS990/PYSalariesCompEmpBnftPaidAmt00
IRS990/PYTotalExpensesAmt0639710
IRS990/PYTotalProfFndrsngExpnsAmt090000
IRS990/PYTotalRevenueAmt0826783
IRS990/QuidProQuoContributionsInd00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt0274278
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd00
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd01
IRS990/SavingsAndTempCashInvstGrp/BOYAmt0239870
IRS990/SavingsAndTempCashInvstGrp/EOYAmt0289943
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt0902964
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt0834048
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0805428
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0945848
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0732763
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt04221051
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt011360
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt02625
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt02721
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt0226
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt0280
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt017212
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearAmt0331821
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus1YearAmt0132937
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus2YearsAmt0103942
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus3YearsAmt0111785
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus4YearsAmt0103390
IRS990ScheduleA/OtherIncome170Grp/TotalAmt0783875
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.79690
IRS990ScheduleA/PublicSupportPY170Pct00.85770
IRS990ScheduleA/PublicSupportTotal170Amt04002380
IRS990ScheduleA/SubstantialContributorsTotAmt0218671
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt0902964
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt0834048
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0805428
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0945848
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0732763
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt04221051
IRS990ScheduleA/TotalSupportAmt05022138
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd01
IRS990ScheduleC/DirectContactLegislatorsAmt060000
IRS990ScheduleC/DirectContactLegislatorsInd01
IRS990ScheduleC/GrantsOtherOrganizationsInd00
IRS990ScheduleC/MailingsMembersInd00
IRS990ScheduleC/MediaAdvertisementsInd00
IRS990ScheduleC/NotDescribedSection501c3Ind00
IRS990ScheduleC/OtherActivitiesInd00
IRS990ScheduleC/PaidStaffOrManagementInd00
IRS990ScheduleC/PublicationsOrBroadcastInd00
IRS990ScheduleC/RalliesDemonstrationsInd00
IRS990ScheduleC/SupplementalInformationDetail/ExplanationTxt0CONSULTANT PAID TO ADVOCATE ON BEHALF OF OUR ORGANIZATION AND SIMILAR MUSCULAR DYSTROPHY ORGANIZATIONS TO PROVIDE FUNDS FOR RESEARCH FOR THE CURE OF NEUROMUSCULAR DEGENERATIVE DISORDER DISEASES.
IRS990ScheduleC/SupplementalInformationDetail/FormAndLineReferenceDesc0PART II-B, LINE 1:
IRS990ScheduleC/TotalLobbyingExpendituresAmt060000
IRS990ScheduleC/VolunteersInd00
IRS990ScheduleD/ExpensesNotReportedAmt0143976
IRS990ScheduleD/ExpensesNotRptFinclStmtAmt00
IRS990ScheduleD/ExpensesSubtotalAmt0827891
IRS990ScheduleD/FootnoteTextInd0X
IRS990ScheduleD/InvstProgramRelatedOrgGrp/BookValueAmt0904381
IRS990ScheduleD/InvstProgramRelatedOrgGrp/BookValueAmt150000
IRS990ScheduleD/InvstProgramRelatedOrgGrp/Desc0INVESTMENT IN TRINDS, LLC
IRS990ScheduleD/InvstProgramRelatedOrgGrp/Desc1INVESTMENT IN REVERAGEN BIOPHARMA, INC.
IRS990ScheduleD/InvstProgramRelatedOrgGrp/MethodValuationCd0F
IRS990ScheduleD/InvstProgramRelatedOrgGrp/MethodValuationCd1C
IRS990ScheduleD/NetUnrealizedGainsInvstAmt011390
IRS990ScheduleD/OtherExpensesIncludedAmt0143976
IRS990ScheduleD/OtherRevenueAmt0143977
IRS990ScheduleD/RevenueNotReportedAmt0155367
IRS990ScheduleD/RevenueNotReportedFinclStmtAmt00
IRS990ScheduleD/RevenueSubtotalAmt01102169
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0MANAGEMENT BELIEVES IT HAS NO MATERIAL UNCERTAIN TAX POSITIONS AND, ACCORDINGLY, IT WILL NOT RECOGNIZE ANY LIABILITY FOR UNRECOGNIZED TAX BENEFITS.
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt1FUNDRAISING EVENTS 143,976. ROUNDING 1.
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt2FUNDRAISING EVENTS 143,976.
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0PART X, LINE 2:
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc1PART XI, LINE 2D - OTHER ADJUSTMENTS:
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc2PART XII, LINE 2D - OTHER ADJUSTMENTS:
IRS990ScheduleD/TotalBookValueLandBuildingsAmt00
IRS990ScheduleD/TotalBookValueProgramRltdAmt0954381
IRS990ScheduleD/TotalExpensesPerForm990Amt0827891
IRS990ScheduleD/TotalRevenuePerForm990Amt01102169
IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt01257536
IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt0971867
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/EmployeeCnt00
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/EmployeeCnt10
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/OfficesCnt00
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/OfficesCnt10
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt0179000
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt192644
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt0NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt1EUROPE (INCLUDING ICELAND & GREENLAND)
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt0GRANT TO RECIPIENT LOCATED IN THE REGION
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt1GRANT TO RECIPIENT LOCATED IN THE REGION
IRS990ScheduleF/BoycottCountriesInd00
IRS990ScheduleF/ContinuationSpentAmt00
IRS990ScheduleF/ContinuationTotalEmployeeCnt00
IRS990ScheduleF/ContinuationTotalOfficeCnt00
IRS990ScheduleF/ForeignCorpOwnershipInd00
IRS990ScheduleF/ForeignPartnershipInd00
IRS990ScheduleF/GrantRecordsMaintainedInd01
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt050000
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt192644
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt2129000
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/NonCashAssistanceAmt00
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/NonCashAssistanceAmt10
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/NonCashAssistanceAmt20
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt0TO FUND RESEARCH FOR THE TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt1TO FUND RESEARCH FOR THE TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt2TO FUND RESEARCH FOR THE TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt0CANADA
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt1UNITED KINGDOM
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt2CANADA
IRS990ScheduleF/InterestInForeignTrustInd00
IRS990ScheduleF/PassiveForeignInvestmestCoInd00
IRS990ScheduleF/SubtotalEmployeesCnt00
IRS990ScheduleF/SubtotalOfficesCnt00
IRS990ScheduleF/SubtotalSpentAmt0271644
IRS990ScheduleF/TotalEmployeeCnt00
IRS990ScheduleF/TotalOfficeCnt00
IRS990ScheduleF/TotalSpentAmt0271644
IRS990ScheduleF/TransferToForeignCorpInd00
IRS990ScheduleG/AgrmtProfFundraisingActyInd01
IRS990ScheduleG/EmailSolicitationsInd0X
IRS990ScheduleG/FundraiserActivityInfoGrp/ActivityTxt0FUNDRAISING EVENT PLANNING, CONSULTING
IRS990ScheduleG/FundraiserActivityInfoGrp/FundraiserControlOfFundsInd00
IRS990ScheduleG/FundraiserActivityInfoGrp/GrossReceiptsAmt0902964
IRS990ScheduleG/FundraiserActivityInfoGrp/NetToOrganizationAmt0752864
IRS990ScheduleG/FundraiserActivityInfoGrp/OrganizationBusinessName/BusinessNameLine1Txt0EPHIPHANY PRODUCTIONS INC
IRS990ScheduleG/FundraiserActivityInfoGrp/RetainedByContractorAmt0150000
IRS990ScheduleG/FundraiserActivityInfoGrp/USAddress/AddressLine1Txt0104 EAST HUME AVENUE
IRS990ScheduleG/FundraiserActivityInfoGrp/USAddress/CityNm0ALEXANDRIA
IRS990ScheduleG/FundraiserActivityInfoGrp/USAddress/StateAbbreviationCd0VA
IRS990ScheduleG/FundraiserActivityInfoGrp/USAddress/ZIPCd022301
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt0760536
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt0651886
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent2Amt0108650
IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt0143976
IRS990ScheduleG/FundraisingEventInformationGrp/EntertainmentEvent1Amt0550
IRS990ScheduleG/FundraisingEventInformationGrp/EntertainmentTotalEventsAmt0550
IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm0DINING AWAY DUCHENNE
IRS990ScheduleG/FundraisingEventInformationGrp/Event2Nm0FORE DUCHENNE
IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageEvent1Amt017600
IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageTotalEventsAmt017600
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt0651886
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent2Amt0108650
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt0760536
IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt0-143976
IRS990ScheduleG/FundraisingEventInformationGrp/NonCashPrizesEvent1Amt0180
IRS990ScheduleG/FundraisingEventInformationGrp/NonCashPrizesEvent2Amt04719
IRS990ScheduleG/FundraisingEventInformationGrp/NonCashPrizesTotalEventsAmt04899

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