Civic Intelligence

Lymedisease Org

990 • Fiscal year 2022 • EIN 68-0214101

Jan 01, 2022 to Dec 31, 2022 • Filed on Sep 04, 2023

Organization ProfileWWW.LYMEDISEASE.ORG
PO Box 716San Roman, CA 94583

(510) 807-0133

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

29th percentile

0.01x

Higher debt load relative to assets than 29% of similar nonprofits.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2022

Liabilities / Revenue

31st percentile

0.02x

Higher debt load relative to revenue than 31% of similar nonprofits.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2022

Net Margin

58th percentile

11%

Higher net margin than 58% of similar nonprofits.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2022

Top Officer Pay

65th percentile

$92,934

Higher top officer pay than 65% of similar nonprofits.

Top officer pay equals 13.3% of source-year revenue.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2022

Asset Growth

21st percentile

-9.1%

Faster asset growth than 21% of similar nonprofits.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2021 to 2022

Revenue Growth

59th percentile

13%

Faster revenue growth than 59% of similar nonprofits.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2021 to 2022

Balance Sheet
Liabilities / Assets29th percentile

Assets

Down

$1,650,988

Down $165,397 (-9.1%) from 2021

Net Assets

Down

$1,637,198

Down $175,299 (-9.7%) from 2021

Liabilities

Up

$13,790

Up $9,902 (+255%) from 2021

Revenue And Expenses
Liabilities / Revenue31st percentileNet Margin58th percentile

Revenue

Up

$697,297

Up $77,480 (+13%) from 2021

Expenses

Up

$619,251

Up $84,691 (+16%) from 2021

Net Income

Down

$78,046

Down $7,211 (-8.5%) from 2021

Historical Trend

Balance Sheet Trend

Asset Growth21st percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$2.0M$1.5M$1.0M$500K$0Assets 2015: $638,150Liabilities 2015: $4,809Net Assets 2015: $633,3412015Assets 2016: $669,107Liabilities 2016: $20,272Net Assets 2016: $648,8352016Assets 2017: $877,410Liabilities 2017: $26,664Net Assets 2017: $850,7462017Assets 2018: $886,446Liabilities 2018: $31,846Net Assets 2018: $854,6002018Assets 2019: $928,212Liabilities 2019: $7,553Net Assets 2019: $920,6592019Assets 2020: $1,668,448Liabilities 2020: $9,761Net Assets 2020: $1,658,6872020Assets 2021: $1,816,385Liabilities 2021: $3,888Net Assets 2021: $1,812,4972021Assets 2022: $1,650,988Liabilities 2022: $13,790Net Assets 2022: $1,637,1982022Assets 2024: $1,582,758Liabilities 2024: $11,523Net Assets 2024: $1,571,2352024

Highlighted filing

2022

Assets$1,650,988
Liabilities$13,790
Net Assets$1,637,198
Open 2022 Filing

Operations Trend

Revenue Growth59th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.5M$1.0M$500K$0-$500KRevenue 2015: $458,130Expenses 2015: $413,330Net Income 2015: $44,8002015Revenue 2016: $565,079Expenses 2016: $549,585Net Income 2016: $15,4942016Revenue 2017: $699,727Expenses 2017: $539,933Net Income 2017: $159,7942017Revenue 2018: $626,533Expenses 2018: $637,582Net Income 2018: -$11,0492018Revenue 2019: $624,011Expenses 2019: $621,178Net Income 2019: $2,8332019Revenue 2020: $1,243,802Expenses 2020: $559,039Net Income 2020: $684,7632020Revenue 2021: $619,817Expenses 2021: $534,560Net Income 2021: $85,2572021Revenue 2022: $697,297Expenses 2022: $619,251Net Income 2022: $78,0462022Revenue 2024: $569,401Expenses 2024: $682,298Net Income 2024: -$112,8972024

Highlighted filing

2022

Revenue$697,297
Expenses$619,251
Net Income$78,046
Open 2022 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2022 to Dec 31, 2022
Signed
Sep 4, 2023
Return Version
2022v5.0
Gross Receipts
$985,077
Mission and Program Overview

Mission

LymeDisease.org (Formerly CALDA) advocates nationwide for access to better health care for patients through public health policy and legal analysis, education, and medical research. We publish the Lyme Times quarterly journal, maintain an extensive educational website at www.lymedisease.org, help fund physician training, and conduct patient surveys. What makes LymeDisease.org unique is our combination of legal, ethical and policy analysis and advocacy combined with our ability to communicate effectively through print, email, and websites. LymeDisease.org board members have written more than 30 peer reviewed publications for medical and legal journals.

Lymedisease.org (formerly calda) advocates nationwide to make the patient voice stroner, to support patient-centered research, to create legislative change, and to create a future where lyme patients can receive the treatments they need to get well.

Balance Sheet Detail
LineBeginningEndChange
Assets
Rtn Earn Endowment Incm Other Fnds$1,812,497$1,637,198▼ $175,299
Investments in Publicly Traded Securities-$1,390,100-
Cash and Non-Interest-Bearing Accounts$166,887$247,641▲ $80,754
Savings and Temporary Cash Investments$1,649,498$13,247▼ $1,636,251
Total Assets$1,816,385$1,650,988▼ $165,397
Liabilities
Accounts Payable and Accrued Expenses$3,888$13,790▲ $9,902
Total Liabilities$3,888$13,790▲ $9,902
Net Assets / Fund Balance
Total Net Assets Fund Balance$1,812,497$1,637,198▼ $175,299
Total Liabilities and Net Assets / Fund Balance$1,816,385$1,650,988▼ $165,397

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings-$99,382$99,382
Compensation and Service Providers
Top Officer Pay65th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Lorraine JohnsonCEOFT$92,934$92,934
Carolyn DegnanSecretary, CFT$89,330$89,330
Dorothy Kupcha LelandPresidentPT$23,000$23,000

Board Members and Trustees

NameTitle
Ron LindorfChairman
Christine GreenDirector
Erica LehmanDirector
Caleb ManscillCTO
Raphael Stricker MdMedical Dire
Mitchell HoggardTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$586,115
Program Service Revenue
$0
Investment Income
$111,182
Other Revenue
$0
All Other Contributions
$431,842
Change in Net Assets
$78,046
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$389,193
Other Expenses$230,058
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Current Officers, Directors, Trustees, and Key Employees$174,475$30,790-$205,265
Other Salaries and Wages$114,199$14,115-$128,314
Information Technology$65,059--$65,059
Payroll Taxes$49,496$6,118-$55,614
Fees for Services Accounting$30,740$7,685-$38,425
Office Expenses$24,465$649-$25,114
Fees for Services Other$1,976$1,978-$3,954
Insurance-$3,800-$3,800
Other Expenses$896$460-$896
Travel$453--$453
All Other Expenses-$234-$234
Total Functional Expenses$512,364$106,887$0$619,251
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 11B

“The ceo and treasurer review the form 990 and submit it to the directors for comment.”

Form 990, Page 6, Part VI, Line 15A

“The board discusses compensation when it is to be changed. At the time of implementation the board considered comparable compensations at other non- profits.”

Form 990, Page 6, Part VI, Line 19

“AVAILABLE UPON REQUEST.”

Filing and Contact Details

Filer

Filer Name
Lymediseaseorg
EIN
68-0214101
Phone
5108070133
Address
PO BOX 716, SAN ROMAN, CA 94583

Signing Officer

Name
Mitchell Hoggard
Title
Treasurer
Phone
5108070133
Signed
2023-09-04
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Mitchell Hoggard
Formed
1990
Legal Domicile
CA
Voting Board Members
9
Independent Board Members
9
Employees
2
Volunteers
35

Preparer

Firm
Teuscher Walpole LLC
Address
11910 S STATE ST STE 200, DRAPER, UT 84020-7738
Preparer
Ryan J Thompson CPA
Phone
8016191400
Supplemental Narrative

Additional Explanations

FORM 990 - ORGANIZATION'S MISSION

“Lymedisease.org (formerly calda) advocates nationwide to make the patient voice stroner, to support patient-centered research, to create legislative change, and to create a future where lyme patients can receive the treatments they need to get well.”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0LYMEDISEASE.ORG (FORMERLY CALDA) ADVOCATES NATIONWIDE TO MAKE THE PATIENT VOICE STRONER, TO SUPPORT PATIENT-CENTERED RESEARCH, TO CREATE LEGISLATIVE CHANGE, AND TO CREATE A FUTURE WHERE LYME PATIENTS CAN RECEIVE THE TREATMENTS THEY NEED TO GET WELL.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1THE CEO AND TREASURER REVIEW THE FORM 990 AND SUBMIT IT TO THE DIRECTORS FOR COMMENT.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2THE BOARD DISCUSSES COMPENSATION WHEN IT IS TO BE CHANGED. AT THE TIME OF IMPLEMENTATION THE BOARD CONSIDERED COMPARABLE COMPENSATIONS AT OTHER NON- PROFITS.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3AVAILABLE UPON REQUEST.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990 - ORGANIZATION'S MISSION
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PAGE 6, PART VI, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PAGE 6, PART VI, LINE 15A
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3FORM 990, PAGE 6, PART VI, LINE 19
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IRS990/VotingMembersIndependentCnt09
IRS990/WebsiteAddressTxt0WWW.LYMEDISEASE.ORG
IRS990/WhistleblowerPolicyInd0false
ReturnHeader/BuildTS02023-04-26 12:10:37Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd0true
ReturnHeader/BusinessOfficerGrp/PersonNm0MITCHELL HOGGARD
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0TREASURER
ReturnHeader/BusinessOfficerGrp/PhoneNum05108070133
ReturnHeader/BusinessOfficerGrp/SignatureDt02023-09-04
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0LYMEDISEASEORG
ReturnHeader/Filer/BusinessNameControlTxt0LYME
ReturnHeader/Filer/EIN0680214101
ReturnHeader/Filer/PhoneNum05108070133
ReturnHeader/Filer/USAddress/AddressLine1Txt0PO BOX 716
ReturnHeader/Filer/USAddress/CityNm0SAN ROMAN
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ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0274029610
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0TEUSCHER WALPOLE LLC
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt011910 S STATE ST STE 200
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0DRAPER
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0UT
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd0840207738
ReturnHeader/PreparerPersonGrp/PhoneNum08016191400
ReturnHeader/PreparerPersonGrp/PreparationDt02023-09-04
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0RYAN J THOMPSON CPA
ReturnHeader/ReturnTs02023-09-15T15:03:13-04:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/SigningOfficerGrp/PersonFullName/PersonFirstNm0MITCHELL
ReturnHeader/SigningOfficerGrp/PersonFullName/PersonLastNm0HOGGARD
ReturnHeader/TaxPeriodBeginDt02022-01-01
ReturnHeader/TaxPeriodEndDt02022-12-31
ReturnHeader/TaxYr02022

Document Assets

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Filings

Displayed year

2022 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$1,650,988
Liabilities
$13,790
Net assets
$1,637,198
Revenue
$697,297
Expenses
$619,251
Net income
$78,046
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.58$0.01$1.57$0.57$0.68$0.11
2022Detailed filing. Detailed filing data is available for this year.$1.65$0.01$1.64$0.70$0.62$0.08
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.82$0.00$1.81$0.62$0.53$0.09
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.67$0.01$1.66$1.24$0.56$0.68
2019Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.93$0.01$0.92$0.62$0.62$0.00
2018Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.89$0.03$0.85$0.63$0.64$0.01
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.88$0.03$0.85$0.70$0.54$0.16
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.67$0.02$0.65$0.57$0.55$0.02
2015Detailed filing. Detailed filing data is available for this year.$0.64$0.00$0.63$0.46$0.41$0.04