Civic Intelligence

Lymedisease Org

990 • Fiscal year 2023 • EIN 68-0214101

Jan 01, 2023 to Dec 31, 2023 • Filed on Oct 30, 2024

Organization ProfileWWW.LYMEDISEASE.ORG
PO Box 16009San Diego, CA 92176

(510) 807-0133

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

26th percentile

0.00x

Higher debt load relative to assets than 26% of similar nonprofits.

2023 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2023

Liabilities / Revenue

29th percentile

0.01x

Higher debt load relative to revenue than 29% of similar nonprofits.

2023 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2023

Net Margin

11th percentile

-30%

Higher net margin than 11% of similar nonprofits.

2023 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2023

Top Officer Pay

70th percentile

$107,588

Higher top officer pay than 70% of similar nonprofits.

Top officer pay equals 21.4% of source-year revenue.

2023 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2023

Asset Growth

33rd percentile

-0.8%

Faster asset growth than 33% of similar nonprofits.

2023 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2022 to 2023

Revenue Growth

13th percentile

-28%

Faster revenue growth than 13% of similar nonprofits.

2023 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2022 to 2023

Balance Sheet
Liabilities / Assets26th percentile

Assets

Down

$1,637,678

Down $13,310 (-0.8%) from 2022

Net Assets

Down

$1,630,873

Down $6,325 (-0.4%) from 2022

Liabilities

Down

$6,805

Down $6,985 (-51%) from 2022

Revenue And Expenses
Liabilities / Revenue29th percentileNet Margin11th percentile

Revenue

Down

$501,947

Down $195,350 (-28%) from 2022

Expenses

Up

$653,905

Up $34,654 (+5.6%) from 2022

Net Income

Down

-$151,958

Down $230,004 (-295%) from 2022

Historical Trend

Balance Sheet Trend

Asset Growth33rd percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$2.0M$1.5M$1.0M$500K$0Assets 2015: $638,150Liabilities 2015: $4,809Net Assets 2015: $633,3412015Assets 2016: $669,107Liabilities 2016: $20,272Net Assets 2016: $648,8352016Assets 2017: $877,410Liabilities 2017: $26,664Net Assets 2017: $850,7462017Assets 2018: $886,446Liabilities 2018: $31,846Net Assets 2018: $854,6002018Assets 2019: $928,212Liabilities 2019: $7,553Net Assets 2019: $920,6592019Assets 2020: $1,668,448Liabilities 2020: $9,761Net Assets 2020: $1,658,6872020Assets 2021: $1,816,385Liabilities 2021: $3,888Net Assets 2021: $1,812,4972021Assets 2022: $1,650,988Liabilities 2022: $13,790Net Assets 2022: $1,637,1982022Assets 2023: $1,637,678Liabilities 2023: $6,805Net Assets 2023: $1,630,8732023Assets 2024: $1,582,758Liabilities 2024: $11,523Net Assets 2024: $1,571,2352024

Highlighted filing

2023

Assets$1,637,678
Liabilities$6,805
Net Assets$1,630,873
Open 2023 Filing

Operations Trend

Revenue Growth13th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.5M$1.0M$500K$0-$500KRevenue 2015: $458,130Expenses 2015: $413,330Net Income 2015: $44,8002015Revenue 2016: $565,079Expenses 2016: $549,585Net Income 2016: $15,4942016Revenue 2017: $699,727Expenses 2017: $539,933Net Income 2017: $159,7942017Revenue 2018: $626,533Expenses 2018: $637,582Net Income 2018: -$11,0492018Revenue 2019: $624,011Expenses 2019: $621,178Net Income 2019: $2,8332019Revenue 2020: $1,243,802Expenses 2020: $559,039Net Income 2020: $684,7632020Revenue 2021: $619,817Expenses 2021: $534,560Net Income 2021: $85,2572021Revenue 2022: $697,297Expenses 2022: $619,251Net Income 2022: $78,0462022Revenue 2023: $501,947Expenses 2023: $653,905Net Income 2023: -$151,9582023Revenue 2024: $569,401Expenses 2024: $682,298Net Income 2024: -$112,8972024

Highlighted filing

2023

Revenue$501,947
Expenses$653,905
Net Income-$151,958
Open 2023 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2023 to Dec 31, 2023
Signed
Oct 30, 2024
Return Version
2023v5.0
Gross Receipts
$737,789
Mission and Program Overview

Mission

LymeDisease.org (Formerly CALDA) advocates nationwide for access to better health care for patients through public health policy and legal analysis, education, and medical research. We publish the Lyme Times quarterly journal, maintain an extensive educational website at www.lymedisease.org, help fund physician training, and conduct patient surveys. What makes LymeDisease.org unique is our combination of legal, ethical and policy analysis and advocacy combined with our ability to communicate effectively through print, email, and websites. LymeDisease.org board members have written more than 30 peer reviewed publications for medical and legal journals.

Lymedisease.org (formerly calda) advocates nationwide to make the patient voice stroner, to support patient-centered research, to create legislative change, and to create a future where lyme patients can receive the treatments they need to get well.

Balance Sheet Detail
LineBeginningEndChange
Assets
Rtn Earn Endowment Incm Other Fnds$1,637,198$1,630,873▼ $6,325
Investments in Publicly Traded Securities$1,390,100$1,453,922▲ $63,822
Cash and Non-Interest-Bearing Accounts$247,641$172,507▼ $75,134
Savings and Temporary Cash Investments$13,247$11,249▼ $1,998
Total Assets$1,650,988$1,637,678▼ $13,310
Liabilities
Accounts Payable and Accrued Expenses$13,790$6,805▼ $6,985
Total Liabilities$13,790$6,805▼ $6,985
Net Assets / Fund Balance
Total Net Assets Fund Balance$1,637,198$1,630,873▼ $6,325
Total Liabilities and Net Assets / Fund Balance$1,650,988$1,637,678▼ $13,310

Asset Categories

AssetBook ValueDepreciationBasis
Equipment-$99,382$99,382
Compensation and Service Providers
Top Officer Pay70th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Lorraine JohnsonCEOFT$107,588$107,588

Board Members and Trustees

NameTitle
Ron LindorfChairman
Dorothy Kupcha LelandPresident
Barbara BarsocchiniBoard Member
Christine GreenDirector
Erica LehmanDirector
Caleb ManscillCTO
Raphael Stricker MdMedical Dire
Carolyn DegnanSecretary, C
Mitchell HoggardTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$432,483
Program Service Revenue
$0
Investment Income
$69,464
Other Revenue
$0
All Other Contributions
$283,484
Change in Net Assets
$-151,958
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$433,540
Other Expenses$220,365
Total Fundraising Expense$18,387
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$273,833$33,845-$307,678
Current Officers, Directors, Trustees, and Key Employees$95,753$11,835-$107,588
Information Technology$67,811--$67,811
Fees for Services Accounting$26,889$6,722-$33,611
Fees for Service Investment Mgmnt Fees-$26,273-$26,273
Office Expenses$3,202$1,068$18,387$22,657
Payroll Taxes$16,264$2,010-$18,274
Advertising$7,421$917-$8,338
Insurance$1,576$2,701-$4,277
Fees for Services Other$3,040$376-$3,416
Travel$1,027--$1,027
Other Expenses$1,215$200-$200
Total Functional Expenses$529,849$105,669$18,387$653,905
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 11B

“The ceo and treasurer review the form 990 and submit it to the directors for comment.”

Form 990, Page 6, Part VI, Line 15A

“The board discusses compensation when it is to be changed. At the time of implementation the board considered comparable compensations at other non- profits.”

Form 990, Page 6, Part VI, Line 19

“AVAILABLE UPON REQUEST.”

Filing and Contact Details

Filer

Filer Name
Lymediseaseorg
EIN
68-0214101
Phone
5108070133
Address
PO BOX 16009, SAN DIEGO, CA 92176

Signing Officer

Name
Mitchell Hoggard
Title
Treasurer
Phone
5108070133
Signed
2024-10-30
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Mitchell Hoggard
Formed
1990
Legal Domicile
CA
Voting Board Members
9
Independent Board Members
9
Employees
2
Volunteers
15

Preparer

Firm
Teuscher Walpole LLC
Address
11910 S STATE ST STE 200, DRAPER, UT 84020-7738
Preparer
Ryan J Thompson CPA
Phone
8016191400
Supplemental Narrative

Additional Explanations

FORM 990 - ORGANIZATION'S MISSION

“Lymedisease.org (formerly calda) advocates nationwide to make the patient voice stroner, to support patient-centered research, to create legislative change, and to create a future where lyme patients can receive the treatments they need to get well.”

Form 990, Page 2, Part III, Line 4D

“ADMIN SERVICES”

Raw XML Appendix394 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3THE BOARD DISCUSSES COMPENSATION WHEN IT IS TO BE CHANGED. AT THE TIME OF IMPLEMENTATION THE BOARD CONSIDERED COMPARABLE COMPENSATIONS AT OTHER NON- PROFITS.
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ReturnHeader/TaxYr02023

Document Assets

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Filings

Displayed year

2023 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$1,637,678
Liabilities
$6,805
Net assets
$1,630,873
Revenue
$501,947
Expenses
$653,905
Net income
-$151,958
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.58$0.01$1.57$0.57$0.68$0.11
2023Detailed filing. Detailed filing data is available for this year.$1.64$0.01$1.63$0.50$0.65$0.15
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.65$0.01$1.64$0.70$0.62$0.08
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.82$0.00$1.81$0.62$0.53$0.09
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.67$0.01$1.66$1.24$0.56$0.68
2019Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.93$0.01$0.92$0.62$0.62$0.00
2018Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.89$0.03$0.85$0.63$0.64$0.01
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.88$0.03$0.85$0.70$0.54$0.16
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.67$0.02$0.65$0.57$0.55$0.02
2015Detailed filing. Detailed filing data is available for this year.$0.64$0.00$0.63$0.46$0.41$0.04