Liabilities / Assets
30th percentile
Higher debt load relative to assets than 30% of similar nonprofits.
EIN 68-0214101 • 501(c)3 • San Diego, CA
Profile
LymeDisease.org (Formerly CALDA) advocates nationwide for access to better health care for patients through public health policy and legal analysis, education, and medical research. We publish the Lyme Times quarterly journal, maintain an extensive educational website at www.lymedisease.org, help fund physician training, and conduct patient surveys. What makes LymeDisease.org unique is our combination of legal, ethical and policy analysis and advocacy combined with our ability to communicate effectively through print, email, and websites. LymeDisease.org board members have written more than 30 peer reviewed publications for medical and legal journals.
Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.
Liabilities / Assets
30th percentile
Higher debt load relative to assets than 30% of similar nonprofits.
Liabilities / Revenue
35th percentile
Higher debt load relative to revenue than 35% of similar nonprofits.
Net Margin
14th percentile
Higher net margin than 14% of similar nonprofits.
Top Officer Pay
72nd percentile
Higher top officer pay than 72% of similar nonprofits.
Top officer pay equals 19.8% of source-year revenue.
Asset Growth
28th percentile
Faster asset growth than 28% of similar nonprofits.
Revenue Growth
60th percentile
Faster revenue growth than 60% of similar nonprofits.
Assets
Down$1,582,758
Down $68,230 (-4.1%) from 2022
Liabilities
Down$11,523
Down $2,267 (-16%) from 2022
Net Assets
Down$1,571,235
Down $65,963 (-4.0%) from 2022
Revenue
Down$569,401
Down $127,896 (-18%) from 2022
Expenses
Up$682,298
Up $63,047 (+10%) from 2022
Net Income
Down-$112,897
Down $190,943 (-245%) from 2022
Most recent year
2024 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.
LymeDisease.org (Formerly CALDA) advocates nationwide for access to better health care for patients through public health policy and legal analysis, education, and medical research. We publish the Lyme Times quarterly journal, maintain an extensive educational website at www.lymedisease.org, help fund physician training, and conduct patient surveys. What makes LymeDisease.org unique is our combination of legal, ethical and policy analysis and advocacy combined with our ability to communicate effectively through print, email, and websites. LymeDisease.org board members have written more than 30 peer reviewed publications for medical and legal journals.
Lymedisease.org (formerly calda) advocates nationwide to make the patient voice stroner, to support patient-centered research, to create legislative change, and to create a future where lyme patients can receive the treatments they need to get well.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Rtn Earn Endowment Incm Other Fnds | $1,630,873 | $1,571,235 | ▼ $59,638 |
| Investments in Publicly Traded Securities | $1,453,922 | $1,399,291 | ▼ $54,631 |
| Cash and Non-Interest-Bearing Accounts | $172,507 | $171,299 | ▼ $1,208 |
| Savings and Temporary Cash Investments | $11,249 | $12,168 | ▲ $919 |
| Total Assets | $1,637,678 | $1,582,758 | ▼ $54,920 |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $6,805 | $11,523 | ▲ $4,718 |
| Total Liabilities | $6,805 | $11,523 | ▲ $4,718 |
| Net Assets / Fund Balance | |||
| Total Net Assets Fund Balance | $1,630,873 | $1,571,235 | ▼ $59,638 |
| Total Liabilities and Net Assets / Fund Balance | $1,637,678 | $1,582,758 | ▼ $54,920 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Equipment | - | $99,382 | $99,382 |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Lorraine Johnson | CEO | FT | $112,857 | $112,857 |
| Name | Title |
|---|---|
| Ron Lindorf | Chairman |
| Dorothy Kupcha Leland | President |
| Barbara Barsocchini | Board Member |
| Christine Green | Director |
| Erica Lehman | Director |
| Caleb Manscill | CTO |
| Raphael Stricker Md | Medical Dire |
| Carolyn Degnan | Secretary, C |
| Mitchell Hoggard | Treasurer |
| Line Item | Amount |
|---|---|
| Salaries, Compensation, and Employee Benefits | $456,332 |
| Other Expenses | $225,966 |
| Total Fundraising Expense | $17,891 |
| Grants and Similar Amounts Paid | $0 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Other Salaries and Wages | $254,490 | $31,454 | - | $285,944 |
| Current Officers, Directors, Trustees, and Key Employees | $100,443 | $12,414 | - | $112,857 |
| Information Technology | $74,675 | - | - | $74,675 |
| Payroll Taxes | $51,203 | $6,328 | - | $57,531 |
| Fees for Services Accounting | $28,726 | $7,182 | - | $35,908 |
| Office Expenses | $2,772 | $924 | $17,891 | $21,587 |
| Fees for Service Investment Mgmnt Fees | - | $9,408 | - | $9,408 |
| Travel | $8,447 | - | - | $8,447 |
| Insurance | $1,625 | $3,195 | - | $4,820 |
| Advertising | $3,436 | $425 | - | $3,861 |
| Fees for Services Other | $3,183 | $393 | - | $3,576 |
| Other Expenses | $630 | $6,244 | - | $630 |
| All Other Expenses | - | $120 | - | $120 |
| Total Functional Expenses | $569,962 | $94,445 | $17,891 | $682,298 |
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $0 |
“The ceo and treasurer review the form 990 and submit it to the directors for comment.”
“The board discusses compensation when it is to be changed. At the time of implementation the board considered comparable compensations at other non- profits.”
“AVAILABLE UPON REQUEST.”
“Lymedisease.org (formerly calda) advocates nationwide to make the patient voice stroner, to support patient-centered research, to create legislative change, and to create a future where lyme patients can receive the treatments they need to get well.”
“ADMIN SERVICES”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
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| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 6805 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 11523 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | LYMEDISEASE.ORG (FORMERLY CALDA) ADVOCATES NATIONWIDE TO MAKE THE PATIENT VOICE STRONER, TO SUPPORT PATIENT-CENTERED RESEARCH, TO CREATE LEGISLATIVE CHANGE, AND TO CREATE A FUTURE WHERE LYME PATIENTS CAN RECEIVE THE TREATMENTS THEY NEED TO GET WELL. |
| IRS990/AdvertisingGrp/ManagementAndGeneralAmt | 0 | 425 |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 3436 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 3861 |
| IRS990/AllOtherContributionsAmt | 0 | 271824 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 120 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 120 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | BRAD JONES |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 8015921740 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 624 S 100 W |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | OREM |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | UT |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 84058 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | false |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 172507 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 171299 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 12414 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 100443 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 112857 |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | true |
| IRS990/CompensationProcessOtherInd | 0 | false |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 412590 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 0 |
| IRS990/CYInvestmentIncomeAmt | 0 | 156811 |
| IRS990/CYOtherExpensesAmt | 0 | 225966 |
| IRS990/CYOtherRevenueAmt | 0 | 0 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | -112897 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 456332 |
| IRS990/CYTotalExpensesAmt | 0 | 682298 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 17891 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 569401 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/Desc | 0 | EDUCATION - WE ARE THE LARGEST AND MOST TRUSTED COMMUNICATIONS NETWORK FOR LYME DISEASE IN THE NATION. THE ORGANIZATION RAISES THE LEVEL OF PUBLIC AWARENESS OF LYME DISEASE THROUGH OUR PUBLISHED BLOGS AND THE DIGITAL LYME TIMES AS WELL AS THE INTERNET, AND SOCIAL MEDIA. |
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| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | true |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 2 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | true |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 216586 |
| IRS990/FamilyOrBusinessRlnInd | 0 | false |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 7182 |
| IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt | 0 | 28726 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 35908 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 393 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 3183 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 3576 |
| IRS990/FeesForSrvcInvstMgmntFeesGrp/ManagementAndGeneralAmt | 0 | 9408 |
| IRS990/FeesForSrvcInvstMgmntFeesGrp/TotalAmt | 0 | 9408 |
| IRS990/ForeignActivitiesInd | 0 | false |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 60.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 18.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 50.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 3.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 3.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 3.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 20.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 3.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | LORRAINE JOHNSON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | BARBARA BARSOCCHINI |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | CAROLYN DEGNAN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | CHRISTINE GREEN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | MITCHELL HOGGARD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | ERICA LEHMAN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | DOROTHY KUPCHA LELAND |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | RON LINDORF |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | CALEB MANSCILL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | RAPHAEL STRICKER MD |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 112857 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | CEO |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | SECRETARY, C |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | TREASURER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | PRESIDENT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | CHAIRMAN |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | CTO |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | MEDICAL DIRE |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/FormationYr | 0 | 1990 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedInd | 0 | false |
| IRS990/FundraisingActivitiesInd | 0 | false |
| IRS990/GainOrLossGrp/OtherAmt | 0 | 1303 |
| IRS990/GainOrLossGrp/SecuritiesAmt | 0 | 108238 |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 8 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | false |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossAmountSalesAssetsGrp/OtherAmt | 0 | 1303 |
| IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt | 0 | 486480 |
| IRS990/GrossReceiptsAmt | 0 | 947643 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | false |
| IRS990/IndependentAuditFinclStmtInd | 0 | false |
| IRS990/IndependentVotingMemberCnt | 0 | 8 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 1 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartIIIInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 74675 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 74675 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 3195 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 1625 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 4820 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 47270 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 47270 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/InvestmentsPubTradedSecGrp/BOYAmt | 0 | 1453922 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 1399291 |
| IRS990/IRPDocumentCnt | 0 | 7 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 99382 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 99382 |
| IRS990/LegalDomicileStateCd | 0 | CA |
| IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt | 0 | 378242 |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | false |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembershipDuesAmt | 0 | 140766 |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | true |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | LYMEDISEASE.ORG (FORMERLY CALDA) ADVOCATES NATIONWIDE TO MAKE THE PATIENT VOICE STRONER, TO SUPPORT PATIENT-CENTERED RESEARCH, TO CREATE LEGISLATIVE CHANGE, AND TO CREATE A FUTURE WHERE LYME PATIENTS CAN RECEIVE THE TREATMENTS THEY NEED TO GET WELL. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | false |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 1630873 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 1571235 |
| IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt | 0 | 109541 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | 109541 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | 53259 |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 17891 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 924 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 2772 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 21587 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrgDoesNotFollowFASB117Ind | 0 | X |
| IRS990/OtherExpensesGrp/Desc | 0 | LYME TIME |
| IRS990/OtherExpensesGrp/Desc | 1 | BANK CHARGES |
| IRS990/OtherExpensesGrp/Desc | 2 | DUES & SUBSCRIPTIONS |
| IRS990/OtherExpensesGrp/Desc | 3 | MISC |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 16358 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 6244 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 38168 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 2164 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 630 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 54526 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 6244 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 2164 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 630 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 31454 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 254490 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 285944 |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 6328 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 51203 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 57531 |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrincipalOfficerNm | 0 | MITCHELL HOGGARD |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | RESEARCH - WE CONDUCT AND PUBLISH RESEARCH THROUGH ONE OF THE LARGEST STUDIES OF LYME DISEASE THROUGH OUR PATIENT REGISTRY AND RESEARCH PLATFORM,MYLYMEDATA, WITH OVER 13,000 PATIENTS ENROLLED TO DATE. WE COLOLABORATE WITH RESEARCHERS FROM THE UNIVERSITY OF WASHINGTON AND FROM UCLA, AS WELL AS BAY AREALYME FOUNDATIONBIOBANK ON A TISSUE SPECIMENT BIOREPOSITORY. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 205187 |
| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | ADVOCACY - WE STRIVE FOR PATIENT INVOLVEMENT AT ALL LEVELS OF DECISION MAKING. WE REPRESENT HUNDREDS OF THOUSANDS OF PATIENTSAND PROVIDE THEM WITH THE TOOLS ESSENTIAL TO EMPOWERMENT. FOR OVER 10 YEARS, WE HAVE BEEN INVOLVEDIN PATIENT-LED BIG DATA RESEARCH EFFORTS, CONDUCTING LARGE SCALE PATIENT SURVEYS THAT ENGAGE THOUSANDS OF PATIENTS AND ARE PUBLISHED IN PEER REVIEWED JOURNALS. |
| IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt | 0 | 96893 |
| IRS990/ProgSrvcAccomActyOtherGrp/Desc | 0 | ADMIN SERVICES |
| IRS990/ProgSrvcAccomActyOtherGrp/ExpenseAmt | 0 | 51296 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 432483 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYInvestmentIncomeAmt | 0 | 69464 |
| IRS990/PYOtherExpensesAmt | 0 | 220365 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | -151958 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 433540 |
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| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | THE CEO AND TREASURER REVIEW THE FORM 990 AND SUBMIT IT TO THE DIRECTORS FOR COMMENT. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | THE BOARD DISCUSSES COMPENSATION WHEN IT IS TO BE CHANGED. AT THE TIME OF IMPLEMENTATION THE BOARD CONSIDERED COMPARABLE COMPENSATIONS AT OTHER NON- PROFITS. |
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| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 4 | FORM 990, PAGE 6, PART VI, LINE 19 |
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